Celebrate Life · Chronic Illness · Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health · Moving Forward

Dr. Dave Martz overcame an ALS death sentence with Lyme treatment

As Dave Martz lay dying, an idea serpentined around his mind and would not loosen its grip: Despite the absolute diagnosis and the insistence of the doctors, including a world expert, that he was dying of ALS, despite his own vow to face things head-on and reject the lure of denial, Martz couldn’t shake the notion that possibly, just maybe, he actually had Lyme disease. (from Cure Unknown: Inside the Lyme Epidemic by Pamela Weintraub.)

One of the earliest Lyme conferences I ever attended featured Dr. Dave Martz and the story of his remarkable recovery from what had been diagnosed as ALS–a fatal condition.

I would later write this about him in my blog:

Kind of a rock star

Dr. David Martz is kind of a rock star in the Lyme world. You may have read about him in Pam Weintraub’s Cure Unknown and seen footage of him in the documentary Under Our Skin.

His story is riveting. He had a lifetime of good health and a successful career as a physician practicing internal medicine-hematology-oncology for 30 years. Then, in 2003, Martz suddenly started experiencing strange symptoms. First deep fatigue, then profound muscle aches and body-wide pain. Soon he was too weak to get out of bed. As his condition rapidly deteriorated, his physicians gave him a devastating diagnosis: ALS (aka Lou Gehrig’s Disease). They said nothing could stem his physical decline and he would likely be dead within two years.

But events went in a different direction. As his health spiraled downward, Martz connected with a Lyme disease specialist who prescribed hard-hitting, long-term antibiotics. The gamble paid off. By the end of 2004, Martz was a new man. In fact, the doctor who had diagnosed him so definitively with ALS, now pronounced that condition completely gone.

Martz devoted the next two and a half years to a project that gave extended antibiotics to about 90 ALS patients and demonstrated objective improvements in 15% of them. He has also treated more than 800 chronic Lyme patients, with good response and minimal side effects.

A message of hope

In 2010, I helped organize a Lyme patient education conference in the San Francisco Bay Area and we had Dr. Martz as our keynote speaker. He was a kind, thoughtful man who offered a message of hope to an audience which sorely needed it.

This week, I learned that Dr. Martz passed away last month at the age of 83. Rest in peace, Dr. Martz, rest in peace.

TOUCHED BY LYME is written by Dorothy Kupcha Leland, President of LymeDisease.org. She is co-author of Finding Resilience: A Teen’s Journey Through Lyme Disease and of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at dleland@lymedisease.org.

Very interesting read! So glad he had an open mind and thought to seek out a Lyme Literate Doctor, it saved his life.

Melinda

Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Numb the Pain by Navigating Chronic Discomfort with Style

Life with chronic discomfort can feel like living out an endless drama, yet its protagonist (that would be you), deserves smoother scenes. Luckily, there are multiple techniques to alleviate persistent pain, providing pockets of relief from daily struggle into a manageable storyline. 

Photo by Gizem Nikomedi on Unsplash

Embrace the Power of Movement

Exercise may make your spine shudder, but physical activity is an excellent way to manage chronic pain. Engaging in low-impact activities such as swimming, yoga, or tai chi can improve circulation, and flexibility and release endorphins. Natural painkillers are made available without an expectation of compensation.

Endorphins Are Like Comedians

Your body’s endorphins act like the stand-up comedians of its own world, helping lighten the mood and make things bearable. Movement produces endorphins which in turn reduce perceptions of pain. So whether it’s taking a daily stroll around your neighborhood or doing some light stretching exercises, find something that makes you want to move, even if that means dancing awkwardly without anyone watching.

Mind Over Matter: Mental Techniques for Relief 

Your mind can be used as an effective weapon, all it needs to be properly deployed. Practices such as mindfulness meditation, cognitive behavioral therapy (CBT), and guided imagery can have profound effects on pain perception while changing our relationship to discomfort.

Mindfulness Magic: Transforming Present into Peace

Engaging in mindful practice means staying present to each moment without judgment, helping to ease stress and anxiety that exacerbate pain. Apps or online resources designed to guide this process could prove invaluable, and your mind and body will thank you.

Harnessing Nature for Alternative Therapies

Incorporating natural methods can often provide what is needed for living with chronic pain. Acupuncture, chiropractic care, and herbal remedies may complement other pain management approaches by offering more holistic approaches.

Pricking Away the Pain: An Acupuncture Adventure 

While Acupuncture may seem strangely offbeat for television dramas, its roots lie deep within traditional Chinese medicine. By strategically placing needles along nerve pathways to reduce pain and promote healing.

Medical Marijuana as a Natural Alternative 

Medical marijuana has emerged as an attractive solution for chronic pain sufferers, thanks to cannabinoids found within cannabis which interact with our bodies’ endocannabinoid system and modulate pain and inflammation. While legal challenges have historically limited medical marijuana’s use, studies show its efficacy for various forms of pain such as neuropathic and arthritis pain relief. Patients often find medical cannabis helps them decrease reliance on traditional painkillers while potentially decreasing adverse side effects. You must consult your healthcare professionals regarding appropriate usage as soon as possible before beginning.

Becoming a Master Chef: Nutritional Tweaks

No one’s suggesting an appearance on a cooking show, rather, what you eat has more power to affect pain levels than you realize. An anti-inflammatory diet may work wonders. Try including foods rich in omega-3 fatty acids like fish, flax seeds, and walnuts in your daily meal plans to reduce inflammation and pain levels. Remember: balance doesn’t mean balancing pizza slices between both hands.

Spice It Up: The Turmeric Tale

Turmeric is one of the greatest spices imaginable, boasting powerful anti-inflammatory effects and rich with curcumin. Add turmeric to dishes, smoothies, or teas for an intoxicating flavor and potential pain relief. But be careful not to mistake it for its competitor, saffron. They both love taking center stage but serve distinct functions.

Conclusion

Chronic pain may be a constant part of life, but exploring different strategies may provide relief. Pain management becomes less exhausting with laughter as your guide and professionalism as your shield. Embrace these tips as creative tools to write a narrative that features discomfort less prominently in it.

This is a collaborative post.

Melinda

Celebrate Life · Health and Wellbeing · Men & Womens Health · Mental Health

Deep Thoughts

In this fast-paced social media world, it can be difficult to find the time to look within or back in time. I hope you find the quotes or questions interesting. So glad you stopped by today!

We are all far more fascinating than we give ourselves credit for. 

What is one thing about you that others would be surprised and delighted to know?

Melinda

Celebrate Life · Family · Friendships · Health and Wellbeing · Men & Womens Health · Travel

Blogger Highlight-Mum Cee

Thank you for all the great feedback on the Blogger Highlight series, I’ve enjoyed meeting each blogger and sharing their site with you. This week we highlight Mum Cee. I have followed Cecilia for years, her writing is raw, powerful, from the heart, and often relevant to her country, Ghana. She is a strong voice for women, and I love that about her, she is wise beyond her years. 

Mum Cee  

Amoafowaa Sefa Cecilia: Writer, Teacher & Speaker

Just a simple Ghanaian trying to find the best in our society. I may be fun, I may be interesting, I may be funny, I may even be foolish or intelligent, but it is all based on the mood in which you find yourself. I believe our minds make us who we are. Know that, pain, no matter its ‘unbearability’, is transient. Unburden or delight yourself for a while in my writings please. And all corrections, advice and opinions are welcome. Know that you are the king, queen or royal on this blog.

Her published books:

Excursion on an African Mind

 

 

 

 

 

 

 

 

 

Cecilia Amoafowaa Sefa

If you are looking for a good book to read, get ready to be rather read by Cecilia’s art through her heart. Wilson Ayinbangya Amooro Author of ‘Love Letters’ book series Amoafowaa Sefa Cecilia is a poet, novelist and an occasional dabbler in article writing. A passionate writer all her life, Amoafowaa holds a BA in English Language from the Kwame Nkrumah University of Science and Technology, Ghana. She is a feminist who seeks equity for women, justice for the abused and hopes for happiness and safety for all children through her writings. Amoafowaa is eclectic in her writings – from the beauty of the sun to the deception of politics; nothing escapes her literary brush, only feeling complete when her works touch hearts. She has worked at Bishara Radio in news casting, lunch time programs which are more song-driven, and hosted some literary programmes. Amoafowaa Sefa Cecilia is currently an English Teacher at Tamale Secondary High School.

 

Ashawo Diaries: Tales of Adwoa Attaa

 
A few reviews:
 
Ashawo Diaries raises queries on why young girls should experience sexual suppression in a cultural context like Ghana where children are valued, moral standards are held high and sexual discussions silenced. – Dr. Georgina Yaa Oduro, Director, Centre for Gender Research, Advocacy and Documentation (CEGRAD), University of Cape Coast
 
The titillating intrigues of a good bad girl…delightful reading: sometimes light, sometimes dark; always with ponderous insights! – Koku Dotse
Ashawo Diaries is a text that challenges sanitized perspectives of Ghana. – Kwabena Opoku-Agyemang, Lecturer, Department of English, University of Ghana, Legon

Ashawo Diaries will surely leave readers scratching their heads with excitement. – Dr (Mrs.) Nana Ama Pokuaa Arthur, Lecturer, KNUST

A thrilling page-turner. Amoafowaa is fluid in narration, and succinct in description. – Rebecca Obuobisa-Darko, Personnel Officer, Ga East Municipal Education Directorate

Cecila’s Ashawo Diaries is storytelling meddled in art, obviously, science and a game of the protagonist. Daring diary entries with erotic sprinkles, gripping and sustaining…Poetically written and with a feminist undertone. – Grace Ihejiamaizu, Lecturer, University of Calabar, Founder of IKapture and Opportunity Desk, Nigeria

Looking for the Light

 

Chronic Illness · Health and Wellbeing · Life · Medical · Men & Womens Health · Mental Health · Self-Care

Blood Cancer Awareness Month 

My husband was diagnosed last year with Leukemia and it was a total shock to the system. He’s been healthy our entire 22-year marriage only having a cold a few times, this diagnosis rocked me hard. One blessing is that he has a team of doctors who he sees regularly and so far his cancer is growing very slowly. Skin Cancer can also pop up with Leukemia and he has been diagnosed with that as well. He goes every three months and usually has a new spot removed or scrapped and burned. Sunscreen is more important than ever but he hasn’t bought into that yet.

As scary as it was in the beginning, after educating ourselves and him seeing a doctor every three months we are more comfortable about where his health is at.

This Is Blood Cancer

Blood Cancer Awareness Month is a global event helping to raise awareness of one of the world’s most prevalent and dangerous cancers: blood cancer.

September turns red each year as the spotlight is put firmly on blood cancer and the impact it has on our communities and the urgent need for more action.

Raising awareness of blood cancer, its signs and symptoms, and its impact, will help to improve early diagnosis, encourage policymakers to prioritize the disease, as well as help everyone with blood cancer feel connected and heard.

 

Tricia Hernandez with the Leukemia Lymphoma Society says many blood cancers are treatable through chemotherapy, stem cell transplants, and surgery.

She says in Maine, nearly 900 people have been diagnosed with blood cancer this year.

“A person is diagnosed with a blood cancer approximately every three minutes. So, it’s quite a large number although a rare disease than other cancers. There are hundreds of thousands of people affected by this,” said Hernandez.

Major Types of Leukemia

The four major types of leukemia are:

CLL is one of the most common types of leukemia in adults. ALL is the most common type of leukemia in children.

Types of Lymphoma

Lymphomas begin in cells of the lymph system, which is a part of the immune system. Lymph tissue is found throughout the body. As a result, lymphoma can begin almost anywhere. The disease occurs in two types: Hodgkin and non-Hodgkin lymphomas.

Both types can occur in adults and children. An estimated 80,620 people in the United States will develop non-Hodgkin lymphoma in 2024, according to the NCI. Approximately 20,140 people will die from non-Hodgkin lymphoma. For Hodgkin lymphoma, 8,570 new cases and 910 deaths are estimated for 2024, according to the NCI.

FOR MORE INFORMATION

There are many different types of leukemia and lymphoma in adults and children. For more information on these different diseases, please see:

References:

https://bloodcancermonth.org

https://www.msn.com/en-us/health/other/nearly-2-million-americans-live-with-blood-cancer-september-marks-awareness-month/ar-AA1qPvUH?ocid=BingNewsSerp

September is Leukemia and Lymphoma Awareness Month

Celebrate Life · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Self-Care

Healthy Aging Month

What a great awareness month, we all age so why not age healthy. Below are tips you can apply to your life today for better physical and mental health Here’s to our future.

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It’s time to celebrate September Healthy Aging® Month, the annual observance month designed to focus national attention on the positive aspects of growing older.

What is September is Healthy Aging Month All About?

The observance month began more than 30 years ago as part of our National Healthy Aging® Campaign to continue to draw attention to healthy, active lifestyles at any age.

Carolyn Worthington, president of Healthy Aging®, the official multi-media platform promoting the month, created it in 1992.

“Our goal in creating the month was to draw attention to the positive sides of growing older. We felt there needed to be a second time during the year in addition to May is Older Americans Month. September was chosen because so many people felt they could “get started” more easily at that time. Maybe the back-to-school routine never really goes away.”

Now, after more than thirty years, Worthington sees the national interest in continuing healthy lifestyles well into old age as never been stronger.

“We were pleased to announce that the U.S. Senate unanimously passed the resolution marking September as National Healthy Aging Month in 2021,” Worthington said. Numerous governors before that proclaimed the national observance month for their states as well.

“We are proud of our efforts to continue to build awareness for healthy lifestyles. Since we kicked off the observance month, the myths of aging have been chipping away,” Worthington said. “We are also proud to say the month we started is now on most national health observance calendars.”

“Of course, there are still stereotypes about older adults,” Worthington said. Perhaps the baby boomers embracing aging like no other generation started turning the tide. Seeing people in their 80s and 90s doing spectacular things today is not unusual.”

10 Tips for Healthy Aging®

The four main components of a healthy lifestyle fall into four main categories: physical, social, mental, and financial wellness.

  1. Move more, sit less. Why? Physical activity is your weapon to help control blood pressure, help prevent heart disease and stroke, and possibly lower your risk for depression, anxiety, and conditions like certain cancers and type 2 diabetes. What to do? Choose something fun so you can keep at it, like cycling, walking, dancing, swimming, or aerobics.
  2. How much do you need to do? Current national recommendations are 150 minutes of moderate-intensity physical activity per week and two days of muscle-strengthening training. That’s only 20 minutes a day, 7 days a week, or around an hour a day if you do three days a week.
  3. Get motivated with free websites and apps like All Trails to find parks and trails around the world; American Heart Association with ideas on how to join a walking club, or The CDC with ideas for individuals with a disability 
  4.  Get Those Annual Check-Ups. Make this month the time to set up your annual physical and other health screenings. Go to the appointments, and then, hopefully, you can stop worrying about ailments for a while.
  5. Volunteer. ..Being of service is an excellent way to bring happiness into your life and not focus on yourself. Refocus on others and volunteer your time and expertise. United Way, the American Red CrossVolunteerMatch,  and AmeriCorps are all helpful resources.
  6. Beat back loneliness. Don’t wait for the phone to ring. Be proactive and call someone for a lunch date. Set up a calendar of lunch dates and challenge yourself to have at least two lunch dates per month (once a week is even better!) It doesn’t have to be expensive … pack a picnic, and head to a park. Try to mix up your get-togethers with old friends and new acquaintances.
  7. Rekindle or follow a new passion. Take a hard look at what you like to do rather than what other people tell you to do to meet new people. Pick some activities where you might meet new friends.
  8. Get a dog. If you don’t have one, get one and walk. You will be amazed how many people you will meet through your dog. Can’t have one? Check your local humane society to see if they need dog walkers
  9. Be realistic about what you can accomplish. Learn to say no …, and don’t overwhelm yourself with a to-do list. The non-profit Mental Health America offers more tips for reducing or controlling stress.
  10. Plan for your next passage. Capitalize on your career experience and start a new one. Yes, enjoy a brief “retirement.” Travel, and spend more time with family and friends. Develop new hobbies. Redefining your purpose to maintain a sense of identity and purpose is essential to a healthy lifestyle.

This a great reference it’s given me many ideas on how I can improve my life.

Melinda

Reference:

September is Healthy Aging® Month 2024

Celebrate Life · Chronic Illness · Family · Fun · Health and Wellbeing · Medical · Men & Womens Health · Music

#Weekend Music Share-Eddie Van Halen & Sammy “Love Walks In” (Bridge School Benefit 1993)

My husband sent me this video and the first thing I said was, “Who knew Eddie could play the piano?” I don’t buy into aliens but I like the song played this way, I didn’t listen to the original version because I wanted to remember this special occasion. You can tell they were having fun and really enjoyed each other’s company. I still love Sammy’s voice, his club in Cabo, not so much.

A tidbit about the Bridge School Benefit.

The Bridge School Benefit was an annual charity concert usually held in Mountain View, California, every October at the Shoreline Amphitheatre from 1986 until 2016 with the exception of 1987. The concerts lasted the entire weekend and were organized by musicians Neil Young and Pegi Young. An annual Bay Area highlight, the concerts were billed online as the primary means of funding for  The Bridge School; over both days, the reserved seats alone brought in well over a million dollars every year.

Organized by musicians Neil Young and Pegi Young, the Bridge School Benefit Concert is an annual, all acoustic, non-profit charity event held every October at Shoreline Amphitheatre in Mountain View, California. All proceeds directly benefit the operations of The Bridge School.

Our Mission

The Bridge School is a non-profit organization whose mission is to ensure that individuals with severe speech and physical impairments achieve full participation in their communities through the use of augmentative & alternative means of communication (AAC) and assistive technology (AT) applications and through the development, implementation and dissemination of innovative life-long educational strategies. The Bridge School is an internationally recognized leader in the education of children who use augmentative and alternative communication and has developed unique programs and trained highly skilled professionals in the use of state of the art assistive technology.

References at the bottom of the post.

It’s the weekend!!!!!!

 I’m glad you joined me this week for another edition of Weekend Music Share.

Have a great weekend!

Melinda

Welcome back to Weekend Music Share, the place where everyone can share their favorite music.

Feel free to use the Weekend Music Share banner in your post, and use the hashtag #WeekendMusicShare on social media so other participants can find your post.

Reference:

https://en.wikipedia.org/wiki/Bridge_School_Benefit

https://www.bridgeschool.org

Health and Wellbeing · Life · Medical · Men & Womens Health · Mental Health · Moving Forward

Just Pondering

Hi, I’m glad you stopped by and I look forward to seeing you soon. 

If you had to make a decision in life that would change the quality of life in your future and potentially wipe out your savings, how would you approach it?

I’m praying and waiting for answers.

Melinda

 

Celebrate Life · Communicating · Health and Wellbeing · Medical · Mental Health · Self-Care

Unboxing Menopause: Why fear shouldn’t dictate our health choices

America’s leading menopause advocates lead the way for changing the way we speak about menopause.

The black box warning labels on local estrogen products are costing menopausal women their wellbeing, and their money, and HELLO’s not-for-profit partner, Let’s Talk Menopause is on a mission to remove them. 

Along with the Menopause Advocacy Working Group, Let’s Talk Menopause is calling for the removal of the outdated FDA-mandated boxed warning from local vaginal estrogen products used to treat Genitourinary Syndrome of Menopause (GSM).

GSM is a condition that affects up to 84% of menopausal women, manifesting in symptoms such as vaginal dryness, urinary urgency, and recurrent urinary tract infections, aka UTIs. Despite the proven effectiveness of local vaginal estrogen in treating GSM, an outdated boxed warning prevents many women from accessing this essential treatment.

The black box warning labels on local estrogen products are costing menopausal women their wellbeing, and their money, and HELLO’s not-for-profit partner, Let’s Talk Menopause is on a mission to remove them. 

Along with the Menopause Advocacy Working Group, Let’s Talk Menopause is calling for the removal of the outdated FDA-mandated boxed warning from local vaginal estrogen products used to treat Genitourinary Syndrome of Menopause (GSM).

GSM is a condition that affects up to 84% of menopausal women, manifesting in symptoms such as vaginal dryness, urinary urgency, and recurrent urinary tract infections, aka UTIs. Despite the proven effectiveness of local vaginal estrogen in treating GSM, an outdated boxed warning prevents many women from accessing this essential treatment.

Get involved and learn more by visiting the Unboxing Menopause campaign website and sign the consumer advocacy letter to the FDA.

The Real Cost of the Boxed Warning

The boxed warning on local vaginal estrogen has caused unnecessary fear and confusion for millions of women suffering from GSM. This barrier to treatment has led to higher healthcare costs, multiple doctor visits, and prolonged discomfort. 

“The boxed warning poses a massive economic burden on women — and on society,” said Jen Weiss-WolfLet’s Talk Menopause Board Member, author, and Executive Director at Birnbaum Women’s Leadership Center. “Untreated GSM leads to higher healthcare costs, lost productivity, and unnecessary suffering.”

Advocating for Change

Let’s Talk Menopause and the Menopause Advocacy Working Group are calling on women and healthcare providers to join their campaign to demand the FDA remove the boxed warning from local vaginal estrogen products.

“Vaginal estrogen is the gold standard treatment for GSM,” Dr. Robin Noble, an OBGYN and Let’s Talk Menopause’s Chief Medical Advisor tells HELLO! “It targets the problem at the source, helping women regain their comfort, their sexual function, and their quality of life with minimal risk.”

“Fear shouldn’t dictate our health choices,” explains Tamsen Fadalauthor, journalist, filmmaker, and Let’s Talk Menopause board member. “The black box warning is costing us our well-being and our money.”

Join the Campaign

Let’s Talk Menopause and the Menopause Advocacy Working Group urge women and healthcare providers to advocate for removing the outdated boxed warning, making local vaginal estrogen more accessible. For more information on how to get involved or to learn more about GSM and local vaginal estrogen, visit the Unboxing Menopause campaign website and sign the consumer advocacy letter to the FDA.

Women have the right to know how Box Warnings are decided upon by the FDA. There have been several occasions that I’m aware of where the data has been misapplied and it can take many years before the correct information comes to light.

Melinda

Reference:

https://www.hellomagazine.com/healthandbeauty/health-and-fitness/718793/unboxing-menopause-why-fear-shouldnt-dictate-our-health-choices/