I had an appointment with my Immunologist yesterday and it didn’t go as I thought it would.
A total disappointment this time. He laid out that my Hypogammaglobulinemia isn’t bad enough and insurance will only approve Antibody Infusion Treatments if I have been on antibiotics several times in one year. I didn’t understand that from our last appointment.
He did order a complete set of labs to see how my body is doing but I don’t think that is going to make much difference.
My ear has been bleeding and he found it was infected and prescribed a short-term antibiotic.
I go back in three weeks to see how the antibiotic is working and discuss my lab results.
He did take a look at the physical symptoms overview I shared with him and he encouraged me to see a Neurologist. I have a referral for a Rheumatologist at this time and will go from there. If no diagnosis comes out of the Rheumatologist then I’ll go see a Neurologist.
Melinda
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Thanks for the update. The requirement of having to be on antibiotics several times in one year sounds absurd. But considering the limitations, you have a good plan. I had a rare ear infection about a month ago. Antibiotics helped, but my doctor said I need to take allergy medicine more regularly to prevent another one.
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He put me on a high-powered one and I think it will work.
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I’m sorry to hear your appointment didn’t go as expected Mel. Insurance is a great thing, but sometimes it can also be a pain in the rear. I hope your ear infection clears up soon. That can definitely make you feel terrible. I hope your Rheumatologist is able to give you some answers and provide effective treatment.
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the biggest challenge first is getting them on the phone to make an appt.
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Ugh…. I hope you’re able to make your appointment soon.
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me too.
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I am sorry that you are going through all this. I pray that you will find answers soon and for a full recovery. 🙏❤️
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Thank you, help is always there it just takes time.
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Hope the antibiotics work and you get the answers you need x
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Thanks, I’m sure they will work fine.
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I’m really sorry to hear this. You want the antibodies but you aren’t in bad enough shape. I like the way you are pursuing this. Get all the information you can.
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Well, it’s a start. The ear-bleeding has to stop and I don’t need an infection for sure. Thanks.
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