Most people don’t think of Mental Illness when discussing Chronic Pain. Mental Illness can be physically debilitating with many spending large amounts of time in bed. For someone like me who is challenged by both, daily life can be difficult. Today I’m in bed juggling my laptop on one knee trying to avoid the pain screaming on the left […]
Ketamine is an anesthesia used since the 1960s and has since been proven to work for Chronic Pain and Mental Illness. My pain levels have been through the roof and walking the last 15 days has been difficult. I made the decision to try something radically different. I had my first Ketamine treatment was yesterday. I read about the LSD […]
The pain has moved to my lower body, it attacks every joint and muscle I have. For the past 10 days, my leg has caused a big problem, it’s hard to walk. Any pressure on my leg makes me scream out in pain. I can’t stand up by myself unless there are objects strong enough to pull me up. My husband isn’t a little guy and it takes two or three tries because I start to cry out. I have no idea what is happening, this level of pain is new for me. It’s not so much the level but the time in constant pain. I’ve been going to bed between 4:30-6:30 p.m. every night thinking resting is the only answer. So far that seems to be the case. I can now move my knee closer to a normal sitting position. Try getting on and off the toilet, it’s been a painful 10 days. I’ve forced myself to bed in order to get better. I’m not looking for total pain relief, that’s not my goal. Right now I want to be able to get out of a chair by myself. The rest of my body feels the normal everyday dull pain, my shoulder still screams out at night. Pain meds, topical patches and ointments the doctor gave me on Friday have provided no relief. I’m laying in bed with one leg balancing the computer, trying not to walk any more than […]
in pain in pain frustrated distracted self-conscious feeling fat wanting to sleep wanting a different me feeling lazy wanting sunshine wanting a new day
U.S. Pain Foundation is a 501(c)(3) organization dedicated to improving the lives of people with chronic conditions that cause pain. HERE ARE SOME OF THE PROGRAMS WE OFFER: Awareness & Advocacy Programs INvisible Project Advocacy Program Pain Awareness Month Points For Pain Medical Cannabis Program Support & Empowerment Programs Pain Connection Pain Ambassador Network Pediatric Pain Warriors Share Your Story Education Programs Take Control of Your Pain Learn About Your Pain Pain Medicine 411 Pain Education Portal (PEP) Talks Clinical Programs National Coalition of Chronic Pain Providers and Professionals To learn more, visit: uspainfoundation.org Melinda Sandor Ambassador-Texas U.S. Pain Foundation
I’m blown away Stacey Chapman at https://fightingwithfibro.com awarded me The Disability Award. You have to check out her site, here’s the original award post, https://fightingwithfibro.com/2019/04/27/the-disability-award/ Her sunny personality welcomes you with every post, she’s informative, topics are fresh, up to date and she reviews products we might be interested in. She is very knowledgeable. Following her is a must. As part of my nomination, I choose other Disability Bloggers to give this award to. They are as follows: Wendy at simplychronicallyill.wordpress.com Patricia at https://patriciajgrace.wordpress.com Colly at https://dopaminequeen.com Alyssia at https://fightingmsdaily.com Mackenzie at lifewithanillness.com Robert at https://robertmgoldstien.com Gavin at https://sedge.com Nominees: Please answer the questions, choose your own nominees and develop your own set of questions. Stacey’s questions are so good I’m going with her’s. Display the award badge. What was the first sign of your illness? My chest and right clavicle starting hurting and would not go away for months. What is your worst symptom and how do you cope with it? Whatever it takes, pain meds, a nap, meditation, looking at the flower garden, put feet in the pool, letting them float. What one thing about you has changed as a result of your struggles? I understand people with all types of disabilities better. What words of advice or encouragement would you give to someone else suffering? Accept it, embrace your illness as part of your daily life and work on what relieves your pain. Name one good thing that has come out of having […]
Anxiety is perfectly healthy emotion that we encounter in our lives. You know the time you were taking your exams or dare I say it…driving test (it was anxiety that helped me to take the examiner to someone else’s car…but that’s a whole different story). 6 Top Tips To Alleviate Anxiety — Fibroflair.com
I shaved my head several weeks ago because bathing is to painful without having to wash and dry my hair. Fibromyalgia takes everything out of you on a daily basis even on a good day. On a bad day you don’t want to move. This isn’t the first time I’ve shaved my hair in the past seven years, it makes […]
‘Me Time’ In the Holiday The Easter holiday is upon us…umm…who called it a holiday? Ok so there is no morning school rush which, I have to admit, is great but…there is very little peace and quiet at home. via ‘Me Time’ In The Holiday — Fibroflair.com
Tuve que aceptar la pérdida del control diario una vez diagnosticado con fibromialgia. Me voy a la cama con planes para el día siguiente, cuando llega la mañana, no puedo levantarme de la cama. En el pasado, me castigaba, sentía vergüenza y rabia. Una ducha dura una hora, es doloroso y agotador. En su lugar, utilizo toallitas de limpieza […]
Without even realising, we could be eating our way into fibro fog. via Is Your Diet Contributing To Fibro Fog? — Fibroflair.com
I had to accept the loss of everyday control once diagnosed with Fibromyalgia. I go to bed with plans for the next day, when the morning rolls around, I can’t get out of bed. In the past, I would beat myself up, feel shame and anger. A shower takes an hour, it’s painful and exhausting. Instead, I use hospital approved cleansing wipes […]
The past two weeks have been really exciting for me, with so many readers or other Bloggers reaching out, commenting and emailing. It’s been SO great!! When I started blogging, I really had one goal: to try to use my experience of living with multiple chronic illnesses to help others-I somehow had to create a […] via The Importance of Having a Fibro Family for Support-Please Join Our Fibro Family! — Fighting With Fibro
I’ve written 76 WordPress post on Chronic Lyme, rarely acknowledging the other Chronic Illnesses I have. When I started treatment for Lyme someone said to me, just wait you’ll get all types of other illnesses. I thought I was dying, having IV Therapy treatment seven days a week, Sunday bandage change, and do it all over again. I flew to D.C. […]
Thank you for the information packed post. Reblogged from Fighting With Fibro. If you’re like me, you’re always trying to stay apprised of new information surrounding your illness(es). Sometimes, it seems like I never see anything new and oftentimes, it seems the data I read is just somehow recycled; one site to another. So I spent some time (okay, a lot of time) gathering facts that, maybe, […] via 22 Lesser Known Facts About Fibro — Fighting With Fibro
Last week Fighting With Fibro shared a cream that worked on her Fibromyalgia pain. It was a magnesium based product, being curious I had to understand the difference of the type she purchased. The magic word is Zechstein, many products claimed to relieve pain and a host of other problems but they didn’t have Zechstein included in ingredients. https://fightingwithfibro.com/2019/02/19/finally-something-that-actually-works-for-my-fibro-and-rls-pain/ I could not find the […]
Welcome to Remedy, a blog by U.S. Pain Foundation. Remedy aims to provide people with the support they need to thrive despite chronic pain. It features the information about promising treatments, tips and strategies for self-management, resources for coping with the emotional and social effects of pain, unique perspectives from patients, clinicians, and caregivers–and much more. To submit an article idea, email contact@uspainfoundation.org. Posted: January 14, 2019 By Brent Wells, DC, a chiropractor and founder of Better Health Chiropractic and Physical Rehab If your child feels tired and achy, you may not worry initially. After all, there’s nothing urgent about what seems to be mild, general discomfort. However, if your child is constantly in pain, exhausted, having trouble sleeping, and experiencing intense moods, he/she may have fibromyalgia. This condition is fairly common in adults, but parents and clinicians may overlook the possibility of juvenile primary fibromyalgia syndrome — that is, fibromyalgia in children. JUVENILE FIBROMYALGIA SYMPTOMS TO WATCH OUT FOR Fibromyalgia is a chronic condition characterized by pain and fatigue. According to experts, children will often describe this pain as “stiffness, tightness, tenderness, burning or aching.” This pain can last for months and is often accompanied by other symptoms that affect a child’s overall well-being, energy level, and emotional health, including: Tender spots on muscles Difficulty sleeping and fatigue Aches, including stomachaches and headaches Lack of focus or memory Anxiety and depression If your child is experiencing these symptoms, you should […]
Repost I’ve struggled with Chronic Lyme, Fibromyalgia, and Dementia for six years, every week it’s a follow-up or test for the latest ailment. I’ve made the decision to step off the Doctor Hamster Wheel in 2019. I saw a Rheumatologist two months ago, the clueless PA told me there wasn’t Lyme in Texas. REALLY? The doctor named a few possible illnesses and took my blood. The doctor’s visit was a bust but the lab work revealed my Calcium is high. Which can cause serious complications? She suggested having my Parathyroid checked. WOW, something came out of the lab work, I have another ailment to deal with! I saw the Endocrinologist, it was straight forward. A blood test, a scan at the hospital and possible surgery. We scheduled the scan immediately since it was affecting my heart. I fell down the stairs and banged myself up a good one. I landed a perfect 10! NO, I can’t lean my head back for two forty-five minute sessions. The test was rescheduled. 2019 is starting like the other six years, with a heart test scheduled, a Parathyroid scan with possible surgery, and a test for Traumatic Brain Injury from the fall. There are a few days left in 2018, I want to know who I am, how have I changed in that time. I developed Agoraphobia, haven’t driven in six years and have only seen the inside of doctor’s offices. I took the first step […]
I’ve struggled with Chronic Lyme, Fibromyalgia and Dementia for six years, every week it’s a follow-up or test for the latest ailment. I’ve made the decision to step off the Doctor Hamster Wheel in 2019. I saw a Rheumatologist a two months ago, the clueless PA told me there wasn’t Lyme in Texas. REALLY? The doctor named a few possible illnesses and took my blood. The doctor’s visit was a bust but the lab work revealed my Calcium is high. Which can cause serious complications. She suggested to have my Parathyroid checked. WOW, something came out of the lab work, I have another ailment to deal with! I saw the Endocrinologist, it was straight forward. A blood test, a scan at the hospital and possible surgery. We scheduled the scan immediately since it was effecting my heart. I fell down the stairs and banged myself up a good one. I landed a perfect 10! NO, I can’t lean my head back for two forty-five minute sessions. The test was rescheduled. 2019 is starting like the other six years, with a heart test scheduled, Parathyroid scan with possible surgery, test for Traumatic Brain Injury from the fall. There are few days left in 2018, I want to know who I am, how have I changed in that time. I developed Agoraphobia, haven’t driven in six years and have only seen the inside of doctor’s offices. I took the first step […]
If your doctor does not listen to your physical complaints change doctors ASAP. This holds true for anyone. Lyme is real, Chronic Lyme does exist and there is no cure. Some will argue using supplements will cure Lyme. Do your homework if this sounds like the healthy treatment. Many Lyme patients take supplements, conventional and non-conventional medicine. I took more […]
National Fibromyalgia Association 1. ALWAYS believe in yourself emotionally and physically. No one can tell you what you are experiencing is not real! FM is a chronic medical disorder just like diabetes, hypertension, & asthma. While there are still gaps in our complete understanding of FM, the symptoms are real, & patients’ concerns are legitimate.2. NEVER feel guilt for your […]
Original post 5/23/2018 Reposted for The Fibromyalgia Directory. It’s summertime, ticks and insects carrying tick born illnesses are worse than last year. Practice all precautions if out in tall grass, tall scrubs or trees. I’m dealing with in Dementia, Fibromyalgia, Neuropathy, Lyme Arthritis, Cognitive issues, PAIN, falling, PAIN and pain medicines. There are days you want to cry, scream, on […]
You may have noticed the name change from Lyme Update to Lyme Progress. The reason for the change, it’s time to start looking forward, short-term and long-term. I still struggle with illnesses which Lyme left and have days can’t get out of bed. WINNING is looking forward. The chronically ill understand this mindset. After dismissing my Lyme Doctor in Washington, I came back to Texas determined to build a team of doctors who could manage the different aspects of my illness. The next post I will talk about the long list of doctors required, today I wanted to discuss my immediate complaint. PAIN, PAIN, PAIN! I made my General Practitioner the main doctor, he was my GP prior to Lyme but many years had passed. We didn’t know each other any longer and trust had to be earned on both sides. We have scheduled 30-minute appointments instead of normal 15 minutes, we have more time to talk. Talking is a big part of getting to know each other. I’ve had several appointments with him and last week we talked about PAIN. Being a bit detailed, I put the list below together to show the different types of pain. Pain is pain is pain is not the same pain. There are many types of pain and over time they can feel like one but are not. The information provided helped him see there were many areas of my health not being […]
We Are The World Blogfest: Spreading Stories of Positivity and Compassion in Social Media
