The Chronic Illness Writing Prompts are hosted each month by Sheryl at A Chronic Voice, please check out her awesome website and helpful archives.
This month prompts are:
I’ve chosen Recuperating, Mapping, and Defining as my three this month.
I’m recuperating and dealing with lingering issues with swollen salivary glands. I don’t have symptoms of a blockage or stone so I skipped the scan. There are other illnesses that can cause swelling of the glands and I hope to know more when I see a new Rheumatologist in march. I don’t want to be a hypochondriac or self diagnose but do know that Lupus can cause this problem. I’ve been tested for Lupus twice before and came back negative. This time I have many more symptoms and we’ll see how her test turns out. There are other illnesses besides Lupus so the test may surprise me.
This new doctor is promising! She takes 1-4 hours on your initial appointment, who does that? It could take a year or more to get that much face time with a doctor. I’m hopeful this is a sign of how thorough and knowledgeable they are.
I’ll let you know in March. In the meantime, I’m dealing with tender glands and lots of fatigue.
2022 is all about coming to terms with the fact that this is the new normal and how to navigate life with a chronic illness thru an ongoing Pandemic. I went two years without going to the dentist for teeth cleaning, I can’t do that moving forward. I have to keep my appointments in order to stay as healthy as possible. I won’t be going out to eat or socializing with a group of people but do plan to get out more.
I’m getting braces this year, Invsilines and I’m so excited. I had braces as a teen and thank goodness they are very different today. My teeth have changed over the past ten years and though I don’t have to get them I’m doing it for self-love.
A moment of true joy as a child on my birthday.
What is success? How do we define success when we have long periods of inactivity? This has been a problem for me because I’m a show me the money type personality and it rolls over from my career in sales. When you don’t have a clear idea of what success is to you it can be difficult to feel successful and outright fulfilled. I have many days where I struggle with this and want to redefine what my success looks like.
It has to go down to the basics, got out of bed, brushed my teeth, and a bonus for cooking breakfast. Taking a shower is triple points and a huge success. I knew these things at one time early in my illness but have gotten off track.
My life will not look like it did prior to 2010 nor do I want it to, I’m who I am today and that’s where God wants me to be.
I hope January has filled your life with joy and happiness.