Men & Womens Health

Glimpse into My life with Chronic Lyme Disease

Looking for the Light

I hope to have a Lyme Update post with information on the cost of treatment. Thank you for stopping by today. I am happy to answer any questions.

Xx M

Sterile Living
Sterile Living
Medical Waste
Medical Waste
IV Port
IV Port
Morning Meds
Morning Meds
State of Living
Living

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29 thoughts on “Glimpse into My life with Chronic Lyme Disease”

    1. I think of you often, praying you have found the right combo of meds the work. I now take Dexedrine, Wellbutrin, Prozac, Xanax, Lorazepam and Lithium. I’m down from the 14 drugs I taken in past. I’ve been on Lithium close to 30 years. Have had no problems. The best way I can describe Lithium is to say it’s a foundation to build on for Bipolar. I’m always here if want to vent or ask questions or talk. We are alike in we have mental illness and both Bipolar. I’ve walked more steps because I’m older than you.
      I gabbed to much. Have a great day.
      :)
      M

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  4. That’s a lot of IV drip and “stuff” to deal with M. If anybody could do it you could. One day and one IV drip at a time. Take care. PS like the changes to the website. Looks good.

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      1. Yes, we do have Lyme but have not used IV. I have a friend that did and it was very hard on her in many ways, but nothing was helping her to clear it from her system until then. I hope you are having good success! (((hugs))) from someone who understands!

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          1. It sounds like you’re making good decisions! :-)

            Hubby and I had Lyme for 18 years before finally getting a doc that diagnosed us properly. My son was born with it… It has been a long long road, but we are finally feeling well and in remission.

            Hang in there – it does get better.

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    1. Thank you Gavin for your comments. I try to bring people into my life to learn something. I just pray others are benefitting from my post. My next post I spell out the cost of treatment. You will shit when you see how expensive treatment is.
      I loved the “lines” photos. You are excellent at seeing something special in so many occasions. That’s your trained eye.
      Think about joining the team and possibly writing on learning to take photos. One thing you have is the eye for looking beyond the surface. I would you to right some post on the behind the camera skills. Think about it. You don’t have to reblog everything. Only when you want. No pressure. If you feel pressure let me know. I want you to feel totally comfortable. We are destined to work together.
      :)
      M
      Take care.

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    1. One important thing to know is Lyme patients can loose cognitive ability. I’m currently at 30-40% which means I forget most everything within a couple of minutes. It’s hard to start from the beginning but I’ve posted the journey. I posted photos to let people see what they may not know. Like your struggles, readers don’t see behind the scenes.
      My fist Lyme Update post is at definingmemories.wordpress.com. WP is a nightmare to work with in transferring my previous post.
      I know you have enough on your plate,you may be in the risk group. Ticks, mosquitos, fly and sandflies can carry the parasite.
      The key to not getting Lyme, no matter wear you are, always wear 20% Deet when outside. If outside wear a light colored top so you can see the tick before it goes into Vampire mode. If possible wear white sock’s and tuck you pant leg in sock’s. It is a pain in the ass but getting Lyme is much worst if not caught early. Some times you get a large circler rash if you see that run to you nearest doctor. I didn’t get the rash which made it harder to identify what was making me sick.
      Being a doctor you can understand politics. Lyme has bullshit politics which keep many people from getting treatment.
      You have two main organizations/beliefs, one says Chronic Lyme doesn’t exist, you only need 4-6 weeks of antibiotics. The CDC hasn’t been truthful with the number of cases, last update was around 10 years ago. The CDC says the same, which means medicare/Medicaid won’t cover treatment, which means insurance companies won’t cover treatment. The stat the CDC needs to shove up their ass is the number of people who die from Lyme every year. If you do get treatment and it’s not covered, expect cost that are sky high. My next post I’ll talk about the cost of treatment. Just the IV Infusion meds are roughly $6,000 a month. Not including prescriptions, supplies for the treatment….it goes on. What pisses me off is the number of people who can’t afford treatment.
      That’s surface information.
      Take care of yourself.
      :)
      M

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      1. Wow. I’m sorry you’ve got this awful disease, but I’m glad you have the resources for treatment. I pulled two loaded deer ticks off of behind my knee last April. I got a classic bull’s eye rash, showed it to my doc, and he laughed it off. I treated myself with azithromycin for two weeks, which I hope was enough! When my joints started hurting unbearably, I panicked, but fortunately it was “just” a bunch of bone spurs, regular osteoarthritis. I know this thing can have a long fuse, so I hope…

        I’ll follow your link and read.

        Take good care xxx

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