Thank you Cindy for allowing me to reblog. Have a great rights. Melinda
Category: Moving Forward
FARA Philadelphia Symposium 2018–Pics & Reflections — Retrospective Lily
Hi, friends. I have a disability called Friedreich’s Ataxia. FARA–Friedreich’s Ataxia Research Alliance–is an organization of doctors, patients, scientists, pharmaceutical companies, patients’ friends and family, etc. that works to advocate, raise money, and search for treatments and a cure for FA. This is my fifth year attending the annual conference in Philadelphia. [Cover Photo Credit: […]
via FARA Philadelphia Symposium 2018–Pics & Reflections — Retrospective Lily
[Wellness Wednesday] 10 Things You Can Do To Stay Well Through Cold And Flu Season — Reclaiming HOPE
Welcome back to Wellness Wednesday everyone! This week I’d like to talk about increasing our chances of staying well during cold and flu season. Okay, I can hear you groaning already….. I know we’ve heard it all before, but the reports I’ve seen on the news have been that 80,000 people died from flu or […]
via [Wellness Wednesday] 10 Things You Can Do To Stay Well Through Cold And Flu Season — Reclaiming HOPE
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On This Day October 18, 2018

On this day October 18, 2018
I thought about you, how awesome you are, how you help me even on your worst days. Thank you for offering support, the kindest comments and honesty. You’ve made a positive impact on my life and attitude. Thank you for following me, sharing your life, sharing your story, most importantly growing together.
M
Something to think about! – Google + shutting down and your blog connection.
Google + closing down. Please the detailed info on how to detach yourself from Google. M
Get your Money for Nothing
If you’ve watched daytime television you’ve heard every get rich quick scheme, start your own business and make $3,000 this month………I’m getting off track. I enjoy making money! I keep it simple by making money on purchases I’m already making. There are tons of apps that do coupons, check prices and anything imaginable if you want to be a SUPER SHOPPER.
I use two apps, Ebates.com and Honey.com. Both are installed in my browser and recognize when I shop at one of their partners. An Ebates.com pop-up ask you to activate by clicking and it shows % on sale received on purchase.
Ebates.com is my long-term favorite, it’s easy and they partner with all the places I shop. To date I’ve earned approximately $600. Ebates.com pays out every quarter for your previous purchases. The big money days are when their partners offer double percent back and 10% days make me very happy. Small sales add up over the year.
Honey.com works based on finding coupon codes for your purchase. It runs thru a long list of coupon codes to see if one applies. You’ll see a pop up that says there are coupons codes. You click and it does it trick. I have not used Honey.com very long but received free shipping on several purchases.
If you are a Prime Member at Amazon.com you have a world of free goodies offered movies, bookes…..on and on. I rely on Amazon.com since I don’t drive and Prime Members get two-day free shipping.
The best discovery I’ve made is the Amazon Prime Member Card. It’s a credit card that can only be used at Amazon.com, it’s offered with no fees. You receive 5% back on every purchase you make on Amazon.com. WOW!!!!!
To give my husband down time on weekends, we get our groceries delivered. Prime Members get free delivery. The amount of time saved has surprised him, the money has brought a smile to my face. The grocery section is Amazon Fresh, they have thousands of products including fresh bread.
Another up side to the delivery Amazon Fresh uses frozen bottled water to keep items cold. Each week we receive 6-8 bottles of water free.
If you really want to save money, work all the coupon apps and be a Super Shopper. You have to be organized to handle that many coupons and will need lots of extra storage space.
Happy Shopping!
M
Let’s Smile Thursday

I’ve struggled with a deep depression since the start of the year, comedy provides relief and Robin Williams always makes me smile. I know he understood and helped many people have open conversations about their depression. This video is a forgotten treasure, it’s the first time Robin went on The Tonight Show. I hope your day is filled with sunshine. M
Midweek Motivation
A GREAT message midweek, I sure needed it. Have a great afternoon.
Lyme Disease, Multiple Sclerosis or Something Else?
Anyone on the Lyme or MS hamster wheel must read her post. So many bloggers can relate to her frustration.
What is Lyme disease? If you are anything like I was. You know little about the disease other than it is usually spread by the bite of a tick.
What is Multiple Sclerosis? The name means Several scars. When most people think of multiple Sclerosis they think of people who are wheelchair bound. Possibly, you are visiting this page in hopes of sorting out some of the confusion surrounding both diseases which mimic each other. I am NOT an expert by no means but in having symptoms and being tested over the past few months I have spent countless hours researching and learning as much as I can. Here is what I know to date…..
Let’s start with Lyme disease. Lyme disease is more commonly transmitted by the bite of a tick, but some say it can be transmitted by other insects and animals such as mosquitos, spiders, mice etc…
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Survivors Blog Here Celebrates Fourth Anniversary
Thank you for being apart of our journey. Melinda
Good Times On Highway To Hell *Part 2*
Childhoods antics which landed my brother or me in trouble.
I have to start with my favorite story, you’ll get a better idea of who I am. At recess in third grade I told the teacher I HAD to go to bathroom. NO, go back and play. Back to teacher few minutes later I HAVE TO GO! You’re just saying that go play. A couple of minutes later I begged the teacher to let me go, NO. I said okay and popped my pants right in front of her. And ended the life I had in my purple elephant bell bottom suit.
Gramps stopped to pick up bread leaving us in-car, I may have been seven. The car was a standard on the column, I was playing like Gramps driving and somehow got the car in neutral. We were rolling out onto a major street. I hopped out trying to get the car to stop, luckily a man stopped to help about the time Gramps rounded the corner. He was in shock, we didn’t get a switch.
My youngest brother was playing on the sidewalk in front of a girl’s house. They were laughing loudly and screaming. The family owned a Saint Bernard which was protective of the girl. The dog jumped the fence, grabbed my brother by the back slinging him side to side. My older brother grabbed a two-by-four, hitting the dog many times, it would not let go until it turned to bite his arm.
When we got a new puppy, and the kids were so in love. So much in love, all four kids woke up in the night a fed the dog a piece of bologna.
My girlfriend’s yard had a slope where we would lie down and throw apples at cars until a man got out a threatened us.
My stepfather really loved boating, the problem was he knew nothing about boats. Our speed boat couldn’t pull up a skier, our houseboat was so huge he had to call a tow truck to get out of the lake.
There was a small drainage ditch down from our house we crawfished in. If we caught enough it was a skillet full of fried crawfish snacks. I hate to think of what was in the water.
M
Warriors Invited To Raise Mental Health Awareness
If you would like to support Mental Heath thru blogging please leave comment for http://www.stoneronarollcoaster@wordpress.com.
She has pulled hundreds of writers together on her Blog to support the Mental Health Community.
22 May, 2018
I started this whole thing on a whim and the way you guys came forward to help is overwhelming. This post looks like a mini support group now for which again I am grateful for each one of you who joined in. It’s been a humbling experience overall.
Today I will start circulating through my trusted 2-3 friends outside blogosphere. I urge you share this post too.
And I would highly appreciate and recommend you reach out to each other too. That’s what helps the most at any given day.
I wont stop this effort here. I will continue to send invites, gather more fighters on random basis and keep on adding them here as long as I have energy.
Thanks a lot everyone for helping me through this. Your support and appreciate means the world to me. 🙂
Apr 27, 2018
I need help from all…
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Avril Lavigne Song About Suffering With Lyme Diseases
Watching her struggle was like hearing about any blogger suffer. I don’t know her or you but do know the pain of Lyme Diseases. She wrote such a beautiful song for a never-ending battle, life changing, everyday hoping to survive. There were days when drowning sound much easier, I overjoyed to be alive. Thank you for all the support over that past five years. M
Hanging out with my bro!
Travelling with illnesses: be a pro jetsetter
Great insight to Air Travel which is my worst nightmare. TSA needs training on how to treat chronically ill. Reagan National was so rough on me one day threatening to have their Cancer/Port person come over to check me out. Bring her on, I’m not going in that damn room with you all alone. I felt demeaned and grouped is front of hundreds. My husband standing by helpless. I will not bend to their overblown egos and tactics to bully the ill. M
So obviously travelling is a nightmare, but it gets so much worse when you’re ill. Here are a few bits of advice for next time you hop on a plane.
1. Be organised.
Before you go, gather up all your documents and get them in order, and then write out an itinerary for your travel. Give yourself plenty of time and plan out any rest breaks or emergency stops in advance.
2. Get comfortable.
Pack a snuggly jumper, fluffy socks, and whatever else you need to get cosy. I like to bring a soft, lightweight scarf, so that I can use it as a blanket when it gets chilly. Wear comfy clothes and consider taking an extra pair of shoes that slip on and off. If you’re spending a good few hours on the plane, you need to do it in comfort, otherwise you’ll regret it later.
3. Pack your…
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“None of the truest things in life-like love or faith-was arrived at by thinking; indeed, one could almost define the things that mattered as the ones that came as suddenly as thunder.”
-Pico Iyer
Newbie looking for Insight and Resources
I appreciate any insight or feedback. Thank you.
Melinda
What do you think of this Theme Mix
I am having trouble getting comfortable with this theme. The post run together on front page, the header selections don’t seem to fit, the background color looks dull. Why can’t I find a bright white background? Do I need to learn the programming codes to accomplish that?
Do I have to many widgets making the page to busy? Anything that comes to mind will help.
My goal is to have a welcoming and comfortable site, comfortable on the eyes for reading and ease moving around site.
I appreciate any feedback no matter how bad, not mean, honest feedback. I just can’t settle into this one.
M
A Love Letter To Realism In A Time Of Grief
TED TALKS: A Love Letter To Realism In A Time Of Grief.
Mark and Simone share the difficulties of having a relationship with Mark who is blind and paralyzed. They are honest, it made me look inside and think if I was strong enough or do I love enough. The connection as a couple and their combined strength is amazing. I have no doubt they will continue to push technology forward. The activities Mark still participates in blows my mind! Traveling to the coldest place on earth, hiking on Everest, you know he can do anything.
I hope you enjoy. M
Michael Pipich Guest Post: Are You Just Depressed or Is It the Onset of Bipolar Disorder? — Kitt O’Malley
This guest post hits close to home. For twenty-one years, from ages eighteen to thirty-nine, I was diagnosed with chronic depression (dysthymia). I’d tell doctors that I was at least cyclothymic, for I my over-productive workaholism led to cyclical depressive crashes. Finally, at thirty-nine years old, I was diagnosed bipolar II. — Kitt Are You Just […]
Friday Quote
“Great Beauty, Great Strength and Great Riches Are Really And
Truly Of No Great Use; A RIGHT HEART EXCEEDS ALL.”
Benjamin Franklin
Poor Richards Almanac
Lyme Progress #5 Trends
ILADS has taken the bold step from staying under the radar to leading the way to better LYME treatment. Today many “expert” Lyme doctors are training Medical doctors to recognize Lyme, basic treatment with written treatment guidelines. You can download the Treatment Guidelines yourself, I look forward to reading.
In theory it sounds good for Lyme suffers looking for a diagnosis. My question is how can a Medical doctor take one short course and spend a week shadowing an “expert” prepare them to treat a complex diseases which manifest itself differently in each individual. I agree some knowledge is better than no knowledge.
Below are the opportunities for physicians to participate in ILADS coursework. M
About ILADEF
The International Lyme and Associated Diseases Education Foundation is a sister organization of ILADS. Its missions are to train physicians in the diagnosis and treatment of Lyme and tick-borne disease, and to support research scientists investigating tick-borne diseases.
Additional Learning Opportunities for Medical Providers
ILADS Lyme Disease Fundamentals Course is a full-day seminar that provides an in-depth examination of the basic science, trial and clinical experience evidence pertaining to the diagnosis and treatment of patients infected with Lyme and other tick-borne diseases. This course is a prerequisite to participating in the ILADS Physician Training Program.
Our sister organization, the International Lyme and Associated Diseases Education Foundation (ILADEF) offers a unique training program to foster excellence in care for Lyme disease patients. The mentorship program, lasting one to two weeks, places physician participants in the offices of ILADS experts where they learn how to evaluate and treat patients for Lyme and other tick-borne diseases. The program is available to clinicians holding either an MD, DO, ND or PA degree and who have completed and successfully passed the Lyme Disease Fundamentals course.
Physician Training Program
ILADEF and ILADS are committed to supporting medical professionals as they take on the challenges in evaluating and treating patients with tick-borne diseases. Lyme disease and other tick-borne infections are complex illnesses which can be difficult to diagnose and challenging to treat effectively. This is especially true for patients with chronic Lyme disease or multiple infections.
ILADEF’s training program provides a foundation in the evidence-based treatment of Lyme and associated diseases, and directly addresses commonly encountered diagnostic and therapeutic challenges. This intensive, one-to-two week program places trainee-physicians in the clinical offices of experts, where they learn how to evaluate and treat patients for Lyme and other tick-borne diseases in a real world setting that allows physicians to appreciate diverse and often subtle presentations of tick-borne disease. Participants will return to practice with enhanced clinical skills and an integrated, nuanced approach to directing treatment. The program is appropriate for, and tailored to meet, the educational needs of its participants, no matter their general experience level or familiarity with tick-borne disease.
I Was The Victim Of Parental Alienation, And This Is What It’s Like
The most damaging story was my father raped her, she had to marry him. One day my father and I had a big fight, in anger I blurted out what she said. The truth was on his devastated face. My father was a bastard but he went to his grave without saying one negative word about my mother.
It’s sad when a parent focuses on turning a child against the other, not thinking about what the child needs. One of the hardest times in a child’s life and all the energy is faulting the other parent, sad. M
http://www.scarymommy.com
Parental alienation is a hot topic right now, particularly among separated or divorced parents, but there are a lot of misconceptions of what it actually is.
In fact, if you ask Christine Hammond, MS, LMHC, she says, “There is hardly a day that doesn’t go by in my counseling practice where someone brings up the concept of parental alienation.” However, according to her, the term is often misused.
According to Hammond, “Parental alienation occurs when one parent encourages their child to unfairly reject the other parent.” Now, this might seem pretty clear-cut, but it’s actually far more complicated than one parent asking their child who’s their favorite: mom or dad? And it can result is some pretty nasty side effects, such as unwarranted fear, hostility, and/or disrespect toward one parent while displaying signs of loyalty, unconditional trust, and/or empathy toward the other.
Parental alienation boils down into three categories:
First, there is naïve alienation.
This is when one parent tries to alienate the child from the other parent through passive-aggressive comments. For instance, when my mother would say, “Your dad makes more money than me, so he can buy you a bike.” While this was probably true, I was only 10, and her comments caused a rift between me and my father when he didn’t buy me a bike.
While this all seems pretty subtle, passive-aggressive comments towards the other parent can add up and create long-term problems. Other examples could be a parent saying something like, “Your father doesn’t work, so she can attend your parent teacher conference. He obviously has the time.” Or “I bet your mother could help with that. She studied English and needs to use it for something.”
The second category is active alienation.
This is when one parent actively tries to alienate one parent by creating feelings of loyalty. For example, one parent might try to get their child to keep secrets from the other. Like when I discovered that my father was writing child support checks, making copies to use in court, and then throwing the checks away without sending them to my mother. He asked me to keep that a secret. I was 11, and felt that I owed it to him to keep quiet (yes, my father was a sleaze-bag, but that’s another essay).
Now, according to Hammond, what my father did by asking me to keep his secret was create a “private bond from which the child learns to withhold parts of their life from the other parent.” Not a good way to raise a child, right? Continue reading “I Was The Victim Of Parental Alienation, And This Is What It’s Like”
Friday Quote
“We can only be said to be ALIVE
in those moments when our
HEARTS are conscious of our treasure.”
-Thorton Wilder, The Woman of Andrus
Darkness Overcomes Me
I stand watching the darkness settle in. The black dog comes to torture me. Emotions, negative feelings left behind are brought out like dolls in a toy box.
I fight, fight hard not to fall in the abyss. Mask are taken out of their resting place, the mask are for me, which one will I need today. Lies and hurtful memories are resolved or locked away, march before me as if yesterday.
Fighting the darkness med change after med change is paralyzing me. How does my husband stay, never knowing the outcome of each day. The uncertainty of mental illness disrupts every one, every day.
I believe God has a plan, I’m on a journey with no road map. I trust the tools learned over thirty-five years. This to shall pass, not fast enough, never fast enough.
There is a light ahead I can not see, trusting it will come back to me. When the darkness lifts my mind looks for a positive. What is positive about the pain and darkness engulfing me.
The survivor in me knows the light is there, the darkness will lift. I push and push trying to get loose of the anchor holding me down. What others think means nothing to me, I’m fighting my own battle, a battle they can not see.
As the sound of birds return and squirrels play chase, I see sunshine once again.
Melinda
A Grandparents Love Lives On With Happy Birthday Wishes
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Livin/Lovin Life
