Category: Medical

How to Be Happy: 27 Habits to Add to Your Routine
Celebrate Life · Fun · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward · Self-Care

How to Be Happy: 27 Habits to Add to Your Routine

Looking for the Light12 Comments

Medically reviewed by Lori Lawrenz, PsyD — Written by Ann Pietrangelo — Updated on March 10, 2023

Regardless of your version of true happiness, living a happier, more satisfied life is within reach. A few tweaks to your regular habits like getting more sleep and exercise can help you get there.

Habits matter. If you’ve ever tried breaking a bad habit, you know all too well how engrained they are.

Well, good habits are deeply engrained, too. Why not work on making positive habits part of your routine?

Below, you’ll find suggestions for daily, monthly, and yearly habits to help kickstart your quest. Just remember that everyone’s version of happiness is a little different, and so is their path to achieving it.

If some of these habits create added stress or just don’t fit your lifestyle, ditch them. With a little time and practice, you’ll figure out what does and doesn’t work for you.

Daily habits

The following daily habits may help you achieve more happiness in your life.

1. Smile

You tend to smile when you’re happy. But it’s actually a two-way street.

We smile because we’re happy, and smiling causes the brain to release dopamine, which makes us happier.

While not completely foolproof, researchers have found that the link between smiling and happiness could be attributed to the “facial feedback hypothesis,” where facial expressions may have a modest influence on emotions. 

That does not mean you have to go around with a fake smile plastered on your face all the time. But the next time you find yourself feeling low, crack a smile and see what happens. Or try starting each morning by smiling at yourself in the mirror.

2. Exercise

Exercise isn’t just for your body. Regular exercise can help reduce stress, feelings of anxiety, and symptoms of depression while boosting self-esteem and happiness.

Even a small amount of physical activity can make a difference. You don’t have to train for a triathlon or scale a cliff — unless that’s what makes you happy, of course.

The trick is to not overexert yourself. If you suddenly throw yourself into a strenuous routine, you may just end up frustrated (and sore).

Consider these exercise starters:

  • Take a walk around the block every night after dinner.
  • Sign up for a beginner’s class in yoga or tai chi.
  • Start your day with 5 minutes of stretching.

Remind yourself of any fun activities you once enjoyed but that have fallen by the wayside. Or you could consider starting activities you always wanted to try, such as golf, bowling, or dancing.

3. Get plenty of sleep

Most adults need at least 7 hoursTrusted Source of sleep every night. If you find yourself fighting the urge to nap during the day or just generally feel like you’re in a fog, your body may be telling you it needs more rest.

No matter how much our modern society steers us toward less sleep, we know that adequate sleep is vitalTrusted Source to good health, brain function, and emotional well-being. Getting enough sleep also reduces your riskTrusted Source of developing certain chronic illnesses, such as heart disease, depression, and diabetes.

Here are a few tips to help you build a better sleep routine:

  • Write down how many hours of sleep you get each night and how rested you feel. After a week, you should have a better idea how you’re doing. You can also try using an app to track your sleep.
  • Go to bed and wake up at the same time every day, including on weekends.
  • Reserve the hour before bed as quiet time. Take a bath, read, or do something relaxing. Avoid heavy eating and drinking.
  • Keep your bedroom dark, cool, and quiet.
  • Invest in some good bedding.
  • If you have to take a nap, try limiting it to 20 minutes.

If you consistently have problems sleeping, consider talking with a doctor. You may have a sleep disorder that requires treatment.

4. Eat with mood in mind

You may already know that your food choices have an impact on your overall physical health. But some foods can also affect your state of mind.Trusted Source

For example:

  • Carbohydrates release serotonin, a “feel good” hormone. Just keep simple carbs — foods high in sugar and starch — to a minimum because that energy surge is short and you’ll crash. Choosing complex carbs, such as vegetables, beans, and whole grains, can help you avoid a crash while still providing serotonin.
  • Lean meat, poultry, legumes, and dairy are high in protein. Protein-rich foods release dopamine and norepinephrine, which boost energy and concentration.
  • Omega-3 fatty acids, such as those found in fatty fish, have been found to have anti-inflammatory effectsTrusted Source that extend to your overall brain health. If you don’t eat fish, you might consider talking with a doctor about possible supplementation. 
  • Highly processed or deep-fried foods tend to leave you feeling down and so will skipping meals.

If you want to eat with your mood in mind, consider starting with making one food choice for your mood each day.

For example, swap a big, sweet breakfast pastry for some Greek yogurt with fruit. You’ll still satisfy your sweet tooth, and the protein will help you avoid a midmorning energy crash. Consider adding in a new food swap each week.

5. Practice gratitude 

Simply being grateful can give your mood a big boost, among other benefits. For example, a two-part study found that practicing gratitude can have a significant impact on feelings of hope and happiness.

You might try starting each day by acknowledging one thing you’re grateful for. You can do this while you’re brushing your teeth or just waiting for that snoozed alarm to go off.

As you go about your day, consider keeping an eye out for pleasant things in your life. They can be big things, such as knowing that someone loves you or getting a well-deserved promotion.

But they can also be little things, such as a co-worker who offered you a cup of coffee or the neighbor who waved to you. Maybe it could even just be the warmth of the sun on your skin.

With a little practice, you may even become more aware of all the positive things around you.

6. Give a compliment

Research shows that performing acts of kindness may also help promote your overall well-being. 

Giving a sincere compliment is a quick, easy way to brighten someone’s day while giving your own happiness a boost.

Catch the person’s eye and say it with a smile so they know you mean it. You might be surprised by how good it makes you feel.

If you want to offer someone a compliment on their physical appearance, make sure to do it in a respectful way.

7. Breathe deeply

You’re tense, your shoulders are tight, and you feel as though you just might “lose it.” We all know that feeling.

Instinct may tell you to take a long, deep breath to calm yourself down.

Turns out, that instinct is a good one. ResearchTrusted Source supports the fact that slow breathing and deep breathing exercises can help reduce stress.

The next time you feel stressed or are at your wit’s end, work through these steps:

  1. Close your eyes. Try to envision a happy memory or beautiful place.
  2. Take a slow, deep breath in through your nose.
  3. Slowly breathe out through your mouth or nose.
  4. Repeat this process several times until you start to feel yourself calm down.

If you’re having a hard time taking slow, deliberate breaths, try counting to 5 in your head with each inhale and exhale.

8. Acknowledge the unhappy moments

A positive attitude is generally a good thing, but bad things happen to everyone. It’s just part of life.

If you get some bad news, make a mistake, or just feel like you’re in a funk, don’t try to pretend you’re happy.

Acknowledge the feeling of unhappiness, letting yourself experience it for a moment. Then shift your focus toward what made you feel this way and what it might take to recover.

Would a deep breathing exercise help? A long walk outside? Talking it over with someone?

Let the moment pass and take care of yourself. Remember, no one’s happy all the time.

9. Keep a journal

A journal is a good way to organize your thoughts, analyze your feelings, and make plans. And you don’t have to be a literary genius or write volumes to benefit.

It can be as simple as jotting down a few thoughts before you go to bed. If putting certain things in writing makes you nervous, you can always shred it when you’ve finished. It’s the process that counts.

Not sure what to do with all the feelings that end up on the page? Our guide to organizing your feelings may help.

10. Face stress head-on

Life is full of stressors, and it’s impossible to avoid all of them.

There’s no need to. Stress isn’t always harmful, and we can even change our attitudes about stress. Sometimes, there’s an upside to stress.

For those stressors you can’t avoid, remind yourself that everyone has stress — there’s no reason to think it’s all on you. And chances are, you’re stronger than you might think you are.

Instead of letting yourself get overwhelmed, try to address the stressor head-on. This might mean initiating an uncomfortable conversation or putting in some extra work, but the sooner you confront it, the sooner the pit in your stomach may start to shrink.

11. Avoid comparing yourself to others

Whether it happens on social media, at work, or even at a yoga class, it’s easy to fall into a place where you’re comparing yourself to others. The result? You may experienceTrusted Source more discontent, lower self-esteem, and even depression and anxiety.

It can take practice to stop comparing yourself to others, but it’s worth it for the benefit of having your inner peace and happiness. 

You can start with some of the other tips on this list that can help draw your attention inward to yourself, such as deep breathing and journaling. You may also consider talking with a therapist for perspective.

Melinda

Reference:

https://www.healthline.com/health/how-to-be-happy?utm_term=feedcontent&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=fibro&utm_content=2024-09-10&apid=36735751&rvid=7f053d6ecf820dccd09e4914833cbd49bdfe95bb517404ee9b41601767d1bace#daily-habits
What’s the Difference Between Chronic and Acute Stress?
Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Self-Care

What’s the Difference Between Chronic and Acute Stress?

Looking for the Light7 Comments

Medically reviewed by Francis Kuehnle, MSN, RN-BC — Written by S. Srakocic on December 12, 2023

Acute stress is a part of life, but when it turns into chronic stress, it can cause serious health concerns both mentally and physically. 

Acute stress is the stress you feel as the direct result of a specific situation or event. For instance, it’s acute stress when you’re running late for an appointment and begin to feel symptoms of stress such as anxiety and difficulty focusing. 

Chronic stress is the result of stress that builds up from repeated exposure to stressful situations and the hormones your body releases during each stressful episode. Many things can lead to chronic stress, including factors such as difficult relationships, job demands, and financial concerns.

Acute vs. chronic stress: Symptoms

Acute and chronic stress share some overlapping symptoms. However, the symptoms of chronic stress are longer-lasting and can be harder to manage.

Symptoms of acute stress include:

Symptoms of chronic stress include:

Over time, chronic stress can lead to additional complications. These include:

Acute vs. chronic stress: Causes 

Stress is a reaction that happens when something activates your body’s fight-or-flight response. It gets your heart racing and puts you on high alert. A wide range of things can cause acute stress. 

Generally, acute stress is a reaction to situations that are challenging to manage but that are temporary, such as:

  • car accidents
  • medical emergencies
  • work deadlines
  • unexpected expenses
  • upcoming events
  • traffic
  • weather
  • travel

On the other hand, chronic stress is a reaction to long-term stressors. These long-term stressors keep your body on high alert for an extended time. Examples of situations that can lead to chronic stress include:

Acute vs. chronic stress: Treatment options

Treatment options for stress depend on the severity and how the stress is affecting your life. Acute stress doesn’t typically need treatment unless it’s making daily activities difficult. 

If you’re experiencing episodes of acute stress frequently, your primary healthcare professional might recommend lifestyle treatments such as:

  • Increasing your physical activity: Exercise and an active lifestyle can help your body release stress-reducing hormones.
  • Cutting back on caffeine: Caffeine can increase the symptoms of stress. For some people, cutting back can help reduce episodes of acute stress.
  • Making time to relax: Taking time for self-care and relaxation through steps like hot showers and baths, yoga or meditation practice, and spending time with friends can reduce stress levels.
  • Avoiding stress triggers: If you’re able to avoid specific stressful situations, it can help lower your overall stress levels.
  • Lowering your sugar intake: Eating a healthy diet and reducing the amount of sugar you take in can help manage your body’s reaction to stress. 
  • Disconnecting from phones and other devices: Cutting back on the amount of time you spend engaged with social media and news sources can help reduce stress levels.

Treatment options for chronic stress can be more complex. You might receive treatment to help you manage your stress and treatment to help alleviate your symptoms. Options can include:

  • Cognitive behavioral therapy (CBT): CBT is a therapy method that helps you identify your thought patterns and discover how they contribute to your stress levels. It can give you the tools you need to lower stress and cope with the difficulties in your life.
  • Mindfulness-based stress reduction (MBSR): MBSR is a treatment that teaches mindfulness techniques to help manage responses to stress.
  • Medication: Sometimes, prescription medications for anxiety or depression can help with the symptoms of chronic stress. The right ones for you will depend on your symptoms and on factors such as any other medications you already take.
  • Symptom-specific treatment: Your doctor might prescribe medications for any complications and symptoms connected to your chronic stress. For instance, your treatment could include medications to help with insomnia or IBS.

Takeaway

Acute stress is the stress that results from a specific, temporary situation or event. It can cause symptoms such as anxiety and insomnia. 

Chronic stress is stress that is the result of an ongoing situation such as a demanding job or chronic illness. It can lead to long lasting physical health compilations and sometimes needs treatments such as therapy and medication.

Melinda

Reference:

https://www.healthline.com/health/stress/acute-vs-chronic-stress?utm_term=roundup&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=fibro&utm_content=2024-09-03&apid=36735751&rvid=7f053d6ecf820dccd09e4914833cbd49bdfe95bb517404ee9b41601767d1bace#takeaway
Accepting Your Bipolar Disorder Diagnosis
Celebrate Life · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Mental Illness · Moving Forward

Accepting Your Bipolar Disorder Diagnosis

Looking for the Light16 Comments

By Donna Jackel 

Medically Reviewed by Allison Young, MD

Last Updated: 10 May 2024

Accepting a bipolar diagnosis can be immediate, offering clarity on past experiences, or it may be a gradual process of coming to terms with a lifelong condition.

At age 29, Julie C. seemed to be at an enviable place in life. She had good friends. She had come out as a lesbian and was comfortable with her sexuality. And she had a fulfilling job that took her to far-off places: She was coordinator of a Toronto-based foundation.

That life began to slip away from her in 2007, when she was beset by money and relationship problems. Julie was hospitalized twice, and treated for depression. But her psychologist knew another side of the young woman — the high-energy, high achiever who could sometimes work at a furious pace with little sleep. In 2008, the psychologist told Julie that she believed she had bipolar disorder.

Fearing the Unexpected, a Diagnosis of Bipolar

“I was terrified at first,” Julie recalls months later. “I had this dropping feeling in my gut. All the stereotypes I had about bipolar came flooding into my head. I have a friend who has bipolar, and she has been almost homeless a couple of times, and in and out of the hospital. I thought, ‘Oh my God — is this what my life is going to be?’”

Julie has since accepted her diagnosis. She is stable and feels much better than in the past. She takes her medication daily, maintains a regular sleep schedule, works out, and has improved her eating habits. She still works for the foundation, but is planning to move back to her hometown and work long-distance.

For others, the road to acceptance can be long and circuitous. Peggy M. of Wisconsin has experienced highs and lows since her teens. Although Peggy was diagnosed with bipolar in 2002, acceptance did not come until six years later when she had her first negative work evaluation.

Peggy received a poor rating in several areas; the comment that hurt most was “poor communication skills.” “I have a master’s degree in communications. [The review] was a direct contradiction to what I knew about myself,” Peggy says. “That’s when I finally had to admit it was the bipolar affecting my work.”

Your Journey to Acceptance of Bipolar Is Unique to You

Many factors influence how well a person is able to adapt to bipolar. These include the severity of the illness, level of self-awareness, one’s attitude about mental illness, availability of a support system, and access to quality health care.

Some are able to accept their illness after one or two manic episodes. Others remain in denial for years, burning through relationships, jobs, and money until they hit rock bottom.

“Bipolar is one of the illnesses people have the hardest time accepting,” says Sagar V. Parikh, MD, deputy psychiatrist-in-chief at the University Health Network in Toronto and professor of psychiatry at the University of Toronto.

“Maybe one-third accept the diagnosis right away. At least a third totally reject it, and a third believe it, but when they are better for a while, begin to doubt it again,” explains Dr. Parikh.

“It’s common for acceptance to take years,” agrees Evette J. Ludman, PhD, a clinical psychologist and researcher at Group Health Cooperative in Seattle and coauthor of Overcoming Bipolar Disorder: A Comprehensive Workbook for Managing Your Symptoms and Achieving Your Life Goals.

Fully accepting the diagnosis is “almost like joining the priesthood,” Parikh says. “The commitment to treatment is a major one that involves going to the doctor regularly and paying a lot of effort to regulating one’s lifestyle. It’s not just a commitment to medication, but a way of life.”

In his research, Parikh found that people living with bipolar 2 have greater difficulty acknowledging the diagnosis than do those with bipolar 1, which is typically characterized by clear-cut episodes of mania and depression.

The symptoms of bipolar 2 are more subtle, he explains, making it difficult to perceive the hypomania as a symptom of the mental health condition, rather than part of one’s identity. 

“Your highs are mild, your brain is working faster, you have more confidence and energy, you need less sleep — it’s the ideal human condition,” says Parikh. Because hypomania is less obvious than mania, “it is difficult to conceptualize it as an illness,” he adds.

Personal Research, Reflection, and Ultimate Acceptance of the Diagnosis

In his 20 years as a Methodist minister, Ron M. encountered people with bipolar disorder — there was the female parishioner who had threatened him with a knife, and the wild young man who had stripped off all his clothes. Because Ron associated the illness with such extreme behavior, he missed his own symptoms when they began in early 2003. He attributed his racing thoughts, restlessness, and crying jags to depression.

His behavior resulted in Ron being placed on disability leave by his denomination; he began seeing a psychiatrist and a therapist and started taking an antidepressant. Eight months later, Ron was diagnosed with bipolar 2 and prescribed a mood stabilizer.

He continued to tell himself he was “only” suffering from depression, however.

“I was convinced that if I could tough it out, I’d be fine,” he says. “I told myself, ‘There is no way I’m bipolar.’”

During this period, his marriage of 20 years ended. Looking back, Ron says it was this denial that prevented him from getting adequate treatment. Despite his skepticism, Ron began reading about bipolar disorder and keeping a mood chart.

By the summer of 2004, he had accepted his diagnosis. “The research indicated that my moods and cycling were pretty consistent with the disease,” he says.

Since this breakthrough, life has “gotten a lot easier,” Ron says. He is more open-minded about taking medication. And by continuing to chart his moods, he can predict the ups and downs. 

“I will have five to seven good days and then I will crash and have about seven to 10 dark days,” he says. “You can almost set your watch by my cycling.”

Meanwhile, a series of changes have enriched Ron’s life. He moved from St. Louis to Tucson to be near family and friends; medication adjustments have brought him greater wellness, and he fell in love and remarried.

“When I grieve for how my life used to be, I remind myself that if it was like it used to be, I would never have met her,” he says of his wife.

Because of his rapid-cycling, Ron, now in his fifties, does not believe he will be able to lead a congregation again. However, he finds great fulfillment in helping others as president of the Tucson chapter of Depression and Bipolar Support Alliance (DBSA).

“I force myself to go to meetings when I’m not feeling good,” he says, “And when I am feeling good, I need to go so I can share with someone to help them in their time of struggle.”

Stigma, Discrimination, and Denial of Bipolar

Indeed, the stigma and discrimination associated with mental illness is a huge barrier to coming to terms with bipolar, consumers and experts agree. It is because there are so many misconceptions and preconceptions about mental illness that Dr. Ludman hesitates using phrases like “accepting the diagnosis.”

“I’m not very fond of labels,” she explains. “Everyone has their own story of what ‘accepting’ [the illness] means. It may mean ‘I’m crazy,’ or ‘No one loves me.’”

Jo R., an executive assistant for an Atlanta-based optometry association, resisted her 1997 diagnosis for eight years. To her, bipolar disorder meant that she could no longer trust her own mind.

“After 36 years of living, I couldn’t think my thoughts were incorrect,” says Jo, who grew up in poverty in the small hamlet of Jasper, Florida. “I was intelligent and had accomplished a lot, so I couldn’t be ‘crazy.’”

Jo told herself that her sleeplessness and psychoses were side effects of her antidepressant. Denial cost her deeply: She lost two jobs, resulting in bankruptcy and the loss of her home. But it was not until she spent a week in a state mental hospital that the reality of her situation fully hit.

“There was a beautiful woman there who yelled and barked like a dog; there was another girl who urinated on herself,” she says. “The people there were ‘crazy,’ and I was among them, so I was one of them. I told the doctor, ‘I’m ready to do whatever I need to do to manage this.’ That’s when I accepted the diagnosis.”

Jo made good on her promise, learning all she could about bipolar and what she needed to do to stay well. Today, she works full-time and has her own apartment. She keeps a mood chart and a journal, exercises, takes her medication, and avoids “toxic” people.

Indeed, Jo is so vigilant about maintaining her downtime and getting enough sleep that friends and family know not to call her after 9 p.m. She carefully tracks her spending, keeping to a strict budget, and recording all her purchases.

“The bipolar diagnosis has been a true blessing,” Jo now will tell you. “Having bipolar forces you to change to be the best you can be … to live a good life.”

Moving Toward Accepting and Embracing Your Bipolar

The first step following a diagnosis of bipolar — even before medication — should be learning about your illness, says Parikh. “It is the single most effective remedy aiding acceptance. You’re not going to follow any treatment plan unless it makes sense to you.”

Mental health experts generally agree that accepting the diagnosis makes it easier to follow a treatment plan. Yet disagreement exists as to how to best approach patients who are in denial. Gary S. Sachs, MD, founder and director of the Bipolar Clinic and Research Program at Massachusetts General Hospital and an associate professor of psychiatry at Harvard Medical School, doesn’t “push acceptance as a requirement.”

“Many patients will be willing to accept some form of intervention if I don’t require that they accept the label as well,” he says.

“Ambivalence about treatment is kind of the norm,” agrees Mark S. Bauer, MD, professor of psychiatry at Harvard Medical School, director of the Harvard South Shore Psychiatry Residency Training Program, and a coauthor of Overcoming Bipolar Disorder.

“Studies show that only 20 percent [of consumers] come to treatment fully on board,” says Dr. Bauer.

Rather than try to convince skeptical patients, Bauer teaches them how to recognize their mood swings, understand how episodes have affected their quality of life, and how to control these patterns. He also helps people “develop a detailed plan for living a full life, based on their values and core goals.”

But others believe that accepting the diagnosis is integral to treating the mental health condition effectively. “By accepting what the problem is and informing yourself about the disease and treatment, you are empowering yourself to control the disease,” says Francis M. Mondimore, MD, assistant professor at Johns Hopkins University School of Medicine’s Department of Psychiatry and Behavioral Sciences and author of Bipolar Disorder: A Guide for Patients and Families.

“My message to people is that we know a lot about how to treat this problem and manage the symptoms,” says Dr. Mondimore. “You need to know all the options so you can make an informed healthcare decision. Once you’ve named something, you’ve got some control over it.”

Lise, of Vermont, grew up around mental illness. Her father died when she was 17, and her late sister dealt with a mental health condition.

“I was always in fear of being like my sister,” Lise admits. A librarian at Norwich University in Northfield, and the mother of three teenage boys, Lise had for years been treated sporadically for depression. Then a 2003 car accident — a drunk driver totaled the car she and her family were riding in — heightened her depression.

Her family doctor switched her antidepressant, and before long, Lise became manic. She left her husband and sons and moved into an apartment. Hospitalization and a diagnosis of bipolar 2 followed.

“At first, I was just dealing with the ramifications of what I had done, and was kind of in shock — how could I lose sight of my kids and my family?”

Then, Lise had to learn to live with a new diagnosis. Instead of the more socially acceptable label of depression, she had a severe, chronic mood disorder. “It was scary, and it made me sad,” she recalls.

In fact, people often “get very caught up in whether symptoms indicate depression or bipolar,” says Mondimore. “What we’re learning about mood disorders is there is a lot of overlap.” 

Although sometimes there are discrete manic or depressive episodes, people can also experience mixed episodes, which have symptoms of both.

As time goes on, we probably won’t even have separate categories for depression and bipolar. Instead, there will be a classification for mood disorders.”

Lise found that her family history actually strengthened her resolve to reclaim her life. “I lost my father … and I will not do that to my kids, no matter how hard it is,” she says. “I go get help as soon as I feel those thoughts coming.”

Medication Can Make a Difference in Bipolar Mood Management

Medication adherence is the biggest roadblock to fully accepting bipolar disorder, according to Mondimore. “That is the hardest thing — admitting that you are not always able to control your emotional life,” he says.

But these feelings subside with the support of loved ones and by undergoing psychotherapy, he adds.

Side effects are a more tangible reason people refuse, or go off, psychotropic medication. For example, Jo had to learn to live with a 100-pound weight gain and hand tremors.

For her part, Julie initially refused to take lithium because it was so heavily associated with bipolar disorder. “I had talked myself into thinking I had bipolar-lite — that I had a very mild version of what other people had,” she says wryly. “Friends also told me not to take it — that I could manage without it.”

But then Julie began cycling more noticeably. “One week I would be excited and the next, I would think the world was ending,” she says. “My therapist said lithium would help that.”

It can also be deeply frustrating to accept that medications can only manage, not cure bipolar, Ludman points out.

The notion of having to take pills every day for the rest of her life intimidated Wendy L., of Owensboro, Kentucky, who has “trouble doing anything routinely.” But there was a more basic reason Wendy at first resisted medication: “I liked my manic highs — I felt very productive. I didn’t want them taken away,” she says.

After discussions with her husband, however, Wendy decided that, for his sake, she needed to stabilize her moods. “We’d been married for 30 years and I put my husband through hell those 30 years,” she says.

Diagnosed at age 50, Wendy has gradually learned to live with “flat” moods. “I was used to flying high and feeling all these ranges of emotions, and that wasn’t there anymore.”

Missing the soaring highs and bursts of energy leads many to stop their medication and land back in the hospital. “It’s very common for patients to stop taking mood-stabilizing medication when they begin to feel better,” Ludman says.

Social Support to Stay on Track With Bipolar Treatment

Dr. Sachs believes that having someone in your life to help you stay on track is so crucial for individuals with bipolar that he helps those who don’t have an existing support system to develop one. “Mood disorders include periods when your perceptions are distorted, so the most important thing to include in your treatment plan is a care partner,” he says.

Those fortunate enough to have a loved one willing to join them on the road to recovery travel a less lonely path. “My husband educated himself. We sat down, talked about the symptoms, signs, and different triggers that had happened over years,” says Wendy. “He was willing to work through the changes. He was so accepting of it that it helped me accept it.”

You don’t have to be in a romantic relationship to find support — an understanding boss who lets you come to work a bit later because a new medication is making you sleepy; family and friends who visit you in the hospital; or a relative with bipolar who shares what worked for him — all can contribute to your wellness.

Julie, who was living in a small town when she came out as a lesbian, believes society is more accepting of homosexuality than mental health conditions. “In my office, I don’t care if people know I’m gay,” she says. “The few co-workers who do know about my bipolar will be like, ‘So are your meds working now?’ as if I’ll get on some meds, and then I’ll be ‘normal.’ That’s not going to be it — I’ll have to manage my bipolar — even when I’m well.”

When Julie told her boss she had bipolar, the woman, who is also a good friend, responded: “You are still the same person. Nothing has changed, except that you know something about yourself that can make you feel better.”


UPDATED: Printed as “Accepting The Diagnosis,” Summer 2009

Donna Jackel

Donna Jackel specializes in mental health, animal welfare and social justice issues. She earned a bachelors degree in journalism at the S.I. Newhouse School of Public Communications at Syracuse University. For 15 years, Donna was a staff reporter at the Democrat and Chronicle, a daily newspaper in Rochester, NY, where she still lives. As a freelancer, in addition to contributing to bp Magazine and esperanza, Donna’s work has appeared in ReWire, The Progressive, Lilith, Texas Monthly, Yes! Magazine, The Chicago Tribune, Bark Magazine, CityLab, Leap Magazine and other national publications. A story Donna wrote about her mother’s (Marie Rogers) service in the British Air Force during World War II was included in the anthology, Before They Were Our Mothers: Voices of Women Board Before Rosie Started Riveting (copyright 2017). In 2019, Donna won an honorable mention in health writing from the American Society of Journalists & Authors for a feature story she wrote for The Progressive about college students who were denied transgender hormone therapy. When Donna isn’t working, she can be found hanging out with her Lab, Bear, horseback riding or catching a movie at the Little Theatre. Her work can be seen at donnajackel.com.

Melinda

Barometric Pressure May Affect Fibromyalgia Symptoms
Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Barometric Pressure May Affect Fibromyalgia Symptoms

Looking for the Light11 Comments


Medically reviewed by Angelica Balingit, MD — Written by Alysa Hulletton August 19, 2024

Lower barometric pressure is associated with higher self-reported pain scores in fibromyalgia patients, but more research is needed to determine causation. 

People with fibromyalgia often report that the weather, particularly the barometric pressure, affects their symptoms. 

Also called atmospheric pressure, barometric pressure is the amount of air pressure in the atmosphere. It is higher when oxygen molecules are more concentrated and is basically a measure of the heaviness of the air at a given time.

The thinking behind this theory is that when barometric pressure drops, the “lighter” air may make joints, tendons, and muscles swell to compensate, causing pain.

While there’s evidence to support the idea that air pressure does indeed affect conditions like arthritis, headaches, and generalized chronic pain, so far, the research on the link between barometric pressure and fibromyalgia is limited. Here’s what to know.

How does barometric pressure affect fibromyalgia? 

In a 2019 studyTrusted Source of 48 patients with fibromyalgia, researchers compared self-reported pain scores over a 30-day period with local weather data. They found lower barometric pressure to be strongly correlated with higher pain scores in the majority of patients studied. The breakdown was as follows:

  • 40 out of 48 patients reported more pain on lower barometric pressure days. 
  • 8 out of 48 patients reported more pain on higher barometric pressure days. 

Researchers noted that the second subgroup had lower baseline anxiety levels than the control group. Lower barometric pressure was also linked to higher stress levels. As a result, scientists speculated that there may be a mental-emotional component to pain levels in those with fibromyalgia, though it’s not yet well understood. 

Other key findings include the following:

  • Higher humidity was associated with higher pain scores.
  • Colder temperatures were associated with higher pain scores.

In a 2021 studyTrusted Source, researchers found that 58% of 64 patients with fibromyalgia said weather-related factors aggravate their symptoms. Here are some other key findings:

  • Researchers used a self-reported quality-of-life measure where 1 is perfect health and 0 is many health difficulties. On average, fibromyalgia patients reported a score of 0.55.
  • Researchers found that the 37 people with weather sensitivity had worse quality of life scores (by an average of 0.16 points) than those who didn’t report weather sensitivity. They also reported an average of 1.5 more pain points on a scale of 0 to 10.

Keep in mind that these sample sizes are small and that there are few studies on the link between barometric pressure and fibromyalgia in particular. Although there appears to be a strong association, scientists have not conclusively shown that barometric pressure causes increased pain.

However, in a 2020 study of 10,584 patients with chronic pain, researchers also found a strong association between lower barometric pressure and higher pain scores over the course of 15 months. About 26% of those surveyed had fibromyalgia, while the rest had other health issues, including various forms of arthritis, neuropathic pain, headaches, and migraine episodes.

The best weather for fibromyalgia flare-ups 

Based on the (somewhat limited) data, the best weather for those with fibromyalgia appears to be: 

  • higher barometric pressure
  • lower humidity
  • less rain
  • calmer winds
  • warmer temperatures

Keep in mind that fibromyalgia flare-ups tend to be individualized, with some patients reporting increased pain on higher barometric pressure days, for instance. Many people with fibromyalgia also don’t report experiencing weather-related sensitivity at all.

What’s the best place to live for those with fibromyalgia? 

As noted above, fibromyalgia symptoms tend to be highly individualized, so it’s challenging to pinpoint the optimal climate for those with fibromyalgia.

However, since many people with fibromyalgia report improved symptoms with warmer weather, less rain, and less humidity, desert regions may offer the most relief. In fact, there are many anecdotal reports of people living with fibromyalgia experiencing pain reduction after moving to these areas.

In the United States, this includes regions like:

  • The Mojave Desert, which covers parts of southeastern California, southern Nevada, southwestern Utah, and northwestern Arizona. This includes areas around Las Vegas and Death Valley.
  • The Sonoran Desert, spanning parts of southern Arizona and southeastern California, including areas around Phoenix and Tucson.
  • The Chihuahuan Desert, which covers parts of southern New Mexico and west Texas, including areas around El Paso.
  • The Colorado Plateau, including parts of southeastern Utah, northern Arizona, northwestern New Mexico, and southwestern Colorado. While this region can have cooler temperatures at higher elevations, lower areas often meet the criteria.
  • The Great Basin, including parts of Nevada, western Utah, and southeastern Oregon. Some areas, particularly at lower elevations (such as Reno), meet most of the criteria.
  • The Southern California Interior, including inland areas of southern California such as the Coachella Valley (where Palm Springs is located) and Imperial Valley.

Will climate change affect fibromyalgia symptoms?

So far, there’s no evidence that climate change will affect fibromyalgia symptoms. However, since climate change is associated with moisture evaporation that worsens severe rainfall, increased rain and humidity may affect people negatively in some regions.

Meanwhile, hotter temperatures shouldn’t negatively affect those with fibromyalgia and may even improve symptoms for some. On the other hand, climate change is also associated with more frequent and more severe storms, so those experiencing pain during times of shifting barometric pressure may be negatively affected. 

Treatment options for weather-related fibromyalgia pain 

Potential strategies for managing weather-related fibromyalgia pain include the following:

  • Monitor your symptoms and local weather patterns to identify your unique triggers. A symptom journal may be helpful with this. 
  • Use climate control support in your home, including dehumidifiers, to reduce moisture in the air.
    • You may also want to keep your home at a slightly higher temperature or use a heating unit (e.g., by your desk or bed) to reduce symptoms. Heated blankets may also help lend relief at nighttime or while lounging on the couch. 
  • Talk with your doctor about your symptoms and discuss adjustments to your pain medications. 

Remember, treating fibromyalgia typically requires an individualized, multifaceted approach. Learn more about general treatments for fibromyalgia.

Takeaway

While research into the relationship between weather and fibromyalgia pain is ongoing, evidence increasingly supports a connection between lower barometric pressure and higher pain scores in fibromyalgia patients.

Keep in mind that everyone with fibromyalgia is different, with many people saying that they don’t experience any weather-related sensitivities at all. Ultimately, understanding your personal triggers can help you better manage your symptoms and improve your day-to-day quality of life.

Melinda

Health Update September 2024
Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward

Health Update September 2024

Looking for the Light25 Comments

Over the past six months, my health has gone haywire, and the past two have been the worst. I’ve been working closely with multiple specialists including keeping them up to date with the ongoing symptoms. None are concerned about my quality of life and I hit a wall this week. I contacted The Mayo Clinic, one of the top hospitals in America, and now have an appointment for next month.

The greatest thing about going to The Mayo is they have a team of specialists working on your case, giving them a bigger picture of what is happening. I’ll be there for at least seven days and they will be full of tests, blood work, and meetings with specialists. Your days are full from when you arrive until they have an answer. It’s exhausting but you get what you came for which will improve your health.

I stayed at The Mayo for a week in 2010 so I have an idea of what I can look forward to. At the time I had been having issues with my heart for two years, I had worked with two cardiologists and had been through multiple catheterizations but no answers. I was experiencing what I now know is Supra Ventricular Tachycardia, it’s just like having a heart attack but you’re not. These events were happening every day and sometimes multiple times. It was so painful and you never knew when they would happen. I had Nitro for when they started but it often didn’t work.

After a week of intensive tests including a catheterization, I had the answers. Luckily nothing major was wrong with my heart, several small things were causing the arrhythmia. I took medication for a short time and have only had issues when my potassium is low.

I am looking forward to the day when my health has improved, my quality of life has improved and I have answers.

Melinda

How to Tell Others About Your Bipolar Disorder
Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Mental Illness · Moving Forward

How to Tell Others About Your Bipolar Disorder

Looking for the Light8 Comments

By

Julia Métraux

Medically Reviewed

by

Allison Young, MD

Published on September 26, 2023

While some people may not struggle to tell friends, family members, or an employer about their bipolar disorder, for others it can feel very nerve-racking. These 7 tips can help.

At age 31, Julie A. Fast — now a bipolar disorder expert and researcher — was diagnosed with the condition. Later on, she was diagnosed with schizoaffective disorder, bipolar type (a psychotic disorder involving symptoms of both schizophrenia and bipolar disorder).

Bipolar disorder wasn’t entirely new to Fast, now 59, when she was diagnosed. Her partner at the time was diagnosed with the condition in 1994, just one year before.

Still, in her social circles, she found that most people did not know or understand her condition. “I’d go to a party, and maybe two or three people would say, ‘I know of bipolar disorder,’” says Fast, who coauthored the book Take Charge of Bipolar Disorder with John Preston, PsyD. 

Because awareness of bipolar disorder and its symptoms is increasing, many people with the condition, like Fast, feel more comfortable sharing their diagnosis with others. “I can deal with whatever happens when I disclose my illness to others,” Fast says. “It will show who can help me and who can’t.” 

But some people with bipolar disorder may still feel hesitant to share their diagnosis, in part because of stigma and fear about how others will respond, experts say.

Why Sharing a Bipolar Disorder Diagnosis Can Feel Challenging

Factors like shame, embarrassment, or stigma — negative and often untrue beliefs society holds about someone or something — make some people with bipolar disorder feel hesitant to talk about their condition, research shows.

Many people with bipolar disorder experience a form of stigma called “public stigma,” which is related to how other people view and act toward people with bipolar disorder, according to research published in February 2022 in the Australian & New Zealand Journal of Psychiatry. Public stigma is linked to more anxiety symptoms, worsened ability to function, and problems at work, per the same research.

Although public stigma can come from anyone around them, many people with bipolar disorder experience it from people close to them — family, friends, or even their healthcare providers, per the same report.

Fear of how others may respond as a result of stigma is another potential barrier. “They may worry that disclosure could negatively affect their relationships with friends, family, or romantic partners,” says Leanne Quigley, PhD, an assistant professor in clinical psychology at Yeshiva University in New York City.

Public stigma and how others view bipolar disorder can lead many people with the condition to feel negatively about themselves, according to the aforementioned report.

“[They] may also experience internalized stigmas where they report low self-esteem, low quality of life, and limited engagement in their communities,” says Adrian Jacques H. Ambrose, MD, MPH, the medical director of the psychiatry faculty practice organization at Columbia University in New York City, who treats people with bipolar disorder. This is what’s known as “self-stigma,” per the aforementioned report.

RELATED: A Therapist Speaks: What Is Bipolar Disorder Stigma, and How Can We End It?

When to Tell Someone About Your Bipolar Disorder Diagnosis

The decision about when to share your diagnosis with someone else is very personal. It can depend on the type of relationship you have with the other person and whether they seem to have some sort of understanding of conditions like bipolar disorder.

When It Comes to Your Significant Other or Someone You’re Dating …

For romantic relationships, Fast recommends sharing a bipolar diagnosis as soon as possible. “I don’t really support the idea of getting in a relationship with somebody unless you have fully discussed the impact of bipolar on the relationship,” Fast says.

That’s important because the symptoms can affect the way someone with bipolar disorder thinks, feels, acts, and communicates with their partner, according to the United Brain Association. For instance, during a manic episode, someone with bipolar disorder may experience intense irritability toward their partner or may have a higher chance of engaging in risky behaviors like unprotected sex or heavy spending, which could lead to tension or mistrust in a relationship, per the United Brain Association. 

If you haven’t talked about your condition with your partner, it can be difficult for them to know what to say or do to help.

When It Comes to New Healthcare Providers …

It’s also crucial to be up-front about your diagnosis with any new healthcare providers you see, Fast Adds. They need to know about your health history and any medications you take. Research shows that certain medications, such as corticosteroids like prednisone, can trigger mania and psychosis in people with bipolar disorder.

That’s why Fast told her doctors before a recent minor surgery that she was not comfortable being prescribed steroids, which are sometimes used to help reduce inflammation. “When they suggest steroids, and so many doctors use steroids, I explain why I can’t use them,” she says, adding that her doctors were receptive to her needs.

Some antidepressants, such as fluoxetine (Prozac),  also trigger mania in people with bipolar disorder.

When It Comes to Your Friends and Family …

When it comes to telling friends and family, it might take you some time to feel comfortable doing so — and that’s okay. Prioritize telling close friends and family members that you interact with frequently and who you feel understand you well — rather than people you rarely interact with, Fast advises.

Before sharing your diagnosis with friends or family, Dr. Ambrose recommends asking yourself the following questions:

  • Do you feel ready to share?
  • Is there anything pressing or urgent happening that makes it important to tell them sooner rather than later, such as the onset of a mood episode?

When It Comes to Your Employer …

When it comes to your work environment, it’s important to weigh the possibility of discrimination, says Ambrose. You could look to see if the company has in recent years tried to reduce mental health stigma, which research suggests could make the workplacemore welcoming for workers with mental health conditions. 

And if you don’t feel comfortable revealing your specific diagnosis, that’s okay. You can still bring a note from your healthcare provider asking for accommodations based on how your mental health condition impacts your functioning, according to the U.S. Equal Employment Opportunity Commission.

7 Tips for Talking About a Bipolar Disorder Diagnosis

If you feel ready to share your diagnosis with someone else, here are seven expert tips to get the conversation started.

1. Prepare Yourself for All Sorts of Reactions

Just as people diagnosed with bipolar disorder may have a range of reactions to their diagnosis, reactions from others can vary, too. “We can allow the other person to ask whatever questions they want, have any type of response that they want,” says Fast.

Although some people may react positively to hearing about your diagnosis, others may react in a negative way. “Remember that your self-worth is not determined by a diagnosis of bipolar disorder or others’ reactions to your disclosure of a diagnosis,” Dr. Quigley says.

2. Talk About How Your Bipolar Symptoms May Affect Others

During a manic episode, some people with bipolar disorder may be more prone to engaging in risky or hurtful behaviors, such as cheating or lying. This can be common for people who are undiagnosed, Fast adds.

Whether you’ve just gotten your bipolar disorder diagnosis or you’ve received treatment for a new mood episode, it could help to reach out to people who may have been harmed by your words and actions during the episode. It could be a message like, “I’d love to talk to you about my diagnosis because I know my behavior impacted you,” says Fast.

But it’s important to recognize that not everyone will want to engage in this conversation, especially if they feel really hurt by actions like cheating or stealing, for instance, Fast adds.

If behavior related to a bipolar diagnosis hasn’t yet come up in your relationship with someone else, the person you’re telling may have questions about how it could affect the relationship in the future. Be prepared to discuss how any episodes could manifest.

3. Have a Summary on Hand

After sharing a bipolar disorder diagnosis, some people may have follow-up questions about your symptoms or, in the case of work, any accommodations you might need. “In certain situations, your loved ones [or employer] may know very little about mental health conditions, so it may be helpful to prepare a short summary about the condition,” Ambrose says.

The summary could be either written or verbal (or both), depending on what you’re most comfortable with.

4. Work With Your Therapist on a Plan to Tell Others

If you feel nervous or worried about sharing your diagnosis with others, your doctor or therapist could help you come up with the best strategy for you for sharing your diagnosis, says Fast. “Share most of your concern and your worries with your healthcare professionals because they’re trained to handle it,” Fast says.

5. Understand Your ADA Rights (and Note That They Vary by State)

While the Americans with Disabilities Act (ADA), which prohibits discrimination against people with disabilities at work and all other areas of life, is a federal law in the United States, some states offer more protections than others when it comes to employment laws related to disability discrimination, says Ambrose.

“Given the complexity of work-related rights, you should learn more about your specific state’s legal statutes,” Ambrose says.

If you’re in an area with less protection, it might be worth talking to a third party, for example your state labor office, about the best approaches for disclosing a bipolar diagnosis at work. State government offices belonging to the U.S. Department of Labor can help you better understand your rights as a worker in the state you live in. The Department of Labor has a directory of state labor offices.

6. Offer Different Information in Different Situations

If you’re only comfortable disclosing the entirety of your diagnosis to some people and not others, that is perfectly fine. “You may choose to discuss certain parts of your experience with bipolar disorder and not others,” Quigley says. “It is okay to maintain boundaries and not share everything.”

7. Give Yourself Grace

It can be difficult to figure out how to tell others about your diagnosis. It’s important to take care of yourself during this time. “It’s even more important to cultivate a sense of empathy and grace for yourself during the process,” Ambrose says.

Julia Métraux

Author

Julia Métraux is a journalist whose work touches on disability, mental health, and chronic illness. She went to the University of California in Berkeley Graduate School of Journalism. Métraux lives with vasculitis, a traumatic brain injury, and hearing loss.

See full bio

————

I know how hard telling others about your mental illness can be, especially family members. Many family members looked at me differently because they were from a different generation that did not believe in mental illnesses. I did not tell friends or my employers because it wasn’t their business. One of my employers fired me from a high-level job because they found out I had a mental illness, yes I could have sued the billion-dollar company but why go down that multi-year road through the rabbit hole. I caution everyone to think hard before telling your employer, it can be held against you and they can find a way to fire you.

Melinda

The Paralypmics Is Coming To An End On the 8th
Celebrate Life · Fun · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Moving Forward

The Paralypmics Is Coming To An End On the 8th

Looking for the Light3 Comments

The Paralympics is a great joy for me to watch, it’s a world stage showcasing people who are disabled performing a sport they have achieved great talent in. The athletes don’t get special treatment, what you see is the pure grit of each athlete competing with another disabled athlete for the top honors. Each of the athletes has endured setbacks in life and on the field. I admire the commitment they have made to the sport and then go on to push themselves to make the Paralympic team. This in itself tells you so much about the people competing in the Paralympics. They are all winners in my book, everyone who participates is a winner and needs to take tremendous pride in returning to their home country.

Paralympics 2024: Know Facts, Figures, Venues, List of Sports - Edudwar

If you would like to participate in the closing ceremony it is happening on Sept. 8, 2024, at  13:30. The opening and closing ceremonies are thrilling to watch.

Melinda

What’s Your Mood Today?
Celebrate Life · Health and Wellbeing · Medical · Mental Health · Self-Care

What’s Your Mood Today?

Looking for the Light22 Comments

 I’m feeling a bit down today, fighting my health issues makes me tired. I want someone to comfort me and tell me it will get better.

I hope this post finds you happy and healthy.

 Melinda

12 Celebrity Quotes That Perfectly Describe Life With Bipolar Disorder
Celebrate Life · Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Mental Illness

12 Celebrity Quotes That Perfectly Describe Life With Bipolar Disorder

Looking for the Light6 Comments

By Tanya Hvilivitzky 

When famous people share their personal battles with bipolar disorder, it serves as a reminder that no one is isolated in this struggle. After all, bipolar disorder is indifferent to wealth, fame, or success.

It’s easy to believe that celebrities — actors, musicians, or comedians — enjoy lives of perfection. However, what is publicly seen represents just a fraction of their actual lives. The truth is, bipolar disorder doesn’t discriminate. It makes no distinction between a person’s age, gender, race, or bank account size.

So, when stars living with bipolar disorder share their own struggles, it signals to others that they are not navigating the complexities of this brain-based disorder alone, reinforcing the message that, together, managing it is within reach.

Here are personal and powerful quotes from 12 such celebrities:

1. Taylor Tomlinson

It took a little while for comedian Taylor Tomlinson to accept her bipolar diagnosis. She explains to E! News her reaction upon learning about her mood disorder. “I was surprised that I felt embarrassed when I first found out. Because I think I’m very open-minded. I have friends who have bipolar. And you never judge your friends. You never felt like that was a big deal. But then when it’s you, you somehow realize you have all this deeper stuff from when you were a kid.”

2. Cameron Esposito

After telling her fans earlier this year of her bipolar diagnosis, Cameron Esposito, standup comic, actor, and writer, took to her Instagram channel on her birthday in October 2023 to reflect on the year: “… you know what? I’m lucky. I’m lucky that I figured it out. I’m lucky that I had a place to go. I’m lucky that I was enough in my faculties that I was extremely persistent with following up after that experience, and getting my meds and finding a psychiatrist. All that s&*t is impossible and so expensive. I have healthcare coverage; I have insurance. I just want to say to anybody who’s had to navigate this [mental health care] system … you are a hero! Look at you! Look at what you’ve been able to do!“

3. Alan Ritchson

Actor Alan Ritchson, star of Prime Video’s Reacher, was diagnosed with bipolar at age 36. In a February 2024 interview with CBC Radio’s “Q” program, Ritchson explains why he’s been sharing his story to help others: “As much as I would like to ignore that I’m a suicide survivor, if I didn’t share what I’ve learned I feel like my life would be meaningless,” he says. “I’ve always been a happy-go-lucky guy, but once you experience the grip [of depression] — the talons it can sink into you — you realize how sinister this thing is and how out of control the biology can really be for somebody in the midst of it.”

4. Carrie Fisher

“In my opinion, living with manic depression takes a tremendous amount of balls. Not unlike a tour of Afghanistan (though the bombs and bullets, in this case, come from the inside). At times, being bipolar can be an all-consuming challenge, requiring a lot of stamina and even more courage, so if you’re living with this illness and functioning at all, it’s something to be proud of, not ashamed of. They should issue medals along with the steady stream of medication.” — Carrie Fisher, Wishful Drinking, 2008

5. Ye (Kanye West)

As a guest in 2019 on David Letterman’s Netflix series, My Next Guest Needs No Introduction, Ye (Kanye West) uses the term “ramping up” to convey the process of entering a hypomanic or manic bipolar mood episode: “When you ramp up, it expresses your personality more. You can become almost adolescent in your expression. … When you don’t take medication every day to keep you at a certain state, you have the potential to ramp up … and even end up in the hospital.”

6. A.J. Mendez

In an interview with bp Magazine, former pro wrestler A.J. Mendez (AJ Lee) says, “I see bipolar disorder as the gift of extraordinary emotions. It makes me bold, brave, loud, and capable of withstanding whatever obstacles the world throws at me. It has made me empathetic. It has given me a lofty imagination, a belief in the impossible, and has made me confident beyond reason. I was 90 pounds and five feet tall and believed I could succeed in the world of giants … because I didn’t have that voice of doubt holding me back.”

7. Richard Dreyfuss

Richard Dreyfuss has starred in blockbusters like Jaws, American Graffiti, Close Encounters of the Third Kind, and The Goodbye Girl (which earned him an Academy Award for Best Actor). Of his bipolar diagnosis, he says, “No matter what you call it, this is an illness no different from, say, diabetes or asthma — and like those conditions, [it] should be neither ignored nor stigmatized. Feeling ashamed would mean surrendering to someone else’s judgment — an ignorant judgment at that.”

8. Linda Hamilton

The Terminator actress Linda Hamilton uses a holistic health plan to help her stability, with a structured and balanced lifestyle, exercise, and medication. “Exercise is an incredible key to feeling well. But for people with mental illness, taking care of the body is not an automatic thing. The mind is in such chaos, it’s hard to come up with a plan. So, to people like us, it’s more important than ever to follow a regimen.”

9. Maurice Benard

Daytime actor Maurice Benard — who plays Michael “Sonny” Corinthos Jr. on General Hospital — talked with bp Magazine on life with bipolar: “I’ve lived a productive life having bipolar. I’ve talked to people who don’t want to talk about [having bipolar] because it’s embarrassing. I’m proud of it because I know it’s made me the actor I am and the person I am. It’s given me strength. If I can go through being in a mental hospital, and that kind of pain, and that kind of fear, I can do anything.”

10. Maria Bamford

In an interview with bp Magazine’s Melody Moezzi, the comedian Maria Bamford talked about being diagnosed: “I was surprised how prejudiced I was against myself. They tell you it’s the brain chemistry also working its magic, but I was really surprised at how resistant I was to going on a mood stabilizer, taking any time off of work, acknowledging that I needed to be hospitalized. I was just so angry. I didn’t want to go on the meds. It wasn’t until it got bad enough to where I was starting to feel unsafe by myself that I reconsidered.”

11. Stephen Fry

In an interview with bp Magazine, Stephen Fry said of creativity, “It is not a coincidence, it can’t be, that so many comedians suffer from depression. As for whether the hypomanic side of bp can be said to help creativity, I hesitate to say yes because of all those out there living with the disorder who are not in creative industries. … But certainly, the energy, self-belief, exuberance, tirelessness, optimism, and, yes, grandiosity that mark out hypomania can really help one achieve much in terms of writing and creation.”

12. Mariah Carey

In 2018, during an interview with People magazine, Maria Carey spoke about the confusing ups and downs of bipolar disorder: “For a long time I thought I had a severe sleep disorder, but it wasn’t normal insomnia. … I was working and working and working. … I was irritable and in constant fear of letting people down. It turns out that I was experiencing a form of mania. Eventually, I would just hit a wall. I guess my depressive episodes were characterized by having very low energy. I would feel so lonely and sad, even guilt that I wasn’t doing what I needed to be doing for my career.”

UPDATED: Originally posted June 19, 2020

Tanya Hvilivitzky

Tanya Hvilivitzky has spent more than 30 years in the communications field — a career that has included stints as an investigative journalist, managing editor for a lifestyle and wellness magazine, corporate communications director, and researcher/writer. She has been with bpHope (and bp Magazine) since 2016, serving in roles such as features editor, interim editor, and, currently, senior editor. She has been devoted to mental health awareness since she was the editor of Schizophrenia Digest in her early days, and now with a particular focus on highlighting the complexities of bipolar disorder through compassionate, service-based journalism. As an award-winning writer/editor, Tanya received the Beyond Borders Media Award for her 2012 investigative exposé about human trafficking for Niagara Magazine. Her work on this critical topic also earned the Media Freedom Award “Honouring Canada’s Heroes” from the Joy Smith Foundation to Stop Human Trafficking.

I dislike what Carrie Fisher had to say. It’s not appropriate to compare an illness to those who fought in Afghanistan and I do not think people with Bipolar Disorder deserve a medal and more medication. My thoughts about her have remained the same, she used her Bipolar Disorder as an excuse for her bad behavior and to make money. My opinion. 

Melinda

Denial in Bipolar Disorder: The Manic Fallacy of Wellness
Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Illness · Moving Forward

Denial in Bipolar Disorder: The Manic Fallacy of Wellness

Looking for the Light1 Comment

By June Rawlston 

Last Updated: 7 Aug 2024

During my first manic episode, I was convinced I’d finally recovered from my chronic depression. But my therapist saw symptoms of bipolar disorder.

I’m a doctor by training, so you’d think I would have guessed I had bipolar disorder, for heaven’s sake. I certainly manifested every symptom of mania in the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5), from boundless energy and soaring spirits to severe insomnia.

I should have known something was up when I treated myself to a $4,000 antique French buffet table. (The credit card company considered shutting down my account, but I convinced them that my finances were under control.)

I subscribed to delusions of grandeur, scouring my home for a spot to exhibit the writing award I was guaranteed to win. My sexual appetite spiked to new heights, too (no complaints from my guy on this point).

Friends and Loved Ones Were Baffled by My Behavior

Certainly, my friends and loved ones noticed a bizarre new me bursting onto the scene. One friend, irritated by my self-absorption, said she felt I had come across “like a bomb exploding in my face.”

My boyfriend raised his voice at me for the first time in our friction-free relationship, because I was passionately scrubbing his bathroom at 3 a.m.

A fellow choir member, flabbergasted at what I took to be my brilliant plans to eradicate mental health conditions in the world, shot me a disbelieving look and said, “I’ve never seen you like this.” I wasn’t sure whether he was worried or jealous.

RELATED: Do You Know These Symptoms of Bipolar Mania?

Delusions of Wellness

To me, it just seemed like I had reached a pinnacle in my life after years of chronic depression. I couldn’t wait to thank my psychiatrist for his contribution to my greatness. I wrote him a card saying I had completed my arduous journey to wellness and would no longer be requiring his services.

Instead of clapping and stomping his feet for me, my doctor became more and more appalled as I tried to convince him of my freedom from the frenzy. I, in turn, became furious at the party pooper for raining on my parade.

It wasn’t until he called my sister and begged her to come watch over me that I began to entertain a sliver of doubt.

My sister, a family physician, hopped on the next plane and flew down to Toronto to babysit me and dispense copious amounts of medication and advice. If anyone can convince me of anything, it’s my sister. (She persuaded me that I was adopted when I was 12 — it took my parents months to undo the damage.)

Bit by bit, her certainty that I was experiencing a psychotic episode superseded my insistence that everything was great.

Before 24 hours had passed, I was loaded up on heavy-duty doses of antipsychotics. I actually slept through the night.

By the end of the week, I had come down to earth.

Lack of Insight and 20/20 Hindsight

Looking back on my current (and carefully managed) stability, I’m still blown away by the depths of my denial. After all, I had been exhibiting a textbook case of mania. Why hadn’t I used my medical judgment to uncover my self-evident diagnosis?

I was so certain that I was just happy, at last, and I was furious at those who wanted to pathologize my well-earned contentment.

My sister reminded me of something I already knew: My lack of insight was not my fault; my delusion of wellness was part of the symptom package of mania.

I shudder to think what might have happened if my mania had continued unchecked. My psychiatrist told me I was hours away from requiring urgent hospitalization. I’m lucky that he and my sister prevailed on me to accept that I was unwell instead of special.

I’m also fortunate that my first manic episode led to a diagnosis of bipolar. With my new drug regimen (including a mood stabilizer) and lifestyle changes (regular running, a balanced diet, and mindfulness meditation), I feel a sense of peace I’ve never experienced before. For the first time in my life, I have faith that I will be okay.

UPDATED: Printed as “On My Mind: Queen of Denial,” Summer 2013

June Rawlston

June Rawlston is a pseudonym for a Toronto physician who is forging a new career as a writer.

————-

When you’re manic you think you are on top of the world, magnified creativity, and know better than others, rarely listen to logic when it comes to your behavior, quite simply you don’t want the high to end. The truth is it always ends and the higher you go the further you fall. When you fall you may find yourself disoriented, or not knowing where you are, It’s extremely frightening.

Recovering from a manic episode depends on how hard you hit the ground and what happened while you were manic. The recovery time could take months possibly even longer. It’s a long climb up. This is why I keep a close look each day to see if my mood is elevated, it can go from joy to sheer madness very quickly. The key is to track your moods, be aware that your mood is escalating and reach out for help if you continue to escalate.

I spent close to 10 years hypo manic or manic before I fell down the rabbit hole. Crawling out was not pleasant and I spent several weeks in a Psychiatric Hospital to recover.

Stay aware and don’t be tempted by the escalated state, it will bite back.

Melinda

Fighting to save our lifeline of Glutathione, B12, and more
Chronic Illness · Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health · Tick Borne Illnesses

Fighting to save our lifeline of Glutathione, B12, and more

Looking for the Light10 Comments

by Crystal A. Frost

AUG 23, 2024

The daily life of a Lyme warrior can be unpredictable and terrifying—whether it’s managing debilitating symptoms or navigating a healthcare system that rarely understands our needs.

So when my doctor told me in June, “Your Lyme treatments could be outlawed soon,” I knew another fight was on the horizon.

This time though, it wasn’t just about my health. It was about standing up for every patient in California who relies on glutathione therapy, NAD+, and methylcobalamin.

The California State Board of Pharmacy (BOP) is trying to take dozens of natural compounds away from us. But they’ve messed with the wrong Lyme patient, and I’m fighting back.

The master antioxidant

For those of us with neurological Lyme disease, treatments like glutathione and NAD+ aren’t just beneficial—they’re our lifeline. Glutathione, the master antioxidant, is depleted by many illnesses including Lyme, which is why replenishing it through infusions is effective for so many.

This compound protects immune cells and helps clear out harmful toxins, reducing oxidative stress. NAD+ supports cellular repair, giving us a fighting chance against relentless fatigue and brain fog. Methylcobalamin, the active form of vitamin B12, is crucial for nerve repair and cognitive function. These treatments are not luxuries. They’re essential.

The BOP’s proposed regulations would severely limit—and, in many cases, end—access to legal Category 1 sterile compounds on the FDA 503A bulks list. If these regulations pass, Lyme patients across California could lose access to treatments that make life bearable. The worst part? The BOP has not provided a single legal, scientific, or safety-based reason why California patients should be treated differently than those in the rest of the United States.

The moment that sparked the fight

When I first heard the news from my doctor, it knocked the wind out of me. I’m no stranger to fighting, but this is different; this is a fight with no explanation. The compounds on Category 1 have an excellent safety track record, which is why they have the green light from the FDA.

In fact, patients like me often turn to these alternative medicines when standard drug therapy fails. Why does California want to supersede the FDA and deprive sick patients of treatments that work? This regulatory board exists to protect us but is instead threatening our access to the very treatments that keep us alive.

Teaming up: the birth of “Stop The BOP”

I’m not alone in this fight. At the June 18 public hearing, I learned that Jacqui Jorgeson, founder of the Volunteer Fire Foundation in Sonoma, is facing a similar battle. Jacqui’s foundation co-administers a detoxification pilot program for firefighters who face severe toxic exposure in the line of duty.

Like many of us with Lyme, California firefighters under major oxidative stress have found incredible relief in nebulized and intravenous glutathione therapy. In fact, the results from Round 2 of the pilot study showed an 85.1% reduction in environmental toxins—a true testament to the effectiveness of glutathione therapy.

When Jacqui and I connected after hearing each other’s testimonies, it was clear we were fighting the same enemy: Board of Pharmacy overreach.

Together, we launched Stop The BOP, a movement to protect patient access to these vital treatments. We started with a petition in July, and it quickly gained traction, reaching 2,000 signatures in the first month.

As of August 22, our petition has over 2,600 signatures, and our movement is publicly backed by organizations like LymeDisease.org, the Center for Lyme Action and the California Naturopathic Doctors Association.

Why this fight is personal

Before falling ill in 2020, I was a recent PhD graduate, composing music and writing articles for the GRAMMYs. I was happily engaged to my now-husband, Bram.

But when Lyme disease took over my body, it sent us off course onto an unexpectedly dark path. My brain inflammation became so severe that I was paralyzed in my left leg and arm, barely able to walk for months. The brain fog was so thick I would forget my own phone number and my friends’ names. I experienced daily anaphylaxis and constant vertigo, and for a while, I thought this was the end.

But through it all, treatments with glutathione therapy, NAD+, and B12 have been my lifeline, allowing me to reclaim pieces of my life.

If these treatments are taken away, what happens to the thousands of patients just like me? What happens if the BOP succeeds in making California the only state where these compounds are inaccessible?

For many of us, losing access to these treatments would mean a return to those darkest days—days when hope felt like a distant memory.

The broader impact: beyond Lyme disease

It’s not just Lyme patients and firefighters who will be affected. Imagine you suffer from ME/CFS and that NAD+ has finally given you the energy required to return to work. Imagine you have pernicious anemia and methylcobalamin therapy has finally restored you to healthy B12 levels. Now imagine that relief being snatched away by a regulatory board that doesn’t seem to understand—or care—about the consequences.

That’s the reality we face. It’s why Jacqui and I are so determined to fight back. It’s why we’re asking the Lyme community to stand with us. This isn’t just about a few compounds—it’s about our right to access the treatments we need to live our lives.

What you can do

We’re not giving up, and we need your help. Here’s how you can join the fight:

Sign and share the petition: If you haven’t already, please add your name to our petition. Every signature counts.

Contact Your Representatives: We’ve made it easy with templates on our website. Your voice can make a difference.

Spread the Word: Share this blog post, tell your friends and family, and help us get the word out. The more people who know about this, the stronger our movement becomes.

Voice your opposition at the 9/12 board meeting: Anyone is welcome to join the September 12 meeting online via webex or in person in Sacramento. Information and access links will be available on stopthebop.com/actnow.

Join the movement: Sign up, learn more, or donate to the cause at stopthebop.com.

Stay Informed: Follow @stop.thebop and @volunteerfirefoundation on Instagram for updates on our progress and ways you can get involved.

The strength to fight

You don’t know how strong you are until being strong is the only choice you have. For those of us with Lyme disease, that strength is something we’ve had to find over and over again. The California Board of Pharmacy might think they can push these regulations through without a fight, but they underestimate us. They underestimate the power of a community that knows what it means to fight for every ounce of health.

Together, we’re going to stop the BOP.

Follow us on Instagram @stop.thebop and @volunteerfirefoundation.

Crystal A. Frost is Southern California leader of Stop The BOP.

————n

This is indicative of what Lyme patients deal with on an ongoing basis. If a doctor can enhance your chances of recovery they don’t need an association board standing in their way. In this case, the add-ons aren’t expensive in the big scheme of things and can make all the difference for patients.

This happens because of the bias against Chronic Lyme Disease. The more doctors who deny that Chronic Lyme exists the government and insurance companies will refuse to pay for treatment. I don’t see this changing shortly because it’s all about money.

Melinda

September Awareness Months And Days
Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Moving Forward

September Awareness Months And Days

Looking for the Light5 Comments

The main days and months you should know about for September are:

National Suicide Prevention Awareness Month September 1
Blood Cancer Awareness Month  September 1
National Food Bank Day 1st Friday
International Literacy Day September 8
R U OK Day September 9
World Suicide Prevention Day September 10
Hispanic Heritage Month September 15
International Day of Peace September 21
International Day of Sign Language September 2

National Public Lands Day                                                                                                 Saturday 4th

Achalasia Awareness Month

Alopecia Awareness Month

Animal Pain Awareness Month

Blood Cancer Awareness Month

Childhood Cancer Awareness Month

Craniofacial Awareness Month

Falls Prevention Month

Gynecologic Cancer Awareness Month

Healthy Aging Month

Hispanic Heritage Month

  

We have so much to educate ourselves on and to advocate for to make a better future. I apologize for the inconsistent graph, that is the way it was copied. 

Melinda

89% Of Blind Riders Are Being Denied A Ride By Lyft And Uber
Communicating · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Trauma

89% Of Blind Riders Are Being Denied A Ride By Lyft And Uber

Looking for the Light21 Comments

I could not believe it when I heard on the national news that 89% of blind riders were being denied a ride by Lift and Uber. This looks like a driver issue with the service dogs and not wanting them in the vehicle. This behavior is against the law not to mention the company’s policies. The riders have a way to report a driver but those interviewed said nothing happened. One woman even recorded a driver refusing her a ride after she had already reported this behavior to Lyft. Rideshare companies are condoning this behavior and are accountable for the driver’s decisions. I’m sure there is a loophole in there that needs closing.

This type of behavior and failure to accommodate the blind is a Class Action lawsuit that is way overdue. I’m shocked no one has sued the companies for breaking the law and doing nothing when its customers report a driver. Don’t get me wrong, I’m not one to say jump on a lawsuit, quite the opposite but this is not a frivolous issue. If the ride-share companies refuse blind riders they need to lose any government contracts they may have and if cities have a choice to allow the rideshare company to do business in the city, they need to reverse the approval.

I know a few people who are blind and life is challenging enough and for their transportation to refuse them a ride is shameful. Apparently, it’s been happening for years but it’s not been in the media which is typical for the media, just feed us the same day after day instead of pressing the important issues.

I feel so strongly about the issue that I created a Change.org petition that I hope you will support by going to https://www.change.org/p/require-rideshare-services-to-accept-blind-riders-with-guide-dogs/share_for_starters?just_created=true and signing.

Copy of Petition

This petition is deeply personal because it strikes at the heart of disability discrimination, a struggle that blind individuals face daily. It’s both shocking and disheartening when a company that provides a critical service like transportation discriminates against individuals with disabilities, specifically those who rely on guide dogs. According to the American Foundation for the Blind, millions of people in the US are experiencing vision loss. And many of them, depend on guide dogs to navigate and live independently.

However, troubling instances have surfaced where these individuals are refused service by rideshare companies simply because of their guide dogs. This is not only inconvenient but also unlawful – the Americans with Disabilities Act (ADA) prohibits discrimination against individuals with disabilities in all areas of public life, and that includes transportation.

Apart from being illegal, such practices are inhumane and show a complete disregard for the rights and dignity of people living with disabilities. Furthermore, it contradicts the spirit of rideshare services which aim to provide convenient and accessible transportation for everyone. All this considered, it’s high time for all rideshare companies to commit to full accommodation for blind riders with guide dogs.

We cannot allow this blatant discrimination to continue. Together, we can change this. Please sign this petition to send a strong message across: Require Rideshare Services to Accept Blind Riders with Guide Dogs.

Share this petition

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Share this petition in person or use the QR code for your own material.

 

 

 

 

 

 

 

My husband told me that once he signed the petition Change.org asked for a donation, a donation is not required. Change.org is a global organization that is free and as such they solicit donations. This is common but you are never required to donate or I would not work with them.

Melinda

When a Loved One Denies Their Bipolar Diagnosis
Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Mental Illness · Moving Forward

When a Loved One Denies Their Bipolar Diagnosis

Looking for the Light8 Comments

By Julie A. Fast 

Medically Reviewed by Allison Young, MD

Last Updated: 21 Aug 2024

Although it’s incredibly frustrating when someone is in denial of having bipolar disorder, it’s important to remember that acceptance cannot be forced.

It can be upsetting, stressful, and downright incomprehensible when someone with a diagnosis of bipolar disorder denies the mental health condition and refuses treatment. You may find yourself watching helplessly as behaviors tied to untreated bipolar lead to family distress, broken relationships, problems at school and work, money woes, and alcohol and drug abuse.

If you try to help someone in denial, you will probably be accused of interfering if you even mention the word “bipolar.” This is confusing, because it’s very easy for you to see what’s wrong, and naturally you want to point out the problem in hopes that the person will then get help. Often, however, your attempt just makes things worse.

RELATED: 8 Essential Things to Know When First Diagnosed With Bipolar Disorder

It hurts when a person in denial shuts you out, but, sadly, it’s common.

What’s even more confusing is that you can have an honest conversation about bipolar when your loved one is stable, reviving your hopes that the person will enter or stick with treatment. Then … boom! Here comes the denial again.

Learning to Accept That Your Loved One Is in Denial About Their Bipolar Diagnosis

It may be cold comfort to learn that it is very typical behavior for people with bipolar disorder to deny they are “sick” and to avoid treatment, even if they have been in the hospital or taken medications for bipolar in the past.

Also, it’s important to remember that people in denial are usually miserable, in a great deal of internal pain, and can’t see a way out. It’s easy to believe they really can’t see what’s going on. But unless denial is a result of a mood swing — such as strong mania or paranoia — the affected individuals usually know what is happening. They respond to your concern with aggression, because they are trying to protect their decision to deny the brain-based disorder.

It hurts when a person in denial shuts you out, but it’s common. The person prefers to be around others who don’t mention bipolar, and will paint you as the “bad guy” because you are the one who is stating the truth.

RELATED: 10 Ways to Support Someone Who Has Bipolar

There is good news, however. I’ve talked with hundreds of people who moved through denialto eventually admitting that bipolar is at the root of their problems and they needed help. Over and over again, I’ve been told how, despite their relentless inner pain and confusion, they refused help and pushed away the people who cared about them.

It’s when someone realizes they no longer want a life controlled by bipolar disorder that they begin to listen to loving advice instead of fighting back.

Steps to Take When a Loved One Is in Denial About Their Bipolar Diagnosis

If your loved one continues to be in denial of their bipolar diagnosis, here are a few things to keep in mind.

  • Find the sweet spot: Are there periods when your loved one is more open to discussion? Oftentimes, people are more receptive during a mild depressive episode. Once you see a pattern in your loved one’s moods, you’ll have a better sense of when to gently start a conversation.
  • Set expectations: If a loved one with bipolar is living with you, you have the right to set expectations for behaviors, such as drug use, drinking, yelling, staying in bed all day, staying out all hours, and yes, refusing treatment. You are always in control of what works best for you. It’s not always about the person with the mental health condition. It will be up to you to decide the consequences — and set and reinforce boundaries — if your expectations aren’t met.
  • Understand the challenges: Always remember that bipolar is a mental health condition. No one chooses to have bipolar disorder. People in denial can be very unpleasant, and it’s easy to walk away from them, but don’t forget they are suffering. It’s okay to address this directly. Go ahead and say you understand that it must be hard to have someone tell you what to do. Say that you can tell they feel misunderstood. People in denial may get angry or refuse to reply, but they have heard you. Many times, when they get better, they will tell you they heard you.
  • Hold onto hope: I’ve known many people who accepted treatment after years of being in denial, often when loved ones learned simple strategies and got them help at the right time. It isn’t easy to hang on until then. Nothing with bipolar disorder is easy! But bipolar is treatable, even for those who currently refuse to admit they are unwell and need help.


UPDATED: Printed as “Fast Talk: The Denial Factor,” Summer 2011

Julie A. Fast

Julie A. Fast is the author of the bestselling mental health books Take Charge of Bipolar Disorder, Loving Someone with Bipolar Disorder: Understanding and Helping Your Partner, Getting It Done When You’re Depressed, OMG, That’s Me! (vol. 2), and The Health Cards Treatment System for Bipolar Disorder. She is a longtime bp Magazine writer and the top blog contributor, with over 5 million blog views. Julie is also a researcher and educator who focuses on bipolar disorder prevention and ways to recognize mood swings from the beginning—before they go too far and take over a person’s life. She works as a parent and partner coach and regularly trains health care professionals, including psychiatric residents, pharmacists, general practitioners, therapists, and social workers, on bipolar disorder and psychotic disorder management. She has a Facebook group for parents, The Stable Table, and for partners, The Stable Bed. Julie is the recipient of the Mental Health America excellence in journalism award and was the original consultant for Claire Danes’s character on the TV show Homeland. Julie had the first bipolar disorder blog and was instrumental in teaching the world about bipolar disorder triggers, the importance of circadian rhythm sleep, and the physical signs of bipolar disorder, such as recognizing mania in the eyes. Julie lives with bipolar disorder, a psychotic disorder, anxiety, and ADD.

Melinda

West Nile Is Now A Global Crisis
Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health · Mental Health

West Nile Is Now A Global Crisis

Looking for the Light2 Comments

There is a global crisis warning about the West Nile Virus and the areas it effects are growing by the day. West Nile is new to many countries and we have to take notice.

What is West Nile?

West Nile virus (WNV) is a single-stranded RNA virus that causes West Nile fever. It is a member of the family Flaviviridae, from the genus Flavivirus, which also contains the Zika virus, dengue virus, and yellow fever virus. The virus is primarily transmitted by mosquitoes, mostly species of Culex. The primary hosts of WNV are birds, so that the virus remains within a “bird–mosquito–bird” transmission cycle.[1] The virus is genetically related to the Japanese encephalitis family of viruses. Humans and horses both exhibit disease symptoms from the virus, and symptoms rarely occur in other animals.

Contrary to popular belief, West Nile virus was not named directly after the Nile River, but rather, after the West Nile district of Uganda where the virus was first isolated in 1937.[2]However, the names are indirectly connected since that district of Uganda is named after the Albert Nile, a tributary of the Nile River in this region. After its original discovery there, it was found in many other parts of the world. Most likely, it spread from the original West Nile district.

What are the symptoms of West Nile?

West Nile virus (WNV) is usually spread by mosquitoes that become infected when they feed on infected birds, which often carry the disease.[53] Rarely the virus is spread through blood transfusions, organ transplants, or from mother to baby during pregnancy, delivery, or breastfeeding,[53] but it otherwise does not spread directly between people.[55] Risks for severe disease include being over 60 years old and having other health problems.[53] Diagnosis is typically based on symptoms and blood tests.[53]

What time of year is West Nile most active?

According to the Center for Disease Control, infection with West Nile Virus is seasonal in temperate zones. Climates that are temperate, such as those in the United States and Europe, see peak season from July to October. Peak season changes depending on geographic region and warmer and humid climates can see longer peak seasons.[58] All ages are equally likely to be infected but there is a higher amount of death and neuroinvasive West Nile Virus in people 60–89 years old.[58] People of older age are more likely to have adverse effects.[citation needed]

There are several modes of transmission, but the most common cause of infection in humans is by being bitten by an infected mosquito. Other modes of transmission include blood transfusion, organ transplantation, breast-feeding, transplacental transmission, and laboratory acquisition. These alternative modes of transmission are extremely rare.[59]

Prevention

Prevention efforts against WNV mainly focus on preventing human contact with and being bitten by infected mosquitoes. This is twofold, first by personal protective actions and second by mosquito-control actions. When a person is in an area that has WNV, it is important to avoid outdoor activity, and if they go outside they should use a mosquito repellent with DEET.[59] A person can also wear clothing that covers more skin, such as long sleeves and pants. Mosquito control can be done at the community level and include surveillance programs and control programs including pesticides and reducing mosquito habitats. This includes draining standing water. Surveillance systems in birds is particularly useful.[60] If dead birds are found in a neighborhood, the event should be reported to local authorities. This may help health departments do surveillance and determine if the birds are infected with West Nile Virus.[61]

This is all important information to know and to know and how to prevent. The outcome of getting the virus is serious even life-threatening.

Melinda

References:

https://en.wikipedia.org/wiki/West_Nile_virus#Humans

 

13 Celebrities Who Embrace Their Bipolar Disorder
Celebrate Life · Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Mental Illness · Moving Forward

13 Celebrities Who Embrace Their Bipolar Disorder

Looking for the Light7 Comments

 

These 13 celebs accept their bipolar and are using their platforms to break the stigma and push for acceptance of brain-based conditions.

By Jade Zora Scibilia
Whether you love them or “love to hate them,” celebrities can make a real difference, especially when they take a stand for something positive. The following stars with bipolar disorder use their fame (and occasional notoriety) to draw our attention to what really matters, start meaningful conversations among loved ones and policymakers, break the silencing effect of social stigma, and enhance both awareness and acceptance of this brain-based disorder. These celebrities — among others — have had a life-affirming, morale-boosting impact. Whether through a “tell-all” interview or memoir, a powerful pop song, or a moving on-screen performance, these stars continue to rally people with bipolar — and their supporters — to power through and find the hope of a new day.
1. Faye DunawayIn the HBO documentary Faye, the iconic Faye Dunaway, now 83, talks about her lifelong battle with mental health, including her bipolar disorder diagnosis.“Emotion is a strength, not a weakness,” she shared with The Independentat the documentary’s premiere in Cannes in May 2024. Dunaway reflects on how her intense emotions fueled her performances but also contributed to her reputation for being difficult on set — earning her the nickname “the dreaded Dunaway” (and “Dread” for short) from Jack Nicholson during Chinatown. In the documentary, Dunaway candidly discusses how she’s worked with doctors and taken medication to manage her mood swings. She acknowledges it’s been difficult, but “it’s something I’ve had to deal with and overcome and understand. It’s part of who I am.” 
2. Alan RitchsonYou may know Alan Ritchson as the star of Prime Video’s Reacher, but did you know he also lives with bipolar disorder? Diagnosed at 36, the now 41-year-old actor has been open about his struggles.“As much as I would like to ignore that I’m a suicide survivor, if I didn’t share what I’ve learned, I feel like my life would be meaningless,” Ritchson told CBC Radio’s “Q” program. “I’ve always been a happy-go-lucky guy, but once you experience the grip [of depression] — the talons it can sink into you — you realize how sinister this thing is and how out of control the biology can really be.”

Click to Read More

Jade Zora Scibilia is a former editor at bpHope, bp Magazine and Esperanza. She was formerly the managing editor at Prometheus Booksand the senior editor of Seventh Street Books and Pyr. She is also the author of two nonfiction children’s books.


I applaud anyone who steps out and embraces their mental illness, there is still a stigma, and those who are public about it are brave and very strong.

Melinda

References:
https://www.bphope.com/bipolar-buzz/celebrities-who-embrace-their-bipolar-disorder/?utm_source=iContact&utm_medium=email&utm_campaign=bphope&utm_content=BUZZ+-+Aug25+-+Celebrities
Unexpected Bruising On My Face
Health and Wellbeing · Medical · Men & Womens Health

Unexpected Bruising On My Face

Looking for the Light23 Comments

I sleep on only one side and over the years I have woken up with redness or a faint bruise right under my eye, it wasn’t concerning at the time. On Thursday I had a doctor’s appointment and my husband went with me. He didn’t say anything at the time but later that evening he asked me to turn my face towards him. He said your face is all bruised on one side, I was shocked and headed for the mirror.

Sure enough, my face was lightly bruised alongside my eye, in the hairline, and all down my cheek close to my nose. He then said my face was bruised earlier that morning and was darker. I was surprised the doctor didn’t say anything.

I sat and thought about my day from the time I woke up and could find no reason for the bruising. I know that bruises don’t fade that quickly so I went to copilot to see what answer it gave. It was what I already knew. Bruising is caused by hitting something and that bruising takes 1-3 days to go away. Still perplexed.

The next morning I woke up with light bruising as well, not as bad as Thursday but still bruised. The only answer I could come up with was my pillow. I had slept on a goosedown pillow for years and several years ago changed to a harder pillow for more neck support. I ordered another goosedown and it’s scheduled to arrive today.

This morning I woke up to redness all around my eye and a small bruise. The bruising started three days ago and makes no sense. I’ll see if the new pillow makes a difference, if not I’m not sure what type of doctor to see.

Have you ever had this happen?

Melinda

Treating Neurologic Lyme Disease with Hyperbaric Oxygen
Chronic Illness · Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health · Tick Borne Illnesses

Treating Neurologic Lyme Disease with Hyperbaric Oxygen

Looking for the Light4 Comments

Important Read

By Fred Diamond

Many listeners of my Love, Hope, Lyme podcast ask me to go deeper on some treatment topics that I mention in my book “Love, Hope, Lyme: What Family Members, Partners, and Friends Who Love a Chronic Lyme Survivor Need to Know.” One such topic is hyperbaric oxygen treatment (HBOT).

On today’s Love, Hope, Lyme podcast, Dr. Mo Elamir of the Aviv Clinics in Florida clarifies what HBOT is and how it may benefit those with persistent Lyme disease.

Breathing new life into Lyme treatment

Amidst the search for effective treatments, HBOT has emerged as a compelling approach, possibly offering new hope for those battling the persistent effects of chronic Lyme disease.

HBOT involves breathing pure oxygen in a pressurized environment. This method significantly increases the amount of oxygen in the blood, facilitating the body’s natural healing processes.

Dr. Elamir, a leading physician at Aviv Clinics, explains the transformative impact of HBOT on Lyme disease patients: “By increasing the oxygen levels in the body under pressure, HBOT can break through the biofilm that protects Lyme bacteria, which are often anaerobic and thrive in low-oxygen environments. This process can destroy the bacteria and lead to significant improvements in neurological function.”

The specific HBOT protocol used at Aviv Clinics involves fluctuating oxygen levels, a technique designed to trigger the body into a state of healing. This healing process includes the growth of new stem cells and blood vessels, improved mitochondrial function, and the repair of damaged brain tissue.

“Our approach is highly individualized, focusing on each patient’s unique needs and the specific ways Lyme has affected their neurological health,” says Dr. Elamir.

How Lyme impacts the brain

Lyme disease affects an estimated 60 million people worldwide in its chronic stage. The disease can invade various parts of the body, including the brain, where it causes a range of neurological symptoms.

These symptoms can be particularly challenging to diagnose and treat, often leaving patients in a state of cognitive fog, battling memory loss, and struggling with anxiety and depression.

Dr. Elamir provides critical insights into how Lyme disease can affect the brain. “The bacteria that cause Lyme disease, Borrelia burgdorferi, are spirochetes that can invade the brain, leading to symptoms such as brain fog, memory problems, anxiety, depression, and even issues with movement, coordination, and balance,” he explains.

“These symptoms can vary greatly from person to person, depending on how the disease affects their nervous system.”

One of the most challenging aspects of chronic Lyme disease is that its neurological effects are often dismissed or misdiagnosed.

“Standard tests like MRIs and nerve conduction studies may not reveal the subtle dysfunctions caused by Lyme,” Dr. Elamir points out. “As a result, many patients are told that their symptoms are ‘all in their head,’ leading to frustration and a sense of isolation.”

Stress: a catalyst for symptom reactivation

Stress plays a significant role in the reactivation of Lyme symptoms. Dr. Elamir explains that various stressors—whether physical, emotional, or even as minor as a common cold—can trigger the dormant spirochetes in the brain to become active again.

“Stress can cause these bacteria, which might have been lying dormant in the brain, to reemerge, leading to a resurgence of neurological symptoms,” he notes. This makes stress management a critical component of care for Lyme survivors.

The spirochetes’ ability to remain dormant and reemerge under stress is one of the reasons why Lyme disease can be so difficult to treat. Even after successful treatment with antibiotics, the bacteria can remain hidden in the body, waiting for an opportunity to resurface.

Comprehensive assessment and tailored treatment

At Aviv Clinics, treatment begins with a comprehensive assessment that spans three to five days. This in-depth evaluation includes structural and functional imaging of the brain, neurocognitive testing, and a thorough medical evaluation. One of the key tools used in this assessment is SPECT (Single Photon Emission Computed Tomography) scanning.

“SPECT scans allow us to see the metabolic function or dysfunction within the brain,” Dr. Elamir explains. “This is crucial because standard MRIs primarily show the structure of the brain, but SPECT scans give us a clearer picture of how Lyme disease has affected the patient’s neurological health.”

Based on the assessment, the clinic develops a personalized treatment plan that includes HBOT as a cornerstone therapy. But HBOT is just one component of a broader treatment protocol that also includes neurocognitive training, physical therapy, vestibular therapy (for balance issues), and psychotherapy.

Healing the mind alongside the body

Psychotherapy plays a crucial role in the recovery process for many Lyme survivors. As the brain begins to heal, patients may experience a resurfacing of traumatic memories or new psychological challenges. The clinic’s psychotherapists work closely with patients to help them navigate these changes and provide them with the tools they need to cope.

Cognitive Behavioral Therapy (CBT) is one of the most common forms of psychotherapy used at Aviv Clinics.

“CBT helps patients understand their symptoms, process their emotions, and develop strategies for managing anxiety, depression, and other psychological challenges,” says Dr. Elamir. Group therapy sessions are also offered, allowing patients to connect with others who are going through similar experiences.

The role of diet in neurological health

Diet is another critical aspect of treatment at Aviv Clinics. Dr. Elamir emphasizes the importance of following a diet that supports neurological health.

“One of the most effective diets for this purpose is the ketogenic diet, which has shown significant benefits for people with neurological conditions,” he says.

Originally developed for children with epilepsy, the ketogenic diet involves consuming high-fat, low-carbohydrate foods that induce a state of ketosis, where the body burns fat for fuel instead of carbohydrates. This can lead to improvements in brain function and a reduction in neurological symptoms.

Intermittent fasting is another dietary approach that can be beneficial for Lyme survivors.

“Intermittent fasting has been shown to improve metabolic processes and reduce inflammation, which can support the healing process in Lyme disease,” notes Dr. Elamir. This involves eating all meals within a specific window of time each day, such as an eight-hour period, and fasting for the remaining 16 hours.

Dr. Elamir also advises patients to reduce their intake of processed sugars, which can exacerbate inflammation and contribute to chronic health issues. “Minimizing sugar intake is essential in managing Lyme disease because it is characterized by chronic inflammation,” he explains.

Addressing co-infections

Co-infections are a common complication of Lyme disease. These are other infections transmitted by the same tick that carries Lyme disease, such as Bartonella and Babesia. These co-infections can cause their own set of symptoms and make the treatment of Lyme disease more complex.

“HBOT can also be effective in treating these co-infections,” says Dr. Elamir. “The increased oxygen levels can help destroy the bacteria responsible for these infections, while the overall treatment protocol supports the repair of any damage caused by the body’s immune response to the infection.”

Click here to listen to all episodes of the Love, Hope, Lyme Podcast or on YouTube.

Learn more about the Aviv Clinics here.

Fred Diamond is based in Fairfax, Virginia and can be contacted via Facebook. His popular book, “Love, Hope, Lyme: What Family Members, Partners, and Friends Who Love a Chronic Lyme Survivor Need to Know” is available on Amazon. The e-version of the book is always free to Lyme survivors. PM Fred on Facebook for your copy.

Melinda

What You Need to Know About Massage Therapy for Fibromyalgia
Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Health

What You Need to Know About Massage Therapy for Fibromyalgia

Looking for the Light7 Comments

Medically reviewed by Gregory Minnis, DPT, Physical Therapy — Written by Traci Pedersen on May 26, 2023

Massage therapy can reduce pain and improve overall well-being in people with fibromyalgia.

Living with fibromyalgia can be challenging, as the condition is characterized by chronic pain, fatigue, and sleep disturbances. 

While medications can be helpful for managing some symptoms, they don’t work for everyone. Many individuals turn to complementary treatments, such as massage therapy, for relief. 

Massage therapy has been shown to manage pain, improve sleep, and reduce anxiety and depression.

What kind of massage is best for fibromyalgia?

Massage therapy involves the manipulation of soft tissues such as muscles, tendons, and ligaments to promote relaxation and relieve tension.

Here are some types of massage that may be beneficial for people with fibromyalgia:

  • Swedish massage: Swedish massage is a gentle form of massage that uses long strokes, kneading, and circular movements on the topmost layers of muscles. It’s effective for reducing muscle tension and promoting relaxation.
  • Myofascial release: Myofascial release targets the connective tissue (fascia) surrounding the muscles. A review of six studies found that myofascial release (both therapist- and self-administered) significantly improved pain, quality of sleep, and quality of life right after treatment. It also had a moderate effect 6 months post-treatment.
  • Trigger point therapy: This technique involves applying pressure to specific points on the body that are believed to be sources of pain. It uses various techniques such as compression, stretching, and massage to alleviate pain and discomfort. 
  • Shiatsu: Shiatsu is a form of Japanese massage that involves applying pressure to specific points on the body to relieve tension and promote relaxation. Shiatsu is believed to trigger the release of endorphins, which are the body’s natural pain relievers.
  • Thai massage: Thai massage combines acupressure, stretching, and compression techniques to promote relaxation, improve flexibility, and reduce anxiety. 
  • Connective tissue massage: This type of massage focuses on manipulating the fascia that surrounds muscles and bones. It’s often used as part of manual therapy (a variety of hands-on techniques) used by physical therapists, chiropractors, and massage therapists to help reduce pain and improve mobility.

Is massage therapy effective for fibromyalgia?

ResearchTrusted Source suggests that massage offers several positive effects on various aspects of fibromyalgia, including reducing pain, anxiety, depression, and sleep disturbances. These benefits are likely due to a combination of physical and mental mechanisms. 

For instance, physical pressure and manipulation during massage may help reduce muscle tension and increase blood flow, which can help alleviate pain and improve physical function. 

At the same time, the relaxation and stress-reducing effects of massage can have positive effects on mental well-being, including reducing anxiety and depression and improving sleep quality. 

The overall result is a complex interaction between physical and mental factors that can improve overall health and well-being for individuals with fibromyalgia.

One 2020 studyTrusted Source found that manual therapy with moderate pressure on the posterior cervical muscles (a group of muscles located at the back of the neck) in people with fibromyalgia helped reduce pain, muscle fatigue, and anxiety. Further research is needed in a larger population.

What are the benefits of massage for fibromyalgia?

Massage therapy can provide several benefits for people with fibromyalgia, including:

  • pain relief
  • improved sleep
  • reduced stress and anxiety
  • increased range of motion
  • improved mood

How does massage therapy for fibromyalgia work?

Massage therapy for fibromyalgia is believed to work in several ways. First, it releases tension in muscles and trigger points, which can help reduce pain and stiffness.

Additionally, massage therapy may also release endorphins and increase levels of the neurotransmitters serotonin and dopamine in the body, which can help regulate mood and improve sleep.

Can massage make fibromyalgia worse?

In some cases, massage may temporarily worsen fibromyalgia symptoms. This can occur if your massage therapist applies too much pressure or uses techniques that are too aggressive for your condition. 

However, it’s important to note that 75%Trusted Source of people with fibromyalgia seek massage therapy, which suggests that it’s quite helpful. So, even though massage can be fairly painful at times, many people with fibromyalgia continue to use it for its long-term benefits.

Will insurance cover massage therapy for fibromyalgia?

Insurance coverage depends on your insurance policy and the specific treatment plan prescribed by a healthcare professional. Some insurance plans may cover a certain number of massage therapy sessions as part of a treatment plan, while others may not cover it at all. 

It’s best to check with your insurance provider or healthcare professional to determine coverage options. Additionally, some massage therapists may offer a sliding scale fee or accept insurance directly, so it’s worth exploring different options.

Bottom line

Massage therapy may be an effective option for reducing pain, stiffness, and fatigue for people with fibromyalgia. It may also improve mood, sleep, and overall quality of life. 

Several types of massage may help with fibromyalgia, including myofascial release, Swedish massage, and shiatsu.

If you’re interested in massage, it’s important to look for a licensed massage therapist in your area who’s trained and experienced in treating fibromyalgia. You can search online or ask for recommendations from a healthcare professional or friends.

Melinda

Fire
Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

Fire

Looking for the Light9 Comments

We’re in the dog days of summer in Texas, yesterday was one degree below the record at 107 degrees, and it’s oppressive outside after 7:30 am. Due to my ongoing challenges with Anemia, I’m always freezing. At 4:30 am this morning I’m wearing a sweater buttoned up all the way, long pants, wool gloves, covered in a wool blanket, and yet the fireplace is needed to stop me from shacking. At least the fireplace in my office is relaxing.

Melinda

Biologists map the DNA of 47 strains of Lyme disease
Chronic Illness · Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health · Tick Borne Illnesses

Biologists map the DNA of 47 strains of Lyme disease

Looking for the Light10 Comments

Important Read

By City University of New York

A team led by CUNY Graduate Center biologists has produced a genetic analysis of Lyme disease bacteria that may pave the way for improved diagnosis, treatment, and prevention of the tick-borne ailment.

Weigang Qiu, a professor of biology at the CUNY Graduate Center and Hunter College, and an international team mapped the complete genetic makeup of 47 strains of Lyme disease-related bacteria from around the world. This created a powerful tool for identifying the bacterial strains that infect patients.

More accurate tests and treatments?

Researchers said this could enable more accurate diagnostic tests and treatments tailored to the bacteria causing each patient’s illness.

“By understanding how these bacteria evolve and exchange genetic material, we’re better equipped to monitor their spread and respond to their ability to cause disease in humans,” said Qiu, the corresponding author of the study.

The study was published in mBio, the flagship journal of the American Society for Microbiology.

Researchers said the genetic information uncovered in the study may help scientists develop more effective vaccines against Lyme disease.

Lyme disease is the most common tick-borne illness in North America and Europe, affecting hundreds of thousands of people a year. The disease arises from bacteria belonging to the Borrelia burgdorferi sensu lato group, which infect people through the bite of infected ticks. Symptoms can include fever, headache, fatigue, and a characteristic skin rash. If left untreated, the infection can spread to joints, the heart, and the nervous system, causing more severe complications.

Case numbers are increasing steadily, with 476,000 new cases each year in the United States, and may grow faster with climate change, the authors of the study said.

The research team sequenced the complete genomes of Lyme disease bacteria representing all 23 known species in the group. Most hadn’t been sequenced before the effort. The National Institutes of Health-funded project included many bacteria strains most associated with human infections and species not known to cause disease in humans.

Evolutionary history of Lyme bacteria

By comparing these genomes, the researchers reconstructed the evolutionary history of Lyme disease bacteria, tracing the origins back millions of years. They discovered the bacteria likely originated before the breakup of the ancient supercontinent Pangea, explaining the current worldwide distribution.

The study also disclosed how these bacteria exchange genetic material in and between species. This process, known as recombination, allows the bacteria to rapidly evolve and adapt to new environments. The researchers identified specific hot spots in the bacterial genomes where this genetic exchange occurs most frequently, often involving genes that help the bacteria interact with their tick vectors and animal hosts.

To facilitate ongoing research, the team has developed web-based software tools (BorreliaBase.org) that allow scientists to compare Borrelia genomes and identify determinants of human pathogenicity.

Looking ahead, the researchers said they plan to expand their analysis to include more strains of Lyme disease bacteria, especially from understudied regions. They also aim to investigate the functions of genes unique to disease-causing strains, which could uncover new targets for therapeutic interventions.

As Lyme disease expands its geographic range because of climate change, the research provides valuable tools and insights for combating this rising public health threat.

The study is supported by grants from NIH and an award from the Steven and Alexandra Cohen Foundation.

Click here to read the study.

Melinda

Understanding Finger Pain
Celebrate Life · Health and Wellbeing · Medical · Men & Womens Health

Understanding Finger Pain

Looking for the Light5 Comments


Medically reviewed by Angelica Balingit, MD — Written by April Kahn — Updated on July 15, 2024

Finger pain is a common condition. It’s usually caused by a hand injury such as a broken finger, a cut, or a broken fingernail. It may also indicate an underlying medical conditions, such as osteoarthritis, rheumatoid arthritis, and carpal tunnel syndrome.

Finger pain is a throbbing, cramplike, or achy pain that’s felt in any of your fingers, including your thumb. It often results from an accident or a medical condition. 

In most cases, finger pain isn’t serious and will go away on its own. However, unexplained finger pain can be a sign of a more serious medical condition. 

Be sure to visit your doctor if you experience ongoing or unexplained pain in your fingers.

Hand injuries

The most common cause of finger pain is a hand injury. Injuries to the finger can cause an open cut, a bruised or fractured bone, or muscle and tissue damage.

Common injuries that result in finger pain are:

Medical conditions

Medical conditions that affect the nerves, muscles, or bones can also cause finger pain. 

For example, osteoarthritis (OA) causes the breakdown of cartilage. This breakdown causes bones to rub together and triggers pain and stiffness. In the hands, OA can affect the joints at the base of the thumb, in the middle of the finger, and near the nail bed. 

Other conditions that can cause finger pain include:

A compressed or pinched nerve in the arm, wrist, or hand can also contribute to finger or thumb pain.

Identifying types of finger pain

Finger pain may feel dull and achy, or it may be sharp and cramplike. The pain may start suddenly and then go away.

Pain accompanied by swelling

If you have a broken finger, it’ll usually be swollen, purple or blue in color, and extremely painful. In some cases, the bone might be physically separated and visible through the skin. Infection can also cause pain with swelling. It may be accompanied by redness, warmth, or skin changes.

Throbbing pain or pain when moving

Carpal tunnel syndrome and other medical conditions that affect the nerves and muscles in your arm and hand can cause:

  • throbbing pain in the hand and fingers
  • pain when moving the affected fingers or when moving your wrist
  • difficulty typing or writing
  • hand tremors

Sharp shooting pain

A finger dislocation occurs when the bones of your finger or thumb dislocate from their joints. In some cases, the dislocation is visible. 

You may also experience throbbing pain or a sharp shooting pain.

Pain at the site of injury

A cut on your finger may cause pain at the site of the injury. Depending on how deep the cut is, you may also feel pain that spreads or radiates to surrounding areas of your hand.

Pain accompanied by lumps

If you have a growth on your hand, such as a boil or nodule, you may experience the following symptoms along with your finger pain:

Diagnosing finger pain

If you have a cut or growth on your finger, your doctor may be able to diagnose the condition based on a physical examination alone. If you have pain when using your fingers and there’s no obvious cause, more information will be needed. 

Your doctor will ask questions about your medical history, medications you take, and your occupation. Using this information, your doctor can decide which tests are necessary for a proper diagnosis.

Common tests for diagnosing finger pain include blood tests and imaging tests, such as X-rays. 

An X-ray can show any fractures and abnormal growths within the finger. If an X-ray isn’t enough to determine a diagnosis, your doctor may order additional imaging tests or a nerve study. A nerve study looks for nerve damage or nerve dysfunction. 

Treating finger pain

Finger pain caused by cuts, scrapes, or burns will often heal without treatment. You simply need to give the area time to heal. You can take over-the-counter pain medications to help ease your discomfort.

Melinda

 

World Cancer Support Month
Celebrate Life · Chronic Illness · Communicating · Health and Wellbeing · Medical · Men & Womens Health

World Cancer Support Month

Looking for the Light2 Comments

I think we can all get behind World Cancer Support Month. Most of us have been affected by Cancer whether it be ourselves or someone close to us and we understand the support that is needed. I was traumatized when I was diagnosed with Cancer at 28 years old, it changed the trajectory of my life. I was one of the lucky ones who didn’t need chemotherapy or radiation. The cancer was removed during surgery, I was very lucky. My husband has two types of cancer that is slow growing but it’s no less worrisome.

World Cancer Support Month, observed annually in August, stands as a beacon of solidarity and hope for those affected by cancer across the globe. This dedicated month serves as a reminder of the immense strength, resilience, and compassion that unite individuals, families, and communities in the face of this challenging disease.

Cancer, an intricate ailment, arises from the uncontrolled growth of abnormal cells in the body. These cells can develop into tumors, affecting nearby tissues and, in some cases, spreading to other parts of the body. With over 100 types of cancer, each characterized by distinct behaviors and treatment requirements, it’s a complex adversary that demands comprehensive understanding and dedicated research.

World Cancer Support Month takes a multifaceted approach to addressing this issue. It not only emphasizes the importance of providing medical treatment but also highlights the need for emotional and psychological support for those dealing with cancer. The emotional toll of the disease on patients, families, and caregivers cannot be understated. By fostering an environment of open dialogue, the stigma surrounding cancer can be dismantled, encouraging more people to seek help and resources.

Don’t forget those around you with Cancer and do something thoughtful for them. Sitting and talking is a great start and helping run a few errands or cooking a meal is extra special.

Melinda
Reference:
Are Generic Medications as Effective as Brand Names for Bipolar Disorder?
Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Mental Illness

Are Generic Medications as Effective as Brand Names for Bipolar Disorder?

Looking for the Light11 Comments

By Julie A. Fast 

Medically Reviewed by Allison Young, MD

Last Updated: 31 Jul 2024

Here’s what you need to know about using generic medications for bipolar disorder, how they compare to brand names, and some useful tips for managing medication changes.

If you or your loved one has been switched to a generic medication for bipolar disorder or are considering making the change yourself, it’s natural to feel unsure. You might wonder whether these more affordable options can truly match the brand names you’ve relied on — especially with all the mixed messages out there. I’ve been through this myself when my pharmacy replaced my Lamictal with generic lamotrigine, and I understand the anxiety and disappointment that can come with such unexpected changes. Let’s dive into the details of brand names and generics.

Unraveling the Generic vs. Brand Mystery

In 2008, I did some heavy research on the topic of brand name versus generic medications when my brand name Lamictal medication was switched to generic lamotrigine. It was very obvious within the first few weeks that the medications were not the same.

I naturally asked my pharmacist and colleagues, “Why does it feel like the generic medication I just tried is not working as well as the brand name medication?” Their responses varied widely, and no one really had a clear answer. I was told, “The pills should be the same.”

As a person who has bipolar disorder and a psychotic disorder, I could physically tell that this newly approved generic (lamotrigine) was not as effective as the brand name I had been on for more than a year. This was in 2008 when GlaxoSmithKline’s Lamictal lost its patent, and the generic drug (lamotrigine) became available.

I knew there was an answer, so I started digging. I had many resources at my fingertips. I was a regular presenter at a well-known pharmacy school and could also talk to my psychopharmacology expert and coauthor, John Preston, PsyD. I even had contact with sales reps for GlaxoSmithKline.

But despite all these resources, I received different answers.

I eventually found an answer that everyone agreed with, and I share it with you now as a change to generic medications affects so many of us who live with or care about someone with a brain illness.

I’ve since tested this information with many of my clients whose loved ones faced a change from a brand name to a generic medication and have found the following to be a safe approach to the topic.

What’s the Main Difference Between Brand Name and Generic Medications?

Here is the short answer: Medications have two components — active ingredients and the vehicle used to get these ingredients into your body. The active ingredients are the original chemical compounds that make the drug effective. The vehicle is added to deliver the active ingredients into your system and can be in the form of a pill, cream, or shot. When you take a brand name medication, both the active ingredient and the vehicle are consistent with each prescription. For generics, the active ingredients must be the same worldwide, but there are no regulations for the vehicle. This is where there can be problems.

The main difference between generic and brand-name medications is how the active ingredients are delivered into the body using a vehicle.

Active Ingredients Are the Same in Brand Name and Generic Drugs

  • The term active ingredients refers to the original chemical compounds that make the drug effective.
  • According to the U.S. Food and Drug Administration (FDA), the active ingredients in a generic medication must be the same as those in the brand-name equivalent.
  • These active ingredients are proprietary in the United States for up to 20 years under a patent.
  • When the patent expires, the drug’s active ingredients recipe becomes available for use in generic medications.

The Vehicle Can Differ Widely Between Brand Name and Generic Drugs

  • The vehicle delivers the active ingredients into the human body.
  • The vehicle includes added ingredients that are combined with the brand name active ingredients to create a usable pill, capsule, shot, cream, or suppository.
  • Also known as carrier systems, vehicles play a crucial role but are not regulated as strictly as the active ingredients.
  • This difference in regulation can lead to variations in how generic medications perform compared to their brand name counterparts.

Strategies to Manage a Change to Generics

Here are some practical tips to help you or your loved one adjust to a new generic or determine if you need a medication adjustment from your prescriber:

  • Chart the reactions to the brand name versus the generic medication. Always carefully chart new medications, especially any change from a brand name to a generic. If you or a loved one isn’t doing well on a generic that is the same dose as the brand name, use the information in this article to get the help you need.
  • Give generics time. It may be that the medication needs more time to get into the system.
  • Use a different generic manufacturer. The pharmacist can help you find the country of origin and choose a different producer of the same generic.
  • Talk with the prescriber. If there is still a consistent problem with the generic, petition the insurance company or disability service and explain the situation in order to return to the brand name or try a different medication. After a year of the generics being on the market, you can try the generics again.

Both of this author’s books, Take Charge of Bipolar Disorder and Loving Someone With Bipolar Disorder, have medication chapters that offer more information on how to create a management plan so that lower doses or even a different medication can be used.

Figuring out bipolar medications takes time and requires a lot of support. Still, ultimately, the goal is to manage as many symptoms as possible using behavior and lifestyle changes so that medications can be taken at lower and more sustainable doses.

For now, start by charting the dosage and source of medication, and if this changes in any way, carefully note any changes in symptoms. It’s much easier for a caregiver to notice changes than the person who is ill, especially if a generic isn’t working, as well as a brand name for mania or psychosis. You can then use your observations to help a loved one get the medication support they need.

Overall, generics are far more economical than brand name medications, and if this means they can offer more access to those who need them, generics are a positive in our bipolar world.

By understanding the full scope of how medications are created and regulated, we empower ourselves to make informed decisions that enhance our health and well-being.

Editorial Sources and Fact-Checking

BRAND NAME MEDICATION, GENERIC MEDICATION, MEDICATION

ABOUT THE AUTHOR

Julie A. Fast

Julie A. Fast is the author of the bestselling mental health books Take Charge of Bipolar Disorder, Loving Someone with Bipolar Disorder: Understanding and Helping Your Partner, Getting It Done When You’re Depressed, OMG, That’s Me! (vol. 2), and The Health Cards Treatment System for Bipolar Disorder. She is a longtime bp Magazine writer and the top blog contributor, with over 5 million blog views. Julie is also a researcher and educator who focuses on bipolar disorder prevention and ways to recognize mood swings from the beginning—before they go too far and take over a person’s life. She works as a parent and partner coach and regularly trains health care professionals, including psychiatric residents, pharmacists, general practitioners, therapists, and social workers, on bipolar disorder and psychotic disorder management. She has a Facebook group for parents, The Stable Table, and for partners, The Stable Bed. Julie is the recipient of the Mental Health America excellence in journalism award and was the original consultant for Claire Danes’s character on the TV show Homeland. Julie had the first bipolar disorder blog and was instrumental in teaching the world about bipolar disorder triggers, the importance of circadian rhythm sleep, and the physical signs of bipolar disorder, such as recognizing mania in the eyes. Julie lives with bipolar disorder, a psychotic disorder, anxiety, and ADD.

It’s so refreshing to hear the affirmation of what I and so many others go through. I had an issue in the 90’s with Wellbutrin 300. The main manufacturer of the generic version did not complete the studies correctly. They also made a 150mg tablet and when it came to testing the 300mg they only double the 150mg study and did not actually study it. The calculation was wrong and those who took the medication suffered for years before they admitted what they did. The manufacturer and the FDA failed because the FDA is required to study the results of all tests to make sure the higher doses are as effective as they say they are. The manufacturer was no longer able to sell their drugs in The United States and banned from future sales. The situation is different and only applied to one manufacturer but it’s still important for everyone who takes generics to understand how they work differently, make informed decisions, and log how the medication is working or not when you start a new generic after taking the brand name.

Melinda

 

Celebrate Life · Communicating · Family · Health and Wellbeing · Infectious Diease · Internet Good/Bad · Medical · Men & Womens Health

Things I’ve Learned In 61 Years Part Three

Looking for the Light4 Comments

President Trump knew about COVID-19 in January 2020 but did not tell the public until March of that year. I heard the words myself during a phone interview with highly respected journalist Bob Woodward. Bob asked President Trump about the virus and he admitted it was deadly yet in public he said it was no worse the the seasonal flu and would go away quickly.

The most complete overview of the conversation with Bob Woodward and President Trump.

https://www.pbs.org/newshour/show/audio-recordings-prove-trump-lied-about-coronavirus-danger

Here are a few articles on the subject by respected organizations

https://www.bbc.com/news/world-us-canada-54094559

https://www.nbcnews.com/politics/congress/trump-white-house-made-deliberate-efforts-undermine-covid-response-report-n1286211

During the months that President Trump refused to listen to his top national advisors, the government was not ramping up its national supplies which is why hospitals found themselves without masks, proper protective gear, enough ventilators, and enough staff. I remember seeing hospitals overrun with patients and having to make the hard choice of who would get treatment or continue to get life support. This is not a weight that any individual employee needs to make, several committed suicide and washed out of their field and many caught COVID-19 themselves.

For conspiracy theorists and anti-vaxxers, you are misinformed and misguided, and no doubt you live lost in the same state of mind in the other areas of your life. People need to look at factual information and make up their own minds, conspiracy therorist are being controlled by others. That makes you a follower.

The total number of deaths from COVID-19 in the United States to date

We at USAFacts have endeavored to provide comprehensive, real-time pandemic data from all 50 states. However, the growing prevalence of at-home testing and the potential for individuals to contract the virus multiple times have skewed the government data we receive. These developments, plus the end of the public health emergency — and the required data reporting that came with it — have made it difficult for us to present a clear and reliable picture of COVID-19 in America.

We are committed to presenting thorough, accurate data, but the fact is that collecting that data on COVID-19 data is a significantly more challenging that it used to be, if the data is even out there at all. Therefore, we will no longer update the data on this dashboard. We appreciate your understanding and encourage you to remain vigilant in observing health protocols and guidelines. For more information about broader health outcomes, visit US Health Statistic and Data trends

  Total Reported  
Cases 99,596,741  
Deaths 1,104,000  

STATE-BY-STATE DATA (TOTALS)

State 7-day avg. cases 7-day avg. deaths Cases Deaths 7-day avg. hospitalizations 7-day avg. hospitalizations per 100k
Alabama 0 0 1,659,936 21,138 30 0.6
Alaska 0 0 287,319 1,457 4 0.6
Arizona 0 0 2,486,671 29,852 152 2
Arkansas 0 0 977,662 13,062 30 1
California 128 0 11,300,486 102,356 377 1
Colorado 0 0 1,769,981 14,522 92 1
Connecticut 0 0 982,973 11,034 20 0.6
Delaware 13 0 334,466 3,440 83 8
District of Columbia 0 0 169,149 1,392 5 0.7
Florida 0 0 7,627,999 89,075 246 1
Georgia 0 0 2,343,807 42,351 129 1
Hawaii 96 0 393,757 1,955 27 2
Idaho 0 2 526,118 5,513 17 0.9
Illinois 0 0 3,706,263 39,381 189 1
Indiana 0 0 2,033,879 25,959 34 0.5
Iowa 0 0 892,628 10,538 24 0.8
Kansas 0 0 946,564 10,229 35 1
Kentucky 0 0 1,713,220 18,094 45 1
Louisiana 0 0 1,459,308 18,136 43 0.9
Maine 18 1 324,378 3,085 25 1
Maryland 0 0 1,270,844 15,578 110 1
Massachusetts 268 0 2,048,722 21,035 52 0.8
Michigan 157 3 3,119,532 43,191 67 0.7
Minnesota 0 0 1,552,840 12,806 45 0.8
Mississippi 0 0 1,000,415 13,474 14 0.5
Missouri 0 0 1,592,300 20,776 189 3
Montana 0 0 333,758 3,712 17 1
Nebraska 0 0 563,028 4,827 20 1
Nevada 74 0 892,252 12,084 26 0.8
New Hampshire 0 0 375,618 2,972 19 1
New Jersey 0 0 2,995,906 35,774 115 1
New Mexico 0 0 681,525 9,236 19 0.9
New York 429 -37 6,706,390 77,423 177 0.9
North Carolina 0 0 3,501,415 29,059 258 2
North Dakota 13 0 292,065 2,232 5 0.7
Ohio 0 0 3,449,990 42,299 108 0.9
Oklahoma 0 0 1,305,761 16,157 73 1
Oregon 0 0 910,700 8,726 46 1
Pennsylvania 0 2 3,565,278 51,344 264 2
Rhode Island 0 0 442,671 4,148 3 0.3
South Carolina 0 0 1,481,646 17,869 78 1
South Dakota 0 0 283,342 3,245 11 1
Tennessee 0 0 2,364,399 28,113 41 0.6
Texas 0 0 8,508,204 92,378 194 0.7
Utah 0 0 1,099,978 5,397 21 0.6
Vermont 0 0 151,477 910 9 1
Virginia 210 0 2,323,255 23,769 204 2
Washington 184 2 1,969,833 15,972 34 0.4
West Virginia 15 0 652,772 8,163 34 1
Wisconsin 50 0 2,036,872 16,723 79 1
Wyoming 0 0 187,389 2,039 13 2

For more on how USAFacts collects coronavirus data, read this detailed methodology and sources page.

Not all the statistics add up over the last seven days but you get the overall message. Close to 100,ooo people died in Texas alone. 

I would like to see how conspiracy theorist explain the number of documented cases and deaths. Maybe the same way President Trump explains his very existence.

COVID-19 is on the rise in many countries, The United States has not been hit hard but the is no excuse for not taking precautions. Look at President Biden who recently contracted COVID-19, it can happen, and if we are not careful COVID-19 may return the the awful days of the pandemic. I pray not, it affected everyone, every business, and how we went about our daily life, people lost their jobs and businesses closed and life sucked all around.

I’m asking you to think about yourself, your family, and the community around you. Don’t read news about COVID-19 on social media, read news from respected news outlets, read briefings from the CDC and National Security within our government, and make an informed decision.

Our life and future depends on accurate information and making the right decisions which are not easy but ones you’ll be glad you made.

Melinda

References:

https://usafacts.org/visualizations/coronavirus-covid-19-spread-map/

 

The thorny question of persistent Lyme, or rather “Lyme IACI”
Chronic Illness · Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health · Tick Borne Illnesses

The thorny question of persistent Lyme, or rather “Lyme IACI”

Looking for the Light6 Comments

Important Read

Dorothy Kupcha Leland

July 18, 2024

The National Academies of Sciences, Engineering, and Medicine (known collectively as NASEM) are private, nonprofit institutions that examine challenging issues and offer advice to the nation.

Academy members are elected based on their outstanding achievements and contributions to their fields. They are considered the cream of the cream.

NASEM works by convening committees of experts from various fields to study specific topics. Sometimes, these committees organize workshops to bring together experts, policymakers, and the public to share knowledge and explore solutions.

That’s what happened July 11, in Washington DC. A NASEM committee held a workshop examining the question of what they called “Lyme infection-associated chronic illness”—or “Lyme IACI.” (Pronounced “Lyme eye-ACK-ee” by most participants, it doesn’t exactly roll off the tongue, does it?)

Apparently, Lyme IACI is the label the committee landed on to avoid the polarizing effects of such terms as “chronic Lyme” or “post-treatment Lyme disease syndrome.”

Based on input from this public workshop as well as a review of medical literature, the committee will develop a report of its findings. This document will put forth recommendations for how to bring about better treatments for people with Lyme IACI.

You may remember that NASEM held a groundbreaking workshop last year that focused on the commonalities of several “long haul” diseases—long COVID, persistent Lyme disease, multiple sclerosis and ME/CFS (chronic fatigue). Read more about last year’s event here: “Words matter.” A new way of thinking about long-haul diseases.

The 2024 conference continued in that vein, but this time focused only on Lyme IACI. The event was significant on several fronts.

Why this matters

For starters, you had important scientists exploring the question of why some people with Lyme disease continue to have symptoms despite treatment. This major change comes after decades of “Lyme denialism,” when medical professionals, health officials, researchers, the NIH, and the CDC, all told us that what we call “chronic Lyme” didn’t even exist. So, just the fact that you have a NASEM committee considering the issue is a huge step forward.

Furthermore, the Lyme community actively participated in the event.

 

 

 

 

 

 

Retired US Air Force Col. Nicole Malachowski—a prominent advocate for those with tick-borne disease—served on the workshop’s planning committee.

Rhisa Parera, the writer/director/producer of the Lyme film “Your Labs are Normal,” delivered a keynote address on the patient perspective.

Read what she told the panel: Patient tells scientists “Lyme is a literal emergency. Help us.”

The committee lined up an impressive array of researchers from prominent academic centers to shed light on the following questions:

  • Describe the current state of Lyme IACI research for treatments and diagnostics to clarify barriers in development of new, effective therapeutic interventions;
  • Explore recent advancements from other biomedical research fields with the potential to address these barriers by catalyzing scientific breakthroughs or translation of discoveries to treatments;
  • Understand patient-defined priorities for research and discuss potential opportunities for engaging this perspective in developing a biomedical research agenda; and
  • Discuss research strategies and infrastructure that could facilitate the application of innovations from other fields into the Lyme IACI research context.

See the list of speakers here.

Patient priorities

LymeDisease.org CEO Lorraine Johnson, principal investigator of the MyLymeData project, spoke on a panel about patient-defined priorities for research.

Lorraine Johnson, Principal Investigator of MyLymeData

She emphasized the importance of outcomes that patients themselves care about—namely, getting their health back and being able to return to work and other activities.

But that’s often not the way clinical trials are structured. For example, many are geared to evaluating something called the SF-36 score.

“However, a change in the SF-36 score is not inherently meaningful or important to patients,” Lorraine noted. “This is obvious on its face. If you ask any patient what they want in healthcare – none of them will say, ‘I want to improve my SF-36 score.’”

Videos from the workshop should be available soon. When they are, I strongly recommend you watch Lorraine’s presentation. I think you’ll find it riveting.

More on this event still to come. Stay tuned.

TOUCHED BY LYME is written by Dorothy Kupcha Leland, President of LymeDisease.org. She is co-author of Finding Resilience: A Teen’s Journey Through Lyme Disease and of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at dleland@lymedisease.org.

This is an important conversation and I’m waiting to see what comes out of the meetings.

Melinda

 

Blogger Highlight-Invisibly Me
Celebrate Life · Chronic Illness · Family · Health and Wellbeing · Medical · Men & Womens Health · Mental Health

Blogger Highlight-Invisibly Me

Looking for the Light11 Comments

Thank you for all the great feedback on the Blogger Highlight series, I’ve enjoyed meeting each blogger and sharing their site with you. This week we highlight Invisibly Me. Caz and I have known each other for years and I’m honored to call her a friend. She is a warrior in every sense of the word, she works tirelessly to balance her chronic illness, help her elderly parents, advocate for better access to healthcare, and also encourage others to take better care of themselves. I would be remiss if I didn’t mention how much she loves cats. 

Invisibly Me

Live a Visible Life Whatever Your Health   

Caz is a 30-something chronically ill blogger from the UK with a penchant for American crime thriller books, Dr Martens, chocolate and Hello kitty. She writes about life with chronic illness and pain, product reviews, tips, and general health information to raise awareness.

She writes on many topics but stays true to health, writing reviews about health products and other items that simplify life. Simple is far from the life that Caz leads, she’s a superwoman with what she accomplishes and you would be surprised by the number of disabling health issues she deals with each day. She’s snarky, has the greatest attitude, and has limits with the NHS healthcare system in England. But who doesn’t? 

She’s a proud member of the following organizations:

A photo of me standing up with hands on hips with a black top, jeans and long red hair. The top is pulled up slightly to show a red and white Hello Kitty themed stoma bag cover. Below is the blog post title: 14 ways having a stoma bag has changed my life.

You must stop by her blog to say hello, read through her archives, and get to know a remarkable woman. Caz is encouraging, raw, funny and always leaves me feeling better and loved. 

Melinda

Looking for the Light

 

What do “Real Housewives of Invisible Illness” do all day, anyway?
Celebrate Life · Chronic Illness · Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health · Mental Health · Tick Borne Illnesses

What do “Real Housewives of Invisible Illness” do all day, anyway?

Looking for the Light9 Comments

By Christina Campbell

“I wish I could just stay home and rest.”

“But what do you do all day?”

“I wish I had all that free time.”

The Normals regularly say these things to me, whenever I take disability leave to recover (kinda) from tick-borne disease.

Bless their little Normal hearts. They’re not trying to be hurtful. They’re trying to relate to something they can’t understand: invisible chronic illness, with its unpredictable flares and unquantifiable symptoms of pain, fatigue, and “Help, doctor, my cells are all pulling on each other like magnets.”

My favorite Normal faux-pax happened when I returned to work after two years of disability leave (and one additional year of a lawsuit against my insurer). Many coworkers knew I’d been sick. Some knew I’d had tick-borne disease. One of them welcomed me back and asked, “Did you enjoy your time off?” He meant well, but here’s what I heard him saying: Did you enjoy living it up with your free paychecks?

I feared my colleagues thought I’d spent those three years lounging on a chaise in a silken robe and full makeup, listening to celebrity gossip podcasts, sipping wine, and dropping bon-bons between my freshly-glossed lips, while stroking my sleek purebred cat like a Real Housewife of Northern Virginia.

Sure, I “enjoyed my time off.” I enjoyed the handful of semi-functional hours I had each day. I enjoyed squinting, while sweating and shivering, at incorrect health insurance EOBs and shady reports from insurance physician reviewers. Because of the broken U.S. health system, when I’m on disability leave I use almost more cognitive energy than when I’m at work.

The feared “activity tax”

Here’s what I’d like to tell people about what I “do all day:” I calculate my energy expenditures, then wait with bated breath to see if my calculations are correct. Will I be fine? Or will I pay the much-feared Activity Tax? If the latter, in what currency will the Tax be? Headache? Stiff joints? Motion sickness? Vibrating feet?

Because the stakes are so high, people with chronic illness become supercomputers: Estimated useable body-hours divided by approximate time to complete chores, plus parenthetical sub-formula ranking chores by importance, times the bounded function of activity tax per X number of stairs between the hamper and washer.  

The poor Normals want to “just stay at home and rest.” Well, so do I. Instead, I’m racing my body against my bank account. I’m wrangling physical therapy and fistfuls of pharmaceuticals. The goal: Get my health to kick in, before my disability is randomly taken away because some doctor paid by an insurance company lies on my case report (I wish this were a hypothetical). Disability leave is so exhausting, I pine for the workaday drudgery of the office.

My best impression

In the meantime, though, I’m doing my best Real Housewife impression, lounging on that chaise. Except it’s not a chaise, it’s a cat-hair-covered futon, and I’m not lounging, I’m curled up in ache, and it’s not wine but electrolyte water, and it’s not a silken robe but pilly yoga pants, and it’s not bon-bons but fish oil capsules almost as big as bon-bons.

Per my calculations, the fish oil capsules are better than the liquid alternative. The splotch of spilled fish oil on my pants crotch cost about $35 dollars. (This does not include the Activity Tax I paid from walking up and down stairs, trying to figure out where the rotting mackerel smell was coming from.)

Back on the chaise-futon, in true frustrated-Housewife style, I hurl my wine glass. But it’s not a wine glass, it’s a thermometer. As is common in tick-borne disease, I feel flu-ish almost all the time, but there’s little to no corresponding fever. The cruel digital displays never validate my aches and burning face. To resolve this dissonance, I smash the devices. Still, my cool cheeks stay scorching. You’d think they’d at least give me a luminous glow, but no.

Beauty tips

Which brings us to beauty tips, as recommended by our Real Housewife on the cat-hair-strewn cushions. It’s not makeup, it’s purple under-eye moons. It’s not plastic surgery, it’s skin stretched smooth by inflammatory water-fat. It’s not lip gloss, it’s snot. Too tired to get a tissue? Just blow your nose on your cardigan sleeve!

Also clinging to the crusty cardigan: my cat. He’s not a sleek purebred, but an old, thin street rescue with allergies and a seizure disorder. He’s also a poor conversationalist, but that’s ok, because I have the celebrity gossip podcasts—except they aren’t celebrity gossip podcasts, they’re Zoom coffee klatsches with my fellow sickies. And we don’t gossip, we rage.

We rage about the doctor who was late calling in a pain meds script. We rage about the insurance company who denied someone disability, because the company’s spies caught the patient sweeping her porch (gasp!). We rage about the sick young woman erroneously diagnosed with Munchausen’s Syndrome by old male doctors at a northeast emergency room. In comparison, my coworkers’ thoughtless comments are small potatoes.

They still hurt, though. I should see my psychologist. Mental health care is an important reason to dig into my skimpy disability paychecks. And yet. . .  it’s easier to pivot to add-to-cart therapy: a silken robe, lip gloss, and some bon-bons.

Christina D. Campbell is an award-winning author who writes about health, marital status discrimination, and special needs cats. She is currently seeking representation for her memoir about invisible illness. She can be reached at ChristinaDC.com.

Her words resonate with me and she’s right, it’s impossible to relate to an invisible disease unless you’ve been down that road.

Melinda

Olympion Noah Lyles And Management Team Put Thousands At Ricks For COVID
Communicating · Health and Wellbeing · Infectious Diease · Medical · Men & Womens Health

Olympion Noah Lyles And Management Team Put Thousands At Ricks For COVID

Looking for the Light9 Comments

Team USA runner Noah Lyles—who won bronze in the men’s 200m and was rushed off the field after the race in a wheelchair and later admitted to NBC Nightly News that he had tested positive for COVID two days before. He was not wearing a mask and I seriously doubt he was in the two days prior since the information was not released by him or his management team. 

His management team released a statement saying that he was diagnosed two days earlier and they backed his decision to race. Unacceptable. The situation needs to be investigated, his management team fired and his bronze medal taken away. The Olympic Committee needs to hold a press conference and speak out against the decision to keep the information under wraps. 

This is beyond reckless behavior and the Olympics could be a superspreader. He is selfish, ego-driven and does not take anyone’s health into consideration. I would take all his medals away for this behavior. He is not worthy of being called an Olympian and is a disgrace to his teammates and this country.

What else needs to be done

Banned from the 2028 Olympics

All of his medals taken away

All journalists, Olympians, and others exposed by him who get COVID need to sue him, the management team, and the Olympic Committee.

As of yesterday, Noah had planned to isolate and finish the competition however I read today that he has dropped out of the remaining races. 

The Olympics and the public can not accept this behavior, it was a total disregard for others’ health and frankly, this should end his career. 

The Olympics is a team sport and he was not a team player in the least. 

Melinda

The Importance of Being a Hustle Culture Dropout When You’re Chronically Ill
Celebrate Life · Chronic Illness · Health and Wellbeing · Medical · Men & Womens Health · Self-Care

The Importance of Being a Hustle Culture Dropout When You’re Chronically Ill

Looking for the Light4 Comments

by Natalie Kelley

•••••

Medically Reviewed by:

Tiffany Taft, PsyD

The constant pressure to go-go-go caused me to ignore my body’s alarms and wreaked havoc on my ulcerative colitis. Then I found a better way.

Hustle culture — or the pressure to constantly be going, doing, and producing — is a big part of today’s work and school environments. Some see it as a hallmark of success.

Once you’re caught up in it, hustle culture can feel ever-present and all-consuming and yes, necessary. But is it really? Or is this emphasis on always striving to make more money, be more productive, etc. actually harmful, especially to those of us with chronic illnesses?

Life as a hustle culture queen

Before my diagnosis of ulcerative colitis (UC), I was a self-proclaimed hustle-culture queen. I lived for the go-go-go lifestyle and loved the constant approval it seemed to get me, especially as it related to academic success, and later, my work.

When I began getting sick in college and was in and out of medical appointments, I still continued on the path I had begun forging for myself in high school. I would wake up at 4:45 a.m., run mile after mile, spend an hour in the gym, go to classes all day long, work my on-campus jobs, and then spend the evening doing my homework as perfectly as possible, working on my blog, and running my sorority.

Because my vision was so clouded by my constant need for “success,” I didn’t hear the cries of my body as my first major flare started creeping up on me.

And after being diagnosed with UC? Well, nothing changed. I believed I could take my medication, call it good, and continue on as I was before — going, running, hustling.

Because my vision was so clouded by my constant need for “success,” I didn’t hear the cries of my body as my first major flare started creeping up on me. Then 3 weeks after graduating college, I found myself lying in a hospital bed, hooked up to IVs, staring out into the summer sun. It was this moment that made me realize hustle culture wasn’t all that it was made out to be. Sure, I had an almost 4.0 grade-point average, honors society tassels at graduation, and a marathon medal hanging in my bedroom, but what good was any of that if I didn’t have my health?

The moment I got out of that hospital I made it my mission to turn in my hustle-culture queen crown and become a hustle-culture dropout.

The measure of success

If you resonate with any pieces of my story, know that you’re not alone. Hustle culture is sneaky — from the messages we hear from bosses and coworkers about the importance of things like staying late at the office or having a side hustle, to the questions from family members about promotions and grades, to daily TikTok vlogs showing everyone’s 5–9s before their 9–5s — and it’s everywhere.

As tempting as it can be to try and fit into the mold that hustle culture has created, I truly believe it’s not worth it, or even safe, for folks with chronic illnesses. Not only does hustle culture negatively affect our bodies, but it can impact our minds as well by encouraging comparison, making us feel like we’re never enough, and creating mental burnout.

Hustle culture tells us to place traditional measures of success, such as income, grades, and job status, above all else, but when we have a chronic illness (or multiple illnesses), listening to our bodies must come first. And by subscribing to the hustle culture ways, we are continuously pushed into a cycle of ignoring our bodies, flaring, recovering, and then doing it all over again, just as I was in college. And we — and our bodies — deserve so much more.

So, how do we, in a world that tells us our worth comes from how much we do and produce, become a hustle-culture dropout? How do we learn to see our worth as completely separate from our productivity? 

Redefine success

Instead of focusing on “success” as hustle culture sees it, what if you redefined success for yourself? 

This was the first step I took in becoming a hustle-culture dropout, which does not have to be an all-or-nothing concept. Instead of seeing success as something that could be measured by society, I decided that for me, success was living a life that is balanced — a life that still allowed me to feel financially comfortable so I could afford my medical needs, but that also included daily rest and self-care. I realized that I never actually felt that successful when I was doing “all the right things,” because I was so burnt out and disconnected from myself.

Try thinking about what real success might look like for you.

Foster self-love

A big reason why I fell so easily into hustle culture and based so much of my worth on how much I did and produced was because I lacked self-love. Because of this, I was constantly searching for validation outside myself.

When we center ourselves in self-love, it’s much easier to remember that we don’t have to participate in hustle culture, and to rest without guilt, because we’re able to give ourselves the validation we need from an intrinsic place. Self-love can feel hard to foster when we are being constantly pushed to be and do more, but forcing yourself to slow down and get to know yourself on a deeper level is a beautiful place to start.

Getting to know all the layers of who you are — your passions, your values, your unique characteristics, your quirks, what makes you laugh, what makes you tick, etc. — is a foundational piece of starting to love yourself better. Think of a romantic relationship, for example — it would be really difficult for you to feel loved if your partner never took the time or put in the effort to learn new things about you. It’s the same thing with yourself! 

Cultivate more joy

Doing things simply for joy is something that we too easily forget how to do as adults, especially in the midst of navigating chronic illness. I have found that dedicating time each week to activities that serve no “purpose” other than making me happy has helped remind me that productivity isn’t the only thing in life that matters, and that there are other things I want to prioritize above simply go-go-going.

This may look like taking a dance class (if you’re physically able), coloring, reading a fun novel, or watching a new television show. Anything works as long as joy is at the center of it!

Release destination addiction

Hustle culture wants us to always be striving, because if we’re always wanting to be more, make more money, get more praise, etc., we’re going to keep forcing ourselves to do more.

Hustle culture thrives on a concept called destination addiction. Destination addiction can sound like, “I’ll be happy when I make X amount of money” or “I’ll be satisfied when I have achieved X promotion.” 

Hustle culture pulls us out of the present and puts an unhealthy emphasis on the future, despite the fact that who and what you’re doing right now is always enough. Finding ways that help you stay present with chronic illness, such as writing a daily gratitude list or meditating, can help you drop out of hustle culture once and for all, because you start to find peace in the present and no longer feel a constant need to look toward the future.

The takeaway

Although it can feel impossible to become a hustle-culture dropout, it’s possible and necessary if you have chronic illness. Dropping out of hustle culture won’t only protect your physical health, but your mental health as well. Making small changes by allowing yourself to slow down and not push harder than you need to can make a big difference.

Medically reviewed on February 21, 2023

This a great article that applies to anyone with a chronic illness, we have to listen to our bodies and not other’s expectations.

Melinda