Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health

10 Tips for Managing Nighttime Joint Pain

Joint pain may worsen during the night due to fluid buildup or chemical processes in your body that cause inflammation. But at-home treatments and adjustments to your daily and nighttime routines may help you get a good night’s sleep.

If you have a condition that causes joint pain, you may have found that the pain can be worse at night. Joint pain at night is not usually a medical emergency. But it can severely limit your ability to get a good night’s sleep.

Most joint pain is due to arthritis, inflammation of the joints. This includes:

According to the Arthritis Foundation, 4 in 5 people with arthritis have trouble sleeping.

But other common conditions can also contribute to joint pain at night, such as:

Cytokines

At night, some of your cells release cytokines, small proteins that help activate your immune system. Some cytokines help to make you sleepy. But they can also generate inflammation, which can increase joint pain.

Body position

Your sleep position can put pressure on joints, making existing joint pain worse. For example:

  • If you have hip or shoulder pain on one side of your body, try to avoid putting pressure on that joint by sleeping on your other side.
  • You can worsen wrist pain if you sleep with your wrists bent.
  • Neck pain may worsen if you’re a stomach sleeper and your neck remains twisted to one side for hours at a time.

Mattress and pillow

Your mattress and pillow may also be part of the problem. A too-soft, unsupportive mattress may not provide enough cushioning to support the proper alignment of your spine. This can put pressure on tender joints.

If your pillow is too high, too low, or lumpy, it may force you to hold your neck and shoulder joints in an unnatural position while sleeping. This can irritate your nerves and generate joint pain.

How can I manage joint pain at night?

The underlying cause of joint pain may determine how best to manage it. For example, if you have jaw pain due to a temporomandibular joint (TMJ) disorder, wearing a night guard might be a good way to reduce it.

You can typically manage joint pain at night with at-home treatments. A trial-and-error approach may be needed before you learn what works best for you. Here are 10 things to try:

1. Exercise 

Strong, supple muscles help take pressure off of painful joints. Exercises like stretching and yoga can help people with conditions like rheumatoid arthritis or osteoarthritis. Other good choices include:

You may consider working with a physical therapist on exercises for specific joints and muscle groups.

2. Apply heat 

Some people find that using heating pads or compresses on painful joints before sleep provides nighttime relief. You may also find that taking a warm bath before bed reduces pain and provides relaxation.

When you apply heat to an aching joint, the blood vessels in that area increase in size. This increases blood and oxygen circulation in and around the joint, reducing stiffness and pain.

If your joint pain is due to an injury, check with a healthcare professional before using heat. For injuries, applying cold during healing may be a better choice.

3. Apply cold

Cold packs decrease blood flow to the joint, reducing swelling and inflammation. The numbing sensation caused by applying cold or cool compresses can also help reduce pain.

Try using a cold pack directly on the painful joint for 10 to 20 minutes before going to sleep. You can also try immersing yourself in a cold or cool bath for as long as you feel comfortable.

4. Try over-the-counter (OTC) pain medication

OTC pain relievers, including those that reduce inflammation, may be helpful. These include acetaminophen (Tylenol) and nonsteroidal anti-inflammatory drugs (NSAIDs) like aspirin or ibuprofen. Look for extended-relief versions that last for 8 hours or more, so your pain doesn’t return during the night.

Make sure to follow package directions and don’t overuse. If OTC pain meds aren’t enough, talk with a healthcare professional about prescription drugs for pain.

If you have high blood pressure, heart disease, or kidney disease talk with a doctor about which OTC pain reliever would be best for you. Some may cause you to retain water, which can cause kidney problems or raise your blood pressure.

5. Use topical treatments

Topical treatments are medications you apply directly to your skin. Some ointments can provide targeted pain relief. Look for gels, sprays, and lotions that contain active ingredients such as:

  • Menthol: Menthol can provide a cooling sensation to your skin, helping to mask pain.
  • Camphor: Camphor can provide both cool and warm sensations to your skin and numb nerve endings.
  • Arnica: Arnica has anti-inflammatory properties and supports enhanced circulation.
  • Capsaicin: Capsaicin reduces the amount of a specific pain transmitter in your nerves.
  • Salicylates: These plant-based chemicals can help reduce inflammation.

6. Consider glucosamine and chondroitin supplements

Glucosamine and chondroitin are compounds found in cartilage, the connective tissue that cushions and surrounds your joints. Research into their benefits for joint pain has produced mixed results. But some people find that taking these supplements as directed helps to reduce joint pain from osteoarthritis.

Since the Food and Drug Administration (FDA) does not regulate supplements, be sure to look for the “USP-verified” mark on these products. That means it’s from a trusted manufacturer.

7. Meditate

If joint pain wakes you up at night, it can be hard to go back to sleep. But research suggests that meditation may help you manage chronic pain of all types, especially during the night and before bed.

2018 review of studies found that meditation changes the way your brain processes pain signals, reducing your sensitivity to pain. It can also reduce anxiety and help you relax.

Many gyms and yoga studios offer classes and workshops in meditation. There are also meditation apps to guide you through long and short meditation exercises.

8. Upgrade your mattress and pillow

If your current mattress is too soft or older than 8 years old, consider getting a newer model suited for joint pain relief.

You may also benefit from a pillow designed to reduce knee or neck pain.

9. Create a soothing sleep environment

Proper sleep hygiene habits won’t necessarily reduce joint pain, but they will make it easier for you to fall asleep, despite it.

Ensure your room is dark, cool, and quiet. Turn off electronic devices at least 1 hour before trying to sleep. You may also benefit from listening to relaxing music, meditating, or reading a good book before you turn the lights out.

Aromatherapy may also be helpful for soothing sore joints and for promoting relaxation.

10. Move and stretch when you wake up

Morning stretches won’t necessarily help you with nighttime pain, but they may help relieve stiffness and pain when you first wake up. Moving right when you wake up helps to move fluids out of inflamed joints and reduces swelling.

Try stretching your arms and legs and flexing your fingers and ankles before you get out of bed. You can do this with your knees bent, lying chest-down, or sitting.

When to contact a doctor

Chronic nighttime pain can cause sleep deprivation and exhaustion. It may also significantly reduce your ability to partake in daily activities and enjoy life. Let a healthcare professional know if your joint pain doesn’t respond to at-home treatments.

See a doctor if you notice any of the following symptoms:

  • You have intense joint pain that lasts for several weeks or longer.
  • Pain is waking you up from sleep consistently.
  • You experience sudden swelling or warmth around the joint or can’t move it easily.
  • Your joint pain is accompanied by fever.

A doctor may prescribe oral, topical, or injected medications to help reduce your symptoms.

Takeaway

Joint pain at night has various underlying causes, from injuries to arthritis. It can be exhausting and debilitating. But you don’t need to live with pain.

Many at-home treatments, such as OTC medications and heat or cold compresses, can help. Lifestyle changes like exercising or improving your sleep hygiene can also help.

If your joint pain is severe or doesn’t respond well to at-home treatments, visit a healthcare professional. They can assess your symptoms and provide further treatment options.

Melinda

Reference:

Celebrate Life · Chronic Illness · Health and Wellbeing · Infectious Diease · Lyme Disease · Medical · Men & Womens Health · Tick Borne Illnesses

Lyme Resources To Help Figure Out Your Next Move

One of the most important things a person with Lyme disease needs is clear, concise information.

Here’s a list of useful resources to get you going in the right direction.

LymeDisease.org is one of the foremost Lyme patient advocacy organizations in the United States. We provide a wealth of information on our website–about ticks, Lyme and other tick-borne diseases, prevention, diagnosis and treatment.

Special features include:

Symptom Checklist: Patients can answer a series of questions, print out the filled-in form and take it to their doctor. The printout describes basic facts, explains the two standards of care for Lyme disease, and endorses the ILADS guidelines. It’s a way to help your doctor help you.

Physician Directory: Find a Lyme-literate practitioner near you.

Our blogs keep the Lyme community up to date on news, analysis, and opinion.

Social media. We spread the word via FacebookTwitterInstagram and Pinterest.

Our free weekly email newsletters keep you informed on Lyme-related developments. Click here to sign up.

US National Lyme Online Support Group: Information and emotional support for people dealing with Lyme and other tick-borne diseases.

MyLymeData patient registry: This big data research project allows patients to privately pool information about their Lyme disease experiences. So far, more than 17,000 people have enrolled in the project, providing millions of data points on Lyme disease demographics, tick bites, diagnosis, symptoms, lab tests, co-infections, treatment and quality of life. Add your Lyme data to MyLymeData to help find a cure for Lyme disease.

Lyme disease posters

Children and Lyme disease

Basic info about children with Lyme disease 

Gestational Lyme disease LymeHope, a Canadian Lyme advocacy organization, has taken a particular interest in the issue of mother-to-fetus Lyme transmission.

LymeAid4Kids–Financial assistance for Lyme treatment for those under age 21.

Lymelight Foundation–financial assistance for Lyme treatment for children and young adults through age 25.

LivLyme Foundation–Financial grants for children with Lyme disease (under 21).

Mothers Against LymeAdvocacy and education about congenital and childhood Lyme

Video: Lyme Disease & Pregnancy: State of the Science & Opportunities for Research

Book: When Your Child Has Lyme Disease: A Parent’s Survival Guide  by Sandra Berenbaum and Dorothy Kupcha Leland.

Book: Brain Inflamed: Uncovering the Hidden Causes of Anxiety, Depression, and other Mood Disorders in Adolescents and Teens  by Dr. Kenneth Bock.

Book: Protecting Your  Child From the Child Protection System, by Beth Alison Maloney

Book: Finding Resilience: A Teen’s Journey Through Lyme Disease, by Rachel Leland and Dorothy Kupcha Leland.

Article: Healthy Mom Best Prescription for Healthy Baby (The Lyme Times) (PDF)

Wrightslaw.com–Website with information about Special Education law.

PANS/PANDAS

ASPIRE: The Alliance to Solve PANS and Immune Related Encephalopathies

New England PANS/PANDAS Association

Northwest PANDAS/PANS Network

PANDAS Network

Moleculera Labs

Three books by Beth Alison Maloney:  Saving Sammy,  Childhood Interrupted: The Complete Guide to PANDAS and PANS, and Protecting Your Child from the Child Protection system (The author of these books is the mother of a child who healed from PANDAS. She is an attorney/advocate for the recognition and treatment of PANS/PANDAS, and advises parents about legal issues related to PANS/PANDAS and other complex medical conditions.)

Parenting with PANS

Ticks

Types of ticks

How to protect yourself from ticks

Find the repellent that’s right for you (EPA website)

Help! I’ve gotten a tick bite. Now what?

TickEncounter Resource Center—University of Rhode Island

Tick testing. There are various places to get ticks tested. Here are several: IGeneXTickCheckTicknologyTick Report

MilTICK—free tick testing and identification service available for ticks removed from Department of Defense (DoD) personnel and their dependents. 

Mast cell activation syndrome and food-related issues

MCAS, when your immune system goes haywire

The agony of mast cell activation syndrome (MCAS)

Healing from mast cell activation syndrome

What to eat when you’re allergic to everything?

Severe weather can worsen mast cell activation syndrome

Alpha-gal syndrome

There is growing evidence that certain types of tick bites can trigger alpha-gal syndrome (AGS) a life-threatening allergy to red meat and meat-related products.

Alpha-gal syndrome–symptoms, diagnosis, treatment

Tick-Borne Conditions United

Alpha-gal Information Website

Other Lyme-related symptoms & issues

Lyme carditis and heart block

Lyme disease can affect the heart in complicated ways

Lyme disease and cognitive impairments

Gastrointestinal manifestations of Lyme

Psychiatric manifestations of Lyme 

Lyme disease and hearing loss

Lyme and multiple sclerosis 

Lyme and allodynia 

Medical marijuana and Lyme disease 

The dreaded Jarisch-Herxheimer reaction

How Lyme disease can affect your vision

12 ways you can help yourself manage chronic pain  

Morgellons

The Charles E. Holman Morgellons Disease Foundation

Morgellons: The legitimization of a disease (book review)

Skin Deep: The Battle Over Morgellons (documentary film)

Treating Lyme disease with disulfiram

What is disulfiram and why does it spark excitement in Lyme community?

Treating psychiatric Lyme symptoms with disulfiram

Co-infections

The Lyme Times Special Issue on Co-infections (PDF)

About Lyme disease co-infections

Co-infections poster

Mold

Lyme and mold 

Survivingmold.com

Dealing with Lyme disease and mold illness at the same time

Mold Testing Guide (How to test your home for mold)

Your guide to mold in your home

Clean indoor air on a budget

Are you unknowingly ingesting toxic mold?

How to donate blood and tissue for Lyme research

Lyme Disease Biobank

Lyme and pets

Basic information about Lyme and pets

Parasite prevalence maps Educational website includes a US map down to the county level, showing where dogs have tested positive for Lyme, anaplasmosis, erhlichiosis and other diseases. Also, information about protecting your pet from tick-borne diseases.

Companion Animal Parasite Council website has comprehensive information about how to protect your pets from ticks and other parasites.

Books (Treatment, healing modalities, family life)

Brain Inflamed: Uncovering the Hidden Causes of Anxiety, Depression, and Other Mood Disorders in Adolescents and Teensby Dr. Kenneth Bock

CHRONIC: The Hidden Cause of the Autoimmune Pandemic and How to Get Healthy Againby Dr. Steven Phillips and Dana Parish

Conquering Lyme Disease: Science Bridges the Great Divide, by Brian A. Fallon, MD, and Jennifer Sotsky, MD

The Deep Places: A Memoir of Illness and Discovery, by Ross Douthat. The New York Times columnist delves into his personal years-long battle with chronic Lyme disease.

Finding Resilience: A Teen’s Journey Through Lyme Disease, by Rachel Leland and Dorothy Kupcha Leland. Based on the journal Rachel kept during the worst years of her illness, with additional insights from her mother, Dorothy.

How can I get better? An Action Plan for Treating Resistant Lyme and Chronic Disease, by Dr. Richard Horowitz

The Lyme Diet, by Dr. Nicola McFadzean. What to eat while healing from Lyme.

Recovery from Lyme Disease: The Integrative Medicine Guide to Diagnosing and Treating Tick-Borne Illnessby Dr. Daniel Kinderlehrer.

TOXIC: Heal Your Body from Mold Toxicity, Lyme Disease, Multiple Chemical Sensitivities, and Chronic Environmental Illness, by Dr. Neil Nathan.

When Your Child Has Lyme Disease: A Parent’s Survival Guide  by Sandra Berenbaum and Dorothy Kupcha Leland.

Why Can’t I Get Better? Solving the Mystery of Lyme and Chronic Disease, by Dr. Richard Horowitz.

Books (History, Policy, and Science)

Bitten: The Secret History of Lyme Disease and Biological Weapons, by Kris Newby

Cure Unknown: Inside the Lyme Epidemic, by Pamela Weintraub.

Lyme: The First Epidemic of Climate Changeby Mary Beth Pfeiffer.

Film and Video

I’m Not Crazy, I’m sick, Lyme documentary, available on various streaming services.

The Quiet Epidemic, documentary film about chronic Lyme disease, available on various streaming services.

Under Our Skin, award-winning Lyme documentary film.

Under Our Skin 2: Emergence (sequel)

The Red Ring, documentary takes a global look at Lyme disease.

Your Labs Are Normal, feature film based on real-life experiences.

Financial assistance

LymeTAP.com–Lyme Testing Access Program. Financial assistance for Lyme diagnostic testing.

Needymeds.com–Clearing house for information about various kinds of financial assistance for obtaining medication.

Lymelight Foundation–financial assistance for Lyme treatment for children and young adults through age 25.

Lyme Treatment Foundation–financial assistance for Lyme treatment. No age restrictions.

LivLyme Foundation–Financial grants for children with Lyme disease.

LymeAid4Kids—grants for young Lyme patients (up to age 21).

Partner in Lyme—grants for Lyme treatment for residents of Connecticut.

Applying for Social Security benefits for Lyme disease

Outside of the United States

ALCE Asociación de Lyme Crónico España (Spain)

Canadian Lyme Disease Foundation

LymeHope (Canada)

LYRI (Mexico)

Lyme Disease Action (UK)

LymeDiseaseUK

Lyme Disease Association of Australia

Karl McManus Foundation (Australia)

France Lyme

Tick Talk Ireland

Lyme Poland

Association Luxembourgeoise Borréliose de Lyme (Luxembourg)

Onlyme-aktion.org  (Germany)

Lymevereniging (Netherlands)

TOUCHED BY LYME is written by Dorothy Kupcha Leland, LymeDisease.org’s Vice-president and Director of Communications. She is co-author of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at dleland@lymedisease.org .

Melinda

Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Mental Illness · Moving Forward

5 Things I Didn’t Know About Taking Mood Stabilizers

Written by Sally Buchanan-Hagen

Mood stabilizers help keep my bipolar symptoms in check, but they still affect some areas of my life in unexpected ways.

In a previous blog, ‘6 Things I Didn’t Realize About Taking Antipsychotics’, I wrote about some of the impacts that taking antipsychotics can have on your life. But I don’t just take antipsychotics for my <a href=”http://DON’T GIVE UP, MARY! I have had so many bad days, weeks, months, and years even, but when you stick it out, things always get better–sometimes much better than you ever imagined. I encourage you to contact the SUICIDE PREVENTION LIFELINE at 1-800-273-8255. They also have an online chat here: http://chat.suicidepreventionlifeline.org/GetHelp/LifelineChat.aspx. I’ve been in that space before, Mary, and it gets better. I PROMISE! Depression tricks us into believing the world is better off without us, but I PROMISE YOU, THE WORLD IS BETTER OFF WITH YOU IN IT! Please stay…and please stay in touch. bipolar disorder. I also take mood stabilizers. I have been taking mood stabilizers since my diagnosis, but it took two years to get the combination right. 

I now take two different mood stabilizers and am happy to say that I am euthymic. Although I experience few side effects from mood stabilizers, taking these medications still impacts some areas of my life.

In a previous blog, 6 Things I Didn’t Realize About Taking Antipsychotics, I wrote about how antipsychotic medications have affected my life. But antipsychotics aren’t the only medications I take for bipolar disorder — I also take mood stabilizers.

It’s worth noting that while mood stabilizer is a commonly used term among clinicians, it’s not an official classification of medication. For bipolar disorder, this category typically includes anticonvulsants and lithium.

1. Tremors

In the beginning, the tremors caused by my mood stabilizer really bothered me. I was on such a high dose of one particular medication that I had to choose between managing my maniaor dealing with wild tremors. It was frustrating, but at the time, the higher dose was necessary to keep my symptoms in check.

I remember being a student nurse on my mental health placement and meeting a young man my age who was on the same mood stabilizer. His tremors were so severe that they made daily tasks — eating, brushing his teeth, writing, brushing his hair, and even getting dressed — incredibly difficult. It took him so much effort just to do things most of us take for granted.

I had no idea then that, just a few years later, I would be struggling with the same challenges — while also trying to write a thesis and work as a nurse in the emergency department. The tremors exhausted me, and I was embarrassed by them. What was hardest was that I couldn’t play the piano or cello, something I truly love. On top of that, the constant tremors felt like a visible reminder that I had bipolar disorder.

Every time my dose was lowered, I would become elevated. During a particularly severe manic episode, I was prescribed an additional mood stabilizer. That second medication, combined with my original one, finally helped keep my mania at bay. More importantly, it allowed me to reduce the dose of my first mood stabilizer without destabilizing my mood. As a result, my tremors are now very mild.

It’s important to point out that the tremors caused by mood stabilizers are different from tardive dyskinesia, a potential side effect of antipsychotics. While both involve involuntary movements, they have different causes and feel distinct from one another.

2. Thirst

Need I say more? Mood stabilizers make you really thirsty. As I mentioned in my previous post, antipsychotics can cause a very dry mouth. Combine that with the thirst from mood stabilizers, and it’s not exactly a pleasant experience.

3. Regular Blood Tests

Some mood stabilizers can make you toxic if they’re over the therapeutic range. To measure this, routine blood tests need to be taken as the level of medication shows up in the blood. I don’t know how many blood tests I’ve had since commencing mood stabilizers, but there have been lots.

When first starting on mood stabilizers, blood tests have to be done very frequently while the dose is titrated up to a therapeutic range.

When I’ve been hospitalized for mania, I would get a blood test every morning. Once the optimal dose has been established for the individual, the blood tests become less frequent, but levels still have to be monitored. I usually get blood work done every two months, but if my dose changes, testing ramps up again. 

When that happens, my Saturday morning routine begins with a trip to the local pathology clinic and for a blood test. Fortunately, I don’t mind needles, but I can see how this could be a real challenge for someone who does.

4. Fluctuating Blood Levels

Sometimes, the levels of mood stabilizers in my blood fluctuate. I can always tell when they get too high: I struggle to concentrate, I feel weak, my tremors worsen, and I experience nausea, dizziness, and hot-and-cold flushes.

The first time this happened, I had no idea what was happening to me. I was studying in the university library and seriously considered asking a colleague to take me to the hospital. I didn’t — but looking back, I probably should have. It happened a few more times before I finally made the connection that my medication levels might be too high. Blood tests confirmed it, and my psychiatrist adjusted my dose.

Now, it doesn’t happen often, but when it does, it’s always when I’m dehydrated — which makes sense since dehydration can increase blood levels. Because of this, I have to be extra careful when exercising or on hot days. If my levels spike, it can completely wipe me out for a day or two.

5. Minimal Side Effects

Aside from toxicity — which is extremely serious and requires immediate medical attention — I’ve been surprised at how few side effects I experience from mood stabilizers, especially compared to antipsychotics.

When my tremors were at their worst, I wouldn’t have said this, and I know not everyone has the same experience. But of the three types of medication I take for bipolar, mood stabilizers are the ones I prefer. I owe my quality of life and mentally healthy mind to them.


Sally Buchanan-Hagen

Sally lives in Victoria, Australia. She was diagnosed with bipolar disorder two years ago when she was 22, however she has been dealing with extreme moods since she was 14. When she experienced her first episode of depression, she was too embarrassed to get help even though she knew that something was wrong. Throughout high school she battled depression after depression, each one getting worse. At university she continued to have depressive episodes and when she wasn’t depressed she was extremely happy, incredibly driven and unusually energetic. Everyone thought this was her normal mood, herself included and so the elevated times went unnoticed. The turning point was in her final year of university when she was referred to the university counsellor. She was diagnosed with depression but after many failed treatments she saw a psychiatrist who diagnosed her with type II bipolar disorder. However that quickly turned into a diagnosis of type I bipolar disorder after a psychotic manic episode. She is currently completing her honours degree in nursing and works as a nurse in the emergency department. She blogs for The International Bipolar Foundation and has written for several publications. She also volunteers for a mental health organization where she delivers presentations about mood disorders to high school students. Although relatively new to this world, she is passionate about mental health promotion and thoroughly enjoys writing about mental health.

Melinda

Reference:

https://www.bphope.com/blog/5-things-i-didnt-know-about-taking-mood-stabilizers/?utm_source=iContact&utm_medium=email&utm_campaign=bphope&utm_content=Best+-+Mar18+-+Stabilizers

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward

Mental Health Resources In America

Mental Health Resources

NIMH.NIH.gov

ADDitude Magazine

CHADD.org

ADD.org

New Method Wellness

Addiction Rehab Treatment

Addiction Group.org

D’Amore Mental Health

Addiction Rehab Treatment.com/mental-health/depression/ 

Depression and Bipolar Support Alliance

International Bipolar Foundation

Mental Health America

MentalHealth.gov

National Institute of Mental Health

National Institute on Aging

National SuicidePreventionLifeline.org
1-800-273-TALK (8255)
Press 1, Veterans Crisis Line USA
Press 2, Se Habla Español
LifeLine Chat

CrisisTextLine.org
Text 741-741
Facebook.com/CrisisTextLine

IMAlive.org Crisis Chat

TheTrevorProject.org (LGBTQ Youth)
1-866-488-7386 (24/7/365)
TrevorChat (7 days/week from 3PM–10PM ET / noon–3PM PT)
TrevorText — text START to 678-678 (Mon–Fri, 3PM–10PM ET / noon–3PM PT)

VeteransCrisisLine.net

Brain & Behavior Research Foundation (BBRFoundation.org): Awards grants for scientific research. Keep up to date on latest research

International Bipolar Foundation (IBPF.org): Bipolar research. Care and support resources for individuals and caregivers. Erase stigma through education.

MentalHealth.gov: US government mental health resources and information.

MentalHealthAmerica.net (MHA): Address needs of those living with mental illness. Promote mental health.

National Alliance on Mental Illness (NAMI.org): Build better lives for the millions of Americans affected by mental illness.

National Institute of Mental Health (NIMH.nih.gov): Federal agency for research on mental disorders.

NeedyMeds.org1-800-503-6897. Educates and empowers those seeking affordable healthcare.

Substance Abuse and Mental Health Services Administration (SAMHSA.gov): Reduce the impact of substance abuse and mental illness on America’s communities.

To see the complete list of resources click here.

Melinda

Chronic Illness · Health and Wellbeing · Infectious Diease · Lyme Disease · Medical · Men & Womens Health · Mental Health · Tick Borne Illnesses

When Lyme patients must fight to be believed by doctors

By Nancy Dougherty

llness invalidation by medical professionals—sometimes called “gaslighting”—is an underappreciated and understudied problem in Lyme disease.

Many Lyme disease patients complain not only of fighting to recover their health but also of fighting to be believed by health care practitioners.

Expecting to receive understanding and proficient care from medical professionals, many instead experience having their persistent debilitating symptoms dismissed, minimized, disbelieved and/or psychologized.

How common is the occurrence of medical gaslighting in Lyme disease? Is illness invalidation by medical professionals related to disease severity? Are there specific constituencies who are being affected more than others?

These are some of the questions that a team of researchers led by Alison Rebman, MPH, Assistant Professor in Medicine and Director for Clinical and Epidemiological Research at the Johns Hopkins Lyme Disease Research Center at Johns Hopkins Medicine, set out to identify and quantify in a cohort of well-characterized Lyme disease patients.

Invalidating encounters

The Johns Hopkins study, published in August 2024 in Scientific Reports, finds that invalidating encounters with medical professionals are common for post-treatment Lyme disease (PTLD) patients, particularly women and younger patients, and also are linked to higher illness severity.

Lyme disease is the most common tick and vector-borne disease in the US with about 500,000 new cases per year. Lyme infections are expanding geographically, and acute and chronic cases are on the rise in the US and Eurasia. Lyme infection-associated chronic illness affects around 2 million Americans and can be difficult to properly diagnose and effectively treat.

A Lyme infection can affect multiple body systems including musculoskeletal, neurologic, and cardiovascular. Patients with early diagnosis and appropriate treatment usually get better. However, about 10-20% of patients even when treated promptly with standard of care antibiotics do not return to health and are functionally impaired by persistent musculoskeletal pain, crushing fatigue, and cognitive dysfunction, known in the research setting as post-treatment Lyme disease (PTLD).

Patients frequently refer to this as “chronic Lyme.” Misdiagnosis and delayed treatments further increase the risk for PTLD as well as for more broadly defined community-based Lyme infection-associated chronic illness or “chronic Lyme.”

Women and younger patients

In the Johns Hopkins study, 49% of the PTLD patients reported a lack of understanding and 29% experienced discounting from medical professionals. Additionally, women and younger patients were at higher risk for experiencing more invalidation than men or older age patients.

The study found, “Before their initial diagnosis of Lyme disease, approximately half (51.3%) had first been told that their symptoms represented another illness or condition. This high rate is consistent with the hypothesis that diagnosis and treatment delays, and possibly exposure to inappropriate treatment, may be risk factors for PTLD.”

Women more often received alternative diagnoses (such as another contested illness like fibromyalgia or ME/CFS and/or a psychological illness) which in turn correlated with more discounting and lack of understanding. PTLD patients who reported the highest levels of illness invalidation were discovered to have greater symptom severity, lower quality of life, and less trust in physicians.

The pervasiveness of Lyme disease illness invalidation and the consequential negative effects on illness burden and health outcomes are not broadly known by medical professionals.

Improved physician education is needed to help engender more patient-centered paradigms that incorporate the patient illness experience and better recognize how that experience may impact the healing process.

National Academies look at IACI

The National Academies of Sciences, Engineering and Medicine (NASEM) has helped validate infection- associated chronic illnesses as being significant public health problems that need greater national attention, a coordinated strategy, and considerably more federal resources.

NASEM held its first national workshop on infection-associated chronic illnesses (IACI) in June 2023 to explore overlapping symptoms and biologic pathways for IACIs including Lyme disease, long COVID, ME/CFS, MS, and others.

In July 2024, a follow-up NASEM meeting focused specifically on Lyme infection-associated chronic Illness. Both forums discussed the importance of listening to and incorporating patients’ illness experience perspectives into improving diagnostic and treatment approaches. For example, patient-driven data such as MyLymeData can be leveraged to improve research and clinical care. It is vital to listen to patients especially when diagnostics are problematic, treatments are inadequate, and the science is contested or evolving.

Building upon insights and collaborative momentum from the NASEM IACI meetings, a coalition of advocates (patient, scientific and medical) are now calling for the creation of a new National Institutes of Health (NIH) office to help strengthen and coordinate research across infection-associated chronic conditions and illnesses including Lyme infection-associated chronic illness, Long COVID, ME/CFS, PANS/PANDAS, POTS/dysautonomia and others.

Listening to patients will be key to advancing solutions, reducing invalidating patient-practitioner encounters, and improving health outcomes.

Nancy Dougherty is an education and communications consultant for the Johns Hopkins Lyme Disease Research Center. Other research investigations at the Center include Pilot Treatment Trials and the SLICE Studies.

Melinda

Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health

13 Examples of Narcotic Drugs and Medications

Although many narcotic drugs and medications have similar effects or characteristics, each substance is unique. Here are some common examples.

From codeine to heroin, there are many narcotic substances. Some have medical uses and are available by prescription, while others do not. 

The term “narcotic” originally referred to any substance that relieved pain and dulled the senses. Some people use the term to refer to all drugs — particularly illegal drugs — but it technically refers to opioids only. 

Today, “opioid” is the preferred term, in part due to the connotations the term narcotic has.

Common opioid and opiate prescription medications

Opiates are naturally occurring compounds. Opioids include naturally occurring compounds as well as semi-synthetic and synthetic compounds. Opiates are a subcategory of opioids.

Clinicians often prescribe opioid and opiate medications:

Opioid and opiate medications can cause many side effects, including:

The higher the dose, the more potent the medication. 

Some of the most common opioid and opiate medications include: 

  • Codeine: One of the most commonly used drugs worldwide, codeine is used to treat chronic pain. Doctors often prescribe it to people living with cancer and people with back painfibromyalgiaosteoarthritis, and headache
  • Oxycodone: This medication may be used for acute or chronic pain
  • Hydrocodone: This semi-synthetic opioid is typically used to treat severe pain and, in some cases, coughs. 
  • Oxymorphone: A highly potent opioid, oxymorphone is used to help manage severe pain. 
  • Morphine: This medication is used to manage pain in people with moderate or severe acute or chronic pain, particularly in cancer treatment and palliative care.
  • Fentanyl: A synthetic opioid, fentanyl is approximately 100 times more potent than morphine and 50 times more potent than heroin.
  • Hydromorphone: This medication is used to help manage moderate to severe acute pain and severe chronic pain. It’s very potent and has a high potential for misuse, so it’s usually only prescribed when other treatments have been unsuccessful.
  • Tramadol: This medication is used to treat moderate to severe pain, but it has a high potential for misuse. Doctors usually only prescribe it to manage pain when other treatments have been unsuccessful.
  • Methadone: A synthetic opioid, methadone is often used to treat substance use disorders.

What to do if your clinician prescribes a controlled substance

Your doctor or other healthcare professional may recommend a controlled substance to help treat an underlying health condition, like anxiety or insomnia. 

They’ll work with you to determine the appropriate dose for your needs and advise you on any side effects or risks associated with use. 

Different regions have different laws around prescription medication and other controlled substances. Familiarize yourself with the laws in your area to ensure you’re properly storing your medication.

Other common opioid and opiate substances

Some opioid and opiate substances aren’t prescribed by clinicians. They’re typically used for their pleasurable effects and have a high potential for dependence and misuse.

Common examples include:

  • Opium: This naturally occurring substance is derived from the opium poppy. It creates many different opioids, including heroin, codeine, and morphine. It’s a Schedule II controlled substance in the United States.
  • Heroin: Made from morphine, heroin often takes the form of white or brown powder or a sticky black substance. It’s a Schedule I controlled substance in the United States.
  • Lean: This is a liquid mixture of cough syrup containing codeine and soda. It’s also known as “purple drank” or “sizzurp.”
  • Carfentanil: Veterinarians use this medication to tranquilize large animals, like elephants and rhinoceroses. It’s a Schedule II controlled substance in the United States.

Common opioid and opiate prescription medications

Opiates are naturally occurring compounds. Opioids include naturally occurring compounds as well as semi-synthetic and synthetic compounds. Opiates are a subcategory of opioids.

Clinicians often prescribe opioid and opiate medications:

Opioid and opiate medications can cause many side effects, including:

The higher the dose, the more potent the medication. 

Some of the most common opioid and opiate medications include: 

  • Codeine: One of the most commonly used drugs worldwide, codeine is used to treat chronic pain. Doctors often prescribe it to people living with cancer and people with back painfibromyalgiaosteoarthritis, and headache
  • Oxycodone: This medication may be used for acute or chronic pain
  • Hydrocodone: This semi-synthetic opioid is typically used to treat severe pain and, in some cases, coughs. 
  • Oxymorphone: A highly potent opioid, oxymorphone is used to help manage severe pain. 
  • Morphine: This medication is used to manage pain in people with moderate or severe acute or chronic pain, particularly in cancer treatment and palliative care.
  • Fentanyl: A synthetic opioid, fentanyl is approximately 100 times more potent than morphine and 50 times more potent than heroin.
  • Hydromorphone: This medication is used to help manage moderate to severe acute pain and severe chronic pain. It’s very potent and has a high potential for misuse, so it’s usually only prescribed when other treatments have been unsuccessful.
  • Tramadol: This medication is used to treat moderate to severe pain, but it has a high potential for misuse. Doctors usually only prescribe it to manage pain when other treatments have been unsuccessful.
  • Methadone: A synthetic opioid, methadone is often used to treat substance use disorders.

What to do if your clinician prescribes a controlled substance

Your doctor or other healthcare professional may recommend a controlled substance to help treat an underlying health condition, like anxiety or insomnia. 

They’ll work with you to determine the appropriate dose for your needs and advise you on any side effects or risks associated with use. 

Different regions have different laws around prescription medication and other controlled substances. Familiarize yourself with the laws in your area to ensure you’re properly storing your medication.

Other common opioid and opiate substances

Some opioid and opiate substances aren’t prescribed by clinicians. They’re typically used for their pleasurable effects and have a high potential for dependence and misuse.

Common examples include:

  • Opium: This naturally occurring substance is derived from the opium poppy. It creates many different opioids, including heroin, codeine, and morphine. It’s a Schedule II controlled substance in the United States.
  • Heroin: Made from morphine, heroin often takes the form of white or brown powder or a sticky black substance. It’s a Schedule I controlled substance in the United States.
  • Lean: This is a liquid mixture of cough syrup containing codeine and soda. It’s also known as “purple drank” or “sizzurp.”
  • Carfentanil: Veterinarians use this medication to tranquilize large animals, like elephants and rhinoceroses. It’s a Schedule II controlled substance in the United States.

Understanding the potential for tolerance, dependence, and addiction

With substances like opioids, there’s always the potential for tolerance, dependence, and addiction. Although these terms are often used interchangeably, they’re not the same.

When you develop a tolerance to a substance, it becomes less effective. In time, you’ll need a higher dose to get the same effects. 

When you develop a dependence, your body begins to rely on the substance to function. It’s not related to the dosage needed to feel the substance’s effects. 

Caffeine, for example, can cause physical dependence. Some people develop a headache, have difficulty concentrating, or experience fatigue if they go more than a day or so without coffee or other sources of caffeine.

Addiction, in contrast, is a chronic dysfunction of the brain system involving memory, motivation, and reward. When it’s related to drugs, it’s sometimes referred to as a substance use disorder. It can be managed with treatment.

You can develop an addiction to a wide range of things, from over-the-counter substances — including caffeine, nicotine, and alcohol — to controlled substances.

Different substances have different thresholds for tolerance, dependence, and addiction. 

Heroin, for example, has a high potential for addiction. People who use the substance often develop a tolerance, requiring a higher dose or more frequent use to produce the same effect.

Harm reduction and safer substance use

Harm reduction refers to various strategies implemented to reduce the negative consequences associated with drug use. Safer substance use refers to using substances in a way that minimizes harm.

This might include not using a substance while alone or having a trusted friend or loved one check in on you. 

Understanding the effects of different substances, using only one substance at a time, and staying hydrated can also reduce your risk of harm.

Where to learn more or find support

If you’d like to learn more, many organizations can help. And likewise, if you’re looking for support for yourself or somebody else, there are places you can go. 

The Substance Abuse and Mental Health Services Administration (SAMHSA) offers free resources and treatment referrals. You can call the 24/7 helpline at 800-662-HELP (4357) to learn more.

The National Institute on Drug Abuse provides information and research on substances and substance use, including opioids.

The National Institute on Drug Abuse for TeenagersTrusted Source provides information and research for teenagers and young adults about substance use disorders.

The Centers for Disease Control and Prevention (CDC)Trusted Source offers information and support around opioid use. 

Narcotics Anonymous (NA) offers support and meetings for people who experience substance misuse.


Adam England lives in the United Kingdom, and his work has appeared in a number of national and international publications. When he’s not working, he’s probably listening to live music.

Melinda

Reference:

Chronic Illness · Health and Wellbeing · Infectious Diease · Lyme Disease · Medical · Men & Womens Health · Tick Borne Illnesses

Battling a devious bug for 40 years and finally finding hope

By Lowell Miller

I became a host for Borrelia burgdorferi (the microbe at the root of Lyme disease), at a time when no one knew what it was. This was over 40 years ago, in 1982, only a few years after Lyme disease was discovered.

It would be decades before the telltale symptoms of unseasonal fevers, bull’s-eye rashes, faux-arthritis, and inexplicable neurological symptoms would become more known to people and doctors living in Lyme-endemic areas.

So, I was initially untreated, giving the Lyme bacteria decades to slowly and quietly populate my body, generating few symptoms or warnings along the way.

A devious bug that evades the immune system

As we now know, Borrelia burgdorferi is a devious bug with unique abilities to evade the immune system and keep itself alive. I was healthy, athletic, and active in the world, apparently achieving a kind of multi-year balance, or truce, between the slowly and inexorably growing bacteria and my body’s natural ability to ward it off.

Meantime, Lyme silently and slowly took over, embedding itself—undetected—in my brain.

It was held at bay for most of the first two decades, but that couldn’t go on indefinitely. After a period of intense business stress, I was hit with overt and acute symptoms, as if a storm had blown into my body. Apparently, the microbes had selected my central nervous system as a cozy home, rather than the joint soft tissues that affect so many patients.

Over the next few years, I wrestled with peripheral neuropathy (sirens of pain in my feet), skin and scalp inflammation (what’s going on inside blooms on the surface), Bell’s palsy (complete with an eye patch to hide the purulent discharge), chills and buzzing throughout the body, brain fog, brain dysfunction, deep fatigue, “air hunger,” dizziness and an incipient loss of balance.

This finally crescendoed into a “cryptogenic” stroke [of unknown origin], complete with a week in hospital. It was apparently caused by a weakened small blood vessel that had been undermined by Lyme.

Ok, yes, that’s a typical litany of symptoms for post-treatment (or no-treatment) Lyme disease. As my case rolled out over a second 20 years following the first 20 years of near-dormancy, I became an inadvertent observer and participant in what one might think of as “Lymeworld.”

As a somewhat over-educated guy committed to the world of rationality and science, I began a quest for health in the allopathic or mainstream medicine side of Lymeworld.

Many docs “don’t believe” in Lyme

But as anyone familiar with Lyme knows, the involvement of conventional medical science with Lyme is a heartbreaker. Even today, many doctors don’t “believe” in Lyme (as if it were a mystic religion rather than biological fauna). They wouldn’t know even a fresh case if it bit them on the butt and left a bull’s-eye!

My first internist in my Lyme-endemic geographical area literally fired me as a patient when I tried to convince him to consider Lyme as a possible cause of my painful burning feet.

I went from doctor to doctor, specialist to specialist. I even went to one of the drafters of the Infectious Disease Society of America’s guidelines for Lyme treatment. In a single visit, he dismissed my case as no longer active, though many symptoms were still to come.

I stuck with allopathic doctors, in my heart of hearts believing that after 50 years they would soon have a cure for this bacterial disease, as medicine had cured so many other bacterial conditions.

After getting a high positive count on the Western blot test for Borrelia in my cerebral spinal fluid—not a good thing—I got hooked up with a 30-day intravenous infusion of ceftriaxone. When that finally provided only the most minimal symptom relief, the infectious disease specialist told me: “There’s nothing more we can do for you.”

Those are hard words to hear when you think you’re dying.

But I refused to accept that there was nothing more to do. I became my own advocate and researcher, a path everyone with long-term Lyme must follow—because there is so little help from others.

I’d lost a lot of mental functioning but mercifully could still do online medical research. Being retired, I had the time to turn over every stone.

Devising my own protocol

Eventually, with myself as test subject, I created a multi-pronged protocol based on in vitro studies that indeed began to work, one that grew from a foundation of credible laboratory science (if not quite yet proven in the clinic).

Many of the strange-sounding botanicals I used are in fact the basis of pharmaceuticals, and not toxic or dangerous. Their action is slower because they work to support the body’s own immunity, and they don’t have noticeable side effects. But their efficacy is clear.

I have put my experience into a book called Lyme with a Twist: A Path to Triumph Over Chronic Infection. It recounts my story and what I did to get better.  (My healing is the “twist.”)

I hope it can help people afflicted with Lyme and their loved ones escape the loneliness that Lyme can induce. It takes persistence, discipline, time, and tenacity to recover from a Borrelia infection, and it’s worth the effort. My life has taken a dramatic turn for the better, finally the days are bright again. A message for Lyme sufferers: you can overcome this, you really can.

Lowell Miller is a writer, businessman, and artist living in the Hudson Valley, New York. Click here to learn more about Lyme with a Twist: A Path to Triumph Over Chronic Infection.

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Mental Illness

What’s Up With Me

I have been battling depression for several months. I have Treatment Resistant Biplor Disorder. What that means is many medications don’t work on me, or if they do, they stop working at some point. I have been dealing with this up and down since 1992.

One of the medications I started in the Spring, which was working wonders, stopped working. I’ve been working closely with my Psychiatrist to change doses, but nothing is working. He increased the dose today on one of my medications, and I’m always positive it will work. My fingers are crossed.

I’m sure you’ve noticed I have been posting less; I can’t wait to get back to myself.

If your medications stop working, don’t abandon your medications, call your doctor and get the attitude that the next drug will work. You can’t do it alone.

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health

March Awareness Months

March is not only the beginning of Spring but it is chocked full of awareness days, weeks and months. Due to the size of the list, I only included the monthly awareness days. At the bottom of the post there is a link where you can see the full list.

Women’s History Month

National Reading Month

Disability Awareness Month

Kidney Cancer Awareness Month

Red Cross Awareness Month

Self-Injury Awareness Month

Brain injury Awareness Month

Multiple Sclerosis Awareness Month

Colorectal Cancer Awareness Month

Melinda

Reference:

https://www.goodgoodgood.co/articles/march-awareness-days-months

 

 

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health

9 Ways Stress Can Make You Sick

Stress has been linked to cardiovascular disease, depression, and even the common cold.

Stress is all around us. And while some stressors certainly can feel overwhelming, it’s important to remember that not all stress we face is bad.

The National Institutes of Health says stress is “how the body and brain respond to an external cause that may be a one-time or short-term occurrence or happen repeatedly over a long time.” 

Our body’s response to stressors can sometimes be helpful — giving us a burst of energy to get away from danger or perform well under pressure, explains Michelle Dossett, MD, PhD, MPH, an internist and an integrative medicine specialist at the University of California in Davis.

Anxiety about a doctor’s visit or a performance review at work, for example, or even something scary, like a car heading right at you, are all examples of short-term stressors. 

Long-term stressors have a different effect. “Stress that lasts years or a long time is usually the worst kind of stress,” says Bert Uchino, PhD, a professor of psychology at the University of Utah in Salt Lake City who studies stress in aging populations.

If you’re in a job you hate or you’re a caregiver for a family member with Alzheimer’s disease, for instance, says Dr. Uchino, you may suffer from high levels of chronic (or long-term) stress. That’s where your body “never receives a clear signal to return to normal.”

It’s this type of chronic stress that causes changes in the body that can do damage and contribute to disease in some cases, says Uchino. Blood tests can reveal inflammation, changes in blood pressure, and elevated levels of the stress hormone cortisol, which can all be signs of chronic stress.

9 Illnesses That Stress May Cause or Make Worse

Chronic stress certainly doesn’t help or promote healing in any disease or health problem. Here are some common illnesses that can be caused and made worse by stress.

1. Depression and Other Mental Health Conditions

The exact reason why some people experience depression and anxiety as clinical mood disorders and others do not is still unknown, according to the Centers for Disease Control and Prevention (CDC). Many factors are potentially in play, including genetic, environmental, and psychological conditions, as well as major stressful or traumatic experiences.

Research shows, however, that chronic stress left unmanaged is linked to serious mental disorders like anxiety and depression. Persistent or prolonged stress leads the body to produce certain hormones and chemicals that perpetuate an ongoing state of stress that can have adverse effects on key organs.
Around 20 to 25 percent of persons who experience major stressful events will go on to develop depression, according to a commentary and review of research published in JAMA.

2. Insomnia

An informal APA survey from 2013 on stress and sleep found links in both directions. Forty-three percent of the nearly 2,000 adults surveyed reported that stress had caused them to lie awake at night at least one time in the past month. When they didn’t sleep well, 21 percent reported feeling more stressed. Among adults with higher self-reported stress levels (8 or higher on a 10-point scale), 45 percent said they felt more stressed when they didn’t get enough sleep. Finally, adults with lower self-reported stress levels claimed they slept more hours per night on average than adults with higher self-reported stress levels, to the tune of almost an hour less sleep (6.2 versus 7.1 hours a night).

3. Cardiovascular Disease

Chronic stress has long been connected to worsened heart health outcomes. While there’s limited conclusive evidence to say that stress alone can trigger heart disease, there are quite a few ways stress contributes to it, according to a JAMA review. Part of the stress response is a faster heart rate and blood vessel constriction (or vasodilation for some skeletal muscles to help the body move in a fight or flee response), thanks to the stress hormones adrenaline, noradrenaline, and cortisol, according to research. If the body remains in this state for a long time, as in chronic stress, the heart and cardiovascular system may be damaged, according to other research.

Another means by which stress can contribute to heart disease: You might cope with your stress by eating or drinking too much, which in turn can contribute to cardiovascular disease, also according to APA.“Negative emotions and stress can contribute to a heart attack,” Dr. Dossett says.  One meta-analysis, for example, found a 50 percent increased risk of cardiovascular disease associated with high levels of work stress.

4. Common Cold

Stress can also weaken your immune function, which can make you more susceptible to infectious diseases like colds, Uchino explains. Researchers conducted an experiment in which they exposed a group of 420 volunteers to the common cold virus and then quarantined them to see if they got sick. The data revealed that participants who suffered from greater overall stress at the start of the study (measured via surveys on stressful life events, perceived stress, and mood) were more likely to become infected with a virus after exposure.

5. HIV and AIDS

Stress does not cause HIV (the virus that causes AIDS, which is sexually transmitted or passed through blood, which can happen when needles are shared). But there is some evidence that stress can worsen severity of the disease. A study of 177 HIV-positive patients found that the stress hormone cortisol (associated with chronic stress) was linked to a higher HIV viral load over four years and accelerated disease progression in people living with HIV. For the study, cortisol levels were measured via urine samples every six months.

Another review, published in 2016, concluded that while the link between stress and clinical outcomes is unclear, higher stress was linked to lower disease-fighting white blood cell counts, higher viral load, and disease worsening. Studies also linked stress with worse treatment adherence, per the review.

6. Gastrointestinal Disease

“Stress can affect gastrointestinal motility,” says Dossett, which is how food moves through your digestive system, increasing your chances of irritable bowel syndrome, inflammatory bowel conditions, gastroesophageal reflux, constipation, diarrhea, and discomfort. “All those things can be impacted by stress,” she says. Research supports this as well.

7. Chronic Pain

Some chronic pain conditions like migraine and lower back pain can be caused, triggered, or worsened when body muscles tense up. A lot of chronic low back pain is related to stress, says Dossett. “Very often it’s muscle tension and tightness that is pulling or creating strain, and then contributing to this sensation of pain.”

study published in 2021 confirmed a strong relationship between the degree of stress and chronic lower back pain. The researchers concluded that clinicians who treated patients with chronic low back pain should also evaluate a patient’s stress levels.

“Pain is inherently stressful. When the pain does not appear to be remitting or getting better, the concern regarding the pain can turn into fear, anxiety, and hopelessness,” says Joel Frank, PsyD, a psychologist in private practice in Sherman Oaks, California. 

review published in 2017 examined the overlap between chronic stress and chronic pain, finding that both conditions triggered similar responses in the brain, particularly in the hippocampus and amygdala. The researchers also noted, however, that because of the wide variety of ways humans experience chronic pain and stress, these two conditions do not always overlap.

8. Cancer

What causes cancer is a particularly challenging question to answer, says Uchino. Because most patients are diagnosed only after years of cancer cell growth, it’s difficult if not impossible to pinpoint a specific cause. And it’s likely that several factors (someone’s genes, plus an environmental trigger like smoking, air pollution, or stress, for example) contribute.

But there is some evidence in human studies that stress plays a role in the onset of cancer, Uchino says. (It’s also worth noting that some studies have found no link.)

One possible reason why stress might contribute to some cancers: Stress can activate your brain and body’s inflammatory response, as well as stimulating your adrenal glands to release stress hormones called glucocorticoids, among many other downstream effects. Some research suggests that too much of this type of inflammation from chronic stress is the connection with cancer (as well as some autoimmune diseases — see below), Dossett explains.

9. Autoimmune Conditions

“Many inflammatory conditions are exacerbated by stress, and that includes autoimmune conditions like multiple sclerosis, rheumatoid arthritislupuspsoriatic arthritis, and psoriasis,” says Dossett. A Swedish population-wide study published in the June 2018 issue of JAMA found that patients with a stress disorder were more likely to develop an autoimmune disorder (9 per 1,000 patients per year compared with 6 per 1,000 among those without stress disorders). Another extensive review on the role of stress in autoimmunity emphasized that this is a relationship that medicine often overlooks.

Summary

The good news is there are many effective ways to manage stress, says Dossett, including yoga and mindfulness. These types of interventions don’t undo or change whatever situation is causing stress (financial woes, a family argument, or a busy schedule), but they can retrain the body’s central nervous system’s response and help dial that response down if it’s been triggered.

But some conditions, such as cardiovascular disease, develop years before they are diagnosed, so more research into interventions is desperately needed, says Uchino.

All things considered, if you want help with your chronic stress or other psychological issues, it’s best to ask your doctor or a trained mental health provider to evaluate and support you based on your needs.

Melinda

Reference:

Celebrate Life · Chronic Illness · Health and Wellbeing · Men & Womens Health · Mental Illness · Moving Forward

Looking For Answers

feeling down

looking for answers

nowhere to go

no joy or fun

waiting for things to change

grey skies every day

know there is hope

the sun will shine

I am blessed

Melinda

 

Celebrate Life · Chronic Illness · Communicating · Health and Wellbeing · Men & Womens Health

How I Navigate Professional Life While Living with a Chronic Illness

When I was diagnosed with rheumatoid arthritis (RA), I was terrified that my career was over. These tips helped me adapt my work life so that I could excel. 

It started with joint pain and limited use of my left thumb. 

Then came the debilitating fatigue that was so profound I couldn’t finish my workday. After numerous tests, office visits, and misdiagnoses, I was diagnosed with RA

RA is a chronic, systemic form of arthritis that attacks the small joints in the body. This can lead to eventual joint deformity and immobility. I found myself not only grappling with what this new diagnosis meant but also fearful for my job. 

I had worked so hard to be where I was in my career. I had dedicated my entire life to working in healthcare, and I was terrified I wouldn’t be able to continue.

The challenges of working with chronic illness

Workers with chronic illness face unpredictable days and uncertain futures. They may worry about their own health, how their condition will progress, and what this might mean for the future of their employment. 

The protections afforded chronically ill workers in the United States are vague. 

To protect their health and their jobs, workers must navigate employers’ policies, which may include short-term and long-term disability plans and a patchwork of federal laws and regulations. 

2009 report by the Center for Economics and Policy Research found that among 22 well-resourced nations, the United States was the only one that did not guarantee workers paid time off for illness.

There are two main laws that provide some protection for those with chronic illness in the United States.

The Family and Medical Leave Act 

The Family and Medical Leave Act allows employees to take up to 12 weeks off each year for medical or family emergencies, but pay is not guaranteed. This law provides job security if someone needs to take time off due to illness.

The Americans With Disabilities Act 

The Americans With Disabilities Act requires employers to make reasonable adjustments for disabled workers, often in the form of additional time off.

Strategies for working while navigating chronic illness

If you are dealing with a chronic illness, here are some strategies to help you maintain and even excel at your job.

Decide who you’re going to share your diagnosis with

Sometimes an empathetic co-worker can help with productivity. Other times, no one needs to know. It’s your business. Have questions about the Americans with Disabilities Act? Check out the Job Accommodations Network. Is it against the law to discriminate against a disability. For further information on filing a complaint, check out the Equal Employment Opportunity Commission.

Make a schedule — and stick to it

If you need 90 minutes to get ready before work, 3 hours to get ready for bed, or a midday nap, plan for it. Planning appropriately, and generously, can help you optimize your time while at work. 

Optimize your body’s ability to function by listening to it.

Take breaks

Even people without brain fog or medication side effects need to take breaks every 1 to 2 hours, especially when working on a big project or working long hours.

Reject the guilt

Lose the guilt when you call in sick because you are really sick. All too often, we tie too much emotion to calling in sick. If you’re really sick, you shouldn’t be at the workplace anyway. You are human!

Find the right fit 

When thinking about having a career when you live with a chronic condition, there are certain factors to consider more seriously. Start by taking an inventory of what you need out of a working environment. Ask yourself these questions about the role or career you are contemplating:

  • How many hours are required and expected?
  • Are hours set or is the schedule flexible?
  • Is there sitting, standing, or lifting involved?
  • Are you working on a computer?
  • Is the workspace ergonomic and comfortable for your specific needs?
  • Is the space climate-controlled?
  • Is there travel involved?
  • Is it possible to take time for medical appointments?
  • Are there medical benefits? Is your current care team on this plan?

Schedule for the right shifts

Sometimes it’s not a matter of what you’re doing but when you’re doing it. If you’re not a morning person, don’t work at a coffee shop. 

Are your best hours in the afternoon and early evening? Maybe a receptionist role at a dance school is a good fit. Try to find a career where the hours fit your natural sleep schedule or the times of day when your symptoms tend to be the most manageable.

Look into self-employment options

Can you break off and start your own company? Working for yourself has its benefits. Maybe there are freelance options at companies you are considering. 

Use adaptive devices and furniture 

Upgrade your office chair, splurge on the ergonomic mouse, and adjust your monitors or other equipment to minimize strain on your joints. Here are some great tips from the Arthritis Foundation about creating an ergonomic office space.

Manage your pain as best as you can 

Bring your medications, compression gloves, braces, ice packs, heating pads, ace wraps, and anything else you may need with you to the workplace. 

If it helps you to be more productive, have it available to you throughout the day.

Check with an advocacy organization 

Advocacy organizations may offer resources that are specific to your condition. They may offer support, resources, or advocacy in your area, which may be helpful. I’d recommend starting with Chronically Capable.

Know and respect your limits

If you can’t work anymore, you can apply for Social Security disability insurance. The process is lengthy, and the payments are modest, but you automatically qualify for Medicare health insurance coverage once approved.

The bottom line

If it doesn’t work, change it. 

If you know the job you’re in now is not a good fit, it’s time for something new. Change is scary, but staying the same can be terrifying.

There are many ways to have a fulfilling career with a chronic illness. If you are open-minded and ask yourself the right questions, you can find something you love. If you love what you do, it will never feel like work.

Melinda

Reference:

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Mini Me Health Update

What made me think having two hand surgeries in a month was a good idea? I knew it wouldn’t be a walk in the park but it was much worse. The stitches are healed but the swelling next to them has not gone down. The wrist still hurts when moved in any direction and though the inside of my hands are no longer bruised they still hurt and are swollen. I have no idea what the healing time is so I’m taking it day by day. Opening up a bottle is painful so he has to jump in to help with those tasks. I even have a few number fingers.

One frustration is that David’s company sent a large basket of 6 plants, but I can’t plant them yet. I just knew I would be able to do something by now. Of course, this affects my writing because once they start hurting, I have to stop before it turns into a bad situation. I love the plants and can’t wait to plant them.

Why did I do it? It’s one you may understand. We had met our Medical Insurance deductable for the year, and if I pushed the second hand to 12/30/24, my surgery would be covered at 100%. If it were a worse surgery, I would have waited, but this made sense at the time. Sometimes, we have to make decisions for our families’ finances.

I hope you don’t find yourself in that situation if so think hard and decide which is best for your health and your family.

Take good care.

 

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Self-Care

Tips for Caring for Your Spouse with Alzheimer’s and Yourself

Medically reviewed by Susan W. Lee, DO — Written by Eleesha Lockett, MS on September 18, 2023

It can be overwhelming when a spouse receives an Alzheimer’s diagnosis, but there are many networks in place to make sure that both of you have the support you need.

Alzheimer’s disease is a progressive form of dementia ― an umbrella term for a handful of conditions that affect someone’s thinking, memory, behavior, personality, and more. Alzheimer’s is the most common type of dementia, and it affects more than 6 million people in the United States alone, according to the Alzheimer’s Association.

An Alzheimer’s diagnosis can signify the beginning of a new chapter of life for the person with the diagnosis and those close to them. And for spouses of people living with Alzheimer’s disease, their role can often shift to caretaker, which can bring its own set of challenges.

This article discusses tips for taking care of your spouse after their Alzheimer’s diagnosis, including how to take care of yourself and when it might be time to reach out for professional support.

Tips for working with their medical team

Alzheimer’s disease can eventually make it difficult for a person to perform certain tasks on their own, so it can be helpful to build a supportive medical team early on. Here are some of the medical professionals that commonly make up a medical care team for someone with Alzheimer’s:

Whether your spouse has only one or a few of these professionals on their care team, knowing that the care team is there to help is important.

As a spouse, it can be especially helpful to maintain an open line of communication with your loved one’s medical team. One of the ways that you can do this is by scheduling or sitting in on phone calls or meetings with the care team members.

Meetings and appointments are also a great time to bring up any concerns you might have ― or any goals that you and your spouse have discussed for care. And if you have any questions about anything related to your loved one’s medical care, be sure to mention those, too.

Tips for at-home Alzheimer’s care

As Alzheimer’s disease progresses through the stages and the condition’s symptoms become more severe, your loved one may require more assistance with tasks of daily living. For many people, most of this care takes place at home.

Here are two helpful tips that can help as you care for your loved one.

Accommodate Alzheimer’s and dementia needs 

Dementia can affect your spouse’s physical movements and their ability to think or use memory. If your home and lifestyle accommodate these needs, it can make day-to-day activities less stressful for both of you. 

Those with dementia may benefit from: 

  • labels and reminders for important items, like medications, or household hazards, like cleaners
  • physical accessibility aids like ramps or easy-to-open door handles 
  • a balanced diet high in veggies and other anti-inflammatory foods
  • clothes and personal care items designed for low mobility 
  • living in a neighborhood without heavy traffic and with high walkability 
  • a regular social schedule with time to see friends and family 

Ask for support

Alzheimer’s disease can affect the lives of everyone involved, which is why support can be such an important part of care. And when you’re caring for a spouse with Alzheimer’s at home, support can come in many forms: financial, social, medical, and more.

Sometimes, this support looks like reaching out to a friend or family member for a little extra help with daily tasks like shopping and cooking. Or it might look like touching base with your spouse’s caseworker to sign up for financial assistance programs.

Either way, one of the great ways to care for yourself and your spouse is to reach out and ask for support in whatever area you might need.

Hire professional help

Someone with moderate to severe Alzheimer’s disease may find everyday tasks like dressing themselves, going to the bathroom, or even eating by themselves to be difficult. At this stage in the disease, caregiving can be ongoing.

As a caregiver to a spouse with Alzheimer’s, it can be difficult to keep up with their needs and your own ― which is where professional support comes in. Some of the most common options for caregiving support include home care aides, home healthcare aides, and respite services, to name a few.

Whether you’re looking for support for just a few hours or a longer time, it may help to take advantage of the help that’s around you. 

The right time to consider professional help

When you’re the caretaker or someone close to you, it can be difficult to imagine entrusting that care to anyone else ― especially if it takes place outside the comfort of your own home.

However, sometimes your loved one might need more care than you can feasibly offer them, especially in the late stages of their disease. And toward the end of their life, some professionals can help navigate you both through the final stages of their journey.

While people can experience dementia differently, in some cases, the condition can cause episodes of anger, verbal aggression, or sometimes physical violence. Professional healthcare workers can help to ensure everyone’s safety and dignity. 

If you feel that it might be time to explore professional caregiver or end-of-life support for your loved one, consider reaching out to their doctor to discuss the options available to you.

Tips for your mental health

Spouses and partners of people living with Alzheimer’s disease tend to experience increased stress, anxiety, and depression. In fact, one 2020 study found that people whose spouses had Alzheimer’s disease and related dementias had a 30% increase in depressive symptoms than those without spouses with these conditions.

Here are a few tips you can follow to take care of your health while caring for a spouse with Alzheimer’s:

  • Take care of yourself: It can be hard to support your emotional health if you don’t support your physical health. Getting enough sleep, eating a balanced diet, and frequently moving your body are just a few ways you can take care of your body and mind.
  • Practice reducing your stress: Full-time caretaking can be stressful, so it’s important to set aside some time for activities that can reduce your stress. Not only can this help reduce your stress and improve your health, but it’ll also allow you to take better care of your loved one.
  • Take time to enjoy hobbies: As a caregiver, you may notice that your own hobbies and activities can fall by the wayside as you focus on your spouse. But one way you can nurture yourself during this time is by reconnecting with the hobbies and activities you enjoy ― alone or with friends.
  • Connect with your support: Speaking of connecting with others, no one should have to navigate life after a diagnosis of Alzheimer’s disease alone. Whether you connect with friends, support groups, or mental health professionals, try to lean on your support system when you need it.
  • Take vacations: This could be a trip with friends or a few days solo at a bed-and-breakfast ― but everyone deserves a little time to focus on themselves and relax.

Takeaway

It’s common for Alzheimer’s caregivers to feel many emotions about their loved one’s diagnosis ― sadness, grief, frustration, and even anger. Sometimes, you can work through these feelings alone, but other times, it can be difficult to work through them without the right support.

If you feel like you could use support navigating through this difficult time, whether physical, financial, emotional, or otherwise, consider reaching out to the professionals around you who can help.

My blogging friend Mary Doyle from Midwest Mary learned firsthand about the journey of caring for a loved one with Alzheimer’s when her husband was diagnosed. She has written three books about her experience with Alzheimer’s. Mary is generous and uplifting. Please stop by her blog and say hello. 

Inspired Caregiving. Weekly Morale Boosters

 The Alzheimer’s Spouse

Navigating Alzheimer’s.12 Truths about Caring for Your Loved One

Check out all of the books Mary has written, here.

Melinda

Reference:

https://www.healthline.com/health/alzheimers/how-to-cope-with-alzheimers-spouse#takeaway

Celebrate Life · Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health · Moving Forward

6 Tips for Navigating the Job Search with Chronic Illness

by Kathy Reagan Young

Fact Checked by: Jennifer Chesak, MSJ

With careful planning and thoughtful strategies, you can find fulfilling employment opportunities that accommodate your unique needs.

Searching for a job is a job in itself. Add chronic illness to that mix, and the process becomes even more complex. The unpredictable nature of chronic conditions makes it important to have a plan for dealing with what can be unique hurdles during the job search. 

I’ve been there, done that. That’s why I’m offering my practical tips and insights to help you navigate the job search successfully.

1. Set realistic goals

Before diving into the job search, it’s essential to assess your limitations, strengths, and preferences. Consider the impact of your condition on your daily life and energy levels. 

Do you tend to “fade” as the day goes on? Setting hours to reflect and embrace this truth will be helpful. Are you unable to lift, walk long distances, or hold a phone? Do your hands get tired easily? Only you can know yourself. 

Self-awareness will guide you to set realistic goals and find positions that align with your abilities. And it will set you up for success in the long run. 

“Disability is a matter of perception. If you can do just one thing well, you’re needed by someone.”

— Martina Navratilova

2. Research potential employers

Identify industries and roles that accommodate flexible schedules, remote work options, and supportive work environments. Look for companies with a strong commitment to diversity and inclusion, as they may offer more accommodations for people living with chronic illness. 

So, how do you find this information? 

Research. I like to check out companies on LinkedIn. It’s a great place to learn about a company’s culture and the people who work there. You can also learn a lot from anonymous postings of current and former employees on Glass Door.

3. Weigh the decision to disclose your condition

The decision to disclose your chronic illness is a personal one. It may depend on the nature of your condition and the specific job requirements. Legally, employers cannot discriminate against people living with disabilities. 

But let’s be honest: Discrimination is real. Doing what we can to control the narrative is a smart decision.

I used to advocate for everyone to be forthcoming — loud and proud, so to speak. “Share the real you,” I’d say. “Having to keep a secret is exhausting and stressful. Be authentically who you are.” 

Then, multiple people shared with me their stories of discrimination and ableism. So, I no longer suggest that. 

Now, I recommend securing the job first and disclosing your condition strategically if you decide to do so. Share only the most job-relevant information and nothing more. Focus on your skills and qualifications first, then discuss any necessary accommodations that will allow you to perform at your highest level. 

And document, document, document. If you feel you’re being discriminated against at any point in the hiring stage or beyond, you’ll need documentation to substantiate your claims.

4. Utilize job search platforms and networks

Explore online job search platforms and networks that cater to individuals with disabilities or chronic illnesses. Many websites feature job listings from companies actively seeking to hire people with diverse abilities, providing a supportive environment for job seekers with chronic illnesses. 

Leverage your personal and professional networks. Tell friends, family, and colleagues about your job search and ask for recommendations or introductions. 

Maybe you post on your favorite social network (Facebook, Instagram, etc) or email several friends and family members to inform them of your job search and ask for any advice. Networking opens doors to opportunities that may not be advertised through traditional channels. 

5. Emphasize transferable skills

Craft a compelling resume and cover letter that emphasize your transferable skills and accomplishments. Focus on experiences that showcase your ability to overcome challenges and achieve results. 

Maybe a team member at a former job of yours resigned unexpectedly in the middle of a big project with a deadline looming. Instead of panicking, you assessed the skills of other team members to see how this deficit could be filled by existing talent, and you hired temporary outside help to fill in the remaining gaps to complete the project well and on time. 

Sharing how you’ve overcome challenges in the past can help potential employers see the value you bring to the table, regardless of any limitations posed by your chronic illness.

Consider creating a skills-based resume that emphasizes your abilities and achievements rather than focusing on a chronological work history. This format allows you to showcase your skills prominently, capturing the attention of employers and demonstrating your suitability for the position. 

Just search “skills-based resume” to see formatting examples.

6. Prepare for interviews

Job interviews can be nerve-wracking, and sometimes we can face additional stressors. Take proactive steps to prepare for interviews by researching common interview questions and writing down your responses. 

Consider practicing with a friend or family member to build confidence and refine your answers.

Develop a strategy for addressing potential gaps in your employment history due to health-related reasons, focusing on how you’ve maintained or improved your skills during such periods. For example: 

During (specific timeframe), I was dealing with health challenges that taught me valuable lessons in resilience and adaptability. I remained active in professional networking groups, participated in online discussions, and did self-directed learning. This not only kept me informed about industry developments but also allowed me to exchange ideas with professionals in the field.

Navigating a job search with a chronic illness can be challenging, but with careful planning and thoughtful strategies, you can find fulfilling opportunities that accommodate your unique needs.

Online job search platforms

Online resources

  • Disability:IN: A global organization that promotes the inclusion of people with disabilities in the workplace. Their website offers resources, webinars, and job listings from inclusive employers.
  • Work Without Limits: A resource center that provides tools and information to support individuals with disabilities in finding employment, including job fairs, networking events, and career development resources.
  • My Plus: Focuses on supporting students and professionals with disabilities, offering a range of resources, including a job board, webinars, and advice for navigating the job market.
  • DisabledPerson: An inclusive job board connecting individuals with disabilities to employers actively seeking to diversify their workforce.
  • CareerOneStop: Workers with disabilities: A comprehensive resource by the U.S. Department of Labor providing information on job accommodations, career planning, and employment services for individuals with disabilities.
  • Understood: A platform offering resources and support for individuals with learning and attention issues. Their employment section provides guidance on job searching and workplace accommodations.

Book recommendations

I have Bipolar Disorder and made the decision to not tell my employer exactly what health issue I had and I did not discuss it until my health forced me to take time off. If you have a physical limitation that creates a different situation and one where you will need to tell them upfront. Be leary, and keep documentation, the reality is not all employers are ethical and respect EEOC laws. That’s the cynic in me.

Melinda

Reference:

Celebrate Life · Chronic Illness · Health and Wellbeing · Men & Womens Health · Mental Health · Survivor

Blogger Highlight-Ephemeral Encounters

Thank you for all the great feedback on the Blogger Highlight series, I’ve enjoyed meeting each blogger and sharing their blog with you. This week we highlight Ephemeral Encounters. We have not followed each other for long, but I had to follow after reading a few poems. Maggie is kind and giving; her personality shines through her words. 

Ephemeral Encounters

I am Maggie Watson, an Indie Poet and Author from Scotland.
My poetry journey began at the start of the pandemic in 2020.
At that point, I had no idea it would then become such a big part of my life.
We can all agree that those years were very difficult, and I found the "lockdowns" particularly hard.
So I began putting pen to paper, merely to get my sense of isolation and frustration down on paper.
Fast forward to December 2020 and "The Madness of Corona" was published (by a publishing house).

Her lasted book is called, Pieces of Me, A collection of poems.

I am pleased to announce that my New Collection of Poetry is now available to pre-order (Kindle Version) on Amazon

The Paperback Edition will be released on 7/10/2025.

I asked Maggie a couple of questions:

M. You started writing in 2020, how did you know it was your life’s passion?

M.  At that point I had no idea that writing would become my passion. Covid had just raised its ugly head. I felt very isolated at the time, so I began putting my thoughts down on paper. Living on my own with the uncertainty of what was going on in the outside world was horrendous, my mental health was not great at that time (I am prone to low mood). I could not have envisaged the huge part it would then become in my life, but I am so very happy that I did pick up that pen!

M.  You have been published many times, what is your favorite piece of work and why?

M.  My favourite piece is “The Mask”.
It was in my first Collection, “The Madness of Corona”, which was published by a publishing house.
The Mask really conveys what people with depression sometimes do.
We wear a mask because there are still many people who don’t get it.
People also wear masks to hide their pain (the wounds that no one sees).
 
Another favorite poem of Maggie’s is In the Shadow of My Pen, it’s a “fire in your belly ” poem, one which I hope anyone reading would draw strength from.

Child of Mine is one of my favorite poems. 

Be sure to pull up a chair and read through her archives, it will be time well spent.  

Melinda

Looking for the Light

 

Chronic Illness · Health and Wellbeing · Men & Womens Health · Mental Health

I’m Agoraphobic

My agoraphobia started a year or two before the pandemic. It was frustrating but my therapist helped on the journey. It started with intrusive thoughts that people were chasing me in their car and planning to hurt me by driving me off the road. These thoughts lasted for a long time. These are not dreams, they came during the day.

It’s possible the trigger was set off by me driving to a doctor I had seen for 15 years and getting lost. I had left my cell phone at home, so it was very stressful because I didn’t know the area well and had problems getting back to the freeway. Is this connected? I don’t know. 

Then dreams started that were centered around my car. I couldn’t find the right key, I rented a car and when I looked for it I didn’t know how to find the car. I was carrying a huge keychain full of keys and I couldn’t find the right key and different dreams continued. The dreams came often in the beginning. The latest thought is someone is following me after going to the bank. 

I thought it might be Agoraphobia but I thought it was someone who could not leave the house. When I started reading about Agoraphobia, I was shocked by the different types. I found my symptoms listed and now have an answer.

One treatment option is EMDR Sessions. It works for many people but some doctors do not recommend it for people with Bipolar Disorder. I’ve chosen not to have the treatments. 

For now, I only drive within a 3-4-mile radius of the house, making me less independent. I don’t focus on Agoraphobia, it’s when I make plans to leave the house that the feelings kick in and dictate what I do next.

Melinda

Repost

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Mental Illness

Bipolar and Binge Eating: How I Broke Free

By Sasha Kildare

Medically Reviewed by Allison Young, MD

Last Updated: 5 Nov 2024

I tamed my intense cravings and calmed my binge-eating habits to help keep my diet — and my bipolar moods — in balance.

My co-worker carefully extricates her lunch from the toaster oven. The slice of leftover pizza, cheese dripping over its edges, smells divine. She observes me plopping frozen spinach, grilled chicken, and a splash of tomato sauce into a microwave-safe casserole dish and says, “You’re so good. I wish I could eat like that.”

“It’s easy to be good when you’re afraid of passing out over your keyboard from low blood sugar,” I reply to excuse my freakishly healthful lunch. I explained to her that maintaining a good diet keeps my moods in check and would go beyond the bounds of casual break-room small talk.

The steadier my blood sugar levels throughout the day, the steadier my energy, the more alert I feel, the less anxiety I experience, and the more productive I am. The more alert and productive I am, the better I keep bipolar depression at bay.

Work festivities can be a tad awkward, though. I’ve become adept at resisting temptation when someone brings in a plate of brownies, despite the bewildered urging when I refuse. “You gotta try this. It’s Aunt Bessie’s recipe.” Or, “C’mon, who doesn’t like chocolate?” I try to explain, “I love chocolate. It just doesn’t love me.”

Binge Eating and Bipolar Disorder

I used to be a binge eater, regularly losing and gaining as much as 50 pounds. After getting home from work, I could easily inhale ice cream by the pint or a sleeve of chocolate chip cookies dipped in milk — or both. The sugar was like a tranquilizer for my anxious feelings.

Several months and several dress sizes later, I would restrict my eating to lose the excess weight. I cut and cut and cut calories until I was down to diet soda, French fries, and not much else. But crash dieting crashed me into hypomania. By the time I fit into my skinny jeans, my judgment would be even skimpier.

I finally gave up the hard stuff — chocolate, desserts, anything with white flour — when I was trying to get pregnant. (Who knew that wide swings in weight can throw the reproductive hormones off kilter?) Two kids and an education in nutrition later, my weight fluctuates by a more moderate 10 pounds or so. And as long as I don’t eat sugar, I don’t crave it.

How Stress and Fatigue Cause Carbohydrate Cravings

If only it were just sugar. If I’m not careful, bagels and white bread can just as easily send me to Bingeland.

Stress and fatigue fuel our hunger for carbohydrate-heavy treats. There’s a connection between carbs and the brain’s production of serotonin, the “feel-good” hormone — although trying to piece together exactly how this works makes me remember why I flunked organic chemistry.

Here’s an easier tidbit from bio class: The body turns any carb into glucose, a.k.a. blood sugar, to use as energy. The more quickly carbs “dissolve,” the more quickly glucose gets dumped into the bloodstream. Blood sugar levels spike, and what goes up must come down — leading to lethargy and low mood.

In self-defense, I’ve become a student of the glycemic index. Originally developed to help people with diabetes keep their blood sugar in balance, the glycemic index tells you how quickly glucose levels rise after eating a particular food.

White bread, alas, ranks high on the glycemic index. As a compromise, I end my day with a slice of whole wheat bread slathered with crunchy peanut butter and a smidgeon of strawberry jam.

Finding the Right Eating Habits for Bipolar Mood Management

I live in a rush zone from 5:30 a.m. until I chase my daughter into bed at 9:30 p.m. I chow down a protein bar and travel mug of cold water while driving to the office. I write bits of stories and articles in my head while working out. The drive home doubles as a time to make business and social calls.

PB&J on whole wheat unwinds me. It quells my anxiety about everything I need to accomplish before bedtime, everything I am not going to accomplish before bedtime, and everyone I will let down by not getting to every “to do.”

Of course, it’s possible to find that relaxed, comforted feeling through journaling, writing a gratitude list, meditating, stretching, or walking around the block. When I’m tired, though, it’s much easier to use food to chase away my anxiety. And if I actually kept off that extra 10 pounds, what would I have to whine about?


Maybe that’s the real question I need to ask myself: What am I really hungry for? Understanding my needs and making small adjustments can help me balance eating habits and self-care, supporting a healthier, more stable mood over time.

UPDATED: Originally printed as “My Battle of the Binge”, Winter 2014

I had problems with binge eating when I was younger and always tied it to stress. Now I have a different perspective to mull about.

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health

January Awareness Months & Days

National Blood Donor Month

Cervical Health Awareness Month

Glaucoma Awareness Month

National Eye Care Month

National Stalking Awareness Month

Self-Love Month

Walk Your Dog Month

New Year’s Day – January 1

Martin Luther King Jr. Day  3rd Monday of January

National Human Trafficking Awareness Day – January 11

International Holocaust Remembrance Day 1/27/25

NASA Day of Remembrance – January 27

If you would like to see the complete list, click here.

Thank you for the positive feedback on this monthly post.

Melinda

Reference:

https://www.goodgoodgood.co/articles/january-awareness-days-months

Celebrate Life · Chronic Illness · Family · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Looking For Joy In 2025

2024 has been a difficult year for David and me health-wise. There are still unresolved health issues from my visit to The Mayo Clinic for which I have several specialists to see in 2025. The most difficult has been that David was diagnosed with three types of cancer this year. The first was CLL Leukemia, Skin Cancer, and most recently Small Cell Lymphocytic Lymphoma. It is common for Skin Cancer to follow Leukemia but the Lymphoma was quite a surprise. Leukemia and Lymphoma are two different cancers and very alarming to me. We’re still waiting to see if radiation treatment is the next step.

We don’t focus on it or the future, we rarely talk about it except after doctor appointments. We focus on the blessings we have and live life for tomorrow.

We know God has a plan for each of us and we are cool with his plan.

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Illness · Self-Care

Taking Medication: A Small Price to Pay

by Elizabeth Drucker

Medically Reviewed by: Debra Rose Wilson, Ph.D., MSN, R.N., IBCLC, AHN-BC, CHT

Taking medication every day can be tiring and frustrating. But when it comes to living a healthy life, accepting this support is an invaluable step.

When I was 14 years old, sobbing uncontrollably in classes and during cheerleading practice, a psychiatrist scribbled out a prescription for Prozac. I paced through the aisles of the pharmacy, flipping through copies of Vogue and smelling the bottles of shampoo while I waited for the pharmacist to spill the capsules into a bottle. 

I knew something was “wrong” with me, but I wasn’t convinced swallowing these pills could make me feel better. I did know I was sad — so sad that it was agonizing to tumble out of my bed and make my way to the bus stop.

Finding what worked for me

Throughout high school, I cycled through the offices of many different psychiatrists. I was always looking for the next pill that could fix whatever was wrong with me. 

After I got over the initial shock of needing to rely on psychiatric medications, I started to see these pills as hopeful objects that would bring me some relief.

Each new psychiatrist and each new medication change brought new hope that I would get better. The doctors were encouraged that we would find the right medication and that my life would become more manageable. 

Then, during my senior year of high school, I was diagnosed with bipolar disorder. And with that came lithium, pills that are amazing at evening out my moods. So, now I live the lithium lifestyle. 

I have to remain vigilant about what my body is telling me because if the level of lithium in my blood gets high enough, I could get very sick. I’ve spent nights sleeping in emergency room beds because the lithium level became toxic and I needed fluids to rehydrate me. 

Even still, there’s no denying that this medication has saved my life.

It’s rescued me from some of the deepest, darkest depressions — those times when I felt so broken and raw that I was not sure if I could go on. Lithium has sucked the depression out of my marrow and allowed me to have more of a life. 

It’s clear that I need these chemicals to function. And I have a feeling that I will be taking lithium for a very long time, maybe even for the rest of my life. 

But I can handle that. I am just grateful that lithium exists, that I can swallow a few capsules and be back on track to regaining myself.

The ups and downs

However, despite its success, there are some nights when I’m so tired that I’m tempted to go to bed without taking my pills. I don’t want to be reminded that I’m sick and that I’m different from all of my friends. I doubt they’re reliant on pills just to survive. 

But then, I see flashbacks: me pacing through the corridors of the psych ward; me standing at the medication counter while nurses pour tablets and capsules into little cups; me rocking back and forth on my bed, hoping that I can somehow get some relief from my depression. 

So I stumble to the bathroom sink, fill up a large glass of water, and then bring it to my bed. I spill my cocktail of tablets and capsules onto my comforter and start taking them. 

I remind myself that these pills are a collection of chemicals that allow me to function, to get through the day without being interrupted by the manic or depressive symptoms of my bipolar disorder.

Taking pills has become a part of every day. And, for me, every day begins and ends the same way: with me taking the pills my psychiatrist has prescribed to keep my bipolar illness at bay. 

Accepting the downsides 

I think you know by now that, for me, taking my pills is not optional. The consequences are very real and very scary. 

My medication keeps the depression at bay. It keeps me on the other side of that locked psych ward door, a place I don’t want to be. My medication allows me to live just like those who don’t need medication — so I can go to college and even get through grad school.

Even though I know all of this, it doesn’t mean I’m thrilled that I’ll be relying on psychiatric medication for the rest of my life. Of course, I worry about the long-term consequences on my body.

For example, I know that lithium can be hard on the kidneys. The medication that does so much for my emotional state can also make me nauseous with trembling hands. And it’s very embarrassing when I’m at a restaurant with friends and my hands tremble every time I reach over to put some food on my plate. 

Someone very close to me passed away because he refused to be treated for his own mood disorder. I think of him when I’m reluctant to take my pills. 

I know this person in my life didn’t want to take psychiatric medication because of the stigma of mental illness. I feel it myself when I go to the pharmacy to pick up my lithium. I still whisper the names of the medications I’m picking up so nobody will think I’m “crazy.” 

The bottom line

Psychiatric medications are effective. I don’t care if I have to experience side effects because anything is better than depression to me. My pills have given me my life back. 

I can’t say it’s easy to manage those side effects when they have me sitting in the emergency room getting fluids, but I don’t want to spend my days in bed, crying and isolated.

Depression is one of the most painful things I’ve ever gone through and I’m so grateful my medications exist to bring me back to the real world. I will keep taking them because I want to feel better, and this is how I can.

The article looks at a person’s life and how they manage their illness and medication. I can say without a doubt, that taking your medication as prescribed is the best way to manage your illness. 

Melinda

Reference:

Blogging · Celebrate Life · Chronic Illness · Health and Wellbeing · Men & Womens Health · Mental Illness

A Day In The Life Of A Latvian Mom Interviews Me

Ilze and I have become fast friends. We share many of the same interests and she’s also very wise. Her posts always entertain or teach me something new. Please overlook the mistake I made when I said “Most of my post…..” I don’t write for sympathy. Thank you Ilze for digging deep and sharing with the community.

#5: From Followers to Friends – Melinda from lookingforthelight.blog

I’m so happy to have Melinda from Looking for the Light as a wonderful supporter in the blogging community. Although we haven’t known each other for long, her kindness, warmth, and genuine encouragement always shine through in her thoughtful comments. If you haven’t already, I highly recommend visiting her blog, where she shares beautiful insights … Continue

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health

December Awareness Months & Days

Click on the link at the bottom of the post to see the entire list for December.

Awareness Months

HIV/AIDS Awareness Month

National Drunk & Drugged Driving (3D) Prevention Month

National Human Rights Month

Safe Toys and Gifts Month

Seasonal Affective Disorder Awareness Month

Universal Human Rights Month

World Twin To Twin Transfusion Syndrome Awareness Month

Worldwide Food Service Safety Month

Awareness Days

Rosa Parks Bus Seat Refusal Anniversary – December 1

World AIDS Day – December 1

Giving Tuesday – 1st Tuesday after Thanksgiving

International Day of Persons with Disabilities – December 3

International Volunteer Day – December 5

Human Rights Day – December 10

International Animal Rights Day – December 10

Bill of Rights Day – December 15

One important awareness day for me is Giving Tuesday when many charities have donors who will double or triple your donation. I make all of my yearly donations on that day to help the money stretch further.

Melinda

Reference:

https://www.goodgoodgood.co/articles/december-awareness-days-months

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Illness

2024 Must-Read Books on Bipolar Disorder

By Natalia Lusinski
Medically Reviewed by
Seth J. Gillihan, PhD
Last Updated: 22 Oct 2024
Reading memoirs and nonfiction about bipolar disorder helps connect with those living with this brain-based condition, whether you have it or love someone who does. By Natalia Lusinski
When it comes to bipolar disorder, sometimes it may be difficult for loved ones to understand what the person is experiencing. While they often view it through the lens of caregiving, they may not grasp the individual’s personal perspective.That’s where these books come in. They’ll help you feel less alone, whether you’re the one who has bipolar or know someone who does, like a friend, your partner, a parent, a coworker, a neighbor, a child, or anyone else in your social circle.We rounded up these 10 must-read books on bipolar from this year, perfect for personal reading or as a thoughtful gift for someone who could benefit from them.
1. Daddy’s Magical Rainbow – Having a Parent With Bipolar DisorderWhen a parent has bipolar disorder, it can be challenging for a child to understand the emotional ups and downs that come with the mental health condition. In Daddy’s Magical Rainbow – Having a Parent With Bipolar Disorder, author Sarah P. Foster aims to help children ages 4 to 11 better understand bipolar, though it’s also intended for readers of all ages.The story follows a little girl whose dad has bipolar disorder. She learns that “it’s the bipolar talking” — helping her realize it’s not her “fault” when her dad acts in certain ways, whether he’s angry, quiet, manic, or experiencing other emotions. Off the page, Foster is a special education teacher with 30 years of experience working with children. She also grew up in a home environment that was affected by mental health challenges. The illustrations add a lot of heart to the story and come with a unique touch. The illustrator, Lucie Pedersen, is only 10 years old, which likely explains why her artwork so naturally draws readers into the narrative. 
2. An Impossible Life: A True Story of Hope and Mental Illness An Impossible Life: A True Story of Hope and Mental Illness, by Rachael Siddoway and Sonja Wasden, is an award-winning bestseller highlighting how bipolar disorder can affect anyone — it does not discriminate. The book follows Wasden’s journey after being admitted to a psychiatric hospital — against her will — by her husband and father when she was 35 years old. On the outside, her life seemed idyllic: She was a mother of three living in the suburbs with her successful husband. However, behind closed doors, she was battling with intense symptoms of bipolar disorder, including manic and depressive episodes, as well as delusions. The book offers hope to those living with bipolar or those who know someone affected by it. Since her experience, Wasden has become a dedicated mental health advocate. Oprah Winfrey even participated in one of her virtual mental health book club discussions to help inspire female inmates at the world’s largest women’s prison.
3. The Bipolar Therapist: A Journey From Madness to Love and Meaning
The Bipolar Therapist: A Journey From Madness to Love and Meaning was written by Marcia Naomi Berger, LCSW. In this memoir, Berger is open and honest about her time spent in a psychiatric ward, particularly from the unique perspective of being a therapist who became a patient in the psych ward. Like anyone else, she had to confront the stigma and shameassociated with bipolar disorder. Through her story, we learn how this experience ultimately made her a more compassionate therapist. 
“Marcia Naomi Berger’s first-person account of her journey and transformation is courageous,” states Francis G. Lu, MD, professor emeritus in the department of psychiatry and behavioral sciences at UC Davis, in the editorial reviews. “As she writes, ‘Someone with mental illness is much bigger and more complex than their diagnosis.’”

4. Hogbook and Lazer Eyes 
Hogbook and Lazer Eyes is a graphic novel memoir by writer, actor, and stand-up comedian Maria Bamford and her husband, artist Scott Marvel Cassidy. The story is based on their unique courtship — told from the point of view of their pugs — and how they met on the dating site OkCupid, using the names “Hogbook” and “Lazer Eyes.” 
As it turns out, they had more in common than they initially thought: They both have bipolar 2 disorder. Whether you have bipolar or have been (or are) in a relationship with someone who does this heartwarming and funny book is sure to resonate.

5. Devout: A Memoir of Doubt
In Devout: A Memoir of Doubt, author Anna Gazmarian not only reflects on living with bipolar 2 disorder but also her struggles with spirituality. Raised in an evangelical household, Bazmarian’s 2011 diagnosis at age 18 led to a crisis of faith as well. Now 31 and living in Durham, North Carolina, where she works as an outreach coordinator for The Sun Magazine, a national literary publication, Gazmarian spoke with bpHope about her memoir earlier this year. “The longer I’ve had my diagnosis, and the longer I’ve sought treatment, the more I’ve learned to cope with having it be only part of my identity,” Gazmarian says, adding that opening up about her bipolar diagnosis and its impact has been a healing process. She hopes her story will inspire others. 

6. Bipolar, Not So Much: Understanding Your Mood Swings and Depression
Whether someone is newly diagnosed with bipolar disorder or has been living with the diagnosis for some time, this book, Bipolar, Not So Much: Understanding Your Mood Swings and Depression, offers valuable insights. Written by Chris Aiken, MD, a psychiatrist and assistant professor at New York University and Wake Forest medical schools, along with James Phelps, MD, emeritus psychiatrist, Samaritan Mental Health in Corvallis, Oregon, the book draws on their medical expertise to help readers understand the complexities of depressionand how to manage and cope with it. The authors also emphasize that bipolar disorder is nota one-size-fits-all diagnosis. They explore various treatment approaches, acknowledging that different methods work for different people. 

7. Be There: My Lived Experience With My Sister’s Bipolar Disorder
Be There: My Lived Experience With My Sister’s Bipolar Disorder tells the story of author Linsey Willis, the younger sibling and caregiver to her sister Betsy, who has bipolar disorder. Betsy’s diagnosis at 21, despite being an Ivy League-educated woman, came as a shock and drastically changed the course of her life. The book not only draws readers into Linsey and Betsy’s experiences but also resonates with anyone who has a sibling or loved one living with bipolar. At its core, the story carries an important message of resilience and hope

8. Living Well With Bipolar Disorder: Practical Strategies for Improving Your Daily Life
In Living Well With Bipolar Disorder: Practical Strategies for Improving Your Daily LifeDavid J. Miklowitz, MD, professor of psychology at the UCLA Semel Institute, offers practical strategies for managing life with bipolar disorder. He addresses common stressors to avoid, how to cope when they arise, and ways to handle mood swings effectively. 
The book covers a wide range of topics, from managing depression, mania, anxiety, and irritability to navigating daily routines such as sleep, relationships, and work. It also explores maintaining physical health, managing substance use, and making the most of medicationsand therapy for long-term mood stability.
“Dr. Miklowitz, an acclaimed authority in the treatment of mood disorders, provides clear and valuable suggestions for how to navigate a seemingly unnavigable condition,” Kay Redfield Jamison, PhD, professor of psychiatry and behavioral science at Johns Hopkins University School of Medicine, writes in an editorial review. 

9. Crazy… Or Something Else Entirely: A (Mostly) Secret Journey With Bipolar Disorder 
Jillian Dumond’s Crazy… Or Something Else Entirely: A (Mostly) Secret Journey With Bipolar Disorder is a heartfelt and humorous memoir that offers a candid look at how bipolar disorder has impacted her life, particularly in areas like dating and relationships. Written in a conversational style, Dumond invites readers into her world, sharing personal experiences that are both relatable and engaging. 
What makes the book even more compelling are the contributions from her family and friends, offering insights into bipolar disorder from a caregiver’s perspective. Through these multiple viewpoints, the book not only provides a deeper understanding of living with bipolar but also highlights the importance of support and empathy from loved ones.

10. The Social Rhythm Therapy Workbook for Bipolar Disorder
The Social Rhythm Therapy Workbook for Bipolar Disorder is written by Holly Swartz, MD, professor of psychiatry at the University of Pittsburgh, with a foreword by Ellen Frank, PhD, distinguished professor emeritus at the same university. In this workbook, Dr. Swartz explains how social rhythm therapy can help individuals with bipolar disorder reset their internal body clock, or circadian rhythm. By stabilizing daily routines and rhythms, this approach can reduce bipolar symptoms, lower stress, and support better mood management. The book offers practical tools for applying these strategies in everyday life to promote emotional stability

ABOUT THE AUTHOR

Natalia Lusinski
Natalia Lusinski is an editor and writer for bpHope and a wellness and lifestyle writer and editor, covering everything from health to travel to personal finance topics. Her work can be seen in several publications, including Business InsiderYahooForbesInsight Timer, and the L.A. Times. She spent several years living abroad and is currently working on a travel/grief memoir. (If anyone happens to be in Portugal, she’d love a pastel de nata.) Back in L.A., she runs a popular pizza Meetup and is still trying to find her favorite slice.

Her list looks very interesting and helpful.

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health

Blogger Highlight-SOLONGASICANBREATHE

Thank you for all the great feedback on the Blogger Highlight series, I’ve enjoyed meeting each blogger and sharing their site with you. This week we highlight the blog Solongasicanbreath. I’ve followed Marie for a short time but we connected straight away. She has ME which is a severe chronic illness and she graciously answered a question about the illness for me. Interestingly enough we have the same illness, ME and CFS are the same just different names. It sounds like CFS is more often used in America whereas the UK uses ME. I know the struggle and mine is not severe, I admire Marie’s outlook on life with the struggle she has. 

SOLONGASICANBREATHE

In late 2011 ME – Myalgic Encephalomyelitis – entered my world after a viral infection and while I lost my full time job in Accounting, my hobbies (which included hot yoga, running with my local athletics club and horse riding), and everything that once defined me, I gained a swathe of space and time.

Since then, I’ve used this time to observe this odd world of ours, amend how I view the term “living” and dabble in writing and tree planting (my friends, husband and I have planted about 100 mainly native trees in our 3/4 acre garden).

I’m passionate about our environment and live as sustainably as I can. We grow a lot of our own vegetables while buying into consumerism as little as possible.

My poems, short stories and non-fiction can be found in the books Poems from Conflicted Hearts, Observant Observings, magazines and journals such as Slant, Caustic Frolic, ROPES, JuxtaProse, online resources Glossy News, Every Writer and newspapers Irish Examiner and Irish Independent.

From 2014 to 2021, I wrote a regular column for the magazine Athenry News and Views.

One very important post she wrote is about having ME its called Losing Myself. It’s a long read but worth every minute. 

WHAT IS ME?

As per the CDC, ME is a serious and often long-lasting illness that keeps people from doing their usual activities.

It makes physical and mental exertion difficult.

Symptoms include trouble thinking, severe tiredness and other symptoms.

There is no known cause or cure. Care usually means treating the symptoms that most affect a person’s life.

HOW TO HELP PATIENTS WITH ME IN IRELAND?

There are many organisations available to patients and their carers.

Irish ME/CFS Association: https://irishmecfs.org/

The Irish ME Trust: https://www.imet.ie/

ME Advocates Ireland: https://meadvocatesireland.blogspot.com/

Patients with Severe ME  remain bedridden and need help with basic activities including nutrition and hydration.

Questions I asked

M.  You’ve published many articles, how did you get involved in writing for magazines?

M.  Like everything in life, by accident! In early 2014 after having some poems I submit to an anthology published, the publisher of the anthology asked if I’d enough material for a solo poetry book, which I did. And after that book Observant Observings was published and some articles appeared in local media to promote it, the editor of a local magazine reached out to me and asked if I was interested in writing a regular column for them. I said why not! I wrote an article for every issue from late 2014 to 2021 when the magazine ceased trading due to the impacts of the pandemic. And while I was writing for them, I began sending off work elsewhere which too has been published. Then, in 2016, after I wrote a letter to the editor of our national newspaper, The Irish Independent, following our general election at the time, and pointing out the reasons for anger in the country, the editor of the paper reached out to me, asking if I’d follow up with a full length journalistic piece, and that was published under my own name, which gave me another feather in my cap! Life lesson: take calculated risks! Have confidence in your ability and challenge yourself!

M.  How do you find joy in your day?

M.  Like many people living with long term illness, and being as limited as I am due to my ME, I’ve had to adapt and re-learn what living means without having a job or social life or the hobbies I once had (which included hot yoga, running with a local athletic club and horse riding). It didn’t happen overnight. But the more I sat with myself, the more I began to look outward, to see the seasons change, the light change within a day, etc. That’s where I now find joy. Watching the seasons roll in and watching how nature and her creatures react to each change. At present I have a hooded crow who for the last 3 years has showed up at my kitchen window for breakfast, lunch, and dinner. Joy can be found in the smallest of places, and you don’t even have to dip into your pocket to enjoy it!

Be sure to pull up a chair and read through Marie’s archives, you’ll leave with more knowledge than you came with. 

Melinda

Looking for the Light

 

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Lung Cancer Awareness Month

Our lung health is critical to having a healthy life. I learned more about Lung Cancer while researching for this post, and I’m so glad I quit smoking 20+ years ago. 

Whether you are in perfect health, or you are living with a lung condition, there are many things you can do to protect your lungs and maintain your overall health and well-being.

Sometimes we take our lungs for granted. They keep us alive and well and for the most part, we don’t need to think about them. That’s why it is important to prioritize your lung health.

Your body has a natural defense system designed to protect the lungs, keeping dirt and germs at bay. But there are some important things you can do to reduce your risk of lung disease. Here are some ways to keep your lungs healthy.

Don’t Smoke

Cigarette smoking is the major cause of lung cancer and chronic obstructive pulmonary disease (COPD), which includes chronic bronchitis and emphysema. Cigarette smoke can narrow the air passages and make breathing more difficult. It causes chronic inflammation, or swelling in the lung, which can lead to chronic bronchitis. Over time cigarette smoke destroys lung tissue and may trigger changes that grow into cancer. 

If you smoke, it is never too late to benefit from quitting. We can help whenever you are ready.

I WANT TO QUIT 

Avoid Exposure to Air Pollutants That Can Damage Your Lungs

Indoor Air Quality

  • Indoor Air Quality (IAQ) refers to the air in the buildings and structures that we work, live, and play in as well as the immediate area around these buildings and structures.
  • IAQ is important for ALL of us since we spend up to 90% of our time indoors.
  • It can be surprising to learn that indoor air can be even more polluted than the air outdoors.
  • Secondhand smoke, chemicals in the home and workplace, mold and radon all can cause or worsen lung disease. 
  • You can take steps to improve your indoor air quality

Talk to your healthcare provider if you are worried that something in your homeschool or work may be making you sick.

Outdoor Air Pollution

The air quality outside can vary from day to day and sometimes is unhealthy to breathe. Knowing how outdoor air pollution affects your health and useful strategies to minimize prolonged exposure can help keep you and your family well. Climate change and natural disasters can also directly impact lung health.

To protect your lungs from outdoor pollution consider the following:

  • Avoid exercising outdoors on bad air days
  • Avoid exercising near high traffic areas
  • Check Airnow.gov to find out the daily air conditions in your area
  • Don’t burn wood or trash

Get Regular Check-ups

Regular check-ups help prevent diseases, even when you are feeling well. This is especially true for lung disease, which sometimes goes undetected until it is serious. During a check-up, your healthcare provider will listen to your breathing and listen to your concerns.

It is best to catch a lung condition in its earliest stages. That is why it is important for you to know what some of the common signs and symptoms are for lung conditions

Exercise

Whether you are young or old, slender or large, able-bodied or living with a chronic illness or disability, being physically active can help keep your lungs healthy. Learn more about how exercise can strengthen your lungs.

Public Health and Your Lungs

Health begins where we live, learn, work and play, and it’s important to ensure that safeguards are in place to protect us and prevent disease. 

SEE HOW PUBLIC HEALTH ISSUES CAN AFFECT LUNG HEALTH.

The scariest part is that you can get Lung Cancer from our everyday environment. To many saying “mask” sends their eyes rolling but if you think about it, wearing a mask prevents the Flu and COVID-19, and it protects your lungs. I look at China and see most people wearing masks, my guess is that COVID-19 scared them into the habit.

Melinda

Reference:

https://www.lung.org

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Diabetes Awareness Month

The number of people with Diabetes is staggering and can cut your life short if not managed. Below are estimates for the United States and estimates based on ethnic background.

Estimated prevalence of diabetes in the United States

  • Total: 38.4 million people of all ages had diabetes (11.6% of the population) in 2021. 38.1 million were adults ages 18 years or older.
  • Diagnosed: 29.7 million people of all ages had been diagnosed with diabetes (8.9% of the population).
    • 29.4 million were adults ages 18 years or older.
    • 352,000 were children and adolescents younger than age 20, including 304,000 with type 1 diabetes.
    • Age-adjusted data from 2019 to 2021 showed that, for both men and women ages 18 years or older, the prevalence of diagnosed diabetes was highest among American Indian and Alaska Native adults (13.6%), followed by non-Hispanic Black adults (12.1%), adults of Hispanic origin (11.7%), non-Hispanic Asian adults (9.1%), and non-Hispanic White adults (6.9%).
  • Undiagnosed: 8.7 million adults ages 18 years or older had diabetes but were undiagnosed (22.8% of adults with diabetes were undiagnosed).

Read about the estimates of diabetes in the United States External link and the prevalence of both diagnosed and undiagnosed diabetes in the National Diabetes Statistics Report from the Centers for Disease Control and Prevention (CDC).

According to the American Diabetes Association’s Economic Costs of Diabetes in the U.S. External link, the total estimated cost of diagnosed diabetes in 2022 was $412.9 billion, including $306.6 billion in direct medical costs and $106.3 billion in reduced productivity.

Additional Reports on Diabetes

References

Last Reviewed January 2024
This content is provided as a service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), part of the National Institutes of Health. NIDDK translates and disseminates research findings to increase knowledge and understanding about health and disease among patients, health professionals, and the public. Content produced by NIDDK is carefully reviewed by NIDDK scientists and other experts.

Why is Diabetic Medications so expensive?

Pharmaceutical companies spend billions of dollars in research and development to create new drugs, and for them to recoup their investment the FDA gives them a timeframe where the drug can not be made into a generic. If companies didn’t have a chance to recoup on investment, manufacturers would stop doing research to make more targeted drugs through the research they do. Brand names are more expensive for this reason. They are not public health services and are not operated by our government. Our government gets involved when the drugs are presented to the FDA for approval.

If you don’t have medical insurance, the cost of medication can put a dent in your monthly cost of living. Before picking up your medication even if you have insurance go on the app GoodRX to see if they have a less expensive price, and the pharmacist will honor the GoodRX price. If GoodRX doesn’t have a lower price ask the pharmacist if they know of any coupon codes. The first thing I do when taking a brand drug is go to the medication’s website to see if they have a co-pay program. I’m taking several newer brand medications and paying almost nothing because of the company’s co-pay cards.

Melinda

Reference:

https://www.niddk.nih.gov/health-information/health-statistics/diabetes-statistics

Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Fibromylagia Thoughts #13

I was diagnosed with Fibromyalgia in 2015 and during the years that have followed, I’ve experienced many types of symptoms and flares. In the past six months I’ve had many waves of flares to differing degrees, and also have experienced symptoms I had forgotten were fibromyalgia-related. I had to go back and read the basics and all the types of symptoms a flare can bring about.

Here are a few symptoms that were new to me

Reactive skin, burning all over my body that felt like acid with the simple move of my shirt or wiping my hands dry.

The arthritis pain in my hands has reached a new level of pain.

Parts of my body hurt more than before.

Overview of Fibromyalgia

Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. Researchers believe that fibromyalgia amplifies painful sensations by affecting the way your brain and spinal cord process painful and nonpainful signals.

Symptoms often begin after an event, such as physical trauma, surgery, infection or significant psychological stress. In other cases, symptoms gradually accumulate over time with no single triggering event.

While there is no cure for fibromyalgia, a variety of medications can help control symptoms. Exercise, relaxation, and stress-reduction measures also may help.

This is a short overview of whoever. There’s a wealth of knowledge available to read. Remember to check out the Fibromyalgia organizations. Look for respected sources because I ‘ve ran across several sites that are only selling supplements or pushed memberships. You want solid resources.

Some exercises may help, look for them and see how they fit in your life.

Melinda

References:

https://www.mayoclinic.org/diseases-conditions/fibromyalgia/symptoms-causes/syc-20354780

Celebrate Life · Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health · Mental Illness

10 Phrases Nobody With Bipolar Disorder Wants To Hear

By Tanya Hvilivitzky

Medically Reviewed by Allison Young, MD

Last Updated: 31 Jul 2024

Understanding the impact of your words can make a significant difference. Discover more thoughtful ways to express yourself and create a more caring environment.

Words have immense power. They can uplift and encourage but also wound deeply, often without the speaker even realizing it. This is particularly true for individuals living with bipolar disorder, for whom certain phrases can be not just unhelpful but profoundly hurtful. While some of these comments might seem innocuous or well-meaning, they often reflect misunderstandings about the nature of mental health conditions.

These phrases wouldn’t just be hurtful to someone with bipolar disorder; they can be upsetting to anyone, as they often invalidate feelings and experiences.

The goal isn’t to police language but to encourage awareness and empathy. Many in our community have shared that specific comments, though well-intentioned, can worsen their struggles. Understanding why these phrases are hurtful helps us become better allies and offers support that truly helps.

Here are 10 of the most common and hurtful things people with bipolar disorder have heard:

1. ‘Snap Out of It’

This phrase implies that managing bipolar disorder is simply a matter of willpower, which dismisses the complexity and challenges of the condition. Bipolar disorder is a serious mental health condition that involves severe mood swings, including manic and depressive episodes. Suggesting that someone can “snap out of it” minimizes the profound impact these episodes can have on a person’s life. It also ignores the necessity of medical treatment, therapy, and lifestyle changes to manage the disorder effectively.

A more supportive approach would be acknowledging their struggle and asking how to help, such as, “I can see you’re going through a tough time. How can I support you?”

2. ‘Everyone Has Mood Swings Sometimes’

Comparing typical mood swings to the extreme highs and lows of bipolar disorder minimizes the severity of the condition. Mood swings in bipolar disorder are not just simple changes in emotion; they can be intense and debilitating, affecting every part of a person’s life, from their relationships to their ability to function day-to-day. This comparison can make someone with bipolar disorder feel misunderstood and isolated.

Instead, try expressing empathy without comparison: “I can’t imagine how hard this must be for you. I’m here to listen if you need to talk.”

3. ‘You’re Just Being Overly Dramatic or Emotional’

This can be particularly hurtful as people with bipolar disorder may react strongly due to their condition, and being told they’re overreacting can feel invalidating. Such a statement dismisses their genuine feelings and experiences, which are influenced by their brain-based disorder. It’s essential to recognize that their reactions are not within their complete control.

A better way to respond would be to validate their feelings: “It seems like this is really affecting you. How can I help?”

4. ‘I Wish I Was Manic so I Could Get Stuff Done’

This comment trivializes the manic episodes of bipolar disorder, which can involve risky behaviorssleep problems, and impaired judgment, not just increased productivity. Mania is not simply a burst of energy; it can be destructive and dangerous. You might inadvertently romanticize a very challenging aspect of the disorder by saying this.

A more compassionate approach would be to ask how they are managing their symptoms: “It must be exhausting dealing with mania. What helps you cope?”

5. ‘Maybe You Should Pray More’

While spiritual practices can be a source of comfort for some, suggesting that prayer alone can manage bipolar disorder dismisses the need for medical treatment and professional support. Mental health conditions like bipolar disorder typically require a combination of medicationtherapy, and lifestyle adjustments.

A more helpful comment would be: “I hope you find comfort in your faith, and I’m here to support you in whatever way you need.”

6. ‘You Don’t Seem Like You’re Bipolar’

This is along the same lines as “You seem so normal.” This statement can make someone feel like their struggles are being dismissed or that they are being judged for not showing visible signs of their condition. Bipolar disorder doesn’t have a “look,” and many people work hard to manage their symptoms and appear outwardly stable. It’s essential to recognize that internal experiences can differ greatly from outward appearances.

Instead, you might say: “I admire how well you manage your condition. How are you really feeling?”

7. ‘Why Can’t You Just Be Happy?’

Suggesting that happiness is simply a choice overlooks the complex factors that influence mood in bipolar disorder. Happiness is not a simple decision for someone with a brain-based disorder; it can be influenced by connections between brain cells, life circumstances, and other factors beyond their control. This question can feel dismissive and make the person feel blamed for their condition.

A more supportive statement would be: “I’m sorry you’re feeling this way. What can I do to help?”

8. ‘Have You Tried Just Not Taking Your Meds?’

This can be dangerous advice, as managing bipolar disorder often requires careful medical supervision, and abruptly stopping medication can have serious consequences. Medications for bipolar disorder are usually carefully prescribed and monitored by a healthcare provider to manage symptoms and prevent an episode. Suggesting someone stop their medication can undermine their treatment plan and pose significant risks.

Instead, express support for their treatment plan: “I hope your treatment is helping. How are you finding it?”

9. ‘You Just Need to Exercise More’

While exercise can be beneficial for mental health, suggesting it as a cure-all solution minimizes the complexity of bipolar disorder and the need for comprehensive treatment plans. Exercise is part of a broader treatment strategy that includes medication and therapy.

Instead of suggesting a simple fix, acknowledge the complexity of the condition: “Exercise can be helpful. What else is part of your treatment plan?”

10. ‘You’ve Got It So Good, Why Are You Depressed?’

This minimizes the person’s feelings and implies that their life circumstances should prevent them from feeling depressed, which is not how bipolar disorder works. Depression in bipolar disorder is not about having a bad day; it’s a severe symptom that can occur regardless of external circumstances.

A more empathetic response would be: “I know things might look good from the outside, but I understand that doesn’t change how you feel. How can I support you?”

UPDATED: Originally posted November 27, 2016

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ABOUT THE AUTHOR

Tanya Hvilivitzky

Tanya Hvilivitzky has spent more than 30 years in the communications field — a career that has included stints as an investigative journalist, managing editor for a lifestyle and wellness magazine, corporate communications director, and researcher/writer. She has been with bpHope (and bp Magazine) since 2016, serving in roles such as features editor, interim editor, and, currently, senior editor. She has been devoted to mental health awareness since she was the editor of Schizophrenia Digest in her early days, and now with a particular focus on highlighting the complexities of bipolar disorder through compassionate, service-based journalism. As an award-winning writer/editor, Tanya received the Beyond Borders Media Award for her 2012 investigative exposé about human trafficking for Niagara Magazine. Her work on this critical topic also earned the Media Freedom Award “Honouring Canada’s Heroes” from the Joy Smith Foundation to Stop Human Trafficking.

Melinda

Reference:

https://www.bphope.com/bipolar-buzz/the-worst-things-you-can-say-to-someone-with-bipolar/?utm_source=iContact&utm_medium=email&utm_campaign=bphope&utm_content=BUZZ+-+Nov3+-+10Phrases

Celebrate Life · Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health

What I’ve Learned In 61 Years Part 7

Customer Service has become a relic term, not even common courtesy is extended today.

Medical doctor’s offices claim to be the top in the field with all these awards including ones for customer service. Why is it that I can’t get a critical question answered by my doctor through the portal?

I had to wait an hour on the phone until the receptionist could find a live person to talk with me, I didn’t have anything better to to do. Maybe it’s time we start charging for the hours we spend trying to get answers. It took me from 10/22/24 to 11/6/24 to get someone on the phone and schedule my surgery.

Today I had an appointment with my new pharmacist since I’m changing pharmacies. We scheduled last week to meet today at 2:00 pm, at 2:30 pm I called to say I had other things to do and when she was ready she could call to reschedule. I got a message back saying one of the pharmacists had a meeting that ran long. Why can’t you text me the minute you knew there was a conflict? Again where the hell is the communication. It’s like the medical community has decided it’s no longer their issue. I disagree!

Why did the powers that be allow text spam? Who’s making money here? Or is it that big business has so much power over the FTC that allowed this to happen?

Who is selling my email information? I get a 10-15 spam emails a day. It is impossible to track down because I will not click on any links. Be sure to read the Privacy Information for companies you sign up with to see what they do with your data.

All the issues I was having with Bots were because WordPress shares your information with its so-called partners. I had to search a bit but found a hidden sentence that if clicked allows WordPress to share information with their AI partners for training AI. Ok, I switch it off thinking that mess is over. Not so quick. I went three days without Bots and now they are back with a vengeance. I don’t have a complete problem with AI but I want to know how my content is used and how I get credit for the content. It also screws up the views, it can get so complicated that it’s not worth it. I will say that FaceBook/Meta is the AI bot that attacks my archives daily.

I realize not every town has these problems, that’s great for you. I hope it remains that way for a long time.

I’m observing that most businesses are pushing you to their portals so they don’t have to talk with you. How far down do we go from here? Will we have to make an appointment just to have a question answered?

I don’t care for this lack of human connection one bit, it will only spill over to the rest of our lives. Scary!

What bothers you today about the lack of communication?

Melinda