Every case of Lyme is different partly do to which major organ the spirochetes penetrate and set up house. They go for the brain, liver, kidney’s or heart, some of the symptoms are relative to the organ they set up house in. Then you have co-infections to deal with. A tick can give you Lyme and other diseases it carries […]
Lyme is one of many Autoimmune Diseases that share the same or similar symptoms. It’s one reason doctor’s tend to treat each symptom until they realize it’s one illness and give a referral or you’ve given up on them. My journey started with pain in the middle of my chest, Costochondritis, my General Practitioner said, it will heal in […]
By Susan Scutti, CNN 17 hours ago The Asian longhorned tick most likely began invading the United States years ago. Now found in nine states, the tick may soon occupy a large swath of eastern North America as well as coastal regions of the Pacific Northwest, according to research published Thursday in the Journal of Medical Entomology. “This tick can […]
ILADS has taken the bold step from staying under the radar to leading the way to better LYME treatment. Today many “expert” Lyme doctors are training Medical doctors to recognize Lyme, basic treatment with written treatment guidelines. You can download the Treatment Guidelines yourself, I look forward to reading. In theory it sounds good for Lyme suffers looking for a diagnosis. […]
The Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes (or Ad Hoc Committee) is an international, all voluntary, professional committee formed to improve the ICD codes for Lyme and Relapsing Fever borreliosis and address the human rights violations generated by inadequate codes. In 2017, members of the Ad Hoc Committee met with Dainius Pūras, the United Nations (UN) […]
If your doctor does not listen to your physical complaints change doctors ASAP. This holds true for anyone. Lyme is real, Chronic Lyme does exist and there is no cure. Some will argue using supplements will cure Lyme. Do your homework if this sounds like the healthy treatment. Many Lyme patients take supplements, conventional and non-conventional medicine. I took more […]
But Here’s What You Should Really Worry About The New York Times reported yesterday that a new-to-the-United-States tick species has been identified in seven states in recent months, after an infestation was first discovered last summer in New Jersey. The tick is native to Asia, where it is known to carry a dangerous virus that kills 15% of the people […]
Original post 5/23/2018 Reposted for The Fibromyalgia Directory. It’s summertime, ticks and insects carrying tick born illnesses are worse than last year. Practice all precautions if out in tall grass, tall scrubs or trees. I’m dealing with in Dementia, Fibromyalgia, Neuropathy, Lyme Arthritis, Cognitive issues, PAIN, falling, PAIN and pain medicines. There are days you want to cry, scream, on […]
Original Post 1/21/18 Reposted for The Fibro Directory You may have noticed the name change from Lyme Update to Lyme Progress. The reason for the change, it’s time to start looking forward, short term and long term. I still struggle with illnesses which Lyme left behind and have days can’t get out of bed. WINNING is looking forward. The chronically ill understand this mind-set. After dismissing my Lyme Doctor in Washington, I came back to Texas determined to build a team of doctors who could manage the different aspects of my illness. The next post I will talk about the long list of doctors required, today I wanted to discuss my immediate complaint. PAIN, PAIN, PAIN! I made my General Practitioner the main doctor, he was my GP prior to Lyme but many years had passed. We didn’t know each other any longer and trust had to be earned. We have scheduled 30 minute appointments instead of normal 15 minutes, we have more time to talk. Talking is a big part of getting to know each other. I’ve had several appointments with him and last week we talked about PAIN. Being a bit detailed, I put the list below together to show the different types of pain. Pain is pain is pain is not the same pain. There are many type of pain and over time they can feel like one but are not. The information provided helped him […]
I fired my Lyme Literate Doctor The last straw! My Lyme PA prescribed a medication which interacted with a psych medication. Making me Psychotic, pure bat crazy. Scared of myself. Walking in circles non-stop until exhausted. It took days for the medication to clear my system and bring me back to earth. It was life changing. I said horrible things […]
There are times when Chronic Illness can get the better of you. I had such a week resulting in shaving my hair off. I’m no GI Jane but do have a nice head minus the scars from brain surgery. For the past 13 years I’ve been a caregiver to my grandparents, spent time in Psychic Hospital twice for ECT. Finding […]
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Am I healing from Chronic Lyme Diseases? Who knows? Lyme doesn’t have a cure, only times of remission. There’s no way to plan for lingering health problems you will get, will or won’t recover from. Symptoms may go away over time, stay same or get worse. There’s no definitive test to gauge how your major organs are affected unless the damage is severe. The symptoms I struggle with daily are pain, pain pain, lack of balance, some memory has returned looking like a Tommy Gun practice. There are days when I can remember for a few minutes instead of seconds. If you’ve read my post the past two years, you’ve seen the cognitive issues. I can’t recall the proper name of items, have no concept of time and don’t fully recognize inflection. After two years in bed, I started to relearn walking in mid March. Falling is a physical daily threat. As my body gets physically stronger there are years of doctor and dentist appointments to catch up on. Before Lyme I started to develop Agoraphobia which has manifested to extreme levels anxiety leaving the house. Every doctors appointment is a challenge. The Lyme doctor prescribed a drug in the same class as one I take for my mental illness. I became Psychotic, waiting a week to touch down in reality. While Psychotic I wanted to hurt people, I was ANGRY. The person I became was not me, yelling, screaming, […]
Port Removed long after recommended time. At last Psychiatrist appointment he questioned why the port had not been removed. He is also a Medical Doctor and proceeded to tell me all the flesh-eating, horrible infections a port can cause. I said not going to D.C. in several month for surgery. We received a referral from General Doctor, had surgery the […]
We Are The World Blogfest: Spreading Stories of Positivity and Compassion in Social Media
