Children · Chronic Illness · Family · Health and Wellbeing · Medical

MANAGING FIBROMYALGIA IN CHILDREN

Welcome to Remedy, a blog by U.S. Pain Foundation. Remedy aims to provide people with the support they need to thrive despite chronic pain. It features the information about promising treatments, tips and strategies for self-management, resources for coping with the emotional and social effects of pain, unique perspectives from patients, clinicians, and caregivers–and much more. To submit an article idea, email contact@uspainfoundation.org.

 

By Brent Wells, DC, a chiropractor and founder of Better Health Chiropractic and Physical Rehab

If your child feels tired and achy, you may not worry initially. After all, there’s nothing urgent about what seems to be mild, general discomfort. However, if your child is constantly in pain, exhausted, having trouble sleeping, and experiencing intense moods, he/she may have fibromyalgia.

This condition is fairly common in adults, but parents and clinicians may overlook the possibility of juvenile primary fibromyalgia syndrome — that is, fibromyalgia in children.

JUVENILE FIBROMYALGIA SYMPTOMS TO WATCH OUT FOR

Fibromyalgia is a chronic condition characterized by pain and fatigue. According to experts, children will often describe this pain as “stiffness, tightness, tenderness, burning or aching.” This pain can last for months and is often accompanied by other symptoms that affect a child’s overall well-being, energy level, and emotional health, including:

  • Tender spots on muscles
  • Difficulty sleeping and fatigue
  • Aches, including stomachaches and headaches
  • Lack of focus or memory
  • Anxiety and depression

If your child is experiencing these symptoms, you should see a doctor. There’s not one test to confirm it, so he/she will go through a range of tests to rule out other conditions.

Unfortunately, there is no one “cure” for fibromyalgia, which can be frustrating for patients, especially children. If left untreated, symptoms can lead to issues at school or making friends. Many parents describe this as a “vicious cycle” where symptoms continue to feed the condition.

Experts still aren’t sure what causes fibromyalgia or how it develops in the body. Some believe that mixed-up pain signals in the brain cause greater pain chemicals and/or overactive pain receptors. Others think it might be triggered, in part, by an emotional event like an illness, injury or psychological stress. But even if the cause involves emotions, the pain is still real.

HOW CHILDREN CAN COPE WITH FIBROMYALGIA

It’s important to create a support team and get your child’s primary care doctor, pain specialist, psychologist, physical therapist, and teachers on board. The more people are aware of your child’s condition, the more they can help him/her cope with symptoms at home and school. You may also want to look for pain support groups near you, for both your child and you as a parent.

Your doctor can help you decide whether medication, such as anti-inflammatories, antidepressants, or nerve pain medications, may be right for your child. He or she also may recommend therapies like injections or topical creams. In conjunction with these interventions, your doctor will probably prescribe treatments like physical therapy and behavioral changes, which are crucial to long-term management of fibromyalgia.

Let’s go over some nonpharmacological strategies for coping with fibromyalgia.

FIVE STRATEGIES FOR IMPROVED SYMPTOMS

Although fibromyalgia may disrupt your child’s life, affecting school and friendships, you may be able to improve your child’s quality of life with these natural therapies and changes. Of course, there’s no cure for fibromyalgia, but by managing symptoms, you can help your child get back to some sense of normalcy.

  1. Get moving!

Exercise can be incredibly valuable for managing your child’s fibromyalgia symptoms. Exercise can relieve muscle stiffness and tire out the body physically so that your child can fall asleep more easily. In particular, pool exercises have been shown to help patients because the warm water can have a soothing effect on pain and also promote blood circulation.

Consider signing up your child for swim class to get regular exercise that is both fun and good for symptoms. Start with limited intervals of exercise at first, and slowly increase them as symptoms allow. Aquatic physical therapy can be extremely beneficial for patients whose fibromyalgia is too severe for regular pool activities.

  1. Incorporate meditation methods

While your child may not be interested in meditation, try to incorporate some of the practices in your child’s daily life. After playtime, encourage your child to take a moment to relax and reset. In addition, teach your child how to use relaxing breathing exercises when he/she feels overwhelmed during school or before bed.

Studies show that meditation can help reduce fibromyalgia patients’ stiffness, anxiety and depression. In the least, promoting a stress-free environment and creating a sense of relaxation will help your child feel less anxious.

  1. Say goodnight to fibromyalgia

Your child’s sleep routine is essential for improving fibromyalgia symptoms. Chart out the best routine for your child together. Make sure he/she goes to bed at the same time every day and start “sleep-ready” habits an hour before bed. This routine could include a break from screen time, reading a story together, listening to a relaxing song and/or taking a hot bath. Promoting a relaxing environment will help your child get to sleep.

Make sure you’re not giving your child food late at night, especially items with any caffeine or sugar. Also, be sure take away tablets and cell phones. The blue light can wake up your child instead of helping him/her get sleepy. Sufficient sleep is essential to managing pain.

  1. Change your child’s diet for success

Some experts recommend following an anti-inflammatory diet to prevent aches and pains. In general, an anti-inflammatory diet is based on the Mediterranean diet, which emphasizes fish, fish, vegetables, whole grains, and olive oil.

Update your child’s lunch to include a handful of nuts, or add an apple for a snack. Anytime you can add fruits and vegetables to his/her diet, do it! This boost of nutrients will fuel your child for success. Try to limit junk food as well, which has no value and could actually inflame your child’s pains.

  1. Schedule your child for a physical therapy session

Your child could benefit from seeing a physical therapist or chiropractor near you. Recent studies show how physical therapy or chiropractic can have a positive impact on fibromyalgia patients. Finding the right physical therapist is important. Call in advance to ensure they have experience with fibromyalgia and/or with children. Specific exercises in physical therapy can help to improve your child’s core strength and incorporate techniques to soothe muscle aches and pain. Similarly, regular massage therapy sessions with an experienced masseuse can improve your child’s exercise, sleep and mood.

TALK TO YOUR DOCTOR

A fibromyalgia diagnosis can be challenging, but doesn’t have to take over your child’s life. It’s a good idea to talk to an expert to come up with the most effective care plan for your child, one that ideally includes a diverse range of strategies, like those listed above. Together, you can talk about your child’s specific issues and needs, and figure out the best way to improve symptoms.

About Dr. Brent Wells

Dr. Brent Wells is a graduate of the University of Nevada where he earned his bachelor of science degree before moving on to complete his doctorate from Western States Chiropractic College. He founded Better Health Chiropractic and Physical Rehab in Anchorage in 1998. He became passionate about being in the chiropractic field after his own experiences with hurried, unprofessional healthcare providers. The goal for Dr. Wells is to treat his patients with care and compassion while providing them with a better quality of life through his professional treatment.

Melinda

 

Children · Family · Health and Wellbeing · Medical

FDA Investigate Serious Side Effects Of Codeine In Children’s Cough And Cold Medicine

FDA MedWatch – Codeine Cough-and-Cold Medicines in Children: Drug Safety Communication – FDA Evaluating Potential Risk of Serious Side Effects
07/01/2015

Codeine Cough-and-Cold Medicines in Children: Drug Safety Communication – FDA Evaluating Potential Risk of Serious Side Effects
AUDIENCE: Family Practice, Pediatrics, Surgery, Patient

ISSUE: FDA is investigating the safety of using codeine-containing medicines to treat coughs and colds in children under 18 years because of the potential for serious side effects, including slowed or difficult breathing.

Children, especially those who already have breathing problems, may be more susceptible to these serious side effects. In 2013, FDA warned against using codeine in children who recently had surgery to remove their tonsils and/or adenoids.

In April 2015, the European Medicines Agency (EMA) announced that codeine must not be used to treat cough and cold in children under 12 years, and that codeine is not recommended in children and adolescents between 12 and 18 years who have breathing problems, including those with asthma and other chronic breathing problems.

FDA will continue to evaluate this safety issue and will consider the EMA recommendations. Final conclusions and recommendations will be communicated when the FDA review is complete.

BACKGROUND: Codeine is a specific type of narcotic medicine called an opioid that is used to treat mild to moderate pain and also to reduce coughing. It is usually combined with other medications in prescription and over-the-counter (OTC) cough-and-cold medicines.

RECOMMENDATION: Parents and caregivers who notice any signs of slow or shallow breathing, difficult or noisy breathing, confusion, or unusual sleepiness in their child should stop giving their child codeine and seek medical attention immediately by taking their child to the emergency room or calling 911. Parents and caregivers should always read the product label to find out if a medicine contains codeine and talk with their child’s health care professional or a pharmacist if they have any questions or concerns. Health care professionals should continue to follow the recommendations in the drug labels and use caution when prescribing or recommending codeine-containing cough-and-cold medicines to children.

Healthcare professionals and patients are encouraged to report adverse events or side effects related to the use of these products to the FDA’s MedWatch Safety Information and Adverse Event Reporting Program:

Complete and submit the report Online: http://www.fda.gov/MedWatch/report
Download form or call 1-800-332-1088 to request a reporting form, then complete and return to the address on the pre-addressed form, or submit by fax to 1-800-FDA-0178
Read the MedWatch safety alert, including links to the Drug Safety Communication and previous MedWatch alerts, at:

http://www.fda.gov/Safety/MedWatch/SafetyInformation/SafetyAlertsforHumanMedicalProducts

Melinda

Family · Health and Wellbeing · Medical · Men & Womens Health · Mental Health · Trauma

Mother leaves 8 year old at county hospital *Reposted from June 2014*

It’s interesting the events our mind suppresses or forgets. I have no problem or emotion talking about the physical and emotional abuse at the hands of my mother and step father. I have disassociated memories of sexual abuse by my father. I know it. My therapist and I have talked about it, she doesn’t push and knows if the door opens I’ll talk. What I will not do is force my mind and body to endure pain it’s not ready for. I have a good perspective on what I’ve survived and the methods our mind uses to deal with our deepest pain. I’m not sure if this particular memory was forgotten or suppressed. I had no emotion as my therapist was almost brought to tears.

I saw a story on the news about a 8-year-old girl tortured by her parents in some way. I don’t recall the circumstances. I always plan what I want to talk about but this day was different. I sat down and the memory of the little girl crossed my mind. I asked her if she had heard the story then adding my thoughts. I started to cry which I do easily for others in pain. As we talked about what type of parent would do that, a childhood memory flooded over me. The tears dried and it was if I was talking about someone else. When I was 8 years old I started having terrible side pains and daycare called my mother. She didn’t take off early and it was maybe 3 hours before she arrived. At that point I could barely walk and could not walk and breath. The supervisor thought I had an appendicitis attack and should get to the hospital right away. It was Halloween night and I didn’t want to miss out on the candy but pain was taking over my small body. My mother was angry for ruining things for my brother, nothing new about that. I guess we did not have insurance since the first hospital turned us away. We are talking early 1970’s. She drove to the county hospital and I waited on a bed until the people bleeding and dying received treatment. Halloween night is one of the busiest nights of the year with more shootings than normal. The emergency room was full and I was outside a mans curtain to wait my turn. During this time my mother left to take my brother to trick or treat. I didn’t realize until a nurse asked where she was. I said she talked to a nurse and went home. She was a big woman and I knew nobody gave her any shit. Asking why in the hell my mother would leave me there. My answer did not sit well with her, I knew a beating was in store for me. One thing to keep in mind is the county hospital is in the hood in one of the worst areas of Dallas. This is not a place an adult would feel comfortable let alone a child. I was on my side crying in pain and saw the man thru the curtain. He was an older man and he had what looked like wires coming out of several places on both arms. My eyes caught his, I ask does that hurt. He was a kind man saying not as bad as my pain did and then where was my mother. I told him how upset I was that my brother would not share his candy with me. He looked shocked my mother would leave me there. My mother eventually came back in the greatest of moods and was raising her voice at the big nurse. I was rooting for her to punch my mother if the mouth or grab her by the neck. I have no doubt it happened many times getting drunks under control.

The doctor didn’t think I needed surgery, just to stay overnight for observation. For a second I was glad until rolled to my room. The hospital was so overcrowded I hade to sleep in a baby bed. That is the last thing a kid (big girl) wants to hear. I cram myself in the bed and they pull the side up. It was so dark in there I thought I was alone until babies started crying. Which made it much worse for me. Not only did I have to sleep with my legs pulled up, babies are crying and my mother is home in her comfortable bed.

You would think at this point in the story I would feel some emotion but my mind switches back to the little girl. My mind turned a switch, my story was over, no big deal, that was my mother, that was my life. I couldn’t help but cry for the other girl. How can people do that to their children. As I’m talking to my therapist my story and pain never crosses my mind again. That was several years ago, it buried itself and popped back up last week.

XO Warrior