Lyme Disease Journal #Five *Scoreboard Lyme-One, Me-Still Standing*

This is a repost from 2014 discussing a Gluten-Free diet. The information is an overview and may help if you’ve been told to start your Gluten-Free journey. 

I hope this answers some of your questions and starts you on your way to less inflammation in your life. 

Have a great day and always thank you for reading, I appreciate you. I love reading your comments so keep them coming.


This week I want to give a brief overview on Gluten Free Diet and Epstein Barr Virus. Both where the top searches in last weeks post. I hope the information is helpful. The CDC is a great place to get up to date information. Have a great weekend. 🙂   M

Gluten Free What does it mean?

My doctor follows The Mayo Clinic, Gluten-free diet: What’s allowed, what’s not. All information taken from The Mayo Clinic outline.

A gluten-free diet is a diet that excludes the protein gluten. Gluten is found in grains such as wheat, barley, rye and triticale (a cross between wheat and rye). Gluten causes inflammation in the small intestines. Switching to a gluten-free diet is a big change at first, it takes some getting used to. Many specialty grocery stores sell gluten-free foods. We shop at Whole Foods and have found a large selection of gluten-free products, including brownies. Here are some surprises I discovered. My husband eats many gluten-free products but not exclusively. The Mayo Clinic strongly warns to watch for cross contamination. An example is if one is eating gluten-free bread and the other is not, the toaster could cause cross contamination. Another contamination point is using the same utensils to cook gluten-free and non gluten-free. Yes, it is that detailed. Be careful with grains such as oats which can get contaminated with wheat during the growing and processing. I treated myself to ham lunch meat and cheese last week. Wrong, no processed meats. You have to look for vitamins and medicine that use gluten as a binding agent. Remembering all this information is why I have started eating only items marked gluten-free. I don’t want to work that hard. A gluten-free diet helps people with Lyme Disease to reduce inflammation in the body.

Epstein Barr Virus 

The information is from The Center for Disease Control. Epstein-Barr virus (EBV), also known as human herpesvirus 4, is a member of the herpes virus family. It is one of the most common human viruses. EBV is found all over the world. Most people get infected with EBV at some point in their lives. EBV spreads most commonly through bodily fluids, primarily saliva. EBV can cause infectious mononucleosis, also called mono, and other illnesses. After you get an EBV infection, the virus becomes latent (inactive) in your body. In some cases, the virus may reactivate. This does not always cause symptoms, but people with compromised immune systems are more likely to develop symptoms if EBV reactivates.

EBV is spread by saliva through: Using the same eating utensils, toothbrushes, sharing drinks and food, kissing and having contact with toys children have drooled on

The first time you get infected with EBV (primary EBV infection) you can spread the virus for weeks and even before you have symptoms. Once the virus is in your body, it stays there in a latent (inactive) state. If the virus reactivates, you can potentially spread EBV to others no matter how much time has passed since the initial infection.

General challenges:

The neuropathy in legs and hands is like getting stabbed with big needles. My hands and legs go to sleep very quickly while sitting down.

The fatigue has taken its toll the past four days. I have spent more time sleeping than awake. Today is the first time I’ve felt good in a week.

I have revolted against the supplements this week. With my sleep schedule it wasn’t worth trying to keep up..

The blinding headaches are a daily occurrence, the pain meds help, not crazy about taking pain pills. I will get well and don’t want a drug habit to break. After starting antibiotic treatment in a couple of weeks, may change my mind.

The edema causes my ankle bone to disappear and legs tight up to shin. Anything I bump into  leaves a huge bruise.

The lab work did show Chronic Lyme Disease which means I’ve had Lyme for a year or more. I have to wait until 9/17/14 to get the complete run down.

I still have several test to complete for the Cardiologist. Didn’t do well on the pulmonary part of stress test. One breathing exercise only scored 55%.

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