Chronic Illness

FDA, CDC REACT TO HARM TO PAIN PATIENTS

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May 1, 2019/ U.S. Pain Foundation Last month, the Food and Drug Administration (FDA) and Centers for Disease Control and Prevention (CDC) reacted to the unintended harm to people living with chronic pain as a result of policy measures intended to ameliorate the opioid crisis. On April 9, the FDA issued a Safety Announcement citing “serious harm,” including “withdrawal symptoms, uncontrolled pain, psychological distress and suicide” as a result of sudden discontinuation or rapid dose decreases in opioid pain medication. The FDA will now require changes to the prescribing information for health care professionals that will provide guidance on how to safely reduce or taper patients off opioid medications. The agency states that there is no standard opioid tapering schedule; rather, a schedule must be tailored to each patient’s unique situation considering a variety of factors, including the type of pain the patient has. The FDA is also warning patients not to suddenly stop taking their opioid medication, as this can result in serious problems. Even when patients gradually reduce these medications, they may still experience withdrawal symptoms such as chills and muscle aches. If these are excessive, patients are encouraged to contact their health care provider. Feeling the pressure from the FDA action, a letter from more than 300 health care practitioners, and increasing news coverage of harms to people with pain, three CDC Guideline authors, writing in the New England Journal of Medicine, said the Guidelines have been misapplied and applied inflexibly in […]

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Crazy?

Where’s Waldo? In the Reblog Button

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Can anyone else reblog? I have not been able to since last night. I looks to me like a lack of communication between WordPress and WordPress where the programmers report into. When programming changes are made the Reblog button is the first to go, last time it was for a week. If this happens on a regular basis you would […]

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Crazy?

Where’s Waldo, Where’s The Reblog Button?

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After chatting with WordPress Support about the Reblog button not working, I learn they already know and no completion date is given. From my own experience not everyone is effected. Here’s a link I was given to show tracking process. I asked if the link included a completion date I received no answer. We are tracking it here: https://github.com/Automattic/wp-calypso/issues/22491 WP.comTue, […]

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Abuse

RAINN: Stalking Awareness Month

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  Stalking When you learn more about stalking behaviors, you’re more likely to notice them before they escalate, and you can take steps to protect yourself. If you discover you are being stalked—either in-person, online, or via technology—it can be unsettling and even dangerous. Consider taking steps to protect yourself or involve an authority figure who can help you. What is stalking? […]

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Celebrate Life

Celebrate with Me, Yesterday I…..

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Most know I have Chronic Lyme Diseases, ill for several years and still house bound. I didn’t realize until recently I had developed Agoraphobia created an additional challenge getting behind the wheel. Lyme Diseases left me with early onset of Dementia, my balance is not the best and remembering is my biggest challenge. I’m taking medicine for Dementia and have seen improvement. […]

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Advocacy

Supreme Court Turns Away Challenge to Conversion Therapy Ban

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May 01, 2017 Supreme Court Turns Away Challenge to Conversion Therapy Ban The Supreme Court today left standing a lower court decision that the conversion therapy ban in California is legal.  By declining to consider that case, the Court allowed the state ban to stay on the books, and by extension, the bans in five other states as well.  The lead plaintiff, an ordained minister and licensed family therapist in San Diego, sued the State of California on the grounds that the state law violates his freedom of religion and therefore is unconstitutional. The Supreme Court chose not to review that case.  The plaintiff was joined a psychiatrist and a man who underwent conversion therapy and now aspires to perform it on others.  The plaintiff had previously sued California on the grounds that its conversion therapy ban violated his freedom of speech, and that challenge also failed. By upholding California’s ban, the Supreme Court protected the bans in Oregon, Illinois, Vermont, New Jersey, and New Mexico from the same type of challenge.  A dozen other states have been considering bans this year in their state legislatures. The process of enacting a ban in every state would be drawn-out and in some states, a long shot at best.  Members of Congress have just introduced bills in the House and Senate that would make it illegal to accept payment for conversion therapy or to advertise that service, on the grounds that it […]

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Advocacy

Memories: I Was Stalked For Six Years

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My first business trip, I’m 24 years old and clueless. The company was celebrating a milestone. Once bored around 20 of us found a bar and settled in. This is time for a stalker, large groups of people, and pick your target. First he sent me a dozen white roses every day. I was young and naive about stalking. I assumed he had money. Then cards started coming and he started asking me to come to Boston. The phone calls were coming more often. I didn’t know how a stalker reeled in their target. After months of roses and cards, I gave in. Once in Boston, his lies were easy to see. The parents owned the house, he lived a small house over the garage. My radar is up about but nothing else. There was a party at a friend’s house, lets see how many are losers. The party was fun I talked food, wine and traveling. He paraded me around like a 100 LB piece of meat. We had a selection of drugs, hash, cocaine and some using a needle. I don’t use a needle period. I enjoyed the selection of smokes. We left heading for his house, he’s high and driving. We arrive, had problems with the stairs, to high and laughing ass off. I told him before arriving, I would not sleep with him, ok no problem he says. We started doing line of coke, no memory how […]

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America

Nevada Falls & Vernal Fall Yosemite National Park

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Classified as one of the Strenuous Hikes. I had the pleasure, sweating, beyond thirsty and pain of hiking Nevada Falls and Verna Falls. Vernal Falls is the highest and the longest hike for me. It’s brutal. Suggestion: Lightweight weight clothes and hat covers back neck, Hiking gloves, walking stick, broken-in hiking boots, and carry as much water as you can. Conserve. Very few amenities along the route. In the summer one good wind and you’re covered in sand. Hand wipes are a portable doctor in a box. I had a few brushing, up or down the trail. Hiking Verna is straight up, “Natures Giant Spiral Staircase.”  I was on top of the world. I’m working on this photo. The Jacked up version is on my “About Me” page. Hope you enjoy.   Xx  M  Vernal Falls   Climb Verna Falls is nature’s giant staircase. Where you are rewarded with close-up views of two waterfalls and numerous geologic features (depending on how far you choose to hike). Powerful and turbulent, these two waterfalls will soak you in spring and entice you year-round. Vernal Fall Footbridge Distance: 1.6 mi (2.6 km) round trip Elevation gain: 400 ft (120 m) Difficulty: Moderate Time: 1-1.5 hours Top of Vernal Fall Distance: 2.4 mi (3.9 km) round trip (via Mist Trail) Elevation gain: 1000 ft (300 m) Difficulty: Strenuous Time: 3 hours Top of Nevada Fall Distance: 5.4 mi (8.7 km) round trip (via Mist Trail) Elevation gain: […]

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Bipolar Disorder

Withdraw: The Scattered Mind

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Xanax is an anchor drug in my medication combo for treating Anxiety/Bipolar Disorder. I’ve taken Xanax for 15 years, it works miracles in keeping me grounded. Working quickly is an advantage with little to no side effects, EXCEPT ADDICTION. The downside side is addiction happens quickly after starting. For me withdraw starts on second day, by fourth day I look like a street addict who would sell my soul for a pill. The emotional and physical breakdown took me to hell. My deep secrets/scars laughed and taunted me.               Here are some of the delusions I experienced. Learned a new language Surviving in the desert like Jesus Discovered potential link for Postpartum Depression In touch with my families Indian blood Could feel natural body rhythm Felt small earthquake Saw Bobcat tracks on front tree Started writing Country songs Tweeting Gwen Stefani, Blake Shelton and Pharrell, talked to Gwen and Blake several times, Pharrell retwetted twice. I was flooded with people wanting to follow me after seeing tweets from Gwen. I was overwhelmed. Locked all computers down, trying to keep myself from writing. These are some of the out of control thoughts running through my head non-stop The physical pain is unbearable Anger, pain, begging God to stop kicking me in stomach, wailing, screaming, throwing up, four days without food. Having  to transition back one medication a day at a time Delayed Lyme protocol by a week, […]

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Crazy?

Withdraw, Now What.

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Here are the two best prayers I know: Help me, help me, help me and Thank you, thank you, thank you.   Anne Lamott I have two weeks of living to share with you. When the drugs are back in your system it takes several weeks to peak. Withdraw is on the been there & done that list. The psychological pain will linger longer than the physical pain. I am recovering from physical injuries caused from thrashing around in the bathroom. During the worst days I closed myself off to prevent my husband from seeing me. I’m resting, trying to not overdo it. One positive from withdraw is the reminder I’m a Survivor. I’m starting to feel human, self-critical but human. Which is perfect since I have oral surgery on Thursday. I’ll be back in the grove soon. Xx  M  

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Crazy?

A Shimmer of Light

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  A shimmer of light Eyes filled with tears Light is closer I’m at complete peace God what do you want from me I have no special skill Is light a miracle from high above Trapped in darkness, I hear keys Thoughts no chains Falling to ground weeping Is the light a sign of better days How can it be, […]

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Chronic Lyme Disease

Lyme: Falling Hazards for the Fearless.

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Growing up with four bothers, I was a fearless tomboy. At 12 years old I was crowned with braces. After a few pops in the mouth my football career was over. Good childhood memories. Chronic Lyme Diseases affects everyone different, my parasites settled  into my brain. The first sign was the lack of balance. Think about the walk taken after getting pulling over for intoxication. I could take 2-3 steps at most with eyes closed. I have continued to have balance and common sense my husband would say. The clouds mingled as a storm moved in.Vibrant orange, pinks and every shade of blue. While he walked the dogs, I stood on the hot tub taking photos. Hours after the rain, I noticed a large earthworm on the storm door. My mission was to save the earthworm. If I bend below the knees, I’m going down. I diligently dug a hole in the dirt with one knee holding me up.David came running outside just in time for a glorious Circus tryout.. I fell down two bricks stairs, grabbing a landscape light on the way down it stabs me in the stomach. Then a loud crack as my head hit a stone brick. I was stunned and wanted to cry. No time for crying, he is yelling to see if conscious while trying to maneuver me from under patio table. It was time for me to sit and find my legs and damage done […]

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Crazy?

Awesome Clouds Sunday Morning, Face Plant by evening *Trying to save Earthworm*

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    MOST BEAUTIFUL CLOUDS, STORM MOVING IN FALL HAPPENED ON BRICK STEPS. I WAS TRYING TO SAVE AN EARTHWORM. OUCH! Damage to forehead, black eye, scrapes and stabed myself with Landscape light. So glad it was plastic. It tore thru two shirts. My entire for head turned black. I will include this photo in Falling section. Sometimes, it’s better not to follow me.  Xx  M

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Alcohol

Dear Mr Fantasy

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My fantasy about life with High School boyfriend started the day we met. Our relationship was on and off until my late 30’s. He had to marry me, then go back to wife. The last time we talked, he was moving out, filed for divorce, leased an apartment, later started to move in with me. I should include, I bought the ring $12,500, he would repay. HA! He gave new meaning to word jealous. I went to FL for business, had several presentations to finish. I stayed over a Saturday for the discount. The baby man said “I stayed over Saturday instead of paying more to be with him” I watched the Stars go for second Stanley Cup. One afternoon his wife wanted to talk. Be gone a hour or two. At 11:00PM, I called asking when coming home? Reply, later! I had to restrain from hurling my favorite pissed off words. He laid key on table, said he was going back to wife. After he left, I bursted in tears and threw his stuff on the porch. He emailed me the secret years later. His view, if you accuse someone of cheating, you get free pass. He didn’t go back to wife, the free pass got pregnant. She worked for him at Police Department. He would lie before tell the truth. Fantasy over! My choice last words, fuck off. We fell “love at first sight” in 9th grade, his mask melted many […]

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