Fibromyalgia Thoughts #2

The pain has moved to my lower body, it attacks every joint and muscle I have. For the past 10 days, my leg has caused a big problem, it’s hard to walk. Any pressure on my leg makes me scream out in pain. I can’t stand up by myself unless there are objects strong enough to pull me up. My husband isn’t a little guy and it takes two or three tries because I start to cry out. I have no idea what is happening, this level of pain is new for me. It’s not so much the level but the time in constant pain. I’ve been going to bed between 4:30-6:30 p.m. every night thinking resting is the only answer. So far that seems to be the case. I can now move my knee closer to a normal sitting position. Try getting on and off the toilet, it’s been a painful 10 days. I’ve forced myself to bed in order to get better. I’m not looking for total pain relief, that’s not my goal. Right now I want to be able to get out of a chair by myself. The rest of my body feels the normal everyday dull pain, my shoulder still screams out at night. Pain meds, topical patches and ointments the doctor gave me on Friday have provided no relief. I’m laying in bed with one leg balancing the computer, trying not to walk any more than […]

Read More →

PAIN COMMUNITY UNITES TO RESPOND TO FEDERAL DRAFT REPORT

May 1, 2019/ U.S. Pain Foundation The 90-day public comment period for the Pain Management Best Practices Inter-Agency Task Force’s (PMTF) draft report came to a close April 1, with more than 6,000 individuals and organizations submitting feedback. Among those to comment was the Consumer Pain Advocacy Task Force (CPATF), a coalition of pain patient-related nonprofits, including U.S. Pain Foundation, which submitted a 25-page joint letter. In addition to U.S. Pain Foundation, the CPATF letter was signed by the Center for Practical Bioethics; CHAMP (Coalition For Headache And Migraine Patients); Chronic Pain Research Alliance; For Grace: Women In Pain; Global Healthy Living Foundation; Headache and Migraine Policy Forum; International Pain Foundation; Interstitial Cystitis Association; RSDSA (Reflex Sympathetic Dystrophy Syndrome Association); and The Pain Community. “We are very grateful that so many patient organizations joined together to respond to this report with one, unified voice,” says Cindy Steinberg, U.S. Pain Foundation’s National Director of Policy and Advocacy and the only patient advocacy representative on the PMTF. “While the draft report holds a lot of promise, from the patient perspective, we had a number of important suggestions for ways to improve or expand on its recommendations.” Of note, the CPATF letter commends the draft report’s emphasis on individualized care and encouraged further emphasis of that point. CPATF also urges PMTF to go further and recommend that the Centers for Disease Control and Prevention (CDC) formally revise and reissue their 2016 guidelines on opioid prescribing […]

Read More →

CLEARING UP 12 COMMON MYTHS ABOUT MEDICAL CANNABIS FOR PAIN

April 18, 2019/ U.S. Pain Foundation   Ellen Lenox Smith is Co-Director of Medical Cannabis for U.S. Pain and a U.S. Pain Board Member. She lives with two rare conditions: Ehlers-Danlos Syndrome and sarcoidosis. After years of struggling to find pain relief without side effects or adverse reactions, she discovered medical cannabis. A retired school teacher, Ellen is now a renowned patient advocate and works tirelessly to encourage safe, fair access to all treatment options, particularly medical cannabis. She has spoken at numerous conferences on cannabis access and been featured widely in the media on the topic. She is also the author of two books: It Hurts Like Hell!: I Live With Pain—And Have A Good Life Anyway and My Life as a Service Dog. Below, she clears up common myths surrounding medical cannabis for pain. MYTH #1: ALL  PEOPLE WHO USE CANNABIS MUST BE “STONED” OR “HIGH.” Truth: this only happens if you use too much medication. People living with pain get pain relief; people using it socially and not in pain, get high! In addition, medical cannabis is made of two components: THC, which causes the mental effects associated with feeling high, and CBD, which produces bodily effects. Various strains of cannabis have different ratios of THC and CBD, which means that not all strains create as much of a “high” feeling. MYTH #2: EVERYONE WHO USES THE SAME STRAIN EXPERIENCES THE SAME RESULT TO USING IT. Truth: Each body can have […]

Read More →

PAIN CONNECTION ADDS FOUR SUPPORT GROUPS AND NEW MONTHLY CALL

May 1, 2019/ U.S. Pain Foundation   Finding community support is essential to living with chronic pain. With that in mind, Pain Connection, a program of U.S. Pain Foundation, continues to expand its in-person and conference call support group offerings nationwide. Along with three existing monthly “Pain Connection Live” support group calls, there will now be a morning call on the third Thursday of each month from 10-11 am EST. The first call will be May 16. Existing calls are held on one evening, one afternoon, and one Saturday each month. To learn more or register for a Pain Connection Live call, click here. In addition, four new in-person support groups have been added in CA, AL, and NJ. All support groups are led by a person with pain who has received intensive training from Gwenn Herman, LCSW, DCSW, Clinical Director of Pain Connection. Costa Mesa, CA  Date: Second Tuesday of each month. The next meeting is May 14. Time: 11 am – 1 pm Location: Panera Bread at 3030 Harbor Boulevard, Costa Mesa, CA. (Meet against the back wall.) Contact: Kristie McCurdy, MSN, RN, at CRPSsurvivorsOC@gmail.com San Francisco, CA Date: Second and fourth Friday of each month. The next meetings are May 10 and May 24. Time: 12 – 1 pm Location: 1701 Divisedero Street, 5th floor conference room, San Francisco, CA. (Elevator available.) Contact: Cessa Marshal at cessamarshall@yahoo.com or 415-637-1812. Pell City, ALDate: The first meeting will be May 2. Time: 6-7:30 pm. Location: The Brook Besor Coffee Shop, 4204 Martin St. S., Cropwell, AL […]

Read More →