Lymeparents online support group
LymeAid4Kids–Financial assistance for Lyme treatment for those under age 21.
Lymelight Foundation–financial assistance for Lyme treatment for children and young adults through age 25.
LivLyme Foundation–Financial grants for children with Lyme disease (under 21).
When Your Child Has Lyme Disease: A Parent’s Survival Guide (book) by Sandra Berenbaum and Dorothy Kupcha Leland.
Here’s a list of useful resources to get you going in the right direction.
LymeDisease.org is one of the foremost Lyme patient advocacy organizations in the United States. We provide a wealth of information on our website–about ticks, Lyme and other tick-borne diseases, prevention, diagnosis and treatment.
Physician Directory: Find a Lyme-literate practitioner near you.
US National Lyme Online Support Group: Information and emotional support for people dealing with Lyme and other tick-borne diseases.
MyLymeData patient registry: This big data research project allows patients to privately pool information about their Lyme disease experiences. So far, more than 17,000 people have enrolled in the project, providing millions of data points on Lyme disease demographics, tick bites, diagnosis, symptoms, lab tests, co-infections, treatment and quality of life. Add your Lyme data to MyLymeData to help find a cure for Lyme disease.
Children and Lyme disease
Basic info about children with Lyme disease
LymeAid4Kids–Financial assistance for Lyme treatment for those under age 21.
Lymelight Foundation–financial assistance for Lyme treatment for children and young adults through age 25.
LivLyme Foundation–Financial grants for children with Lyme disease (under 21).
Mothers Against Lyme–Advocacy and education about congenital and childhood Lyme
Book: When Your Child Has Lyme Disease: A Parent’s Survival Guide by Sandra Berenbaum and Dorothy Kupcha Leland.
Book: Finding Resilience: A Teen’s Journey Through Lyme Disease, by Rachel Leland and Dorothy Kupcha Leland.
Tick testing
There are various places to get ticks tested. Here are several: IGeneX, TickCheck, Ticknology, Tick Report
MilTICK—free tick testing and identification service available for ticks removed from Department of Defense (DoD) personnel and their dependents.
Basic information about Lyme and pets
Parasite prevalence maps Educational website includes a US map down to the county level, showing where dogs have tested positive for Lyme, anaplasmosis, erhlichiosis and other diseases. Also, information about protecting your pet from tick-borne diseases.
Financial assistance
LymeTAP.com–Lyme Testing Access Program. Financial assistance for Lyme diagnostic testing.
Needymeds.com–Clearing house for information about various kinds of financial assistance for obtaining medication.
Lymelight Foundation–financial assistance for Lyme treatment for children and young adults through age 25.
Lyme Treatment Foundation–financial assistance for Lyme treatment. No age restrictions.
LivLyme Foundation–Financial grants for children with Lyme disease.
LymeAid4Kids—grants for young Lyme patients (up to age 21).
Partner in Lyme—grants for Lyme treatment for residents of Connecticut.
Applying for Social Security benefits for Lyme disease
Melinda
Looking for the Light 