Survivor

Cigna Denies Cochlear Implant to Disabled Three Year Old Nikki **Speak Up for Justice**

Change.org

Cigna: Approve coverage for my daughters cochlear implant

My daughter Nicole was born with several health issues. In her first four months of life she had three bowel surgeries, one heart surgery, bacterial meningitis, and we learned that she would need a liver transplant. We also learned that Nikki suffered from undetermined hearing loss, however during that time the doctors and her family was focused on life saving procedures. Nikki is now three years old (almost 4) and she has neuropathy in her left ear and has been pronounced profound deaf in her right ear.

We have been fortunate to be able to send Nikki to the Atlanta Speech School, which has worked wonders with her speech ability. However, her speech pathologist, therapist, teachers, and doctor have determined that Nikki has reached a plateau and will not likely improve in her speech or hearing abilities. Based on her doctor recommendation along with the advisors at the speech school, we requested Cigna (my employer provided insurance) to cover the cost of the cochlear implant. Cigna denied to cover the implant based on information provided and we appealed.

The initial reason Cigna denied coverage was stated that Nikki’s hearing loss was not significant enough and she had not utilized hearing aids for at least a three-month period. During the appeal Cigna was informed that Nikki had in fact utilized hearing aids in both ears for more than two years, and her deafness was far greater than what Cigna required. Cigna denied our appeal for coverage stating that they felt that Nikki was progressing or could progress with further use of hearing aids. Due to Nikki being immune suppressed it is difficult to keep her healthy long enough to have a surgery, (she has had at least 8 pneumonia infections in the last year and a half). We have her scheduled to receive the implant at the end of July, however without coverage Nikki will not be able to receive the implant.

Nikki is now three years old and has overcome so much adversity in her young life. According to the rules she is “disabled”, but with the cochlear implants that would enable her to hear she would no longer be “disabled”. Change.org was able to assist another family in the same area that we live who were also undergoing the refusal of the insurance company. I work as a police officer and my wife is a lawyer who provides legal services to indigent clients as well as others.

In Georgia it seems that insurance companies do not cover any hearing loss coverage. Nikki’s hearing aids were provided for her when she was eligible for Medicaid under the Katie Beckett waiver, however due to the recent changes in the Medicaid coverage, Nikki is no longer eligible to receive the Katie Beckett waiver. Our family hopes that with the support of this petition Nikki will be able to receive her cochlear implants, and other children and their families will not have to endure the hardships of deafness when there is a potential remedy available.

My understanding of the cost of a cochlear implant is each ear cost about $125,000.00. Nikki, like other kids and adults who receive cochlear implants require intense therapy to “train” their brain to hear again. Based on information cochlear implants are performed on a regular basis with overwhelming success. We want our baby girl and others like her to be able to grow and enjoy life with every opportunity. I would be willing to pay even more than I do for the insurance premium, but how can anyone say that hearing is not medically necessary as was stated by Cigna?

Please sign this petition so that Nikki and others like her can receive this life altering procedure.

http://www.change.org/petitions/cigna-approve-coverage-for-my-daughters-cochlear-implant

Warrior

Moving Forward · Survivor

How Keeping a Mood Chart Saved My Life

When I started seeing my Psychopharmacologist almost 16 years ago he intimidated me. He’s not a chipper guy and it took years to see through his shell. I was in a very dark place and spiraling down. I didn’t think he understood how depressed I was. Psychiatrist are different from therapist in how they schedule their time unless your Psych is also your therapist. He only provides medication management, 20 minutes at most. So we had a couple of frustrating meetings. I didn’t know how to reach him, I didn’t know doctor talk. He is one of the best in Texas and finding a Psychopharmacologist is difficult, I wasn’t walking away. During another frustrating meeting he left the room to talk to a therapist he worked with. He did me the biggest favor and no doubt saved my life. I sat down with the therapist expressing my frustration getting thru to him. They had worked together for 13 years, she provided some insight to his personality and how best to communicate with him. She drew a chart and we talked about how depressed I was. She repeated back to make sure she was on track and then gave me the chart. At that time I was rapid cycling, adjusting to meds and didn’t think I was improving. The Mood Chart brought our communication on the same page. I liked the log because it gave me an opportunity to show how I was cycling or any other significant change. I took out a journal and started keep a daily log of the chart and any info about my state of mind. It gave me an opportunity to see exactly what was happening at any give time or day, look for trends, triggers, side effect notes. I wanted to share the chart for those struggling with their mental illness and/or expressing it to the doctor. Once we were on the same page, he was able to give me the help I needed. It’s interesting to go back year after year and look for cycles or triggers. I would suggest a larger sheet of paper to give room for notes. If you have questions let me know. I’m including the definition of Psychopharmacologist. I suffered with my Bipolar Disorder for years until I found the right type of doctor.

Psychopharmacology:  is the scientific study of the effects drugs have on mood, sensation, thinking, and behavior.The field of psychopharmacology studies a wide range of substances with various types of psychoactive properties, focusing primarily on the chemical interactions with the brain.Psychoactive drugs interact with particular target sites or receptors found in the nervous system to induce widespread changes in physiological or psychological functions. The specific interaction between drugs and their receptors is referred to as “drug action”, and the widespread changes in physiological or psychological function is referred to as “drug effect”. These drugs may originate from natural sources such as plants and animals, or from artificial sources such as chemical synthesis in the laboratory.

Warrior

Depression Mood Chart
Depression Mood Chart
Survivor

News Update with Looking for the Light

Update from Change.org 

Let’s keep up the pressure until we know Meriam Yehya Ibrahim is safe and free

26 Jun 2014 —

The last 48 hours have been a whirlwind of news surrounding the case of Meriam Ibrahim. On Monday, a Sudanese appeals court ruled that she should be set free, and that they charges she was facing — arrested and sentenced to die for not being willing to give up her Christian faith or renounce her marriage to her husband, Daniel — should be voided.

Then on Tuesday, as she went to the airport to leave with her husband and kids, she was held by Sudanese intelligence officials, and we are still waiting to know if she has been able to leave the country.

While this story plays out, we cannot let up on our demand that Meriam be set free and allowed to travel with her husband and her two kids. We are almost at one million signatures. Please, while Meriam’s future still remains uncertain, share this petition with on Facebook, Twitter, or with your friends and family, and keep up the global momentum for Meriam to be free.

With your help we can build more than one million voices calling for Meriam’s freedom. She is so close. Please stand with me once more and show the rest of the world that Meriam should be free and reunited with her family.

Thank you for taking action.

*****************

Update from RAINN’S on Campus Sexual Assualt 

Today on Capitol Hill, Becca O’Connor, RAINN’s vice president for public policy, will join Sen. Claire McCaskill and law enforcement leaders to discuss solutions to the problem of sexual assault on college campuses.

Senator Claire McCaskill meets with students to address campus sexual assault.*

WHAT: Campus Sexual Assault: The Administrative Process and the Criminal Justice System Roundtable

WHEN: Today at 2:30 pm ET

The discussion is expected to include:

How law enforcement agencies and prosecutors pursue crimes of sexual violence involving students.

What Congress can do to ensure that survivors receive justice.
Watch live online, and follow the conversation on Twitter with @RAINN01 and using the hashtag #ActWithRAINN.

Learn about RAINN’s policy initiatives by visiting the Action Center.

*Photo Credit: Office of Senator Claire McCaskill

 

Fun

Throw Back Thursday with Looking for the Light*Join Warrior Down Memory Lane*

http://youtu.be/Z0RNp0ShHsU

Josh Groban and Brian McKnight show Simon and Garfunkle songs are still relevant.

 

 

It’s hard to go wrong with Paul Simon, Stevie Wonder and Friends. I love the gospel feel of the song.

Thank you for joining me for the first Throw Back Thursday. Send your request, you never know when I’ll pick your songs.

Warrior

Men & Womens Health

Children Restrained or Secluded 267,000 Times School Year*Most Have Disabilities or Mental Illness*

My Two Cents

This a brief update from NAMI, National Alliance Mental Illness. I can’t wrap my head around 267,000 students restrained or secluded, the majority with Disabilities or Mental Illness. It’s not a punishment I can get on board with. The parents are accountable for their children and how they act in school. Do parents have alternative schools? My mind is over flowing with questions. Do schools have a process, is the process monitored, by who, documented, are there defined actions, limitations? Are teachers and principals discussing the process of punishment with parents face to face? Are parents notified before school starts? Is the child involved in meetings to give input and ask questions? What grades are included or all?  How many offences allowed before the child needs to transfer to school capable of meeting their needs. Is a detailed report required for each incident and discussed with parent? Do the disabled students understand why their being punished? Are the disabled students from a different learning environment? Which organization determined this punishment was Best Practices? Are investigations performed by governing organization? I strongly believe parents are accountable for their children which includes providing an appropriate learning environment. The other students deserve a healthy learning environment. I feel like all students lose with this policy and abusive.   Warrior 

**********

NPR just wrote an article that highlights the need for immediate action to regulate restraint and seclusion in our nation’s schools. Data from the U.S. Department of Education shows that there were 267,000 instances of restraining or secluding children in schools in one school year.

Some schools reported restraining or secluding students dozens and even hundreds of times each year. In 75 percent of these cases, restraint and seclusion was used with children who have a disability such as mental illness. ​

Contact your Senators and Representatives and ask them to co-sponsor the Keeping All Students Safe Act (S. 2036 and H.R. 1893) which will regulate the use of restraint and seclusion in our nation’s schools and protect children from harm. There are currently no federal laws regulating the use of restraint and seclusion in schools.

Take Action

Thank you for your dedication to mental health advocacy

Survivor

Terror Watch: What next for Chibok girls?

I am Blaq

A government that cannot protect its citizens is not fit to govern. A government that cannot confront and put down insurgents in any part of the country is a weak government.

          -Levi Obijiofor, Insights

That is the fate of the Nigerian nation. You should read the full article here.

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Travel

Thank You For Signing Petition! Meriam Yehya Freed After Sudanese Appeals Court Ruling

Petition Update on Sudan prisoner Meriam Yehya

Government of Sudan: Don’t execute Meriam Yehya Ibrahim for being Christian #SaveMeriam received 985,603 supporters. 

23 Jun 2014 — Today a Sudanese appeals court ordered Meriam’s release from the prison where for months she’s been awaiting execution for her refusal to renounce her Christian faith. The decision comes after almost a million people from around the world — including you! — signed my petition on Change.org that added to the chorus of international voices demanding justice for Meriam.

Over the past few months world leaders like David Cameron, Prime Minister of the United Kingdom, and John Kerry, the United States Secretary of State, have spoken out against Meriam’s imprisonment, and media coverage of her story has raised an important conversation about religious freedom and women’s rights around the world.

I started my petition after I saw how the #BringBackOurGirls campaign, focused on freeing 276 girls kidnapped in Nigeria, got over a million signatures and launched a global movement that spurred governments to take action. Now, thanks to our voices, a young mother and her children have been freed from prison and the right to religious freedom is a little bit safer.

Over the next few days we will be monitoring reports from Sudan; we cannot let our guard down until we are sure Meriam is home with her family and safe from other threats.

But let today’s events be a message to the rest of the world that we will not stand by and let injustice happen. We’ve proven once again that coming together online can make a real difference toward the goal of human rights for everyone.

**********

I can not express the joy overflowing in my heart upon receiving this e-mail. I am bursting with excitement for her and her family. It feels wonderful to take part in a peaceful demonstration, a demonstration catching the attention of several governments. I will remain guarded due to experiences with governments who go back on their word. We did it, you read the post, signed the petition and now remain optimistic. What a glorious day.

Warrior 

Moving Forward · Survivor

WOW! Most Influential Blogger Award Feat. John Mayer

 Don’t care for John Mayer? He may change your mind before the video is over. Admit he is a guitar hero? He is so badass, how can anyone other than EC play like that. Watch the entire video, the last couple of minutes will blow your mind. If you like jamming guitar work. They are in Rio (sweaty) and the fans are great. Don’t get confused by his Japanese pants. If you want to cut the WOW, it’s starts about 5:50 minutes. He looks high, I’ve never seen him do the head swagger. I play Gravity at least once a day. No matter what my mood Gravity always get me jamming, singing and playing air guitar. My husband makes me shut the door, says my singing voice needs some practice. I look forward seeing the videos chosen, a wild mix I’m sure.    Warrior

Most Influential Blogger Award

On June 4th, my CTC sister Persia from Blog of a Mad Black Woman nominated me for the Most Influential Blogger Award. I’m truly grateful for the recognition from fellow Cut Throat Club member. I will pass to worthy nominees who will keep the passion alive. Big hugs Persia. I respect your strength and highly recommend nominees to stop by, Blog of a Mad Black Women http://persiakarema.wordpress.com. Congrats to all!

I’ve nominated Blogs who write from the heart and will carry the torch proudly 

Still working on graphic code for badge. If you find one on your own that’s great. The ones I’m using don’t work.

http://davidkanigan.com  

**Blog: Live and Learn

http://carissaprovenzano.wordpress.com

**Blog: Carrisa’s World

http://dwhinson56.wordpress.com  

**Blog: Willy Nilly To & Fro      

http://maureenoblog.wordpress.com    

**Blog: CoCo Blaq

http://photopaulm.com    

**Blog: Paul Militaru     

http://afsheenanjum.wordpress.com

**Blog: Dreams to Reality!

http://findinghopessunshine.wordpress.com              

http://alygeorges.wordpress.com                                                   

http://gottafindahome.wordpress.com

Rules for accepting award:

**Thank the person who nominated you. **To accept the award, nominees must display Badge on Blog site. **Announce 10 deserving bloggers via a post on your site **Include video of current Favorite song. On YouTube you can cut and paste. **Notify nominees via comments section their nomination with link back.

Men & Womens Health

Texas Teenager Facing Life in Prison for Baking Marijauana Brownies

There’s a new petition taking off on Change.org, and we think you might be interested in signing it:

Jana Duty: You promised to “restore integrity to the Williamson County District Attorney’s office” & use alternative sentencing. Reduce Jacob’s charges to misdemeanor possession.

By Robert Butler
Round Rock, Texas

Jacob Lavoro is a teenager facing life in prison for baking marijuana brownies in Round Rock, Texas. He’s a young man who has never been in trouble with the law before, and has always been a great kid who we love very much. I live in the same city as Jacob Lavoro and I felt a responsibility to help stand up for him. Our county has a history of excessively punishing minor crimes or even innocent people to “send a message” that has little do with justice or the best interests of the community. In this case, the sentencing rules are being abused and stretched to increase a punishment that does not fit the allegations. The police apparently included the full weight of the brownies: flour, sugar, water, etc and the plastic containers that held them to determine the weight of the illegal hash oil used to bake the brownies. If our petition can convince Jana Duty, the District Attorney in Williamson County, to follow through on her campaign promises to clean up Williamson County’s justice system and offer alternative sentencing options then we hope that there will be justice for Jacob Lavoro and that county residents can breathe easier under a less oppressive atmosphere. If Jacob Lavoro receives a harsh sentence, it will destroy this young man’s life and leave a permanent mark of injustice in Williamson County, Texas. Please join us today to stand up against unfair sentencing and ruining a young man’s life. Sign and share the petition today!

 

Please go to Change.org to sign Robert’s Petition.

Warrior

Moving Forward · Survivor

Non-Violent 1st Time Drug Offender Spends *Life in Jail Without Parole*

 Change.org

 There’s a new petition taking off on Change.org, and we think you might be interested in signing it:

My name is Heather Minor and on February 6, 2001, when I was 7 years old, my life took a horrible turn when my father was sentenced to life in prison for a nonviolent drug offense. Without clemency from President Obama, he will die in prison.

When my father, Ricky Minor, was given his sentence I didn’t realize I was about to begin a journey that would become a new “normal” way of life for me – growing up without a father. Even though my dad was a first time nonviolent drug offender, under mandatory minimum sentencing laws he was sentenced to life in prison without the possibility of parole. On that same day, my mother was also arrested. My whole world as I knew it was completely destroyed. At the age of seven, both of my parents were taken away from me, and from that point forward I was raised by my elderly grandparents.

I am now 21 years old, the first in my family to graduate from high school, and taking additional classes to improve my life. However, while I am trying to make the best of my life, the realization that my father will die alone in prison is too much for me to fathom. My father was suffering from a drug addiction and trying to cope with it. He was not some “big time” drug dealer, but an addict struggling to support his habit who was a victim of an overly harsh and inflexible mandatory sentencing structure.

Even the sentencing federal judge hesitated to impose the life sentence. As my dad said at his hearing, “rapists, murderers and child molesters will be set free before me…where is the justice in that?”

My dad has now served over 14 years of his sentence – most of it over 700 miles from my home. I have grown from a small child to an adult only seeing him once or twice a year due to limited funds for travel and taxing health issues of my grandparents. The only opportunity I had to form a relationship with my dad was through weekly phone calls and occasional letters. It is heartbreaking.

I just want a chance to get to know my dad like every other daughter. Even though I know and he knows what he did was wrong, I think he has served more than enough to compensate for the crime he committed. He has paid the price of his crimes…but so have I, and I didn’t do anything wrong other than be a victim of parents with a drug addiction. He has completely rehabilitated himself by obtaining his GED, furthering his education, drug free and very health conscious including his diet and physical activities.

You can go to Change.org and sign online. Thanks. 

Warrior