Repost Of Lyme Journal: Entry Two *An Interesting Look Back

This post was written after I saw my first Lyme Literate Doctor. Quack! One day I’m reviewing the doctor’s notes again and realize I have another person’s file. I fired him because he said I had high lead levels and had to go through this horrible treatment, what else can I expect? The second doctor was a great success.

I have learned several lessons since the last journal entry. A word of caution. Please educate yourself on Lyme Disease for those who enjoy the outdoors anywhere in the US, Canada, Germany, and parts of England. If detected early doctors can usually treat with a short round of antibiotics. It is hard to think a tick the size of a period used in a sentence could do so much damage. I can’t imagine looking for a tick that size or a larger one the size of rice. The classic symptom doctors look for is called a Bulls Eye Rash. Up to 50% don’t get the rash, slipping through during the early phase.

The CDC acknowledges there are flaws with in Lyme Test. DEET and proper clothing are your only defenses against ticks. Other critters like mosquitos and flies carry the Lyme Virus. Protect yourself by using a spray or a sunscreen containing DEET. Read about extra precautions you can take.

Here are three resources recommended by my doctor, lymenet.org, lyme.org, and lymediseaseassociation.org (A great site for locating a Lyme Literate doctor)

* The doctor was right, when giving yourself a shot you have to go with gusto. I made the mistake of going slow, I had a little blood, a slight pain at the entry spot, and medication stained my shirt. You don’t have to stab yourself hard, pick your spot with enough stomach fat, and when you aim keep going.

* Managing the number of probiotics, pills requiring an empty stomach, pills with food, and working with my normal meds can cause a challenge. The key reason for the probiotics is to prepare your “gut” for the antibiotics. I’ve been told long-term use of high levels of antibiotics will take your stomach for a ride. I hate to throw up, it’s high on my list of things I dislike.

* Enjoy the good days remembering overexertion and lack of sleep can worsen symptoms. I was fooled last week, staying up till 1:00 or 2:00, one night at 4:40 AM. The past three days are a reminder, the lack of sleep catches up. If you wake up late it throws your med schedule off the next day if you sleep in. I’m the queen of sleeping in, there is no discipline to force myself to set an alarm to get out of my comfy bed to take meds.

* You could have several doctors on your support team. I can’t drive while drugged and jerking, my husband has to take the day off to shuttle me to appointments. I’ve had appointments one day every week for the past month.

* When you’re enjoying the good days, you don’t think about what day the symptoms will return. Upon return this time my symptoms are like an early Parkinson’s’. I’m herky jerky making typing difficult. I have to realize at this point the disease is in the front seat driving me. I have little control.

* As the virus invades my brain the neurological symptoms increase, last night I experienced 15-20 seizures before they let up. My memory is getting foggy. I picked a song for Throwback Thursday over the weekend. It’s Wednesday morning and I still can’t remember the name of the band. I see the singer on stage, some of the lyrics to songs yet the band name escapes me. It is hard to accept the disease is invading your body. I try to keep positive, looking at this as a growing experience. When you read my post or comments and I use the wrong word or make no sense at all please remember it’s the virus in me speaking.

* My doctor handed me a brochure for a Healing Center with a new state-of-the-art HYPERBARIC THERAPY. Maybe Michael Jackson can sleep in one, not me. The therapy is 1 1/2 hours long, lying in this weird chamber and receiving 100% oxygen. I am claustrophobic, not to the worst degree however put me in one of those and someone will not see the better side of me.

This morning, 8/6/14 is the first time I’ve cried, just losing it. I was reading the beautiful feedback from friends and followers and the level of support warmed my heart.