Category: Medical

Diabetes Awareness Month
Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Diabetes Awareness Month

Looking for the Light2 Comments

The number of people with Diabetes is staggering and can cut your life short if not managed. Below are estimates for the United States and estimates based on ethnic background.

Estimated prevalence of diabetes in the United States

  • Total: 38.4 million people of all ages had diabetes (11.6% of the population) in 2021. 38.1 million were adults ages 18 years or older.
  • Diagnosed: 29.7 million people of all ages had been diagnosed with diabetes (8.9% of the population).
    • 29.4 million were adults ages 18 years or older.
    • 352,000 were children and adolescents younger than age 20, including 304,000 with type 1 diabetes.
    • Age-adjusted data from 2019 to 2021 showed that, for both men and women ages 18 years or older, the prevalence of diagnosed diabetes was highest among American Indian and Alaska Native adults (13.6%), followed by non-Hispanic Black adults (12.1%), adults of Hispanic origin (11.7%), non-Hispanic Asian adults (9.1%), and non-Hispanic White adults (6.9%).
  • Undiagnosed: 8.7 million adults ages 18 years or older had diabetes but were undiagnosed (22.8% of adults with diabetes were undiagnosed).

Read about the estimates of diabetes in the United States External link and the prevalence of both diagnosed and undiagnosed diabetes in the National Diabetes Statistics Report from the Centers for Disease Control and Prevention (CDC).

According to the American Diabetes Association’s Economic Costs of Diabetes in the U.S. External link, the total estimated cost of diagnosed diabetes in 2022 was $412.9 billion, including $306.6 billion in direct medical costs and $106.3 billion in reduced productivity.

Additional Reports on Diabetes

References

Last Reviewed January 2024
This content is provided as a service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), part of the National Institutes of Health. NIDDK translates and disseminates research findings to increase knowledge and understanding about health and disease among patients, health professionals, and the public. Content produced by NIDDK is carefully reviewed by NIDDK scientists and other experts.
—

Why is Diabetic Medications so expensive?

Pharmaceutical companies spend billions of dollars in research and development to create new drugs, and for them to recoup their investment the FDA gives them a timeframe where the drug can not be made into a generic. If companies didn’t have a chance to recoup on investment, manufacturers would stop doing research to make more targeted drugs through the research they do. Brand names are more expensive for this reason. They are not public health services and are not operated by our government. Our government gets involved when the drugs are presented to the FDA for approval.

If you don’t have medical insurance, the cost of medication can put a dent in your monthly cost of living. Before picking up your medication even if you have insurance go on the app GoodRX to see if they have a less expensive price, and the pharmacist will honor the GoodRX price. If GoodRX doesn’t have a lower price ask the pharmacist if they know of any coupon codes. The first thing I do when taking a brand drug is go to the medication’s website to see if they have a co-pay program. I’m taking several newer brand medications and paying almost nothing because of the company’s co-pay cards.

Melinda

Reference:

https://www.niddk.nih.gov/health-information/health-statistics/diabetes-statistics

Fibromylagia Thoughts #13
Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Fibromylagia Thoughts #13

Looking for the Light14 Comments

I was diagnosed with Fibromyalgia in 2015 and during the years that have followed, I’ve experienced many types of symptoms and flares. In the past six months I’ve had many waves of flares to differing degrees, and also have experienced symptoms I had forgotten were fibromyalgia-related. I had to go back and read the basics and all the types of symptoms a flare can bring about.

Here are a few symptoms that were new to me

Reactive skin, burning all over my body that felt like acid with the simple move of my shirt or wiping my hands dry.

The arthritis pain in my hands has reached a new level of pain.

Parts of my body hurt more than before.

Overview of Fibromyalgia

Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. Researchers believe that fibromyalgia amplifies painful sensations by affecting the way your brain and spinal cord process painful and nonpainful signals.

Symptoms often begin after an event, such as physical trauma, surgery, infection or significant psychological stress. In other cases, symptoms gradually accumulate over time with no single triggering event.

While there is no cure for fibromyalgia, a variety of medications can help control symptoms. Exercise, relaxation, and stress-reduction measures also may help.

This is a short overview of whoever. There’s a wealth of knowledge available to read. Remember to check out the Fibromyalgia organizations. Look for respected sources because I ‘ve ran across several sites that are only selling supplements or pushed memberships. You want solid resources.

Some exercises may help, look for them and see how they fit in your life.

Melinda

References:

https://www.mayoclinic.org/diseases-conditions/fibromyalgia/symptoms-causes/syc-20354780

10 Phrases Nobody With Bipolar Disorder Wants To Hear
Celebrate Life · Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health · Mental Illness

10 Phrases Nobody With Bipolar Disorder Wants To Hear

Looking for the Light11 Comments

By Tanya Hvilivitzky

Medically Reviewed by Allison Young, MD

Last Updated: 31 Jul 2024

Understanding the impact of your words can make a significant difference. Discover more thoughtful ways to express yourself and create a more caring environment.

Words have immense power. They can uplift and encourage but also wound deeply, often without the speaker even realizing it. This is particularly true for individuals living with bipolar disorder, for whom certain phrases can be not just unhelpful but profoundly hurtful. While some of these comments might seem innocuous or well-meaning, they often reflect misunderstandings about the nature of mental health conditions.

These phrases wouldn’t just be hurtful to someone with bipolar disorder; they can be upsetting to anyone, as they often invalidate feelings and experiences.

The goal isn’t to police language but to encourage awareness and empathy. Many in our community have shared that specific comments, though well-intentioned, can worsen their struggles. Understanding why these phrases are hurtful helps us become better allies and offers support that truly helps.

Here are 10 of the most common and hurtful things people with bipolar disorder have heard:

1. ‘Snap Out of It’

This phrase implies that managing bipolar disorder is simply a matter of willpower, which dismisses the complexity and challenges of the condition. Bipolar disorder is a serious mental health condition that involves severe mood swings, including manic and depressive episodes. Suggesting that someone can “snap out of it” minimizes the profound impact these episodes can have on a person’s life. It also ignores the necessity of medical treatment, therapy, and lifestyle changes to manage the disorder effectively.

A more supportive approach would be acknowledging their struggle and asking how to help, such as, “I can see you’re going through a tough time. How can I support you?”

2. ‘Everyone Has Mood Swings Sometimes’

Comparing typical mood swings to the extreme highs and lows of bipolar disorder minimizes the severity of the condition. Mood swings in bipolar disorder are not just simple changes in emotion; they can be intense and debilitating, affecting every part of a person’s life, from their relationships to their ability to function day-to-day. This comparison can make someone with bipolar disorder feel misunderstood and isolated.

Instead, try expressing empathy without comparison: “I can’t imagine how hard this must be for you. I’m here to listen if you need to talk.”

3. ‘You’re Just Being Overly Dramatic or Emotional’

This can be particularly hurtful as people with bipolar disorder may react strongly due to their condition, and being told they’re overreacting can feel invalidating. Such a statement dismisses their genuine feelings and experiences, which are influenced by their brain-based disorder. It’s essential to recognize that their reactions are not within their complete control.

A better way to respond would be to validate their feelings: “It seems like this is really affecting you. How can I help?”

4. ‘I Wish I Was Manic so I Could Get Stuff Done’

This comment trivializes the manic episodes of bipolar disorder, which can involve risky behaviors, sleep problems, and impaired judgment, not just increased productivity. Mania is not simply a burst of energy; it can be destructive and dangerous. You might inadvertently romanticize a very challenging aspect of the disorder by saying this.

A more compassionate approach would be to ask how they are managing their symptoms: “It must be exhausting dealing with mania. What helps you cope?”

5. ‘Maybe You Should Pray More’

While spiritual practices can be a source of comfort for some, suggesting that prayer alone can manage bipolar disorder dismisses the need for medical treatment and professional support. Mental health conditions like bipolar disorder typically require a combination of medication, therapy, and lifestyle adjustments.

A more helpful comment would be: “I hope you find comfort in your faith, and I’m here to support you in whatever way you need.”

6. ‘You Don’t Seem Like You’re Bipolar’

This is along the same lines as “You seem so normal.” This statement can make someone feel like their struggles are being dismissed or that they are being judged for not showing visible signs of their condition. Bipolar disorder doesn’t have a “look,” and many people work hard to manage their symptoms and appear outwardly stable. It’s essential to recognize that internal experiences can differ greatly from outward appearances.

Instead, you might say: “I admire how well you manage your condition. How are you really feeling?”

7. ‘Why Can’t You Just Be Happy?’

Suggesting that happiness is simply a choice overlooks the complex factors that influence mood in bipolar disorder. Happiness is not a simple decision for someone with a brain-based disorder; it can be influenced by connections between brain cells, life circumstances, and other factors beyond their control. This question can feel dismissive and make the person feel blamed for their condition.

A more supportive statement would be: “I’m sorry you’re feeling this way. What can I do to help?”

8. ‘Have You Tried Just Not Taking Your Meds?’

This can be dangerous advice, as managing bipolar disorder often requires careful medical supervision, and abruptly stopping medication can have serious consequences. Medications for bipolar disorder are usually carefully prescribed and monitored by a healthcare provider to manage symptoms and prevent an episode. Suggesting someone stop their medication can undermine their treatment plan and pose significant risks.

Instead, express support for their treatment plan: “I hope your treatment is helping. How are you finding it?”

9. ‘You Just Need to Exercise More’

While exercise can be beneficial for mental health, suggesting it as a cure-all solution minimizes the complexity of bipolar disorder and the need for comprehensive treatment plans. Exercise is part of a broader treatment strategy that includes medication and therapy.

Instead of suggesting a simple fix, acknowledge the complexity of the condition: “Exercise can be helpful. What else is part of your treatment plan?”

10. ‘You’ve Got It So Good, Why Are You Depressed?’

This minimizes the person’s feelings and implies that their life circumstances should prevent them from feeling depressed, which is not how bipolar disorder works. Depression in bipolar disorder is not about having a bad day; it’s a severe symptom that can occur regardless of external circumstances.

A more empathetic response would be: “I know things might look good from the outside, but I understand that doesn’t change how you feel. How can I support you?”

UPDATED: Originally posted November 27, 2016

CAREGIVERS, FAMILY, FRIENDS, RELATIONSHIPS, STIGMA

ABOUT THE AUTHOR

Tanya Hvilivitzky

Tanya Hvilivitzky has spent more than 30 years in the communications field — a career that has included stints as an investigative journalist, managing editor for a lifestyle and wellness magazine, corporate communications director, and researcher/writer. She has been with bpHope (and bp Magazine) since 2016, serving in roles such as features editor, interim editor, and, currently, senior editor. She has been devoted to mental health awareness since she was the editor of Schizophrenia Digest in her early days, and now with a particular focus on highlighting the complexities of bipolar disorder through compassionate, service-based journalism. As an award-winning writer/editor, Tanya received the Beyond Borders Media Award for her 2012 investigative exposé about human trafficking for Niagara Magazine. Her work on this critical topic also earned the Media Freedom Award “Honouring Canada’s Heroes” from the Joy Smith Foundation to Stop Human Trafficking.

Melinda

Reference:

https://www.bphope.com/bipolar-buzz/the-worst-things-you-can-say-to-someone-with-bipolar/?utm_source=iContact&utm_medium=email&utm_campaign=bphope&utm_content=BUZZ+-+Nov3+-+10Phrases

What I’ve Learned In 61 Years Part 7
Celebrate Life · Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health

What I’ve Learned In 61 Years Part 7

Looking for the Light18 Comments

Customer Service has become a relic term, not even common courtesy is extended today.

Medical doctor’s offices claim to be the top in the field with all these awards including ones for customer service. Why is it that I can’t get a critical question answered by my doctor through the portal?

I had to wait an hour on the phone until the receptionist could find a live person to talk with me, I didn’t have anything better to to do. Maybe it’s time we start charging for the hours we spend trying to get answers. It took me from 10/22/24 to 11/6/24 to get someone on the phone and schedule my surgery.

Today I had an appointment with my new pharmacist since I’m changing pharmacies. We scheduled last week to meet today at 2:00 pm, at 2:30 pm I called to say I had other things to do and when she was ready she could call to reschedule. I got a message back saying one of the pharmacists had a meeting that ran long. Why can’t you text me the minute you knew there was a conflict? Again where the hell is the communication. It’s like the medical community has decided it’s no longer their issue. I disagree!

Why did the powers that be allow text spam? Who’s making money here? Or is it that big business has so much power over the FTC that allowed this to happen?

Who is selling my email information? I get a 10-15 spam emails a day. It is impossible to track down because I will not click on any links. Be sure to read the Privacy Information for companies you sign up with to see what they do with your data.

All the issues I was having with Bots were because WordPress shares your information with its so-called partners. I had to search a bit but found a hidden sentence that if clicked allows WordPress to share information with their AI partners for training AI. Ok, I switch it off thinking that mess is over. Not so quick. I went three days without Bots and now they are back with a vengeance. I don’t have a complete problem with AI but I want to know how my content is used and how I get credit for the content. It also screws up the views, it can get so complicated that it’s not worth it. I will say that FaceBook/Meta is the AI bot that attacks my archives daily.

I realize not every town has these problems, that’s great for you. I hope it remains that way for a long time.

I’m observing that most businesses are pushing you to their portals so they don’t have to talk with you. How far down do we go from here? Will we have to make an appointment just to have a question answered?

I don’t care for this lack of human connection one bit, it will only spill over to the rest of our lives. Scary!

What bothers you today about the lack of communication?

Melinda

Health Update November 2024
Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health

Health Update November 2024

Looking for the Light24 Comments

The trip to the Mayo wasn’t quite what I expected but you have to remember I was only there for three days. I was scheduled for four days but was so frustrated I left early. The good is that a couple of things were ruled out. For one I don’t have cancer which was a major concern of mine, and I don’t have a bleeding disorder. They did discover I had weakness in my legs, hands, and arms but I did not stay around to meet with the Neurologist. I also found out I have several types of serious Anemia but my Immunologist doesn’t seem to care. Time for a new Immunologist. I even stopped my Antibody Infusion Treatments due to a lack of communication on his part. The Mayo for as good as they are can only handle so many areas of concern due to time constraints. They wanted me to come back for more testing but I refused. The trip cost was very high when you look at airport parking, airline tickets, a rental car, and a hotel, eating, and putting the dogs in the kennel. Not to mention my husband taking a week off work. Maybe I’ll go back at another time but for now, I’m seeking out doctors that can help me locally.

I sought out a Hand Orthopedic doctor for carpel tunnel and the pain I was experiencing. Through the process, I found out I have Osteoarthritis in my thumbs which is one reason for the severe pain. I now wear thumb braces, take low-dose pain medication for arthritis in my hands, and am having carpel tunnel surgery in both hands as well as having a wrist brace taken out that was put in when I broke my wrist in 2018. It’s moved and it causing pain. I hope to have at least the left-hand surgery done this month.

I’ve been battling one Fibromyalgia flare after another for months now. I’ll save the details for the Fibromyalgia post I’m writing.

I have also been battling low-grade depression probably caused by stress and worry. My depression is very sensitive to stress. I’m feeling better but still not my normal self.

One great action I’ve taken is to return to weekly chiropractor visits and monthly massages. This has helped me work the stress out of my body and work to align the degenerative areas. It’s a hurt-so-good stage.

Like everyone, there’s always something we are dealing with and we have to step up to the plate and deal with them. :)

Melinda

Resisting the Lure of Toxic Positivity While Chronically Ill
Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward

Resisting the Lure of Toxic Positivity While Chronically Ill

Looking for the Light6 Comments

by Hannah Shewan Stevens

Medically Reviewed by:

Francis Kuehnle, MSN, RN-BC

Chronic illness is hard to live with, but coping by responding with excessive positivity can suppress our real feelings.

Those who live with chronic illnesses know all too well how frequently people shower you with meaningless platitudes like “just be positive” and “mind over matter.”

Of course, how we feel mentally affects our physical health, but being chronically ill also sucks sometimes. It’s OK to acknowledge that reality. But often, when we do, we’re told we’re being overdramatic or to force ourselves to “think our way back to being healthy.”

It’s time to reject toxic positivity and find coping mechanisms that actually work for you instead of methodologies that punish you for having “negative feelings.”

What is toxic positivity?

“Toxic positivity is an expectation that no matter how serious a situation or diagnosis is, a person should maintain an ongoing optimistic and positive outlook and attitude regardless of how serious the circumstances are,” said Chicago-based clinical social worker Iris Waichler, MSW, LCSW.

This invasive method of communication shows up in countless ways, often slipping out of people’s mouths without them even noticing. Sometimes, it comes from the inside, led by an internal battle to just “get over it,” but it typically arises when people place their life view onto others.

“Toxic positivity often looks like someone giving you a motivational quote instead of actually listening, helping, or being there for you,” said Kitty Underhill, a body and self-acceptance coach from London, England. “For example, you could be struggling and communicating that to a friend, and they shut down the conversation with a statement like ‘good vibes only’ or dismissing it as being ‘low frequency.’

“Toxic positivity also looks like using buzzphrases like ‘what doesn’t kill you makes you stronger’ and telling you that you need to have a more positive attitude rather than hearing you out — it’s an emotional cop-out,” she added.

The impact of toxic positivity is wide-ranging and pervasive, sometimes hiding beneath the surface for years before we’re able to recognize that it’s prevented us from feeling the full spectrum of human emotion without feeling guilty for not being cheerful enough for those around us.

“Toxic positivity may cause people to believe their feelings are not worthwhile, create self-doubt and shame, and make them believe their feelings are invalid,” said Waichler. “The unintended consequences may be enhanced insecurity, which lessens self-confidence and self-worth.”

How can it show up in our lives with chronic illness?

The effects may largely be the same, but chronically ill people deal with another poisonous layer when facing toxic positivity: disbelief.

Too often, disabled and chronically ill people are encouraged to “think themselves well” because it’s “mind over matter,” but this neglects reality. A positive outlook can improve someone’s overall well-being. However, it’s not a magical cure for incurable illness.

“A healthy person may not have a real understanding of the physical, medical, and psychological ramifications that chronic illness has on an individual,” Waichler said. “A healthy person’s attempt to “cheer them up” or be unrealistically positive can create feelings of alienation, resentment, and anger for the person on the receiving end.”

Toxic positivity is dismissive because it discards their feelings, insisting that they be processed on the other person’s terms. Unsurprisingly, this is a common occurrence between people with and without chronic illnesses, as it’s easily assumed that we’re being overdramatic or exaggerating our symptoms.

Faced with an onslaught of forced cheerfulness and disbelief, submitting to toxic positivity sometimes feels like the only option, but chronically ill and disabled people deserve to be heard.

“It can be easy to fall for toxic positivity, especially when a lot of ableism depends on disabled folks not speaking up about what they are experiencing and overriding their own comfort and pain levels to make abled folks feel more comfortable,” said Underhill.

“We must remember that toxic positivity is another way of shutting down unpalatable emotions and that our emotions still deserve to be heard and expressed,” she added.

Understanding the difference between toxic positivity and genuine positivity 

“Genuine positivity makes space for the negative and doesn’t try to write it off or bat it away,” said Underhill. “Genuine positivity helps you to see things from different angles and perspectives, which can be helpful if we’re getting tunnel vision from feeling hopeless, angry, or upset from experiencing chronic pain issues.”

Where genuine positivity leaves spaces for pain while searching for light, comparatively, toxic positivity shuts down the conversation and obliterates the beautiful spectrum of our emotions.

Resisting the seductive pull of toxic positivity is exhausting, and sometimes, we fall under its spell before it’s possible to throw up a shield.

“If you’ve succumbed to toxic positivity, consider taking a step back to evaluate why you acquiesced,” said Carissa Hodgson, LCSW, OSW-C, director of programs and community outreach at Bright Spot Network and a clinical social worker. “Is it because you don’t have anyone who can authentically support you? Are you struggling with accepting your feelings about an experience? What is it that you need?”

Building your defenses

“To get rid of toxic positivity, it’s worth asking yourself the question, ‘Why do I feel like I cannot hold space for harder emotions?’” said Underhill.

“It’s also worth remembering that no emotion has a moral value. Emotions are not ‘good’ or ‘bad,’” she added. “Emotions are information that we can learn from and take into account.”

Allow yourself to feel everything you need to feel by granting yourself the gift of patience. There is no better defense against toxic positivity than the freedom to feel your emotions without judging them or suffocating them.

Confronting the toxic positivity around us

Try to practice patience when dealing with toxically positive people. It’s hard when you’re so regularly bombarded with it, but know that they are probably trying to empathize. It’s human instinct to jump straight to suggesting solutions. We all do it, even when it’s unwanted.

“Understand that the person is trying to be helpful,” said Waichler. “Help them to then understand how what they said makes you feel.

“Tell a well-meaning loved one with toxic positivity that you appreciate that they are trying to be supportive and positive about your medical condition,” she continued.

Developing healthier coping mechanisms

It’s crucial to develop additional coping mechanisms that manage the mental impact of chronic illness to resist the lure of toxic positivity long term.

“Educate yourselves about the medical condition and how it will progress so your expectations are realistic,” advised Waichler. “It will help you prepare for changes that will evolve in the future.”

Broaden your circle of friends to ensure that your support network is full of people who will understand your experiences with chronic illness. Your loved ones will support you, but unless they also have a chronic illness, they will struggle to understand. Fellow chronically ill people may be better suited to supporting you without relying on toxic positivity to do so.

However, be wary, too. Even the most well-developed support groups can fall prey to toxic positive influences.

“Toxic positivity is often a trojan horse found in online support groups and discussion boards — seemingly helpful and cheery but completely dismissive of the real struggles people are having,” said Hodgson.

As an additional shield, she suggests that people “Create an empowering mantra that entitles you to your feelings, such as ‘My feelings are real’ or ‘I have a right to feel how I want to feel,’ so when you see a dismissive statement, you can repeat your mantra to yourself and keep on reading.”

Medically reviewed on April 20, 2024

I can see how someone chronically ill can fall deep into the positivity route, it feels good at first but over time it overshadows the reality of being chronically ill. As mentioned in the post, many days suck and we can’t just cover them up as if they don’t exist. I’m all for positive energy but if someone just wants to change your thoughts and act like everything is ok, they are not doing you any favor.

Melinda

Reference:

https://www.bezzydepression.com/discover/dep-self-care/health-resisting-the-lure-of-toxic-positivity-while-chronically-ill/?slot_pos=bezzycrosspromo&utm_term=bezzycrosspromo&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=fibro&utm_content=2024-10-29&apid=36735751&rvid=7f053d6ecf820dccd09e4914833cbd49bdfe95bb517404ee9b41601767d1bace
Understanding and supporting invisible disabilities, including Lyme disease
Chronic Illness · Health and Wellbeing · Infectious Diease · Lyme Disease · Medical · Men & Womens Health · Mental Health · Moving Forward · Self-Care · Tick Borne Illnesses

Understanding and supporting invisible disabilities, including Lyme disease

Looking for the Light17 Comments
Lonnie Marcum

OCT 24, 2024

Invisible disabilities are physical, mental, or neurological conditions that are not immediately apparent to others. Despite being “invisible,” these conditions can significantly impact a person’s life and require special accommodations and ongoing support.

Unlike conditions that other people can see, such as those requiring the use of a wheelchair, invisible disabilities often go unnoticed, leading to misconceptions about a person’s needs.

Examples of common invisible disabilities

  • Dysautonomia, also known as autonomic dysfunction, refers to a condition in which the autonomic nervous system (ANS) does not function properly. The ANS controls many crucial bodily functions, such as heart rate, blood pressure, digestion, temperature regulation, and respiratory rate. When the ANS is impaired, these processes can become dysregulated, leading to a wide range of symptoms.
  • Post-exertional malaise (PEM) where even minor physical or mental exertion can result in severe symptom exacerbation, often lasting days or weeks.
  • Chronic fatigue syndrome (CFS): Fatigue lasting six months or more, and PEM
  • POTS (Postural Orthostatic Tachycardia Syndrome) is a condition characterized by a significant increase in heart rate when a person stands up from a lying down position. It is a form of dysautonomia. People with POTS experience an abnormal response when they move to an upright position, leading to symptoms that can be disabling.
  • Myalgic Encephalomyelitis (ME): Causes widespread neuro-immune related symptoms including: neuroinflammation, immune dysfunction, muscle pain, headaches, cognitive dysfunction (often described as “brain fog”), dysautonomia, PEM, CFS and POTS.

Patients with Lyme and tick-borne disease are often left with persistent symptoms following treatment. In MyLymeData, now with over 18,000 participants, the three most frequently reported worst symptoms include neurological-associated symptoms (84%), fatigue (62%), and musculoskeletal-associated symptoms (57%).

POTS is the most common manifestation of dysautonomia reported to occur in patients with persistent symptoms of Lyme disease.

Infection-associated chronic conditions

For years, ILADS conferences have been the only place I heard clinicians and researchers expressing an understanding and a desire to help patients with complex, infection-associated chronic conditions (IACC).

In 2021, I reviewed a paper entitled “Recent Progress in Lyme Disease and Remaining Challenges,” co-authored by 31 researchers from 19 separate institutions. That paper felt like a real tipping point to me.

Last week, I watched the final meeting of the CDC/HHS funded “Infection-Associated Chronic Conditions – Understanding and Engagement” (ICUE) project. During that meeting, LymeDisease.org’s Lorraine Johnson, represented and gave voice to the millions of patients living with chronic symptoms following infection with Lyme and/or other tick-borne diseases. (Read her summary of that meeting here)

With all the new collaborations coming out of the National Academies of Science, Engineering and Medicine (NASEM) workshop on “Lyme infection-associated chronic illness or “Lyme IACC,”  I have high hopes for continued progress—not just for patients with chronic Lyme and co-infections, but so many other marginalized illnesses like long-COVID, ME/CFS, and dysautonomia.

Last year, I wrote about the real symptoms suffered by patients with invisible illness.Recently I offered suggestions on how patients can track those symptoms and share them with their doctors  to aid in better diagnosis and treatment.

For everyone out there suffering from an invisible illness: I just want to say that I see you, I hear you, and I believe you.

LymeSci is written by Lonnie Marcum, a physical therapist and mother of a daughter with Lyme. She served two terms on a subcommittee of the federal Tick-Borne Disease Working Group. Follow her on Twitter: @LonnieRhea Email her at: lmarcum@lymedisease.org.

Melinda

Reference:

https://www.lymedisease.org/invisible-disabilities-lyme-disease/

Announcing NO MORE Week 2025
Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward · Survivor · Trauma

Announcing NO MORE Week 2025

Looking for the Light1 Comment

I’m excited to share that NO MORE Week 2025 has been set for March 2nd through March 8th, the annual time when thousands of survivors, allies, employers, organizations, colleges, and communities around the world unite for the cause of ending domestic and sexual violence. 

This year, our theme is NO MORE Silence. Every time we break the silence, we destigmatize conversations around domestic and sexual violence and help survivors find support. And, we help to prevent abuse by educating more people about healthy relationships and by creating a culture where abuse is not tolerated.

Now is the time to plan how you can be a part of NO MORE Week 2025. Here are some simple ways to get started:

Join the NO MORE Week Challenge:

Sign up for the NO MORE Week Challenge, a virtual Walk/Run that allows you to choose your distance—5K, 10K, or a half marathon—and complete it at your own pace in March. This year, every dollar raised will go to support victims/survivors of abuse. Rally your friends and family to sponsor your efforts, or form a team to amplify your impact.

Join the Challenge

Attend the NO MORE Week Tech Summit

Save Tuesday, March 4th to attend the 2025 NO MORE Week Tech Summit, “Empowering or Endangering? Tech’s Impact on Domestic and Sexual Violence.”During this free, online conference, global experts will discuss cutting-edge research, policy shifts and product development, providing a wealth of insights and opportunities for action. Early registration is now open! 

Sign Up Now

Use Your Own Platform to Raise Awareness

Create an event – online or in person – to raise awareness on your campus, at work, or in your community. Whether it’s hosting a coffee or happy hour; holding a workplace conversation; or engaging friends on social media, every action will get more people to join the movement. Let us know what you’re planning so we can help amplify your efforts! 

Check out our NO MORE Week 2025 Guide you can use to get more information and ideas. We’re looking forward to uniting once again on March 2nd because we know that we are louder, stronger and more impactful together! Thank you for your continued support.

Get Involved

I’ve signed up for the No More Week Tech Summit, no doubt registration will go fast. I’ll follow up with a post specific to the Tech Summit.

Melinda

Reference:

https://www.nomore.org/email/f68b3e4b-5f24-4b32-9063-7776875bf364/?ref=no-more-newsletter

AIDS Awareness Month & History
Chronic Illness · Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health · Mental Health · Moving Forward

AIDS Awareness Month & History

Looking for the Light4 Comments

How My Lyme Doctor diagnosed the first HIV/Aids patient in North Carolina

A second-generation physician from Illinois, curious about medical mysteries (“It’s just like detective work!”), young Dr. Joe Jemsek became an infectious diseases fellow in 1977. In 1979, Jemsek and his young family resettled in Charlotte, North Carolina, where he began a promising infectious disease practice at the renowned Nalle Clinic. Intrigued by reports of a “gay cancer,” Joe’s “detective” instincts led him to diagnose North Carolina’s first case of what would soon be known as HIV/AIDS. As the years went by, he grew absorbed by the AIDS epidemic, bearing witness to some of its most dire casualties — losing patient after patient to opportunistic infections — as well as to the first signs of hope with the advent of life-saving drugs in 1995.

I’m so proud of Dr. Jemsek, he took his knowledge as an Infectious Disease doctor and made history. Due to his commitment more research has been done and the lives on people with HIV/AIDS have improved.

What is HIV?

The human immunodeficiency virus, or HIV, is a virus that attacks the immune system, specifically CD4 cells (or T cells).

The virus is transmitted through bodily fluids such as blood, semen, vaginal fluids, anal fluids, and breast milk. Historically, HIV has most often been spread through unprotected sex, the sharing of needles for drug use, and through birth.

Over time, HIV can destroy so many CD4 cells that the body can’t fight infections and diseases, eventually leading to the most severe form of an HIV infection: acquired immunodeficiency syndrome, or AIDS. A person with AIDS is very vulnerable to cancer and to life-threatening infections, such as pneumonia.

Though there is no cure for HIV or AIDS, a person with HIV who receives treatment early can live nearly as long as someone without the virus. And a study in 2019 in the medical journal, Lancet, showed that an anti-viral treatment effectively halted the spread of HIV.

In September of 1982, the CDC used the term AIDS to describe the disease for the first time. By the end of the year, AIDS cases were also reported in a number of European countries.

Where Did AIDS Come From?

Scientists have traced the origin of HIV back to chimpanzees and simian immunodeficiency virus (SIV), an HIV-like virus that attacks the immune system of monkeys and apes.

In 1999, researchers identified a strain of chimpanzee SIV called SIVcpz, which was nearly identical to HIV. Chimps, the scientist later discovered, hunt and eat two smaller species of monkeys—red-capped mangabeys and greater spot-nosed monkeys—that carry and infect the chimps with two strains of SIV. These two strains likely combined to form SIVcpz, which can spread between chimpanzees and humans.

SIVcpz likely jumped to humans when hunters in Africa ate infected chimps, or the chimps’ infected blood got into the cuts or wounds of hunters. Researchers believe the first transmission of SIV to HIV in humans that then led to the global pandemic occurred in 1920 in Kinshasa, the capital and largest city in the Democratic Republic of Congo.

The virus spread may have spread from Kinshasa along infrastructure routes (roads, railways, and rivers) via migrants and the sex trade.

In the 1960s, HIV spread from Africa to Haiti and the Caribbean when Haitian professionals in the colonial Democratic Republic of Congo returned home. The virus then moved from the Caribbean to New York City around 1970 and then to San Francisco later in the decade.

International travel from the United States helped the virus spread across the rest of the globe.

Advances in Treatment options

DOVATO

Cabenuva

Lenacapavir

islatravir. close to FDA approval

There are older medications that may work for you, talk to your doctor about and come up with a plan that works for you.

Melinda

References:

https://www.history.com/topics/1980s/history-of-aids

November Awareness Months And Days
Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health

November Awareness Months And Days

Looking for the Light5 Comments

October was full of informative awareness months, and November will also be. The list is extensive, if you want to read about all the awareness months and days, click here.

Awareness Months

Native American Heritage Month

Movember

National Homeless Youth Awareness Month

COPD Awareness Month

Diabetes Awareness Month

Epilepsy Awareness Month

Lung Cancer Awareness Month

Pancreatic Cancer Awareness Month

Awareness Days

International Stress Awareness Day – November 2

World Adoption Day – November 9

Veterans Day – November 11th

Humane Society Anniversary Day – November 22

National Recycling Day – November 15

International Day for Tolerance – November 16

International Transgender Day of Remembrance – November 20

International Survivors of Suicide Loss Day – 1st Saturday before Thanksgiving

Melinda

What Are the Signs and Symptoms of Depression in Men?
Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward · Self-Care

What Are the Signs and Symptoms of Depression in Men?

Looking for the Light5 Comments

Men, women, and people of all gender identities may experience depression at some point in their lives. Depression is a serious condition that affects how a person thinks, feels, and acts.

According to the Centers for Disease Control and Prevention (CDC), women seem to experience depression at a higher rate than men. However, it’s thought that men may be underrepresented in these numbers. 

This may be due to mix of social and biological factors that make it more challenging to notice and diagnose depression in men. They may also feel culturally pressured to act “manly” by hiding their emotions.

Because of this, it’s more common for men to have depression with symptoms that are different and sometimes harder to identify. 

If you think that you or someone you love may be struggling with depression, read on to learn about the signs and symptoms that men may experience and what you can do next.

Physical symptoms of depression in men

Men with depression may first notice its physical effects. While depression is thought of as a mental health disorder, it can also manifest in the body. 

Many men are more likely to visit their doctors for physical issues than for emotional issues.

Some common physical signs of depression in men include:

Mental symptoms of depression in men

Mental symptoms of depression may present differently in men than they do in people of other genders, which can make depression harder to detect. 

These symptoms may interfere with the way a person thinks and processes information, affecting behavior and emotions.

Some of the most common mental symptoms of depression in men include: 

  • inability to concentrate
  • memory problems
  • obsessive-compulsive thought patterns
  • racing thoughts
  • sleep issues, usually difficulty falling asleep or staying asleep
  • suicidal thoughts

Emotional symptoms of depression in men

When most people hear the word “depression,” they think of a person who seems very sad. However, sadness is just one of many possible emotions depression can cause. 

In addition to sadness, men may experience the following emotional symptoms of depression: 

  • agitation
  • aggression
  • anger
  • emotional withdrawal from friends, family, and colleagues
  • hopelessness
  • lack of interest in family, community, hobbies, and work
  • lack of libido
  • restlessness

Behavioral signs of depression in men

The mental, physical, and emotional symptoms of depression in men can also affect behavior. Because some men resist discussing their emotions, it’s often their behavioral symptoms of depression that are most apparent to others. 

In men, the behavioral symptoms of depression most commonly include:

  • difficulty meeting work, family, and other personal responsibilities
  • drug misuse
  • drinking alcohol in excess
  • engaging in risky activities, such as driving recklessly or having unprotected sex
  • social isolation
  • suicide attempts

Why can depression go undiagnosed in men?

While discussions around mental health seem to be expanding in reach and compassion, there’s still some cultural and social stigma around depression— particularly among men. 

Generally, men are socialized by society to hold in their emotions, though we know doing so isn’t healthy. In their efforts to maintain these social norms, many men may be compromising their emotional, physical, and mental well-being. 

In addition, many men are never taught to recognize the less typical signs of depression that they’re more likely than others to experience.

Some men never seek help for their depression because they never recognize the signs. On the other hand, some men who do recognize the signs may struggle to discuss their experience because they fear the judgment of others. 

As a result, when many men experience the signs of depression, they begin to work long hours or otherwise fill their time to stay busy, instead of addressing the depression itself. 

Diagnosing depression and seeking treatment can help save lives. Suicide rates are high among men, especially those who have served or currently serve in the military. Additionally, men are three to four times more likely than women to complete suicide.

In continuing to open up the conversation, we can help men with depression recognize the signs. By seeking treatment, men with depression can live their fullest possible lives.

What are the current treatment options?

Depression is most often treated with talk therapy, medications, or both of these things together. A healthcare professional can help create a personalized treatment plan that works best for you. 

Many men begin treatment for moderate cases of depression by scheduling an appointment with a talk therapist (psychotherapist). From there, the therapist might suggest specific types of care, such as: 

From there, medication may be added, if needed.

However, for more severe cases, medication might be prescribed right away to help alleviate some of the physical, mental, emotional, and behavioral symptoms of depression. This may be the case for someone with suicidal thoughts or who has attempted suicide.

Antidepressants such as paroxetine (Paxil) or sertraline (Zoloft) are commonly used to treat depression. However, a mental healthcare professional may also suggest other medications. 

Be aware that these medications often take several weeks to months or begin making a noticeable difference in the way you feel. Be patient and stick closely to the treatment plan. 

When to seek help

If you’re experiencing one or more of the above symptoms of depression to the point that it interferes with your daily life, consider scheduling an appointment to meet with a mental health counselor. 

Most insurance plans provide coverage for such counseling, and receiving care is discreet and confidential.

If you’re experiencing suicidal thoughts, plan to attempt, or have attempted suicide, call the National Suicide Prevention Lifeline at 800-273-8255, or dial 911.

The takeaway

While recent conversations around mental health have become more candid and inclusive, many men still find it difficult to talk about their emotions in a society that upholds traditional views about men. 

It can also be challenging to identify the symptoms of depression in men, which are influenced by those same social factors as well as male biology.

By sharing knowledge about the symptoms of depression in men, we can help clear a pathway toward better, more inclusive mental healthcare.

With talk therapy, medication, or a combination of these two things, depression becomes a much more manageable part of the human experience.

Melinda

Reference:

https://www.healthline.com/health/depression/symptoms-of-depression-in-men?utm_term=roundup&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=fibro&utm_content=2024-10-22&apid=36735751&rvid=7f053d6ecf820dccd09e4914833cbd49bdfe95bb517404ee9b41601767d1bace#takeaway

 

Transitions
Celebrate Life · Chronic Illness · Family · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward

Transitions

Looking for the Light25 Comments

When life flows in one direction for so long,

it’s a shock to the system when the current flows the other direction.

The transition can be difficult and painful,

but the only response is to change with the flow.

Life throws situations our way,

without control, there is only one way to play.

Accept and chart a new course.

Melinda

 

A Public Health Crisis: Preventing Loneliness in Chronic Illness
Celebrate Life · Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Self-Care

A Public Health Crisis: Preventing Loneliness in Chronic Illness

Looking for the Light17 Comments

Loneliness is more prevalent than ever — especially for people with chronic or invisible illnesses. Even when it feels difficult or impossible, here’s how you can stay socially connected.

If you live with a chronic illness, you likely know that loneliness is often an unexpected side effect. A chronic illness is a long lasting or permanent condition that requires ongoing medical treatment or limits activities of daily living. Examples include Crohn’s disease, endometriosis, fibromyalgia, and many other conditions.

And when your days are filled with attending doctor’s appointments, feeling too crummy to socialize, and constantly explaining your condition when you do make it out, it’s really no surprise that loneliness and chronic illness go hand in hand.

But now, this problem is becoming more prevalent than ever. The United States Surgeon General released an advisory in May 2023 calling attention to “the public health crisis of loneliness, isolation, and lack of connection in our country.”

If you’re living with a chronic illness, it can be helpful to create your own strategy for staying connected with others and preventing loneliness as much as possible. Take a look at why this is so important, as well as some accessible ideas to try.

The relationship between loneliness and chronic illness

People who live with chronic illness often feel the impact of isolation more than those without a chronic condition. Illness-related factors that can contribute to loneliness include:

  • being unable to socialize due to symptoms, fatigue, or pain
  • losing friends as a result of your illness
  • missing out on school, work, and hobbies
  • feeling as if nobody understands your condition and your lifestyle
  • managing a schedule crowded with medical appointments or hospitalizations 

If your illness is mostly or entirely invisible, this can lead to even more feelings of isolation as you try to explain what’s going on in your body. And since the onset of the COVID-19 pandemic, many people with chronic illnesses have found that their loneliness has gotten even worse as they have continued to be conscientious about keeping their already-fragile bodies safe.

Even when you’re feeling relatively well, it can be hard to socialize. Chronic illness is often unpredictable, and our society isn’t set up to accommodate it. Fear of stigma or ableism might keep you at home. Or you may find that every ounce of your limited energy goes into school or work, with nothing left over for a social life. 

Consequences of loneliness

Long-term loneliness can be a serious issue. The report from the Surgeon General stated that for older adults especially, the physical health consequences of a lack of connection include:

  • 29% increased risk of heart disease
  • 32% increased risk of stroke
  • 50% increased risk of developing dementia 

A lack of social connection also increases the risk of premature death by more than 60%. And loneliness and isolation increase the risk of mental health conditions such as depression, creating a vicious cycle.

Tips on preventing loneliness with a chronic illness

When symptoms and appointments dictate your life, it can feel nearly impossible to increase your social connection. But doing so is crucial for your mental and emotional health. Here are a few accessible ideas to try.

Start small

If the thought of ramping up your social life feels overwhelming, it’s OK to start small and take off the pressure, thinking in terms of acquaintances instead of best friends. Even “micro-interactions,” such as waving at your mailman or thanking a cashier, can give you a boost of connection. 

Send someone a message on social media instead of passively scrolling, or go to a coffee shop on your next low-symptom day so you can be around people even if you aren’t directly speaking with them. These simple actions can have a bigger impact than you might think.

Find a community

Connecting with people who also live with chronic illness can stave off loneliness by reminding you that you aren’t the only one. Look for a support group run by a hospital or nonprofit — your doctor may have ideas. Or search online for a community similar to Bezzy. You’ll find countless social media groups, forums, and Zoom events created for people who live with certain conditions or chronic illness in general (including those who don’t have a diagnosis).

As you spend time with people who have similar experiences, it will become easier to articulate and explain your condition to people who aren’t sick.

Adopt a pet

Animals can help reduce stress and loneliness, and pet ownership is associated with lower levels of social isolation in adults. A pet is great company and can help you feel loved and needed.

If you can, consider adopting a pet. If you can’t put a lot of effort into caring for a pet due to your physical symptoms, look into a low-maintenance pet such as an adult cat. Or see if you can do any of the following from time to time:

  • care for or visit a friend’s or neighbor’s pet
  • visit a cat cafe
  • volunteer for low-energy tasks at a local humane society
  • visit a dog show, dock diving competition, or other pet-related event

Find a therapist

A therapist, counselor, or other mental health professional can help you navigate the mental and emotional side of chronic illness, including thoughts like “My illness makes me unworthy of friendship” and “Connection isn’t worth it.”

Look for a therapist who specifically focuses on clients with chronic illness. Ask your doctor for suggestions or search online. If you cannot pay for therapy, look into sliding-scale options or services offered by a nonprofit or community center.

Stay in touch

Remember, your social connections don’t always have to be big. If you can make it out for a night on the town, great! But if not, make sure you’re still doing something to stay in touch with the people you love.

Use email, social media platforms, phone calls, texting, or whatever communication method works for you. Planning video calls ahead of time might work best for one chronically ill person’s symptoms and schedule, while answering text messages on their own time could be better for somebody else.

Think about the options that are most accessible to you, and tell your family and friends that you want to intentionally catch up with them on a regular basis. Connecting with others as best you can will help you feel less isolated, even during flare-ups.

The bottom line

People are important. We need each other. We can’t live without each other. And even when it feels difficult or impossible, fighting for social connection is worth it.

Use these ideas to work around your chronic illness as you prioritize connection over isolation. Your body and mind will thank you.

Melinda

Reference:

https://www.bezzydepression.com/discover/dep-living-well/health-public-health-crisis-loneliness-chronic-illness/?slot_pos=bezzycrosspromo&utm_term=bezzycrosspromo&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=fibro&utm_content=2024-10-22&apid=36735751&rvid=7f053d6ecf820dccd09e4914833cbd49bdfe95bb517404ee9b41601767d1bace
Do You Know How Many Rape Kits Are Backlogged In Your City And State?
Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward · Survivor · Trauma

Do You Know How Many Rape Kits Are Backlogged In Your City And State?

Looking for the Light13 Comments

Rape victims receiving closure is important to me and I hope to you too. Below is the background of Joyful Heart Foundation and how they started the initiative to End the Backlog. At the bottom, you will see why I’m flaming mad due to an unacceptable situation not far from where I live. Not to mention the atrociously high numbers of backlogged rape kits in Texas.

In 2015, the Joyful Heart Foundation played a fundamental role in the creation of the Sexual Assault Kit Initiative (SAKI), an important federal initiative for rape kit reform with then Vice President Biden. This program provided grants to communities to inventory untested rape kits, analyze those kits, investigate the resulting cases, prosecute offenders, and support survivors. This federal program has allowed jurisdictions to inventory more than 183,000 untested kits and send 90,000 kits for testing, resulting in more than 15,700 CODIS hits, almost 8,200 to serial violent offenders and 2,200 to serial sex offenders.

In 2016, the Joyful Heart Foundation launched its six pillar campaign to improve the way rape kits are handled nationwide and end the backlog of untested rape kits. Since then, we have helped pass 130 bills in 46 states affecting more than 321 million people and more than 136,000 survivors of reported rapes every year. Our campaign is one of the most successful state-level campaigns in history.

What is Joyful Heart Foundation

The Joyful Heart Foundation was founded in 2004 by Law & Order: Special Victims Unit (SVU) actress, director, and advocate, Mariska Hargitay. While playing Detective Olivia Benson on Law & Order SVU, Ms. Hargitay learned a tremendous amount about the crime of sexual assault. Letters from fans of the show poured in across the years; many were testimonies from survivors sharing their stories of abuse, isolation, fear, hope, and courage. As Hargitay became more informed about the topic, she was shocked and saddened by the prevalence of sexually-based crimes and how trauma impacts survivors, many for their entire lives. She felt she had to answer these survivor letters in a meaningful way. Her response was to create the Joyful Heart Foundation with the mission to transform society’s response to sexual assault, domestic violence, and child abuse, support survivors, and end this violence forever. Ms. Hargitay wanted to help survivors heal and reclaim joy in their lives.

What is the Rape Kit Backlog?

“To me, the backlog is one of the clearest and most shocking demonstrations of how we regard these crimes in our society. Testing rape kits sends a fundamental and crucial message to victims of sexual violence: You matter. What happened to you matters. Your case matters. For that reason, the Joyful Heart Foundation, which I founded in 2004, has made ending the rape kit backlog our #1 advocacy priority.”

Mariska Hargitay, Founder of The Joyful Heart Foundation

While the number of untested rape kits has decreased over the last decade – the backlog was once deemed to be 400,000 – today, we estimate that there are still 100,000 untested rape kits yet to be discovered.

You can clearly see the states who have tackled the backlog and those who have not. I’m ashamed of Texas, my home state, and these numbers send a clear message that women are not valued in Texas. A message coming from Governor Greg Abbott.

Let me give you an example and you will see what set me off last night.

Fort Worth is a smaller sister city to Dallas but this week, there was improper behavior with the law enforcement. I question if the entire city is flying blind. Last light at a City Council meeting the Chief of Police admitted that the deadline for clearing rape kits had once again not been met. He took responsibility and committed to correct the situation. I won’t hold my breath on that commitment. What shocked me even more was how the City Council acted like this was the first time they had heard about it. Who is overseeing the police????

The information only came out because the local news station invested.  Here’s one of the findings.

On Wednesday, an NBC 5 Investigates series, “Justice Shelved”, revealed that more than 760 times in five years, Fort Worth police were late to submit rape kits to a lab in the state required 30 days.

New state records provided by the Department of Public Safety show Fort Worth police currently have 901 untested kits that are already past the 90-day mark, leaving victims who reported sexual assaults waiting for answers.

This is unacceptable and I think many heads need to roll and many more fired.

What’s happening in your town and State?

Melinda

References:

Intro

ADHD Awareness Month
Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Illness

ADHD Awareness Month

Looking for the Light4 Comments

My father had ADHD and being a teen in his days must have been horrible, the medication of choice was tranquilizers. He wasn’t diagnosed until he was a teen but the minute he moved out he stopped the medication and I can see why. The issue is he didn’t go back to the doctor as medication evolved and it affected his relationships.

I also believe that doctors are too fast to diagnose ADD & ADHD. One important factor is that Medical doctors don’t have the training to diagnose and are often the ones who diagnose first. To have a proper diagnosis, you need a Psychiatrist, and do the testing for an official diagnosis. My last Psychiatrist listed me as ADHD, with no testing, and no conversation, it just showed up on my chart. I would not be ashamed if that was a proper diagnosis but it wasn’t. My proir Psychiatrist of 32 years never once mentioned it. It’s one of the reasons I no longer see my last Psychiatrist.

—

Every October is Attention Deficit Hyperactivity Disorder (ADHD) Awareness Month, an occasion to raise awareness and support for those with ADHD.

In the United States, about 8.4% of children and 2.5% of adults have ADHD, making it one of the most common mental health conditions. Symptoms of the condition include ongoing patterns of:

Inattention, which means a person may find it challenging to focus or follow directions, but usually, it may not occur due to rebellion or challenges with understanding something.

Hyperactivity, which is when a person may feel the need to move constantly, even when it may be inappropriate for the situation.

Impulsivity, which means the person may have difficulties managing impulsive behavior and considering the long-term consequences of those actions.

Many people may have occasional difficulties paying attention, sitting still, or managing impulsive behavior. But for someone with ADHD, these difficulties tend to occur more often, which may affect how they perform certain daily activities.

During ADHD Awareness Month, communities shed light on this condition and rally to support those who have received diagnoses.

This information from the National Institute of Health has great resources and there may be more that I didn’t read on another page.

Where can I learn more about ADHD?

Free brochures and shareable resources

  • Attention-Deficit/Hyperactivity Disorder: What You Need to Know: This brochure provides information about ADHD in children, teens, and adults, including symptoms, diagnosis, causes, treatments, and resources to find help for you or your child (also available en español).
  • ADHD in Adults: 4 Things to Know: This fact sheet provides information about ADHD in adults, including symptoms, diagnosis, causes, treatments, and resources to find help for yourself or someone else.
  • Shareable Resources on ADHD: These digital resources, including graphics and messages, can be used to spread the word about ADHD and help promote awareness and education in your community.

Multimedia

Federal resources

Research and statistics

  • Journal Articles : References and abstracts from the National Library of Medicine’s PubMed
  • Statistics—ADHD: Statistics on the prevalence and treatment of ADHD among children, teens, and adults

Last Reviewed: September 2024

There is so much information available so don’t put off learning about ADHD, it could help direct your child or yourself to the proper help.

Melinda

Reference:

https://www.healthline.com/health/adhd-awareness-month#history

https://www.nimh.nih.gov/health/topics/attention-deficit-hyperactivity-disorder-adhd#:~:text=Attention-deficit%2Fhyperactivity%20disorder%20%28ADHD%29%20is%20a%20developmental%20disorder%20marked,and%20impulsivity%20that%20interfere%20with%20functioning%20or%20development.

 

Breast Cancer Awareness Month
Celebrate Life · Chronic Illness · Family · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward · Self-Care · Survivor

Breast Cancer Awareness Month

Looking for the Light6 Comments

Breast Cancer Awareness Month is a month that has received a great deal of attention over the years due to the tremendous donations to support new treatment options. That does not mean we should look the other way and think it has enough attention. The success rate of survival has increased but there is still so much to know about Breast Cancer.

The types of Brest Cancer

Ductal Carcinoma In Situ (DCIS)

Invasive Ductal Carcinoma (IDC)

Lobular Carcinoma In Situ (LCIS)

Invasive Lobular Cancer (ILC)

Triple Negative Breast Cancer (TNBC)

Inflammatory Breast Cancer (IBC)

Metastatic Breast Cancer (MBC)

Breast Cancer During Pregnancy

Other Types

Breast Cancer Myths

Myth: Finding a lump in your breast means you have breast cancer

Myth: Men do not get breast cancer; it affects women only

Myth: A mammogram can cause breast cancer or spread it

Myth: If you have a family history of breast cancer, you are likely to develop breast cancer, too

Myth: Breast cancer is contagious

Myth: If the gene mutation BRCA1 or BRCA2 is detected in your DNA, you will definitely develop breast cancer

Myth: Antiperspirants and deodorants cause breast cancer

Myth: A breast injury can cause breast cancer

Myth: Breast cancer is more common in women with bigger breasts

Myth: Breast cancer only affects middle-aged or older women

Myth: Breast pain is a definite sign of breast cancer

Myth: Consuming sugar causes breast cancer

Myth: Carrying a phone in your bra can cause breast cancer

Myth: All breast cancers are the same

Myth: Bras with underwire can cause breast cancer

Breast Cancer Resources

Free Educational Guides

NBCF is dedicated to delivering comprehensive, educational information on breast health and healthy living. From understanding the importance of early detection, to knowing how to prepare for a mammogram, NBCF’s online resources and guides aim to empower women and men with useful information. View guides. Click here to learn more about breast self-examination steps.

National Mammography Program

NBCF provides grants to facilities across the United States that provide screening and diagnostic mammograms, breast ultrasounds, clinical breast exam, and patient navigation to underserved individuals who qualify. Find a facility.

Patient Navigator Program

The Patient Navigator Program is a proactive approach to helping patients overcome the barriers of cost, fear, and misinformation surrounding a disease and its prevention. Find a facility.

Other Resources

In addition to the breast care services that NBCF provides to women in need, the following resources offer financial assistance for breast cancer patients.

National Breast and Cervical Cancer Early Detection Program (NBCCEDP)

The Centers for Disease Control and Prevention (CDC) provides access to breast cancer screening services to underserved women in all 50 states, the District of Columbia, 5 U.S. territories, and 12 tribal organizations.

National Cancer Institute

Information about free or low-cost mammogram screening programs is available through NCI’s Cancer Information Service at 1-800-422-6237.

The American Cancer Society

The American Cancer Society (ACS) provides resource lists for free or low-cost mammograms and financial assitance based on your location. When you go to their website, Cancer.org, look for the “About Us” tab in the top right corner. When you click on that, select your state in the “Where We Help” menu to be directed to a list of local resources.

Breast and Cervical Cancer Treatment Program (BCCTP)

This state program is funded through Medicaid to provide underserved women free healthcare throughout treatment. The program is available in all 50 states. For the application process, contact your local hospital and ask to speak to a nurse or patient navigator regarding the program.

The Patient Access Network Foundation

The PAN Foundation provides assistance to remove financial barriers for medications, treatment, and travel expenses for patients.

Cancer Financial Assistance Coalition

The CFAC is a coalition of organizations that help patients reduce financial barriers during cancer treatment. When you visit their website, select the type of assistance needed and enter your zip code to find resources near your area.

Mammography Facility Database

The Mammography Facility Database is updated periodically based on information received from the three FDA-approved accreditation bodies: the American College of Radiology (ACR), and the states of Arkansas and Texas to provide a list of facilities where mammography services are available based on your location.

Breast Cancer needs to be taken seriously by all and it starts with self-exams and reaching out at the first sign of trouble. You also need to keep your doctor aware of your family history because it can play a big role in whether to not you have the DNA makers for Breast Cancer. Always air on the cautious side.

Melinda

References:

https://www.nationalbreastcancer.org/types-of-breast-cancer/

https://www.nationalbreastcancer.org/about-breast-cancer/early-detection/breast-cancer-resources/

Repost

Today The Testing Starts At The Mayo
Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health

Today The Testing Starts At The Mayo

Looking for the Light27 Comments

Yesterday we spent the day driving around in the countryside looking at farms and fields of solar panels. we went to his tiny lake, but the description did not match the actual place. It was a tiny man-made lake with a shoreline that kids swim in during the warmer months. We went to The Peace Center and watched a great program on Native American Indians, tribe members from all over the country participated. There were many different ceremonial dances by women and men, live tribal music, and singing. It was beautiful. Unfortunately, I left my phone behind and so far the photos my husband took are well….not so good. 

We also checked out what building we needed to be at in the morning and where to park. We’re set. Tomorrow isn’t a long day. I will meet with an internal medicine doctor in the morning and pick up an oximeter machine on Tuesday night.

We have the late afternoon free if we don’t decide to take a nap. The weather is cold here and naps feel really good.

Wednesday starts early at 6:40 AM with blood work and closer to lunch a meeting with a Hematologist. I expect at least one diagnosis to come out of this meeting since most of the blood work being done is focused on the blood itself if that makes sense. One of the problems I currently have is that my hemoglobin is low which means it’s not carrying enough blood through my body.

Unless something is added to my program, I’m off on Thursday and back on Friday afternoon to meet with the Internal Medicine Doctor, I expect a diagnosis to come from this meeting.

Take good care of yourself and I’ll keep you posted if anything new comes up.

Melinda

 

Good Morning From Rochester, Minnesota
Celebrate Life · Communicating · Fun · Health and Wellbeing · Medical · Men & Womens Health · Mental Health

Good Morning From Rochester, Minnesota

Looking for the Light15 Comments

We landed last night with just enough light to find our car and head to Trader Joe’s for some goodies. We grabbed some dinner there so all we had to do was bring half a ton of luggage into the room and eat. My husband was happy because a college football game was on. After watching for a few minutes, I laid down to rest after an exhausting day at airports, walking and pulling luggage.

It’s very chilly here compared to home so I’m glad I brought my extra warm clothes. We’ve slept in this morning and plan to head out to see a few sites. I don’t know everywhere we’re going but I have the Vietnam Veterans Memorial at the top of my list. I like to pay my respect when I travel, that’s the very least I can do.

Tomorrow is Columbus Day and a holiday for many, I will write a post about it this afternoon. We have free days until Tuesday and then it’s off to The Mayo for meetings with doctors, getting blood work, testing, and leaving with a diagnosis.

Have a great day.

Melinda

National Depression Education and Awareness Month
Celebrate Life · Communicating · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward · Self-Care

National Depression Education and Awareness Month

Looking for the Light5 Comments

This awareness month is critical for all ages, even the youngest of children can feel depression and even though you may think they should blow it off, it’s not that easy and you can alienate them from talking to you again. Today life is so hard on kids, from an early age they are judged for the way they look, and who their friends are, for any reason because there are so many who don’t know who to communicate with and are haters. Kids also mimic their parents, if your child is having problems, look at your own behavior.

Young girls are fed to believe that these so-called influencers are real perfect-looking people who are pumping the greatest products they have to have. It never crosses their mind that the person is not an influencer, they are made up to look like the girls want to be and they are selling a product they make money on. They don’t get it or don’t want to. They are bullied for being a certain weight or not looking like someone else’s unrealistic standards.

Mix in real life as they get older and a deeper depression may present itself, it could be short-term term or it could be from unresolved issues, one you may not even know about. The key is to get your children the help they need at every step. As they age, professional help may be the answer. Don’t let stigma keep your child from getting the help they need.

As for adults, life can get messy, people can hurt you deeply, someone you trusted can betray you and family can hurt the worst. Some people may be more predisposed to depression whereas others may be situational driven. Adults have their own stigma and don’t seek out help, some men don’t think they need help and some just don’t know where to turn because the answer is not their parents. This is where a therapist comes in, therapy can be short-term just to get over a hump or more long-term because you have many buried issues that need to be addressed.

October is Depression Education and Awareness Month | Newsroom ...

—

October is recognized as Depression Awareness Month each year. The purpose is to increase understanding, decrease stereotypes, and help educate on how depression and other mental health issues impact people.

Awareness months give people affected by a specific condition a chance to share their stories. The goal is to help increase the overall understanding of depression or other conditions and help overcome stereotypes.

Depression is a common mental health concern in America and throughout the world. Far more than just “feeling sad,” depression negatively impacts how a person feels, thinks, and acts. It can cause disruption to school, work, and personal interests.

Misconceptions and misunderstandings of depression contribute to continuing stigmas about people living with the condition, the reasons it occurs, and their willingness to seek care.

In a 2018 study, researchers conducted a survey to assess the public’s knowledge of depression and the severity of the stigma surrounding it. Key findings included:

  • 30% reported believing a “weak personality” causes depression
  • 58.9% reported believing that pharmaceutical interventions or medications are not an effective treatment
  • over 70% reported understanding the importance of rest and that a person may appear happier than they actually are when living with depression

Depression can wear you out at the exact time you need all of your strength to fight. Trying to cope is extremely tiring — and it’s often difficult to know when others are suffering. That’s why, during October, we observe National Depression Education & Awareness Month. This important holiday helps teach us about the signs, symptoms, and treatment options for depression. It also lets all of us know that seeking help — either from a counselor, a trusted friend, or your community — is a sign of hope and strength.

Signs of Depression to look for

  1. Feeling sad, hopeless, or empty.
  2. Losing interest in activities that you used to enjoy.
  3. Changes in appetite, weight loss, or weight gain.
  4. Difficulty sleeping or sleeping too much.
  5. Feeling tired and lacking energy.
  6. Difficulty concentrating, making decisions, or remembering things.
  7. Feeling irritable or restless.
  8. Thoughts of death or suicide.
  9. Withdrawing from social activities and isolating themselves from others.
  10. Difficulty performing daily activities and taking care of themselves.
  11. Feeling guilty or worthless.
  12. Changes in behavior, such as increased substance use or reckless behavior.
  13. Unexplained physical symptoms, such as headaches or stomachaches.

This is not an exhaustive list but it’s a good start to start looking for when you or your child it not themselves. It’s sometimes hard to see depression in yourself and you need someone you trust to give you feedback and it can be hard to hear. Work to have an open mind.

Melinda

References:

https://www.medicalnewstoday.com/articles/depression-awareness-month

Pregnancy & Infant Loss Awareness Month
Celebrate Life · Family · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward · Trauma

Pregnancy & Infant Loss Awareness Month

Looking for the Light12 Comments

Losing a baby is a very personal matter and one that we don’t often hear or talk about unless you’re close to someone who has experienced that loss. At 19 I had a miscarriage at 4-5 months along and my then-husband didn’t even acknowledge the child or the death, we never talked about the entire night it happened. Instead, he went out of town with the guys the next morning and there was no conversation when he returned. I was devastated, had no ride home, and didn’t have anyone to help me with the pain. I was in shock seeing the baby in the toilet at the hospital but I never grieved.

I can’t imagine the grief of carrying a baby close to term or full term and then watching them die, it has to be gutwrenching. There are many children born with diseases or a defect and they fight for their lives, but it was not to be. The overwhelming pain can only be felt by the parents who lost their baby. Think about the pain felt when the parents get home to see the baby’s nursery they planned so carefully without their baby.

These are my thoughts on what Pregnancy & Infant Loss Awareness Month is, let’s see the official meaning of the day.

 

Pregnancy, Infant, and Child Loss Awareness Month - We want you to know our babies

When Pregnancy and Infant Loss Awareness Month was proclaimed.

In 1988, President Ronald Regan proclaimed October Pregnancy and Infant Loss Awareness Month. Pregnancy and Infant Loss Remembrance Day is observed on October 15th each year and includes the International Wave of Light.

In the United States, 1 out of every 4 pregnancies ends in miscarriage and 1 and every 160 pregnancies end in stillbirth. These numbers do not include infant death from preterm labor, diagnosis of life-limiting conditions, or SIDS.

What is Pregnancy Loss and Infant Loss Awareness Month?

Pregnancy and Infant Loss Awareness Month, observed every October, is dedicated to raising awareness about the grief and challenges faced by families who have experienced miscarriage, stillbirth, or the death of an infant. The month provides a platform for breaking the silence surrounding these often stigmatized and unspoken losses. Through various events, campaigns, and remembrance activities, it seeks to honor the lives lost, offer support to grieving parents, and educate the public on the impact of pregnancy and infant loss. It also encourages open conversations and fosters a sense of community among those affected.

When is National Pregnancy and Infant Loss Remembrance Day?

Pregnancy and Infant Loss Remembrance Day is observed on October 15th each year. It is a day dedicated to honoring and remembering babies who have passed away due to miscarriage, stillbirth, or infant death. Many people participate in the global “Wave of Light” by lighting candles at 7 PM in their local time zone to create a continuous wave of light across the world.

If you’ve lost a baby or know someone who has and wants to share their memory, consider setting up a memorial website on Ever Loved. Memorial websites are free, simple to use, and a beautiful place to share your baby’s obituary, event information, collect memories, and more.

What a beautiful way to memorialize your baby.

Melinda

References:

https://everloved.com/articles/living-with-grief/how-to-recognize-pregnancy-and-infant-loss-awareness-month/

Pregnancy, Infant, and Child Loss Awareness Month – Because of You, My Child

Sober October
Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward · Self-Care

Sober October

Looking for the Light18 Comments

I think the timing of Sober October is perfect, it comes right before the holidays and there is plenty of alcohol flowing at that time of year. Being or getting sober is damn hard any time of the year but during the holidays your endurance can get tested. For me to remain sober, I made it known that I had stopped drinking, that didn’t mean that others needed to stop but I wanted it known that this was a commitment to me and it was serious. I stopped drinking close to 20 years ago, went cold turkey, and never attended a meeting and my husband still drinks. Actually, he’s an alcoholic but that’s his choice. I had the strength to do it so quickly because it was affecting the medications for my mental illness and it’s hard to live without stability of the mind.

Don’t convince yourself that you can only have fun while drinking and stand firm that you can hang out with family or friends without drinking. One line to draw is that no one badgers you or says something negative because you’re not drinking. Give them one chance, stop the conversation, and set a boundary. If they can’t respect that, they are not your friend nor do they care about you. Parents and family can be the worst, hold the line clearly and if they break your boundary again don’t be around them. The psychology behind what they are doing quite frankly is disrespecting you.

 

Photo by Helena Lopes on Pexels.com

 

Alcohol is like a drug, and you become addicted to it, it’s also easy to see alcohol as a comfort that makes the day easier. I get that, I understand that and I know that when you are ready to quit drinking YOU CAN. Seek out all the support you need, just don’t turn to a replacement addiction. Everyone is different and how we move past an addiction is different, don’t compare yourself to others, or buy into that you have to recover a certain way. There is no certain way, you have to make your own, just don’t do it alone.

Melinda

Feeling Invisible With A Stoma By Guest Blogger And Friend Invisibly Me
Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward

Feeling Invisible With A Stoma By Guest Blogger And Friend Invisibly Me

Looking for the Light5 Comments

Thanks to the incredible efforts of campaign groups, individuals, healthcare companies and charities, the world knows more about stomas. With that increased awareness comes a lot of good things, but unfortunately there’s still many ways in which those with an ostomy can feel ignored, misunderstood or sidelined. Here are just 5 ways in which we can be left feeling invisible with a stoma. 

[ This post is in honour of 5th October Stoma Awareness Day 2024, the theme of which is “Do You See Me?”]

 

A photo of me standing up with hands on hips with a black top, jeans and long red hair. The top is pulled up slightly to show a red and white Hello Kitty themed stoma bag cover.
https://invisiblyme.com/feeling-invisible-with-a-stoma/embed/#?secret=KskeE0b8gb#?secret=8sm2aw2gcr
A close up photo of a purple sticker on a wooden door that reads "not all disabilities are visible", with the hashtag "stoma friendly".

 

Make to to spend time searching Caz’s archives, she has written on so many topics and has often shared how she’s battled her chronic illnesses.

Melinda

Am I Strong Enough?
Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Survivor

Am I Strong Enough?

Looking for the Light26 Comments

You would think that the question would be easy to answer given the physical abuse by my mother which started at birth, my stepfather hitting me in the mouth with his fist, watching my mother being beaten by my stepfather from the day they were married, and the sexual abuse by my father. My childhood was beyond traumatic, and it didn’t stop when I became a preteen.

At 12 years old, I was living with my father who was incapable of being a father and had no rules. I was dating a 21-year-old dealer and addicted to speed. Every weekend was a different mix of exotic drugs to try. I skipped school for 45 days straight and my father had me put in Juvenile Detention for three days as punishment. I was so dead inside and totally lost that the sexual abuse didn’t phase me at the time.

There’s plenty more to talk about but I also had issues when I got older. I was sexually assaulted more than once, stalked three times, had Cervical Cancer at 27 years old, and had a total hysterectomy. That’s a lot to decide at 27 years old with no children but I made it clear at 12 years old that I didn’t want children.

My father committed suicide when I was 28 years old, the only positive is that I sought out treatment for my Bipolar Disorder. Sometimes I think he died so I would live.

I’ve had all the normal career challenges including being fired from a six-figure job for something I didn’t do. I didn’t get rich of the lawsuit but I proved my point, it was someone else’s lie and politics that got me fired. The lawsuit did prove to me how strong I was and how much badgering I could take from the other side.

I’ve had health issues large and small most of my life and I think I’m facing my biggest battle yet. My first day at The Mayo Clinic is 10/13/24 and after extensive testing, I will meet with my team of doctors and learn my diagnosis and the treatment plan. I have complete confidence in The Mayo and am working hard to prepare for whatever they find.

I feel calm most of the time with a tiny bit of fear for how my life could change. I’ve worked hard as always to not diagnose myself but I have run a few searches on Copilot that have given two possible answers. I’m not putting stock in that but it’s easy to believe when everything you put in the search comes back to the same answer. I’ll leave that for the doctors and won’t be surprised if it’s something completely different.

I won’t know if I’m strong enough until the reality comes but at least I have a good track record of survival. 

I’m sending a special thanks to everyone who has sent kind words of encouragement and well wishes. You are the sunshine in my life.

 

 

 

 

 

 

 

 

Melinda

5 Mood-Boosting Fall and Winter Foods for Depression
Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward · Self-Care

5 Mood-Boosting Fall and Winter Foods for Depression

Looking for the Light11 Comments

A consistently healthy diet may ease symptoms of depression. Here are experts’ in-season picks for your plate.

Fall and winter can be brutal for people with depression. It gets dark early, resulting in far less exposure to mood-brightening sunlight, plus colder temperatures can make you just want to stay in bed.

In addition, it’s a time of year filled with the sugar-laden, high-fat holiday foods that are often least likely to benefit our mental health. “It’s a challenging time for eaters,” says Drew Ramsey, MD, a nutritional psychiatrist based in Jackson, Wyoming. “There’s lots of delicious stuff that oftentimes isn’t so great for our mood.”

Atlanta-based Jerlyn Jones, RDN, agrees, pointing out that the relationship between an unhealthy diet and depression is often a vicious cycle. “If you have a poor diet, then you’re going to feel more depressed. And when you feel more depressed, you’re probably going to eat more of those types of foods,” says Jones.

The good news: Diet is a modifiable risk factor for depression. In other words, simply loading up on whole foods like fruits and vegetables, fish, nuts, legumes, and the like can improve symptoms of this mood disorder in some people, according to research.

The problem is that when people feel stressed and depressed, they tend to crave comforting foods that are higher in sugar, salt, and fat, Jones says. Unfortunately, the instant relief you experience from those foods — especially the sugar-laden ones — dissolves quickly, which then can cause your mood to crash.

Not to mention that filling up on so-called “junk food” can make it hard to receive enough of the essential nutrients that the brain needs to function at its best, including B vitamins, folate, and magnesium.

“These vitamins and minerals have been inversely associated with depressive disorders,” Jones says. “Foods that are high in different nutrients can make you feel so much better.”

Wondering which healthy cold-weather foods can improve your mood? Experts advise increasing your intake of these five.

Brussels Sprouts Are High in Folate

These cruciferous vegetables are rich in folate — a B vitamin that helps with mood regulation in the brain, Jones says. Studies have shown that B vitamins like folic acid — a form of folate — may benefit people with depression, according to a review article. 

“This nutrient is linked to brain activity and increasing our moods,” says Jones. “Eating foods on a daily basis that are high in folate will help significantly improve the way you feel.”

Try adding raw, shredded Brussels sprouts to salads, or cut them in half, toss them with olive oil and spices, and roast them until brown.

Pomegranates Are Rich in Antioxidants

Another great fall food to eat regularly is pomegranate, a fruit high in antioxidants, Jones says. And it’s especially easy to reap this benefit because drinking pomegranate juice can significantly increase the number of antioxidants you take in, Jones notes.

In addition to their antioxidant content, pomegranates contain polyphenols, which have anti-inflammatory and antidepressant-like properties, according to a review article. “Inflammation is one of the root causes of depression, anxiety, and other mental health problems,” Dr. Ramsey says.

Pumpkins Boast a High Magnesium Content

These perennially popular fall fruits contain magnesium, which was linked to a lower risk of depressive symptoms and disorders in one systematic review.

Fitting this squash into your diet is easier than you may think — pumpkins are incredibly versatile. Try adding pureed pumpkin to soups, smoothies, and pasta sauces. Or simply snack on pumpkin seeds or toss them in a fall salad. “Pumpkin seeds are really one of our top [food] recommendations,” Ramsey says.

Sweet Potatoes Are Chock-Full of Vitamins

Usually harvested in September and October, sweet potatoes pack several essential nutrients — in particular, vitamin C. A meta-analysis concluded that higher levels of vitamin C are associated with reduced depressive symptoms, while lower levels of this vitamin are linked to increased symptoms, though more research is needed to confirm this association.

Winter Squash Is High in Vitamin B6

Winter squash comes in many forms — acorn squash, butternut squash, and spaghetti squash, to name a few. And each of them contain high amounts of vitamin B6, a nutrient shown to positively affect mood. One study found that a lower intake of vitamin B6 was associated with an increased risk of depression among more than 3,300 women.

More Tips for Healthy Seasonal Fare

Colder weather is a good time to consume more soup, especially clam chowders and seafood stews, says Ramsey. Dishes that contain mussels, clams, and oysters are dense with nutrients like magnesium, as well as omega-3 fatty acids, another nutrient that research suggests benefits people with depression. 

If you’re in the mood for something sweet, Ramsey advises swapping sugary holiday desserts for dark chocolate, which is packed with antioxidants and fiber.

“There’s now some interesting data about how the nutrients in dark chocolate are stimulating but also good for the brain, in the sense that people who eat dark chocolatetend to have less depression,” Ramsey says. 

Data from a survey of more than 13,000 U.S. adults showed that chocolate, especially dark chocolate, may be tied to a reduced risk of depressive symptoms.

Along with avoiding excess sugar, Ramsey advises being mindful of how much alcohol you consume around the holiday season.

“There’s a lot of drinking during the holidays, and alcohol can be awful if you have depression,” Ramsey says. “It tends to make people feel better in the short term, and then worse the next day.”

If you need help planning good-mood-friendly meals, the U.S. Department of Agriculture’s online tool MyPlate offers quizzes and hundreds of recipes to get you started.

The Takeaway

Although diet isn’t a cure for depression, eating nutritious foods can help people with the condition feel better. This fall and winter, consider adding seasonal fruits and vegetables rich in mood-enhancing nutrients like folate, antioxidants, and magnesium to your plate (think Brussels sprouts, pomegranates, and sweet potatoes, for example).

“There’s a lot of drinking during the holidays, and alcohol can be awful if you have depression,” Ramsey says. “It tends to make people feel better in the short term, and then worse the next day.”

If you need help planning good-mood-friendly meals, the U.S. Department of Agriculture’s online tool MyPlate offers quizzes and hundreds of recipes to get you started.

Resources We Trust

Melinda

Reference:

By Leona Vaughn Medically Reviewed by Reyna Franco, RDN courtesy of American College of Lifestyle Medicine

You Know It’s Crazy When…
Celebrate Life · Chronic Illness · Fun · Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health · Mental Health

You Know It’s Crazy When…

Looking for the Light27 Comments

If you haven’t followed me long, you may not be aware of the health struggles I’ve had dating back to 2010. Not only have I had a major run-in with what might have been the end of my life, but since 2012 I’ve suffered with severe balance issues and cognitive impairment. Although I don’t have a clue what The Mayo will diagnose me with, I am totally confident in their ability to find answers and get me the right treatment.

This post is something I’ve been laughing so hard about because it can only be funny. I’ve been wishing this one plant to have babies for the past year or two to no avail. Today, I was looking at it again, trying to understand why it hasn’t had a baby. Then the brick hit me, it’s an artificial plant! It makes me laugh every time I think about it. Apparently, I was very sick when I planted it thinking it was a live plant only to find today, that it won’t have any babies. HAHA!!!!!!!

I chose to find it funny, how could I not? I won’t kick myself for being too sick to know the difference. I believe this general attitude is why I keep pushing forward in life and can deal with what comes my way. Who needs a kick in the ass?

Melinda

5 Tips That Help Me Fall Asleep
Celebrate Life · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Self-Care

5 Tips That Help Me Fall Asleep

Looking for the Light6 Comments

by Elizabeth Drucker

•••••

Medically Reviewed by:

Bethany Juby, PsyD

When you’re living with depression, sleeping doesn’t always come easily. Here are my go-to tricks when I can’t seem to wind down.

When my psychiatrist is worried about me, she always asks me how I’m sleeping. When my depression is getting the best of me, I tend to thrash around on my bed for hours. I seem to wake up every hour.

Here are some tips that have helped me get the sleep that I need so I can function throughout the day.

1. Listen to music

I’ve found that listening to music can relax me to the point that I drift off. I have a playlist on Pandora filled with familiar songs that I really like.

It’s fun to take an hour or two to sort out the songs that work best for you. They can be anything: alternative, pop, classical. You might even want to listen to nature sounds or recordings from the ocean. 

The point is that you find something that makes you relax and that you want to hear. There are some phone apps that you can use that have relaxing sounds, too. I also have a clock with recorded songs on it that help me relax.

2. Take a hot shower before bed

When I’m getting ready to fall asleep, I have a routine that always includes a hot shower. This helps me relax. 

Routines like these are helpful for depression. It might also be helpful to use body wash with scents that you like. 

When you’re living with depression, you can find ways to fight back at it with all the five senses. 

3. Try anxiety reduction techniques 

Anxiety and depression can be related. There are times when I can’t sleep because I’m so worried about something. This feeds into my depression. 

There are many techniques to help reduce anxiety. One thing I do is take deep breaths, slowly and gently. I notice that when I’m anxious, it feels harder to breathe, so this really helps. 

I may also try writing a list of all the things that I’m worried about — just to get them out of my head so I can focus more on sleep. Identifying what you’re anxious about is an important step in combatting it.

4. Use positive self-talk

When I’m depressed and having trouble sleeping, I start getting very frustrated. I also tend to think negatively about myself. Everything I do is wrong. If I can do something to reverse this, it really helps. 

The goal is to counter the depression with everything that is positive. It might sound wild, but one really good way to do this is to talk to yourself. I try to speak calmly and gently to myself all the time. 

I acknowledge that, yes, I’m in a depressed mood. But I need to take care of myself and get the sleep I need to be able to function in the morning.

5. Believe that it will get better

One of the hardest parts of coping with depression is feeling like it will go on forever. This can make trying to fall asleep more complicated and overwhelming. 

Keep reminding yourself that depression often comes in waves and things will get better. This is one thing that always helps me when I’m struggling to fall asleep and worrying about it being a never-ending problem.

The takeaway 

When it comes down to it, it’s important to take care of yourself with self-compassion. Depression can make it harder to fall asleep, but you don’t need to just accept that. Fight back with whatever works best for you. 

Try to include things that engage the five senses. Also, keep track of your sleep and tell a mental health professional if you’re unable to sleep. Sometimes, medication is a necessary step. There have been times when my doctor needed to prescribe medication to help me get some sleep. 

What matters is finding ways that help you get the amount of sleep you need to feel rested and ready to take on the day.

The key is to do what works for you, give a suggestion a go, and if it doesn’t move to the next. As much as I love music, it doesn’t help me fall asleep, in fact just the opposite, it wakes my brain up. Going to bed earlier than my sleep time has been most helpful to me. I have the room quiet, pamper myself with some good lotion, and arthritis cream, and the air diffuser is on with Lavender oil which relaxes me. I relax between 45 minutes to an hour before sleep time and I’m ready to fall asleep the majority of the time.

Melinda

Reference:

https://www.bezzydepression.com/discover/dep-self-care/health-five-tips-to-help-you-sleep/?slot_pos=bezzycrosspromo&utm_term=bezzycrosspromo&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=fibro&utm_content=2024-09-24&apid=36735751&rvid=7f053d6ecf820dccd09e4914833cbd49bdfe95bb517404ee9b41601767d1bace
Physical Therapy for Fibromyalgia
Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Self-Care

Physical Therapy for Fibromyalgia

Looking for the Light5 Comments

Physical therapy may be used alongside other treatments to help reduce fibromyalgia pain and improve mental health. 

Chronic pain and fatigue are common symptoms of fibromyalgia. You may also experience sleep, memory, or mood issues as a result of this condition.

There’s no cure yet for fibromyalgia, but doctors may recommend physical therapy in addition to medications and alternative therapies, like massage and acupuncture, to help with your symptoms. 

As part of a holistic plan, physical therapy can help you cope with your pain. It may also reduce the frequency and intensity of your symptoms. 

This article examines how physical therapy and the right exercise program might help those with fibromyalgia.

How can physical therapy help fibromyalgia?

Physical therapy can offer a variety of benefits for those with fibromyalgia, including:

  • decreased pain, fatigue, and stiffness
  • increased range of motion
  • improved mental health
  • reduced need for medications

Research has found that individuals with fibromyalgia may have difficulty with lower aerobic endurance and muscle strength. They are also likely to live a sedentary life because of their pain. This can increase their likelihood of developing other health complications. 

With the help of physical therapy, quality of life and productivity can improve. 

What types of exercises are recommended for fibromyalgia?

Doctors highly recommend that those with fibromyalgia participate in aerobic and strength training activities. While current research does not offer as much support for flexibility exercises, these exercises may also prove beneficial, especially as part of a warm-up or cool-down routine. 

Types of exercise frequently recommended if you have fibromyalgia include:

What’s the best exercise program for fibromyalgia?

If you’ve received a diagnosis of fibromyalgia, a licensed physical therapist can design or tailor a holistic program specifically for you.

To create your personalized exercise program, a physical therapist will consider your overall health and exercise level. They’ll work with you to develop a workout that is sufficiently challenging but also comfortable enough to do several times per week. 

Because fibromyalgia symptoms can fluctuate, your physical therapist may need to make frequent adjustments to your program.

Working out consistently is important, but it can be difficult, especially if you have a painful flare. 

Your physical therapist may ask questions about the types of activities you enjoy doing to find ways to motivate you. They may also begin slowly and build up the intensity of your workouts over time to help prevent pain and burnout. 

In addition to exercises on land, your physical therapist may suggest aquatic therapy. The warmer water in therapy pools can relax muscles, offer joint relief, and improve circulation.

A physical therapy treatment plan for fibromyalgia may also include massage, the use of a TENS machine, or hot/cold packs to prevent and treat your muscle pain. 

In addition to an exercise plan, your physical therapist can provide helpful education about pain management. The skills they teach can be useful in coping with your fibromyalgia symptoms. 

What’s the best way to find a licensed, competent PT who is familiar with fibromyalgia?

Your doctor may be able to provide a referral to a local physical therapist who has worked with individuals with fibromyalgia in the past. 

Another place you may potentially be able to get referrals is through a local fibromyalgia support group.

If you choose to do your own research, you may wish to look online for a local physical therapist who advertises their work with fibromyalgia and has articles or blogs on their website demonstrating their knowledge of the connection between physical therapy and fibromyalgia.

It’s also usually a good idea to check out their reviews.

Where can you find support groups for those living with fibromyalgia?

If you have fibromyalgia, it’s important to have the support of others who understand what you’re going through. Your doctor or local hospital may be able to suggest an in-person support group near you.

You can also get support online through organizations like the Fibromyalgia Care Society of America.

Another place where you can connect with other people with fibromyalgia is in Meta groups. Research indicates Meta (formerly Facebook) groups can be a source of support for those living with fibromyalgia. But remember that these groups may not always encourage evidence-based approaches to fibromyalgia care. 

Takeaway

If you have fibromyalgia, chronic pain can be debilitating. Physical therapy may help reduce your pain, increase your range of motion, and improve your mental well-being. Your doctor may recommend it in combination with medication and alternative therapies.

A physical therapist can help with pain management and develop an individualized exercise plan that includes a mixture of aerobic and strength-building activities. Tai chi, walking, and swimming are some exercises that may be particularly beneficial if you have fibromyalgia.

Melinda

Reference:

https://www.healthline.com/health/physical-therapy-for-fibromyalgia?utm_term=feature&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=fibro&utm_content=2024-09-24&apid=36735751&rvid=7f053d6ecf820dccd09e4914833cbd49bdfe95bb517404ee9b41601767d1bace#support-groups
NAMI September Newsletter-Suicide Prevention
Celebrate Life · Chronic Illness · Family · Health and Wellbeing · Medical · Men & Womens Health · Mental Health

NAMI September Newsletter-Suicide Prevention

Looking for the Light1 Comment

Note from NAMI National:

“September is Suicide Prevention Month, when we work to raise awareness about this urgent crisis. Like mental health conditions, suicidal thoughts can affect anyone regardless of age, gender, or background. But suicidal thoughts should not be considered normal and often indicate more serious issues.”

Fast Facts:

Individual Impact

  • 79% of all people who die by suicide are male.
  • Although more women than men attempt suicide, men are 4x more likely to die by suicide.
  • In the U.S., suicide is the second leading cause of death among people aged 10-14, the 3rd leading cause of death among those aged 15-24, and the 12th leading cause of death overall.
  • 46% of people who die by suicide had a diagnosed mental health condition — but research suggests that 90% may have experienced symptoms of a mental health condition.

Community Impact:

Annual prevalence of serious thoughts of suicide, by U.S. demographic group:

  • 8% of all adults
  • 4% Native Hawaiian/other Pacific Islander
  • 2% Mixed/Multiracial
  • 5% American Indian/Alaska Native
  • 13% of young adults aged 18-25
  • 22% of high school students
  • 41% of lesbian, gay, bisexual, transgender, and queer youth
  • The highest rates of suicide in the U.S. are among American Indian/Alaskan Natives, followed by non-Hispanic white people.
  • Lesbian, gay, and bisexual youth are 4x more likely to attempt suicide than straight youth.
  • Transgender adults are nearly 9x more likely to attempt suicide at some point in their life compared to their peers.
  • Suicide is the leading cause of death for people held in local jails.

This Suicide Prevention Month, check in on your loved ones. Knowing the risk factors and warning signs can assist you in finding help for yourself, a loved one, or a friend. You can learn more about this here.

With gratitude,

The NAMI Texas Public Policy Team

Melinda

 

October Awareness Months
Celebrate Life · Chronic Illness · Family · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward · Survivor

October Awareness Months

Looking for the Light7 Comments

For the complete list of Awareness Months click on the link under references. Below are the issues that are most important to me or ones I have a personal connection to for which there are several.

ADHD Awareness Month
AIDS Awareness Month

National Breast Cancer Awareness Month

National Depression Education and Awareness Month
National Depression and Mental Health Screening Month
Sober October
Pregnancy & Infant Loss Awareness Month
National Bullying Prevention Month
Domestic Violence Awareness Month
Dyslexia Awareness Month
LGBTQ+ History Month

Melinda

Reference:

https://www.goodgoodgood.co/articles/october-awareness-days-months

Dr. Dave Martz overcame an ALS death sentence with Lyme treatment
Celebrate Life · Chronic Illness · Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health · Moving Forward

Dr. Dave Martz overcame an ALS death sentence with Lyme treatment

Looking for the Light9 Comments

As Dave Martz lay dying, an idea serpentined around his mind and would not loosen its grip: Despite the absolute diagnosis and the insistence of the doctors, including a world expert, that he was dying of ALS, despite his own vow to face things head-on and reject the lure of denial, Martz couldn’t shake the notion that possibly, just maybe, he actually had Lyme disease. (from Cure Unknown: Inside the Lyme Epidemic by Pamela Weintraub.)

One of the earliest Lyme conferences I ever attended featured Dr. Dave Martz and the story of his remarkable recovery from what had been diagnosed as ALS–a fatal condition.

I would later write this about him in my blog:

Kind of a rock star

Dr. David Martz is kind of a rock star in the Lyme world. You may have read about him in Pam Weintraub’s Cure Unknown and seen footage of him in the documentary Under Our Skin.

His story is riveting. He had a lifetime of good health and a successful career as a physician practicing internal medicine-hematology-oncology for 30 years. Then, in 2003, Martz suddenly started experiencing strange symptoms. First deep fatigue, then profound muscle aches and body-wide pain. Soon he was too weak to get out of bed. As his condition rapidly deteriorated, his physicians gave him a devastating diagnosis: ALS (aka Lou Gehrig’s Disease). They said nothing could stem his physical decline and he would likely be dead within two years.

But events went in a different direction. As his health spiraled downward, Martz connected with a Lyme disease specialist who prescribed hard-hitting, long-term antibiotics. The gamble paid off. By the end of 2004, Martz was a new man. In fact, the doctor who had diagnosed him so definitively with ALS, now pronounced that condition completely gone.

Martz devoted the next two and a half years to a project that gave extended antibiotics to about 90 ALS patients and demonstrated objective improvements in 15% of them. He has also treated more than 800 chronic Lyme patients, with good response and minimal side effects.

A message of hope

In 2010, I helped organize a Lyme patient education conference in the San Francisco Bay Area and we had Dr. Martz as our keynote speaker. He was a kind, thoughtful man who offered a message of hope to an audience which sorely needed it.

This week, I learned that Dr. Martz passed away last month at the age of 83. Rest in peace, Dr. Martz, rest in peace.

TOUCHED BY LYME is written by Dorothy Kupcha Leland, President of LymeDisease.org. She is co-author of Finding Resilience: A Teen’s Journey Through Lyme Disease and of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at dleland@lymedisease.org.

Very interesting read! So glad he had an open mind and thought to seek out a Lyme Literate Doctor, it saved his life.

Melinda