The International Lyme Disease Association (ILADS) http://ilads.org, knows Chronic Lyme Disease exists, requiring extensive treatment currently restricted by the Center of Disease Control. The letter is a proactive communication advocating for longer treatment options.
Taken From ILADS letter to Centers for Medicare & Medicaid Services Department of Health and Human Services.
RE: Proposed Rule concerning antibiotic stewardship in Hospitals, Critical Access Hospitals and Nursing Homes
Additionally, the proposed rule emphasizes measures to eliminate discrimination directed at certain groups. The ILADS comment pointed out that persons with Lyme disease and tick-borne infections constitute a large and growing class of individuals subjected to severe and unjust discrimination which requires recognition and correction. Specifically, although many individuals in this group of patients often require longer courses of antimicrobials than are commonly prescribed, many are denied appropriate care based on arbitrary protocols that do not consider the specifics of their case. While ILADS recognizes that there are differences of opinion in the literature, after a thorough review of the evidence regarding Borrelia burgdorferi, the agent of Lyme disease, ILADS concluded that here is substantial scientific support for persistent infection. For this reason, ILADS promotes the selective and judicious use of extended antimicrobial therapy in patients with Lyme disease rather than the arbitrarily proscribed treatment durations championed by others.
To read the entire response, click on link above. You will see the organizations fundamental beliefs, commitment to improving treatment for Lyme and other tick borne illnesses. The archives contain letters, videos and much more. A wealth of knowledge on Lyme and tick-borne illnesses are available.
My heart bleeds for a friend suffering from a dark depression. Have you struggled this week? Feeling pain, fear, lonely, unloved? Tomorrow the sun rises, I pray the clouds lift bringing peace to our lives. Xx M
The leaders of the future, our children must have an education to build on. Chime in and please pass around. Let’s help find and fix problem, not set back and see. :) M
“Connecticut State Superior Court Judge Thomas G. Moukawsher threw out the state’s school financing system as unconstitutional, his unsparing 90-page ruling read and resonated like a cry from the heart on the failings of American public education.”
“Uselessly perfect teacher evaluations” that found “virtually every teacher in the state” proficient or exemplary, while a third of students in many of the poorest communities cannot read even at basic levels.
He attacked a task force charged with setting meaningful high school graduation requirements for how its “biggest thought on how to fix the problem turned out to be another task force,” and called it “a kind of a spoof.”
Too many American high school graduates are “let down by patronizing and illusory degrees”
Too many decisions and too much debate about schools seem, as he wrote, “completely disconnected…
What is a Caregiver? A person who gives every ounce of themselves to comfort the dying.
PUBLISHED ON February 6, 2006
The caregiver posts were my first attempt at blogging. I needed an outlet to avoid dumping all in husbands lap.
My grandmother passed away in 2005 from Dementia related to Strokes. I’m reposting for caregivers who give freely every ounce to keep loved one comfortable in their last hours. Just one piece of advice if I may, Take time to clear your head, 10 or 30 minutes whatever you can do for yourself each week. I had brain drain after both of their deaths, my body was physically broken down. Due to the nature of the illness, it’s hard to take an eye off 24/7. I was fortunate we had hospice care for Granny. My grandfather was healthy enough to help, crushing to see the emotions as his wife for over 50 years slipped away.
I’m Morning and She’s Still Alive
As the main caregiver for my grandparents my hands are overflowing lately, my mind allows me to run at that level by switching to what I call “caregiver mode”. I can manage information about the drugs they take, schedule appointments, discuss test results, anything needed for the two people I love the most, who are dying and “switch back” when at home.
Before breaking her hip my grandmother knew me, though our conversations were limited I enjoyed sharing memories with her. She really enjoyed a photo book I made with many photos of her beloved dog, Blackie. Thinking about Blackie always made her smile, even though he died twenty years ago, she remembered him like it was yesterday. On the way to their house last week tears were rolling down my face, I could not stop crying. It took a few minutes to figure out what was causing so much pain. My mind had switched from caregiver to granddaughter, realizing my grandmother no longer knew me. The realization was much harder to accept as her granddaughter.We would not share our memories again. I knew the day would come and said prayers often for the memories we shared. I’m in mourning and miss my grandmother so much.
Gwen Stefani has my full attention with her latest release, “This is what the truth feels like”. At 48 , after an eight year hiatus, Gwen releases new music, took her three children on tour, wrote/produced show for Nickelodeon, released a line of new fragrances and a voice over in the Trolls movie.
She appeared on The Voice last season as a mentor to help Blake Shelton’s team. During the season they wrote “Go ahead and break my heart” and fell ln love with Blake. Gwen has surprised fans by showing up to sing the song during his concerts. His fans have embraced her and she is now performing one of her songs before singing their duet. I love the cross genre or no genre. Enjoy Xx M
Please give a shout out to Gavin/sedge808, the newest member of Survivors Blog Here. Tunes dedicated to you! Welcome, let’s have some fun!
I was born with music in my ears, dancing to a beat. My baby book says I walked/danced for joy at ten months old. I don’t know if it’s true, it’s who I was. Chronic Lyme drives today, in the future the keys are mine. LET’S DANCE Xx M
For years patients have said the generic Wellbutrin doesn’t work as well as brand name. The FDA finally took action against manufactures of the generics, admitting Clinical Trials were not performed on 300 mg Extended Release tablets. Follow up test found discrepancies in Bioeqivalence. The FDA holds responsibility as well, they are accountable to the public. The FDA requires all companies who manufacture medication to prove medication is safe, effective…equivalent or not for generics. This process can take years. The over looked, the lack of testing on higher mg caused many patients to take ineffective medicine suffering higher levels of depression.
FDA has approved five generic versions of Wellbutrin XL 300 mg. Each of these generics was approved based on bioequivalence studies comparing the 150 mg strength of the products to Wellbutrin XL 150 mg. Studies were not performed directly on the 300 mg strength of the products. Rather, the bioequivalence studies were performed using the 150 mg strength, and the results were extrapolated to establish bioequivalence of the 300 mg product. This methodology was based on FDA’s guidance at the time the products were approved. FDA has determined that this approach is no longer appropriate to establish bioequivalence of 300 mg bupropion hydrochloride extended-release tablets to Wellbutrin XL 300 mg, and the Agency is revising its guidance to industry for how to conduct premarket bioequivalence studies in generic bupropion products.
I subscribe to FDA Updates which provide valuable information.There is a section on each update showing who needs the information. When patients are on the list I ask who is contacting the patients? No-one. It’s a reminder you have to participate in your mental health care which includes staying informed. The daily updates can clog the email, I find most weekly updates valuable.
I’m a fairly calm :) person when not hypo/hyper or in withdraw. Last night while burning the midnight oil, I tried to refresh page…Message: could not pull anything up try again. That was the start, I’m no longer calm.
I used Reader for reading a few post…..the people I follow are unchecked like I’m not following them. I followed everyone. I head to Survivors Blog Here to find the same has happened.
Today you will receive a notice the contributors of Survivors Blog Here or Looking For The Light Blog are following you,please know we were already.