I left my General Practitioner today feeling defeated, angry, and very tired. My labs are off, I have an infection and she can’t give me anything for my Sojerns. I was already in a bad head space when I arrived because I knew she couldn’t help me with my chronic issues.
The Rheumatologist that diagnosed me with Sojern’s dissed any treatment. Now I’m scheduled to see my Immunologist to see what he can do. There are two drugs that help produce more saliva, I’m going to ask for an Rx unless he has another plan.
This is how bad it is, my glands are swollen hard as a rock it restricts my throat so eating and taking my meds is a big task. I can take a drink and before my bottle hits the coaster my mouth is completely dry. If not taken care of it will take its toll on your teeth.
I’ve survived a tsunami flare that lasted three weeks, it set off bursitis in my hips and there were days I had severe pain walking and I still have a limp. I spent most of the three weeks in bed, staying up only a few hours a day.
After taking medication for four months I decided the side effects were too much. I was falling, having dizzy spells and my balance was off. It didn’t help the problem so I am now going to the dentist for a mouth guard. For now, I deal with my tongue being in overdrive moving around my mouth.
I’m in a bad headspace right now.