Book Review · Celebrate Life · Chronic Illness · Health and Wellbeing · Men & Womens Health

Book Review Finding Joy with an Invisible Chronic Illness by Christopher Martin

I was kindly gifted an advanced copy of Finding Joy with an Invisible Chronic Illness, Proven Strategies for Discovering Happiness, Meaning, and Fulfillment by Christopher Martin from NetGallery for a review. 

Published 2021

I am a school psychologist, husband, father, and – pertinent to this website – an author who has multiple invisible chronic illnesses. 

 And an invisible chronic illness is a beast.  On top of draining you physically, a chronic illness can impact all aspects of your life ranging from causing financial hardship to harming your relationships to dampening your spirits.  Try to be cheerful when you have this unremitting “monkey on your back” known as an invisible chronic illness that constantly demands your attention 24-7.  Needless to say, it’s easy to let yourself and others down. 

      Plus, your family or friends can’t see your illness, as it’s invisible, and they may not understand.  Most with an invisible illness are familiar with “advice” ranging from “stay positive” to “you look good” to “Have you tried ___ for your condition?”  Yup, you probably have, and it didn’t work. 

      On top of that, best wishes in accessing (and maintaining) high quality medical care when you are too tired to even take care of yourself.    

      Welcome to the world of an invisible chronic illness.  I should know.  I suffer from multiple invisible chronic illnesses, including a primary immune deficiency disorder and bronchiectasis. 

 But it doesn’t have to be this way – for you or for me.    While I am not cured of my illness, I enjoy a fulfilling life and experience ongoing joy, peace, and happiness.  Because of outstanding medical care, extensive self-educating and self-care, a supportive family, and a strong faith, I effectively manage my chronic illnesses.  But I didn’t want to be the only one to benefit.  It was my goal, in turn, to give back to others by doing what I love to do:  authoring books on these conditions. 

Blurb

“Finding Joy is a vital guide on how to best manage and navigate life with a chronic illness.”—James Nestor, New York Times bestselling author of Breath: The New Science of a Lost Art

“Finding Joy provides a comprehensive, evidence-based roadmap for not only coping with chronic illness, but personally optimizing self-growth and resiliency from the experience.” —Joanne Joseph, PhD, professor of psychology and interim dean of the College of Health Sciences, SUNY Polytechnic Institute, and author of The Resilient Child: Preparing Today’s Youth for Tomorrow’s World

* How can you experience those good thoughts and feelings, enjoy life to its fullest, and de-stress when faced with relentless physical suffering?

* How can you enhance your relationships, find support, respond to the naysayers, and possibly even help them understand you and your illness?

* When seeking medical care, how can you get the answers you deserve, and access and maintain quality healthcare?

Early Reviews

“”Finding Joy is absolutely phenomenal. Chris Martin’s heartfelt approach offers numerous meaningful strategies to thrive when faced with the many unseen and unrecognized issues of living with an invisible chronic illness.””—Heather Lewis-Hoover, MS, CAS, school counselor

““Finding Joy is a vital guide on how to best manage and navigate life with a chronic illness.””—James Nestor, New York Times bestselling author of Breath: The New Science of a Lost Art

“Finding Joy provides a comprehensive, evidence-based roadmap for not only coping with chronic illness, but personally optimizing self-growth and resiliency from the experience.” —Joanne Joseph, PhD, professor of psychology and interim dean of the College of Health Sciences, SUNY Polytechnic Institute, and author of The Resilient Child: Preparing Today’s Youth for Tomorrow’s World

My Thoughts

I think Chris says it best, the diagnosis is a step forward, it’s not the last. 

Finding Joy with an Invisible Chronic Illness is a great find, one for all to read, patients, loved ones, and, family members. It is a simple and practical approach to taking control by understanding how we think and what we have control over when it comes to our chronic condition and healthcare treatment. 

Enjoy Reading,

Melinda

Looking for the Light

Repost

Chronic Illness · Health and Wellbeing · Men & Womens Health · Mental Illness · Moving Forward

How to Handle Disrespect Without Taking It Personally

Bipolar can make disrespect feel overwhelming. Reframing others’ behavior keeps the focus on their actions — not your worth.

Did you know that no one can disrespect you?

That’s right! No one can disrespect us. When we feel disrespected, we’re taking someone’s words or actions personally, and we choose to feel disrespected. We assign to our response feelings like invalidation or disrespect. In actuality, they are not disrespecting us. Here’s why.

You’ve probably heard it before, but it’s absolutely true: People’s actions are a reflection of the person they are. They are projecting their behavior onto us.

Don’t Take Disrespect Personally

Learning not to take things personally is so important to our mental well-being and happiness. When we think people are being disrespectful, invalidating, or rejecting, that’s when we’re taking their behaviors personally and making their behaviors about us. 

Another person’s behavior is not about us. It may feel like people are acting a certain way because of us, but the way people act is always about them.

When we feel disrespected, this is our cue to start reframing the situation for clarity and perspective. Instead of taking things personally and feeling bad about ourselves, we need to change our thinking to find perspective, objectivity, and clarity.

Reframe Negative Thoughts for a Healthier Perspective

I used to feel disrespected all the time, like I didn’t matter, and people put me last or trampled my boundaries. We can feel very low and cultivate a lot of negative thinking about ourselves when we have this perspective. This is not good for promoting a solid sense of self, healthy self-esteem, or positive self-image.

We need to protect ourselves from emotional hurt and invalidation. I’ve found that when I can reframe hurtful actions as experiences rather than taking them personally, it helps me cope with people who may be unaware or hurtful.

Not having the situation be about me makes it easier to maintain perspective, distance, and detachment. 

How do you do this? Instead of claiming disrespect, detach from that idea and reframe the situation in terms of how the disrespectful person was behaving. Your thought process is no longer, They were disrespectful to me, which hurt my feelings! Instead, it becomes:

  • They were being rude
  • They were acting like a jerk
  • They were being insensitive
  • They were being disrespectful

And here’s the important part,  … but that is a poor reflection of them and not hurtful to me.Again, the key here is, that’s not hurtful to me.

Why Strong Boundaries Protect Your Mental Health

The most important dynamic in human behavior and healthy relationships is creating and maintaining boundaries, in my opinion. Boundaries allow clarity, perspective, and detachment because they keep us in a safe space and separated from what crosses our boundaries and creates anger or hurt.arated from what crosses our boundaries and creates hurt or anger.

Melinda

Reference:

https://www.bphope.com/blog/taking-yourself-on-effective-strategies-to-deal-with-disrespect/?utm_source=iContact&utm_medium=email&utm_campaign=bphope&utm_content=Best+-+Sep9+-+Anger

Chronic Illness · Health and Wellbeing · Men & Womens Health · Mental Illness · Moving Forward

Top Bipolar Disorder Support Organizations and Resources

Professional support groups and networks play a vital role in addressing challenges faced by those living with bipolar disorder and their families.

Finding the right support can make a world of difference when living with bipolar disorder. National and international organizations offer resources, education, and community — helping individuals and families feel informed, empowered, and less alone.

These care networks — such as peer and professional support groups — create a sense of connection and belonging and provide practical insights for navigating the often complex mental health care system. They also offer valuable tools, such as self-help strategies and lifestyle recommendations, which empower individuals to manage their symptoms more effectively.

In addition to providing support and resources, some national networks are actively involved in research, clinical trials, and the development of innovative therapies.

Here’s a roundup of the best bipolar support organizations contributing to a brighter future for those who live with bipolar disorder or love someone who does:

National Alliance on Mental Illness (NAMI)

The National Alliance on Mental Illness provides a range of programs designed to educate you and your family about bipolar disorder, including a peer-to-peer program specifically for adults living with mental health conditions.

They also feature a helpline on their website that offers free, confidential support, as well as referrals to local services, and guidance from trained volunteers. With local chapters all over the United States, the national organization can provide you with direct assistance, including access to support groups, educational initiatives, and community outreach programs.

As advocates for improved mental health policies, the National Alliance on Mental Illness actively works to enhance access to care, safeguard your rights, and increase research funding. Plus, they share the latest research findings in bipolar disorder management, helping you stay informed and empowered.

The Depression and Bipolar Support Alliance (DBSA)

As a leading national organization specializing in depression and bipolar disorder, the Depression and Bipolar Support Alliance reaches millions of people each year with its extensive selection of resources. A key feature of their support system is the array of both in-person and online support groups, which are led by individuals who’ve had personal experiences with mood disorders. These groups provide a safe and comforting space where you can share your experiences, gain support, and learn coping strategies. And if you’re interested, they also provide training so you, too, can lead support groups and share your experiences with others.

The organization also offers dedicated resources for support partners, families, and friends. They provide an online community where your support network can connect with others in similar situations to exchange advice and gain support.

In addition to these support groups, the Depression and Bipolar Support Alliance has plenty of educational materials to help you better understand your diagnosis, learn about treatment options, and find strategies for maintaining your bipolar stability.

Mental Health America (MHA)

A reliable resource to guide you on your journey with bipolar, Mental Health America offers a wealth of helpful information. This includes detailed insights into symptoms, understanding the diagnosis process, exploring various treatment options, and practical strategies for day-to-day coping.

Through their website, they offer various tools, including online screening options, to help you identify potential bipolar symptoms, insightful articles about the mood disorder, and hosting educational webinars and podcasts.

Understanding the value of shared experiences and community in managing bipolar disorder, Mental Health America promotes its peer-support platform, Inspire. They also conduct public awareness campaigns to help reduce stigma and advocate for research to enhance our understanding and management of this diagnosis.

International Bipolar Foundation (IBPF)

A valuable support, the International Bipolar Foundation provides a range of educational tools, including informative webinars and detailed blogs to help you — and your loved ones — understand and manage your condition more effectively. If you’re newly diagnosed, they offer a free book to guide you through this journey.

Recognizing the importance of having people around who understand what you’re going through, the foundation maintains a list of support groups worldwide. One of their main goals is to help you connect with these groups and mental health professionals, ensuring you can always find the help you need.

In collaboration with global organizations and experts, the International Bipolar Foundation is dedicated to advancing research to improve our knowledge and treatment of bipolar disorder. They’re also active in raising awareness and reducing stigma through various campaigns, promoting greater societal understanding and acceptance. For anyone in a crisis, they list international suicide hotlines.

American Psychiatric Association (APA)

Dedicated to promoting mental health through research, education, and advocacy, the American Psychiatric Association offers valuable resources for individuals with bipolar disorder and healthcare professionals. They create guidelines that doctors use to diagnose and treat bipolar, ensuring that you’re getting care based on the most current knowledge and research.

They also educate psychiatrists and health providers about the latest findings and treatment methods for bipolar disorder, which helps keep your health team updated and well-equipped to support you.

The association also conducts research and advocates for policies and funding that improve mental health care. This work can lead to a better understanding and treatments for bipolar disorder in the future. You can find informative articles, webinars, podcasts, and guidelines for diagnosis and treatment, all aimed at increasing understanding, reducing stigma, and improving overall care. If you need to find a psychiatrist in your area, consider trying their Find a Psychiatrist tool.

Mayo Clinic

This top U.S. hospital provides personalized care and support for people living with bipolar disorder, which includes everything from diagnosis to treatment. Mayo Clinic’s team of specialists, including those from their Department of Psychiatry and Psychology, work together to create a treatment plan designed specifically for you. This could include medications, therapy, lifestyle changes, or a mix of these.

Mayo Clinic provides educational resources to help you better understand your condition, manage your symptoms, and make informed decisions about your treatment. Plus, they offer support services like stress management assistance and help with any related school or work challenges.

They also have a comprehensive outpatient evaluation and treatment program at the Mayo Clinic Depression Center, along with the Mood Disorders Unit and the Mayo Mood Clinic.

And as part of their ongoing efforts to improve bipolar management, Mayo Clinic conducts research, which means you’d have access to the latest treatment options and may even be able to participate in clinical trials.

National Institute of Mental Health (NIMH)

The National Institute of Mental Health — part of the world’s largest medical research organization, the National Institutes of Health — plays a significant role in supporting you or your loved ones.

A rich source of information about bipolar disorder, they maintain an extensive collection of educational materials on their website, providing in-depth insights into the symptoms, causes, diagnostic process, and treatment methods related to the disorder.

The institute invests in research and clinical trials to improve how we diagnose and treat bipolar disorder, and evaluate new treatment possibilities. They also collaborate with other organizations to raise public awareness about bipolar disorder and reduce its stigma. This helps everyone, from the general public to healthcare professionals, to better understand and respond to the complexities of this mood disorder.

Additional Mental Health Associations and Organizations

The following additional organizations spread awareness and understanding about bipolar disorder, the treatment of clinical depression, and mental health, in general. If you seek additional information about bipolar disease and depression treatment for yourself, a child, or loved one, we encourage you to explore these websites:

United States

Canada

Melinda

Reference:

https://www.bphope.com/the-best-bipolar-support-organizations/?utm_source=iContact&utm_medium=email&utm_campaign=bphope&utm_content=HHH+-+Aug28+-+Support

Chronic Illness · Climate Change/Global Warming · Health and Wellbeing · Lyme Disease · Medical · Men & Womens Health · Mental Health · Tick Borne Illnesses

Resources to help figure out your next move-Critical Information For Children & Adult’s

Social media. We spread the word via FacebookTwitterInstagram and Pinterest.

Our free weekly email newsletters keep you informed on Lyme-related developments. Click here to sign up.

US National Lyme Online Support Group: Information and emotional support for people dealing with Lyme and other tick-borne diseases.

MyLymeData patient registry: This big data research project allows patients to privately pool information about their Lyme disease experiences. So far, more than 17,000 people have enrolled in the project, providing millions of data points on Lyme disease demographics, tick bites, diagnosis, symptoms, lab tests, co-infections, treatment and quality of life. Add your Lyme data to MyLymeData to help find a cure for Lyme disease.

Lyme disease posters

Children and Lyme disease

Basic info about children with Lyme disease Gestational Lyme disease LymeHope, a Canadian Lyme advocacy organization, has taken a particular interest in the issue of mother-to-fetus Lyme transmission.

LymeAid4Kids–Financial assistance for Lyme treatment for those under age 21.

Lymelight Foundation–financial assistance for Lyme treatment for children and young adults through age 25

.LivLyme Foundation–Financial grants for children with Lyme disease (under 21).

Mothers Against LymeAdvocacy and education about congenital and childhood Lyme

Video: Lyme Disease & Pregnancy: State of the Science & Opportunities for Research

Book: When Your Child Has Lyme Disease: A Parent’s Survival Guide  by Sandra Berenbaum and Dorothy Kupcha Leland.

Book: Brain Inflamed: Uncovering the Hidden Causes of Anxiety, Depression, and other Mood Disorders in Adolescents and Teens  by Dr. Kenneth Bock

.Book: Protecting Your  Child From the Child Protection System, by Beth Alison Maloney

Book: Finding Resilience: A Teen’s Journey Through Lyme Disease, by Rachel Leland and Dorothy Kupcha Leland

.Article: Healthy Mom Best Prescription for Healthy Baby (The Lyme Times) (PDF)

Wrightslaw.com–Website with information about Special Education law.

PANS/PANDAS

ASPIRE: The Alliance to Solve PANS and Immune Related Encephalopathies

New England PANS/PANDAS Association

Northwest PANDAS/PANS Network

PANDAS Network

Moleculera Labs

Three books by Beth Alison Maloney:  Saving Sammy,  Childhood Interrupted: The Complete Guide to PANDAS and PANS, and Protecting Your Child from the Child Protection system (The author of these books is the mother of a child who healed from PANDAS. She is an attorney/advocate for the recognition and treatment of PANS/PANDAS, and advises parents about legal issues related to PANS/PANDAS and other complex medical conditions.)

Parenting with PANS

Photo by Pixabay on Pexels.com

Ticks

Types of ticks

How to protect yourself from ticks

Find the repellent that’s right for you (EPA website)

Help! I’ve gotten a tick bite. Now what?

TickEncounter Resource Center—University of Rhode Island

Tick testing. There are various places to get ticks tested. Here are several: IGeneXTickCheckTicknologyTick Report

MilTICK—free tick testing and identification service available for ticks removed from Department of Defense (DoD) personnel and their dependents. 

Mast cell activation syndrome and food-related issues

MCAS, when your immune system goes haywire

The agony of mast cell activation syndrome (MCAS)

Healing from mast cell activation syndrome

What to eat when you’re allergic to everything?

Severe weather can worsen mast cell activation syndrome

Alpha-gal syndrome

There is growing evidence that certain types of tick bites can trigger alpha-gal syndrome (AGS) a life-threatening allergy to red meat and meat-related products.

Alpha-gal syndrome–symptoms, diagnosis, treatment

Tick-Borne Conditions United

Alpha-gal Information Website

Other Lyme-related symptoms & issues

Lyme carditis and heart block

Lyme disease can affect the heart in complicated ways

Lyme disease and cognitive impairments

Gastrointestinal manifestations of Lyme

Psychiatric manifestations of Lyme 

Lyme disease and hearing loss

Lyme and multiple sclerosis 

Lyme and allodynia 

Medical marijuana and Lyme disease 

The dreaded Jarisch-Herxheimer reaction

How Lyme disease can affect your vision

12 ways you can help yourself manage chronic pain  

Morgellons

The Charles E. Holman Morgellons Disease FoundationMorgellons: The legitimization of a disease (book review)Skin Deep: The Battle Over Morgellons (documentary film) 

Treating Lyme disease with disulfiram

What is disulfiram and why does it spark excitement in Lyme community?Treating psychiatric Lyme symptoms with disulfiram

Co-infections

The Lyme Times Special Issue on Co-infections (PDF)About Lyme disease co-infectionsCo-infections poster

Mold

Lyme and mold 

Survivingmold.com

Dealing with Lyme disease and mold illness at the same time

Mold Testing Guide (How to test your home for mold)

Your guide to mold in your home

Clean indoor air on a budget

Are you unknowingly ingesting toxic mold?

How to donate blood and tissue for Lyme research

Lyme Disease Biobank

Lyme and pets

Basic information about Lyme and pets

Parasite prevalence maps Educational website includes a US map down to the county level, showing where dogs have tested positive for Lyme, anaplasmosis, erhlichiosis and other diseases. Also, information about protecting your pet from tick-borne diseases.

Companion Animal Parasite Council website has comprehensive information about how to protect your pets from ticks and other parasites.

Books (Treatment, healing modalities, family life)

Brain Inflamed: Uncovering the Hidden Causes of Anxiety, Depression, and Other Mood Disorders in Adolescents and Teensby Dr. Kenneth Bock

CHRONIC: The Hidden Cause of the Autoimmune Pandemic and How to Get Healthy Againby Dr. Steven Phillips and Dana Parish

Conquering Lyme Disease: Science Bridges the Great Divide, by Brian A. Fallon, MD, and Jennifer Sotsky, MD

The Deep Places: A Memoir of Illness and Discovery, by Ross Douthat. The New York Times columnist delves into his personal years-long battle with chronic Lyme disease.

Finding Resilience: A Teen’s Journey Through Lyme Disease, by Rachel Leland and Dorothy Kupcha Leland. Based on the journal Rachel kept during the worst years of her illness, with additional insights from her mother, Dorothy.

How can I get better? An Action Plan for Treating Resistant Lyme and Chronic Disease, by Dr. Richard Horowitz

The Lyme Diet, by Dr. Nicola McFadzean. What to eat while healing from Lyme.

Recovery from Lyme Disease: The Integrative Medicine Guide to Diagnosing and Treating Tick-Borne Illnessby Dr. Daniel Kinderlehrer.

TOXIC: Heal Your Body from Mold Toxicity, Lyme Disease, Multiple Chemical Sensitivities, and Chronic Environmental Illness, by Dr. Neil Nathan.

When Your Child Has Lyme Disease: A Parent’s Survival Guide  by Sandra Berenbaum and Dorothy Kupcha Leland.

Why Can’t I Get Better? Solving the Mystery of Lyme and Chronic Disease, by Dr. Richard Horowitz.

Books (History, Policy, and Science)

Bitten: The Secret History of Lyme Disease and Biological Weapons, by Kris Newby

Cure Unknown: Inside the Lyme Epidemic, by Pamela Weintraub.

Lyme: The First Epidemic of Climate Changeby Mary Beth Pfeiffer.

Film and Video

I’m Not Crazy, I’m sick, Lyme documentary, available on various streaming services.

The Quiet Epidemic, documentary film about chronic Lyme disease, available on various streaming services.

Under Our Skin, award-winning Lyme documentary film.

Under Our Skin 2: Emergence (sequel)

The Red Ring, documentary takes a global look at Lyme disease.

Your Labs Are Normal, feature film based on real-life experiences.

Financial assistance

LymeTAP.com–Lyme Testing Access Program. Financial assistance for Lyme diagnostic testing.

Needymeds.com–Clearing house for information about various kinds of financial assistance for obtaining medication.

Lymelight Foundation–financial assistance for Lyme treatment for children and young adults through age 25.

Lyme Treatment Foundation–financial assistance for Lyme treatment. No age restrictions.

LivLyme Foundation–Financial grants for children with Lyme disease.

LymeAid4Kids—grants for young Lyme patients (up to age 21).

Partner in Lyme—grants for Lyme treatment for residents of Connecticut.

Applying for Social Security benefits for Lyme disease

Outside of the United States

ALCE Asociación de Lyme Crónico España (Spain)

Canadian Lyme Disease Foundation

LymeHope (Canada)

LYRI (Mexico)

Lyme Disease Action (UK)

LymeDiseaseUK

Lyme Disease Association of Australia

Karl McManus Foundation (Australia)

France Lyme

Tick Talk Ireland

Lyme Poland

Association Luxembourgeoise Borréliose de Lyme (Luxembourg)

Onlyme-aktion.org  (Germany)

Lymevereniging (Netherlands)

This is one of the most comprehensive articles Lyme Dieases and co-infections. When you talk to a expert on the subject matter be sure to ask for referral, it took me two doctors to find the right doctor. I can say that you General Doctor is not the right type of doctor for your treatment and surgical. YES, it’s that important. The best source for referrals for Lyme Literate Doctor is ILADS.

Melinda

REFERENCE:

TOUCHED BY LYME is written by Dorothy Kupcha Leland, LymeDisease.org’s Vice-president and Director of Communications. She is co-author of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at dleland@lymedisease.org .

Chronic Illness · Communicating · Family · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Mental Illness · Moving Forward · Self-Care · Survivor · Trauma

Happy Birthday Daddy 1940-1992

The morning after you killed yourself, we went to secure the house. I knew immediately you suffered slowly. Among the papers, trash, and clothes  and I found your lockbox. The divorce paperwork to my mother, every card I gave you as a child. I found the pad you were writing on. Your Bible on the coffee table, dried tears as you were reading Job in the Bible.

The note had 11:30 a.m. written in the corner. I could see you called your best friend and the phone number to a suicide line. There were words and a drawing that made no sense. Granny paralyzed, crying, asking why. The house ransacked, nothing anything made sense to her.

Dirty dishes piled high, nothing in the refrigerator, how did you live like this, how long? You phoned me several times in the months before your death. Delusional and highly paranoid each time. Someone was tapping your phone, they were trying to get you and the rest I could not understand, you were already gone. As much as I hated you, I cried, begged you not to kill yourself, trying to reason with him that Granny would never be the same. I paid your bills for months. You weren’t in touch with reality.

The outcome will not change if determined. I knew you would take your life and told no-one. I’ve wondered what went through your mind in the hours doodling to writing the note, then killing yourself. I received the call at 10:00 p.m., Gramps said your dad has done away with himself. I called right back to see if you were dead or going to the hospital.

The boxes of cassettes next to your bed, taking months to listen to. You were mentally ill, not under the care of a Psychiatrist, no medications. Your temper went 1-10 in seconds, obnoxious, loud, racist, screaming, out of control.

 

 

You had hit the bottom and I didn’t know because we were estranged,

I’ve experienced being suicidal more than once, God and my husband saved me. If you are thinking about suiside, call your Psychiatrist right away or go to closet hospital, be open with your doctor and follow all medications instructions, these actions may save your life. I’ve stayed in Psychistratic Hospitals multiple times, I had 21 ECT Treatments, and I feel no shame. My mental heath is critical to living a balanced life.

I think of you one day a year.

Melinda

Reposted

Celebrate Life · Chronic Illness · Health and Wellbeing · Men & Womens Health · Mental Health

Chronic Illness and Marriage

When you get married you commit for “better or worse and in sickness and in health”. You don’t think those two things will happen early in your marriage if you think about them at all. Marriage is full of ups and downs, good and bad, and is very hard at times. When you add a chronic illness to the mix it can get complicated. Not every person is ready for the “better or worse, or in sickness and in health”.

Sacrifices are essential to living with someone with a Chronic Illness. There were years where my husband had to fill my medicine case each week, cook every meal, do all the laundry, help me shower, get me dressed, help me in and out of the car, walk me up and down the stairs, the list goes on and on. I haven’t seen the inside of a grocery store in years.

He gave up several hobbies he loved to make sure there was always time to take care of my medical and mental health needs. It comes at a cost to the partner’s mental health. I encouraged him to seek counseling which he did and it helped a great deal.

My husband has been caring for me and my health since we first married. Long before Lyme Disease, an Immune Deficiency Disorder, and Fibromyalgia, there was my Mental Illness to care for. I have Bipolar Disorder, which is a serious Mental Illness that requires constant monitoring and several medications to stay well.

From the very beginning, he had to keep an eye out for signs and symptoms. Ask gently if I had taken my medication and help me deal with my depression when the Black Dog moved in.

One of the things I asked from the very beginning was for him to sit in on my appointments with my Psychiatrist. I wanted him to understand how sick I was and hear it from the doctor, to hear me talk to the doctor. This would prove immensely helpful in the years to come.

One critical step my husband took is put my health before his career, it was a huge guilt trip for me. He passed up promotions and great opportunities to travel so that I would not be home alone. Just last week his boss asked all of the VP’s to lunch and he had to decline due to the rising cases of Omacrom. Ouch, that burns sometimes!

I don’t know what I would have done over the past 23 years without his sacrifices. If you have a chronic illness make sure you are transparent in the struggle and what may be required of them. If a dating relationship can’t withstand that challenge then a marriage certainly won’t.

Melinda

Repost

Chronic Illness · Chronic Pain · Health and Wellbeing · Lyme Disease · Men & Womens Health · Tick Borne Illnesses

“You mourn the life he was supposed to have”: a family’s unfolding Lyme story

Eight-year-old Ben Kuhl of Myrtle Beach, South Carolina, was once an energetic preschooler who loved exploring nature. But four years ago, a tick bite on a family hike changed all that.

At the time, doctors told his parents that as long as Ben’s tick bite did not have a bull’s-eye on it, he would be fine. But it soon became evident Ben was not fine.

According to his mother, LeeAnn, by the time he was finally diagnosed with Lyme disease, it had spread to all of his organs, including his brain.

He is only able to talk on some days, his motor functions have worsened, and he has painful inflammation throughout his body.

“You mourn the life that he was supposed to have, so you mourn the parent that you were supposed to be,” LeeAnn said.

Click to watch this report from WBTW:

https://www.wbtw.com/video/myrtle-beach-parents-strive-to-help-son-with-lyme-disease/10908489

Melinda

Chronic Illness · Chronic Pain · Health and Wellbeing · Lyme Disease · Medical · Men & Womens Health · Tick Borne Illnesses

Why single-dose doxycycline after a tick bite is bad medicine

By Dr. Daniel Cameron

What if you did everything right after a tick bite—and still ended up sick?

That’s what happened to a 37-year-old woman who followed medical advice after a hike in New York’s Hudson Valley. She removed an engorged tick and went to urgent care. The provider gave her a single pill—200 mg of doxycycline—and told her it would prevent Lyme disease.

Weeks later, she developed brain fog, crushing fatigue, and joint pain. It turned out she did have Lyme disease, and possibly other tick-borne infections too.

Her case raises important ethical questions: Are patients being told enough? Are they being protected—or falsely reassured? And are we doing right by those who follow the rules?

The promise of a single pill after a tick bite

The CDC currently recommends a single dose of doxycycline after a tick bite in certain cases. The idea is simple: take the antibiotic early, and you might prevent Lyme disease from taking hold.

But there’s a catch: this one-pill approach was based on a small study published in 2001. It mostly looked at preventing the bull’s-eye rash—not the full illness.

What’s more, the study didn’t follow people long enough to detect cases of Lyme disease that develop without a rash, or cases involving co-infections like Babesia.

What this patient wasn’t told

This woman wasn’t warned about the limits of the single-dose strategy. She wasn’t told that:

It may not prevent the whole disease—just the rash.

It doesn’t protect against other infections ticks can carry.

It only works in very specific situations (right kind of tick, right timing, right area).

If symptoms appear later, Lyme disease testing can be unreliable.

Because she believed she was protected, she waited too long to seek further care—and her test came back negative at first, adding to the confusion.

By the time she arrived at my clinic, her illness had worsened.

Why This Isn’t Just a Medical Issue—It’s an Ethical One

1. Patients Deserve Full Information (Autonomy)

She should’ve been told that the one-pill approach isn’t a guarantee. Without all the facts, she couldn’t make a truly informed choice.

2. Care Should Be Tailored, Not Just Protocol (Beneficence)

She lived in a high-risk Lyme area. The tick was attached long enough to transmit disease. She might have benefited more from a longer antibiotic course. Instead, a “one-size-fits-all” approach failed her.

3. False Reassurance Can Do Harm (Non-Maleficence)

Believing she was safe delayed her diagnosis and treatment. That delay caused more suffering—and made recovery harder.

4. The System Isn’t Fair for Everyone (Justice)

This strategy doesn’t work well for kids under 8, pregnant women, or people who don’t have easy access to care. It assumes everyone knows what kind of tick bit them—and can get treatment within 72 hours. That’s not realistic for many.

What happened when she got the right help

When she finally got to my office, we ran new tests. Her Lyme Western blot confirmed infection. She also had symptoms of Babesia, a parasite that doxycycline doesn’t treat. On top of that, she had orthostatic intolerance (POTS), which had never been linked to her tick bite before.

With a more complete treatment plan—including antibiotics and supportive care—she began to feel better. But the road was longer than it needed to be.

Bottom line: A simple solution isn’t always the right one

The idea of “just one pill” sounds great—but it can create a false sense of safety. When patients aren’t told the full story, they lose the chance to make informed decisions. And when symptoms are dismissed, the consequences can last for months or even years.

We need to do better. That means:

  • Being honest about what the single-dose approach can and can’t do.
  • Offering follow-up when patients remain unwell.
  • Considering co-infections and other risks—not just following a checklist.

Because when it comes to Lyme disease, patients deserve more than a protocol. They deserve a plan.

Dr. Daniel Cameron is a nationally recognized expert in the diagnosis and treatment of Lyme disease. He is a past president of the International Lyme and Associated Diseases Society and a co-aauthor of the ILADS Lyme treatment guidelines. This blog first appeared on his website, danielcameronmd.com. He can also be found on Facebook.

Melinda

Chronic Illness · Chronic Pain · Health and Wellbeing · Men & Womens Health · Mental Health · Self-Care

Blogger Highlight-Musings on Life with Fibromyalgia

Thank you for all the great feedback on the Blogger Highlight series, I’ve enjoyed meeting each blogger and sharing their site with you. This week I highlight Musings on Life with Fibromyalgia. Sarah is a tireless advocate for Fibromyalgia and she breaks down the chronic illness is a way that everyone can understand. She also shares her experiences and what’s she’s learned along her journey.

   Musings on Life with Fibromyalgia

I’ve lived with fibromyalgia for around a decade now, made many mistakes along the way, but learnt a lot about how to manage the condition and this is what I’m keen to share with readers of this blog.

So, if you want to find out more about living with fibromyalgia and other chronic illness, how life can change and yet still be full of everyday joy, then that’s where this blog aims to help.

I hope at least some of my blog posts will resonate with you – happy reading!

Sarah

Questions Asked

What is your favorite post and why?

My favourite blog post is this one about journaling. I’ve always journaled on and off since my teenage years and I find it such a powerful tool, not just for dealing with chronic illness, but for navigating life’s challenges generally. There’s real magic that happens with a pen and a blank page and it’s often amazing what will spill out onto the page.

What inspired you to start a blog?

After being diagnosed fibromyalgia, I thought my life was over. Everything changed for me – job, finances, physical capabilities and relationships (through not being believed about this illness). I hit rock bottom. Fortunately, my doctor suggested a CBT (Cognitive Behavioural Therapy) course for chronic illness, which started to turn things around. I learned to meet myself where I was at the time (not where I used to be or where I wished I was) and create some new goals. 

Slowly but surely, over a period of several years, I began to rebuild my life. I then began to read blogs about fibro and chronic illness and was both informed and inspired by the content. From there, I thought that blogging would be a good way for me to share what I have learned. My blog is about the stuff that I wish that I’d known when I was first diagnosed with fibro. We get a lot of good medical information from health professionals. But where I struggled was with things like, how can I still lead a meaningful life when everything has been turned on its head? What can I do so that I don’t just give up and spend the rest of my life sitting on the sofa wishing things were different? My hope is that through the blog, I can share all of this with others who might be feeling as lost as I was in the beginning.

Published Work

Articles below have all been published in UK Fibromyalgia magazine.

February 2019 – Swimming, fibro and me

March 2020 – Gardening when you have Fibromyalgia

July 2019 – Reasons to Snuggle Up with a Book – the Value of Reading

2020 – Fibromyalgia Magazine – 20th Anniversary Issue

February 2020 – What I’ve Learned about Fibromyalgia from my Dogs

August 2020 – Fibromyalgia and the Perimenopause

September 2020 – My Experience of Lockdown Yoga

December 2020 – Chronic Pain and Rural Living

March 2021 – Benefits of Time Spent in Nature

April 2021 – Open Water Swimming when you have Fibromyalgia

April 2021 – Audiobooks

May 2021 – How Living with Fibromyalgia Might Change You as a Person

June 2021 – Childhood Symptoms that might have been Fibromyalgia

February 2022 – Navigating a Bad Fibro Day

July 2022 – Summertime Blues and Fibromyalgia – page 1 page 2

December 2022 – Anxiety, Fibro and the Festive Season

February 2023 – Experiencing Covid when you have Fibromyalgia

March 2023 – My Top Five Difficulties Living with Fibromyalgia

May 2023 – Reframing the Experience of Living with Fibromyalgia

She’s is also a contributor to The Mighty.

Stop by Sarah’s blog, read through her archives and be sure to say hello.

Melinda

Looking for the Light

 

Chronic Illness · Chronic Pain · Health and Wellbeing · Lyme Disease · Medical · Men & Womens Health · Tick Borne Illnesses

Justin Timberlake reveals he has “relentlessly debilitating” Lyme disease

Hear is a clear message to everyone! Lyme Disease is not picky who the host person is, everyone is prime picking for Lyme Disease’s.

Singer Justin Timberlake has revealed that he has Lyme disease, describing it as “relentlessly debilitating” both mentally and physically.

In a heartfelt Instagram post, Timberlake explained that the diagnosis helped him understand why he was experiencing nerve pain, extreme fatigue, and sickness—even while performing on stage during his two-year Forget Tomorrow World Tour

Despite the challenges, he chose to continue touring, saying:

“I decided the joy that performing brings me far outweighs the fleeting stress my body was feeling. I’m so glad I kept going.”

He also shared that he had been reluctant to speak publicly about his health struggles, but wanted to be more transparent to avoid misinterpretation and to help others facing similar battles.

Timberlake joins a growing list of celebrities—including Justin Bieber and Bella Hadid—who have publicly discussed living with Lyme disease.

Melinda

More coverage:

The New York Times

People

Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Self-Care

How Cognitive Behavorial Therapy Can Help People With Fibromyalgia

  • New research has found that cognitive behavioral therapy may help people with fibromyalgia.
  • The researchers were able to identify differences between fMRI scans between participants as well as a significant reduction using survey-style tools. 
  • Experts are hopeful that these finding can help support patients and clients while reducing bias and barriers to care. 

For those in chronic pain, mental health supports are both vital and lack availability. A new study, published September 20 in Arthritis & Rheumatology, has found that the use of cognitive behavioral therapy (CBT) can be especially helpful for those living with fibromyalgia. 

The research—conducted by a team from Harvard, Norway, and Pittsburgh—included 114 participants and found that CBT was better at helping to reduce catastrophic thinking related to the disease. 

This was compared to people using educational materials alone.

Understanding catastrophizing, according to Dr. Chandler Chang (PhD), clinical psychologist and founder at Therapy Lab, is key to supporting people with a chronic illness like fibromyalgia.

“Let’s say you have fibromyalgia and you start thinking, ‘The rest of my life is going to be like this, my life is ruined, everything is going to suck after this.’ Those are examples of catastrophic thoughts that you might have,” Chang said.

How CBT can help with pain and catastrophic thoughts

The researchers used tools such as Brief Pain Inventory (BPI), BPI Pain Severity, the Fibromyalgia Impact Questionnaire-Revised (FIQR), and the Pain Catastrophizing Scale (PCS), to assess participants alongside the scans. Once the participants participated in the imaging, they were either given eight weeks of CBT or educational materials about fibromyalgia and chronic pain. 

Those who received the CBT were provided weekly sessions across eight weeks.

The researchers used the Pain Catastrophizing Scale (PCS), a tool that is scored out of 52, to see how CBT could impact people with the condition. 

They found that those who received CBT therapy saw an average reduction of 8.7 points on the scale while those receiving educational materials saw a much lower drop of 4.6.

The team also used an fMRI scan and were able to see the impact of catastrophizing thoughts in the brain patterns. After the CBT, they could see evidence that changes in brain patterns coincided with people who benefited from CBT. 

Kelsey Bates (LPC), founder at Women’s CBT, says that catastrophizing is a particularly impactful element of both fibromyalgia and CBT treatment but that providing mental health support for those with chronic illness, in her practice, requires the use of trauma-informed tools.

“Reframing our thoughts is important. But we also need space to acknowledge the grief that might happen when people are going through a chronic illness or dealing with chronic pain,” Bates said. “There’s a level of acceptance that we have to figure out.”

Dr. Jeff Krauss, Chief Medical Officer at Hinge Health and Staff Physician at the VA of Palo Alto, says that this study could help reduce stigma and lead to better patient outcomes.

“One of the problems with chronic pain is that it’s very hard to see it. People used to get, and still do get, accused of faking their pain, because doctors will look and see that there’s nothing wrong with their back, or there’s nothing wrong with their knee… It’s really exciting that we can start to see it in the brain, and know that these feelings that people have are very real, even though it might not be correlated with tissue damage.”

Bates says that while “pain doesn’t discriminate” she also regularly sees clients who feel left behind by the medical system when it comes to the mental health side of chronic illness and chronic pain.

“I meet folks and they’ve felt really gaslit by medical providers, especially with fibromyalgia in particular, that they have heard the phrases like you just need therapy, you just need to relax, just manage your stress,” Bates said.

One of the stated limitations of the study was that, while fibromyalgia does disproportionately affect women, and all the participants were female, more work can and should be done to include both men and non-binary people in future research. 

Difficulty getting treatment for fibromyalgia

As for what comes next, Krauss says that while these results are encouraging they are still part of a larger picture that has many barriers to treatment for those experiencing these symptoms.

“I think until we have the ability at scale to do this very expensive imaging, and to find those interventions that can actually change the way the brain processes pain through some sort of pharmacologic intervention or something, through a drug, then we’re really left with a lot of these very foundational lifestyle changes that are so effective and necessary for treating chronic pain.”

Bates, meanwhile, says that her hope is that research like this can add to a more integrated approach when it comes to CBT, one that prioritizes trauma-informed care as well as other modalities like Dialectical Behavioral Therapy (DBT) and acceptance and commitment therapy (ACT).

“My personal outlook is that chronic illness and chronic pain is considered medical trauma…So I think it’s our clinical duty to provide a safe, warm therapeutic space that’s conducive to holding space for all of those things.”

Takeaway

A new study, published this week in Arthritis & Rheumatology, has found that the use of CBT can be especially helpful for those living with fibromyalgia.

Melinda

Reference:

Chronic Illness · Health and Wellbeing · Lyme Disease · Medical · Men & Womens Health · Tick Borne Illnesses

California tops Terminix’s list of most tick-infested states

With tick activity hitting alarming highs this summer, the pest control company Terminex has announced its first-ever comprehensive ranking of the Top 25 Most Tick-Infested U.S. States.

Based on proprietary 2024 pest management data, this report reveals which states are facing the greatest tick pressure and risk of tick-borne illnesses.

This first-of-its-kind list arrives at a critical time, offering homeowners and outdoor adventurers new insight into how geography and climate are shaping tick populations across the country.

States like California, Florida, Texas, Pennsylvania, and New York are at the top of this list due to their warm climates, high humidity and abundance of green spaces.

Notably, New York City, Los Angeles, Philadelphia, San Francisco and Washington, D.C. rank as the top five tick-infested cities in the country, underscoring that even densely populated urban areas are not immune to tick activity.

Overall, the Northeastern region of the U.S. generally experiences the highest populations of ticks, with common species including the blacklegged tick and the American dog tick.

“This isn’t just a nuisance; tick activity is reaching new levels across the country, posing a serious and growing public health threat,” said Tom Dobrinska, Technical Service Manager at Terminix.

“Climate change continues to increase tick populations. As winters become milder and warm seasons increase in length, tick survival and risk for human exposure increase significantly.”

Top 10 most tick-infested states

  1. California
  2. Florida
  3. Texas
  4. Pennsylvania
  5. New York
  6. Georgia
  7. New Jersey
  8. Arizona
  9. Massachusetts
  10. Ohio

States most impacted by Lyme and other tick-borne diseases

While not all ticks carry illness-causing pathogens, disease risk can vary by tick species.

According to the CDC, Northeastern states like Pennsylvania, New York and New Jersey, as well as parts of the Upper Midwest, are often identified as the worst places for ticks in the U.S. due to their high rates of Lyme disease cases. Southeast and Southcentral U.S. might see more cases of ehrlichiosis or spotted fever rickettsiosis.

“Scientists and public health experts are constantly researching ticks to better understand the threats they pose,” said Dobrinska. “As these experts continue to monitor tick activity and disease spread, it is essential for the public to stay informed about the dangers and know how to prevent tick bites.”

Tips for tick prevention

To protect against tick bites and tick-borne illness, Terminix recommends the following steps:

  • Avoid tick-infested areas: Ticks prefer wooded areas with high grass and abundant leaf litter; wear long sleeves and pants whenever you plan to go on a hike or walk through forested areas.
  • Inspect yourself and pets: After returning home from being outdoors, conduct a full body check, especially under the arms, around the ears and on the back of the knees. Finding them before they bite will help prevent being infected with any diseases they may be carrying.
  • If you find a tick bite: Using fine-tipped tweezers, grasp the tick as close to the skin as possible and pull upward with steady, even pressure. After removal, clean the area with soap and water or rubbing alcohol. It’s best to consult with a medical provider for extra precaution.

Click here for the full 2024 Tick Infestation Report.

Melinda

SOURCE: Terminex

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

The Many Ways to Healing By Guest Blogger Midwest Mary

Mary provides a comprehensive list of ways to heal yourself naturally.

Stuffy nose, headache, upset tummy, and even obesity. There’s a pill for that. Modern medicine has discovered an endless list of pharmaceutical drugs to “cure” whatever ailment may come your way. We also have an extensive list of alternatives or complementary remedies to conventional medicine, most of which have been used for hundreds, if not … Continue reading

Melinda

Chronic Illness · Chronic Pain · Health and Wellbeing · Men & Womens Health · Mental Health

Fibromyalgia Thoughts #1-Fat, Sex & Shame

I wrote this post many years ago, I think the last one written was #17. This was written during a difficult time when Fibro ruled my life. I haven’t had a bad flare in several months and I’m so thankful.

————-

I had to accept the loss of everyday control once diagnosed with Fibromyalgia. I go to bed with plans for the next day, when the morning rolls around, I can’t get out of bed. In the past, I would beat myself up, feel shame and anger. 

A shower takes an hour, it’s painful and exhausting. Instead, I use hospital approved cleansing wipes to bathe on the days when I can’t handle the thought of a shower. I’m embarrassed to tell my husband. 

I shaved my head yesterday, taking care of my hair takes too much energy. I’m housebound, only doctors see me. My husband doesn’t say anything but I imagine the negative thoughts he has. Why can’t his wife be normal like others, why can’t we go out to eat, why don’t we have sex, I’m fat………the thoughts can consume. 

I can ask myself questions about why not shower every day, I don’t. It’s not productive, within my control and doesn’t help my health. Stress creates inflammation creates more pain. 

I pray a lot every day. 

Melinda

Chronic Illness · Health and Wellbeing · Infectious Diease · Lyme Disease · Medical · Men & Womens Health · Tick Borne Illnesses

Tick threat shuts down Connecticut beach for the season

Pleasure Beach, a popular summer destination in Bridgeport, Connecticut, will remain closed for the entire 2025 season due to a serious tick infestation.

City officials, in consultation with state environmental and public health experts, made the call after discovering multiple tick species on the island, including the Asian longhorned tick—an invasive species that poses unique risks.

Unlike native ticks, this species can reproduce asexually, allowing a single female to spawn a full-blown infestation. Even more concerning, it can potentially carry serious pathogens.

While disappointing for beachgoers, the closure may benefit the island’s fragile ecosystem. Pleasure Beach is a critical nesting site for protected Audubon bird species, including the endangered piping plover.

With reduced human activity, conservationists expect a boost in nesting success and habitat restoration.

Bridgeport officials plan to conduct treatment and containment efforts throughout the summer, with the goal of reopening the beach in 2026.

Melinda

SOURCE: City of Bridgeport, CT

Chronic Illness · Health and Wellbeing · Infectious Diease · Lyme Disease · Medical · Men & Womens Health · Tick Borne Illnesses

Emergency room visits for tick bites at record levels

Emergency rooms nationwide are reporting a record-breaking increase in tick bite cases, according to new CDC data.

July 2025 is already surpassing previous highs set in 2017.

Director of the University of Rhode Island’s Center for Vector-Borne Disease and its TickEncounter Resource Center, Dr. Thomas Mather, and Dr. Tom Daniels joined the Morning Joe to discuss.

They say Lyme disease is still the top concern when it comes to tick bites, but note that ticks can transmit other pathogens as well.

With ticks being so plentiful right now, they say it’s likely that more people will end up getting sick from tick-borne infections.

Watch their interview here:

Melinda

Referrence:

https://www.lymedisease.org/er-visits-for-tick-bites/

Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health

Is Gabapentin a Narcotic or Controlled Substance?

Gabapentin isn’t a narcotic or federally controlled substance, but it is regulated and recognized as a controlled substance in certain states. 

Gabapentin is approved by the Food and Drug Administration (FDA) to treat seizure disorders and neuropathic pain

Some people misuse the prescription medication alongside opioids to boost their effects, though this significantly increasesTrusted Source the risk of unintentional opioid poisoning and death. 

This has led several U.S. states to classify gabapentin as a controlled substance, with more potentially looking to do the same.

There have also been calls for the Drug Enforcement Administration (DEA) to classify the medication as a federally controlled substance, though some doctors disagree with such a move. 

Read on to find out more about gabapentin’s current classification status across the United States and the various side effects and risks of the medication.

What class of drug is gabapentin?

Gabapentin has been a federally noncontrolled substance since its FDA approval in 1993.

It’s typically used for epilepsy and nerve pain, a severe symptom that other prescription medications can often not manage.

But some states do control its use, labeling gabapentin as a Schedule 5 controlled substance.

Why does gabapentin’s drug class vary from state to state?

Although gabapentin isn’t controlled federally, some states have listed it as a controlled substance and therefore regulate its use.

That’s because there have been increasing reports of gabapentin being misused, whether by being combined with opioids or used alone for nonprescribed reasons. 

Some neurologists believe that stricter gabapentin regulation may lead to greater opioid use and make it harder for people with neuropathic pain to receive proper care. 

The following states classify gabapentin as a controlled substance: 

  • Alabama
  • Kentucky
  • Michigan
  • North Dakota
  • Tennessee
  • Virginia
  • West Virginia

Several other states require gabapentin prescriptions to be monitored, allowing authorities to detect potential misuse:

  • Connecticut
  • Indiana
  • Kansas
  • Massachusetts
  • Minnesota
  • Nebraska
  • New Jersey
  • Ohio
  • Oregon
  • Utah
  • Washington, D.C.
  • Wisconsin
  • Wyoming

These lists may be subject to change.

What side effects are possible when using gabapentin?

Gabapentin is generally well tolerated and safe for most people to use. But as with any medication, there’s a risk of side effects. Misuse can increase the risk of side effects.

Potential side effects include:

In rare cases, more serious side effects include:

If you experience any of the above symptoms, seek immediate medical attention or contact your local emergency services

Before taking gabapentin, tell your doctor if you:

What risks are possible when using gabapentin?

When first taking gabapentin, it’s best to be cautious when driving, using machinery, or drinking alcohol. The medication can cause drowsiness, which may affect your ability to do certain things, or have an adverse reaction when mixed with alcohol. 

But the biggest risks of gabapentin come when people take the medication with opioids, or if a person already has a substance use disorder. In these cases, there may be an increased risk of dependence or overdose. 

Serious breathing troubles can also occurTrusted Source in people with respiratory conditions, like chronic obstructive pulmonary disease (COPD) or asthma, or related risk factors. 

Finally, there may be a higher risk of fetal cardiac abnormalities in pregnant people, according to a 2020 study. But the same study did not find evidence of a link between gabapentin use and major fetal abnormalities overall.

When to consult a doctor or other healthcare professional

Before taking any new medication, it’s a good idea to talk with a healthcare professional. 

Let them know if you currently take any opioid medication or medications for anxiety or sleep, or if you have any health conditions, such as breathing disorders, kidney disease, or diabetes.

It’s important to be honest about any drug or alcohol use or misuse. This will help your clinician determine whether gabapentin is safe for you, or if there’s a better alternative. 

The bottom line

While there have been calls to make gabapentin a controlled substance across the United States, there are currently only limitations in some states. 

Concerns revolve around its use alongside opioids and the potentially dangerous effects of this combination.

Melinda

Reference:

Celebrate Life · Chronic Illness · Fun · Health and Wellbeing · Men & Womens Health

Daily Writing Prompt

Daily writing prompt
What are your daily habits?

My life has changed so much because I have several chronic illness and I don’t leave the house that often. So my habits are a bit boring. The first thing is start the fireplace in my office, give the dogs a snack, eat breakfast and hit the computer to work on my blog. After the writing is done I play with the dogs, if needed do laundry and eat lunch and take a short nap.

I do any chores I can, spend time for self-care, make calls and at 4:30 I join my husband downstairs. A short time later we start working on dinner, watch the news and two shows we’ve recorded and then I’m off to bed an hour before bedtime so I can unwind and be relaxed when it’s time to sleep.

Its not a habit but each week there a couple of doctor apptoinments.

My life is the opposite of life before Lyme, cognitive impairment and agrophobia.

I keep looking for brighter and more exciting days.

Melinda

Looking for the Light

Chronic Illness · Family · Health and Wellbeing · Infectious Diease · Men & Womens Health · Tick Borne Illnesses

Her 4 kids were born with Lyme. She wants to make sure that future kids won’t be

From the Tick Boot Camp podcast:

In this powerful, long-form interview, Kristina Bauer returns to the Tick Boot Camp Podcast to share her in-depth story of surviving decades of misdiagnosed Lyme disease — from childhood illness and misdiagnoses to motherhood, advocacy, and remission.

Diagnosed at age 40 after 32 years of medical dismissal, Kristina discusses her experience with congenital Lyme disease in her four children, postpartum Lyme flares, and her commitment to raising awareness through the Texas Lyme Alliance, Center for Lyme Action, and International Lyme and Associated Diseases Society (ILADS) Ambassadorship.

Her testimony covers essential ground: pediatric Lyme, maternal Lyme, psychiatric symptoms like Lyme rage, postpartum depression misdiagnosis, sexual transmission, and the need for insurance and diagnostic reform.

This episode is a masterclass in Lyme disease education and empowerment, especially for women, mothers, and families navigating complex Lyme journeys.

Key Topics Discussed

  • Early Lyme Exposure: Tick bites at age 8 in Illinois and decades of misdiagnosis (juvenile arthritis, Crohn’s, ulcers)
  • Chronic Symptoms: Sinus infections, Epstein-Barr Virus (EBV), fibromyalgia, neurological and psychiatric symptoms
  • Postpartum Lyme Flares: Crushing fatigue, misdiagnosed postpartum depression, and suicidal ideation risk
  • Congenital Lyme Disease: How all four of her children were born with Lyme and are now in remission
  • Mental Health Awareness: Lyme rage, mood swings, panic attacks, and the importance of therapy
  • Tick-Borne Disease Advocacy: Legislative work in Texas, ILADS, educating OB-GYNs, and pushing for proper diagnostic protocols
  • Medical System Failures: Inadequate Lyme testing, gaslighting, high insurance costs for chronic illness
  • Lyme & Pregnancy Research Study: An open call for pregnant individuals diagnosed with Lyme disease during their current pregnancy, OR with post-treatment Lyme disease syndrome (PTLDS) in the past 5 years.

Tick Boot Camp is available on all major podcast platforms. You can also listen here.

Melinda

Reference:

https://www.lymedisease.org/kristina-bauer-podcast/

Celebrate Life · Chronic Illness · Family · Health and Wellbeing · Medical · Men & Womens Health

Daily Writing Prompt

Daily writing prompt
How do you want to retire?

How I thought retirement would happen is the opposite of how it actually happened. My granny had two major strokes which caused Dementia and she became violent regularly. I made a promise to both of my grandparents that I would make sure they could die at home which was their wish. After the first stroke, I would come over to allow gramps to run errands. This worked until the day it all fell apart.

He was at the grocery store and she thought he had left her at somebody’s house and wasn’t coming back. There’s no understanding or logical times when dealing with Dementia. I took the photos off the walls of my gramps, my father, myself, and her long-dead favorite dogs, nothing would bring her back to reality. I had to give her a sedative and it broke my heart.

The only way to calm her and keep her from trying to hurt herself was for gramps to be there.

I was semi-retired at this point but my grampa needed me every day to help. The reality is, I would not change one thing. I showed up, gave all I could four weeks on end and I has able to keep my promise to her about dying at home.

Melinda

Looking for the Light

Chronic Illness · Chronic Pain · Health and Wellbeing · Medical · Men & Womens Health

What Should You Know About Cortisone Shots?

Cortisone shots can help relieve joint inflammation. You may experience minor side effects.

Cortisone shots are injections that help relieve pain and inflammation in your joints, muscles, or connective tissue. They’re commonly used to manage symptoms of painful inflammatory conditions, such as:

Cortisone shots are fast-acting and can provide significant short-term pain relief for weeks to months. Although cortisone shots are generally safe, they do come with some potential risks.

Keep reading for an overview of everything you should know about cortisone shots.

How do cortisone shots work?

A cortisone shot helps relieve pain by reducing inflammation in a certain part of your body. The cortisone is delivered into the affected area with a thin needle. 

Cortisone is a type of molecule known as a corticosteroid, a precursor to the hormone cortisol. Cortisol is produced by your adrenal gland and plays many roles in your body, including suppressing the activity of your immune system.

Inflammation is your immune system’s way of protecting your body from injuries, foreign substances, or anything else potentially damaging. Inflammation releases various substances, including the hormones bradykinin and histamineTrusted Source. These hormones irritate nerves and send pain signals to your brain.

A cortisone shot reduces levels of molecules that stimulate inflammation. This can improve joint function and reduce stimulation of your nerves which leads to pain.

These shots often take effect within a few days, though some can be effective within a few hours, and can provide pain relief for up to several months depending on: 

  • the part of your body treated
  • the dose you receive
  • your individual response to the shot

What do cortisone shots treat?

Cortisone and other corticosteroid shots are used to treat a wide variety of inflammatory conditions involving joints, muscles, or connective tissues.

Shoulder pain

Corticosteroid injections can cause short-term improvements in frozen shoulder and shoulder impingements.

2015 study in American Family Physician found that over a period of 8 to 16 weeks, corticosteroid injections are more effective for managing frozen shoulder than oral corticosteroids, nonsteroidal anti-inflammatory drugs (NSAIDs), and physical therapy. But the study found that the outcome between groups isn’t significant after a year. 

Osteoarthritis

Cortisone shots are often used to treat knee or hip osteoarthritis

For the knee, pain relief typically lasts for 1 to 2 weeks but may last up to 4 weeks.

Carpal tunnel syndrome

Carpal tunnel syndrome is compression of your median nerve that often causes tingling or pain in your hand. 

2017 reviewTrusted Source of studies suggests that corticosteroids can lead to short-term relief in about 45 out of 100 people.

Trigger finger

Trigger finger is the locking of a finger caused by inflammation of the tendons. 

The 2015 study mentioned earlier found 54 to 86 percent cure rates after corticosteroid injections.

Bursitis 

Bursitis is inflammation of small fluid-filled sacs called bursae found around your joints. 

Cortisone injections may help reduce this inflammation temporarily. Corticosteroid injections for the bursa around the head of your femur provide greater pain relief at 6 weeks and 3 months than physical therapy and pain relievers, but not after one year.

Are there any risks with cortisone shots?

Cortisone can travel into your bloodstream and cause full-body side effects. 

According to a 2019 review of studiesTrusted Source, the amount of cortisone that gets absorbed into your blood seems to vary significantly between people. But both joint and epidural injections can have effects that last for weeks.

There’s also some evidence from a 2020 study that a single shot can increase your risk of developing infectious diseases, such as the flu.

In rare cases, an improperly performed injection can lead to nerve damage.

Are there any side effects from cortisone shots?

The most common side effects of steroid injections include:

Rarer but potentially serious side effects include:

How much does a cortisone shot cost?

Cortisone shots typically cost roughly $100 to 300 but can be more than $1,000. Your insurance may cover some or all of the cost. 

The exact cost that you pay out of pocket for a cortisone shot varies widely between clinics and depends on: 

  • the clinic you visit
  • where you live
  • what type of shot you get

Medicare reports that patients pay an average of $84 for injections of therapeutic substances, such as cortisone, when performed at a non-hospital facility. The average price at a hospital is $146.

What’s the procedure for a cortisone shot?

Here’s what you can expect when you get a cortisone injection:

  1. Depending on what part of your body is being treated, you may be asked to change into a hospital gown.
  2. A doctor or specialist will clean the area around the injection site with alcohol wipes and wait for the alcohol to dry.
  3. The doctor or specialist will likely apply a spray or anesthetic to numb the pain.
  4. They will make an injection with a thin needle. You may feel some pressure, but most people don’t experience a significant amount of discomfort or pain.

Are there supplementary treatments for cortisone shots?

Supplementary treatment options vary depending on your particular issue. Some options may include:

Are there alternatives to cortisone shots?

A doctor may be able to recommend alternative treatments for your condition. For some issues like chronic knee pain, surgery may be the best option.

Platelet-rich plasma (PRP) injection is an experimental treatment that may help you manage joint pain. More research is needed to understand their potential benefit.

Hyaluronic injections are also sometimes used to treat knee pain when cortisone shots aren’t effective.

The takeaway

Cortisone shots are used to treat a wide variety of inflammatory conditions affecting your joints or other parts of your musculoskeletal system. They’re generally safe, but they can cause side effects that either affect the treated area or your whole body.

Discuss the pros and cons with a doctor beforehand. Depending on your condition, there may be alternative treatment options that have fewer side effects or are cheaper.

Melinda

Reference:

Chronic Illness · Chronic Pain · Health and Wellbeing · Infectious Diease · Lyme Disease · Medical · Men & Womens Health · Tick Borne Illnesses

Emerging tick species in CT found to carry rare bacteria that can be deadly, officials say

HARTFORD, Conn. — An invasive tick species in Connecticut has been found to carry the bacteria that can cause ehrlichiosis in humans, a discovery that has alarmed state biologists as the tick continues to increase its spread throughout the state.

Longhorned ticks, an emerging invasive species in the state, have now been found to carry the bacteria that causes ehrlichiosis. The bacteria, while rare in Connecticut, has been found in the state for a while, according to Dr. Goudarz Molaei, a state entomologist with the Connecticut Agriculture Experiment Station.

Between 2001 and 2019, the number of cases of the bacteria increased from 142 to 2,093, a roughly 15-fold rise. Only two erlichiosis cases were recorded in Connecticut between 2008 and 2018, however, 28 cases were reported in the state between 2019 and 2023, according to CAES data.Expand article logo  

“This is concerning because before we only saw this bacteria present in the lone star tick, this is the first case detected in the longhorned tick,” Molaei said. “What is concerning about this is that the longhorned tick doesn’t need a mate to reproduce. So it has the potential to spread quickly and we already are seeing that as its population increases.”

Longhorned ticks primarily reproduce through a process called parthenogenesis, where females can lay viable eggs without mating to reproduce. This means a single female tick can create an entire population without a male partner, increasing the risks of rapid spread, Molaei said.

“This is very unusual and something we don’t see too often,” Molaei said. “So far this is the only tick in the United States that has this ability to reproduce without a mate. In other animals like arthropods and certain vertebrae, parthenogenesis has been reported, but it’s still very rare.”

Molaei said that a rise in ehrlichiosis cases is expected in the future. The bacterial infection can be a serious illness, though most cases are not fatal with prompt treatment. Untreated, it can lead to severe complications like organ damage, brain problems and even death. There is no vaccine available, but antibiotics are the traditional course of treatment, he said.

The invasive ticks are not native to the United States and are considered an exotic species. They originally were found in tropical environments in Asia before being detected in the U.S. in 2017. Since its initial discovery, the longhorned tick has expanded into at least 21 states, primarily in the East and Northeast, as well as the District of Columbia, according to CAES. The species was first detected in Connecticut in 2018.

In both its native and invasive range, the longhorned tick is known to transmit a wide variety of pathogens, Molaei said. Researchers have found evidence of infection in field-collected specimens in the U.S. with pathogens that cause Lyme disease, anaplasmosis, babesiosis, Bourbon virus disease and theileriosis. However, it is still unknown if the tick can spread many of these disease agents.

“What is also unusual about this species is that we have shown this tick is capable of attaching and detaching with partial blood feeding,” Molaei said. “Most ticks will stay on a host until they are fully engorged, so this increases the risks of disease transmission. Unfortunately these ticks co-exist with lone star ticks, and to make the matter worse, both of these ticks feed on white tail deer. Deer can act as a reservoir for the bacteria that causes ehrlichiosis. Longhorned ticks can pick up the bacteria after feeding on an infected deer.”

The tick species is now found scattered throughout Fairfield and New Haven counties, according Molaei. However, their range is expected to increase its range further northward. Last year, the ticks were identified in Fairfield, New London, Middlesex and New Haven counties, according to data from CAES.

“As the climate changes, we expect to see this species further north into New England and Canada,” Molaei said. “We are fortunate that. at least for the time being, the population is rather patchy in Fairfield and New Haven counties. It is not widespread yet, but eventually it will become more widespread, and that is where the concern increases.”

Melinda

Reference:

https://www.msn.com/en-us/news/other/emerging-tick-species-in-ct-found-to-carry-rare-bacteria-that-can-be-deadly-officials-say/ar-AA1FDjJX

Celebrate Life · Chronic Illness · Chronic Pain · Health and Wellbeing · Infectious Diease · Lyme Disease · Medical · Tick Borne Illnesses

After 18 joint replacements in 6 years, she’s now a fierce Lyme advocate

Meghan Bradshaw was just 25 when severe joint pain appeared seemingly overnight.

Once active and independent, she found herself unable to walk, dress, or function on her own. She returned to her mother’s care while doctors struggled to explain her condition.

After two years of misdiagnosis and ineffective treatments for rheumatoid arthritis, Bradshaw finally received clarity. She tested positive for Lyme disease and other tick-borne illnesses.

That diagnosis came after she turned to OrthoCarolina, where her orthopedic team helped connect her with a specialist who identified the root cause of her symptoms. Though the diagnosis came with its own challenges, it offered the one thing she had been missing: hope.

Over the next six years, Bradshaw underwent 18 joint replacements and reconstructions at OrthoCarolina, including procedures on her shoulders, elbows, hips, knees, hands, and meniscus. Her care was guided by a team of four orthopedic specialists who worked together to create a patient-centered, personalized treatment plan tailored to her needs.

“When I was finally diagnosed with Lyme disease and other tick-borne diseases, it felt like I had a chance to fight again,” said Bradshaw. “The doctors at OrthoCarolina didn’t just treat my joints – they helped restore pieces of my life I thought were lost forever. Every surgery brought me closer to feeling like myself again.”

OrthoCarolina’s collaborative care model played a critical role in her recovery. Surgeons, physical therapists, and staff maintained open communication with Bradshaw throughout each stage of treatment. Shared decision-making, comprehensive education, and clear expectations helped her feel confident and supported at every step.

Extraordinary resilience

“Meghan’s case of Lyme arthropathy was one of the most advanced that I’ve encountered,” said Dr. Glenn Gaston, a hand specialist at OrthoCarolina. “She showed extraordinary resilience throughout her entire journey. Our goal wasn’t just to restore joint function, but it was also to help give her life back.”

Today, Bradshaw calls herself the “Bionic Woman,” a title she embraces with pride. But her story doesn’t end with recovery. It has evolved into advocacy.

After earning her master’s in public health from the University of North Carolina at Chapel Hill, she became a national voice for Lyme disease awareness. As Government Relations Manager for the Center for Lyme Action, she has met with more than 100 members of Congress to push for improved education, diagnosis, and care for tick-borne illnesses.

“I’ve turned my pain into purpose,” Bradshaw said. “Every time I share my story, it’s for the people still searching for answers, just like I was.”

Marking a decade since her first symptoms, Bradshaw’s journey continues. This May, during Lyme Disease Awareness Month, her voice stands as a testament to the power of perseverance, the value of accurate diagnosis, and the life-changing impact of compassionate, expert care.

Melinda

Reference:

https://www.lymedisease.org/18-joint-replacements-in-6-years/

Book Review · Celebrate Life · Chronic Illness · Health and Wellbeing · Men & Womens Health · Mental Health

Book Review Finding Joy with an Invisible Chronic Illness by Christopher Martin

I was kindly gifted an advanced copy of Finding Joy with an Invisible Chronic Illness, Proven Strategies for Discovering Happiness, Meaning, and Fulfillment by Christopher Martin from NetGallery for a review. 

Published 2021

I am a school psychologist, husband, father, and – pertinent to this website – an author who has multiple invisible chronic illnesses. 

And an invisible chronic illness is a beast.  On top of draining you physically, a chronic illness can impact all aspects of your life ranging from causing financial hardship to harming your relationships to dampening your spirits.  Try to be cheerful when you have this unremitting “monkey on your back” known as an invisible chronic illness that constantly demands your attention 24-7.  Needless to say, it’s easy to let yourself and others down. 

      Plus, your family or friends can’t see your illness, as it’s invisible, and they may not understand.  Most with an invisible illness are familiar with “advice” ranging from “stay positive” to “you look good” to “Have you tried ___ for your condition?”  Yup, you probably have, and it didn’t work. 

      On top of that, best wishes in accessing (and maintaining) high quality medical care when you are too tired to even take care of yourself.    

      Welcome to the world of an invisible chronic illness.  I should know.  I suffer from multiple invisible chronic illnesses, including a primary immune deficiency disorder and bronchiectasis. 

 But it doesn’t have to be this way – for you or for me.    While I am not cured of my illness, I enjoy a fulfilling life and experience ongoing joy, peace, and happiness.  Because of outstanding medical care, extensive self-educating and self-care, a supportive family, and a strong faith, I effectively manage my chronic illnesses.  But I didn’t want to be the only one to benefit.  It was my goal, in turn, to give back to others by doing what I love to do:  authoring books on these conditions. 

Blurb

“Finding Joy is a vital guide on how to best manage and navigate life with a chronic illness.”—James Nestor, New York Times bestselling author of Breath: The New Science of a Lost Art

“Finding Joy provides a comprehensive, evidence-based roadmap for not only coping with chronic illness, but personally optimizing self-growth and resiliency from the experience.” —Joanne Joseph, PhD, professor of psychology and interim dean of the College of Health Sciences, SUNY Polytechnic Institute, and author of The Resilient Child: Preparing Today’s Youth for Tomorrow’s World

* How can you experience those good thoughts and feelings, enjoy life to its fullest, and de-stress when faced with relentless physical suffering?

* How can you enhance your relationships, find support, respond to the naysayers, and possibly even help them understand you and your illness?

* When seeking medical care, how can you get the answers you deserve, and access and maintain quality healthcare?

Early Reviews

“”Finding Joy is absolutely phenomenal. Chris Martin’s heartfelt approach offers numerous meaningful strategies to thrive when faced with the many unseen and unrecognized issues of living with an invisible chronic illness.””—Heather Lewis-Hoover, MS, CAS, school counselor

““Finding Joy is a vital guide on how to best manage and navigate life with a chronic illness.””—James Nestor, New York Times bestselling author of Breath: The New Science of a Lost Art

“Finding Joy provides a comprehensive, evidence-based roadmap for not only coping with chronic illness, but personally optimizing self-growth and resiliency from the experience.” —Joanne Joseph, PhD, professor of psychology and interim dean of the College of Health Sciences, SUNY Polytechnic Institute, and author of The Resilient Child: Preparing Today’s Youth for Tomorrow’s World

My Thoughts

I think Chris says it best, the diagnosis is a step forward, it’s not the last. 

Finding Joy with an Invisible Chronic Illness is a great find, one for all to read, patients, loved ones, and, family members. It is a simple and practical approach to taking control by understanding how we think and what we have control over when it comes to our chronic condition and healthcare treatment. 

Enjoy Reading,

Melinda

Looking for the Light

@LookingLight

Celebrate Life · Chronic Illness · Chronic Pain · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Heat or Cold Therapy for Arthritis

Arthritis is a condition that causes joint pain, inflammation, and stiffness. Though there’s no cure, you can use natural treatments such as heat and cold therapy to slow its progression and manage symptoms. 

Heat and cold therapy are common treatments for arthritis due to their ability to alleviate pain, discomfort, and stiffness in joints, muscles, and soft tissues. The treatments may help to improve mobility, increase flexibility, and boost blood circulation, which may bring you immediate relief. Heat and cold therapyTrusted Source may also be slightly beneficial in improving function and quality of life.

You can use a combination of heat and cold therapy based on your symptoms and which treatments you find most effective, convenient, and enjoyable. Depending on time, convenience, and preference, you may add some of these therapies to your routine. Aim to do heat or cold treatments a few times daily. 

Continue reading to learn more about the various types of heat and cold therapy. These simple treatments may relieve arthritis symptoms and help you to feel better.

Types of cold therapy for arthritis

Cold therapy, or cryotherapy, decreases blood flow to the affected area, which can reduce swelling and inflammation. It may have a numbing effect and help to relieve pain. However, it may exacerbate muscular tension. 

In general, cold therapy is best for painful, inflamed joints, making it the best option for acute pain, inflammation, or swelling. It may be beneficial to do cold therapy after exercise or physical activity that causes discomfort. For best results, elevate the affected area.

Do not use cold therapy if you have poor circulation or a sensory condition such as diabetes that inhibits your ability to detect particular sensations. Talk with your doctor before using cold therapy if you have cardiovascular or heart disease.

To prevent nerve, tissue, and skin damage, do cold therapy for a maximum of 20 minutes. Continually check to make sure you can feel sensations in the affected area.

Ice pack 

Apply a bag of frozen food, a bag of ice, or an ice pack to the affected area. You can also freeze a wet towel or sponge before applying it to the affected area. Wrap a towel around your ice pack to protect your skin. 

Apply the pack for up to 20 minutes at a time. Stop the treatment if your skin begins to feel numb.

Check out some of the best ice packs for joint pain here

Ice massage 

Use an ice cube to massage the affected area. You can make a large ice block by freezing water in a paper cup. 

Have a towel handy to absorb excess moisture.

Ice bath

You can take a full or partial ice bath to reduce inflammation and muscle pain. Stay in an ice bath for a maximum of 15 minutes. 

Cold bath or shower

For an option that’s less extreme than an ice bath, take a cold bath or shower. According to a 2017Trusted Source study, cold mist showers may help to reduce pain in people with chronic inflammatory arthritis.

Types of heat therapy for arthritis

There are several types of heat therapy, called thermotherapy, options for arthritis. Heat therapy improves circulation and causes your blood vessels to expand. This helps your body to deliver more blood, oxygen, and nutrients to the affected area, which may reduce inflammation, stiffness, and pain. Heat therapy may also improve mobility, which makes it easier to relax, loosen up, and move.

If a heat therapy session causes swelling, redness, or inflammation avoid further treatments until your symptoms subside. Avoid using heat therapy during a flare-up or the acute stage of an injury. Talk with a healthcare professional before using heat treatments if you have heart disease or high blood pressure. 

Do not use heat therapy if you have any of the following conditions: 

  • diabetes
  • dermatitis
  • vascular diseases
  • deep vein thrombosis
  • multiple sclerosis (MS)

Hot shower 

Hot showers may be beneficial to prepare for exercise or the day ahead. They may alleviate stiffness, improve mobility, and increase flexibility. Make sure the water isn’t too hot, especially if you have any cardiovascular concerns.

Warm compress 

Apply a hot water bottle, electric heating pad, or homemade heating pad to the area of concern for up to 20 minutes at a time. For a full-body treatment, use an electric blanket.

This therapy is not suitable for people who have diabetes, have impaired sensation, or have had a stroke. 

Swim or exercise in warm water 

Swimming and exercising in warm water allows you to build muscle strength, improve flexibility, and increase mobility while reducing compression to your joints. This may help to ease discomfort and alleviate stiffness. 

If you live near a warm body of water, take a dip in a natural setting. Otherwise, find a heated pool in your area. Aim to spend at least 20 minutes in the water.

Bath

Take a warm bath to relax and release tension or pain. For more benefits, add ingredients such as baking soda, Epsom salts, or essential oils. You can bathe for up to 2 hours. 

Saunas and steam rooms 

You can use a dry sauna, infrared sauna, or steam room to improve circulation and alleviate stiffness.

The results of a 2018Trusted Source review suggest that consistent use of a dry sauna is beneficial for people with rheumatoid arthritis as well as chronic pain syndrome. It may also help athletes to improve performance.

You can stay in a dry sauna or steam room for up to 15 minutes though you may want to begin with shorter sessions. Give yourself plenty of time to cool down in between sessions.

If you’re pregnant, talk with your doctor before using a sauna or steam room. 

Paraffin wax treatment 

This treatment may help to boost circulation, receive tension, and alleviate stiffness. 

To do a paraffin wax treatment, dip your hands or feet in hot paraffin wax and cover the area with plastic or a towel. After 20 minutes, remove the wax. Pay attention to how your skin reacts and look out for any adverse reactions.

Does alternating heat and cold therapy help?

Many people find it beneficial to alternate between heat and cold therapy. You can switch between hot and cold therapies throughout the day. Usually, it’s best to wait at around 20 minutes between sessions, though you can also alternate between hot and cold water in the shower. Always start and finish with a cold treatment. 

Talk with your doctor before alternating between full-body treatments such as an ice bath and a sauna or hot tub.

The bottom line 

If you’re looking for remedies for arthritis to add to your existing treatment routine, heat and cold therapy are great options. You can use hot and cold therapies to manage symptoms of arthritis and improve your overall comfort. 

Heat treatments help to relieve stiffness, improve circulation, and increase flexibility. Cold treatments alleviate pain and inflammation, which make them useful to do following physical activity. The effect of heat and cold therapy may only last a few hours, though over time they may help to reduce the severity of pain and keep symptoms at bay for longer.

Choose the remedies that yield the best results and add them to your self-care routine. Always make sure to protect your skin since hot and cold therapy have the potential to cause skin damage. Talk with a healthcare professional before starting any new therapy, especially if you have any additional medical conditions or take medications.

Melinda

Reference:

Chronic Illness · Chronic Pain · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Self-Care

Fibromyalgia Awareness Month

Fibromyalgia Awareness Month is important to me because I have it and know others that do. One of the biggest challenges Fibromyalgia patients face is there are so many different symptoms and they mimic other illnesses. That’s one reason it can years to get a proper diagnosis.

Why National Fibromyalgia Awareness Day?

Fibromyalgia is a chronic, complicated disease that affects millions of men and women throughout the world. A musculoskeletal illness produces widespread severe pain with symptoms like increased skin sensitivity, muscular rigidity, difficulty sleeping, memory and attention problems, excessive weariness, and headaches.

It is a challenging condition to identify because there isn’t a single test that can detect and treat it, and the symptoms get frequently misdiagnosed as attributed to other illnesses. Many people feel that the condition is psychological and not genuine due to a lack of research and the difficulties in defining the variables that cause it. Furthermore, there is no permanent relief for the suffering.

As a result, the keys to combating Fibromyalgia are awareness and financing. The goal of this day is to raise awareness about the condition and to encourage further research into finding a cure. The day’s observances greatly minimize the level of threat and the likelihood of being afflicted. When we try to learn more about a disorder like fibromyalgia, we realize just how far we’ve come in terms of innovation and advancement. Observing National Fibromyalgia Awareness Day allows us to reflect on our accomplishments.

Thoughts

Another huge challenge of having Fibromyalgia is it’s invisible, you don’t look sick unless you’re having your worst day. Most of the time you look fine and that is where the misunderstanding about the illness starts with friends and family. You can’t predict how you’ll feel tomorrow let alone next week, so you make plans, only to have a flair day and can’t get out of bed or can’t think straight and have to cancel your plans.

When people think you look fine and you’re not they can take it personally, that’s why it is important to share the basics of the illness and tell them that when you have to cancel on short notice it has nothing to do with them or not wanting to see them.

One suggestion for those newly diagnosed is to take your loved one or family member to a doctor’s appointment. This made a huge difference for me with my mental illness. My husband got to hear everything from the doctor’s mouth and got a better understanding of what I was dealing with. We also tell our doctor symptoms we don’t talk about every day and this is another time your loved one can understand all the ways Fibromyalgia affects your life.

Another way you can help is to participate in a Clinical Trial for Fibromyalgia, Keep your eyes open for news about trials in your area. It’s always possible you’ll get a drug that helps you in some way vs a placebo. It’s a 50% chance. The key is to understand the risks and or interactions with your other medications. 

Go easy on yourself. If the house isn’t as clean as you’d like, don’t worry about it. Work a little at a time or call a house cleaning service if you can.

Melinda

Looking for the Light

References:

https://www.nationaldaystoday.com/national-fibromyalgia-awareness-day/

 

Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Tick Borne Illnesses

New advanced screening tests for tick-borne diseases in dogs

Antech, a veterinary diagnostics company, has launched two advanced screening tests for tick-borne diseases, heartworm, and other pathogens.

Enhanced Accuplex™ can now test dogs for three Ehrlichia species, and two Anaplasma species, alongside heartworm (Dirofilaria immitis)antigen, and antibodies to confirm exposure to Lyme borreliosis (Borrelia burgdorferi).

Antech is also offering a new enhanced vector-borne disease PCR panel for dogs and cats. capable of detecting such threats as Rocky Mountain spotted fever, babesiosis, and cytauxzoonosis.

Click here for more information from Antech.

Melinda

Reference:

https://www.lymedisease.org/screening-tests-dogs/

Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Pain Medications and Kidney Health

NSAIDs can pose a risk to your kidney health. But while acetaminophen may be safer, all pain medications should be taken with a doctor’s supervision if you have kidney disease. 

It’s almost a reflex: You have an ache or pain, so you reach for an over-the-counter (OTC) pain medication. But as routine as this behavior is, not everyone should casually take pain medications, as there can be potential negative interactions. 

For example, people with kidney damage or reduced kidney function might not be able to use every OTC pain medication. Let’s look at why and what you can safely do for pain relief.

Which pain medication is safest if you have kidney problems?

Before taking any pain medication, you should speak with your physician or a health professional to determine any possible interactions or risks that you might encounter.

For people with kidney disease, aspirin can increase the risk of bleeding. And in those with reduced kidney function, aspirin is not recommended unless prescribed by a physician. The recommended alternative can vary depending on the type and severity of kidney problems that you have. 

Often, acetaminophen (Tylenol) is the preferred alternative. But it’s encouraged that you use the lowest dose possible that still manages pain or fever symptoms, decreasing doses gradually. And likewise, you should not exceed more than 3,000 milligrams per day.

Alternatively, if an OTC acetaminophen drug doesn’t control pain symptoms, a physician may suggest a temporary prescription alternative like tramadol. In its immediate release form, tramadol can be used in individuals with chronic kidney disease (CKD) or end stage renal disease (ESRD).

However, extended release dosing for tramadol is not recommended for people with advanced CKD or ESRD.

Which pain medication is safe for kidney transplant patients?

Similar to people with kidney disease, transplant recipients should only consider acetaminophen to manage post-operative pain symptoms. Again, best practices include using the lowest dose possible and never exceeding 3,000 milligrams per day. 

Which pain medication is safe for kidney stones?

The short answer to this question is, it depends. If a patient has kidney stones with no underlying renal issues, then any OTC pain medication can be used to manage the pain symptoms associated with passing a kidney stone. 

This includes ibuprofennonsteroidal anti-inflammatory drugs (NSAIDs), and acetaminophen. Multiple studies and reviews have consistently shown positive patient outcomes when using OTC medications of all types to treat pain associated with renal colic or passing a kidney stone

However, if someone also has impaired kidney function and kidney stones, NSAIDs are not recommended. A physician will provide the best guidance, but typically, sticking with acetaminophen is the best choiceTrusted Source for managing kidney stone pain when you have kidney disease or impaired kidney function. 

Which pain medication can damage your kidneys?

Misusing any pain medication can increase your risk of kidney damage. This includes aspirin, ibuprofen, acetaminophen, NSAIDs, and of course, prescription opioid medications. The most common risks center around consuming too high a dose or taking medications for longer than recommended. 

But of all the OTC pain medication categories, NSAIDs pose the greatest risk of continuous kidney damage. Specifically, these medications can increase the risk of progressive kidney damage or sudden kidney failure. 

2019 studyTrusted Source involving over 764,000 U.S. Army officers found that participants who were prescribed more than seven daily doses of NSAIDs per month had an increase in the potential for an acute or chronic kidney disease diagnosis. 

Takeaway

Regardless of whether you have a diagnosed kidney disorder or have healthy kidney function, OTC medications should be used with care.

Excessive use by consuming too high a dose or for prolonged periods can lead to a variety of health problems throughout your body — including damage to the kidneys.

For people with kidney disease or impaired kidney function, avoiding NSAIDs unless directed by a physician is the safest way to avoid further harm. Instead, opt for acetaminophen and be sure to use the lowest dose for the shortest period to control pain symptoms. 

And when in doubt, speak with a physician or health professional before taking an OTC pain medication.

Melinda

Reference:

Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Mental Illness

Suicide, What’s Left Behind?

This is a previous post I feel is important to shine a light on for Mental Health Awareness Month.

Some states like Colorado have what’s called a Red Gun Law. It basically allows someone who is concerned that a person may harm themselves or others to go before a judge and if warranted, have their weapons taken away for 30 days. This type of law could save many lives, in that 30 days, you might be able to get your loved one or friend the help they so desperately need.

5/30/21

Melinda

Photo by Micael Widell on Pexels.com

My father committed suicide in 1992 after a long struggle with mental illness, he was 52 years old. This post isn’t about how to prevent suicide, or that it’s preventable, this post is about what is left behind after a person commits suicide.

September is Suicide Prevention Month and I’ve struggled with what to write. I do believe strongly that as a society we have to talk about suicide. As much as I advocate for everything I believe in suicide is something so personal to me that it’s different. It’s not the stigma, I don’t care what anyone thinks about my father’s death. It’s that in order to prevent suicide you have to start so far in advance of the person wanting to commit suicide.

My father abused me and we were estranged from the time I was a teenager. When I lived with my father I knew he was emotionally unstable but I was a kid and had my own problems. After 14 years my father calls me and starts talking about suicide. About how he can’t work, how he doesn’t have any money, and on and on.

The daughter and human in me responded, I was heartbroken, in shock, felt responsible and started paying his bills, sending him money and we talked all the time. He constantly talked about people bugging his phone, and people following him. I didn’t realize at the time my father was delusional.

I continued to beg him every time we talked to not kill himself, to think about my granny, his mother who would be devastated. I talked and pleaded for months. Begged him to go to the doctor. I did what I could.

I got a call late one Sunday saying “your father did away with himself” from my gramps. I was in such shock I called right back and asked was he dead or on the way to the hospital. No, he’s dead.

Here are a few things I learned after my father died.

He had been in a downward spiral for years by looking at his living conditions. He had boxes and boxes of cassette tapes by his bed, recordings he had made. I remember him talking about someone bugging his phone so I listened to every one of those tapes several times. There was nothing on most of them, some were recordings of my father talking on the phone. Some were just noise or his breathing. My father was delusional.

I could go on and on but there are a few takeaways.

One of the most difficult things you have to deal with in a suicide death is a closed casket funeral. You can’t see their face and say goodbye so there is an unmet emotional void that never goes away.

I did everything within my power, my dad was a grown man. A man with his own free will. I could not make him go to the doctor for help. There wasn’t a Gun Law in Texas where you could call the police and they would come out to take away a gun. There may not be one now.

I felt unbearable guilt, the pressure of the weight of thinking I could have prevented my granny’s pain was so much I drank myself crazy.

What I did learn from his death as we had the same mental illness, Bipolar Disorder, and I was 75% more likely to commit suicide because my father had. I took that information and I found the best Psychiatrist I could. He is still my doctor today and has saved my life many times.

You can’t stop someone from killing themselves if they are determined. They will find a way now or later.

What we can do is look for signs early in life and during a crisis to see if a person needs help and guide them in that direction. If you’re a parent you have much more control when your child is younger.

The key to preventing suicide is to bring all the emotional damage to the surface to be dealt with and treat mental illnesses with the help of a Therapist & Psychiatrist. I will also add that if you’re inclined you can push for laws that allow the police to be called and for them to take the gun away for some period of time. Each state is different. You can also push for stronger gun laws if that is your wish.

It took me many years to grieve my father but I have reached the other side. You can too.

Melinda

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Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health

Can a Chiropractor Help with Knee Pain?

If you’re living with a knee condition, you may wonder if a chiropractor can help treat your knee pain. The answer is, it depends.

Knee pain is a common concern that frequently occurs due to aging, injury, or overuse. Mild, acute knee pain usually subsides within a few days using home treatments. However, chronic and severe knee pain requires treatment to ease discomfort and prevent it from worsening. 

One treatment option for knee pain may be chiropractic care, which uses holistic methods to treat your whole body and improve overall well-being. A chiropractor may be able to treat some knee pain and address underlying issues.

However, this method may not be for everyone. Chiropractic treatment is ideal if you prefer a natural healing approach, and if your knee pain is not caused by an injury or condition that requires surgical intervention. 

In some cases, chiropractic care may be enough to help ease knee pain. In other cases, you may use it alongside conventional medical treatments. 

Read on to find out more about common causes of knee pain, how chiropractic care can help, and what to expect during sessions. Plus, you can learn about the risks and considerations of treatment.

What is a Chiropractor?

Chiropractic care is a type of complementary medicine that focuses on your body’s natural healing ability. It is based on the belief that aligning the body enhances the functioning of the nervous system and overall well-being.

Chiropractor is a healthcare professional who diagnoses and treats musculoskeletal conditions, including chronic pain. They use a holistic approach to address your primary concerns and consider contributing factors, including injuries, movement patterns, and lifestyle habits. 

Chiropractors use soft tissue and manual therapy techniques to realign your spine and joints. Treatment may help with movement, ease discomfort, and improve function. Chiropractic care may also increase your range of motion and ease tension, helping you feel more relaxed and less stressed.

What knee conditions do Chiropractors treat?

Chiropractors can treat several painful knee conditions and concerns, especially those that get in the way of mobility.

Knee conditions that chiropractors treat include: 

  • Osteoarthritis (OA): OA occurs when the articular cartilage of the knee breaks down due to age or an injury. The bones then create friction that leads to pain, stiffness, and limited mobility. 
  • Rheumatoid arthritis (RA): Symptoms of this inflammatory autoimmune condition include swelling and stiffness. Over time, RA can cause bone, joint, and cartilage damage. 
  • Meniscal injury: Meniscal tears occur due to aging, arthritis, and forcefully twisting or rotating your knee. 
  • Patellar tendonitis: Patellar tendonitis is a repetitive injury that causes inflammation and weakness in the patellar tendon, which connects your kneecap to your shinbone. Often, this condition occurs in athletes.

Other common causes of knee pain

Chiropractors may also treat other causes of knee pain. However, for more severe knee injuries and chronic conditions, you’ll also want to consult a doctor. 

Chiropractic treatment may also be suitable for postsurgery rehabilitation as well as overuse and athletic injuries, including sprains and strains.

Having too much body weight is a common cause of knee pain. Being overweight puts extra pressure on your spine, hips, and knees, which results in inflammation. 

Additional causes of knee pain include: 

How do Chiropractors treat knee pain?

Chiropractic treatment for knee pain will depend on the cause, symptoms, and contributing factors, which may include excess weight, poor posture, and workplace ergonomics.

To create a treatment plan, your chiropractor will determine if your knee pain is due to a primary cause or a compensatory cause. A compensatory cause is when your knee’s alignment or function is compromised in order to make up for another issue, such as tightness in another area of your body. 

The chiropractor will also consider your accompanying symptoms, including inflammation, stiffness, and weakness. 

Treatment will usually include other areas of your body, including the neck, spine, and hips. Tightness and misalignments in these areas can contribute to knee pain. Plus, you may have developed poor posture and movement patterns in order to reduce pressure on your knee. 

Common chiropractic treatments for knee pain include: 

  • Manual manipulation: This hands-on technique involves aligning your spine and joints to reduce stress, improve posture, and boost mobility. 
  • Traction: This technique involves stretching the knee to reduce inflammation and boost mobility. 
  • Ultrasound: The massaging effect of sound waves can alleviate pain, inflammation, and stiffness. 
  • Electrotherapy: A stimulation device, such as a transcutaneous electrical nerve stimulation (TENS) unit, delivers tiny electric pulses to reduce swelling, ease tension, and boost blood flow. 
  • Cold laser: This treatment helps with inflammation and speeds healing. 
  • Infrared sauna: Infrared heat can help reduce pain, ease stiffness, and boost blood flow. 
  • Home exercise program: Your customized plan will include rehabilitation exercises and stretches to strengthen your knee and its supporting muscles.

Chiropractors may also recommend: 

What to expect from your Chiropractic sessions

During your initial chiropractic session for knee pain, your chiropractor will ask about your personal and family medical history, lifestyle, and occupation.

Your chiropractor will ask how and when your pain began and which activities make it feel better or worse. Be ready to explain the type, location, and frequency of pain.

They will perform a physical examination to check your heart rate, blood pressure, and breathing patterns. If necessary, they will take an X-ray. 

Usually, you will stand, sit, or lie down on the table during treatments and can stay fully clothed. Wear comfortable clothing that allows you to move freely. Thin, loose fabric is preferable to stiff, thick, and bulky fabric. You can wear tight clothes if they are stretchy. 

Avoid wearing jewelry and accessories like belts, which can get in the way during adjustments.

To determine the cause of your knee pain and create an appropriate treatment plan, your chiropractor may apply light pressure to tender areas. They may feel the joint as you move and listen for sounds, including grinding or clicking. 

Your chiropractor will let you know how many treatments they recommend. Typically, sessions are more frequent during the initial weeks. 

A chiropractor does not prescribe medications or perform surgery. If they are unable to treat your condition, they will refer you to a suitable healthcare professional.

Risks and considerations

Chiropractic care for knee pain is generally safe and poses few risks. However, it is not suitable for everyone. If you have concerns, share them with your Chiropractor or a healthcare professional to decide what is best. 

Since it’s beneficial to relax during treatments, choose a Chiropractor with whom you feel comfortable. 

You may experience mild discomfort during your treatment, but it should not be painful. If you feel intense pain, speak up immediately. After treatment, it’s typical to have soreness, headaches, and fatigue. 

If you have an inflammatory condition, it is not advisable to have an adjustment during a flare that affects your spine and joints. However, a Chiropractor can perform adjunctive therapies to treat the surrounding tissues and other areas of concern.

Chiropractic care may not be suitable if you have any of the following: 

  • broken bones
  • ruptured ligaments
  • osteoporosis
  • bone cancer
  • spinal cord disorders
  • bone marrow diseases 
  • a high risk of stroke

The bottom line

Chiropractic care is a natural, holistic treatment that can help with musculoskeletal concerns, including knee pain from a variety of causes. The goal of treatment is to improve mobility and function so you can move with ease. 

You’ll also learn to implement healthy lifestyle changes, including stress reduction techniques, physical activity, and a healthy diet.

I love my Chiropractor!

Melinda

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