Fibromyalgia is an invisible chronic illness with no cure and can take years to receive a proper diagnosis. One of the reasons it’s hard to get a diagnosis is many of the symptoms are the same as other chronic illnesses. A Rheumatologist is most often the type of doctor to provide treatment to limit symptoms. The key is to keep fighting for your health and changing doctors when needed. Your health now and in the future depends on you.
If you are diagnosed by your General Practitioner, ask for a referral to a Rheumatologist right away. Fibromyalgia treatment requires a specialist, maybe several. If you’re afraid to ask for a referral, get over it. Your health depends on it.
Having Fibromyalgia can be a roller coaster, a plan changer, and a total frustration. Get angry, cry, scream, whatever you need to do after your diagnosis, and then get on with living. It’s important to learn about your illness but not to overfocus, month after month, year after year. Learn the symptoms so you know when you are having symptoms or a flair and write them down to share with your doctor.
Keeping a log of when symptoms occurred and did notice any triggers. Looking for triggers can help you learn what you can do to avoid them. Remember every flair is different and every person with Fibromyalgia is different. If you read about how X medication or supplements worked on someone, don’t assume it will work for you. Discuss what you’ve learned with your doctor to see if it’s a good fit for you. *Just a note, there are many supplements that harm your liver and are to be avoided. DO NOT take any supplements before talking with your doctor. You don’t want to add to your health problems. Fibromyalgia will not kill you but many supplements on the market can.
I recommend joining the Fibro Connect FaceBook Group, here you will hear from others with Fibromyalgia. You will hear others’ stories, learn more about the illness and hear what types of treatment have worked for others. This adds knowledge to your toolbox, questions to ask your doctor, and most importantly, how to stay positive about your future. There are many people with fibromyalgia but it doesn’t mean you need to follow them. There are people who are a negative influence by always complaining, you don’t need the negativity in your life.
Give yourself grace when you have to cancel plans, spend the day in bed, or can’t clean the house. When you have a chronic illness you have to remember your health is more important than what you can’t do.
It’s important your partner or trusted friend go with you to all appointments. The reason is to have another set of ears, someone to take notes to compare later, and being included in appointments will educate your loved one straight from the doctor’s mouth.
If you would like to read more about Fibromyalgia from my past posts you can just click on Fibromyalgia in my Category Cloud on my front page.
I’ve included links to a few previous posts of mine on Fibromyalgia.