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I Had My Fifith IVG Infusion Treatment For My Hypogammaglobulinemia On Monday

Hypogammaglobulinemia is an Immune Disorder where my body doesn’t make enough antibodies which can be dangerous. Luckily, I don’t leave the house often and wear a mask when I do. I was diagnosed two years ago but insurance didn’t approve until I reached a record low. I’ve been approved for 12 treatments but I’m not confident that 12 treatments is all I need. Currently, my Imoglobins are at 600 and my doctor would like to see them at 800-900. Hopefully, this week’s treatment will increase my number and I’ll know more once the lab work is back.

The treatments take 4-5 hours and during that time you get to relax in an oversized recliner. For this treatment I packed much lighter, instead of a duffle bag and my handbag, I bought a North Face backpack, and everything fit inside. I took my new book Native American Myths by Matt Clayton, my ancestors were Cherokee and I wanted to learn more about their beliefs. When I wasn’t reading, I indulged in my favorite pastime by listening to music.

Here is what I listen to

Adele 21

Adele 25

John Mayer Born and Raised

One Republic Dreaming Out Loud

REO Speedwagon You Can’t Tune A Fish

Pharrell Williams Happy

Paul Carrack Tempted

Fleetwood Mac Crystal

It was so nice to relax with my feet up with my eyes closed and listen to some great tunes.

The treatments had a few hiccups. The first needle didn’t go in right so she had to use the vein next to it which was successful. It was a very slow morning but my nurse let my first bottle of medication run dry so they had to prime the line and she let it dry again with my saline. A small price to pay to get better.

The first two days after treatment you feel sluggish and can have a headache.

This time my treatment took five hours and by the time I got home I was starving and had not taken my morning medication.

Melinda

Reference:

https://my.clevelandclinic.org/health/diseases/25195-hypogammaglobulinemia


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