Ketamine is an anesthesia used since the 1960s and has since been proven to work for Chronic Pain and Mental Illness. My pain levels have been through the roof and walking the last 15 days has been difficult. I made the decision to try something radically different. I had my first Ketamine treatment was yesterday. I read about the LSD […]
A medida que las temperaturas se calientan, las posibilidades de encontrar garrapatas aumentan. Hace poco una PA dijo que no tenemos a Lyme en Texas, ¿qué? Sí, las enfermedades aburridas de Lyme o garrapatas están en todos los estados. Algunos estados tienen un mayor porcentaje de casos, pero no se engañe, las enfermedades transmitidas por garrapatas se encuentran en todos […]
I’m blown away Stacey Chapman at https://fightingwithfibro.com awarded me The Disability Award. You have to check out her site, here’s the original award post, https://fightingwithfibro.com/2019/04/27/the-disability-award/ Her sunny personality welcomes you with every post, she’s informative, topics are fresh, up to date and she reviews products we might be interested in. She is very knowledgeable. Following her is a must. As part of my nomination, I choose other Disability Bloggers to give this award to. They are as follows: Wendy at simplychronicallyill.wordpress.com Patricia at https://patriciajgrace.wordpress.com Colly at https://dopaminequeen.com Alyssia at https://fightingmsdaily.com Mackenzie at lifewithanillness.com Robert at https://robertmgoldstien.com Gavin at https://sedge.com Nominees: Please answer the questions, choose your own nominees and develop your own set of questions. Stacey’s questions are so good I’m going with her’s. Display the award badge. What was the first sign of your illness? My chest and right clavicle starting hurting and would not go away for months. What is your worst symptom and how do you cope with it? Whatever it takes, pain meds, a nap, meditation, looking at the flower garden, put feet in the pool, letting them float. What one thing about you has changed as a result of your struggles? I understand people with all types of disabilities better. What words of advice or encouragement would you give to someone else suffering? Accept it, embrace your illness as part of your daily life and work on what relieves your pain. Name one good thing that has come out of having […]
Lyme is one of many Autoimmune Diseases that share the same or similar symptoms. It’s one reason doctor’s tend to treat each symptom until they realize it’s one illness and give a referral or you’ve given up on them. My journey started with pain in the middle of my chest, Costochondritis, my General Practitioner said, it will heal in […]
By Susan Scutti, CNN 17 hours ago The Asian longhorned tick most likely began invading the United States years ago. Now found in nine states, the tick may soon occupy a large swath of eastern North America as well as coastal regions of the Pacific Northwest, according to research published Thursday in the Journal of Medical Entomology. “This tick can […]
ILADS has taken the bold step from staying under the radar to leading the way to better LYME treatment. Today many “expert” Lyme doctors are training Medical doctors to recognize Lyme, basic treatment with written treatment guidelines. You can download the Treatment Guidelines yourself, I look forward to reading. In theory it sounds good for Lyme suffers looking for a diagnosis. […]
The Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes (or Ad Hoc Committee) is an international, all voluntary, professional committee formed to improve the ICD codes for Lyme and Relapsing Fever borreliosis and address the human rights violations generated by inadequate codes. In 2017, members of the Ad Hoc Committee met with Dainius Pūras, the United Nations (UN) […]
Netflix original series “Afflicted” season one has started and you can look at latest trailer at http://www.netflix.com/title/80188953 The Netflix promo grabbed me by the neck and said watch me. “Afflicted” is a show with the people who have baffling long-term chronic illnesses telling their story. Talking with medical professionals, most are clueless what is causing the illnesses. M
Original post 5/23/2018 Reposted for The Fibromyalgia Directory. It’s summertime, ticks and insects carrying tick born illnesses are worse than last year. Practice all precautions if out in tall grass, tall scrubs or trees. I’m dealing with in Dementia, Fibromyalgia, Neuropathy, Lyme Arthritis, Cognitive issues, PAIN, falling, PAIN and pain medicines. There are days you want to cry, scream, on […]
I fired my Lyme Literate Doctor The last straw! My Lyme PA prescribed a medication which interacted with a psych medication. Making me Psychotic, pure bat crazy. Scared of myself. Walking in circles non-stop until exhausted. It took days for the medication to clear my system and bring me back to earth. It was life changing. I said horrible things […]
Amazon donates to International Lyme and Associated Diseases Educational Foundation when you shop at AmazonSmile. Please bookmark the link http://smile.amazon.com/ch/51-0604603 so all your eligible shopping will benefit ILADEF. If you have any questions, please sign in to http://org.amazon.com and click on the Help tab to see our FAQ topics. Thank you for your participation in the AmazonSmile program! Thank You Melinda
Am I healing from Chronic Lyme Diseases? Who knows? Lyme doesn’t have a cure, only times of remission. There’s no way to plan for lingering health problems you will get, will or won’t recover from. Symptoms may go away over time, stay same or get worse. There’s no definitive test to gauge how your major organs are affected unless the damage is severe. The symptoms I struggle with daily are pain, pain pain, lack of balance, some memory has returned looking like a Tommy Gun practice. There are days when I can remember for a few minutes instead of seconds. If you’ve read my post the past two years, you’ve seen the cognitive issues. I can’t recall the proper name of items, have no concept of time and don’t fully recognize inflection. After two years in bed, I started to relearn walking in mid March. Falling is a physical daily threat. As my body gets physically stronger there are years of doctor and dentist appointments to catch up on. Before Lyme I started to develop Agoraphobia which has manifested to extreme levels anxiety leaving the house. Every doctors appointment is a challenge. The Lyme doctor prescribed a drug in the same class as one I take for my mental illness. I became Psychotic, waiting a week to touch down in reality. While Psychotic I wanted to hurt people, I was ANGRY. The person I became was not me, yelling, screaming, […]
I am walking after three years spent in bed, how could anything be worse than Lyme Disease. I’ve lost three years of my life screaming in pain, narcotics, nine months of twice a day IV Infusion Treatments. The conflict in my marriage is understandable but not erased. I can not stress enough how important Tick Borne illnesses are, they can kill. If you already have a compromised immune system, your starting behind the curve. I’ve talked to many at WordPress with Chronic Lyme, many of them spent 10-15 years before diagnosis. Think of the pain and isolation of our fellow Bloggers. People have said we don’t have ticks, for one Lyme and Powassan Disease is transmitted by many sources other than ticks, mosquitos, sand flies, are just a few culprits. Thick of it this way, in the wild animals of all types of animals die, many pest visit the buffet. Now imagine how many pest fly to a hump of dung! Many more than we know and the world is bigger than or neighborhood. The flying pest target is blood, they have to eat. They don’t discriminate on were to go for lunch. The ticks who carry Tick Borne illnesses are smaller than a pencil lead, try to find that while doing a tick check, you will not see them. Before Chronic Lyme I refused to use DEET, now I won’t step out of my house without. At least 20% […]
The days get lonely, when your symptoms reach the disability stage. Times can get lonely, ask friend or create a circle of like-minded friends who you can talk honestly with. Keep Learning. If you’re concerned about addiction, talk to Doctor as you decide the treatment best for you.One complete withdraw on Xanax and two days without Temazepam. This is a monthly struggle. The CDC is putting a tighter grip on Control Substance management is critical if you suffer from lack of memory. Going thru withdraw in August and not clear how, I had to understand how this happened. I get anxiety when an addictive drug is running low. I’m addicted to are Xanax, Dexedrine, Tramadol, and Morphine Patches. The Xanax and Dexedrine are for mental illness the others are for Lyme Protocol. The ongoing frustration is with myself, CVS and my husband. It is difficult to take care of a Chronically Ill person. My husband has to work, do every task at home, grocery shopping, everything. That’s a big understatement. I have severe dysfunction in memory & cognitive ability. CVS had new script for increased dosage of four a day, first refill my Doctor called increased to 3 daily, a week later he increased the dosage to 4X. If CVS would have filled each new increased dosage I could skipped the experience of 100% withdraw. Part of my Lyme Protocol is Temazepam, a restless leg medicine. If you can’t sleep you’re […]
I included the photo to show I’m very organized and life is getting ready for change. *The chatter are my thoughts, a Lyme Literate Doctor can consult and talk about options.* Xx M Living with Chronic Lyme Disease, requires tremendous faith, inner and physical strength. Please search to discover you’re core strength: it strength may save your life. Have you […]
I’m sending you health and happiness. Get lost in music, get your feet moving and GET GROVE ON. Wild Horses remind me of unpleasant times in life, yet tied to my soul. I’m a Survivor, it’s nice to remember. Wild Horses reminds me how far I’ve come. XxM
Chronic Lyme has invaded my brain, emotions and bodies ability to move without tremendous pain. I’m blessed to have pain meds and others to provide comfort. Not being to walking is depressing. I wanted to thank you and Twitter buddies for your love, prayers and awesome videos sent my way. I love James Brown, his grove is infectious. “I Feel Good” video is my fake it till you make it positive thinking. The second, well just to see his grove! The man can dance. Both made me smile and you make me smile brighter. Without a doubt better days are ahead. God has my path planned out. Xx Melinda
@SeeYouClearly Forging through another day! Life is good! 👍 pic.twitter.com/Kab7zdpYLV — Nobody's Hero (@BoldAsLove65) October 12, 2016
In 11 years of Blogging, I can’t recall a time going flip out, full rant on anyone. Today changed everything. We are all due our opinion, we live in the great country of America. People have the same right to voice an opposing view. It’s important my friends and followers know what I will fight for and what my true passions are. Mental Health is on top of the list, I advocate, help anyone who ask, manage my own mental health on a daily basis. I returned home late last night from D.C. and pretty tired today, I could have read the post wrong. Here are a few comments by someone who knows nothing about mental illness. Xx M *So why then are we still calling these very physical and real illnesses “mental illness”?* *So why when someone has an illness in their brain, do we call it a mental illness?* My thoughts on post While I agree on some points, you are way off base speaking on mental illness. No longer saying someone has a mental illness? WOW!! Mental illness is a serious illness the same as cancer, losing a limb or going blind. First Cancer has no cure, you want to just say oh, there sick? Instead of calling someone an amputee, oh they lost their leg, this person sufferers from endless pain battling their brain, the good and the worst. When someone is in a dark depression […]
The International Lyme Disease Association (ILADS) http://ilads.org, knows Chronic Lyme Disease exists, requiring extensive treatment currently restricted by the Center of Disease Control. The letter is a proactive communication advocating for longer treatment options. Taken From ILADS letter to Centers for Medicare & Medicaid Services Department of Health and Human Services. RE: Proposed Rule concerning antibiotic stewardship in Hospitals, Critical Access Hospitals and Nursing Homes Additionally, the proposed rule emphasizes measures to eliminate discrimination directed at certain groups. The ILADS comment pointed out that persons with Lyme disease and tick-borne infections constitute a large and growing class of individuals subjected to severe and unjust discrimination which requires recognition and correction. Specifically, although many individuals in this group of patients often require longer courses of antimicrobials than are commonly prescribed, many are denied appropriate care based on arbitrary protocols that do not consider the specifics of their case. While ILADS recognizes that there are differences of opinion in the literature, after a thorough review of the evidence regarding Borrelia burgdorferi, the agent of Lyme disease, ILADS concluded that here is substantial scientific support for persistent infection. For this reason, ILADS promotes the selective and judicious use of extended antimicrobial therapy in patients with Lyme disease rather than the arbitrarily proscribed treatment durations championed by others. http://www.ilads.org/ilads_news/2016/ilads-statement-on-cms-proposed-rule-concerning-antibiotic-stewardship/ To read the entire response, click on link above. You will see the organizations fundamental beliefs, commitment to improving treatment for Lyme and other tick […]
Let’s Talk Lyme Last update, we talked about IV Therapy as a treatment option for Chronic Lyme Disease. IV Therapy is one type of medicine to help you heal. I also take a close to 20 prescriptions and who knows how many supplements. Insurance doesn’t pay for the IV Therapy which is quite common. To ask a question thru the […]
I celebrate my 7th year blogging anniversary and turn 53 in four days. Neither occasion are important on their own. What make this year so special is I’m alive. So many of you prayed , sent well wishes yet never treated me different. I started my first blog to help grieve my granny’s death. Flash forward, I’m blessed learning other cultures around the world. Blogging with millions of people at WP there are opportunities to learn, share and clarify the misunderstood. The most important lesson learned is people are generally good. I’m free to write my thoughts, some will not agree, others will not. We need different perspectives to broaden our mind. Thank you for making every year a good one. I appreciate the kind thoughts, asking how I’m doing and treating me normal. I hope to see you in the years to come. Party On!!!!! Pass the milk please! Hugs Melinda
Growing up with four bothers, I was a fearless tomboy. At 12 years old I was crowned with braces. After a few pops in the mouth my football career was over. Good childhood memories. Chronic Lyme Diseases affects everyone different, my parasites settled into my brain. The first sign was the lack of balance. Think about the walk taken after getting pulling over for intoxication. I could take 2-3 steps at most with eyes closed. I have continued to have balance and common sense my husband would say. The clouds mingled as a storm moved in.Vibrant orange, pinks and every shade of blue. While he walked the dogs, I stood on the hot tub taking photos. Hours after the rain, I noticed a large earthworm on the storm door. My mission was to save the earthworm. If I bend below the knees, I’m going down. I diligently dug a hole in the dirt with one knee holding me up.David came running outside just in time for a glorious Circus tryout.. I fell down two bricks stairs, grabbing a landscape light on the way down it stabs me in the stomach. Then a loud crack as my head hit a stone brick. I was stunned and wanted to cry. No time for crying, he is yelling to see if conscious while trying to maneuver me from under patio table. It was time for me to sit and find my legs and damage done […]
I dedicate this post to the chronically ill, newly diagnosed and their caregivers. You are the Survivors. It took three painful years to learn I had Chronic Lyme Disease. I’ve had bumps over the years, nothing like Lyme. I’m totally dependent on my husband. Every week he takes countless hours off work. There’s IV Therapy before and after work. Day to-day monitoring the catheter with weekly bandage changes. Out of state doctor appointments once a month, insure medicines are taken properly, on time and everything you can think of. I didn’t know what life would teach me. Boy have I learned and want to share with you. The ongoing guilt is a challenge for me.Guilt for not getting out of bed, doing laundry, on and on. I had no concept of how humiliating daily life can get. I march on. At 52, I wear Kotex for daily spills. The agony of not taking extra Kotex on long flight. I made a list to complete before treatment. HA! It’s hard to prepare for everything when an illness effects everyone different. The post is female oriented, I can’t speak for men. Use your imagination. Some suggestions will make you laugh and others grateful to know. Here are a few surprises. The list is task you may want to consider. Any Dental work Mammogram Gynecologist By wardrobe essentials, one size larger, possibly add another half-size or larger. Shoes become a nightmare, one day your sneakers fit, next day […]
The post is my opinion based on my own experience and talking to people with Lyme Disease. The symptoms of Lyme Disease are the same as many chronic illnesses. The parasites move quickly, if not caught early, the more difficult to treat. Lyme is a serious illness, it moves to major organs which bring on worst symptoms. I have Chronic Lyme and two co-infections. The parasites have moved to my brain, causing cognition, balance, eyesight and pain is severe. Most days I’m in bed due to pain and trying to reducing inflammation. I’ve included an interview with Lorraine Johnson, CEO of lymedisease.org. She discusses Lyme, CDC and how Lyme Diseases is a serious illness. The time to take precautions is now. Xx M
Dr Jemsek is an Infectious Disease Doctor who played a pivotal role identifying AIDS in N. Carolina.You will hear him mention in the video. He is my hero and my Doctor. There are several treatment methods, each Doctor is different. I’m on antibiotic IV Therapy 5 days a week, Lactose Ringer when not on IV Therapy, close to 30 supplements, Morphine Patch, two horrible liquid Rx’s and close to 35-40 prescriptions. YouTube is an awesome source for Lyme information. Xx M
Money can create stress in the strongest marriages. With Chronic Lyme the topic of money was an issue in our house. How does $39,000 for 7-9 months of treatment impact retirement plans? I considered not spending the money. That was a heated issue, I saw our retirement go down the drain, it wasn’t a good feeling. The timeframe to wellness […]
Thank you for all the hugs and prayers, my heart overflows with sunshine. There is no question I will survive, a cure will come sooner than later. Xx M
I hope to have a Lyme Update post with information on the cost of treatment. Thank you for stopping by today. I am happy to answer any questions. Xx M
My father committed suicide in 1992 at 52 years old. After his death I questioned if I would reach 52. It’s not that I loved and missed my father, he sexually abused me. The thoughts were tied to deep depression and helping my grandmother grieve. In time the thoughts faded away until Christmas night. I don’t drink but do […]
We Are The World Blogfest: Spreading Stories of Positivity and Compassion in Social Media
