I’ve written 76 WordPress post on Chronic Lyme, rarely acknowledging the other Chronic Illnesses I have. When I started treatment for Lyme someone said to me, just wait you’ll get all types of other illnesses. I thought I was dying, having IV Therapy treatment seven days a week, Sunday bandage change, and do it all over again.
I flew to D.C. every month for three years to see my Lyme Literate Doctor. After a few months, I could barely walk, the airport was the worst. The medicine protocol would change every month to prevent me from getting resistant to antibiotics.
I received a progress report after each trip, included was the concerns, actions needed, or illnesses to deal with. I felt like death, everything felt the same, there was no way to know what Fibromyalgia felt like because of the chronic pain I felt already didn’t change when diagnosed.
I’ve continued to lump my Chronic Illnesses together, not sure if denial or it didn’t matter, all I felt has unrelenting chronic pain. I haven’t had a Lyme flare up in several months and now I feel Fibromyalgia pain. It’s damn sure chronic but not every day, all day, the worst.
My husband has been a great caregiver since the beginning but he doesn’t know what I feel. He copes with the things I can’t do now. Tries to make me feel better when I’m full of guilt. I get tired of feeling pain and more guilty of telling my husband.
WordPress has brought so many great people into my life that have experienced my trauma’s, Mental Illness, Dementia, Chronic Lyme, Fibromyalgia, and daily neuropathy. Thank you for writing, I learn from you every day. Thank you for reading, maybe I’ve helped someone along the way.