Lyme Update #16 *Lyme Winning–Me, blew a gasket and leaking oil
Let’s Talk Lyme
Last update, we talked about IV Therapy as a treatment option for Chronic Lyme Disease. IV Therapy is one type of medicine to help you heal. I also take a close to 20 prescriptions and who knows how many supplements. Insurance doesn’t pay for the IV Therapy which is quite common. To ask a question thru the patient Portal it’s $45 dollars. I blew a gasket last week and the portal is running hot. I’m blessed we have the money and see a top Lyme Doctor. I think there is a book called She’s Come Undone. I came undone and still finding parts.
Before quitting work, I was a highly successful, the top salesperson in the company. I set very high goals for myself and those who interact with clients. If I made an error I was accountable to make it right with the clients. If one of my people made a mistake, they got the eye and then I had to take responsibility.
There are several PA’s working in the office, mine is the hard ass, just the way I like it. I meet “The” PA while mine was out. I wasn’t impressed but chalked it up to being new. David and I have conference calls to see how adjusted to medicine, all the questions you wish would end. I heard my PA was not available for two weeks so we are meeting with the PA another PA. I am meticulous about my health care, I would reschedule before going to a fill in. I kept saying I’m not talking to her. She was reading questionnaire and David was answering. She said Melinda how are you feeling, ” ok except I almost split my head open. The knot was 5-6 inches big and it really hurt. ” Oh, that sounds like it hurt. My firecracker was lit and would blow any minute. In addition to passing over hitting my head on concrete, she said the IV that was on backorder was in and she would a one week protocol. After the one week, I am off IV’s and take ton o meds. She even indicated we might be able to coordinate to have my port removed.
A couple of hours later I’m putting my medicine for the week. Right away I notice two drugs on the schedule I don’t take. I became a complete baby and ass. I refused to take my IV’s or other meds last week. We’ve dipped into retirement money to save my life. I don’t think I expect to much from the office. First she would have seen none of my Psychiatric medicines are manages my the Lyme Doctor. The had written at bottom to continue to take two Xanax at bedtime. RED FLAG. If an IV medicine has been out of stock for months, I would as the person in charge if any where delivered. RED FLAG. My head still has a painful bump and on going headaches. So, nothing they can do. RED FLAG. She wrote the new oral prescriptions and changed to date to travel to their office instead of later.
The point other than the rant is if you are not feeling right, stop and have them start at beginning. If you’re dealing with another person instead of you normal person. Slam the breaks. I was so worked up, the chest pains started. I decided I would wait until morning to write the $45 letter to my PA
Chronic Lyme Disease is not a common cold or chicken pox, people die from Lyme. I didn’t want to add to the stats. I’m not suggesting you blow a fuse. If you are not getting the treatment expected or information is not shared with you, you have no clue when they think you’ll get well. Get a new doctor and maybe scream.
There are many details to manage everyday. If I can keep track with only 30-40% cognitive ability, what’s their excuse?
I still owe you a story about TSA checking my body parts for the world to see. Be prepare if you flew in/out Reagan National.
I’m always open for questions, you’re not bothering me and I’m glad to help.