Moving Forward

Battling the Ravages of Lyme Disease

Oak green young leaves close-up in spring morning. Shallow depth of field

The heartwarming story  of Laurel Ferretti is from The Lyme Letter written by Doctor Jemsek.

Battling the Ravages of Lyme Disease, How Faith Carried Me Through: By http://eepurl.com/cdzloL

The newsletter also has great information on Supplements, questions and answer section, and list of books and videos.

Xx  M

Moving Forward

ILADS Response To Centers of Medicare/Medicaid Services of Health & Human Services

The International Lyme Disease Association (ILADS) http://ilads.org, knows Chronic Lyme Disease exists, requiring extensive treatment currently restricted by the Center of Disease Control. The letter is a proactive communication advocating for longer treatment options.

Taken From ILADS letter to Centers for Medicare & Medicaid Services Department of Health and Human Services.

RE: Proposed Rule concerning antibiotic stewardship in Hospitals, Critical Access Hospitals and Nursing Homes

 Additionally, the proposed rule emphasizes measures to eliminate discrimination directed at certain groups. The ILADS comment pointed out that persons with Lyme disease and tick-borne infections constitute a large and growing class of individuals subjected to severe and unjust discrimination which requires recognition and correction. Specifically, although many individuals in this group of patients often require longer courses of antimicrobials than are commonly prescribed, many are denied appropriate care based on arbitrary protocols that do not consider the specifics of their case. While ILADS recognizes that there are differences of opinion in the literature, after a thorough review of the evidence regarding Borrelia burgdorferi, the agent of Lyme disease, ILADS concluded that here is substantial scientific support for persistent infection. For this reason, ILADS promotes the selective and judicious use of extended antimicrobial therapy in patients with Lyme disease rather than the arbitrarily proscribed treatment durations championed by others.

http://www.ilads.org/ilads_news/2016/ilads-statement-on-cms-proposed-rule-concerning-antibiotic-stewardship/

To read the entire response, click on link above. You will see the organizations fundamental beliefs, commitment to improving treatment for Lyme and other tick borne illnesses. The archives contain letters, videos and much more. A wealth of knowledge on Lyme and tick-borne illnesses are available.

Melinda  :)

Moving Forward

Throw Back Thursday *George Harrison & Friends*

My heart bleeds for a friend suffering from a dark depression. Have you struggled this week? Feeling pain, fear, lonely, unloved? Tomorrow the sun rises, I pray the clouds lift bringing peace to our lives.  Xx  M

 

Moving Forward

You Go Judge! How about solving this at the Debate tonight?

The leaders of the future, our children must have an education to build on. Chime in and please pass around. Let’s help find and fix problem, not set back and see. :) M

Live & Learn's avatarLive & Learn

hc-moukawsher-lawsuit-profile-20160930

“Connecticut State Superior Court Judge Thomas G. Moukawsher threw out the state’s school financing system as unconstitutional, his unsparing 90-page ruling read and resonated like a cry from the heart on the failings of American public education.”

Some excerpts from NYTimes: An F-Minus for America’s Schools From a Fed-Up Judge:

  •  “Uselessly perfect teacher evaluations” that found “virtually every teacher in the state” proficient or exemplary, while a third of students in many of the poorest communities cannot read even at basic levels.
  • He attacked a task force charged with setting meaningful high school graduation requirements for how its “biggest thought on how to fix the problem turned out to be another task force,” and called it “a kind of a spoof.”
  • Too many American high school graduates are “let down by patronizing and illusory degrees”
  • Too many decisions and too much debate about schools seem, as he wrote, “completely disconnected…

View original post 226 more words

Celebrate Life · Moving Forward

I’m Mourning And She’s Still Alive

Hands of seniors

What is a Caregiver? A person who gives every ounce of themselves to comfort the dying.

PUBLISHED ON February 6, 2006

The caregiver posts were my first attempt at blogging. I needed an outlet to avoid dumping all in husbands lap.

My grandmother passed away in 2005 from Dementia related to Strokes. I’m reposting for caregivers who give freely every ounce to keep loved one comfortable in their last hours.  Just one piece of advice if I may, Take time to clear your head, 10 or 30 minutes whatever you can do for yourself each week. I had brain drain after both of their deaths, my body was physically broken down. Due to the nature of the illness, it’s hard to take an eye off 24/7. I was fortunate we had hospice care for Granny. My grandfather was healthy enough to help, crushing to see the emotions as his wife for over 50 years slipped away.  

I’m Morning and She’s Still Alive

As the main caregiver for my grandparents my hands are overflowing lately, my mind allows me to run at that level by switching to what I call “caregiver mode”. I can manage information about the drugs they take, schedule appointments, discuss test results, anything needed for the two people I love the most, who are dying and “switch back” when at home.

Before breaking her hip my grandmother knew me, though our conversations were limited I enjoyed sharing memories with her. She really enjoyed a photo book I made with many photos of her beloved dog, Blackie. Thinking about Blackie always made her smile, even though he died twenty years ago, she remembered him like it was yesterday. On the way to their house last week tears were rolling down my face, I could not stop crying. It took a few minutes to figure out what was causing so much pain. My mind had switched from caregiver to granddaughter, realizing my grandmother no longer knew me. The realization was much harder to accept as her granddaughter.We would not share our memories again. I knew the day would come and said prayers often for the memories we shared. I’m in mourning and miss my grandmother so much.

Xx M  aka Warrior

Moving Forward

Throw Back Thursday No Doubt about Stefani & Shelton

Gwen Stefani has my full attention with her latest release, “This is what the truth feels like”.  At 48  , after an eight year hiatus, Gwen releases new music, took her three children on tour, wrote/produced show for Nickelodeon, released a line of new fragrances and a voice over in the Trolls movie.

She appeared on The Voice last season as a  mentor to help Blake Shelton’s team. During the season they  wrote “Go ahead and break my heart” and fell ln love with Blake. Gwen has surprised fans by showing up to  sing the song during his concerts. His fans have embraced her and she is now performing one of her songs before singing their duet. I love the cross genre or no genre. Enjoy   Xx   M

https://youtu.be/-sVVkPRcCfE

 

Moving Forward

Throw Back Thursday *Let The Music Set You Free*

Please give a shout out to Gavin/sedge808, the newest member of Survivors Blog Here. Tunes dedicated to you! Welcome, let’s have some fun!

I was born with music in my ears, dancing to a beat. My baby book says I walked/danced for joy at ten months old. I don’t know if it’s true, it’s who I was. Chronic Lyme drives today, in the future the keys are mine. LET’S DANCE   Xx  M

 

Men & Womens Health · Moving Forward

FDA Admits Generic Wellbutrin Isn’t An Equivalent After Years Of Complaints

For years patients have said the generic Wellbutrin doesn’t work as well as brand name. The FDA finally took action against manufactures of the generics, admitting Clinical Trials were not performed on 300 mg Extended Release tablets. Follow up test found discrepancies in Bioeqivalence. The FDA holds responsibility as well, they are accountable to the public. The FDA requires all companies who manufacture medication to prove medication is safe, effective…equivalent or not for generics.  This process can take years. The over looked, the lack of testing on higher mg caused many patients to take ineffective medicine suffering higher levels of depression.

Update: Bupropion Hydrochloride Extended-Release 300 mg Bioequivalence Studies

FDA has approved five generic versions of Wellbutrin XL 300 mg. Each of these generics was approved based on bioequivalence studies comparing the 150 mg strength of the products to Wellbutrin XL 150 mg. Studies were not performed directly on the 300 mg strength of the products. Rather, the bioequivalence studies were performed using the 150 mg strength, and the results were extrapolated to establish bioequivalence of the 300 mg product. This methodology was based on FDA’s guidance at the time the products were approved. FDA has determined that this approach is no longer appropriate to establish bioequivalence of 300 mg bupropion hydrochloride extended-release tablets to Wellbutrin XL 300 mg, and the Agency is revising its guidance to industry for how to conduct premarket bioequivalence studies in generic bupropion products.

http://www.fda.gov/drugs/drugsafety/postmarketdrugsafetyinformationforpatientsandproviders/ucm322161.htm

I subscribe to FDA Updates which provide valuable information.There is a section on each update showing who needs the information. When patients are on the list I ask who is contacting the patients? No-one. It’s a reminder you have to participate in your mental health care which includes staying informed. The daily updates can clog the email, I find most weekly updates valuable.

Xx  M

Moving Forward

WP Playing Tricks On You Last Night?

I’m a fairly calm :) person when not hypo/hyper or in withdraw. Last night while burning the midnight oil, I tried to refresh page…Message: could not pull anything up try again. That was the start, I’m no longer calm.

I used Reader for reading a few post…..the people I follow are unchecked like I’m not following them. I followed everyone. I head to Survivors Blog Here to find the same has happened.

Today you will receive a notice the contributors of Survivors Blog Here or Looking For The Light Blog are following you,please know we were already.

Did you have WP challenges last night?

Xx  M

Moving Forward

It’s Monday! Let’s celebrate with?

How about a funny story to start: my oldest dog had problems waking up this morning, I thought he was dead, ok that’s not funny, I was screaming his name….nothing. Finally he wakes, I see his front leg doesn’t work. Thinking about how hard the stairs would be…..I made a potty spot in spare room. This is funny or maybe just laughing at self, I put these huge kotex on the carpet, the sticky really helped. Then I stacked sheets then his vomit towel. Lovely thought, at least he knows it’s his…..I have been trying all morning and he would rather slide down stairs than go on kotex. Isn’t that a man/dog for you. HAHA!

It’s also funny to me that kotex are in the house, Lyme created the need. I had a total hysterectomy at 28 years old. Very glad to say at 53, they got all the cancer. To top it off, since I have trouble remembering due to Lyme, I thought next year I turned 53, not a couple of months ago. Not sure how 53 feels yet.

Let’s celebrate Monday with an old Rolling Stones concert clip when they came thru my town. I can’t decide if Mick sounds worse then or now, or always. I do like many of their tunes. Hug somebody you love today. M

Men & Womens Health

Take Opiates? With Benzodiazepines? New Black Box Warning

The FDA announced a Black Box Warnings for Opiates and Benzodiazepines medications taken together. BLACK BOX WARNINGS are the highest warning the FDA issues on medication.

I was surprised by the number of each I take daily. Call your doctor for updated prescribing information. Subscribe to the Weekly Digest for up to the minute information.

FDA MedWatch – Opioid Pain or Cough Medicines Combined With Benzodiazepines: Drug Safety Communication – FDA Requiring Boxed Warning About Serious Risks and Death

http://www.fda.gov/Safety/MedWatch/SafetyInformation/SafetyAlertsforHumanMedicalProducts/ucm518710.htm?source=govdelivery&utm_medium=email&utm_source=govdeliver

Moving Forward

Guest Photographer Gavin Kerslake

Please welcome Guest Photographer Gavin Kerslake. I met Gavin several years ago, probably thru a comment on a photo. He is a natural with the camera, his work can memorize or shine light on something missed. I would categorize his work as Industrial Realism, his eye captures the story in what others walk by without a thought.

I’m thrilled Gavin allowed me to share his work with you. I’ve asked Gavin to join us again, eveyone please go to his blog so he will say yes. Here are links where you can find Gavin’s work. I encourage you to look at his expansive collection. The first link is his blog, you will want follow for sure.

http://www.sedge808.com/

http://www.fluidr.com/photos/sedge808/interesting/

http://www.redbubble.com/people/sedge808/

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Fun · Moving Forward

Throw Back Thursday*George, Ringo, Friends

There are special moments in music history, these are in the jukebox in my head.  Thank you for following me and stopping by every Thursday for entertainment. Thanks for the great suggestions coming in. Have a great weekend. Xx  M

https://youtu.be/emKEFXWk4Yc

 

https://youtu.be/oDs2Bkq6UU4

 

Moving Forward

How Many Untested Rape Kits Does Your State Have?

Advocates For Sexual Assault Who Drive Change

End The Backlog is a program of Joyful Heart Foundation, a national non-profit organization founded by actress and activist Mariska Hargitay with the mission to transform society’s response to sexual assault, domestic violence, and child abuse, support survivors’ healing, and end this violence forever.

Over the years, however, we have begun to see progress. Increasingly, states and local jurisdictions are beginning to recognize the value of testing rape kits. They are starting to count, track and test the untested kits in their facilities, and they’re seeing powerful result. 

What do we know about the rape kit backlog & what’s being done to end it.

Explore our interactive map: http://www.endthebacklog.org

For example, in New York City, where there had been a backlog of 17,000 untested rape kits before eliminated in 2003, city and law enforcement officials enacted a policy and developed a system to test every rape kit. The city’s arrest rate for rape has since jumped from 40% to 70%.”Joyful Heart now provides us with expertise, guidance and a national perspective.

They are helping to find ways to secure the funds needed to test the remaining kits and ensuring that all efforts to end this atrocity, is an important project under the direction of Joyful Heart foundation.

– Kym Worthy, Wayne County Prosecutor

The federal government estimates that hundreds of thousands of rape kits sit untested in police and crime lab storage facilities across the country in what is known as the rape kit backlog.

Discuss with the men in your life. Men have wives, mothers, sisters, daughters and co-workers. Check out the interactive map on endthebacklog.org, you can see the progress for your state and city, look at how many rape kits are left untested.

One out of six  men are sexually assaulted, often living traumatized without support, few crimes are reported. The information may surprise you, unfortunately it’s reality. The 1 in 6  organization provides support. I’m currently researching the organization a look forward to sharing how support is provided.

I glanced at an article today which stressed the first year in college is when a crime is likely to happen. Men also have sons, brothers, cousins, neighbors and fathers. Young adults are not aware of the dangers of college life. You can help by finding out what is important to share with your college students, it may not have crossed their mind.

Xx  M

Moving Forward

Happy Birthday Daddy

Today would be your 76 birthday, there are a few things to say. I don’t know if you were with God in your final hours. I can’t assume you asked for forgiveness, I can’t assume you’re in Heaven.

Granny and Gramps went to their graves not knowing the pain you inflicted on me. Granny would breakdown, I would not cause her such pain.

You told me several times you were going to kill yourself, I didn’t doubt. I chose to keep the information to myself.

Granny was never the same after taking your life.

You called delusional, hallucinationing your phone was tapped. I found the cassettes, listened to every one, it’s sad where the mind can take us.

I have an idea how difficult it must have been living with a delusional mind.

Years soften the memories and pain, time doesn’t mean forgiveness. I choose to move forward building a healthy life. I’ve forgotten those times, their packed away, never to share.

Your son doesn’t have recollections of the worst times, he hardly knew you, you two didn’t spend much time. He knows nothing of my pain, like granny, he will go to his grave knowing none.

I talked with your half-brother Michael last year, he had photos and fond memories of you, the times you shared. Thru him I learned your side of the family suffered from depression for generations back.

Until next year

Melinda