Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Mini Me Health Update

What made me think having two hand surgeries in a month was a good idea? I knew it wouldn’t be a walk in the park but it was much worse. The stitches are healed but the swelling next to them has not gone down. The wrist still hurts when moved in any direction and though the inside of my hands are no longer bruised they still hurt and are swollen. I have no idea what the healing time is so I’m taking it day by day. Opening up a bottle is painful so he has to jump in to help with those tasks. I even have a few number fingers.

One frustration is that David’s company sent a large basket of 6 plants, but I can’t plant them yet. I just knew I would be able to do something by now. Of course, this affects my writing because once they start hurting, I have to stop before it turns into a bad situation. I love the plants and can’t wait to plant them.

Why did I do it? It’s one you may understand. We had met our Medical Insurance deductable for the year, and if I pushed the second hand to 12/30/24, my surgery would be covered at 100%. If it were a worse surgery, I would have waited, but this made sense at the time. Sometimes, we have to make decisions for our families’ finances.

I hope you don’t find yourself in that situation if so think hard and decide which is best for your health and your family.

Take good care.

 

Melinda

Celebrate Life · Fun · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Question Of The Day

When you were a child, what job did you think was perfect?

For me it was being a DJ or an Ice Dancer.

I can’t wait to hear your answers.

Melinda

Health and Wellbeing · Medical · Men & Womens Health · Mental Health

5 Mood-Boosting Fall and Winter Foods for Depression

By Leona Vaughn Medically Reviewed by Reyna Franco, RDN courtesy of American College of Lifestyle Medicine

A consistently healthy diet may ease symptoms of depression. Here are experts’ in-season picks for your plate.

Fall and winter can be brutal for people with depression. It gets dark early, resulting in far less exposure to mood-brightening sunlight, plus colder temperatures can make you just want to stay in bed.

In addition, it’s a time of year filled with the sugar-laden, high-fat holiday foods that are often least likely to benefit our mental health. “It’s a challenging time for eaters,” says Drew Ramsey, MD, a nutritional psychiatrist based in Jackson, Wyoming. “There’s lots of delicious stuff that oftentimes isn’t so great for our mood.”

Atlanta-based Jerlyn Jones, RDN, agrees, pointing out that the relationship between an unhealthy diet and depression is often a vicious cycle. “If you have a poor diet, then you’re going to feel more depressed. And when you feel more depressed, you’re probably going to eat more of those types of foods,” says Jones.

The good news: Diet is a modifiable risk factor for depression. In other words, simply loading up on whole foods like fruits and vegetables, fish, nutslegumes, and the like can improve symptoms of this mood disorder in some people, according to research.

The problem is that when people feel stressed and depressed, they tend to crave comforting foods that are higher in sugar, salt, and fat, Jones says. Unfortunately, the instant relief you experience from those foods — especially the sugar-laden ones — dissolves quickly, which then can cause your mood to crash.

Not to mention that filling up on so-called “junk food” can make it hard to receive enough of the essential nutrients that the brain needs to function at its best, including B vitamins, folate, and magnesium.

“These vitamins and minerals have been inversely associated with depressive disorders,” Jones says. “Foods that are high in different nutrients can make you feel so much better.”

Wondering which healthy cold-weather foods can improve your mood? Experts advise increasing your intake of these five.

Brussels Sprouts Are High in Folate

These cruciferous vegetables are rich in folate — a B vitamin that helps with mood regulation in the brain, Jones says. Studies have shown that B vitamins like folic acid — a form of folate — may benefit people with depression, according to a review article

“This nutrient is linked to brain activity and increasing our moods,” says Jones. “Eating foods on a daily basis that are high in folate will help significantly improve the way you feel.”

Try adding raw, shredded Brussels sprouts to salads, or cut them in half, toss them with olive oil and spices, and roast them until brown.

Pomegranates Are Rich in Antioxidants

Another great fall food to eat regularly is pomegranate, a fruit high in antioxidants, Jones says. And it’s especially easy to reap this benefit because drinking pomegranate juice can significantly increase the number of antioxidants you take in, Jones notes.

In addition to their antioxidant content, pomegranates contain polyphenols, which have anti-inflammatory and antidepressant-like properties, according to a review article. “Inflammation is one of the root causes of depression, anxiety, and other mental health problems,” Dr. Ramsey says.

Pumpkins Boast a High Magnesium Content

These perennially popular fall fruits contain magnesium, which was linked to a lower risk of depressive symptoms and disorders in one systematic review.

Fitting this squash into your diet is easier than you may think — pumpkins are incredibly versatile. Try adding pureed pumpkin to soups, smoothies, and pasta sauces. Or simply snack on pumpkin seeds or toss them in a fall salad. “Pumpkin seeds are really one of our top [food] recommendations,” Ramsey says.

Sweet Potatoes Are Chock-Full of Vitamins

Usually harvested in September and October, sweet potatoes pack several essential nutrients — in particular, vitamin C. A meta-analysis concluded that higher levels of vitamin C are associated with reduced depressive symptoms, while lower levels of this vitamin are linked to increased symptoms, though more research is needed to confirm this association.

Winter Squash Is High in Vitamin B6

Winter squash comes in many forms — acorn squash, butternut squash, and spaghetti squash, to name a few. And each of them contain high amounts of vitamin B6, a nutrient shown to positively affect mood. One study found that a lower intake of vitamin B6 was associated with an increased risk of depression among more than 3,300 women.

More Tips for Healthy Seasonal Fare

Colder weather is a good time to consume more soup, especially clam chowders and seafood stews, says Ramsey. Dishes that contain mussels, clams, and oysters are dense with nutrients like magnesium, as well as omega-3 fatty acids, another nutrient that research suggests benefits people with depression. 

If you’re in the mood for something sweet, Ramsey advises swapping sugary holiday desserts for dark chocolate, which is packed with antioxidants and fiber.

“There’s now some interesting data about how the nutrients in dark chocolate are stimulating but also good for the brain, in the sense that people who eat dark chocolatetend to have less depression,” Ramsey says. 

Data from a survey of more than 13,000 U.S. adults showed that chocolate, especially dark chocolate, may be tied to a reduced risk of depressive symptoms.

Along with avoiding excess sugar, Ramsey advises being mindful of how much alcohol you consume around the holiday season.

“There’s a lot of drinking during the holidays, and alcohol can be awful if you have depression,” Ramsey says. “It tends to make people feel better in the short term, and then worse the next day.”

If you need help planning good-mood-friendly meals, the U.S. Department of Agriculture’s online tool MyPlate offers quizzes and hundreds of recipes to get you started.

The Takeaway

Although diet isn’t a cure for depression, eating nutritious foods can help people with the condition feel better. This fall and winter, consider adding seasonal fruits and vegetables rich in mood-enhancing nutrients like folate, antioxidants, and magnesium to your plate (think Brussels sprouts, pomegranates, and sweet potatoes, for example).

“There’s a lot of drinking during the holidays, and alcohol can be awful if you have depression,” Ramsey says. “It tends to make people feel better in the short term, and then worse the next day.”

If you need help planning good-mood-friendly meals, the U.S. Department of Agriculture’s online tool MyPlate offers quizzes and hundreds of recipes to get you started.

Resources We Trust

I love all the food they mentioned it’s just a matter of cooking them.

Melinda

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Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Self-Care

Tips for Caring for Your Spouse with Alzheimer’s and Yourself

Medically reviewed by Susan W. Lee, DO — Written by Eleesha Lockett, MS on September 18, 2023

It can be overwhelming when a spouse receives an Alzheimer’s diagnosis, but there are many networks in place to make sure that both of you have the support you need.

Alzheimer’s disease is a progressive form of dementia ― an umbrella term for a handful of conditions that affect someone’s thinking, memory, behavior, personality, and more. Alzheimer’s is the most common type of dementia, and it affects more than 6 million people in the United States alone, according to the Alzheimer’s Association.

An Alzheimer’s diagnosis can signify the beginning of a new chapter of life for the person with the diagnosis and those close to them. And for spouses of people living with Alzheimer’s disease, their role can often shift to caretaker, which can bring its own set of challenges.

This article discusses tips for taking care of your spouse after their Alzheimer’s diagnosis, including how to take care of yourself and when it might be time to reach out for professional support.

Tips for working with their medical team

Alzheimer’s disease can eventually make it difficult for a person to perform certain tasks on their own, so it can be helpful to build a supportive medical team early on. Here are some of the medical professionals that commonly make up a medical care team for someone with Alzheimer’s:

Whether your spouse has only one or a few of these professionals on their care team, knowing that the care team is there to help is important.

As a spouse, it can be especially helpful to maintain an open line of communication with your loved one’s medical team. One of the ways that you can do this is by scheduling or sitting in on phone calls or meetings with the care team members.

Meetings and appointments are also a great time to bring up any concerns you might have ― or any goals that you and your spouse have discussed for care. And if you have any questions about anything related to your loved one’s medical care, be sure to mention those, too.

Tips for at-home Alzheimer’s care

As Alzheimer’s disease progresses through the stages and the condition’s symptoms become more severe, your loved one may require more assistance with tasks of daily living. For many people, most of this care takes place at home.

Here are two helpful tips that can help as you care for your loved one.

Accommodate Alzheimer’s and dementia needs 

Dementia can affect your spouse’s physical movements and their ability to think or use memory. If your home and lifestyle accommodate these needs, it can make day-to-day activities less stressful for both of you. 

Those with dementia may benefit from: 

  • labels and reminders for important items, like medications, or household hazards, like cleaners
  • physical accessibility aids like ramps or easy-to-open door handles 
  • a balanced diet high in veggies and other anti-inflammatory foods
  • clothes and personal care items designed for low mobility 
  • living in a neighborhood without heavy traffic and with high walkability 
  • a regular social schedule with time to see friends and family 

Ask for support

Alzheimer’s disease can affect the lives of everyone involved, which is why support can be such an important part of care. And when you’re caring for a spouse with Alzheimer’s at home, support can come in many forms: financial, social, medical, and more.

Sometimes, this support looks like reaching out to a friend or family member for a little extra help with daily tasks like shopping and cooking. Or it might look like touching base with your spouse’s caseworker to sign up for financial assistance programs.

Either way, one of the great ways to care for yourself and your spouse is to reach out and ask for support in whatever area you might need.

Hire professional help

Someone with moderate to severe Alzheimer’s disease may find everyday tasks like dressing themselves, going to the bathroom, or even eating by themselves to be difficult. At this stage in the disease, caregiving can be ongoing.

As a caregiver to a spouse with Alzheimer’s, it can be difficult to keep up with their needs and your own ― which is where professional support comes in. Some of the most common options for caregiving support include home care aides, home healthcare aides, and respite services, to name a few.

Whether you’re looking for support for just a few hours or a longer time, it may help to take advantage of the help that’s around you. 

The right time to consider professional help

When you’re the caretaker or someone close to you, it can be difficult to imagine entrusting that care to anyone else ― especially if it takes place outside the comfort of your own home.

However, sometimes your loved one might need more care than you can feasibly offer them, especially in the late stages of their disease. And toward the end of their life, some professionals can help navigate you both through the final stages of their journey.

While people can experience dementia differently, in some cases, the condition can cause episodes of anger, verbal aggression, or sometimes physical violence. Professional healthcare workers can help to ensure everyone’s safety and dignity. 

If you feel that it might be time to explore professional caregiver or end-of-life support for your loved one, consider reaching out to their doctor to discuss the options available to you.

Tips for your mental health

Spouses and partners of people living with Alzheimer’s disease tend to experience increased stress, anxiety, and depression. In fact, one 2020 study found that people whose spouses had Alzheimer’s disease and related dementias had a 30% increase in depressive symptoms than those without spouses with these conditions.

Here are a few tips you can follow to take care of your health while caring for a spouse with Alzheimer’s:

  • Take care of yourself: It can be hard to support your emotional health if you don’t support your physical health. Getting enough sleep, eating a balanced diet, and frequently moving your body are just a few ways you can take care of your body and mind.
  • Practice reducing your stress: Full-time caretaking can be stressful, so it’s important to set aside some time for activities that can reduce your stress. Not only can this help reduce your stress and improve your health, but it’ll also allow you to take better care of your loved one.
  • Take time to enjoy hobbies: As a caregiver, you may notice that your own hobbies and activities can fall by the wayside as you focus on your spouse. But one way you can nurture yourself during this time is by reconnecting with the hobbies and activities you enjoy ― alone or with friends.
  • Connect with your support: Speaking of connecting with others, no one should have to navigate life after a diagnosis of Alzheimer’s disease alone. Whether you connect with friends, support groups, or mental health professionals, try to lean on your support system when you need it.
  • Take vacations: This could be a trip with friends or a few days solo at a bed-and-breakfast ― but everyone deserves a little time to focus on themselves and relax.

Takeaway

It’s common for Alzheimer’s caregivers to feel many emotions about their loved one’s diagnosis ― sadness, grief, frustration, and even anger. Sometimes, you can work through these feelings alone, but other times, it can be difficult to work through them without the right support.

If you feel like you could use support navigating through this difficult time, whether physical, financial, emotional, or otherwise, consider reaching out to the professionals around you who can help.

My blogging friend Mary Doyle from Midwest Mary learned firsthand about the journey of caring for a loved one with Alzheimer’s when her husband was diagnosed. She has written three books about her experience with Alzheimer’s. Mary is generous and uplifting. Please stop by her blog and say hello. 

Inspired Caregiving. Weekly Morale Boosters

 The Alzheimer’s Spouse

Navigating Alzheimer’s.12 Truths about Caring for Your Loved One

Check out all of the books Mary has written, here.

Melinda

Reference:

https://www.healthline.com/health/alzheimers/how-to-cope-with-alzheimers-spouse#takeaway

Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Self-Care

SAD is not just the Winter Blues — and it may be hitting you harder this year

IDEAS.TED.COM

Dec 9, 2020 / Mary Halton

This post is part of TED’s “How to Be a Better Human” series, each of which contains a piece of helpful advice from people in the TED community; browse through all the posts here.

If the darkening evenings and turning leaves induce a mild sense of dread in you every year, you’re not alone.

With the arrival of winter, many of us experience Seasonal Affective Disorder — which bears the appropriate acronym of SAD — and can bring on a depressed mood, loss of interest in things that you normally enjoy, and changes in sleep and appetite. While there aren’t conclusive figures, it is thought to affect between one and nine percent of the population, depending on where you live.

Although we may think of it as being a distinct affliction of its own, SAD is actually classified as either bipolar or major depressive disorder, but with a seasonal pattern. This means that people who experience it feel much worse in the fall and winter and relatively balanced or potentially even manic in the summer months, explains Kathryn Roecklein PhD, an associate professor of psychology at the University of Pittsburgh who studies the condition.

“Depression itself is pretty episodic,” says Roecklein. “You have a period of it, and then it goes away. The distinction [with SAD] is the seasonal recurrence.” It also appears that SAD is two to four times more common amongst women.

Even though we are making greater efforts as a society to recognize the importance of our mental health, it can be tempting to dismiss SAD as a touch of the “winter blues” and to try to get on with life as usual. But the best approach, Roecklein says, is to accept and recognize that it’s something that we may genuinely suffer from — and need treatment for. Just as we would for heart disease or diabetes.

Why does winter make us SAD?

The story of SAD starts with our circadian rhythm — our internal body clock that tells us when to eat, go to sleep, and wake up. 

For the most part, we tend not to think too much about this system unless we have an unexpectedly late night or take a long-haul flight. But chronobiologist Emily Manoogian PhD says it plays a much more significant role.

“The circadian system is directly tied to how our brain functions, and this affects our cognitive ability, our behavior, our mood and our ability to remember things,” says Manoogian, who researches circadian rhythms at the Salk Institute for Biological Studies in California. “The circadian system is important for making sure that throughout your body and brain, regions are talking to each other the way that they should be and everything is balanced. We know that circadian disruption is heavily associated with every form of affective disorder — such as major depressive disorder, bipolar disorder, etc.”

Increased darkness in the fall and winter months is something that humans on much of the planet have experienced for thousands of years, but our technological advancement — in particular, artificial light — is interfering with this natural occurrence. Light is one of the most powerful stimuli for our circadian systems, and since the advent of electricity we’ve been sending our bodies a lot of mixed messages.

“This environment that we’ve created is inherently disruptive — it’s not lights on and off at a constant time to allow for a proper rest for our body; it’s lights on when we need to be up for work on some days, and then off later on other days,” explains Manoogian. “That creates this kind of social jetlag. That’s also going to make it a lot harder to sleep, and it can compromise health over time.”

Manoogian is also not a fan of daylight savings time. She says, “It shifts our exposure to sunlight later in the day and thus shifts our biological clocks. In the summer, we are getting sunlight later than we should, and when days are shorter, we are waking up in darkness. But the problem is that we still have to start work or school at the same times. This means that our schedules and our body are on different times, and this disrupts the circadian system.”

Although there is no evidence connecting it directly to SAD, daylight savings time is known to be widely disruptive to society and potentially even associated with cardiac health risks. There’s a growing movement to do away with the twice-annual time switch in several Canadian provinces, where Saskatchewan and (as of 2020) the Yukon Territory stick to the same time year-round, and similar proposals are being considered in other jurisdictions around the world.

What can you do?

As with any disorder, your treatment depends in part on severity. If SAD is significantly disrupting your life or making you feel as though life is not worth living anymore, it’s deeply important for you to reach out immediately to a mental health professional who can support you. Roecklein says that effective treatment options include taking medication, receiving cognitive behavioral therapy tailored to treating SAD, or using a SAD lamp (which delivers a higher dose of light than regular indoor lighting), but they should be explored under professional guidance.

If you’re wondering what to do because you’ve already bought a SAD lamp to use on your own, Roecklein says that there could be side effects. The most likely one, which is mild, is that you will feel it isn’t effective. This doesn’t mean that it can’t be the right therapy for you in conjunction with professional guidance — for instance, you could be using it at the wrong times or for the wrong duration. At the other end of the scale, mania is a very rare but significant side effect of improper use.

However, there are some relatively easy things you can do to support your circadian rhythms in everyday life. And while these aren’t guaranteed treatments for SAD, they can help give your body a stabilizing sense of routine.

Keep a consistent schedule, especially if you work from home

This doesn’t need to be a rigid, planned-down-to-10-minute increments affair; it’s more about keeping the stimuli that speak to your circadian system arriving roughly when it expects them, says Manoogian. Social interactions and food are two important circadian cues, so having regular mealtimes and breaks where you make a phone call, go for a walk or talk with other members of your household can really help.

Exercise is another important cue

It’s hard to get — and stay — motivated during a winter of pandemic-related restrictions, so any exercise is better than no exercise at all, emphasizes Manoogian. However, if you do choose to exercise outside, she says that the morning is a good time for your body to get some much needed natural light.

The only time for you to avoid exercising, if possible, is right before bed. When you do, it sends a confusing message to your body that night is a time to be active rather than to prepare for sleep.

Maximizing your light exposure is key

How much light we experience at different times of the day is important. Increasing the amount of light you get in the morning is helpful, whereas increasing your light exposure in the evening can be counterproductive.

So if your morning commute has changed from an hour in the car or on transit to a quick switch from your bed to your desk, you’re losing out on a lot of daylight that you are used to receiving just when you need it most. Taking a morning walk before you start your day, or even sitting near a bright window for the first half of your day can really help.

At night, reducing your light exposure and making your sleeping environment as dark as possible is also of huge benefit, explains Roecklein. “Most circadian biologists and sleep researchers I know have blackout shades and no night lights in their rooms — we don’t even have clocks with illuminated screens.”

No, it’s not just you — 2020 may be making your SAD worse

It’s difficult to separate the impacts of factors like the COVID-19 pandemic, the associated economic downturn and the psychological toll of the current political climate. But Roecklein has noted, at least anecdotally among the people in her SAD study, that there seems to be a higher instance of what psychologists refer to as “negative anticipatory cognitions” — where people consistently expect things to be worse in 2020 than in other years.

Roecklein also notes that experiencing negative life events — such as a bereavement, job loss or some other major change that requires large adjustment — as well as reduced opportunities for social and physical activity are additional risk factors for SAD. These areas of our lives have all been significantly impacted by COVID-19, so she and her colleagues anticipate a higher risk of people experiencing SAD this year.

However, there may be one small silver lining to the current situation, says Manoogian. While routine is very important for our bodies, a regular 9-5 work day can be very unnatural for those of us who aren’t morning people.

“The typical workday schedule is an artificial time that not everyone is able to stick to,” she explains. “If you work from home and you have a little bit of freedom about when you work, this could provide a very interesting opportunity for you to actually coordinate your schedule more with your internal clock.”

Sometimes it’s OK to doom scroll 

Lastly, Roecklein wants to stress that although a routine is important, we are living through monumental events that are unfolding right before our eyes. And if we occasionally want to stay up a few hours later to feel better informed or more connected to other people experiencing the same thing… that’s actually fine.

“We take a moment to care for ourselves by thinking about the pros and cons. So there may be some nights where staying up late and doomscrolling is a choice one might make for good reasons,” says Roecklein. “But then on other nights, when we think about what we want most for ourselves — like better energy in the morning, a more positive mood, better alertness for the endless Zoom meetings — we might be more motivated to turn off devices, turn off the TV, dim the lights, and do all of those things that can help you wind down. Give yourself the chance to make that decision, and make the decision that’s right for you.”

ABOUT THE AUTHOR

Mary Halton is Assistant Ideas Editor at TED, and a science journalist based in the Pacific Northwest.

Melinda

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Celebrate Life · Family · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward

Book Review For Between By Gemma & Leo Thelford

I want to thank Andrea Marchiano, Managing Editor at Trigger Publishing for sharing the book Between for review. The release date is February 4th, 2025. Between is a memoir of gender transition by a mother and her son. The book helps us learn the challenges they both faced and their mission is to break down the stigma and educate those who have questions about Transgender. 

My Thoughts

Gemma and Leo Thelford are brutally honest in sharing their story, the good, the bad, and the ugly. It’s important to remember that Leo comes from a loving family that supports him. His father has a difficult time during the transition due to a lack of knowledge and his own stigma. His younger sibling had a difficult time wrapping his head around it. The journey was difficult but the family worked through it together. 

For the purpose of this book, it’s the story between Leo and his mother. Gemma and Leo write their own chapters and it really helped the dialogue sink in because you have both of their thoughts on a subject.

What do you say when your 11-year-old daughter says she’s a boy? Between is a complex story of a daughter explaining to her mother that she doesn’t feel like a girl. With honest conversations and research Gemma began to understand the road her daughter may be facing and took an active role in each step of the way. 

Their story warms my heart because they had the love and trust to make this huge change in their life. 

Between is one of the most interesting books I’ve read and it answered many of my questions. 

I have worked with Andrea for years and have learned from every book I’ve read.

About Trigger Publishing

Our mission

At Trigger Publishing, our mission is to empower individuals on their mental health journey through the power of lived experience. We are dedicated to publishing real stories by real people, showing our readers that they are not alone and that recovery is possible. Our books and digital solutions, available through our parent brand Trigger Hub, provide hope, support, and practical tools for mental wellness.

Melinda

Celebrate Life · Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health · Moving Forward

6 Tips for Navigating the Job Search with Chronic Illness

by Kathy Reagan Young

Fact Checked by: Jennifer Chesak, MSJ

With careful planning and thoughtful strategies, you can find fulfilling employment opportunities that accommodate your unique needs.

Searching for a job is a job in itself. Add chronic illness to that mix, and the process becomes even more complex. The unpredictable nature of chronic conditions makes it important to have a plan for dealing with what can be unique hurdles during the job search. 

I’ve been there, done that. That’s why I’m offering my practical tips and insights to help you navigate the job search successfully.

1. Set realistic goals

Before diving into the job search, it’s essential to assess your limitations, strengths, and preferences. Consider the impact of your condition on your daily life and energy levels. 

Do you tend to “fade” as the day goes on? Setting hours to reflect and embrace this truth will be helpful. Are you unable to lift, walk long distances, or hold a phone? Do your hands get tired easily? Only you can know yourself. 

Self-awareness will guide you to set realistic goals and find positions that align with your abilities. And it will set you up for success in the long run. 

“Disability is a matter of perception. If you can do just one thing well, you’re needed by someone.”

— Martina Navratilova

2. Research potential employers

Identify industries and roles that accommodate flexible schedules, remote work options, and supportive work environments. Look for companies with a strong commitment to diversity and inclusion, as they may offer more accommodations for people living with chronic illness. 

So, how do you find this information? 

Research. I like to check out companies on LinkedIn. It’s a great place to learn about a company’s culture and the people who work there. You can also learn a lot from anonymous postings of current and former employees on Glass Door.

3. Weigh the decision to disclose your condition

The decision to disclose your chronic illness is a personal one. It may depend on the nature of your condition and the specific job requirements. Legally, employers cannot discriminate against people living with disabilities. 

But let’s be honest: Discrimination is real. Doing what we can to control the narrative is a smart decision.

I used to advocate for everyone to be forthcoming — loud and proud, so to speak. “Share the real you,” I’d say. “Having to keep a secret is exhausting and stressful. Be authentically who you are.” 

Then, multiple people shared with me their stories of discrimination and ableism. So, I no longer suggest that. 

Now, I recommend securing the job first and disclosing your condition strategically if you decide to do so. Share only the most job-relevant information and nothing more. Focus on your skills and qualifications first, then discuss any necessary accommodations that will allow you to perform at your highest level. 

And document, document, document. If you feel you’re being discriminated against at any point in the hiring stage or beyond, you’ll need documentation to substantiate your claims.

4. Utilize job search platforms and networks

Explore online job search platforms and networks that cater to individuals with disabilities or chronic illnesses. Many websites feature job listings from companies actively seeking to hire people with diverse abilities, providing a supportive environment for job seekers with chronic illnesses. 

Leverage your personal and professional networks. Tell friends, family, and colleagues about your job search and ask for recommendations or introductions. 

Maybe you post on your favorite social network (Facebook, Instagram, etc) or email several friends and family members to inform them of your job search and ask for any advice. Networking opens doors to opportunities that may not be advertised through traditional channels. 

5. Emphasize transferable skills

Craft a compelling resume and cover letter that emphasize your transferable skills and accomplishments. Focus on experiences that showcase your ability to overcome challenges and achieve results. 

Maybe a team member at a former job of yours resigned unexpectedly in the middle of a big project with a deadline looming. Instead of panicking, you assessed the skills of other team members to see how this deficit could be filled by existing talent, and you hired temporary outside help to fill in the remaining gaps to complete the project well and on time. 

Sharing how you’ve overcome challenges in the past can help potential employers see the value you bring to the table, regardless of any limitations posed by your chronic illness.

Consider creating a skills-based resume that emphasizes your abilities and achievements rather than focusing on a chronological work history. This format allows you to showcase your skills prominently, capturing the attention of employers and demonstrating your suitability for the position. 

Just search “skills-based resume” to see formatting examples.

6. Prepare for interviews

Job interviews can be nerve-wracking, and sometimes we can face additional stressors. Take proactive steps to prepare for interviews by researching common interview questions and writing down your responses. 

Consider practicing with a friend or family member to build confidence and refine your answers.

Develop a strategy for addressing potential gaps in your employment history due to health-related reasons, focusing on how you’ve maintained or improved your skills during such periods. For example: 

During (specific timeframe), I was dealing with health challenges that taught me valuable lessons in resilience and adaptability. I remained active in professional networking groups, participated in online discussions, and did self-directed learning. This not only kept me informed about industry developments but also allowed me to exchange ideas with professionals in the field.

Navigating a job search with a chronic illness can be challenging, but with careful planning and thoughtful strategies, you can find fulfilling opportunities that accommodate your unique needs.

Online job search platforms

Online resources

  • Disability:IN: A global organization that promotes the inclusion of people with disabilities in the workplace. Their website offers resources, webinars, and job listings from inclusive employers.
  • Work Without Limits: A resource center that provides tools and information to support individuals with disabilities in finding employment, including job fairs, networking events, and career development resources.
  • My Plus: Focuses on supporting students and professionals with disabilities, offering a range of resources, including a job board, webinars, and advice for navigating the job market.
  • DisabledPerson: An inclusive job board connecting individuals with disabilities to employers actively seeking to diversify their workforce.
  • CareerOneStop: Workers with disabilities: A comprehensive resource by the U.S. Department of Labor providing information on job accommodations, career planning, and employment services for individuals with disabilities.
  • Understood: A platform offering resources and support for individuals with learning and attention issues. Their employment section provides guidance on job searching and workplace accommodations.

Book recommendations

I have Bipolar Disorder and made the decision to not tell my employer exactly what health issue I had and I did not discuss it until my health forced me to take time off. If you have a physical limitation that creates a different situation and one where you will need to tell them upfront. Be leary, and keep documentation, the reality is not all employers are ethical and respect EEOC laws. That’s the cynic in me.

Melinda

Reference:

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Mental Illness

Bipolar and Binge Eating: How I Broke Free

By Sasha Kildare

Medically Reviewed by Allison Young, MD

Last Updated: 5 Nov 2024

I tamed my intense cravings and calmed my binge-eating habits to help keep my diet — and my bipolar moods — in balance.

My co-worker carefully extricates her lunch from the toaster oven. The slice of leftover pizza, cheese dripping over its edges, smells divine. She observes me plopping frozen spinach, grilled chicken, and a splash of tomato sauce into a microwave-safe casserole dish and says, “You’re so good. I wish I could eat like that.”

“It’s easy to be good when you’re afraid of passing out over your keyboard from low blood sugar,” I reply to excuse my freakishly healthful lunch. I explained to her that maintaining a good diet keeps my moods in check and would go beyond the bounds of casual break-room small talk.

The steadier my blood sugar levels throughout the day, the steadier my energy, the more alert I feel, the less anxiety I experience, and the more productive I am. The more alert and productive I am, the better I keep bipolar depression at bay.

Work festivities can be a tad awkward, though. I’ve become adept at resisting temptation when someone brings in a plate of brownies, despite the bewildered urging when I refuse. “You gotta try this. It’s Aunt Bessie’s recipe.” Or, “C’mon, who doesn’t like chocolate?” I try to explain, “I love chocolate. It just doesn’t love me.”

Binge Eating and Bipolar Disorder

I used to be a binge eater, regularly losing and gaining as much as 50 pounds. After getting home from work, I could easily inhale ice cream by the pint or a sleeve of chocolate chip cookies dipped in milk — or both. The sugar was like a tranquilizer for my anxious feelings.

Several months and several dress sizes later, I would restrict my eating to lose the excess weight. I cut and cut and cut calories until I was down to diet soda, French fries, and not much else. But crash dieting crashed me into hypomania. By the time I fit into my skinny jeans, my judgment would be even skimpier.

I finally gave up the hard stuff — chocolate, desserts, anything with white flour — when I was trying to get pregnant. (Who knew that wide swings in weight can throw the reproductive hormones off kilter?) Two kids and an education in nutrition later, my weight fluctuates by a more moderate 10 pounds or so. And as long as I don’t eat sugar, I don’t crave it.

How Stress and Fatigue Cause Carbohydrate Cravings

If only it were just sugar. If I’m not careful, bagels and white bread can just as easily send me to Bingeland.

Stress and fatigue fuel our hunger for carbohydrate-heavy treats. There’s a connection between carbs and the brain’s production of serotonin, the “feel-good” hormone — although trying to piece together exactly how this works makes me remember why I flunked organic chemistry.

Here’s an easier tidbit from bio class: The body turns any carb into glucose, a.k.a. blood sugar, to use as energy. The more quickly carbs “dissolve,” the more quickly glucose gets dumped into the bloodstream. Blood sugar levels spike, and what goes up must come down — leading to lethargy and low mood.

In self-defense, I’ve become a student of the glycemic index. Originally developed to help people with diabetes keep their blood sugar in balance, the glycemic index tells you how quickly glucose levels rise after eating a particular food.

White bread, alas, ranks high on the glycemic index. As a compromise, I end my day with a slice of whole wheat bread slathered with crunchy peanut butter and a smidgeon of strawberry jam.

Finding the Right Eating Habits for Bipolar Mood Management

I live in a rush zone from 5:30 a.m. until I chase my daughter into bed at 9:30 p.m. I chow down a protein bar and travel mug of cold water while driving to the office. I write bits of stories and articles in my head while working out. The drive home doubles as a time to make business and social calls.

PB&J on whole wheat unwinds me. It quells my anxiety about everything I need to accomplish before bedtime, everything I am not going to accomplish before bedtime, and everyone I will let down by not getting to every “to do.”

Of course, it’s possible to find that relaxed, comforted feeling through journaling, writing a gratitude list, meditating, stretching, or walking around the block. When I’m tired, though, it’s much easier to use food to chase away my anxiety. And if I actually kept off that extra 10 pounds, what would I have to whine about?


Maybe that’s the real question I need to ask myself: What am I really hungry for? Understanding my needs and making small adjustments can help me balance eating habits and self-care, supporting a healthier, more stable mood over time.

UPDATED: Originally printed as “My Battle of the Binge”, Winter 2014

I had problems with binge eating when I was younger and always tied it to stress. Now I have a different perspective to mull about.

Melinda

Celebrate Life · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

I’m Having Hand Surgery Again

This surgery is completely different than the one earlier this month. He is doing Carpel Tunnel surgery on my right hand which is a piece of cake. Technological advancements make the procedure less intrusive and allow for a shorter recovery time.

I hope to be out for a few days, we’ll see how it goes. I don’t like taking pain medication so that can delay blogging for a day or so.

Thank you for all the love shown to me during the last surgery, your words filled me with joy.

Take good care and I’ll see you next year.

Melinda

 

 

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health

January Awareness Months & Days

National Blood Donor Month

Cervical Health Awareness Month

Glaucoma Awareness Month

National Eye Care Month

National Stalking Awareness Month

Self-Love Month

Walk Your Dog Month

New Year’s Day – January 1

Martin Luther King Jr. Day  3rd Monday of January

National Human Trafficking Awareness Day – January 11

International Holocaust Remembrance Day 1/27/25

NASA Day of Remembrance – January 27

If you would like to see the complete list, click here.

Thank you for the positive feedback on this monthly post.

Melinda

Reference:

https://www.goodgoodgood.co/articles/january-awareness-days-months

Celebrate Life · Chronic Illness · Family · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Looking For Joy In 2025

2024 has been a difficult year for David and me health-wise. There are still unresolved health issues from my visit to The Mayo Clinic for which I have several specialists to see in 2025. The most difficult has been that David was diagnosed with three types of cancer this year. The first was CLL Leukemia, Skin Cancer, and most recently Small Cell Lymphocytic Lymphoma. It is common for Skin Cancer to follow Leukemia but the Lymphoma was quite a surprise. Leukemia and Lymphoma are two different cancers and very alarming to me. We’re still waiting to see if radiation treatment is the next step.

We don’t focus on it or the future, we rarely talk about it except after doctor appointments. We focus on the blessings we have and live life for tomorrow.

We know God has a plan for each of us and we are cool with his plan.

Melinda

Celebrate Life · Health and Wellbeing · Medical · Men & Womens Health · Mental Health

Feeling Sad for No Reason? Potential Causes and Coping Tips

Feeling sad all the time for no specific reason doesn’t always mean you have depression, but it does suggest you could be experiencing something more complex than sadness alone.

Sadness is a temporary state that often has a clear cause, like a big disappointment, the loss of someone close to you, or bad news from someone you love. 

This type of sadness can fluctuate throughout the day. In certain moments, the emotional burden might feel particularly heavy. You might cry often, feel numb or drained, and struggle to concentrate. 

At other times — when you get lost in something you enjoy or when a loved one distracts you — your sorrow may seem light enough that you can barely feel its weight. While it might linger in some form for days or weeks, it generally begins to ease naturally.

Persistent sadness is something else entirely. It can wrap around you like a heavy blanket, muffling the sensations and joy of everyday life. This sadness can leave you feeling low, empty, and defeated. You don’t know what caused your unhappiness, so you have no idea how to start feeling better.

Feeling sad isn’t at all unusual. After all, sorrow is a normal human response to disappointment and loss. Sadness that doesn’t have a clear reason behind it and doesn’t seem to improve, however, may suggest something else is going on.

Could it be depression?

While not everyone with depression will feel sad, unexplainable sadness you can’t seem to shake is one of the primary signs of depression. 

If your sadness does relate to depression, you’ll likely feel sad nearly all of the time — almost every day, for most of each day, for a period of 2 weeks or longer. Sadness, in other words, seems to become a constant companion. 

With depression, you’ll experience other symptoms, too. If several of the signs below accompany your sad or tearful mood, there’s a good chance you’re dealing with depression:

Chronic sadness, especially when related to depression, might also prompt regular thoughts of death or suicide. Even if you don’t have a plan to act on these thoughts, it’s always best to talk to someone you trust and get support right away (more on how to do this later).

Other factors to consider

You might begin to notice your feelings of sadness, along with any other symptoms you experience, follow a specific pattern. Depression can take different forms, and various underlying factors can have an impact on the way your symptoms show up. 

A few things to look for:

Rapid shifts in mood

People living with bipolar disorder often experience episodes of depression as part of a cycle that also includes episodes of mania or hypomania

You might notice you suddenly feel intensely happy, even euphoric. This abrupt change in mood might also involve:

  • impulsive behavior
  • restlessness and irritability
  • a renewed sense of energy that leaves you fixating on certain projects or activities
  • an increase in confidence and self-esteem
  • less of a need for sleep

This episode might last a week, or longer. 

Somewhere around 40 percentTrusted Source of people with bipolar disorder have what’s known as mixed features. You could experience sadness and other symptoms of depression at the same time as mania. 

This combination of symptoms can make it harder to understand what you’re experiencing, which could add to your distress. 

Seasonal sadness

Maybe your sadness seems to arrive or intensify around the same time of year the days begin to shorten. Once the longer, sunnier days of spring and summer arrive, you feel better, year after year.

It’s pretty common to feel a little low in autumn and winter. The nights get long and cold, and there are plenty of days when you may not even see the sun.

If this seasonal sadness persists and becomes serious enough to affect daily life, you could have seasonal affective disorder (SAD), a type of depression that occurs along with seasonal changes. 

Along with other common depression symptoms, you might also notice:

  • angry, pessimistic, or frustrated thoughts about the weather
  • withdrawal or increased avoidance of social settings 
  • an increased desire to eat and sleep

To read the complete article here.

There are many reasons we feel sad, and luckily, there’s a wealth of knowledge to help you navigate. My first step would be to call your doctor.

Melinda

Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Self-Care

Unconventional Treatments To Tackle Menopause

The media plays a role not only in misinformation about menopause but also in how it portrays women with menopause. Tune out the riff-raff and look for real answers. Menopause has been a woman’s curse long before I knew what it was and how it affected the lives of women. There are thousands of books on the market about menopause and I thought maybe it was time to look at the unconventional ways women deal with the debilitating symptoms.

Let’s look at unconventional options to help with menopause

Acupuncture

Acupuncture involves inserting thin needles into specific points on the body to balance energy flow. Some women report reduced hot flashes, night sweats, and improved mood after regular sessions. While scientific evidence is mixed, it might be worth a try if you’re open to alternative therapies.

Herbal Remedies

  • Black Cohosh: Often used for hot flashes and mood swings. Some studies suggest it can be effective, but it’s not suitable for everyone.
  • Red Clover: Contains plant-based estrogens that may help with hot flashes, though results vary.
  • Evening Primrose Oil: Known for helping with breast pain and hot flashes. Always consult a healthcare provider before starting any herbal supplements.

Yoga and Meditation

These practices can help manage stress, improve sleep, and enhance overall well-being. Yoga, in particular, can increase flexibility and strength, which is beneficial during menopause.

Dietary Changes

Adopting a diet rich in fruits, vegetables, whole grains, and lean proteins can help manage symptoms. The Mediterranean diet, known for its anti-inflammatory properties, can be particularly beneficial.

Essential Oils

  • Lavender Oil: Known for its calming properties, it can help reduce stress and improve sleep.
  • Peppermint Oil: Can provide a cooling sensation, which may help with hot flashes.

Biofeedback

This technique involves learning to control certain physiological functions, such as heart rate and muscle tension, with the help of a biofeedback device. It can be effective in managing stress and related symptoms.

Hypnotherapy

Some studies suggest hypnotherapy can reduce the frequency and severity of hot flashes and improve sleep quality.

Remember, it’s essential to consult with a healthcare professional before starting any new treatments, especially if you have underlying health conditions.

Health-Related Reading Material

Understanding the Connection Between Menopause and Heart Rate Changes

Why Does Menopause Increase Your Risk of Heart Disease?

Natural Treatments for Menopause Symptoms

Maybe you can find something that works for you or at least reduces the symptoms.

Melinda

Reference:

https://copilot.microsoft.com

Healthline

https://www.webmd.com/menopause/menopause-natural-treatments

Communicating · Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health · Mental Health

The Most Important "Sexy" Model Video Ever

The Most Important “Sexy” Model Video Ever

http://youtu.be/bOXMKEnra8w

Save the Children gets the point across.

Warrior

Repost from 2014

Celebrate Life · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Self-Care

I’m Having Surgery Next Week And Will Be Out Of Pocket

Next week I’m having Carpal Tunnel surgery on my left and at the same time he is removing the brace in my wrist from when I broke it in 2018. This will be the worst of the surgeries. I go back at the end of the month for Carpal Tunnel surgery in my right hand but that is a much easier surgery with a quick recovery. What makes it more frustrating is I have Ostearithrois of the carpometacarpal joint in both thumbs. This means, the cartilage in those joints has disintegrated and is bone on bone, and it’s quite painful.

My left hand will be bandaged for two weeks, and for several weeks after I can’t do any heavy lifting. I’m already practicing how to dress with my fingers only, boy that’s hard. You use your thumbs for so many things.

Luckily I have my husband to help me but he will be back at work so I’ll have to learn to do things for myself. I expect the first week to involve many pain meds and sleeping. After that, I’ll try my hand at writing to see if I can do it without hurting my wrist and thumb.

I will still read your post although I might not be able to comment.

I will miss your friendship and our conversations.

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Illness · Self-Care

Taking Medication: A Small Price to Pay

by Elizabeth Drucker

Medically Reviewed by: Debra Rose Wilson, Ph.D., MSN, R.N., IBCLC, AHN-BC, CHT

Taking medication every day can be tiring and frustrating. But when it comes to living a healthy life, accepting this support is an invaluable step.

When I was 14 years old, sobbing uncontrollably in classes and during cheerleading practice, a psychiatrist scribbled out a prescription for Prozac. I paced through the aisles of the pharmacy, flipping through copies of Vogue and smelling the bottles of shampoo while I waited for the pharmacist to spill the capsules into a bottle. 

I knew something was “wrong” with me, but I wasn’t convinced swallowing these pills could make me feel better. I did know I was sad — so sad that it was agonizing to tumble out of my bed and make my way to the bus stop.

Finding what worked for me

Throughout high school, I cycled through the offices of many different psychiatrists. I was always looking for the next pill that could fix whatever was wrong with me. 

After I got over the initial shock of needing to rely on psychiatric medications, I started to see these pills as hopeful objects that would bring me some relief.

Each new psychiatrist and each new medication change brought new hope that I would get better. The doctors were encouraged that we would find the right medication and that my life would become more manageable. 

Then, during my senior year of high school, I was diagnosed with bipolar disorder. And with that came lithium, pills that are amazing at evening out my moods. So, now I live the lithium lifestyle. 

I have to remain vigilant about what my body is telling me because if the level of lithium in my blood gets high enough, I could get very sick. I’ve spent nights sleeping in emergency room beds because the lithium level became toxic and I needed fluids to rehydrate me. 

Even still, there’s no denying that this medication has saved my life.

It’s rescued me from some of the deepest, darkest depressions — those times when I felt so broken and raw that I was not sure if I could go on. Lithium has sucked the depression out of my marrow and allowed me to have more of a life. 

It’s clear that I need these chemicals to function. And I have a feeling that I will be taking lithium for a very long time, maybe even for the rest of my life. 

But I can handle that. I am just grateful that lithium exists, that I can swallow a few capsules and be back on track to regaining myself.

The ups and downs

However, despite its success, there are some nights when I’m so tired that I’m tempted to go to bed without taking my pills. I don’t want to be reminded that I’m sick and that I’m different from all of my friends. I doubt they’re reliant on pills just to survive. 

But then, I see flashbacks: me pacing through the corridors of the psych ward; me standing at the medication counter while nurses pour tablets and capsules into little cups; me rocking back and forth on my bed, hoping that I can somehow get some relief from my depression. 

So I stumble to the bathroom sink, fill up a large glass of water, and then bring it to my bed. I spill my cocktail of tablets and capsules onto my comforter and start taking them. 

I remind myself that these pills are a collection of chemicals that allow me to function, to get through the day without being interrupted by the manic or depressive symptoms of my bipolar disorder.

Taking pills has become a part of every day. And, for me, every day begins and ends the same way: with me taking the pills my psychiatrist has prescribed to keep my bipolar illness at bay. 

Accepting the downsides 

I think you know by now that, for me, taking my pills is not optional. The consequences are very real and very scary. 

My medication keeps the depression at bay. It keeps me on the other side of that locked psych ward door, a place I don’t want to be. My medication allows me to live just like those who don’t need medication — so I can go to college and even get through grad school.

Even though I know all of this, it doesn’t mean I’m thrilled that I’ll be relying on psychiatric medication for the rest of my life. Of course, I worry about the long-term consequences on my body.

For example, I know that lithium can be hard on the kidneys. The medication that does so much for my emotional state can also make me nauseous with trembling hands. And it’s very embarrassing when I’m at a restaurant with friends and my hands tremble every time I reach over to put some food on my plate. 

Someone very close to me passed away because he refused to be treated for his own mood disorder. I think of him when I’m reluctant to take my pills. 

I know this person in my life didn’t want to take psychiatric medication because of the stigma of mental illness. I feel it myself when I go to the pharmacy to pick up my lithium. I still whisper the names of the medications I’m picking up so nobody will think I’m “crazy.” 

The bottom line

Psychiatric medications are effective. I don’t care if I have to experience side effects because anything is better than depression to me. My pills have given me my life back. 

I can’t say it’s easy to manage those side effects when they have me sitting in the emergency room getting fluids, but I don’t want to spend my days in bed, crying and isolated.

Depression is one of the most painful things I’ve ever gone through and I’m so grateful my medications exist to bring me back to the real world. I will keep taking them because I want to feel better, and this is how I can.

The article looks at a person’s life and how they manage their illness and medication. I can say without a doubt, that taking your medication as prescribed is the best way to manage your illness. 

Melinda

Reference:

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health

December Awareness Months & Days

Click on the link at the bottom of the post to see the entire list for December.

Awareness Months

HIV/AIDS Awareness Month

National Drunk & Drugged Driving (3D) Prevention Month

National Human Rights Month

Safe Toys and Gifts Month

Seasonal Affective Disorder Awareness Month

Universal Human Rights Month

World Twin To Twin Transfusion Syndrome Awareness Month

Worldwide Food Service Safety Month

Awareness Days

Rosa Parks Bus Seat Refusal Anniversary – December 1

World AIDS Day – December 1

Giving Tuesday – 1st Tuesday after Thanksgiving

International Day of Persons with Disabilities – December 3

International Volunteer Day – December 5

Human Rights Day – December 10

International Animal Rights Day – December 10

Bill of Rights Day – December 15

One important awareness day for me is Giving Tuesday when many charities have donors who will double or triple your donation. I make all of my yearly donations on that day to help the money stretch further.

Melinda

Reference:

https://www.goodgoodgood.co/articles/december-awareness-days-months

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Illness

2024 Must-Read Books on Bipolar Disorder

By Natalia Lusinski
Medically Reviewed by
Seth J. Gillihan, PhD
Last Updated: 22 Oct 2024
Reading memoirs and nonfiction about bipolar disorder helps connect with those living with this brain-based condition, whether you have it or love someone who does. By Natalia Lusinski
When it comes to bipolar disorder, sometimes it may be difficult for loved ones to understand what the person is experiencing. While they often view it through the lens of caregiving, they may not grasp the individual’s personal perspective.That’s where these books come in. They’ll help you feel less alone, whether you’re the one who has bipolar or know someone who does, like a friend, your partner, a parent, a coworker, a neighbor, a child, or anyone else in your social circle.We rounded up these 10 must-read books on bipolar from this year, perfect for personal reading or as a thoughtful gift for someone who could benefit from them.
1. Daddy’s Magical Rainbow – Having a Parent With Bipolar DisorderWhen a parent has bipolar disorder, it can be challenging for a child to understand the emotional ups and downs that come with the mental health condition. In Daddy’s Magical Rainbow – Having a Parent With Bipolar Disorder, author Sarah P. Foster aims to help children ages 4 to 11 better understand bipolar, though it’s also intended for readers of all ages.The story follows a little girl whose dad has bipolar disorder. She learns that “it’s the bipolar talking” — helping her realize it’s not her “fault” when her dad acts in certain ways, whether he’s angry, quiet, manic, or experiencing other emotions. Off the page, Foster is a special education teacher with 30 years of experience working with children. She also grew up in a home environment that was affected by mental health challenges. The illustrations add a lot of heart to the story and come with a unique touch. The illustrator, Lucie Pedersen, is only 10 years old, which likely explains why her artwork so naturally draws readers into the narrative. 
2. An Impossible Life: A True Story of Hope and Mental Illness An Impossible Life: A True Story of Hope and Mental Illness, by Rachael Siddoway and Sonja Wasden, is an award-winning bestseller highlighting how bipolar disorder can affect anyone — it does not discriminate. The book follows Wasden’s journey after being admitted to a psychiatric hospital — against her will — by her husband and father when she was 35 years old. On the outside, her life seemed idyllic: She was a mother of three living in the suburbs with her successful husband. However, behind closed doors, she was battling with intense symptoms of bipolar disorder, including manic and depressive episodes, as well as delusions. The book offers hope to those living with bipolar or those who know someone affected by it. Since her experience, Wasden has become a dedicated mental health advocate. Oprah Winfrey even participated in one of her virtual mental health book club discussions to help inspire female inmates at the world’s largest women’s prison.
3. The Bipolar Therapist: A Journey From Madness to Love and Meaning
The Bipolar Therapist: A Journey From Madness to Love and Meaning was written by Marcia Naomi Berger, LCSW. In this memoir, Berger is open and honest about her time spent in a psychiatric ward, particularly from the unique perspective of being a therapist who became a patient in the psych ward. Like anyone else, she had to confront the stigma and shameassociated with bipolar disorder. Through her story, we learn how this experience ultimately made her a more compassionate therapist. 
“Marcia Naomi Berger’s first-person account of her journey and transformation is courageous,” states Francis G. Lu, MD, professor emeritus in the department of psychiatry and behavioral sciences at UC Davis, in the editorial reviews. “As she writes, ‘Someone with mental illness is much bigger and more complex than their diagnosis.’”

4. Hogbook and Lazer Eyes 
Hogbook and Lazer Eyes is a graphic novel memoir by writer, actor, and stand-up comedian Maria Bamford and her husband, artist Scott Marvel Cassidy. The story is based on their unique courtship — told from the point of view of their pugs — and how they met on the dating site OkCupid, using the names “Hogbook” and “Lazer Eyes.” 
As it turns out, they had more in common than they initially thought: They both have bipolar 2 disorder. Whether you have bipolar or have been (or are) in a relationship with someone who does this heartwarming and funny book is sure to resonate.

5. Devout: A Memoir of Doubt
In Devout: A Memoir of Doubt, author Anna Gazmarian not only reflects on living with bipolar 2 disorder but also her struggles with spirituality. Raised in an evangelical household, Bazmarian’s 2011 diagnosis at age 18 led to a crisis of faith as well. Now 31 and living in Durham, North Carolina, where she works as an outreach coordinator for The Sun Magazine, a national literary publication, Gazmarian spoke with bpHope about her memoir earlier this year. “The longer I’ve had my diagnosis, and the longer I’ve sought treatment, the more I’ve learned to cope with having it be only part of my identity,” Gazmarian says, adding that opening up about her bipolar diagnosis and its impact has been a healing process. She hopes her story will inspire others. 

6. Bipolar, Not So Much: Understanding Your Mood Swings and Depression
Whether someone is newly diagnosed with bipolar disorder or has been living with the diagnosis for some time, this book, Bipolar, Not So Much: Understanding Your Mood Swings and Depression, offers valuable insights. Written by Chris Aiken, MD, a psychiatrist and assistant professor at New York University and Wake Forest medical schools, along with James Phelps, MD, emeritus psychiatrist, Samaritan Mental Health in Corvallis, Oregon, the book draws on their medical expertise to help readers understand the complexities of depressionand how to manage and cope with it. The authors also emphasize that bipolar disorder is nota one-size-fits-all diagnosis. They explore various treatment approaches, acknowledging that different methods work for different people. 

7. Be There: My Lived Experience With My Sister’s Bipolar Disorder
Be There: My Lived Experience With My Sister’s Bipolar Disorder tells the story of author Linsey Willis, the younger sibling and caregiver to her sister Betsy, who has bipolar disorder. Betsy’s diagnosis at 21, despite being an Ivy League-educated woman, came as a shock and drastically changed the course of her life. The book not only draws readers into Linsey and Betsy’s experiences but also resonates with anyone who has a sibling or loved one living with bipolar. At its core, the story carries an important message of resilience and hope

8. Living Well With Bipolar Disorder: Practical Strategies for Improving Your Daily Life
In Living Well With Bipolar Disorder: Practical Strategies for Improving Your Daily LifeDavid J. Miklowitz, MD, professor of psychology at the UCLA Semel Institute, offers practical strategies for managing life with bipolar disorder. He addresses common stressors to avoid, how to cope when they arise, and ways to handle mood swings effectively. 
The book covers a wide range of topics, from managing depression, mania, anxiety, and irritability to navigating daily routines such as sleep, relationships, and work. It also explores maintaining physical health, managing substance use, and making the most of medicationsand therapy for long-term mood stability.
“Dr. Miklowitz, an acclaimed authority in the treatment of mood disorders, provides clear and valuable suggestions for how to navigate a seemingly unnavigable condition,” Kay Redfield Jamison, PhD, professor of psychiatry and behavioral science at Johns Hopkins University School of Medicine, writes in an editorial review. 

9. Crazy… Or Something Else Entirely: A (Mostly) Secret Journey With Bipolar Disorder 
Jillian Dumond’s Crazy… Or Something Else Entirely: A (Mostly) Secret Journey With Bipolar Disorder is a heartfelt and humorous memoir that offers a candid look at how bipolar disorder has impacted her life, particularly in areas like dating and relationships. Written in a conversational style, Dumond invites readers into her world, sharing personal experiences that are both relatable and engaging. 
What makes the book even more compelling are the contributions from her family and friends, offering insights into bipolar disorder from a caregiver’s perspective. Through these multiple viewpoints, the book not only provides a deeper understanding of living with bipolar but also highlights the importance of support and empathy from loved ones.

10. The Social Rhythm Therapy Workbook for Bipolar Disorder
The Social Rhythm Therapy Workbook for Bipolar Disorder is written by Holly Swartz, MD, professor of psychiatry at the University of Pittsburgh, with a foreword by Ellen Frank, PhD, distinguished professor emeritus at the same university. In this workbook, Dr. Swartz explains how social rhythm therapy can help individuals with bipolar disorder reset their internal body clock, or circadian rhythm. By stabilizing daily routines and rhythms, this approach can reduce bipolar symptoms, lower stress, and support better mood management. The book offers practical tools for applying these strategies in everyday life to promote emotional stability

ABOUT THE AUTHOR

Natalia Lusinski
Natalia Lusinski is an editor and writer for bpHope and a wellness and lifestyle writer and editor, covering everything from health to travel to personal finance topics. Her work can be seen in several publications, including Business InsiderYahooForbesInsight Timer, and the L.A. Times. She spent several years living abroad and is currently working on a travel/grief memoir. (If anyone happens to be in Portugal, she’d love a pastel de nata.) Back in L.A., she runs a popular pizza Meetup and is still trying to find her favorite slice.

Her list looks very interesting and helpful.

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health

Blogger Highlight-SOLONGASICANBREATHE

Thank you for all the great feedback on the Blogger Highlight series, I’ve enjoyed meeting each blogger and sharing their site with you. This week we highlight the blog Solongasicanbreath. I’ve followed Marie for a short time but we connected straight away. She has ME which is a severe chronic illness and she graciously answered a question about the illness for me. Interestingly enough we have the same illness, ME and CFS are the same just different names. It sounds like CFS is more often used in America whereas the UK uses ME. I know the struggle and mine is not severe, I admire Marie’s outlook on life with the struggle she has. 

SOLONGASICANBREATHE

In late 2011 ME – Myalgic Encephalomyelitis – entered my world after a viral infection and while I lost my full time job in Accounting, my hobbies (which included hot yoga, running with my local athletics club and horse riding), and everything that once defined me, I gained a swathe of space and time.

Since then, I’ve used this time to observe this odd world of ours, amend how I view the term “living” and dabble in writing and tree planting (my friends, husband and I have planted about 100 mainly native trees in our 3/4 acre garden).

I’m passionate about our environment and live as sustainably as I can. We grow a lot of our own vegetables while buying into consumerism as little as possible.

My poems, short stories and non-fiction can be found in the books Poems from Conflicted Hearts, Observant Observings, magazines and journals such as Slant, Caustic Frolic, ROPES, JuxtaProse, online resources Glossy News, Every Writer and newspapers Irish Examiner and Irish Independent.

From 2014 to 2021, I wrote a regular column for the magazine Athenry News and Views.

One very important post she wrote is about having ME its called Losing Myself. It’s a long read but worth every minute. 

WHAT IS ME?

As per the CDC, ME is a serious and often long-lasting illness that keeps people from doing their usual activities.

It makes physical and mental exertion difficult.

Symptoms include trouble thinking, severe tiredness and other symptoms.

There is no known cause or cure. Care usually means treating the symptoms that most affect a person’s life.

HOW TO HELP PATIENTS WITH ME IN IRELAND?

There are many organisations available to patients and their carers.

Irish ME/CFS Association: https://irishmecfs.org/

The Irish ME Trust: https://www.imet.ie/

ME Advocates Ireland: https://meadvocatesireland.blogspot.com/

Patients with Severe ME  remain bedridden and need help with basic activities including nutrition and hydration.

Questions I asked

M.  You’ve published many articles, how did you get involved in writing for magazines?

M.  Like everything in life, by accident! In early 2014 after having some poems I submit to an anthology published, the publisher of the anthology asked if I’d enough material for a solo poetry book, which I did. And after that book Observant Observings was published and some articles appeared in local media to promote it, the editor of a local magazine reached out to me and asked if I was interested in writing a regular column for them. I said why not! I wrote an article for every issue from late 2014 to 2021 when the magazine ceased trading due to the impacts of the pandemic. And while I was writing for them, I began sending off work elsewhere which too has been published. Then, in 2016, after I wrote a letter to the editor of our national newspaper, The Irish Independent, following our general election at the time, and pointing out the reasons for anger in the country, the editor of the paper reached out to me, asking if I’d follow up with a full length journalistic piece, and that was published under my own name, which gave me another feather in my cap! Life lesson: take calculated risks! Have confidence in your ability and challenge yourself!

M.  How do you find joy in your day?

M.  Like many people living with long term illness, and being as limited as I am due to my ME, I’ve had to adapt and re-learn what living means without having a job or social life or the hobbies I once had (which included hot yoga, running with a local athletic club and horse riding). It didn’t happen overnight. But the more I sat with myself, the more I began to look outward, to see the seasons change, the light change within a day, etc. That’s where I now find joy. Watching the seasons roll in and watching how nature and her creatures react to each change. At present I have a hooded crow who for the last 3 years has showed up at my kitchen window for breakfast, lunch, and dinner. Joy can be found in the smallest of places, and you don’t even have to dip into your pocket to enjoy it!

Be sure to pull up a chair and read through Marie’s archives, you’ll leave with more knowledge than you came with. 

Melinda

Looking for the Light

 

Celebrate Life · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Question Of The Day

Our thumbs are important in many of the actions we take daily.

What are five things that are difficult to do without thumbs?

For me:

Opening the top on anything

Carrying something in my hands

Opening doorknobs

Buttonholes

Using scissors

Melinda

 

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Lung Cancer Awareness Month

Our lung health is critical to having a healthy life. I learned more about Lung Cancer while researching for this post, and I’m so glad I quit smoking 20+ years ago. 

Whether you are in perfect health, or you are living with a lung condition, there are many things you can do to protect your lungs and maintain your overall health and well-being.

Sometimes we take our lungs for granted. They keep us alive and well and for the most part, we don’t need to think about them. That’s why it is important to prioritize your lung health.

Your body has a natural defense system designed to protect the lungs, keeping dirt and germs at bay. But there are some important things you can do to reduce your risk of lung disease. Here are some ways to keep your lungs healthy.

Don’t Smoke

Cigarette smoking is the major cause of lung cancer and chronic obstructive pulmonary disease (COPD), which includes chronic bronchitis and emphysema. Cigarette smoke can narrow the air passages and make breathing more difficult. It causes chronic inflammation, or swelling in the lung, which can lead to chronic bronchitis. Over time cigarette smoke destroys lung tissue and may trigger changes that grow into cancer. 

If you smoke, it is never too late to benefit from quitting. We can help whenever you are ready.

I WANT TO QUIT 

Avoid Exposure to Air Pollutants That Can Damage Your Lungs

Indoor Air Quality

  • Indoor Air Quality (IAQ) refers to the air in the buildings and structures that we work, live, and play in as well as the immediate area around these buildings and structures.
  • IAQ is important for ALL of us since we spend up to 90% of our time indoors.
  • It can be surprising to learn that indoor air can be even more polluted than the air outdoors.
  • Secondhand smoke, chemicals in the home and workplace, mold and radon all can cause or worsen lung disease. 
  • You can take steps to improve your indoor air quality

Talk to your healthcare provider if you are worried that something in your homeschool or work may be making you sick.

Outdoor Air Pollution

The air quality outside can vary from day to day and sometimes is unhealthy to breathe. Knowing how outdoor air pollution affects your health and useful strategies to minimize prolonged exposure can help keep you and your family well. Climate change and natural disasters can also directly impact lung health.

To protect your lungs from outdoor pollution consider the following:

  • Avoid exercising outdoors on bad air days
  • Avoid exercising near high traffic areas
  • Check Airnow.gov to find out the daily air conditions in your area
  • Don’t burn wood or trash

Get Regular Check-ups

Regular check-ups help prevent diseases, even when you are feeling well. This is especially true for lung disease, which sometimes goes undetected until it is serious. During a check-up, your healthcare provider will listen to your breathing and listen to your concerns.

It is best to catch a lung condition in its earliest stages. That is why it is important for you to know what some of the common signs and symptoms are for lung conditions

Exercise

Whether you are young or old, slender or large, able-bodied or living with a chronic illness or disability, being physically active can help keep your lungs healthy. Learn more about how exercise can strengthen your lungs.

Public Health and Your Lungs

Health begins where we live, learn, work and play, and it’s important to ensure that safeguards are in place to protect us and prevent disease. 

SEE HOW PUBLIC HEALTH ISSUES CAN AFFECT LUNG HEALTH.

The scariest part is that you can get Lung Cancer from our everyday environment. To many saying “mask” sends their eyes rolling but if you think about it, wearing a mask prevents the Flu and COVID-19, and it protects your lungs. I look at China and see most people wearing masks, my guess is that COVID-19 scared them into the habit.

Melinda

Reference:

https://www.lung.org

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Diabetes Awareness Month

The number of people with Diabetes is staggering and can cut your life short if not managed. Below are estimates for the United States and estimates based on ethnic background.

Estimated prevalence of diabetes in the United States

  • Total: 38.4 million people of all ages had diabetes (11.6% of the population) in 2021. 38.1 million were adults ages 18 years or older.
  • Diagnosed: 29.7 million people of all ages had been diagnosed with diabetes (8.9% of the population).
    • 29.4 million were adults ages 18 years or older.
    • 352,000 were children and adolescents younger than age 20, including 304,000 with type 1 diabetes.
    • Age-adjusted data from 2019 to 2021 showed that, for both men and women ages 18 years or older, the prevalence of diagnosed diabetes was highest among American Indian and Alaska Native adults (13.6%), followed by non-Hispanic Black adults (12.1%), adults of Hispanic origin (11.7%), non-Hispanic Asian adults (9.1%), and non-Hispanic White adults (6.9%).
  • Undiagnosed: 8.7 million adults ages 18 years or older had diabetes but were undiagnosed (22.8% of adults with diabetes were undiagnosed).

Read about the estimates of diabetes in the United States External link and the prevalence of both diagnosed and undiagnosed diabetes in the National Diabetes Statistics Report from the Centers for Disease Control and Prevention (CDC).

According to the American Diabetes Association’s Economic Costs of Diabetes in the U.S. External link, the total estimated cost of diagnosed diabetes in 2022 was $412.9 billion, including $306.6 billion in direct medical costs and $106.3 billion in reduced productivity.

Additional Reports on Diabetes

References

Last Reviewed January 2024
This content is provided as a service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), part of the National Institutes of Health. NIDDK translates and disseminates research findings to increase knowledge and understanding about health and disease among patients, health professionals, and the public. Content produced by NIDDK is carefully reviewed by NIDDK scientists and other experts.

Why is Diabetic Medications so expensive?

Pharmaceutical companies spend billions of dollars in research and development to create new drugs, and for them to recoup their investment the FDA gives them a timeframe where the drug can not be made into a generic. If companies didn’t have a chance to recoup on investment, manufacturers would stop doing research to make more targeted drugs through the research they do. Brand names are more expensive for this reason. They are not public health services and are not operated by our government. Our government gets involved when the drugs are presented to the FDA for approval.

If you don’t have medical insurance, the cost of medication can put a dent in your monthly cost of living. Before picking up your medication even if you have insurance go on the app GoodRX to see if they have a less expensive price, and the pharmacist will honor the GoodRX price. If GoodRX doesn’t have a lower price ask the pharmacist if they know of any coupon codes. The first thing I do when taking a brand drug is go to the medication’s website to see if they have a co-pay program. I’m taking several newer brand medications and paying almost nothing because of the company’s co-pay cards.

Melinda

Reference:

https://www.niddk.nih.gov/health-information/health-statistics/diabetes-statistics

Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Fibromylagia Thoughts #13

I was diagnosed with Fibromyalgia in 2015 and during the years that have followed, I’ve experienced many types of symptoms and flares. In the past six months I’ve had many waves of flares to differing degrees, and also have experienced symptoms I had forgotten were fibromyalgia-related. I had to go back and read the basics and all the types of symptoms a flare can bring about.

Here are a few symptoms that were new to me

Reactive skin, burning all over my body that felt like acid with the simple move of my shirt or wiping my hands dry.

The arthritis pain in my hands has reached a new level of pain.

Parts of my body hurt more than before.

Overview of Fibromyalgia

Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. Researchers believe that fibromyalgia amplifies painful sensations by affecting the way your brain and spinal cord process painful and nonpainful signals.

Symptoms often begin after an event, such as physical trauma, surgery, infection or significant psychological stress. In other cases, symptoms gradually accumulate over time with no single triggering event.

While there is no cure for fibromyalgia, a variety of medications can help control symptoms. Exercise, relaxation, and stress-reduction measures also may help.

This is a short overview of whoever. There’s a wealth of knowledge available to read. Remember to check out the Fibromyalgia organizations. Look for respected sources because I ‘ve ran across several sites that are only selling supplements or pushed memberships. You want solid resources.

Some exercises may help, look for them and see how they fit in your life.

Melinda

References:

https://www.mayoclinic.org/diseases-conditions/fibromyalgia/symptoms-causes/syc-20354780

Celebrate Life · Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health · Mental Illness

10 Phrases Nobody With Bipolar Disorder Wants To Hear

By Tanya Hvilivitzky

Medically Reviewed by Allison Young, MD

Last Updated: 31 Jul 2024

Understanding the impact of your words can make a significant difference. Discover more thoughtful ways to express yourself and create a more caring environment.

Words have immense power. They can uplift and encourage but also wound deeply, often without the speaker even realizing it. This is particularly true for individuals living with bipolar disorder, for whom certain phrases can be not just unhelpful but profoundly hurtful. While some of these comments might seem innocuous or well-meaning, they often reflect misunderstandings about the nature of mental health conditions.

These phrases wouldn’t just be hurtful to someone with bipolar disorder; they can be upsetting to anyone, as they often invalidate feelings and experiences.

The goal isn’t to police language but to encourage awareness and empathy. Many in our community have shared that specific comments, though well-intentioned, can worsen their struggles. Understanding why these phrases are hurtful helps us become better allies and offers support that truly helps.

Here are 10 of the most common and hurtful things people with bipolar disorder have heard:

1. ‘Snap Out of It’

This phrase implies that managing bipolar disorder is simply a matter of willpower, which dismisses the complexity and challenges of the condition. Bipolar disorder is a serious mental health condition that involves severe mood swings, including manic and depressive episodes. Suggesting that someone can “snap out of it” minimizes the profound impact these episodes can have on a person’s life. It also ignores the necessity of medical treatment, therapy, and lifestyle changes to manage the disorder effectively.

A more supportive approach would be acknowledging their struggle and asking how to help, such as, “I can see you’re going through a tough time. How can I support you?”

2. ‘Everyone Has Mood Swings Sometimes’

Comparing typical mood swings to the extreme highs and lows of bipolar disorder minimizes the severity of the condition. Mood swings in bipolar disorder are not just simple changes in emotion; they can be intense and debilitating, affecting every part of a person’s life, from their relationships to their ability to function day-to-day. This comparison can make someone with bipolar disorder feel misunderstood and isolated.

Instead, try expressing empathy without comparison: “I can’t imagine how hard this must be for you. I’m here to listen if you need to talk.”

3. ‘You’re Just Being Overly Dramatic or Emotional’

This can be particularly hurtful as people with bipolar disorder may react strongly due to their condition, and being told they’re overreacting can feel invalidating. Such a statement dismisses their genuine feelings and experiences, which are influenced by their brain-based disorder. It’s essential to recognize that their reactions are not within their complete control.

A better way to respond would be to validate their feelings: “It seems like this is really affecting you. How can I help?”

4. ‘I Wish I Was Manic so I Could Get Stuff Done’

This comment trivializes the manic episodes of bipolar disorder, which can involve risky behaviorssleep problems, and impaired judgment, not just increased productivity. Mania is not simply a burst of energy; it can be destructive and dangerous. You might inadvertently romanticize a very challenging aspect of the disorder by saying this.

A more compassionate approach would be to ask how they are managing their symptoms: “It must be exhausting dealing with mania. What helps you cope?”

5. ‘Maybe You Should Pray More’

While spiritual practices can be a source of comfort for some, suggesting that prayer alone can manage bipolar disorder dismisses the need for medical treatment and professional support. Mental health conditions like bipolar disorder typically require a combination of medicationtherapy, and lifestyle adjustments.

A more helpful comment would be: “I hope you find comfort in your faith, and I’m here to support you in whatever way you need.”

6. ‘You Don’t Seem Like You’re Bipolar’

This is along the same lines as “You seem so normal.” This statement can make someone feel like their struggles are being dismissed or that they are being judged for not showing visible signs of their condition. Bipolar disorder doesn’t have a “look,” and many people work hard to manage their symptoms and appear outwardly stable. It’s essential to recognize that internal experiences can differ greatly from outward appearances.

Instead, you might say: “I admire how well you manage your condition. How are you really feeling?”

7. ‘Why Can’t You Just Be Happy?’

Suggesting that happiness is simply a choice overlooks the complex factors that influence mood in bipolar disorder. Happiness is not a simple decision for someone with a brain-based disorder; it can be influenced by connections between brain cells, life circumstances, and other factors beyond their control. This question can feel dismissive and make the person feel blamed for their condition.

A more supportive statement would be: “I’m sorry you’re feeling this way. What can I do to help?”

8. ‘Have You Tried Just Not Taking Your Meds?’

This can be dangerous advice, as managing bipolar disorder often requires careful medical supervision, and abruptly stopping medication can have serious consequences. Medications for bipolar disorder are usually carefully prescribed and monitored by a healthcare provider to manage symptoms and prevent an episode. Suggesting someone stop their medication can undermine their treatment plan and pose significant risks.

Instead, express support for their treatment plan: “I hope your treatment is helping. How are you finding it?”

9. ‘You Just Need to Exercise More’

While exercise can be beneficial for mental health, suggesting it as a cure-all solution minimizes the complexity of bipolar disorder and the need for comprehensive treatment plans. Exercise is part of a broader treatment strategy that includes medication and therapy.

Instead of suggesting a simple fix, acknowledge the complexity of the condition: “Exercise can be helpful. What else is part of your treatment plan?”

10. ‘You’ve Got It So Good, Why Are You Depressed?’

This minimizes the person’s feelings and implies that their life circumstances should prevent them from feeling depressed, which is not how bipolar disorder works. Depression in bipolar disorder is not about having a bad day; it’s a severe symptom that can occur regardless of external circumstances.

A more empathetic response would be: “I know things might look good from the outside, but I understand that doesn’t change how you feel. How can I support you?”

UPDATED: Originally posted November 27, 2016

CAREGIVERSFAMILYFRIENDSRELATIONSHIPSSTIGMA

ABOUT THE AUTHOR

Tanya Hvilivitzky

Tanya Hvilivitzky has spent more than 30 years in the communications field — a career that has included stints as an investigative journalist, managing editor for a lifestyle and wellness magazine, corporate communications director, and researcher/writer. She has been with bpHope (and bp Magazine) since 2016, serving in roles such as features editor, interim editor, and, currently, senior editor. She has been devoted to mental health awareness since she was the editor of Schizophrenia Digest in her early days, and now with a particular focus on highlighting the complexities of bipolar disorder through compassionate, service-based journalism. As an award-winning writer/editor, Tanya received the Beyond Borders Media Award for her 2012 investigative exposé about human trafficking for Niagara Magazine. Her work on this critical topic also earned the Media Freedom Award “Honouring Canada’s Heroes” from the Joy Smith Foundation to Stop Human Trafficking.

Melinda

Reference:

https://www.bphope.com/bipolar-buzz/the-worst-things-you-can-say-to-someone-with-bipolar/?utm_source=iContact&utm_medium=email&utm_campaign=bphope&utm_content=BUZZ+-+Nov3+-+10Phrases

Celebrate Life · Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health

What I’ve Learned In 61 Years Part 7

Customer Service has become a relic term, not even common courtesy is extended today.

Medical doctor’s offices claim to be the top in the field with all these awards including ones for customer service. Why is it that I can’t get a critical question answered by my doctor through the portal?

I had to wait an hour on the phone until the receptionist could find a live person to talk with me, I didn’t have anything better to to do. Maybe it’s time we start charging for the hours we spend trying to get answers. It took me from 10/22/24 to 11/6/24 to get someone on the phone and schedule my surgery.

Today I had an appointment with my new pharmacist since I’m changing pharmacies. We scheduled last week to meet today at 2:00 pm, at 2:30 pm I called to say I had other things to do and when she was ready she could call to reschedule. I got a message back saying one of the pharmacists had a meeting that ran long. Why can’t you text me the minute you knew there was a conflict? Again where the hell is the communication. It’s like the medical community has decided it’s no longer their issue. I disagree!

Why did the powers that be allow text spam? Who’s making money here? Or is it that big business has so much power over the FTC that allowed this to happen?

Who is selling my email information? I get a 10-15 spam emails a day. It is impossible to track down because I will not click on any links. Be sure to read the Privacy Information for companies you sign up with to see what they do with your data.

All the issues I was having with Bots were because WordPress shares your information with its so-called partners. I had to search a bit but found a hidden sentence that if clicked allows WordPress to share information with their AI partners for training AI. Ok, I switch it off thinking that mess is over. Not so quick. I went three days without Bots and now they are back with a vengeance. I don’t have a complete problem with AI but I want to know how my content is used and how I get credit for the content. It also screws up the views, it can get so complicated that it’s not worth it. I will say that FaceBook/Meta is the AI bot that attacks my archives daily.

I realize not every town has these problems, that’s great for you. I hope it remains that way for a long time.

I’m observing that most businesses are pushing you to their portals so they don’t have to talk with you. How far down do we go from here? Will we have to make an appointment just to have a question answered?

I don’t care for this lack of human connection one bit, it will only spill over to the rest of our lives. Scary!

What bothers you today about the lack of communication?

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health

Health Update November 2024

The trip to the Mayo wasn’t quite what I expected but you have to remember I was only there for three days. I was scheduled for four days but was so frustrated I left early. The good is that a couple of things were ruled out. For one I don’t have cancer which was a major concern of mine, and I don’t have a bleeding disorder. They did discover I had weakness in my legs, hands, and arms but I did not stay around to meet with the Neurologist. I also found out I have several types of serious Anemia but my Immunologist doesn’t seem to care. Time for a new Immunologist. I even stopped my Antibody Infusion Treatments due to a lack of communication on his part. The Mayo for as good as they are can only handle so many areas of concern due to time constraints. They wanted me to come back for more testing but I refused. The trip cost was very high when you look at airport parking, airline tickets, a rental car, and a hotel, eating, and putting the dogs in the kennel. Not to mention my husband taking a week off work. Maybe I’ll go back at another time but for now, I’m seeking out doctors that can help me locally.

I sought out a Hand Orthopedic doctor for carpel tunnel and the pain I was experiencing. Through the process, I found out I have Osteoarthritis in my thumbs which is one reason for the severe pain. I now wear thumb braces, take low-dose pain medication for arthritis in my hands, and am having carpel tunnel surgery in both hands as well as having a wrist brace taken out that was put in when I broke my wrist in 2018. It’s moved and it causing pain. I hope to have at least the left-hand surgery done this month.

I’ve been battling one Fibromyalgia flare after another for months now. I’ll save the details for the Fibromyalgia post I’m writing.

I have also been battling low-grade depression probably caused by stress and worry. My depression is very sensitive to stress. I’m feeling better but still not my normal self.

One great action I’ve taken is to return to weekly chiropractor visits and monthly massages. This has helped me work the stress out of my body and work to align the degenerative areas. It’s a hurt-so-good stage.

Like everyone, there’s always something we are dealing with and we have to step up to the plate and deal with them. :)

Melinda

Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward

Resisting the Lure of Toxic Positivity While Chronically Ill

by Hannah Shewan Stevens

Medically Reviewed by:

Francis Kuehnle, MSN, RN-BC

Chronic illness is hard to live with, but coping by responding with excessive positivity can suppress our real feelings.

Those who live with chronic illnesses know all too well how frequently people shower you with meaningless platitudes like “just be positive” and “mind over matter.”

Of course, how we feel mentally affects our physical health, but being chronically ill also sucks sometimes. It’s OK to acknowledge that reality. But often, when we do, we’re told we’re being overdramatic or to force ourselves to “think our way back to being healthy.”

It’s time to reject toxic positivity and find coping mechanisms that actually work for you instead of methodologies that punish you for having “negative feelings.”

What is toxic positivity?

Toxic positivity is an expectation that no matter how serious a situation or diagnosis is, a person should maintain an ongoing optimistic and positive outlook and attitude regardless of how serious the circumstances are,” said Chicago-based clinical social worker Iris Waichler, MSW, LCSW.

This invasive method of communication shows up in countless ways, often slipping out of people’s mouths without them even noticing. Sometimes, it comes from the inside, led by an internal battle to just “get over it,” but it typically arises when people place their life view onto others.

“Toxic positivity often looks like someone giving you a motivational quote instead of actually listening, helping, or being there for you,” said Kitty Underhill, a body and self-acceptance coach from London, England. “For example, you could be struggling and communicating that to a friend, and they shut down the conversation with a statement like ‘good vibes only’ or dismissing it as being ‘low frequency.’

“Toxic positivity also looks like using buzzphrases like ‘what doesn’t kill you makes you stronger’ and telling you that you need to have a more positive attitude rather than hearing you out — it’s an emotional cop-out,” she added.

The impact of toxic positivity is wide-ranging and pervasive, sometimes hiding beneath the surface for years before we’re able to recognize that it’s prevented us from feeling the full spectrum of human emotion without feeling guilty for not being cheerful enough for those around us.

“Toxic positivity may cause people to believe their feelings are not worthwhile, create self-doubt and shame, and make them believe their feelings are invalid,” said Waichler. “The unintended consequences may be enhanced insecurity, which lessens self-confidence and self-worth.”

How can it show up in our lives with chronic illness?

The effects may largely be the same, but chronically ill people deal with another poisonous layer when facing toxic positivity: disbelief.

Too often, disabled and chronically ill people are encouraged to “think themselves well” because it’s “mind over matter,” but this neglects reality. A positive outlook can improve someone’s overall well-being. However, it’s not a magical cure for incurable illness.

“A healthy person may not have a real understanding of the physical, medical, and psychological ramifications that chronic illness has on an individual,” Waichler said. “A healthy person’s attempt to “cheer them up” or be unrealistically positive can create feelings of alienation, resentment, and anger for the person on the receiving end.”

Toxic positivity is dismissive because it discards their feelings, insisting that they be processed on the other person’s terms. Unsurprisingly, this is a common occurrence between people with and without chronic illnesses, as it’s easily assumed that we’re being overdramatic or exaggerating our symptoms.

Faced with an onslaught of forced cheerfulness and disbelief, submitting to toxic positivity sometimes feels like the only option, but chronically ill and disabled people deserve to be heard.

“It can be easy to fall for toxic positivity, especially when a lot of ableism depends on disabled folks not speaking up about what they are experiencing and overriding their own comfort and pain levels to make abled folks feel more comfortable,” said Underhill.

“We must remember that toxic positivity is another way of shutting down unpalatable emotions and that our emotions still deserve to be heard and expressed,” she added.

Understanding the difference between toxic positivity and genuine positivity 

“Genuine positivity makes space for the negative and doesn’t try to write it off or bat it away,” said Underhill. “Genuine positivity helps you to see things from different angles and perspectives, which can be helpful if we’re getting tunnel vision from feeling hopeless, angry, or upset from experiencing chronic pain issues.”

Where genuine positivity leaves spaces for pain while searching for light, comparatively, toxic positivity shuts down the conversation and obliterates the beautiful spectrum of our emotions.

Resisting the seductive pull of toxic positivity is exhausting, and sometimes, we fall under its spell before it’s possible to throw up a shield.

“If you’ve succumbed to toxic positivity, consider taking a step back to evaluate why you acquiesced,” said Carissa Hodgson, LCSW, OSW-C, director of programs and community outreach at Bright Spot Network and a clinical social worker. “Is it because you don’t have anyone who can authentically support you? Are you struggling with accepting your feelings about an experience? What is it that you need?”

Building your defenses

“To get rid of toxic positivity, it’s worth asking yourself the question, ‘Why do I feel like I cannot hold space for harder emotions?’” said Underhill.

“It’s also worth remembering that no emotion has a moral value. Emotions are not ‘good’ or ‘bad,’” she added. “Emotions are information that we can learn from and take into account.”

Allow yourself to feel everything you need to feel by granting yourself the gift of patience. There is no better defense against toxic positivity than the freedom to feel your emotions without judging them or suffocating them.

Confronting the toxic positivity around us

Try to practice patience when dealing with toxically positive people. It’s hard when you’re so regularly bombarded with it, but know that they are probably trying to empathize. It’s human instinct to jump straight to suggesting solutions. We all do it, even when it’s unwanted.

“Understand that the person is trying to be helpful,” said Waichler. “Help them to then understand how what they said makes you feel.

“Tell a well-meaning loved one with toxic positivity that you appreciate that they are trying to be supportive and positive about your medical condition,” she continued.

Developing healthier coping mechanisms

It’s crucial to develop additional coping mechanisms that manage the mental impact of chronic illness to resist the lure of toxic positivity long term.

“Educate yourselves about the medical condition and how it will progress so your expectations are realistic,” advised Waichler. “It will help you prepare for changes that will evolve in the future.”

Broaden your circle of friends to ensure that your support network is full of people who will understand your experiences with chronic illness. Your loved ones will support you, but unless they also have a chronic illness, they will struggle to understand. Fellow chronically ill people may be better suited to supporting you without relying on toxic positivity to do so.

However, be wary, too. Even the most well-developed support groups can fall prey to toxic positive influences.

“Toxic positivity is often a trojan horse found in online support groups and discussion boards — seemingly helpful and cheery but completely dismissive of the real struggles people are having,” said Hodgson.

As an additional shield, she suggests that people “Create an empowering mantra that entitles you to your feelings, such as ‘My feelings are real’ or ‘I have a right to feel how I want to feel,’ so when you see a dismissive statement, you can repeat your mantra to yourself and keep on reading.”

Medically reviewed on April 20, 2024

I can see how someone chronically ill can fall deep into the positivity route, it feels good at first but over time it overshadows the reality of being chronically ill. As mentioned in the post, many days suck and we can’t just cover them up as if they don’t exist. I’m all for positive energy but if someone just wants to change your thoughts and act like everything is ok, they are not doing you any favor.

Melinda

Reference:

Chronic Illness · Health and Wellbeing · Infectious Diease · Lyme Disease · Medical · Men & Womens Health · Mental Health · Moving Forward · Self-Care · Tick Borne Illnesses

Understanding and supporting invisible disabilities, including Lyme disease

Lonnie Marcum

OCT 24, 2024

Invisible disabilities are physical, mental, or neurological conditions that are not immediately apparent to others. Despite being “invisible,” these conditions can significantly impact a person’s life and require special accommodations and ongoing support.

Unlike conditions that other people can see, such as those requiring the use of a wheelchair, invisible disabilities often go unnoticed, leading to misconceptions about a person’s needs.

Examples of common invisible disabilities

  • Dysautonomia, also known as autonomic dysfunction, refers to a condition in which the autonomic nervous system (ANS) does not function properly. The ANS controls many crucial bodily functions, such as heart rate, blood pressure, digestion, temperature regulation, and respiratory rate. When the ANS is impaired, these processes can become dysregulated, leading to a wide range of symptoms.
  • Post-exertional malaise (PEM) where even minor physical or mental exertion can result in severe symptom exacerbation, often lasting days or weeks.
  • Chronic fatigue syndrome (CFS): Fatigue lasting six months or more, and PEM
  • POTS (Postural Orthostatic Tachycardia Syndrome) is a condition characterized by a significant increase in heart rate when a person stands up from a lying down position. It is a form of dysautonomia. People with POTS experience an abnormal response when they move to an upright position, leading to symptoms that can be disabling.
  • Myalgic Encephalomyelitis (ME): Causes widespread neuro-immune related symptoms including: neuroinflammation, immune dysfunction, muscle pain, headaches, cognitive dysfunction (often described as “brain fog”), dysautonomia, PEM, CFS and POTS.

Patients with Lyme and tick-borne disease are often left with persistent symptoms following treatment. In MyLymeData, now with over 18,000 participants, the three most frequently reported worst symptoms include neurological-associated symptoms (84%), fatigue (62%), and musculoskeletal-associated symptoms (57%).

POTS is the most common manifestation of dysautonomia reported to occur in patients with persistent symptoms of Lyme disease.

Infection-associated chronic conditions

For years, ILADS conferences have been the only place I heard clinicians and researchers expressing an understanding and a desire to help patients with complex, infection-associated chronic conditions (IACC).

In 2021, I reviewed a paper entitled “Recent Progress in Lyme Disease and Remaining Challenges,” co-authored by 31 researchers from 19 separate institutions. That paper felt like a real tipping point to me.

Last week, I watched the final meeting of the CDC/HHS funded “Infection-Associated Chronic Conditions – Understanding and Engagement” (ICUE) project. During that meeting, LymeDisease.org’s Lorraine Johnson, represented and gave voice to the millions of patients living with chronic symptoms following infection with Lyme and/or other tick-borne diseases. (Read her summary of that meeting here)

With all the new collaborations coming out of the National Academies of Science, Engineering and Medicine (NASEM) workshop on “Lyme infection-associated chronic illness or “Lyme IACC,”  I have high hopes for continued progress—not just for patients with chronic Lyme and co-infections, but so many other marginalized illnesses like long-COVID, ME/CFS, and dysautonomia.

Last year, I wrote about the real symptoms suffered by patients with invisible illness.Recently I offered suggestions on how patients can track those symptoms and share them with their doctors  to aid in better diagnosis and treatment.

For everyone out there suffering from an invisible illness: I just want to say that I see you, I hear you, and I believe you.

LymeSci is written by Lonnie Marcum, a physical therapist and mother of a daughter with Lyme. She served two terms on a subcommittee of the federal Tick-Borne Disease Working Group. Follow her on Twitter: @LonnieRhea Email her at: lmarcum@lymedisease.org.

Melinda

Reference:

https://www.lymedisease.org/invisible-disabilities-lyme-disease/

Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward · Survivor · Trauma

Announcing NO MORE Week 2025

I’m excited to share that NO MORE Week 2025 has been set for March 2nd through March 8th, the annual time when thousands of survivors, allies, employers, organizations, colleges, and communities around the world unite for the cause of ending domestic and sexual violence. 

This year, our theme is NO MORE Silence. Every time we break the silence, we destigmatize conversations around domestic and sexual violence and help survivors find support. And, we help to prevent abuse by educating more people about healthy relationships and by creating a culture where abuse is not tolerated.

Now is the time to plan how you can be a part of NO MORE Week 2025. Here are some simple ways to get started:

Join the NO MORE Week Challenge:

Sign up for the NO MORE Week Challenge, a virtual Walk/Run that allows you to choose your distance—5K, 10K, or a half marathon—and complete it at your own pace in March. This year, every dollar raised will go to support victims/survivors of abuse. Rally your friends and family to sponsor your efforts, or form a team to amplify your impact.

Join the Challenge

Attend the NO MORE Week Tech Summit

Save Tuesday, March 4th to attend the 2025 NO MORE Week Tech Summit, “Empowering or Endangering? Tech’s Impact on Domestic and Sexual Violence.”During this free, online conference, global experts will discuss cutting-edge research, policy shifts and product development, providing a wealth of insights and opportunities for action. Early registration is now open! 

Sign Up Now

Use Your Own Platform to Raise Awareness

Create an event – online or in person – to raise awareness on your campus, at work, or in your community. Whether it’s hosting a coffee or happy hour; holding a workplace conversation; or engaging friends on social media, every action will get more people to join the movement. Let us know what you’re planning so we can help amplify your efforts! 

Check out our NO MORE Week 2025 Guide you can use to get more information and ideas. We’re looking forward to uniting once again on March 2nd because we know that we are louder, stronger and more impactful together! Thank you for your continued support.

Get Involved

I’ve signed up for the No More Week Tech Summit, no doubt registration will go fast. I’ll follow up with a post specific to the Tech Summit.

Melinda

Reference:

https://www.nomore.org/email/f68b3e4b-5f24-4b32-9063-7776875bf364/?ref=no-more-newsletter

Chronic Illness · Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health · Mental Health · Moving Forward

AIDS Awareness Month & History

How My Lyme Doctor diagnosed the first HIV/Aids patient in North Carolina

A second-generation physician from Illinois, curious about medical mysteries (“It’s just like detective work!”), young Dr. Joe Jemsek became an infectious diseases fellow in 1977. In 1979, Jemsek and his young family resettled in Charlotte, North Carolina, where he began a promising infectious disease practice at the renowned Nalle Clinic. Intrigued by reports of a “gay cancer,” Joe’s “detective” instincts led him to diagnose North Carolina’s first case of what would soon be known as HIV/AIDS. As the years went by, he grew absorbed by the AIDS epidemic, bearing witness to some of its most dire casualties — losing patient after patient to opportunistic infections — as well as to the first signs of hope with the advent of life-saving drugs in 1995.

I’m so proud of Dr. Jemsek, he took his knowledge as an Infectious Disease doctor and made history. Due to his commitment more research has been done and the lives on people with HIV/AIDS have improved.

What is HIV?

The human immunodeficiency virus, or HIV, is a virus that attacks the immune system, specifically CD4 cells (or T cells).

The virus is transmitted through bodily fluids such as blood, semen, vaginal fluids, anal fluids, and breast milk. Historically, HIV has most often been spread through unprotected sex, the sharing of needles for drug use, and through birth.

Over time, HIV can destroy so many CD4 cells that the body can’t fight infections and diseases, eventually leading to the most severe form of an HIV infection: acquired immunodeficiency syndrome, or AIDS. A person with AIDS is very vulnerable to cancer and to life-threatening infections, such as pneumonia.

Though there is no cure for HIV or AIDS, a person with HIV who receives treatment early can live nearly as long as someone without the virus. And a study in 2019 in the medical journal, Lancet, showed that an anti-viral treatment effectively halted the spread of HIV.

In September of 1982, the CDC used the term AIDS to describe the disease for the first time. By the end of the year, AIDS cases were also reported in a number of European countries.

Where Did AIDS Come From?

Scientists have traced the origin of HIV back to chimpanzees and simian immunodeficiency virus (SIV), an HIV-like virus that attacks the immune system of monkeys and apes.

In 1999, researchers identified a strain of chimpanzee SIV called SIVcpz, which was nearly identical to HIV. Chimps, the scientist later discovered, hunt and eat two smaller species of monkeys—red-capped mangabeys and greater spot-nosed monkeys—that carry and infect the chimps with two strains of SIV. These two strains likely combined to form SIVcpz, which can spread between chimpanzees and humans.

SIVcpz likely jumped to humans when hunters in Africa ate infected chimps, or the chimps’ infected blood got into the cuts or wounds of hunters. Researchers believe the first transmission of SIV to HIV in humans that then led to the global pandemic occurred in 1920 in Kinshasa, the capital and largest city in the Democratic Republic of Congo.

The virus spread may have spread from Kinshasa along infrastructure routes (roads, railways, and rivers) via migrants and the sex trade.

In the 1960s, HIV spread from Africa to Haiti and the Caribbean when Haitian professionals in the colonial Democratic Republic of Congo returned home. The virus then moved from the Caribbean to New York City around 1970 and then to San Francisco later in the decade.

International travel from the United States helped the virus spread across the rest of the globe.

Advances in Treatment options

DOVATO

Cabenuva

Lenacapavir

islatravir. close to FDA approval

There are older medications that may work for you, talk to your doctor about and come up with a plan that works for you.

Melinda

References:

https://www.history.com/topics/1980s/history-of-aids