Celebrate Life · Health and Wellbeing · Men & Womens Health

My Life Now

Looking for the Light

This is my reality and it’s hard to swallow when I look at my life 20 years ago. No doubt many people with Chronic Illnesses face similar problems. It’s not that I miss my younger self, I miss being capable and independent. 

In December, I was writing my 2024 goals, and my health and limits on driving make going to new places or getting a smoothie require my husband to be available to drive me. It sucks! 

I’d love your feedback and any ideas you have. 

My Life

I have no family except my husband 

No friends

The only people I see are doctors and my hairdresser

My hobbies

Blog

Photography

Bird watching

Green Thumb

Ancestry

Reality

I can not drive anymore 

Agoraphobia

Memory Impairment 

Balance problems have returned

Severe Anemia

It’s difficult to bring joy to your life when you sit at home day after day. If you’re housebound, how do you add joy to your day?

Melinda

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22 thoughts on “My Life Now”

  3. I hear you Melinda. I hope this comment brings you some joy! BTW: you might not have friends in your life there, you do have many online in your followers! If you ever want to connect off wordpress, I am open to it!
    For me, I get great joy in music and reading. In books, I am taken on a great journey to others places and lives, even for a short time. I also like reading psychology articles and books to become so knowledgeable on toxic traits that I won’t ever get caught up again in it. That too brings me joy!
    As for music, I can get really involved in it, especially with headphones on. I close my eyes and just concentrate on the words and music.
    I even get great joy from reading your posts, as you are so inspiring for me. You get up every day and share your insights with the world, in face of so many personal struggles. I have a gained a lot of respect for you this past year of reading your posts.

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  4. Hi Melinda, I wish I knew what to say and anything I did say would come from a point of view where I don’t fully understand how you feel so it might well be insulting to you.

    The only thing I can say comes from some stoic ideas we accept the things in life that happen that we have no control of, rather than fight them we should try and find out how we can make the best of what’s going on becasue it’s not something we can change (I know… it’s shit).
    With this is the notion we we should accept that whatever stage of life we’re at we are living the ‘good old days’ and that we should accept that whatever it is we doing or living and how painful it is there’s the real possibility that one day in the future we would look back and give anything to be where we are now.
    I realise that none of these things are very comforting and that all we’re doing is trying to bend our mind around the situations that we’re in. It must feel very isolating to be where you are now and probably scary. I do hope though, however you find it that joy comes into your life. :-)

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    1. WOW! Sounds like you understand. I’m still trying to get the hospital visit out of my mind. Our healthcare system has lost its way. But I hear it’s much better than NHS. Once my Anemia gets better and I’m not so fatigued, I’ll go looking. You sound like you’re doing well. Take good care of yourself and thank you for sharing your ideas. :)

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      1. I’m glad you think I do understand, its not an easy thing…
        I’m doing ok thanks, been a testing time myself for numerous reasons but I’m always trying to approach life with gratitude :-)

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  5. For me, bringing joy to my day is going to be probably be different than what you do, as I can go out.

    I only have myself as I live on my own. So if I am unwell, it’s only me to take care of me.
    I have been alone getting myself through a winter vomiting bug.

    I have been alone when I caught Covid. But my two employers at that time gave their individual support to me if needed.

    I have been in a situation where I had to get myself to A&E. I am deaf and so I struggle to hear on the phone. Phone is not an option. But in an emergency it was this taxi company. (I didn’t phone ambulance as I knew this wouldn’t be an emergency in their eyes for ambulance.) But luckily, a taxi company I used was familiar with me and they got a taxi to me to take me to A&E.

    Bringing joy to myself can be quite a few things. But to narrow it down to three, it’s dvd’s, walking in nature and music.

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      1. I am hoping I haven’t answered your reply wrong. Apologies in advance if I do. I’m not blind, which is why with that and also being able to get out with not being disabled other ways my joys may be different to you. My disability is my deafness. I can’t understand very well on the phone. It is very difficult to impossible. So phone is not my first choice. But I had to phone the taxi as it was around 2am in a morning when I cut my head from a fall in my home. I had concussed myself. So it was attempt to phone, or walk. Which walking was about 35 minutes from where I used to live, to the hospital.
        The other time I had to use a phone was for an ambulance when I found my mum unconscious and unresponsive in her home. But for that, I am registered with Pegasus scheme in my area. I have a unique number which I give to the emergency service I am calling and when they type that number in their system, it brings up my details and they will know that I am deaf and hence my hearing difficulties over the phone.

        When have been ill, it is simply just getting through it. I have no chouce.
        When I had the winter vomiting bug, I stayed in my bedroom upstairs, with a bottle of water to hand so I didn’t have to refill too often and so that I wasn’t far from the toilet because sometimes I was crawling on the floor because the pain pulled me down to the floor. I also had a bucket to hand to be sick in.
        I just kept hoping for relief and for sleep.

        When I had Covid, I was in bed for several days just sleeping and drinking water. I had odd bites to eat which I would get up for to eat at lunch time. But I couldn’t keep awake and just fell asleep where I sat. I go back to bed once woke up.

        Thank you. Have a great day too. 🙂

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