Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward

Feeling Invisible With A Stoma By Guest Blogger And Friend Invisibly Me

Thanks to the incredible efforts of campaign groups, individuals, healthcare companies and charities, the world knows more about stomas. With that increased awareness comes a lot of good things, but unfortunately there’s still many ways in which those with an ostomy can feel ignored, misunderstood or sidelined. Here are just 5 ways in which we can be left feeling invisible with a stoma. 

[ This post is in honour of 5th October Stoma Awareness Day 2024, the theme of which is “Do You See Me?”]

 

A photo of me standing up with hands on hips with a black top, jeans and long red hair. The top is pulled up slightly to show a red and white Hello Kitty themed stoma bag cover.
A close up photo of a purple sticker on a wooden door that reads "not all disabilities are visible", with the hashtag "stoma friendly".

 

Make to to spend time searching Caz’s archives, she has written on so many topics and has often shared how she’s battled her chronic illnesses.

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Survivor

Am I Strong Enough?

You would think that the question would be easy to answer given the physical abuse by my mother which started at birth, my stepfather hitting me in the mouth with his fist, watching my mother being beaten by my stepfather from the day they were married, and the sexual abuse by my father. My childhood was beyond traumatic, and it didn’t stop when I became a preteen.

At 12 years old, I was living with my father who was incapable of being a father and had no rules. I was dating a 21-year-old dealer and addicted to speed. Every weekend was a different mix of exotic drugs to try. I skipped school for 45 days straight and my father had me put in Juvenile Detention for three days as punishment. I was so dead inside and totally lost that the sexual abuse didn’t phase me at the time.

There’s plenty more to talk about but I also had issues when I got older. I was sexually assaulted more than once, stalked three times, had Cervical Cancer at 27 years old, and had a total hysterectomy. That’s a lot to decide at 27 years old with no children but I made it clear at 12 years old that I didn’t want children.

My father committed suicide when I was 28 years old, the only positive is that I sought out treatment for my Bipolar Disorder. Sometimes I think he died so I would live.

I’ve had all the normal career challenges including being fired from a six-figure job for something I didn’t do. I didn’t get rich of the lawsuit but I proved my point, it was someone else’s lie and politics that got me fired. The lawsuit did prove to me how strong I was and how much badgering I could take from the other side.

I’ve had health issues large and small most of my life and I think I’m facing my biggest battle yet. My first day at The Mayo Clinic is 10/13/24 and after extensive testing, I will meet with my team of doctors and learn my diagnosis and the treatment plan. I have complete confidence in The Mayo and am working hard to prepare for whatever they find.

I feel calm most of the time with a tiny bit of fear for how my life could change. I’ve worked hard as always to not diagnose myself but I have run a few searches on Copilot that have given two possible answers. I’m not putting stock in that but it’s easy to believe when everything you put in the search comes back to the same answer. I’ll leave that for the doctors and won’t be surprised if it’s something completely different.

I won’t know if I’m strong enough until the reality comes but at least I have a good track record of survival. 

I’m sending a special thanks to everyone who has sent kind words of encouragement and well wishes. You are the sunshine in my life.

 

 

 

 

 

 

 

 

Melinda

Celebrate Life · Chronic Illness · Fun · Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health · Mental Health

You Know It’s Crazy When…

If you haven’t followed me long, you may not be aware of the health struggles I’ve had dating back to 2010. Not only have I had a major run-in with what might have been the end of my life, but since 2012 I’ve suffered with severe balance issues and cognitive impairment. Although I don’t have a clue what The Mayo will diagnose me with, I am totally confident in their ability to find answers and get me the right treatment.

This post is something I’ve been laughing so hard about because it can only be funny. I’ve been wishing this one plant to have babies for the past year or two to no avail. Today, I was looking at it again, trying to understand why it hasn’t had a baby. Then the brick hit me, it’s an artificial plant! It makes me laugh every time I think about it. Apparently, I was very sick when I planted it thinking it was a live plant only to find today, that it won’t have any babies. HAHA!!!!!!!

I chose to find it funny, how could I not? I won’t kick myself for being too sick to know the difference. I believe this general attitude is why I keep pushing forward in life and can deal with what comes my way. Who needs a kick in the ass?

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Self-Care

Physical Therapy for Fibromyalgia

Physical therapy may be used alongside other treatments to help reduce fibromyalgia pain and improve mental health. 

Chronic pain and fatigue are common symptoms of fibromyalgia. You may also experience sleep, memory, or mood issues as a result of this condition.

There’s no cure yet for fibromyalgia, but doctors may recommend physical therapy in addition to medications and alternative therapies, like massage and acupuncture, to help with your symptoms. 

As part of a holistic plan, physical therapy can help you cope with your pain. It may also reduce the frequency and intensity of your symptoms. 

This article examines how physical therapy and the right exercise program might help those with fibromyalgia.

How can physical therapy help fibromyalgia?

Physical therapy can offer a variety of benefits for those with fibromyalgia, including:

  • decreased pain, fatigue, and stiffness
  • increased range of motion
  • improved mental health
  • reduced need for medications

Research has found that individuals with fibromyalgia may have difficulty with lower aerobic endurance and muscle strength. They are also likely to live a sedentary life because of their pain. This can increase their likelihood of developing other health complications. 

With the help of physical therapy, quality of life and productivity can improve. 

What types of exercises are recommended for fibromyalgia?

Doctors highly recommend that those with fibromyalgia participate in aerobic and strength training activities. While current research does not offer as much support for flexibility exercises, these exercises may also prove beneficial, especially as part of a warm-up or cool-down routine. 

Types of exercise frequently recommended if you have fibromyalgia include:

What’s the best exercise program for fibromyalgia?

If you’ve received a diagnosis of fibromyalgia, a licensed physical therapist can design or tailor a holistic program specifically for you.

To create your personalized exercise program, a physical therapist will consider your overall health and exercise level. They’ll work with you to develop a workout that is sufficiently challenging but also comfortable enough to do several times per week. 

Because fibromyalgia symptoms can fluctuate, your physical therapist may need to make frequent adjustments to your program.

Working out consistently is important, but it can be difficult, especially if you have a painful flare. 

Your physical therapist may ask questions about the types of activities you enjoy doing to find ways to motivate you. They may also begin slowly and build up the intensity of your workouts over time to help prevent pain and burnout. 

In addition to exercises on land, your physical therapist may suggest aquatic therapy. The warmer water in therapy pools can relax muscles, offer joint relief, and improve circulation.

A physical therapy treatment plan for fibromyalgia may also include massage, the use of a TENS machine, or hot/cold packs to prevent and treat your muscle pain. 

In addition to an exercise plan, your physical therapist can provide helpful education about pain management. The skills they teach can be useful in coping with your fibromyalgia symptoms. 

What’s the best way to find a licensed, competent PT who is familiar with fibromyalgia?

Your doctor may be able to provide a referral to a local physical therapist who has worked with individuals with fibromyalgia in the past. 

Another place you may potentially be able to get referrals is through a local fibromyalgia support group.

If you choose to do your own research, you may wish to look online for a local physical therapist who advertises their work with fibromyalgia and has articles or blogs on their website demonstrating their knowledge of the connection between physical therapy and fibromyalgia.

It’s also usually a good idea to check out their reviews.

Where can you find support groups for those living with fibromyalgia?

If you have fibromyalgia, it’s important to have the support of others who understand what you’re going through. Your doctor or local hospital may be able to suggest an in-person support group near you.

You can also get support online through organizations like the Fibromyalgia Care Society of America.

Another place where you can connect with other people with fibromyalgia is in Meta groups. Research indicates Meta (formerly Facebook) groups can be a source of support for those living with fibromyalgia. But remember that these groups may not always encourage evidence-based approaches to fibromyalgia care. 

Takeaway

If you have fibromyalgia, chronic pain can be debilitating. Physical therapy may help reduce your pain, increase your range of motion, and improve your mental well-being. Your doctor may recommend it in combination with medication and alternative therapies.

A physical therapist can help with pain management and develop an individualized exercise plan that includes a mixture of aerobic and strength-building activities. Tai chi, walking, and swimming are some exercises that may be particularly beneficial if you have fibromyalgia.

Melinda

Reference:

Celebrate Life · Chronic Illness · Family · Health and Wellbeing · Medical · Men & Womens Health · Mental Health

NAMI September Newsletter-Suicide Prevention

Note from NAMI National:

“September is Suicide Prevention Month, when we work to raise awareness about this urgent crisis. Like mental health conditions, suicidal thoughts can affect anyone regardless of age, gender, or background. But suicidal thoughts should not be considered normal and often indicate more serious issues.”

Fast Facts:

Individual Impact

  • 79% of all people who die by suicide are male.
  • Although more women than men attempt suicide, men are 4x more likely to die by suicide.
  • In the U.S., suicide is the second leading cause of death among people aged 10-14, the 3rd leading cause of death among those aged 15-24, and the 12th leading cause of death overall.
  • 46% of people who die by suicide had a diagnosed mental health condition — but research suggests that 90% may have experienced symptoms of a mental health condition.

Community Impact:

Annual prevalence of serious thoughts of suicide, by U.S. demographic group:

  • 8% of all adults
  • 4% Native Hawaiian/other Pacific Islander
  • 2% Mixed/Multiracial
  • 5% American Indian/Alaska Native
  • 13% of young adults aged 18-25
  • 22% of high school students
  • 41% of lesbian, gay, bisexual, transgender, and queer youth
  • The highest rates of suicide in the U.S. are among American Indian/Alaskan Natives, followed by non-Hispanic white people.
  • Lesbian, gay, and bisexual youth are 4x more likely to attempt suicide than straight youth.
  • Transgender adults are nearly 9x more likely to attempt suicide at some point in their life compared to their peers.
  • Suicide is the leading cause of death for people held in local jails.

This Suicide Prevention Month, check in on your loved ones. Knowing the risk factors and warning signs can assist you in finding help for yourself, a loved one, or a friend. You can learn more about this here.

With gratitude,

The NAMI Texas Public Policy Team

Melinda

 

Celebrate Life · Chronic Illness · Family · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward · Survivor

October Awareness Months

For the complete list of Awareness Months click on the link under references. Below are the issues that are most important to me or ones I have a personal connection to for which there are several.

ADHD Awareness Month
AIDS Awareness Month

National Breast Cancer Awareness Month

National Depression Education and Awareness Month
National Depression and Mental Health Screening Month
Sober October
Pregnancy & Infant Loss Awareness Month
National Bullying Prevention Month
Domestic Violence Awareness Month
Dyslexia Awareness Month
LGBTQ+ History Month

Melinda

Reference:

https://www.goodgoodgood.co/articles/october-awareness-days-months

Celebrate Life · Chronic Illness · Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health · Moving Forward

Dr. Dave Martz overcame an ALS death sentence with Lyme treatment

As Dave Martz lay dying, an idea serpentined around his mind and would not loosen its grip: Despite the absolute diagnosis and the insistence of the doctors, including a world expert, that he was dying of ALS, despite his own vow to face things head-on and reject the lure of denial, Martz couldn’t shake the notion that possibly, just maybe, he actually had Lyme disease. (from Cure Unknown: Inside the Lyme Epidemic by Pamela Weintraub.)

One of the earliest Lyme conferences I ever attended featured Dr. Dave Martz and the story of his remarkable recovery from what had been diagnosed as ALS–a fatal condition.

I would later write this about him in my blog:

Kind of a rock star

Dr. David Martz is kind of a rock star in the Lyme world. You may have read about him in Pam Weintraub’s Cure Unknown and seen footage of him in the documentary Under Our Skin.

His story is riveting. He had a lifetime of good health and a successful career as a physician practicing internal medicine-hematology-oncology for 30 years. Then, in 2003, Martz suddenly started experiencing strange symptoms. First deep fatigue, then profound muscle aches and body-wide pain. Soon he was too weak to get out of bed. As his condition rapidly deteriorated, his physicians gave him a devastating diagnosis: ALS (aka Lou Gehrig’s Disease). They said nothing could stem his physical decline and he would likely be dead within two years.

But events went in a different direction. As his health spiraled downward, Martz connected with a Lyme disease specialist who prescribed hard-hitting, long-term antibiotics. The gamble paid off. By the end of 2004, Martz was a new man. In fact, the doctor who had diagnosed him so definitively with ALS, now pronounced that condition completely gone.

Martz devoted the next two and a half years to a project that gave extended antibiotics to about 90 ALS patients and demonstrated objective improvements in 15% of them. He has also treated more than 800 chronic Lyme patients, with good response and minimal side effects.

A message of hope

In 2010, I helped organize a Lyme patient education conference in the San Francisco Bay Area and we had Dr. Martz as our keynote speaker. He was a kind, thoughtful man who offered a message of hope to an audience which sorely needed it.

This week, I learned that Dr. Martz passed away last month at the age of 83. Rest in peace, Dr. Martz, rest in peace.

TOUCHED BY LYME is written by Dorothy Kupcha Leland, President of LymeDisease.org. She is co-author of Finding Resilience: A Teen’s Journey Through Lyme Disease and of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at dleland@lymedisease.org.

Very interesting read! So glad he had an open mind and thought to seek out a Lyme Literate Doctor, it saved his life.

Melinda

Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Numb the Pain by Navigating Chronic Discomfort with Style

Life with chronic discomfort can feel like living out an endless drama, yet its protagonist (that would be you), deserves smoother scenes. Luckily, there are multiple techniques to alleviate persistent pain, providing pockets of relief from daily struggle into a manageable storyline. 

Photo by Gizem Nikomedi on Unsplash

Embrace the Power of Movement

Exercise may make your spine shudder, but physical activity is an excellent way to manage chronic pain. Engaging in low-impact activities such as swimming, yoga, or tai chi can improve circulation, and flexibility and release endorphins. Natural painkillers are made available without an expectation of compensation.

Endorphins Are Like Comedians

Your body’s endorphins act like the stand-up comedians of its own world, helping lighten the mood and make things bearable. Movement produces endorphins which in turn reduce perceptions of pain. So whether it’s taking a daily stroll around your neighborhood or doing some light stretching exercises, find something that makes you want to move, even if that means dancing awkwardly without anyone watching.

Mind Over Matter: Mental Techniques for Relief 

Your mind can be used as an effective weapon, all it needs to be properly deployed. Practices such as mindfulness meditation, cognitive behavioral therapy (CBT), and guided imagery can have profound effects on pain perception while changing our relationship to discomfort.

Mindfulness Magic: Transforming Present into Peace

Engaging in mindful practice means staying present to each moment without judgment, helping to ease stress and anxiety that exacerbate pain. Apps or online resources designed to guide this process could prove invaluable, and your mind and body will thank you.

Harnessing Nature for Alternative Therapies

Incorporating natural methods can often provide what is needed for living with chronic pain. Acupuncture, chiropractic care, and herbal remedies may complement other pain management approaches by offering more holistic approaches.

Pricking Away the Pain: An Acupuncture Adventure 

While Acupuncture may seem strangely offbeat for television dramas, its roots lie deep within traditional Chinese medicine. By strategically placing needles along nerve pathways to reduce pain and promote healing.

Medical Marijuana as a Natural Alternative 

Medical marijuana has emerged as an attractive solution for chronic pain sufferers, thanks to cannabinoids found within cannabis which interact with our bodies’ endocannabinoid system and modulate pain and inflammation. While legal challenges have historically limited medical marijuana’s use, studies show its efficacy for various forms of pain such as neuropathic and arthritis pain relief. Patients often find medical cannabis helps them decrease reliance on traditional painkillers while potentially decreasing adverse side effects. You must consult your healthcare professionals regarding appropriate usage as soon as possible before beginning.

Becoming a Master Chef: Nutritional Tweaks

No one’s suggesting an appearance on a cooking show, rather, what you eat has more power to affect pain levels than you realize. An anti-inflammatory diet may work wonders. Try including foods rich in omega-3 fatty acids like fish, flax seeds, and walnuts in your daily meal plans to reduce inflammation and pain levels. Remember: balance doesn’t mean balancing pizza slices between both hands.

Spice It Up: The Turmeric Tale

Turmeric is one of the greatest spices imaginable, boasting powerful anti-inflammatory effects and rich with curcumin. Add turmeric to dishes, smoothies, or teas for an intoxicating flavor and potential pain relief. But be careful not to mistake it for its competitor, saffron. They both love taking center stage but serve distinct functions.

Conclusion

Chronic pain may be a constant part of life, but exploring different strategies may provide relief. Pain management becomes less exhausting with laughter as your guide and professionalism as your shield. Embrace these tips as creative tools to write a narrative that features discomfort less prominently in it.

This is a collaborative post.

Melinda

Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Self-Care

Blood Cancer Awareness Month 

My husband was diagnosed last year with Leukemia and it was a total shock to the system. He’s been healthy our entire 22-year marriage only having a cold a few times, this diagnosis rocked me hard. One blessing is that he has a team of doctors who he sees regularly and so far his cancer is growing very slowly. Skin Cancer can also pop up with Leukemia and he has been diagnosed with that as well. He goes every three months and usually has a new spot removed or scrapped and burned. Sunscreen is more important than ever but he hasn’t bought into that yet.

As scary as it was in the beginning, after educating ourselves and him seeing a doctor every three months we are more comfortable about where his health is at.

This Is Blood Cancer

Blood Cancer Awareness Month is a global event helping to raise awareness of one of the world’s most prevalent and dangerous cancers: blood cancer.

September turns red each year as the spotlight is put firmly on blood cancer and the impact it has on our communities and the urgent need for more action.

Raising awareness of blood cancer, its signs and symptoms, and its impact, will help to improve early diagnosis, encourage policymakers to prioritize the disease, as well as help everyone with blood cancer feel connected and heard.

 

Tricia Hernandez with the Leukemia Lymphoma Society says many blood cancers are treatable through chemotherapy, stem cell transplants, and surgery.

She says in Maine, nearly 900 people have been diagnosed with blood cancer this year.

“A person is diagnosed with a blood cancer approximately every three minutes. So, it’s quite a large number although a rare disease than other cancers. There are hundreds of thousands of people affected by this,” said Hernandez.

Major Types of Leukemia

The four major types of leukemia are:

CLL is one of the most common types of leukemia in adults. ALL is the most common type of leukemia in children.

Types of Lymphoma

Lymphomas begin in cells of the lymph system, which is a part of the immune system. Lymph tissue is found throughout the body. As a result, lymphoma can begin almost anywhere. The disease occurs in two types: Hodgkin and non-Hodgkin lymphomas.

Both types can occur in adults and children. An estimated 80,620 people in the United States will develop non-Hodgkin lymphoma in 2024, according to the NCI. Approximately 20,140 people will die from non-Hodgkin lymphoma. For Hodgkin lymphoma, 8,570 new cases and 910 deaths are estimated for 2024, according to the NCI.

FOR MORE INFORMATION

There are many different types of leukemia and lymphoma in adults and children. For more information on these different diseases, please see:

References:

https://bloodcancermonth.org

https://www.msn.com/en-us/health/other/nearly-2-million-americans-live-with-blood-cancer-september-marks-awareness-month/ar-AA1qPvUH?ocid=BingNewsSerp

September is Leukemia and Lymphoma Awareness Month

Celebrate Life · Chronic Illness · Family · Fun · Health and Wellbeing · Medical · Men & Womens Health · Music

#Weekend Music Share-Eddie Van Halen & Sammy “Love Walks In” (Bridge School Benefit 1993)

My husband sent me this video and the first thing I said was, “Who knew Eddie could play the piano?” I don’t buy into aliens but I like the song played this way, I didn’t listen to the original version because I wanted to remember this special occasion. You can tell they were having fun and really enjoyed each other’s company. I still love Sammy’s voice, his club in Cabo, not so much.

A tidbit about the Bridge School Benefit.

The Bridge School Benefit was an annual charity concert usually held in Mountain View, California, every October at the Shoreline Amphitheatre from 1986 until 2016 with the exception of 1987. The concerts lasted the entire weekend and were organized by musicians Neil Young and Pegi Young. An annual Bay Area highlight, the concerts were billed online as the primary means of funding for  The Bridge School; over both days, the reserved seats alone brought in well over a million dollars every year.

Organized by musicians Neil Young and Pegi Young, the Bridge School Benefit Concert is an annual, all acoustic, non-profit charity event held every October at Shoreline Amphitheatre in Mountain View, California. All proceeds directly benefit the operations of The Bridge School.

Our Mission

The Bridge School is a non-profit organization whose mission is to ensure that individuals with severe speech and physical impairments achieve full participation in their communities through the use of augmentative & alternative means of communication (AAC) and assistive technology (AT) applications and through the development, implementation and dissemination of innovative life-long educational strategies. The Bridge School is an internationally recognized leader in the education of children who use augmentative and alternative communication and has developed unique programs and trained highly skilled professionals in the use of state of the art assistive technology.

References at the bottom of the post.

It’s the weekend!!!!!!

 I’m glad you joined me this week for another edition of Weekend Music Share.

Have a great weekend!

Melinda

Welcome back to Weekend Music Share, the place where everyone can share their favorite music.

Feel free to use the Weekend Music Share banner in your post, and use the hashtag #WeekendMusicShare on social media so other participants can find your post.

Reference:

https://en.wikipedia.org/wiki/Bridge_School_Benefit

https://www.bridgeschool.org

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Illness · Moving Forward

6 Rap Artists Who Have Opened Up About Their Bipolar Disorder

By Tanya Hvilivitzky 

Last Updated: 16 Sep 2024

These rappers have shared their struggles with bipolar disorder, bringing awareness to their experiences within the rap community and beyond.

In recent years, it has become more common for celebrities to talk openly about their mental health, and several well-known rappers have significantly contributed to this conversation over the years. Despite facing controversies and navigating the complexities of the public eye, these artists shared their own stories about living with bipolar disorder. Their honesty helps others feel less alone and sparks more conversations about mental health.

Whether discussing their experiences in interviews or incorporating them into their lyrics, these rappers contribute to a more extensive dialogue about mental health. They’re helping to shift perceptions and encourage a more accepting and informed conversation around bipolar disorder. Here are six rappers who are part of this critical conversation:

1. Krizz Kaliko

Samuel William Christopher Watson, who performs under the stage name Krizz Kaliko, is an American rapper, singer, and songwriter. He has made significant contributions to the music industry as a longtime collaborator with Tech N9ne, another artist from his hometown. Initially signed to Strange Music, the label co-owned by Tech N9ne, Kaliko established his own label, Ear House Inc., in 2021.

Diagnosed with bipolar disorder, Kaliko has openly addressed his mental health struggles in his music. Specifically, in his album Genius, he delves deep into his experiences on the track titled “Bipolar,” where he raps and sings about the challenges of living with the condition.

Beyond his music, Kaliko has spoken candidly about his use of psychotherapy and anti-anxiety medications as part of his ongoing effort to maintain emotional and mental stability. His openness about his struggles inspires and supports others facing similar battles.

2. Ye

Kanye West, now known as Ye, has been vocal about his bipolar disorder, referring to it as his “superpower.” He first revealed his diagnosis around the release of his 2018 album Ye, where he used his music and public statements to address the complexities of living with the condition. The album’s cover features the phrase, “I Hate Being Bipolar; it’s Awesome,” reflecting his struggle with the extremes of the disorder.

Ye has continued to discuss the impact of bipolar disorder on his life, comparing it to having a “sprained brain” and emphasizing the importance of proper care, even though he has openly struggled with staying on medication consistently.

In recent years, Ye has also opened up about the paranoia and erratic behavior that accompanies his manic episodes. He has criticized how people with mental health conditions are often mistreated, both by healthcare systems and society at large, contributing to the stigma around mental illness.

3. Charles Hamilton 

Charles Eddie-Lee Hamilton, Jr., a Harlem, New York City native, is a recognized figure in the hip-hop community as a recording artist and record producer. His album The Pink Lavalamphas been hailed as one of the standout underground hip-hop releases of its time.

In a candid interview with Billboard, Hamilton discussed the personal struggles he faced due to his undiagnosed bipolar disorder. He described a period of intense isolation, where distrust of others led him to confine himself to his home, dedicating his time solely to music production as a way to combat his depression. “I just didn’t trust anybody,” he admitted. “I didn’t leave my house; I just made music all the time. I was fighting depression — I shut myself in.”

Over the years, Hamilton has been open about his mental health journey, using his platform to raise awareness about bipolar disorder and the importance of mental health care. His career has seen various ups and downs, including a brief retirement in 2016 followed by a return to music with new projects that reflect his ongoing battle with mental health and his resilience in the face of adversity. His candidness about his struggles has not only helped to destigmatize mental health issues among musicians and fans but also resonated with audiences worldwide.

4. DMX (Dark Man X)

Earl Simmons, known professionally as DMX, was a prominent figure in the music and acting industries, rising to fame in the late 1990s. His raw and emotional lyrical content often reflected the personal pain and struggles associated with bipolar disorder, which was especially evident in his groundbreaking album, It’s Dark and Hell Is Hot.

DMX’s bold and unique contributions significantly shaped the music landscape, particularly as the only artist to debut his first two albums at number one in the same year.

His music not only captivated fans but also offered a visceral insight into his battles with mental health. Until his passing in 2021, DMX’s powerful voice in music and film left a lasting impact, celebrating the profound expressiveness of his work.

RELATED: 20 Musicians You May Not Know Have Battled Bipolar Disorder

5. Adam Steven Deacon

Adam Steven Deacon, an English talent celebrated as a film actor, rapper, writer, and director, shot to fame with his performance in the British film Kidulthood and his directorial debut, Anuvahood. In an interview with the BBC, Deacon discussed his initial fears that his bipolar disorder might derail his career. He described the condition’s impact, saying, “Bipolar life has two speeds: One minute, it’s all too fast. The next, everything becomes so slow that I can’t cope.”

This candid account of his daily struggles sheds light on the complexities of living with this brain-based disorder. Deacon has since learned to embrace and manage his conditioneffectively. His story of resilience and adaptability provides hope and insight, encouraging others to navigate similar challenges.

6. Yo Yo Honey Singh

Yo Yo Honey Singh, also known as Honey Singh, is a prominent Indian rapper, music producer, and film actor renowned for his contributions to Bollywood music. He rose to fame as one of the highest-paid music producers in Bollywood. But in late 2014, Singh took a sudden hiatus from the public eye, sparking concern among his fans. After a quiet return to the music scene in 2015, he maintained a low profile with the media. It was not until March 2016 that Singh revealed the reason for his 18-month absence: he had been battling bipolar disorder.

Since disclosing his diagnosis, Singh has gradually resumed his music career and has been involved in several new projects, adapting his workload to manage his health effectively. His openness about his mental health struggles has been instrumental in raising awareness and reducing the stigma associated with mental health issues in the entertainment industry and beyond.

Tanya Hvilivitzky

Tanya Hvilivitzky has spent more than 30 years in the communications field — a career that has included stints as an investigative journalist, managing editor for a lifestyle and wellness magazine, corporate communications director, and researcher/writer. She has been with bpHope (and bp Magazine) since 2016, serving in roles such as features editor, interim editor, and, currently, senior editor. She has been devoted to mental health awareness since she was the editor of Schizophrenia Digest in her early days, and now with a particular focus on highlighting the complexities of bipolar disorder through compassionate, service-based journalism. As an award-winning writer/editor, Tanya received the Beyond Borders Media Award for her 2012 investigative exposé about human trafficking for Niagara Magazine. Her work on this critical topic also earned the Media Freedom Award “Honouring Canada’s Heroes” from the Joy Smith Foundation to Stop Human Trafficking.

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward

Mini Me Health Update

I recently wrote about how the new medication Trintellex for my Bipolar Disorder made me feel better than I had in years. It still has that effect on my life but it’s marred with new and ongoing health issues. Some have popped up in the past few weeks. It’s a woop on the head trying to understand what is happening to my body and messing up my ability to live my best life. 

I’m very happy to report that The Mayo has accepted me as a patient and I will be flying to Rochester, MN in a few weeks. I trust them with my life and I am confident they will find what or what several issues are affecting my health. The first day will start with an Internal Medicine Doctor for an evaluation, later that day I pick up a Pulse Oximeter to wear overnight. 

The second day starts early with a load of blood tests, the test appears to focus on my blood. Later that afternoon, there is a consultation with a Hematologist to discuss the lab results. Probably additional information as well. At this time my schedule is free on the third day and on Friday I return back to Internal Medicine for a readout. 

The last time I went for my heart there were so many tests that we ran from one appointment to the next, sometimes without a breath. This trip is very different and I’m so glad due to the way I’m feeling. They did want me to come back in November for a Fibromyalgia and Chronic Fatigue evaluation but I don’t see the need. I was diagnosed with both many years ago and I don’t need to fly up there for a day of testing and education. I canceled that appointment. The Mayo did send a video on Fibro & Chronic Fatigue I will watch as a fresher but I’m not flying up to get evaluated for something I already know. Unless they can give me a reason I can make logic out of, I’m not spending the money for a one-day trip. 

I met with an Orthopedic Surgeon who specializes in hands and was not surprised to hear I had Carpal Tunnel in both hands, as well as arthritis but the diagnosis of Osteoarthritis in both thumbs was a shock. He is ordering a Nerve Conduction Study since I do have nerve issues in my hands. I thought a barnacle was growing on my wrist only to find out it was caused by the wrist plate put in when I broke my wrist years ago. When he does the carpal tunnel surgery on the left hand he will remove the wrist brace and I will have the right hand surgery after the left heals. The great news is that technology has improved so much that Carpal Tunnel surgery can be done with a very small incision, ultrasound is used and only a band ade is required after the surgery. It is said that most a back to full range of motion in three days. Boy, what a difference in the right hand Carpal Tunnel surgery I had years ago. It won’t be as easy on my left hand with the removal of the wrist plate but I have no doubt that surgery has improved in that area as well. I’m currently wearing a painful thrumb support that hurts other areas of my hand and it’s impossible to wear except when on the computer. I’ve asked for another option. 

Just another interesting week in my life but I’m thankful I have a life and it’s great outside of the health conditions. 

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health · Tick Borne Illnesses

IGeneX Lyme ImmunoBlot test receives FDA clearance

Important Read

SEP 5, 2024

This is a huge win for Lyme patients and may diagnose Lyme faster and save patients the cost and pain of long-term treatment. The key point is that the tests are only available from labs that perform Lyme testing and do not meet the CDC standards which means that insurance companies will not pay for the cost. I would encourage you to seek out a lab for the test regardless of insurance pay, IGeneX has led the way in Lyme testing for years and is the gold standard. Paying for the test is worth every penny because you are testing for even possible antigens out there and you won’t receive that from your doctor. This test could make a huge difference in your treatment by pinpointing the virus versus a cross-the-board method.

The Lyme ImmunoBlot test first introduced by IGeneX in 2017 has now been converted to a test kit–and has received FDA clearance.

The name of the test is iDart™ Lyme IgG ImmunoBlot Kit.

It’s a stand-alone test for the detection of IgG antibodies against Borrelia-causing Lyme disease.

The iDart ImmunoBlot Kit features 31 Lyme antigen bands, which are more antigen bands than any other Lyme immunoblot test on the market.

Moreover, it is the only immunoblot that includes Osp A (P31) and Osp B (P34). (Note: those are the two bands removed from other Lyme tests in the 1990s because of their use in the development of Lyme vaccines.)

The inclusion of 31 antigens improves the sensitivity of the detection of Lyme-specific IgG antibodies, which in turn will improve the sensitivity of the diagnosis of Lyme disease in suspected patients without sacrificing specificity.

“We are delighted to have received FDA clearance for our Lyme ImmunoBlot Kit,” said Dr. Jyotsna Shah, Ph.D., President and Director of IGeneX Labs.

These kits are not available for sale to consumers, but only to labs that perform Lyme diagnostic testing.

Key features of the iDart Lyme IgG ImmunoBlot kit

  • Results interpretation is based upon new criteria and not CDC criteria.
  • The bands are grouped according to their antigen groups. The test is considered positive if the Lyme Screen Antigen (LSA) band and one or more bands from at least two other groups are present on the ImmunoBlot.
  • Bands 31 and 34 are included, making this the only FDA-cleared Lyme serological test that includes these bands.

SOURCE: IGeneX, Inc.

Melinda

Reference:

https://www.lymedisease.org/lyme-immunoblot-fda-clearance/

 

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Self-Care

What’s the Difference Between Chronic and Acute Stress?

Medically reviewed by Francis Kuehnle, MSN, RN-BC — Written by S. Srakocic on December 12, 2023

Acute stress is a part of life, but when it turns into chronic stress, it can cause serious health concerns both mentally and physically. 

Acute stress is the stress you feel as the direct result of a specific situation or event. For instance, it’s acute stress when you’re running late for an appointment and begin to feel symptoms of stress such as anxiety and difficulty focusing. 

Chronic stress is the result of stress that builds up from repeated exposure to stressful situations and the hormones your body releases during each stressful episode. Many things can lead to chronic stress, including factors such as difficult relationships, job demands, and financial concerns.

Acute vs. chronic stress: Symptoms

Acute and chronic stress share some overlapping symptoms. However, the symptoms of chronic stress are longer-lasting and can be harder to manage.

Symptoms of acute stress include:

Symptoms of chronic stress include:

Over time, chronic stress can lead to additional complications. These include:

Acute vs. chronic stress: Causes 

Stress is a reaction that happens when something activates your body’s fight-or-flight response. It gets your heart racing and puts you on high alert. A wide range of things can cause acute stress. 

Generally, acute stress is a reaction to situations that are challenging to manage but that are temporary, such as:

  • car accidents
  • medical emergencies
  • work deadlines
  • unexpected expenses
  • upcoming events
  • traffic
  • weather
  • travel

On the other hand, chronic stress is a reaction to long-term stressors. These long-term stressors keep your body on high alert for an extended time. Examples of situations that can lead to chronic stress include:

Acute vs. chronic stress: Treatment options

Treatment options for stress depend on the severity and how the stress is affecting your life. Acute stress doesn’t typically need treatment unless it’s making daily activities difficult. 

If you’re experiencing episodes of acute stress frequently, your primary healthcare professional might recommend lifestyle treatments such as:

  • Increasing your physical activity: Exercise and an active lifestyle can help your body release stress-reducing hormones.
  • Cutting back on caffeine: Caffeine can increase the symptoms of stress. For some people, cutting back can help reduce episodes of acute stress.
  • Making time to relax: Taking time for self-care and relaxation through steps like hot showers and baths, yoga or meditation practice, and spending time with friends can reduce stress levels.
  • Avoiding stress triggers: If you’re able to avoid specific stressful situations, it can help lower your overall stress levels.
  • Lowering your sugar intake: Eating a healthy diet and reducing the amount of sugar you take in can help manage your body’s reaction to stress. 
  • Disconnecting from phones and other devices: Cutting back on the amount of time you spend engaged with social media and news sources can help reduce stress levels.

Treatment options for chronic stress can be more complex. You might receive treatment to help you manage your stress and treatment to help alleviate your symptoms. Options can include:

  • Cognitive behavioral therapy (CBT): CBT is a therapy method that helps you identify your thought patterns and discover how they contribute to your stress levels. It can give you the tools you need to lower stress and cope with the difficulties in your life.
  • Mindfulness-based stress reduction (MBSR): MBSR is a treatment that teaches mindfulness techniques to help manage responses to stress.
  • Medication: Sometimes, prescription medications for anxiety or depression can help with the symptoms of chronic stress. The right ones for you will depend on your symptoms and on factors such as any other medications you already take.
  • Symptom-specific treatment: Your doctor might prescribe medications for any complications and symptoms connected to your chronic stress. For instance, your treatment could include medications to help with insomnia or IBS.

Takeaway

Acute stress is the stress that results from a specific, temporary situation or event. It can cause symptoms such as anxiety and insomnia. 

Chronic stress is stress that is the result of an ongoing situation such as a demanding job or chronic illness. It can lead to long lasting physical health compilations and sometimes needs treatments such as therapy and medication.

Melinda

Reference:

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Barometric Pressure May Affect Fibromyalgia Symptoms


Medically reviewed
 by Angelica Balingit, MD — Written by Alysa Hulletton August 19, 2024

Lower barometric pressure is associated with higher self-reported pain scores in fibromyalgia patients, but more research is needed to determine causation. 

People with fibromyalgia often report that the weather, particularly the barometric pressure, affects their symptoms. 

Also called atmospheric pressure, barometric pressure is the amount of air pressure in the atmosphere. It is higher when oxygen molecules are more concentrated and is basically a measure of the heaviness of the air at a given time.

The thinking behind this theory is that when barometric pressure drops, the “lighter” air may make joints, tendons, and muscles swell to compensate, causing pain.

While there’s evidence to support the idea that air pressure does indeed affect conditions like arthritisheadaches, and generalized chronic pain, so far, the research on the link between barometric pressure and fibromyalgia is limited. Here’s what to know.

In a 2019 studyTrusted Source of 48 patients with fibromyalgia, researchers compared self-reported pain scores over a 30-day period with local weather data. They found lower barometric pressure to be strongly correlated with higher pain scores in the majority of patients studied. The breakdown was as follows:

  • 40 out of 48 patients reported more pain on lower barometric pressure days. 
  • 8 out of 48 patients reported more pain on higher barometric pressure days. 

Researchers noted that the second subgroup had lower baseline anxiety levels than the control group. Lower barometric pressure was also linked to higher stress levels. As a result, scientists speculated that there may be a mental-emotional component to pain levels in those with fibromyalgia, though it’s not yet well understood. 

Other key findings include the following:

  • Higher humidity was associated with higher pain scores.
  • Colder temperatures were associated with higher pain scores.

In a 2021 studyTrusted Source, researchers found that 58% of 64 patients with fibromyalgia said weather-related factors aggravate their symptoms. Here are some other key findings:

  • Researchers used a self-reported quality-of-life measure where 1 is perfect health and 0 is many health difficulties. On average, fibromyalgia patients reported a score of 0.55.
  • Researchers found that the 37 people with weather sensitivity had worse quality of life scores (by an average of 0.16 points) than those who didn’t report weather sensitivity. They also reported an average of 1.5 more pain points on a scale of 0 to 10.

Keep in mind that these sample sizes are small and that there are few studies on the link between barometric pressure and fibromyalgia in particular. Although there appears to be a strong association, scientists have not conclusively shown that barometric pressure causes increased pain.

However, in a 2020 study of 10,584 patients with chronic pain, researchers also found a strong association between lower barometric pressure and higher pain scores over the course of 15 months. About 26% of those surveyed had fibromyalgia, while the rest had other health issues, including various forms of arthritis, neuropathic pain, headaches, and migraine episodes.

Based on the (somewhat limited) data, the best weather for those with fibromyalgia appears to be

  • higher barometric pressure
  • lower humidity
  • less rain
  • calmer winds
  • warmer temperatures

Keep in mind that fibromyalgia flare-ups tend to be individualized, with some patients reporting increased pain on higher barometric pressure days, for instance. Many people with fibromyalgia also don’t report experiencing weather-related sensitivity at all.

As noted above, fibromyalgia symptoms tend to be highly individualized, so it’s challenging to pinpoint the optimal climate for those with fibromyalgia.

However, since many people with fibromyalgia report improved symptoms with warmer weather, less rain, and less humidity, desert regions may offer the most relief. In fact, there are many anecdotal reports of people living with fibromyalgia experiencing pain reduction after moving to these areas.

In the United States, this includes regions like:

  • The Mojave Desert, which covers parts of southeastern California, southern Nevada, southwestern Utah, and northwestern Arizona. This includes areas around Las Vegas and Death Valley.
  • The Sonoran Desert, spanning parts of southern Arizona and southeastern California, including areas around Phoenix and Tucson.
  • The Chihuahuan Desert, which covers parts of southern New Mexico and west Texas, including areas around El Paso.
  • The Colorado Plateau, including parts of southeastern Utah, northern Arizona, northwestern New Mexico, and southwestern Colorado. While this region can have cooler temperatures at higher elevations, lower areas often meet the criteria.
  • The Great Basin, including parts of Nevada, western Utah, and southeastern Oregon. Some areas, particularly at lower elevations (such as Reno), meet most of the criteria.
  • The Southern California Interior, including inland areas of southern California such as the Coachella Valley (where Palm Springs is located) and Imperial Valley.

Will climate change affect fibromyalgia symptoms?

So far, there’s no evidence that climate change will affect fibromyalgia symptoms. However, since climate change is associated with moisture evaporation that worsens severe rainfall, increased rain and humidity may affect people negatively in some regions.

Meanwhile, hotter temperatures shouldn’t negatively affect those with fibromyalgia and may even improve symptoms for some. On the other hand, climate change is also associated with more frequent and more severe storms, so those experiencing pain during times of shifting barometric pressure may be negatively affected. 

Potential strategies for managing weather-related fibromyalgia pain include the following:

  • Monitor your symptoms and local weather patterns to identify your unique triggers. A symptom journal may be helpful with this. 
  • Use climate control support in your home, including dehumidifiers, to reduce moisture in the air.
    • You may also want to keep your home at a slightly higher temperature or use a heating unit (e.g., by your desk or bed) to reduce symptoms. Heated blankets may also help lend relief at nighttime or while lounging on the couch. 
  • Talk with your doctor about your symptoms and discuss adjustments to your pain medications. 

Remember, treating fibromyalgia typically requires an individualized, multifaceted approach. Learn more about general treatments for fibromyalgia.

While research into the relationship between weather and fibromyalgia pain is ongoing, evidence increasingly supports a connection between lower barometric pressure and higher pain scores in fibromyalgia patients.

Keep in mind that everyone with fibromyalgia is different, with many people saying that they don’t experience any weather-related sensitivities at all. Ultimately, understanding your personal triggers can help you better manage your symptoms and improve your day-to-day quality of life.

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward

Health Update September 2024

Over the past six months, my health has gone haywire, and the past two have been the worst. I’ve been working closely with multiple specialists including keeping them up to date with the ongoing symptoms. None are concerned about my quality of life and I hit a wall this week. I contacted The Mayo Clinic, one of the top hospitals in America, and now have an appointment for next month.

The greatest thing about going to The Mayo is they have a team of specialists working on your case, giving them a bigger picture of what is happening. I’ll be there for at least seven days and they will be full of tests, blood work, and meetings with specialists. Your days are full from when you arrive until they have an answer. It’s exhausting but you get what you came for which will improve your health.

I stayed at The Mayo for a week in 2010 so I have an idea of what I can look forward to. At the time I had been having issues with my heart for two years, I had worked with two cardiologists and had been through multiple catheterizations but no answers. I was experiencing what I now know is Supra Ventricular Tachycardia, it’s just like having a heart attack but you’re not. These events were happening every day and sometimes multiple times. It was so painful and you never knew when they would happen. I had Nitro for when they started but it often didn’t work.

After a week of intensive tests including a catheterization, I had the answers. Luckily nothing major was wrong with my heart, several small things were causing the arrhythmia. I took medication for a short time and have only had issues when my potassium is low.

I am looking forward to the day when my health has improved, my quality of life has improved and I have answers.

Melinda

Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Mental Illness · Moving Forward

How to Tell Others About Your Bipolar Disorder

By

Julia Métraux

Medically Reviewed

by

Allison Young, MD

Published on September 26, 2023

While some people may not struggle to tell friends, family members, or an employer about their bipolar disorder, for others it can feel very nerve-racking. These 7 tips can help.

At age 31, Julie A. Fast — now a bipolar disorder expert and researcher — was diagnosed with the condition. Later on, she was diagnosed with schizoaffective disorder, bipolar type (a psychotic disorder involving symptoms of both schizophrenia and bipolar disorder).

Bipolar disorder wasn’t entirely new to Fast, now 59, when she was diagnosed. Her partner at the time was diagnosed with the condition in 1994, just one year before.

Still, in her social circles, she found that most people did not know or understand her condition. “I’d go to a party, and maybe two or three people would say, ‘I know of bipolar disorder,’” says Fast, who coauthored the book Take Charge of Bipolar Disorder with John Preston, PsyD. 

Because awareness of bipolar disorder and its symptoms is increasing, many people with the condition, like Fast, feel more comfortable sharing their diagnosis with others. “I can deal with whatever happens when I disclose my illness to others,” Fast says. “It will show who can help me and who can’t.” 

But some people with bipolar disorder may still feel hesitant to share their diagnosis, in part because of stigma and fear about how others will respond, experts say.

Why Sharing a Bipolar Disorder Diagnosis Can Feel Challenging

Factors like shame, embarrassment, or stigma — negative and often untrue beliefs society holds about someone or something — make some people with bipolar disorder feel hesitant to talk about their condition, research shows.

Many people with bipolar disorder experience a form of stigma called “public stigma,” which is related to how other people view and act toward people with bipolar disorder, according to research published in February 2022 in the Australian & New Zealand Journal of Psychiatry. Public stigma is linked to more anxiety symptoms, worsened ability to function, and problems at work, per the same research.

Although public stigma can come from anyone around them, many people with bipolar disorder experience it from people close to them — family, friends, or even their healthcare providers, per the same report.

Fear of how others may respond as a result of stigma is another potential barrier. “They may worry that disclosure could negatively affect their relationships with friends, family, or romantic partners,” says Leanne Quigley, PhD, an assistant professor in clinical psychology at Yeshiva University in New York City.

Public stigma and how others view bipolar disorder can lead many people with the condition to feel negatively about themselves, according to the aforementioned report.

“[They] may also experience internalized stigmas where they report low self-esteem, low quality of life, and limited engagement in their communities,” says Adrian Jacques H. Ambrose, MD, MPH, the medical director of the psychiatry faculty practice organization at Columbia University in New York City, who treats people with bipolar disorder. This is what’s known as “self-stigma,” per the aforementioned report.

RELATED: A Therapist Speaks: What Is Bipolar Disorder Stigma, and How Can We End It?

When to Tell Someone About Your Bipolar Disorder Diagnosis

The decision about when to share your diagnosis with someone else is very personal. It can depend on the type of relationship you have with the other person and whether they seem to have some sort of understanding of conditions like bipolar disorder.

When It Comes to Your Significant Other or Someone You’re Dating …

For romantic relationships, Fast recommends sharing a bipolar diagnosis as soon as possible. “I don’t really support the idea of getting in a relationship with somebody unless you have fully discussed the impact of bipolar on the relationship,” Fast says.

That’s important because the symptoms can affect the way someone with bipolar disorder thinks, feels, acts, and communicates with their partner, according to the United Brain Association. For instance, during a manic episode, someone with bipolar disorder may experience intense irritability toward their partner or may have a higher chance of engaging in risky behaviors like unprotected sex or heavy spending, which could lead to tension or mistrust in a relationship, per the United Brain Association. 

If you haven’t talked about your condition with your partner, it can be difficult for them to know what to say or do to help.

When It Comes to New Healthcare Providers …

It’s also crucial to be up-front about your diagnosis with any new healthcare providers you see, Fast Adds. They need to know about your health history and any medications you take. Research shows that certain medications, such as corticosteroids like prednisone, can trigger mania and psychosis in people with bipolar disorder.

That’s why Fast told her doctors before a recent minor surgery that she was not comfortable being prescribed steroids, which are sometimes used to help reduce inflammation. “When they suggest steroids, and so many doctors use steroids, I explain why I can’t use them,” she says, adding that her doctors were receptive to her needs.

Some antidepressants, such as fluoxetine (Prozac),  also trigger mania in people with bipolar disorder.

When It Comes to Your Friends and Family …

When it comes to telling friends and family, it might take you some time to feel comfortable doing so — and that’s okay. Prioritize telling close friends and family members that you interact with frequently and who you feel understand you well — rather than people you rarely interact with, Fast advises.

Before sharing your diagnosis with friends or family, Dr. Ambrose recommends asking yourself the following questions:

  • Do you feel ready to share?
  • Is there anything pressing or urgent happening that makes it important to tell them sooner rather than later, such as the onset of a mood episode?

When It Comes to Your Employer …

When it comes to your work environment, it’s important to weigh the possibility of discrimination, says Ambrose. You could look to see if the company has in recent years tried to reduce mental health stigma, which research suggests could make the workplacemore welcoming for workers with mental health conditions. 

And if you don’t feel comfortable revealing your specific diagnosis, that’s okay. You can still bring a note from your healthcare provider asking for accommodations based on how your mental health condition impacts your functioning, according to the U.S. Equal Employment Opportunity Commission.

7 Tips for Talking About a Bipolar Disorder Diagnosis

If you feel ready to share your diagnosis with someone else, here are seven expert tips to get the conversation started.

1. Prepare Yourself for All Sorts of Reactions

Just as people diagnosed with bipolar disorder may have a range of reactions to their diagnosis, reactions from others can vary, too. “We can allow the other person to ask whatever questions they want, have any type of response that they want,” says Fast.

Although some people may react positively to hearing about your diagnosis, others may react in a negative way. “Remember that your self-worth is not determined by a diagnosis of bipolar disorder or others’ reactions to your disclosure of a diagnosis,” Dr. Quigley says.

2. Talk About How Your Bipolar Symptoms May Affect Others

During a manic episode, some people with bipolar disorder may be more prone to engaging in risky or hurtful behaviors, such as cheating or lying. This can be common for people who are undiagnosed, Fast adds.

Whether you’ve just gotten your bipolar disorder diagnosis or you’ve received treatment for a new mood episode, it could help to reach out to people who may have been harmed by your words and actions during the episode. It could be a message like, “I’d love to talk to you about my diagnosis because I know my behavior impacted you,” says Fast.

But it’s important to recognize that not everyone will want to engage in this conversation, especially if they feel really hurt by actions like cheating or stealing, for instance, Fast adds.

If behavior related to a bipolar diagnosis hasn’t yet come up in your relationship with someone else, the person you’re telling may have questions about how it could affect the relationship in the future. Be prepared to discuss how any episodes could manifest.

3. Have a Summary on Hand

After sharing a bipolar disorder diagnosis, some people may have follow-up questions about your symptoms or, in the case of work, any accommodations you might need. “In certain situations, your loved ones [or employer] may know very little about mental health conditions, so it may be helpful to prepare a short summary about the condition,” Ambrose says.

The summary could be either written or verbal (or both), depending on what you’re most comfortable with.

4. Work With Your Therapist on a Plan to Tell Others

If you feel nervous or worried about sharing your diagnosis with others, your doctor or therapist could help you come up with the best strategy for you for sharing your diagnosis, says Fast. “Share most of your concern and your worries with your healthcare professionals because they’re trained to handle it,” Fast says.

5. Understand Your ADA Rights (and Note That They Vary by State)

While the Americans with Disabilities Act (ADA), which prohibits discrimination against people with disabilities at work and all other areas of life, is a federal law in the United States, some states offer more protections than others when it comes to employment laws related to disability discrimination, says Ambrose.

“Given the complexity of work-related rights, you should learn more about your specific state’s legal statutes,” Ambrose says.

If you’re in an area with less protection, it might be worth talking to a third party, for example your state labor office, about the best approaches for disclosing a bipolar diagnosis at work. State government offices belonging to the U.S. Department of Labor can help you better understand your rights as a worker in the state you live in. The Department of Labor has a directory of state labor offices.

6. Offer Different Information in Different Situations

If you’re only comfortable disclosing the entirety of your diagnosis to some people and not others, that is perfectly fine. “You may choose to discuss certain parts of your experience with bipolar disorder and not others,” Quigley says. “It is okay to maintain boundaries and not share everything.”

7. Give Yourself Grace

It can be difficult to figure out how to tell others about your diagnosis. It’s important to take care of yourself during this time. “It’s even more important to cultivate a sense of empathy and grace for yourself during the process,” Ambrose says.

Julia Métraux

Author

Julia Métraux is a journalist whose work touches on disability, mental health, and chronic illness. She went to the University of California in Berkeley Graduate School of Journalism. Métraux lives with vasculitis, a traumatic brain injury, and hearing loss.

See full bio

————

I know how hard telling others about your mental illness can be, especially family members. Many family members looked at me differently because they were from a different generation that did not believe in mental illnesses. I did not tell friends or my employers because it wasn’t their business. One of my employers fired me from a high-level job because they found out I had a mental illness, yes I could have sued the billion-dollar company but why go down that multi-year road through the rabbit hole. I caution everyone to think hard before telling your employer, it can be held against you and they can find a way to fire you.

Melinda

Celebrate Life · Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Mental Illness

12 Celebrity Quotes That Perfectly Describe Life With Bipolar Disorder

By Tanya Hvilivitzky 

When famous people share their personal battles with bipolar disorder, it serves as a reminder that no one is isolated in this struggle. After all, bipolar disorder is indifferent to wealth, fame, or success.

It’s easy to believe that celebrities — actors, musicians, or comedians — enjoy lives of perfection. However, what is publicly seen represents just a fraction of their actual lives. The truth is, bipolar disorder doesn’t discriminate. It makes no distinction between a person’s age, gender, race, or bank account size.

So, when stars living with bipolar disorder share their own struggles, it signals to others that they are not navigating the complexities of this brain-based disorder alone, reinforcing the message that, together, managing it is within reach.

Here are personal and powerful quotes from 12 such celebrities:

1. Taylor Tomlinson

It took a little while for comedian Taylor Tomlinson to accept her bipolar diagnosis. She explains to E! News her reaction upon learning about her mood disorder. “I was surprised that I felt embarrassed when I first found out. Because I think I’m very open-minded. I have friends who have bipolar. And you never judge your friends. You never felt like that was a big deal. But then when it’s you, you somehow realize you have all this deeper stuff from when you were a kid.”

2. Cameron Esposito

After telling her fans earlier this year of her bipolar diagnosis, Cameron Esposito, standup comic, actor, and writer, took to her Instagram channel on her birthday in October 2023 to reflect on the year: “… you know what? I’m lucky. I’m lucky that I figured it out. I’m lucky that I had a place to go. I’m lucky that I was enough in my faculties that I was extremely persistent with following up after that experience, and getting my meds and finding a psychiatrist. All that s&*t is impossible and so expensive. I have healthcare coverage; I have insurance. I just want to say to anybody who’s had to navigate this [mental health care] system … you are a hero! Look at you! Look at what you’ve been able to do!

3. Alan Ritchson

Actor Alan Ritchson, star of Prime Video’s Reacher, was diagnosed with bipolar at age 36. In a February 2024 interview with CBC Radio’s “Q” program, Ritchson explains why he’s been sharing his story to help others: “As much as I would like to ignore that I’m a suicide survivor, if I didn’t share what I’ve learned I feel like my life would be meaningless,” he says. “I’ve always been a happy-go-lucky guy, but once you experience the grip [of depression] — the talons it can sink into you — you realize how sinister this thing is and how out of control the biology can really be for somebody in the midst of it.”

4. Carrie Fisher

“In my opinion, living with manic depression takes a tremendous amount of balls. Not unlike a tour of Afghanistan (though the bombs and bullets, in this case, come from the inside). At times, being bipolar can be an all-consuming challenge, requiring a lot of stamina and even more courage, so if you’re living with this illness and functioning at all, it’s something to be proud of, not ashamed of. They should issue medals along with the steady stream of medication.” — Carrie FisherWishful Drinking, 2008

5. Ye (Kanye West)

As a guest in 2019 on David Letterman’s Netflix series, My Next Guest Needs No IntroductionYe (Kanye West) uses the term “ramping up” to convey the process of entering a hypomanic or manic bipolar mood episode: “When you ramp up, it expresses your personality more. You can become almost adolescent in your expression. … When you don’t take medication every day to keep you at a certain state, you have the potential to ramp up … and even end up in the hospital.”

6. A.J. Mendez

In an interview with bp Magazine, former pro wrestler A.J. Mendez (AJ Lee) says, “I see bipolar disorder as the gift of extraordinary emotions. It makes me bold, brave, loud, and capable of withstanding whatever obstacles the world throws at me. It has made me empathetic. It has given me a lofty imagination, a belief in the impossible, and has made me confident beyond reason. I was 90 pounds and five feet tall and believed I could succeed in the world of giants … because I didn’t have that voice of doubt holding me back.”

7. Richard Dreyfuss

Richard Dreyfuss has starred in blockbusters like JawsAmerican GraffitiClose Encounters of the Third Kind, and The Goodbye Girl (which earned him an Academy Award for Best Actor). Of his bipolar diagnosis, he says, “No matter what you call it, this is an illness no different from, say, diabetes or asthma — and like those conditions, [it] should be neither ignored nor stigmatized. Feeling ashamed would mean surrendering to someone else’s judgment — an ignorant judgment at that.”

8. Linda Hamilton

The Terminator actress Linda Hamilton uses a holistic health plan to help her stability, with a structured and balanced lifestyle, exercise, and medication. “Exercise is an incredible key to feeling well. But for people with mental illness, taking care of the body is not an automatic thing. The mind is in such chaos, it’s hard to come up with a plan. So, to people like us, it’s more important than ever to follow a regimen.”

9. Maurice Benard

Daytime actor Maurice Benard — who plays Michael “Sonny” Corinthos Jr. on General Hospital — talked with bp Magazine on life with bipolar“I’ve lived a productive life having bipolar. I’ve talked to people who don’t want to talk about [having bipolar] because it’s embarrassing. I’m proud of it because I know it’s made me the actor I am and the person I am. It’s given me strength. If I can go through being in a mental hospital, and that kind of pain, and that kind of fear, I can do anything.”

10. Maria Bamford

In an interview with bp Magazine’s Melody Moezzi, the comedian Maria Bamford talked about being diagnosed: “I was surprised how prejudiced I was against myself. They tell you it’s the brain chemistry also working its magic, but I was really surprised at how resistant I was to going on a mood stabilizer, taking any time off of work, acknowledging that I needed to be hospitalized. I was just so angry. I didn’t want to go on the meds. It wasn’t until it got bad enough to where I was starting to feel unsafe by myself that I reconsidered.”

11. Stephen Fry

In an interview with bp MagazineStephen Fry said of creativity, “It is not a coincidence, it can’t be, that so many comedians suffer from depression. As for whether the hypomanic side of bp can be said to help creativity, I hesitate to say yes because of all those out there living with the disorder who are not in creative industries. … But certainly, the energy, self-belief, exuberance, tirelessness, optimism, and, yes, grandiosity that mark out hypomania can really help one achieve much in terms of writing and creation.”

12. Mariah Carey

In 2018, during an interview with People magazine, Maria Carey spoke about the confusing ups and downs of bipolar disorder: “For a long time I thought I had a severe sleep disorder, but it wasn’t normal insomnia. … I was working and working and working. … I was irritable and in constant fear of letting people down. It turns out that I was experiencing a form of mania. Eventually, I would just hit a wall. I guess my depressive episodes were characterized by having very low energy. I would feel so lonely and sad, even guilt that I wasn’t doing what I needed to be doing for my career.”

UPDATED: Originally posted June 19, 2020

Tanya Hvilivitzky

Tanya Hvilivitzky has spent more than 30 years in the communications field — a career that has included stints as an investigative journalist, managing editor for a lifestyle and wellness magazine, corporate communications director, and researcher/writer. She has been with bpHope (and bp Magazine) since 2016, serving in roles such as features editor, interim editor, and, currently, senior editor. She has been devoted to mental health awareness since she was the editor of Schizophrenia Digest in her early days, and now with a particular focus on highlighting the complexities of bipolar disorder through compassionate, service-based journalism. As an award-winning writer/editor, Tanya received the Beyond Borders Media Award for her 2012 investigative exposé about human trafficking for Niagara Magazine. Her work on this critical topic also earned the Media Freedom Award “Honouring Canada’s Heroes” from the Joy Smith Foundation to Stop Human Trafficking.

I dislike what Carrie Fisher had to say. It’s not appropriate to compare an illness to those who fought in Afghanistan and I do not think people with Bipolar Disorder deserve a medal and more medication. My thoughts about her have remained the same, she used her Bipolar Disorder as an excuse for her bad behavior and to make money. My opinion. 

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Illness · Moving Forward

Denial in Bipolar Disorder: The Manic Fallacy of Wellness

By June Rawlston 

Last Updated: 7 Aug 2024

During my first manic episode, I was convinced I’d finally recovered from my chronic depression. But my therapist saw symptoms of bipolar disorder.

I’m a doctor by training, so you’d think I would have guessed I had bipolar disorder, for heaven’s sake. I certainly manifested every symptom of mania in the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5), from boundless energy and soaring spirits to severe insomnia.

I should have known something was up when I treated myself to a $4,000 antique French buffet table. (The credit card company considered shutting down my account, but I convinced them that my finances were under control.)

I subscribed to delusions of grandeur, scouring my home for a spot to exhibit the writing award I was guaranteed to win. My sexual appetite spiked to new heights, too (no complaints from my guy on this point).

Friends and Loved Ones Were Baffled by My Behavior

Certainly, my friends and loved ones noticed a bizarre new me bursting onto the scene. One friend, irritated by my self-absorption, said she felt I had come across “like a bomb exploding in my face.”

My boyfriend raised his voice at me for the first time in our friction-free relationship, because I was passionately scrubbing his bathroom at 3 a.m.

A fellow choir member, flabbergasted at what I took to be my brilliant plans to eradicate mental health conditions in the world, shot me a disbelieving look and said, “I’ve never seen you like this.” I wasn’t sure whether he was worried or jealous.

RELATED: Do You Know These Symptoms of Bipolar Mania?

Delusions of Wellness

To me, it just seemed like I had reached a pinnacle in my life after years of chronic depression. I couldn’t wait to thank my psychiatrist for his contribution to my greatness. I wrote him a card saying I had completed my arduous journey to wellness and would no longer be requiring his services.

Instead of clapping and stomping his feet for me, my doctor became more and more appalled as I tried to convince him of my freedom from the frenzy. I, in turn, became furious at the party pooper for raining on my parade.

It wasn’t until he called my sister and begged her to come watch over me that I began to entertain a sliver of doubt.

My sister, a family physician, hopped on the next plane and flew down to Toronto to babysit me and dispense copious amounts of medication and advice. If anyone can convince me of anything, it’s my sister. (She persuaded me that I was adopted when I was 12 — it took my parents months to undo the damage.)

Bit by bit, her certainty that I was experiencing a psychotic episode superseded my insistence that everything was great.

Before 24 hours had passed, I was loaded up on heavy-duty doses of antipsychotics. I actually slept through the night.

By the end of the week, I had come down to earth.

Lack of Insight and 20/20 Hindsight

Looking back on my current (and carefully managed) stability, I’m still blown away by the depths of my denial. After all, I had been exhibiting a textbook case of mania. Why hadn’t I used my medical judgment to uncover my self-evident diagnosis?

I was so certain that I was just happy, at last, and I was furious at those who wanted to pathologize my well-earned contentment.

My sister reminded me of something I already knew: My lack of insight was not my fault; my delusion of wellness was part of the symptom package of mania.

I shudder to think what might have happened if my mania had continued unchecked. My psychiatrist told me I was hours away from requiring urgent hospitalization. I’m lucky that he and my sister prevailed on me to accept that I was unwell instead of special.

I’m also fortunate that my first manic episode led to a diagnosis of bipolar. With my new drug regimen (including a mood stabilizer) and lifestyle changes (regular running, a balanced diet, and mindfulness meditation), I feel a sense of peace I’ve never experienced before. For the first time in my life, I have faith that I will be okay.

UPDATED: Printed as “On My Mind: Queen of Denial,” Summer 2013

June Rawlston

June Rawlston is a pseudonym for a Toronto physician who is forging a new career as a writer.

————-

When you’re manic you think you are on top of the world, magnified creativity, and know better than others, rarely listen to logic when it comes to your behavior, quite simply you don’t want the high to end. The truth is it always ends and the higher you go the further you fall. When you fall you may find yourself disoriented, or not knowing where you are, It’s extremely frightening.

Recovering from a manic episode depends on how hard you hit the ground and what happened while you were manic. The recovery time could take months possibly even longer. It’s a long climb up. This is why I keep a close look each day to see if my mood is elevated, it can go from joy to sheer madness very quickly. The key is to track your moods, be aware that your mood is escalating and reach out for help if you continue to escalate.

I spent close to 10 years hypo manic or manic before I fell down the rabbit hole. Crawling out was not pleasant and I spent several weeks in a Psychiatric Hospital to recover.

Stay aware and don’t be tempted by the escalated state, it will bite back.

Melinda

Chronic Illness · Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health · Tick Borne Illnesses

Fighting to save our lifeline of Glutathione, B12, and more

by Crystal A. Frost

AUG 23, 2024

The daily life of a Lyme warrior can be unpredictable and terrifying—whether it’s managing debilitating symptoms or navigating a healthcare system that rarely understands our needs.

So when my doctor told me in June, “Your Lyme treatments could be outlawed soon,” I knew another fight was on the horizon.

This time though, it wasn’t just about my health. It was about standing up for every patient in California who relies on glutathione therapy, NAD+, and methylcobalamin.

The California State Board of Pharmacy (BOP) is trying to take dozens of natural compounds away from us. But they’ve messed with the wrong Lyme patient, and I’m fighting back.

The master antioxidant

For those of us with neurological Lyme disease, treatments like glutathione and NAD+ aren’t just beneficial—they’re our lifeline. Glutathione, the master antioxidant, is depleted by many illnesses including Lyme, which is why replenishing it through infusions is effective for so many.

This compound protects immune cells and helps clear out harmful toxins, reducing oxidative stress. NAD+ supports cellular repair, giving us a fighting chance against relentless fatigue and brain fog. Methylcobalamin, the active form of vitamin B12, is crucial for nerve repair and cognitive function. These treatments are not luxuries. They’re essential.

The BOP’s proposed regulations would severely limit—and, in many cases, end—access to legal Category 1 sterile compounds on the FDA 503A bulks list. If these regulations pass, Lyme patients across California could lose access to treatments that make life bearable. The worst part? The BOP has not provided a single legal, scientific, or safety-based reason why California patients should be treated differently than those in the rest of the United States.

The moment that sparked the fight

When I first heard the news from my doctor, it knocked the wind out of me. I’m no stranger to fighting, but this is different; this is a fight with no explanation. The compounds on Category 1 have an excellent safety track record, which is why they have the green light from the FDA.

In fact, patients like me often turn to these alternative medicines when standard drug therapy fails. Why does California want to supersede the FDA and deprive sick patients of treatments that work? This regulatory board exists to protect us but is instead threatening our access to the very treatments that keep us alive.

Teaming up: the birth of “Stop The BOP”

I’m not alone in this fight. At the June 18 public hearing, I learned that Jacqui Jorgeson, founder of the Volunteer Fire Foundation in Sonoma, is facing a similar battle. Jacqui’s foundation co-administers a detoxification pilot program for firefighters who face severe toxic exposure in the line of duty.

Like many of us with Lyme, California firefighters under major oxidative stress have found incredible relief in nebulized and intravenous glutathione therapy. In fact, the results from Round 2 of the pilot study showed an 85.1% reduction in environmental toxins—a true testament to the effectiveness of glutathione therapy.

When Jacqui and I connected after hearing each other’s testimonies, it was clear we were fighting the same enemy: Board of Pharmacy overreach.

Together, we launched Stop The BOP, a movement to protect patient access to these vital treatments. We started with a petition in July, and it quickly gained traction, reaching 2,000 signatures in the first month.

As of August 22, our petition has over 2,600 signatures, and our movement is publicly backed by organizations like LymeDisease.org, the Center for Lyme Action and the California Naturopathic Doctors Association.

Why this fight is personal

Before falling ill in 2020, I was a recent PhD graduate, composing music and writing articles for the GRAMMYs. I was happily engaged to my now-husband, Bram.

But when Lyme disease took over my body, it sent us off course onto an unexpectedly dark path. My brain inflammation became so severe that I was paralyzed in my left leg and arm, barely able to walk for months. The brain fog was so thick I would forget my own phone number and my friends’ names. I experienced daily anaphylaxis and constant vertigo, and for a while, I thought this was the end.

But through it all, treatments with glutathione therapy, NAD+, and B12 have been my lifeline, allowing me to reclaim pieces of my life.

If these treatments are taken away, what happens to the thousands of patients just like me? What happens if the BOP succeeds in making California the only state where these compounds are inaccessible?

For many of us, losing access to these treatments would mean a return to those darkest days—days when hope felt like a distant memory.

The broader impact: beyond Lyme disease

It’s not just Lyme patients and firefighters who will be affected. Imagine you suffer from ME/CFS and that NAD+ has finally given you the energy required to return to work. Imagine you have pernicious anemia and methylcobalamin therapy has finally restored you to healthy B12 levels. Now imagine that relief being snatched away by a regulatory board that doesn’t seem to understand—or care—about the consequences.

That’s the reality we face. It’s why Jacqui and I are so determined to fight back. It’s why we’re asking the Lyme community to stand with us. This isn’t just about a few compounds—it’s about our right to access the treatments we need to live our lives.

What you can do

We’re not giving up, and we need your help. Here’s how you can join the fight:

Sign and share the petition: If you haven’t already, please add your name to our petition. Every signature counts.

Contact Your Representatives: We’ve made it easy with templates on our website. Your voice can make a difference.

Spread the Word: Share this blog post, tell your friends and family, and help us get the word out. The more people who know about this, the stronger our movement becomes.

Voice your opposition at the 9/12 board meeting: Anyone is welcome to join the September 12 meeting online via webex or in person in Sacramento. Information and access links will be available on stopthebop.com/actnow.

Join the movement: Sign up, learn more, or donate to the cause at stopthebop.com.

Stay Informed: Follow @stop.thebop and @volunteerfirefoundation on Instagram for updates on our progress and ways you can get involved.

The strength to fight

You don’t know how strong you are until being strong is the only choice you have. For those of us with Lyme disease, that strength is something we’ve had to find over and over again. The California Board of Pharmacy might think they can push these regulations through without a fight, but they underestimate us. They underestimate the power of a community that knows what it means to fight for every ounce of health.

Together, we’re going to stop the BOP.

Follow us on Instagram @stop.thebop and @volunteerfirefoundation.

Crystal A. Frost is Southern California leader of Stop The BOP.

————n

This is indicative of what Lyme patients deal with on an ongoing basis. If a doctor can enhance your chances of recovery they don’t need an association board standing in their way. In this case, the add-ons aren’t expensive in the big scheme of things and can make all the difference for patients.

This happens because of the bias against Chronic Lyme Disease. The more doctors who deny that Chronic Lyme exists the government and insurance companies will refuse to pay for treatment. I don’t see this changing shortly because it’s all about money.

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Moving Forward

September Awareness Months And Days

The main days and months you should know about for September are:

National Suicide Prevention Awareness Month September 1
Blood Cancer Awareness Month  September 1
National Food Bank Day 1st Friday
International Literacy Day September 8
R U OK Day September 9
World Suicide Prevention Day September 10
Hispanic Heritage Month September 15
International Day of Peace September 21
International Day of Sign Language September 2

National Public Lands Day                                                                                                 Saturday 4th

Achalasia Awareness Month

Alopecia Awareness Month

Animal Pain Awareness Month

Blood Cancer Awareness Month

Childhood Cancer Awareness Month

Craniofacial Awareness Month

Falls Prevention Month

Gynecologic Cancer Awareness Month

Healthy Aging Month

Hispanic Heritage Month

 

We have so much to educate ourselves on and to advocate for to make a better future. I apologize for the inconsistent graph, that is the way it was copied. 

Melinda

Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Mental Illness · Moving Forward

When a Loved One Denies Their Bipolar Diagnosis

By Julie A. Fast 

Medically Reviewed by Allison Young, MD

Last Updated: 21 Aug 2024

Although it’s incredibly frustrating when someone is in denial of having bipolar disorder, it’s important to remember that acceptance cannot be forced.

It can be upsetting, stressful, and downright incomprehensible when someone with a diagnosis of bipolar disorder denies the mental health condition and refuses treatment. You may find yourself watching helplessly as behaviors tied to untreated bipolar lead to family distress, broken relationships, problems at school and work, money woes, and alcohol and drug abuse.

If you try to help someone in denial, you will probably be accused of interfering if you even mention the word “bipolar.” This is confusing, because it’s very easy for you to see what’s wrong, and naturally you want to point out the problem in hopes that the person will then get help. Often, however, your attempt just makes things worse.

RELATED: 8 Essential Things to Know When First Diagnosed With Bipolar Disorder

It hurts when a person in denial shuts you out, but, sadly, it’s common.

What’s even more confusing is that you can have an honest conversation about bipolar when your loved one is stablereviving your hopes that the person will enter or stick with treatment. Then … boom! Here comes the denial again.

Learning to Accept That Your Loved One Is in Denial About Their Bipolar Diagnosis

It may be cold comfort to learn that it is very typical behavior for people with bipolar disorder to deny they are “sick” and to avoid treatment, even if they have been in the hospital or taken medications for bipolar in the past.

Also, it’s important to remember that people in denial are usually miserable, in a great deal of internal pain, and can’t see a way out. It’s easy to believe they really can’t see what’s going on. But unless denial is a result of a mood swing — such as strong mania or paranoia — the affected individuals usually know what is happening. They respond to your concern with aggression, because they are trying to protect their decision to deny the brain-based disorder.

It hurts when a person in denial shuts you out, but it’s common. The person prefers to be around others who don’t mention bipolar, and will paint you as the “bad guy” because you are the one who is stating the truth.

RELATED: 10 Ways to Support Someone Who Has Bipolar

There is good news, however. I’ve talked with hundreds of people who moved through denialto eventually admitting that bipolar is at the root of their problems and they needed help. Over and over again, I’ve been told how, despite their relentless inner pain and confusion, they refused help and pushed away the people who cared about them.

It’s when someone realizes they no longer want a life controlled by bipolar disorder that they begin to listen to loving advice instead of fighting back.

Steps to Take When a Loved One Is in Denial About Their Bipolar Diagnosis

If your loved one continues to be in denial of their bipolar diagnosis, here are a few things to keep in mind.

  • Find the sweet spot: Are there periods when your loved one is more open to discussion? Oftentimes, people are more receptive during a mild depressive episode. Once you see a pattern in your loved one’s moods, you’ll have a better sense of when to gently start a conversation.
  • Set expectations: If a loved one with bipolar is living with you, you have the right to set expectations for behaviors, such as drug use, drinking, yelling, staying in bed all day, staying out all hours, and yes, refusing treatment. You are always in control of what works best for you. It’s not always about the person with the mental health condition. It will be up to you to decide the consequences — and set and reinforce boundaries — if your expectations aren’t met.
  • Understand the challenges: Always remember that bipolar is a mental health condition. No one chooses to have bipolar disorder. People in denial can be very unpleasant, and it’s easy to walk away from them, but don’t forget they are suffering. It’s okay to address this directly. Go ahead and say you understand that it must be hard to have someone tell you what to do. Say that you can tell they feel misunderstood. People in denial may get angry or refuse to reply, but they have heard you. Many times, when they get better, they will tell you they heard you.
  • Hold onto hope: I’ve known many people who accepted treatment after years of being in denial, often when loved ones learned simple strategies and got them help at the right time. It isn’t easy to hang on until then. Nothing with bipolar disorder is easy! But bipolar is treatable, even for those who currently refuse to admit they are unwell and need help.


UPDATED: Printed as “Fast Talk: The Denial Factor,” Summer 2011

Julie A. Fast

Julie A. Fast is the author of the bestselling mental health books Take Charge of Bipolar DisorderLoving Someone with Bipolar Disorder: Understanding and Helping Your PartnerGetting It Done When You’re DepressedOMG, That’s Me! (vol. 2), and The Health Cards Treatment System for Bipolar Disorder. She is a longtime bp Magazine writer and the top blog contributor, with over 5 million blog views. Julie is also a researcher and educator who focuses on bipolar disorder prevention and ways to recognize mood swings from the beginning—before they go too far and take over a person’s life. She works as a parent and partner coach and regularly trains health care professionals, including psychiatric residents, pharmacists, general practitioners, therapists, and social workers, on bipolar disorder and psychotic disorder management. She has a Facebook group for parents, The Stable Table, and for partners, The Stable Bed. Julie is the recipient of the Mental Health America excellence in journalism award and was the original consultant for Claire Danes’s character on the TV show Homeland. Julie had the first bipolar disorder blog and was instrumental in teaching the world about bipolar disorder triggers, the importance of circadian rhythm sleep, and the physical signs of bipolar disorder, such as recognizing mania in the eyes. Julie lives with bipolar disorder, a psychotic disorder, anxiety, and ADD.

Melinda

Celebrate Life · Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Mental Illness · Moving Forward

13 Celebrities Who Embrace Their Bipolar Disorder

 

These 13 celebs accept their bipolar and are using their platforms to break the stigma and push for acceptance of brain-based conditions.

By Jade Zora Scibilia

Whether you love them or “love to hate them,” celebrities can make a real difference, especially when they take a stand for something positive. The following stars with bipolar disorder use their fame (and occasional notoriety) to draw our attention to what really matters, start meaningful conversations among loved ones and policymakers, break the silencing effect of social stigma, and enhance both awareness and acceptance of this brain-based disorder. These celebrities — among others — have had a life-affirming, morale-boosting impact. Whether through a “tell-all” interview or memoir, a powerful pop song, or a moving on-screen performance, these stars continue to rally people with bipolar — and their supporters — to power through and find the hope of a new day.
1. Faye DunawayIn the HBO documentary Faye, the iconic Faye Dunaway, now 83, talks about her lifelong battle with mental health, including her bipolar disorder diagnosis.“Emotion is a strength, not a weakness,” she shared with The Independentat the documentary’s premiere in Cannes in May 2024. Dunaway reflects on how her intense emotions fueled her performances but also contributed to her reputation for being difficult on set — earning her the nickname “the dreaded Dunaway” (and “Dread” for short) from Jack Nicholson during Chinatown. In the documentary, Dunaway candidly discusses how she’s worked with doctors and taken medication to manage her mood swings. She acknowledges it’s been difficult, but “it’s something I’ve had to deal with and overcome and understand. It’s part of who I am.” 
2. Alan RitchsonYou may know Alan Ritchson as the star of Prime Video’s Reacher, but did you know he also lives with bipolar disorder? Diagnosed at 36, the now 41-year-old actor has been open about his struggles.“As much as I would like to ignore that I’m a suicide survivor, if I didn’t share what I’ve learned, I feel like my life would be meaningless,” Ritchson told CBC Radio’s “Q” program. “I’ve always been a happy-go-lucky guy, but once you experience the grip [of depression] — the talons it can sink into you — you realize how sinister this thing is and how out of control the biology can really be.”

Click to Read More

Jade Zora Scibilia is a former editor at bpHope, bp Magazine and Esperanza. She was formerly the managing editor at Prometheus Booksand the senior editor of Seventh Street Books and Pyr. She is also the author of two nonfiction children’s books.


I applaud anyone who steps out and embraces their mental illness, there is still a stigma, and those who are public about it are brave and very strong.

Melinda

References:
https://www.bphope.com/bipolar-buzz/celebrities-who-embrace-their-bipolar-disorder/?utm_source=iContact&utm_medium=email&utm_campaign=bphope&utm_content=BUZZ+-+Aug25+-+Celebrities

Chronic Illness · Communicating · Health and Wellbeing · Men & Womens Health · Mental Health · Trauma

National Grief Awareness Day August 30

Grief has touched millions of lives at one point or another and many have grieved several times. I know grief well, two of my close friends in high school died, my father died in 1992, my Granny died in 2005 and my Gramp’s in 2010. Everyone grieves differently and there is no time frame regardless of what people say. Who would tell a parent how long to grieve for their child, I would pray that no one is that uneducated. My father commited suicide and I spent seven years grieving yet as much as I loved my Grandparents and as close as we were, I grieved less. Maybe it was because I was a caregiver to both.

The key to grieving is giving yourself the time you need yet not get stuck there. We all have to move forward.

What Is National Grieving Awareness Day About?

This National Grief Awareness Day on August 30 is dedicated to raising awareness of the myriad ways in which individuals cope with loss. It offers resources to those going through personal losses and reminds us to support people we know who are grieving. National Grief Awareness Day, founded by Angie Cartwright in 2014, hopes to encourage open communication on loss and bereavement and better inform the public on the facts of grief.

Grief is one of the oldest and most enduring aspects of the human experience. If you haven’t yet experienced grief, it’s unfortunately likely to happen. The term ‘grief’ encompasses all of the emotions around a loss, and ‘mourning’ is defined as the external expression of the pain. ‘Bereavement’ is another commonly-used term for grief. Throughout human history, there have been many attempts to describe and heal grief, and they have changed significantly over the years.

Due in part to our vastly improved physical and mental healthcare, grief is understood far differently today than even as little as 100 years ago. While we often have the privilege (for some, even the expectation) of only losing our loved ones when they are at a ripe old age, comfortable, and with family nearby, this has rarely been the case throughout history. The lack of modern transportation often separated loved ones, wars ravaged populations, and poor medical and sanitation knowledge led to too many untimely deaths. Throughout history, the deaths of loved ones have been far more common, and grief was understood differently.

Melinda

References:

National Grief Awareness Day

Celebrate Life · Chronic Illness · Communicating · Health and Wellbeing · Men & Womens Health · Mental Illness

Are TV Depictions of Bipolar Helpful or Harmful? 

By Stephanie Stephens 

Medically Reviewed by Allison Young, MD

Last Updated: 16 Feb 2024

TV characters with Bipolar Disorder can show that treatment leads to stability. But dramatized portrayals of manic extremes may perpetuate stigma and misconceptions.

“Surely there is someone out there who will take me for who I am: the good, the bad, the full story of love.”

That’s award-winning actor Anne Hathaway as Lexi, prognosticating optimistically about her romantic future as a woman with bipolar disorder. Lexi’s adventures take up the third episode of Modern Love, an Amazon Prime Video streaming series that debuted in October 2019.

At the splashy New York City premiere that Amazon hosted to launch the series, Hathaway did a bit of optimistic prognosticating herself — namely, that her Modern Love segment would help make it easier for people to put bipolar on the table.

“I think those conversations are starting to happen,” she told Variety, adding that people weren’t putting off those talks because of shame “but because we don’t know how to start.”

Hathaway brought up another important point about seeing characters with bipolar on TV: Making the condition, and those who live with it, visible in the mainstream.

“This episode is going to mean so much because it offers some form of representation,” she said.

How Bipolar Disorder Is Represented on TV

For viewers today, the question isn’t so much whether people with bipolar are represented on TV shows, but rather what form that representation takes. Is it more like reckless Ian Gallagher on Showtime’s Shameless? Or more like Kat, the struggling figure skater at the heart of the Netflix original series Spinning Out?

Ian (played by Cameron Monaghan) embraces denial and mostly avoids treatment. Over the show’s 10 seasons, he’s been prone to poor judgment and rash acts — including trying to steal an Army helicopter. He’s gone through stints of sexual promiscuity and fallen into religious fanaticism. (Truth to tell, though, he’s far from the only troubled member of the dysfunctional Gallagher clan.)

Over on Spinning Out, which debuted in January 2020, Kat (Kaya Scodelario) couldn’t be more different. Sure, she’s got her romantic difficulties, her mother-daughter drama, her angst over where to take her skating career. But managing her bipolar slots quietly alongside all the other challenges in her life.Lest we miss out on negative stereotypes, however, Kat’s mother also has bipolar. She’s shown behaving unpredictably and aggressively when she gets lackadaisical with her meds.

Do These Representations Help or Harm?

For Anita of Mt. Vernon, Illinois, portrayals of bipolar on TV do more to mislead than to educate because there’s no way they can be well-rounded and realistic. For one thing, there’s a lot about living with bipolar that just doesn’t make for good drama — or comedy.

“There’s absolutely nothing glamorous, hilarious, or entertaining about actually having bipolar illness,” says Anita, who received her bipolar 2 diagnosis at age 15. “The audience would not be interested in a character who just lies in bed [onscreen] and cries for 30 minutes straight.”

For another, the time limits on television programming make it impossible to accurately show the long, arduous arc of maintaining wellness.

“People are conditioned to believe that all of life’s problems can be resolved in less than an hour because television and movies have taught us that,” Anita says.“Having people around us who are ‘enter-trained’ to believe that their favorite beloved character got through her panic attack in the last episode with flying colors doesn’t help the rest of us at all,” she says. “Real life doesn’t work that way.”

Aiming for Accurate Depictions of Bipolar Disorder

Within the constraints of the genre — and the selective editing that necessarily goes into shaping a script — the people who produce and write TV shows nowadays try not to let gross inaccuracies filter through. Actors do their research, too, reading up on bipolar and consulting with people who actually walk the walk.

Each of Modern Love’s eight episodes is based on a first-person essay from the weekly New York Times column of the same name. Hathaway’s episode was inspired by a piece titled “Take Me as I Am, Whoever I Am,” by Hollywood entertainment lawyer-turned-author Terri Cheney.

Translated to the small screen, we have Hathaway as an attractive, successful Manhattan attorney hoping to move beyond dating into a meaningful relationship. That’s not so easy while trying to hide her bipolar moods.

Instead of dishing up a happily-ever-after romantic finale, the episode ends on a hopeful, truthful note. Hathaway’s character decides to be upfront about all aspects of herself, adding her diagnosis to her online profile on a dating website.

Of course, the hope and the truth originally belonged to Cheney. Before her essay was published on January 13, 2008, Cheney kept her bipolar 1 disorder on the down low. Publishing in the NYT column was her loud-and-proud moment.

“At that time, there wasn’t a vocabulary for the way it really feels to have bipolar disorder,” recalls Cheney, who went on to publish the memoirs Manic and The Dark Side of Innocence. “Writing helped me feel like I control the experience, that I own it and it doesn’t control me anymore.”

For the TV adaptation, Amazon’s production team sought Cheney’s input. She also had discussions with Hathaway, who pored over Manic to get a better feel for her role.

Is the episode perfect? Cheney wouldn’t change a thing about it — and especially adores the musical elements, a trademark of director John Carney — but concedes that “you can’t be all things to all people. A 30-minute episode has to be condensed for dramatic purposes. For example, my own mood switches are not that instantaneous.”

A Daytime Drama’s Truth About Bipolar Treatment

In 2006, half a decade after prime-time TV took the plunge, mob boss Sonny Corinthos was diagnosed with bipolar 1 on ABC’s iconic soap opera General HospitalMaurice Benard, whose own bipolar was diagnosed at age 22, has played Sonny since 1993 — netting two Emmys over the years.

Even as his character brought bipolar to the notice of the show’s viewers, Benard spoke candidly about real-life experiences in interviews and other public settings.

In his memoir Nothing General About It: How Love (and Lithium) Saved Me On and Off General Hospital, Benard writes more in-depth about the challenges of controlling his mood symptoms while filming on a daily basis and about the support he received from colleagues.

Benard has told bp Magazine that he “gave a ton of input” on how a mood episode and managing bipolar might play out. For example, he insisted Sonny be shown taking his meds.

On occasion, Benard objected to elements in certain scripts. As an industry insider, however, he accepts that the nature of a melodrama sometimes works against accuracy.

The Young and the Restless, aka Y&R, gave long-running character Sharon Newman a bipolar diagnosis in 2012. Josh Griffith, co-executive producer and head writer of the CBS soap, put considerable thought into responsibly portraying a character with bipolar.

“I looked at some of the emotional journeys the character had taken over the years, picked up what seemed to be a pattern of up-and-down behavior that might fit with bipolar disorder, and saw a chance to, (a) tell a compelling and dramatic story, and (b) explore an important and topical issue that affects millions of people,” he says. “We wanted to be medically accurate with both behavior and treatment, and as dramatic as possible,” he adds.

The Harm of Stereotypes on TV

As far as greater representation in mainstream programs, Cheney doesn’t think television in general has normalized bipolar because stereotypes still prevail most of the time. Notably, “plotlines when a character goes off their medications and becomes manic. … I felt it inferred blame on people for their condition,” she explains, apologizing if she sounds “cranky” about it all.

Nevertheless, Cheney remembers being “so excited that bipolar disorder was being acknowledged at all” when the NBC hospital drama ER introduced the character of Maggie Wyczenski 20 years ago.

Sally Field won an Emmy for her portrayal of Maggie, who first appeared in the November 16, 2000, episode called The Visit. She dropped in on her daughter, Abby Lockhart, one of the show’s main characters. Maggie returned in another 11 episodes over the following seasons, usually demonstrating some extreme or disruptive behavior feeding into a dramatic conflict.“Now I sort of cringe to see how over-the-top her character was when she was manic — wearing a skimpy red dress and flirting shamelessly with all the young interns,” Cheney says. “It’s not exactly inaccurate, just less nuanced than we are today.”

Increased Representation of Bipolar Disorder on TV

Maggie seemed to blow open a door for the industry. In 2001, the HBO comedic drama Six Feet Under went even further, including a character with bipolar as a regular part of the ensemble cast. While not one of the central figures, Billy Chenowith (Jeremy Sisto) familiarized viewers with the fact that bipolar is a treatable condition.

Over the show’s five seasons, however, Billy sometimes went off his meds with stereotypically destructive results. As the Los Angeles Times noted, “Billy can be sullen, seductive, filled with rage or decimated by self-loathing, depending on whether he’s taken his medication.”

Throughout the decade, that remained the motif on a variety of programs: a minor, recurring or ensemble character exhibiting manic behavior if not in treatment — but also demonstrating that medication can pave the way to stability.

Then came Homeland.

The Showtime spy thriller, which premiered in October 2011, puts its character with bipolar front and center. That would be CIA officer Carrie Mathison, played by high-profile actor Claire Danes. Carrie is a top-ranking counterterrorism agent, operating in a high-pressure environment. Her bipolar is an integral aspect of her characterization and a seamless element in the plot.

No one would put Carrie on a pedestal for carefully managed wellness, but she introduced viewers to a more complex view of living with bipolar. She’s shown choosing to go off her meds in order to exploit the sharper thinking of hypomania. She demonstrates obsessive behavior during manic episodes. Her depressive episodes get written into the script.

Some critics slammed Homeland for sensationalizing the disorder. Hannah Jane Parkinson, a columnist for the British newspaper The Guardian, was one viewer who argued back. Parkinson, who has bipolar, found Danes’ portrayal “accurate and refreshing.”

The 2014 opinion piece continued: “Most of the time, the show gets it right. … In a world in which mental health stigma is still devastating, it’s fantastic that films and TV programs are upping their game when it comes to representation.”

How Actors Prepare to Play a Character With Bipolar Disorder

Danes captured two Emmys for her work on Homeland. As with Hathaway on Modern Love, she turned to Cheney’s memoir Manic as part of her research on how to play the character.

“Claire is a terrific actor, and yes, there were episodes of [Carrie] going off her meds, but she paid more attention than usual to her character’s bipolar disorder,” says Cheney. “She did a very good job at representing depression.”

Showtime initially consulted Julie A. Fast, an author, speaker, and personal coach specializing in mood disorders. Homeland’s showrunners enlisted Fast’s help before filming the pilot and used her book Take Charge of Bipolar Disorder to help develop Danes’ character.

“Claire was wonderful, lovely, down-to-earth and very welcoming, and tried really hard to get bipolar right,” says Fast, a longtime bp Magazine columnist. “She treated me beautifully as an equal and asked very intelligent questions, especially about mania.”

Unfortunately, Fast says, her own illness didn’t sync well with the stressful demands of that job.

“I love the work, but have to find a balance between the TV world and my own stability. This creates a lot of loss — and [that’s] not something the TV shows talk about very often,” she muses.

What TV Shows Have Gotten Right About Bipolar

One thing Homeland did get right, Fast says, was illustrating “the superpowers we feel during a euphoric manic episode.”

She adds, “Going off meds to intentionally get manic is a very realistic portrayal of how we want the meds to help with depression, but often we miss the high energy of being manic.Mania makes us feel invincible. And as always happens, Claire’s character made terrible decisions when she went off her meds.”

Fast praises Homeland for showing the fallout of Carrie’s decisions when they didn’t end well or safely.

Alas, Homeland wrapped in spring 2020. Ditto for Fox’s Empire. That series about scheming music executives in New York City, which first aired in 2015, also concluded in 2020. 

The character of Andre Lyon on Empire moved depictions of bipolar a huge step forward. He has a successful management career, nimbly navigating the treacherous waters of the family dynasty. He has a business degree from the prestigious Wharton School. He’s in a stable marriage with his college sweetheart. (He’s also a Black man, bringing a whole new dimension to representation.)

Mental health activist Ruth C. White, PhD, MPH, MSW, singles out Andre as a more realistic example of someone with the disorder than is usually seen. He’s active and effective, follows his treatment plan, and is able to successfully manage stress.

“He sees his doctor to tweak his meds on occasions and… doesn’t fall apart when his baby dies,” White, a clinical associate professor of social work at the University of Southern California, told VH1.

Storytelling and Social Awareness of Bipolar

“On screen, it’s really important to continue to reinforce what bipolar disorder is and what it is not,” says Marie Gallo Dyak, president and CEO of the Entertainment Industries Council.

“Stories tell us that people can be accurately diagnosed, can be safely treated, be productive, and sustain a lifestyle they are comfortable with,” she says. “These are really important stories that need to be told.”

The council is a Hollywood watchdog group established in 1983 to promote accurate depictions of behavioral health and social issues in films, TV shows, and other media. It provides science-based resources to scriptwriters and their colleagues.

Dyak has definitely seen big strides forward. She says bipolar “is more mainstream than when we first started talking about it — especially in a clinical way.… Now, when someone says something about bipolar disorder, it’s not uncomfortable.”

Some advancements may be more subtle, she notes. For example, “instead of someone asking, ‘What’s wrong with you?’ [in a scene], a character can ask, ‘What’s happened to you?’”

Fast keeps her finger on the pulse of how bipolar is shown in various media and measures progress in increments. In her opinion, greater representation on the small screen has increased awareness of mental health challenges.

Compared to a decade ago, she sees more open and uplifting dialogue in both post-show chatter on social media and in general. Despite the limited lens on living with the illness, every character we see on TV does a little bit to chip away at silence and stigma.

“Is it positive?” Fast asks rhetorically. “Absolutely.”

The Persistence of Bipolar Stereotypes on TV

In fall 2017, Declan O’Hern, then a communications student at Elon University in North Carolina, authored a research paper that analyzed portrayals of bipolar disorder in television dramas over the preceding decade.

O’Hern noted that at least 16 TV shows since the early 2000s incorporated characters with bipolar either as a protagonist or recurring character. She tracked the accuracy of depictions in ERFriday Night LightsShamelessHomelandEmpire, and the Canadian franchise Degrassi.

Factors included how treatment and recovery were shown, the character’s social and professional functioning, and incidents of dangerous or violent behavior blamed on the illness.

O’Hern cited earlier entertainment tropes that linked “the actions of murderers, molesters [and] egomaniacs” to mental disorders. That was in the dark ages before mental health awareness campaigns and school curricula on mental wellness. However, more recent TV scripts still rely on exaggerated behaviors — as might be expected from writers looking to provide a dramatic hook.

“All shows collectively hit on almost every stereotype at least once and, in general, television depicted violent and criminal behavior far too often,” O’Hern concluded.

Furthermore, the shows frequently failed to put such behaviors in context to make the actions more understandable.

On the plus side, O’Hern added, viewers were given more realistic exposure to the existence of professional incompetence, unwillingness to accept treatment, and the fact that recovery doesn’t happen instantaneously.

The final verdict: “Despite recent progress, contemporary bipolar protagonists still have progress to make before depictions can be classified as wholly realistic.”

Stephanie Stephens, M.A is an 18-year journalist and content producer, specializing in health and healthcare, investigations, celebrities, pets, lifestyle, and business. She writes for magazines and online publications, networks, hospitals and health systems, corporations, nonprofits, government agencies, as well as advertising and marketing agencies. Her work has appeared in Kaiser Health NewsEveryday HealthWebMD, in content for the American Academy of NeurologyNational MS SocietyAmerican Heart AssociationAmerican Lung Association, and more. She has written for TODAY.com, Family Circle, Cooking LightParadeUSA Today and others. She’s currently producing a television series, and completed her master’s in journalism at New York University. Stephanie has lived in 16 cities, is a resident of New Zealand by application, and is committed to improving animal welfare. Follow Stephanie at mindyourbody.tvLinkedInTwitterInstagram, and YouTube.

I have often felt the media does not depict Mental Illness correctly, how could they if the writers do not have a Mental Illness. Not to mention that media is all about drama and making money. If depicted correctly it wouldn’t always make for the best ratings. That’s why we have to look beyond the surface for reality, reality TV is not the least bit of reality.

Melinda

Chronic Illness · Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health · Tick Borne Illnesses

Treating Neurologic Lyme Disease with Hyperbaric Oxygen

Important Read

By Fred Diamond

Many listeners of my Love, Hope, Lyme podcast ask me to go deeper on some treatment topics that I mention in my book “Love, Hope, Lyme: What Family Members, Partners, and Friends Who Love a Chronic Lyme Survivor Need to Know.” One such topic is hyperbaric oxygen treatment (HBOT).

On today’s Love, Hope, Lyme podcast, Dr. Mo Elamir of the Aviv Clinics in Florida clarifies what HBOT is and how it may benefit those with persistent Lyme disease.

Breathing new life into Lyme treatment

Amidst the search for effective treatments, HBOT has emerged as a compelling approach, possibly offering new hope for those battling the persistent effects of chronic Lyme disease.

HBOT involves breathing pure oxygen in a pressurized environment. This method significantly increases the amount of oxygen in the blood, facilitating the body’s natural healing processes.

Dr. Elamir, a leading physician at Aviv Clinics, explains the transformative impact of HBOT on Lyme disease patients: “By increasing the oxygen levels in the body under pressure, HBOT can break through the biofilm that protects Lyme bacteria, which are often anaerobic and thrive in low-oxygen environments. This process can destroy the bacteria and lead to significant improvements in neurological function.”

The specific HBOT protocol used at Aviv Clinics involves fluctuating oxygen levels, a technique designed to trigger the body into a state of healing. This healing process includes the growth of new stem cells and blood vessels, improved mitochondrial function, and the repair of damaged brain tissue.

“Our approach is highly individualized, focusing on each patient’s unique needs and the specific ways Lyme has affected their neurological health,” says Dr. Elamir.

How Lyme impacts the brain

Lyme disease affects an estimated 60 million people worldwide in its chronic stage. The disease can invade various parts of the body, including the brain, where it causes a range of neurological symptoms.

These symptoms can be particularly challenging to diagnose and treat, often leaving patients in a state of cognitive fog, battling memory loss, and struggling with anxiety and depression.

Dr. Elamir provides critical insights into how Lyme disease can affect the brain. “The bacteria that cause Lyme disease, Borrelia burgdorferi, are spirochetes that can invade the brain, leading to symptoms such as brain fog, memory problems, anxiety, depression, and even issues with movement, coordination, and balance,” he explains.

“These symptoms can vary greatly from person to person, depending on how the disease affects their nervous system.”

One of the most challenging aspects of chronic Lyme disease is that its neurological effects are often dismissed or misdiagnosed.

“Standard tests like MRIs and nerve conduction studies may not reveal the subtle dysfunctions caused by Lyme,” Dr. Elamir points out. “As a result, many patients are told that their symptoms are ‘all in their head,’ leading to frustration and a sense of isolation.”

Stress: a catalyst for symptom reactivation

Stress plays a significant role in the reactivation of Lyme symptoms. Dr. Elamir explains that various stressors—whether physical, emotional, or even as minor as a common cold—can trigger the dormant spirochetes in the brain to become active again.

“Stress can cause these bacteria, which might have been lying dormant in the brain, to reemerge, leading to a resurgence of neurological symptoms,” he notes. This makes stress management a critical component of care for Lyme survivors.

The spirochetes’ ability to remain dormant and reemerge under stress is one of the reasons why Lyme disease can be so difficult to treat. Even after successful treatment with antibiotics, the bacteria can remain hidden in the body, waiting for an opportunity to resurface.

Comprehensive assessment and tailored treatment

At Aviv Clinics, treatment begins with a comprehensive assessment that spans three to five days. This in-depth evaluation includes structural and functional imaging of the brain, neurocognitive testing, and a thorough medical evaluation. One of the key tools used in this assessment is SPECT (Single Photon Emission Computed Tomography) scanning.

“SPECT scans allow us to see the metabolic function or dysfunction within the brain,” Dr. Elamir explains. “This is crucial because standard MRIs primarily show the structure of the brain, but SPECT scans give us a clearer picture of how Lyme disease has affected the patient’s neurological health.”

Based on the assessment, the clinic develops a personalized treatment plan that includes HBOT as a cornerstone therapy. But HBOT is just one component of a broader treatment protocol that also includes neurocognitive training, physical therapy, vestibular therapy (for balance issues), and psychotherapy.

Healing the mind alongside the body

Psychotherapy plays a crucial role in the recovery process for many Lyme survivors. As the brain begins to heal, patients may experience a resurfacing of traumatic memories or new psychological challenges. The clinic’s psychotherapists work closely with patients to help them navigate these changes and provide them with the tools they need to cope.

Cognitive Behavioral Therapy (CBT) is one of the most common forms of psychotherapy used at Aviv Clinics.

“CBT helps patients understand their symptoms, process their emotions, and develop strategies for managing anxiety, depression, and other psychological challenges,” says Dr. Elamir. Group therapy sessions are also offered, allowing patients to connect with others who are going through similar experiences.

The role of diet in neurological health

Diet is another critical aspect of treatment at Aviv Clinics. Dr. Elamir emphasizes the importance of following a diet that supports neurological health.

“One of the most effective diets for this purpose is the ketogenic diet, which has shown significant benefits for people with neurological conditions,” he says.

Originally developed for children with epilepsy, the ketogenic diet involves consuming high-fat, low-carbohydrate foods that induce a state of ketosis, where the body burns fat for fuel instead of carbohydrates. This can lead to improvements in brain function and a reduction in neurological symptoms.

Intermittent fasting is another dietary approach that can be beneficial for Lyme survivors.

“Intermittent fasting has been shown to improve metabolic processes and reduce inflammation, which can support the healing process in Lyme disease,” notes Dr. Elamir. This involves eating all meals within a specific window of time each day, such as an eight-hour period, and fasting for the remaining 16 hours.

Dr. Elamir also advises patients to reduce their intake of processed sugars, which can exacerbate inflammation and contribute to chronic health issues. “Minimizing sugar intake is essential in managing Lyme disease because it is characterized by chronic inflammation,” he explains.

Addressing co-infections

Co-infections are a common complication of Lyme disease. These are other infections transmitted by the same tick that carries Lyme disease, such as Bartonella and Babesia. These co-infections can cause their own set of symptoms and make the treatment of Lyme disease more complex.

“HBOT can also be effective in treating these co-infections,” says Dr. Elamir. “The increased oxygen levels can help destroy the bacteria responsible for these infections, while the overall treatment protocol supports the repair of any damage caused by the body’s immune response to the infection.”

Click here to listen to all episodes of the Love, Hope, Lyme Podcast or on YouTube.

Learn more about the Aviv Clinics here.

Fred Diamond is based in Fairfax, Virginia and can be contacted via Facebook. His popular book, “Love, Hope, Lyme: What Family Members, Partners, and Friends Who Love a Chronic Lyme Survivor Need to Know” is available on Amazon. The e-version of the book is always free to Lyme survivors. PM Fred on Facebook for your copy.

Melinda

Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health

What You Need to Know About Massage Therapy for Fibromyalgia

Medically reviewed by Gregory Minnis, DPT, Physical Therapy — Written by Traci Pedersen on May 26, 2023

Massage therapy can reduce pain and improve overall well-being in people with fibromyalgia.

Living with fibromyalgia can be challenging, as the condition is characterized by chronic pain, fatigue, and sleep disturbances. 

While medications can be helpful for managing some symptoms, they don’t work for everyone. Many individuals turn to complementary treatments, such as massage therapy, for relief. 

Massage therapy has been shown to manage pain, improve sleep, and reduce anxiety and depression.

What kind of massage is best for fibromyalgia?

Massage therapy involves the manipulation of soft tissues such as muscles, tendons, and ligaments to promote relaxation and relieve tension.

Here are some types of massage that may be beneficial for people with fibromyalgia:

  • Swedish massage: Swedish massage is a gentle form of massage that uses long strokes, kneading, and circular movements on the topmost layers of muscles. It’s effective for reducing muscle tension and promoting relaxation.
  • Myofascial release: Myofascial release targets the connective tissue (fascia) surrounding the muscles. A review of six studies found that myofascial release (both therapist- and self-administered) significantly improved pain, quality of sleep, and quality of life right after treatment. It also had a moderate effect 6 months post-treatment.
  • Trigger point therapy: This technique involves applying pressure to specific points on the body that are believed to be sources of pain. It uses various techniques such as compression, stretching, and massage to alleviate pain and discomfort. 
  • Shiatsu: Shiatsu is a form of Japanese massage that involves applying pressure to specific points on the body to relieve tension and promote relaxation. Shiatsu is believed to trigger the release of endorphins, which are the body’s natural pain relievers.
  • Thai massage: Thai massage combines acupressure, stretching, and compression techniques to promote relaxation, improve flexibility, and reduce anxiety. 
  • Connective tissue massage: This type of massage focuses on manipulating the fascia that surrounds muscles and bones. It’s often used as part of manual therapy (a variety of hands-on techniques) used by physical therapists, chiropractors, and massage therapists to help reduce pain and improve mobility.

Is massage therapy effective for fibromyalgia?

ResearchTrusted Source suggests that massage offers several positive effects on various aspects of fibromyalgia, including reducing pain, anxietydepression, and sleep disturbances. These benefits are likely due to a combination of physical and mental mechanisms. 

For instance, physical pressure and manipulation during massage may help reduce muscle tension and increase blood flow, which can help alleviate pain and improve physical function. 

At the same time, the relaxation and stress-reducing effects of massage can have positive effects on mental well-being, including reducing anxiety and depression and improving sleep quality. 

The overall result is a complex interaction between physical and mental factors that can improve overall health and well-being for individuals with fibromyalgia.

One 2020 studyTrusted Source found that manual therapy with moderate pressure on the posterior cervical muscles (a group of muscles located at the back of the neck) in people with fibromyalgia helped reduce pain, muscle fatigue, and anxiety. Further research is needed in a larger population.

What are the benefits of massage for fibromyalgia?

Massage therapy can provide several benefits for people with fibromyalgia, including:

  • pain relief
  • improved sleep
  • reduced stress and anxiety
  • increased range of motion
  • improved mood

How does massage therapy for fibromyalgia work?

Massage therapy for fibromyalgia is believed to work in several ways. First, it releases tension in muscles and trigger points, which can help reduce pain and stiffness.

Additionally, massage therapy may also release endorphins and increase levels of the neurotransmitters serotonin and dopamine in the body, which can help regulate mood and improve sleep.

Can massage make fibromyalgia worse?

In some cases, massage may temporarily worsen fibromyalgia symptoms. This can occur if your massage therapist applies too much pressure or uses techniques that are too aggressive for your condition. 

However, it’s important to note that 75%Trusted Source of people with fibromyalgia seek massage therapy, which suggests that it’s quite helpful. So, even though massage can be fairly painful at times, many people with fibromyalgia continue to use it for its long-term benefits.

Will insurance cover massage therapy for fibromyalgia?

Insurance coverage depends on your insurance policy and the specific treatment plan prescribed by a healthcare professional. Some insurance plans may cover a certain number of massage therapy sessions as part of a treatment plan, while others may not cover it at all. 

It’s best to check with your insurance provider or healthcare professional to determine coverage options. Additionally, some massage therapists may offer a sliding scale fee or accept insurance directly, so it’s worth exploring different options.

Bottom line

Massage therapy may be an effective option for reducing pain, stiffness, and fatigue for people with fibromyalgia. It may also improve mood, sleep, and overall quality of life. 

Several types of massage may help with fibromyalgia, including myofascial release, Swedish massage, and shiatsu.

If you’re interested in massage, it’s important to look for a licensed massage therapist in your area who’s trained and experienced in treating fibromyalgia. You can search online or ask for recommendations from a healthcare professional or friends.

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Fire

We’re in the dog days of summer in Texas, yesterday was one degree below the record at 107 degrees, and it’s oppressive outside after 7:30 am. Due to my ongoing challenges with Anemia, I’m always freezing. At 4:30 am this morning I’m wearing a sweater buttoned up all the way, long pants, wool gloves, covered in a wool blanket, and yet the fireplace is needed to stop me from shacking. At least the fireplace in my office is relaxing.

Melinda

Chronic Illness · Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health · Tick Borne Illnesses

Biologists map the DNA of 47 strains of Lyme disease

Important Read

By City University of New York

A team led by CUNY Graduate Center biologists has produced a genetic analysis of Lyme disease bacteria that may pave the way for improved diagnosis, treatment, and prevention of the tick-borne ailment.

Weigang Qiu, a professor of biology at the CUNY Graduate Center and Hunter College, and an international team mapped the complete genetic makeup of 47 strains of Lyme disease-related bacteria from around the world. This created a powerful tool for identifying the bacterial strains that infect patients.

More accurate tests and treatments?

Researchers said this could enable more accurate diagnostic tests and treatments tailored to the bacteria causing each patient’s illness.

“By understanding how these bacteria evolve and exchange genetic material, we’re better equipped to monitor their spread and respond to their ability to cause disease in humans,” said Qiu, the corresponding author of the study.

The study was published in mBio, the flagship journal of the American Society for Microbiology.

Researchers said the genetic information uncovered in the study may help scientists develop more effective vaccines against Lyme disease.

Lyme disease is the most common tick-borne illness in North America and Europe, affecting hundreds of thousands of people a year. The disease arises from bacteria belonging to the Borrelia burgdorferi sensu lato group, which infect people through the bite of infected ticks. Symptoms can include fever, headache, fatigue, and a characteristic skin rash. If left untreated, the infection can spread to joints, the heart, and the nervous system, causing more severe complications.

Case numbers are increasing steadily, with 476,000 new cases each year in the United States, and may grow faster with climate change, the authors of the study said.

The research team sequenced the complete genomes of Lyme disease bacteria representing all 23 known species in the group. Most hadn’t been sequenced before the effort. The National Institutes of Health-funded project included many bacteria strains most associated with human infections and species not known to cause disease in humans.

Evolutionary history of Lyme bacteria

By comparing these genomes, the researchers reconstructed the evolutionary history of Lyme disease bacteria, tracing the origins back millions of years. They discovered the bacteria likely originated before the breakup of the ancient supercontinent Pangea, explaining the current worldwide distribution.

The study also disclosed how these bacteria exchange genetic material in and between species. This process, known as recombination, allows the bacteria to rapidly evolve and adapt to new environments. The researchers identified specific hot spots in the bacterial genomes where this genetic exchange occurs most frequently, often involving genes that help the bacteria interact with their tick vectors and animal hosts.

To facilitate ongoing research, the team has developed web-based software tools (BorreliaBase.org) that allow scientists to compare Borrelia genomes and identify determinants of human pathogenicity.

Looking ahead, the researchers said they plan to expand their analysis to include more strains of Lyme disease bacteria, especially from understudied regions. They also aim to investigate the functions of genes unique to disease-causing strains, which could uncover new targets for therapeutic interventions.

As Lyme disease expands its geographic range because of climate change, the research provides valuable tools and insights for combating this rising public health threat.

The study is supported by grants from NIH and an award from the Steven and Alexandra Cohen Foundation.

Click here to read the study.

Melinda

Celebrate Life · Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health

World Cancer Support Month

I think we can all get behind World Cancer Support Month. Most of us have been affected by Cancer whether it be ourselves or someone close to us and we understand the support that is needed. I was traumatized when I was diagnosed with Cancer at 28 years old, it changed the trajectory of my life. I was one of the lucky ones who didn’t need chemotherapy or radiation. The cancer was removed during surgery, I was very lucky. My husband has two types of cancer that is slow growing but it’s no less worrisome.

World Cancer Support Month, observed annually in August, stands as a beacon of solidarity and hope for those affected by cancer across the globe. This dedicated month serves as a reminder of the immense strength, resilience, and compassion that unite individuals, families, and communities in the face of this challenging disease.

Cancer, an intricate ailment, arises from the uncontrolled growth of abnormal cells in the body. These cells can develop into tumors, affecting nearby tissues and, in some cases, spreading to other parts of the body. With over 100 types of cancer, each characterized by distinct behaviors and treatment requirements, it’s a complex adversary that demands comprehensive understanding and dedicated research.

World Cancer Support Month takes a multifaceted approach to addressing this issue. It not only emphasizes the importance of providing medical treatment but also highlights the need for emotional and psychological support for those dealing with cancer. The emotional toll of the disease on patients, families, and caregivers cannot be understated. By fostering an environment of open dialogue, the stigma surrounding cancer can be dismantled, encouraging more people to seek help and resources.

Don’t forget those around you with Cancer and do something thoughtful for them. Sitting and talking is a great start and helping run a few errands or cooking a meal is extra special.

Melinda
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