22 Lesser Known Facts About Fibro — Fighting With Fibro

Thank you for the information packed post. Reblogged from Fighting With Fibro. If you’re like me, you’re always trying to stay apprised of new information surrounding your illness(es). Sometimes, it seems like I never see anything new and oftentimes, it seems the data I read is just somehow recycled; one site to another. So I spent some time (okay, a lot of time) gathering facts that, maybe, […] via 22 Lesser Known Facts About Fibro — Fighting With Fibro

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Yo no….. Soy yo

No soy  Lyme crónico Fibromialgia Demencia Neuropatía Agrofóbico Cierre de Centrado en la enfermedad Estancarse Culpable Desesperada Buscando simpatía Soy yo Una mujer Esposa Perro madre Hermana Determinado Honesto Cuidado de un fallo Amar Asustado Tener metas elevadas Vivir con síntomas Fuerte voluntad Mentalidad abierta Escritor Estudiante No es un jugador ¿Cuál te gusta?  Melinda

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5 Things I Wish I’d Known Before My Chronic Illness

New York Times By Tessa Miller  Feburary 18, 2019   Finding out you have a chronic illness — one that will, by definition, never go away — changes things, both for you and those you love. Seven Thanksgivings ago, I got sick and I never got better. What I thought was food poisoning turned out to be Crohn’s disease, a form of inflammatory bowel disease (IBD) that doesn’t have a cure. It fools my immune system into attacking my digestive system, resulting in what I can only describe as the attempted birth of my intestines through my butthole. It’s a cruel and often debilitating disease. Since that first hospital stay, I’ve had colonoscopies, biopsies, CT scans, X-rays, blood and stool tests, enemas, suppositories, rectal foams, antiemetics, antidiarrheals, antivirals, antibiotics, anti-inflammatories, opiates, steroids, immunoglobulin, biologics and three fecal transplants (if you want to hear a story about my 9-year-old poop donor and a blender, find me on Twitter). My disease is managed now thanks to an expensive drug called infliximab, but the future is unpredictable. IBD works in patterns of flares and remissions, and little is known about what causes either. When I was diagnosed, I didn’t know how much my life would change. There’s no conversation about that foggy space between the common cold and terminal cancer, where illness won’t go away but won’t kill you, so none of us know what “chronic illness” means until we’re thrown into being sick […]

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Zechstein Magnesium Chloride Mother Earth’s 250 Million Year Old Healing Treasure

Last week Fighting With Fibro  shared a cream that worked on her Fibromyalgia pain. It was a magnesium based product, being curious I had to understand the difference of the type she purchased. The magic word is Zechstein, many products claimed to relieve pain and a host of other problems but they didn’t have Zechstein included in ingredients. https://fightingwithfibro.com/2019/02/19/finally-something-that-actually-works-for-my-fibro-and-rls-pain/ I could not find the […]

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I Am Not…..I Am

I Am Not  Chronic Lyme Fibromyalgia Dementia Neuropathy Agrophobic Shut-in Over-focused on illness Stagnate Guilty Hopeless Looking for sympathy I am A Women Wife Dog mother Sister Determined Honest Caring to a fault Loving Scared Have high goals Living with symptoms Strong willed Open minded Writer Student Not a player Which one do you like? 

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U.S. Pain Foundation Ambassador Network

Last week I joined the U.S. Pain Foundation Ambassador Program. The work the organization does for people with chronic pain is hands-on and at a government level. There are endless opportunities for you to support the organization with the time you have available. I have to learn how to do screenshots on MAC OS quickly, I’m attending a Webinar on Thursday.  Melinda Dear Junior Ambassador, I would like to personally welcome you into the U.S. Pain family! By joining our Pain Ambassador Network, you are taking action and choosing to help us advocate on behalf of the pain community. Our goal is to support you and provide you with the tools needed to raise awareness. The U.S. Pain Foundation is a nonprofit organization created by people with pain for people with pain. We want the experiences you have as a junior ambassador to be full of fun and excitement. Our mission is to educate, connect, empower, and advocate for pain warriors as well as their families, caregivers, and friends; the hard work and dedication of ambassadors like you is what allows us to fulfill this mission. We greatly appreciate the time, energy, and passion that you have chosen to dedicate towards raising awareness! To thank you for your commitment as a volunteer, we will be sending you a starter package in the mail. We encourage you to use these resources to empower yourself. As a junior ambassador, we would also like […]

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MANAGING FIBROMYALGIA IN CHILDREN

Welcome to Remedy, a blog by U.S. Pain Foundation. Remedy aims to provide people with the support they need to thrive despite chronic pain. It features the information about promising treatments, tips and strategies for self-management, resources for coping with the emotional and social effects of pain, unique perspectives from patients, clinicians, and caregivers–and much more. To submit an article idea, email contact@uspainfoundation.org. Posted: January 14, 2019   By Brent Wells, DC, a chiropractor and founder of Better Health Chiropractic and Physical Rehab If your child feels tired and achy, you may not worry initially. After all, there’s nothing urgent about what seems to be mild, general discomfort. However, if your child is constantly in pain, exhausted, having trouble sleeping, and experiencing intense moods, he/she may have fibromyalgia. This condition is fairly common in adults, but parents and clinicians may overlook the possibility of juvenile primary fibromyalgia syndrome — that is, fibromyalgia in children. JUVENILE FIBROMYALGIA SYMPTOMS TO WATCH OUT FOR Fibromyalgia is a chronic condition characterized by pain and fatigue. According to experts, children will often describe this pain as “stiffness, tightness, tenderness, burning or aching.” This pain can last for months and is often accompanied by other symptoms that affect a child’s overall well-being, energy level, and emotional health, including: Tender spots on muscles Difficulty sleeping and fatigue Aches, including stomachaches and headaches Lack of focus or memory Anxiety and depression If your child is experiencing these symptoms, you should […]

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Fibro Friday: Hamster Wheel

Repost I’ve struggled with Chronic Lyme, Fibromyalgia, and Dementia for six years, every week it’s a follow-up or test for the latest ailment. I’ve made the decision to step off the Doctor Hamster Wheel in 2019. I saw a Rheumatologist two months ago, the clueless PA told me there wasn’t Lyme in Texas. REALLY? The doctor named a few possible illnesses and took my blood. The doctor’s visit was a bust but the lab work revealed my Calcium is high. Which can cause serious complications? She suggested having my Parathyroid checked. WOW, something came out of the lab work, I have another ailment to deal with! I saw the Endocrinologist, it was straight forward. A blood test, a scan at the hospital and possible surgery. We scheduled the scan immediately since it was affecting my heart. I fell down the stairs and banged myself up a good one. I landed a perfect 10! NO, I can’t lean my head back for two forty-five minute sessions. The test was rescheduled. 2019 is starting like the other six years, with a heart test scheduled, a Parathyroid scan with possible surgery, and a test for Traumatic Brain Injury from the fall. There are a few days left in 2018, I want to know who I am, how have I changed in that time. I developed Agoraphobia, haven’t driven in six years and have only seen the inside of doctor’s offices. I took the first step […]

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Road Blocks in Life

We all hit road blocks in life, some lasting weeks, others years. To survive the beat down you have to remain focused on forward steps, even nano steps are moving forward. I was lucky, abuse, trauma and self-hatred started while very young. Growing up hearing how stupid I was convinced me it was true. I was abused, sexually abused and […]

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Round And Round, The Hamster Wheel

      I’ve struggled with Chronic Lyme, Fibromyalgia and Dementia for six years, every week it’s a follow-up or test for the latest ailment. I’ve made the decision to step off the Doctor Hamster Wheel in 2019. I saw a Rheumatologist a two months ago, the clueless PA told me there wasn’t Lyme in Texas. REALLY? The doctor named a few possible illnesses and took my blood. The doctor’s visit was a bust but the lab work revealed my Calcium is high. Which can cause serious complications. She suggested to have my Parathyroid checked. WOW, something came out of the lab work, I have another ailment to deal with! I saw the Endocrinologist, it was straight forward. A blood test, a scan at the hospital and possible surgery. We scheduled the scan immediately since it was effecting my heart. I fell down the stairs and banged myself up a good one. I landed a perfect 10! NO, I can’t lean my head back for two forty-five minute sessions. The test was rescheduled. 2019 is starting like the other six years, with a heart test scheduled, Parathyroid scan with possible surgery, test for Traumatic Brain Injury from the fall. There are few days left in 2018, I want to know who I am, how have I changed in that time. I developed Agoraphobia, haven’t driven in six years and have only seen the inside of doctor’s offices. I took the first step […]

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