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Darkness Overcomes Me

I stand watching the darkness settle in. The black dog comes to torture me. Emotions, negative feelings left behind are brought out like dolls in a toy box.  I fight, fight hard not to fall in the abyss. Mask are taken out of their resting place, the mask are for me, which one will I need today. Lies and hurtful […]

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A Grandparents Love Lives On With Happy Birthday Wishes

Originally posted on Looking For The Light:
  ?   My Granny I miss my grandparents everyday, none more than on my birthday. Every year they would get on the phone together and sing Happy Birthday. This was a tradition, gramps called many in the family to sing Happy Birthday. As  gramps fell into a coma, one of his sisters by his side, my brother entered the room, she said it’s T’s birthday and gramps started singing. Those were his last words, I know my brother cherishes every word. Tomorrow I turn 51 yrs old, my grandparents can’t call yet I know they are thinking about me. A daily one minute phone call to say I’m alive was all granny needed. She always worried about me. They loved to watch our reactions to Santa, hiding Easter eggs and fighting over who would lick the bowl of frosting. I learned to roller skate at approx 5 years old. Skating provided an outlet and hearing my favorite music over the loud-speaker made me want to dance. As I got older my grandparents would take us skating. Unlike many parents today, my grandparents would stay to watch us have fun. We were building memories that last a lifetime. I loved to speed skate, coming around the last corner full speed one of my wheels blew out throwing me over the mushroom seats. I got up, sat down and began taking my skates off.…

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The life-and-death talk we all need to have

Knowing my grandparents wanted to die at home was the easiest part of caring for them. The conversation was a common in my gramps family partly because of time the period, the late 1800’s early 1900’s and money. I now understand the difficulty of making decisions as a caregiver, it’s the decisions on the fly you can’t prepare for. Heartbreaking […]

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ILADS Member Engages the WHO to Include Lyme Disease in Revision of Health Code

The Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes (or Ad Hoc Committee) is an international, all voluntary, professional committee formed to improve the ICD codes for Lyme and Relapsing Fever borreliosis and address the human rights violations generated by inadequate codes. In 2017, members of the Ad Hoc Committee met with Dainius Pūras, the United Nations (UN) […]

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