Lyme Disease Journal Entry Four First Back Slapping Turning Point

August 20, 2014January 18, 2024 Looking for the Light24 Comments

This week fatigue had a hold on me. A task requiring little effort takes twice as long. The extra effort is difficult for my multi tasking mind. Waiting on test results added to the stress. The doctor is making me wait until Sept. 19th to discuss the results. He gave me a nugget yesterday. I have Lyme, the co-infection Epstein Barr Virus and low Folic Acid. Requiring 2 new RX’s, for a total of 39 pills per day and 3 shots per week. The doctor surprised me with the Folic Acid RX, the red blood cell count was low. My grandmother could put all meds and supplements in one hand, throw them in mouth and swallow at one time. I am the opposite, one pill at a time shoved to back of throat, taking meds is a task. I’m not my best while being in limbo. I can hear gramps telling me, if you learn to enjoy reading , it will teach you patience. Mostly true.

If you have Lyme Disease a great book is The Lyme Disease Solution. My doctor uses as a reference guide. It’s spells out the two schools of thought on Lyme treatment. What a Lyme Literate doctor means and why it’s important to seek this type of doctor. The life cycle of Lyme and why it’s difficult to diagnosis. The different paths doctors may take to heal you, this is very detailed down to the names of meds used. I like the pros and cons of each treatment, it allows you to work with doctor on which is best for you. Some doctors go far beyond a Gluten Free diet, which is outlined. Hopefully my doctor won’t fall into extreme category. There are recipes in the book, they sound great if you cook. I have lived on the same bars, granola snacks, yogurt and cereal. I like Suja drinks, cold pressed, no preservatives, no sugar, all fruit including berries with high levels of antioxidants. Taste great, is expense. My husband eats some Gluten Free snacks, in general we eat separate meals unless I feel like eating meat or eggs. I have not found it difficult to transitions, down the road may be a different story.

This week I’m focusing on the effects of Lyme Disease. Outlined below is not a pity party. I think if people see what everyday is like it will stick with them. If one person uses DEET and doesn’t get Lyme, I will dance to the music. Don’t forget to check pets including cats or any other outside/inside pets. This in the prime time of year for ticks.

The information on Epstein Barr Virus was taken from CDC site. After you get an EBV infection, the virus becomes latent (inactive) in your body. In some cases, the virus may reactivate. This does not always cause symptoms, but people with compromised immune systems are more likely to develop symptoms if EBV reactivates.

*The bedtime set by the doctor is 9:00 PM, I have not made the bedtime yet. I think 11:00 PM is the earliest.

*My husband has to be home for me to take a shower. That crazy shower chair has caused me to fall twice. It’s worse when I close my eyes, get disoriented.

*One of the probiotics is liquid form to mix in drink. I can’t recall a med ever smelling so rank. I can’t breath when taking a sip.

*I take 3-4 pain pills a day, one taken at night to help me sleep. As a sleeping aid it’s awesome, the brain fog when I wake up is not. It takes a good thirty minutes to join the world.

*The fatigue and I have a difficult relationship. I can’t vacuum my office or much else. I feel tremendous guilt for not contributing to the household work.

*The edema hung around this week, up to my shins. The skin gets so tight it hurts, bumping into something is painful.

*Neuropathy in my hands along with Lyme Arthritis makes my hands very sensitive. My fingernail or pen can barely brush a finger and it feels like a razor blade. Both have little strength, causing me to ask for help. :(

*I can’t tell you the last time I cooked or washed dishes, can’t stand that long. My husband has to do both.

*When I have a good weekend , I work on laundry instead of resting. Rest is hard, I feel totally lazy. :(

*The guilt and other emotions can strain a marriage. :(

*The unrelenting headaches can render you useless. All you can do is lay down, pray for sleep.

*I have ulcers in my mouth and nose, a side effect of one med. FUN!

*The amount of hair loss daily is depressing. Good thing I wear a ball cap most of time.

*Due to the level of inflammation in my body, infections pop up, this week it’s a bladder infection. So much fun!

*I stay positive even though I’m starting year five of being sick. A year spent on diagnosing Lyme. The remainder on heart issues. A lot of guilt builds up, it’s hard not to beat yourself up.

*In staying positive I think some new clothes are needed because I’m going to leave the house. It’s depressing to see the number of shirts with tags on them. In the big scheme I know I’m blessed.

*I have cut my hair for the past 8 months, good thing I watched my hair dresser. My hair is natural color with the grays out front. Why spend $125 on coloring and haircut when I don’t leave the house. Great use for ball cap.

*Reading lab results makes me crazy. I research every line, what does this mean, what is it connected to. I have worked hard not to play doctor this time. The time on internet is unproductive.

*A DNA test was performed. I didn’t know and a bit unsettling. I have gene mutations for two illnesses. I didn’t know what the gene mutations meant in detailed medical terms. WOW! Just seeing the number of doctors involved in verifying the result makes you blink. I did spend many hours learning about the mutations. I have to wait until appointment to see how the results impact Lyme or general health.

Health and Wellbeing · Men & Womens Health · Mental Health

3 year old kills 18 month old Brother with Semi Automatic Weapon

June 2, 2014May 7, 2024 Looking for the Light3 Comments

PAYSON, Ariz. – Police said an 18-month-old boy is dead after being shot in the head by his 3-year-old brother, reports CBS affiliate KPHO.

The boys were at a neighbor’s apartment in Payson, Ariz., on Tuesday when they found a semi-automatic gun that belonged to the man they were visiting, according to the station. Police said the toddler’s 3-year-old brother picked up the weapon and pulled the trigger. Payson Police Chief Don Engler said officers found the boy’s mother carrying the wounded child in the parking lot outside the apartment after they received several 911 calls about a child with a head injury. The boy was pronounced dead after being rushed to Payson Regional Medical Center, KPHO reports.

“The apartment that this occurred in was a family friend of the mother and two children,” said Engler. “The children had slipped into another room unobserved by the mother and the 78-year-old occupant of the apartment,” Engler said, noting that the family had been visiting for about 10 to 15 minutes before the shooting. “Even though many of our young officers have children of their own, certainly it’s difficult for our officers in those circumstances.”

According to KPHO, police have not released the names of anyone involved in the incident. Suzy Tubbs, the director of Payson Community Kids, a nonprofit located across the street from the apartment, said the young mother often visited with her two sons. “I was always so impressed with a mom who wants to give back and help out…. [The boys] were really cute, playing on the playground, playing hard, getting dirty… typical little boys.”

This tore my heart out and left me pissed off with irresponsible gun owners. I’ve been around guns my entire life. My gramps kept a loaded shotgun by his side of the bed. When we were very young He took my brother and me to where the gun was and explained what the gun was for, what it could do, and how it could hurt somebody. He said don’t ever touch the gun, and we never touched the gun.

It’s time for accountability from people who leave a gun where a child can get access.

A semi-automatic????? Was this a drug house?

The person responsible for leaving the gun where the kids could reach it has blood on their hands. What happened to gun locks? Gun safes?

I’ve owned guns since I was fourteen, a shotgun, and two 38 Revolvers. When a child came to my house, I would unload guns, put on locks, and hide away. How could that adorable two-year-old even pull the trigger?

Have we become a society that no longer takes responsibility for our actions?

Parents need to parent their children and parent themselves. This doesn’t apply to all, JUST THE DUMBASSES RESPONSIBLE FOR A DEAD CHILD. Put them in jail as if they pulled the trigger. That will get attention, and people might think twice in the future.

I don’t have children, yet I’m human and compassionate. Too many children have died at the hands of a parent, family member, or while at a friend’s house. Stop this madness. It only takes a minute.

Warrior

Celebrate Life · Mental Health

Bullying: Not Old Fashion Fighting Anymore

March 21, 2014March 26, 2024 Looking for the Light6 Comments

Original post from 2014

In this social media world, kids form ideas of what is right and wrong. They learn from The Nons as I call them. People you think you know from social media may not be who they are. They are not your friends, I don’t think many long-term relationships start here. The reality is that kids’ self-esteem is affected by bullying especially online, which can be nasty.

I was bullied, it started in 6th grade when a rumor was started saying I said something negative about my friend’s cliff palate. Of course, it wasn’t true but that’s how some bullying starts. I was harassed walking home from school and got hit in the back of my head with a coke bottle. I was teased about braces at 12 years old, and the antics continued until I moved to my father’s which meant another school. In eighth grade, I wasn’t bullied. I learned from prior experiences and how to hold my shoulders back.

Social Media is scary to me because many people look at people and say how are skinny and have to do the same. This is where low self-esteem can start. Then sometimes they forget the influencers and they make money on every click Worse yet there are still too many pornographic posts across all platforms.

Children make impressions from day one and share positive language and affirmations. Many people are lonely and looking to make friends, fake friends I remind you. The HUGE problem is you have no idea of the motives of a stranger. I have seen what teens will do.

Teens who are reading and talking, talking trash yourself. They are blinded and don’t realize they’re in trouble or possibly worse.

It’s a total crap shoot and that is why parents have to set hard rules for all kid’s time on the phone, take their fun away, and monitor their computer usage and read some text. After that y

Bullying: Resources for How to Get Help

This documentary explores America’s teen-bullying epidemic. Millions of kids are relentlessly demeaned and physically attacked at school every day. Parents of victims and educators say that a change must take place and everyone can help. Below is a list of resources to help stop bullying and cyberbullying.

For Everyone:

The Bully Project, and ‘Billy’ Movie: The documentary film that sparked a nationwide movement to stop bullying offers stories of those who were bullies and resources for parents, teachers, kids, and communities on how to deal with and stop bullies on their website. “Bully,” which follows the lives of five U.S. students who faced bullying daily at school, including two who committed suicide as a result, will be in theaters on March 30, 2012.

Stop Bullying Now!:

A resource website sponsored by the U.S. Dept. of Health and Human Services that addresses the warning signs of bullying, how to talk about bullies, how to report bullies and cyberbullying and offers a 24-hour help hotline for victims at 1-800-273-TALK (8255).

For Children and Teens:

Teens Against Bullying: Specifically created to help teens learn about bullying, how to appropriately respond to it, and how to prevent it.

Kids Against Bullying: This was specifically created to help elementary school children learn about bullying, how to appropriately respond to it, and how to prevent it.

STOMP Out Bullying!: A national anti-bullying and cyberbullying program for kids and teens.

National Youth Advocacy Coalition: An advocacy organization for young people.

Trevor Project: A national organization that provides crisis intervention and suicide prevention for lesbian, gay, bisexual, transgender,and questioning youth. They also offer the Trevor Lifeline, a 24-hour, national crisis and suicide prevention hotline for LGBTQ youth. The number is 1-866-4-U-Trevor.

For Parents and Teachers:

PACER’s National Bullying Prevention Center: Offers resources for how to teach kids of all ages about bullying, state laws and what parents can do if their child is being bullied, and peer advocacy groups.

Education.com: Bullying at School and Online: A resource for both teachers and parents on how to help a bullied child.

Teaching Tolerance: Bullying: Offers guidelines and activities for teachers to help teach students K-12 about bullies.

The Human Rights Campaign’s Welcoming Schools Guide: A guide to help school administrators, educators, and parents or caring adults make sure that their elementary schools welcome all students and families. Targeted at addressing family diversity, gender stereotyping, and name-calling in K-5th grades.

GLSEN, Gay Lesbian Straight Education Network: Works with school officials to ensure that transgender, gay, and lesbian students are not harassed or bullied.

Family Acceptance Project: Launched out of the Marian Wright Edelman Institute at San Francisco State University, this organization works to decrease major health and related risks for lesbian, gay, bisexual, and transgender (LGBT) youth.

I hope the recourses are of help.

Melinda