Lyme Journal Entry Eight **Lyme & Friends Winning–Me Tough Cookie**

A chronic illness will flush out the weak emotionally and physically. Adversity brings out the true colors in people and those who love them. I’ve attacked Lyme Disease like other challenges in life, fight with a big stick and jump higher. My husband runs the household, carrying a heavy load. I’ve been sick for five years and he is still at my side. It’s not for lack of effort on my part to make him leave. Last week was the worst emotionally since being diagnosed with Lyme Disease. I had appointments with the Lyme Doctor and Cardiologist. This was the first appointment with Lyme Dr. since all test were completed. You know you’re off to a good start when the first thing out of his mouth is you are very sick and in a lot of pain. NO KIDDING. That was not surprising but what followed blew my mind. The test showed my body has 3 times the amount of Lead acceptable, high Mercury levels and high Cesium. I’d never heard of Cesium, it’s a naturally occurring element found in rocks, soil and dust at low concentrations. Lead levels at 3 times the upper expected limit say recent and ongoing exposure. Lead accumulates in the body, at some point I’ll have Chelation treatment. The side effects of Lead are extensive including organ damage. I have racked my brain on what could cause Lead damage in the house and come up […]

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Can Anyone Tell Me What Day It Is? **Yosemite National Park Here We Come**

      I’ve been in the house so long there’s no reason to keep up with the day of week. Today is a perfect example, Throw Back Thursday is on Wednesday. I want to cry and laugh at the same time. The neurological effects of Lyme Disease sucks. In the Chronic phase the virus can set up house in the brain causing neurological damage. To remain as positive as possible I don’t focus on the effect to my brain. There is no way to know if the damage is permanent or not. One side effect is memory loss, like walking to the kitchen and not remembering why. It’s annoying and a reminder you have a virus boring thru your brain. I choose not to focus on the what or why even with constant reminders. I am not at the wheel and trust God to get me to the other side.I’m on a long journey that will give plenty chances to laugh, laugh with me, not at me. Overlook the missing words in a post, thanking you for stopping by more than once and Throw Back Thursday on Wednesday. Life is too short to worry about the little things. Let’s laugh, then focus on how we can help someone and have our collective voice heard. Sending a heart-felt thanks and Texas size hug to you. M  

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Lyme Journal Entry Six **Kicked Around But Never Down**

God blessed me with the ability to feel empathy. He also filled my heart with sunshine. Today my husband participated in the Ice Bucket Challenge. My heart shines as I watch this challenge cross the globe. If we look, there is someone suffering more than ourselves. I work hard to keep in mind on the tough days. ¬†M I’ve had a cold for a couple of days, germs rode in on husbands back. Thank you for the prayers and kind words, you lift me up. I have a positive outlook, no pity party here. Lyme Disease may kick me around but never down. A special shout out to my Twin in Germany, she keeps me rolling in laughter with vomit stories. You had to be there. This is a list of probiotics, supplements and shots taken in preparation for my antibiotic treatment. My next appointment is 9/17/14, I’m hopeful he will start the antibiotics. Supplements Magnesium Malate 1,250mg ¬†1 daily Omega 3,2126mg ¬†1 daily Alpha Lipoic Acid 600mg ¬†1 daily Multi Vitamin 1 daily Acetyl L-Carnitine 500mg ¬†1 daily Reservatrol 150mg ¬†1 daily B12 Shot three times a week¬† Methylocobalamine 25mg/ml injection 1cc 3 x week Probiotics 2 pills in AM One liquid probiotic packet daily In an effort to improve overall health, I starting drinking all natural beverages. I discovered the Suja Life brand, they are certified organic by CCOF. The drinks are cold-pressed, organic, no growth hormones, all […]

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Lyme Disease Journal Entry Five **Scoreboard Lyme-One Me-Still Standing**

This week I want to give a brief overview on¬†Gluten Free Diet and Epstein Barr Virus. Both where the top searches in last weeks post.¬†I hope the information is helpful. The CDC is a great place to get up to date information. Have a great weekend. ūüôā ¬† M Gluten Free What does it mean? My doctor follows The Mayo Clinic, Gluten-free diet: What’s allowed, what’s not. All information taken¬†from The Mayo Clinic outline. A gluten-free diet is a diet that excludes the protein gluten. Gluten is found in grains such as wheat, barley, rye and triticale (a cross between wheat and rye). Gluten causes inflammation in the small intestines. Switching to a gluten-free diet is a big change at first, it takes some getting used to. Many specialty grocery stores sell gluten-free foods. We shop at Whole Foods and have found a large selection of gluten-free products, including brownies. Here are some surprises I discovered. My husband eats many gluten-free products but not exclusively. The Mayo Clinic strongly warns to watch for cross contamination. An example is if one is eating gluten-free bread and the other is not, the toaster could cause cross contamination. Another contamination point is using the same utensils¬†to cook gluten-free and non gluten-free. Yes, it is that detailed. Be careful with¬†grains such as oats which can get contaminated with wheat during the growing and processing. I treated myself to ham lunch meat and cheese last […]

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Lyme Disease Journal Entry Four ** First Back Slapping Turning Point**

This week fatigue had a hold on me. A task requiring little effort takes twice as long. The extra effort is difficult for my multi tasking mind. Waiting on test results added to the stress. The doctor is making me wait until Sept. 19th to discuss the results. He gave me a nugget yesterday. I have Lyme,¬†the co-infection Epstein Barr Virus and low Folic Acid. Requiring 2 new RX’s, for a total of 39 pills per day and 3 shots per week. The doctor surprised me with the Folic Acid RX, the red blood cell count was low. My grandmother could put all meds and supplements in one hand, throw them in mouth and swallow at one time. I am the opposite, one pill at a time shoved to back of throat, taking meds is a task.¬†I’m not my best while being in limbo. I can hear gramps telling me, if you learn to enjoy reading , it will teach you patience. Mostly true. If you have Lyme Disease a great book is The Lyme Disease Solution. My doctor uses as a reference guide. It’s spells out the two schools of thought on Lyme treatment. What a Lyme Literate doctor means and why it’s important to seek this type of doctor. The life cycle of Lyme and why it’s difficult to diagnosis. The different paths doctors may take to heal you, this is very detailed down to the names of […]

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Eric Clapton and Steve Winwood Jam to Presence of the Lord **Live from Crossroads**

I haven’t gone off the deep edge or forgotten what day it is. This song is the most beautiful rock song about finding God. This is dedicated to my friend/followers. Thank you for the kind words of support, prayers and overall positive thoughts. It would not be right if I didn’t mention EC is the master guitar rocker. The Rock Star in my head plays like my guitar idol. Have a great weekend. ūüôā ¬†M

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Lyme Journal Update: Entry Two

I have learned several lessons since the last journal entry. ¬†A word of caution. For those who enjoy the outdoors anywhere in the US, Canada, Germany and ¬†parts of England, please educate yourself on Lyme Disease. If detected early doctors can usually treat with a short round of antibiotics. It is hard to think a tick the size of a […]

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Critical Follow Up Information To Lyme and Other Tick Borne Illnesses Post

Update on Lyme post. As you read about Lyme you will hear about co-infections. When a tick bites you every infection its carrying¬†transfers¬†to you. Another type of co-infection is¬†from the virus moving thru your body. If the virus makes its way to¬†your organs including the heart and brain. The menacing virus causes¬†damage inside the body other than Lyme. The co-infections can get¬†extremely painful. I hope you will seek out the more information to get the true horrifying story. Education may save your life or someone you love. ¬† ¬† ¬†Warrior Here are several great resources to learn in-depth information on Lyme and Tick Borne Illnesses.¬† On YouTube: Interview with Daryl Hall of Hall and Oats Dr. Horowitz: Lyme Disease & Chronic Illnesses ¬†( Dr. Horowitz is the foremost expert on Lyme, invented an exact test performed at IGenex ) Lyme Disease: History & Controversies included proper way to remove tick. Additional resources ***http://justinandchrista.ca ¬† ¬†This is your total education on Lyme,¬†Husband films wifes struggle with Lyme over 5 years. ¬†THIS IS A MUST ¬†She screams in agony, it’s heartbreaking and may¬†disturb small children. ILADS International Lyme and Associated Diseases Society ¬†The association provides training for doctors for Lyme certification, tons of stats and how to find a Lyme Literate Doctor. Dr. Horowitz’s latest book, Why Can’t I Get Better: Solving Lyme and Chronic Disease ( downloaded but haven’t started yet ) If you want every detail, this presentation is for […]

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If You Think You Know Lyme It's Time For a Serious Refresher Course

Over the past 6+ months my Neurologist has performed every test in her arsenal except a spinal. Every test she ran came back abnormal yet not able to pin down a diagnosis (see post Are Those My Brainwaves). She refered me to a Rheumatologist¬†to start on the tread mill again. I started researching illnesses which included¬†brain wave abnormalities to weed out my more common symptoms. There were the ones I expected, Lupus, Multiple Sclerosis or other autoimmune disorder. I didn’t think my answer would come from RA Doctor. More reasearch and what I found was alarming, not the illness alone, the politics and witch hunt taking place. The illness is Lyme or other tick borne illnesses. The¬†CDC rates Texas as med-high concentration. The east coast is at epidemic levels with some articles stating we are facing epidemic levels across the country. I had a different idea for this post yet feel it’s critical to get this information out ASAP. When I learned of the divide in the medical community over Lyme, I shook my head. What is the controversy. The CDC establishes treatment standards for doctors. The standard Lyme test¬†is based on 20-year-old information. What happens is you go to doctor for a Lyme test, it comes back negative. You then find out the test is 30% +/- correct. The CDC acknowledges the test has false positives yet the standard for testing hasn’t changed. With a lack of confidence in […]

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