

Thank you for being apart of our journey. Melinda
Childhoods antics which landed my brother or me in trouble.
I have to start with my favorite story, you’ll get a better idea of who I am. At recess in third grade I told the teacher I HAD to go to bathroom. NO, go back and play. Back to teacher few minutes later I HAVE TO GO! You’re just saying that go play. A couple of minutes later I begged the teacher to let me go, NO. I said okay and popped my pants right in front of her. And ended the life I had in my purple elephant bell bottom suit.
Gramps stopped to pick up bread leaving us in-car, I may have been seven. The car was a standard on the column, I was playing like Gramps driving and somehow got the car in neutral. We were rolling out onto a major street. I hopped out trying to get the car to stop, luckily a man stopped to help about the time Gramps rounded the corner. He was in shock, we didn’t get a switch.
My youngest brother was playing on the sidewalk in front of a girl’s house. They were laughing loudly and screaming. The family owned a Saint Bernard which was protective of the girl. The dog jumped the fence, grabbed my brother by the back slinging him side to side. My older brother grabbed a two-by-four, hitting the dog many times, it would not let go until it turned to bite his arm.
When we got a new puppy, and the kids were so in love. So much in love, all four kids woke up in the night a fed the dog a piece of bologna.
My girlfriend’s yard had a slope where we would lie down and throw apples at cars until a man got out a threatened us.
My stepfather really loved boating, the problem was he knew nothing about boats. Our speed boat couldn’t pull up a skier, our houseboat was so huge he had to call a tow truck to get out of the lake.
There was a small drainage ditch down from our house we crawfished in. If we caught enough it was a skillet full of fried crawfish snacks. I hate to think of what was in the water.
M
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She has pulled hundreds of writers together on her Blog to support the Mental Health Community.
22 May, 2018
I started this whole thing on a whim and the way you guys came forward to help is overwhelming. This post looks like a mini support group now for which again I am grateful for each one of you who joined in. It’s been a humbling experience overall.
Today I will start circulating through my trusted 2-3 friends outside blogosphere. I urge you share this post too.
And I would highly appreciate and recommend you reach out to each other too. That’s what helps the most at any given day.
I wont stop this effort here. I will continue to send invites, gather more fighters on random basis and keep on adding them here as long as I have energy.
Thanks a lot everyone for helping me through this. Your support and appreciate means the world to me. 🙂
Apr 27, 2018
I need help from all…
View original post 11,177 more words
Watching her struggle was like hearing about any blogger suffer. I don’t know her or you but do know the pain of Lyme Diseases. She wrote such a beautiful song for a never-ending battle, life changing, everyday hoping to survive. There were days when drowning sound much easier, I overjoyed to be alive. Thank you for all the support over that past five years. M
Great insight to Air Travel which is my worst nightmare. TSA needs training on how to treat chronically ill. Reagan National was so rough on me one day threatening to have their Cancer/Port person come over to check me out. Bring her on, I’m not going in that damn room with you all alone. I felt demeaned and grouped is front of hundreds. My husband standing by helpless. I will not bend to their overblown egos and tactics to bully the ill. M
So obviously travelling is a nightmare, but it gets so much worse when you’re ill. Here are a few bits of advice for next time you hop on a plane.
1. Be organised.
Before you go, gather up all your documents and get them in order, and then write out an itinerary for your travel. Give yourself plenty of time and plan out any rest breaks or emergency stops in advance.
2. Get comfortable.
Pack a snuggly jumper, fluffy socks, and whatever else you need to get cosy. I like to bring a soft, lightweight scarf, so that I can use it as a blanket when it gets chilly. Wear comfy clothes and consider taking an extra pair of shoes that slip on and off. If you’re spending a good few hours on the plane, you need to do it in comfort, otherwise you’ll regret it later.
3. Pack your…
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-Pico Iyer
I appreciate any insight or feedback. Thank you.
Melinda
I am having trouble getting comfortable with this theme. The post run together on front page, the header selections don’t seem to fit, the background color looks dull. Why can’t I find a bright white background? Do I need to learn the programming codes to accomplish that?
Do I have to many widgets making the page to busy? Anything that comes to mind will help.
My goal is to have a welcoming and comfortable site, comfortable on the eyes for reading and ease moving around site.
I appreciate any feedback no matter how bad, not mean, honest feedback. I just can’t settle into this one.
M
Mark and Simone share the difficulties of having a relationship with Mark who is blind and paralyzed. They are honest, it made me look inside and think if I was strong enough or do I love enough. The connection as a couple and their combined strength is amazing. I have no doubt they will continue to push technology forward. The activities Mark still participates in blows my mind! Traveling to the coldest place on earth, hiking on Everest, you know he can do anything.
I hope you enjoy. M
This guest post hits close to home. For twenty-one years, from ages eighteen to thirty-nine, I was diagnosed with chronic depression (dysthymia). I’d tell doctors that I was at least cyclothymic, for I my over-productive workaholism led to cyclical depressive crashes. Finally, at thirty-nine years old, I was diagnosed bipolar II. — Kitt Are You Just […]
ILADS has taken the bold step from staying under the radar to leading the way to better LYME treatment. Today many “expert” Lyme doctors are training Medical doctors to recognize Lyme, basic treatment with written treatment guidelines. You can download the Treatment Guidelines yourself, I look forward to reading.
In theory it sounds good for Lyme suffers looking for a diagnosis. My question is how can a Medical doctor take one short course and spend a week shadowing an “expert” prepare them to treat a complex diseases which manifest itself differently in each individual. I agree some knowledge is better than no knowledge.
Below are the opportunities for physicians to participate in ILADS coursework. M
The International Lyme and Associated Diseases Education Foundation is a sister organization of ILADS. Its missions are to train physicians in the diagnosis and treatment of Lyme and tick-borne disease, and to support research scientists investigating tick-borne diseases.
ILADS Lyme Disease Fundamentals Course is a full-day seminar that provides an in-depth examination of the basic science, trial and clinical experience evidence pertaining to the diagnosis and treatment of patients infected with Lyme and other tick-borne diseases. This course is a prerequisite to participating in the ILADS Physician Training Program.
Our sister organization, the International Lyme and Associated Diseases Education Foundation (ILADEF) offers a unique training program to foster excellence in care for Lyme disease patients. The mentorship program, lasting one to two weeks, places physician participants in the offices of ILADS experts where they learn how to evaluate and treat patients for Lyme and other tick-borne diseases. The program is available to clinicians holding either an MD, DO, ND or PA degree and who have completed and successfully passed the Lyme Disease Fundamentals course.
ILADEF and ILADS are committed to supporting medical professionals as they take on the challenges in evaluating and treating patients with tick-borne diseases. Lyme disease and other tick-borne infections are complex illnesses which can be difficult to diagnose and challenging to treat effectively. This is especially true for patients with chronic Lyme disease or multiple infections.
ILADEF’s training program provides a foundation in the evidence-based treatment of Lyme and associated diseases, and directly addresses commonly encountered diagnostic and therapeutic challenges. This intensive, one-to-two week program places trainee-physicians in the clinical offices of experts, where they learn how to evaluate and treat patients for Lyme and other tick-borne diseases in a real world setting that allows physicians to appreciate diverse and often subtle presentations of tick-borne disease. Participants will return to practice with enhanced clinical skills and an integrated, nuanced approach to directing treatment. The program is appropriate for, and tailored to meet, the educational needs of its participants, no matter their general experience level or familiarity with tick-borne disease.
The most damaging story was my father raped her, she had to marry him. One day my father and I had a big fight, in anger I blurted out what she said. The truth was on his devastated face. My father was a bastard but he went to his grave without saying one negative word about my mother.
It’s sad when a parent focuses on turning a child against the other, not thinking about what the child needs. One of the hardest times in a child’s life and all the energy is faulting the other parent, sad. M
Parental alienation is a hot topic right now, particularly among separated or divorced parents, but there are a lot of misconceptions of what it actually is.
In fact, if you ask Christine Hammond, MS, LMHC, she says, “There is hardly a day that doesn’t go by in my counseling practice where someone brings up the concept of parental alienation.” However, according to her, the term is often misused.
According to Hammond, “Parental alienation occurs when one parent encourages their child to unfairly reject the other parent.” Now, this might seem pretty clear-cut, but it’s actually far more complicated than one parent asking their child who’s their favorite: mom or dad? And it can result is some pretty nasty side effects, such as unwarranted fear, hostility, and/or disrespect toward one parent while displaying signs of loyalty, unconditional trust, and/or empathy toward the other.
Parental alienation boils down into three categories:
This is when one parent tries to alienate the child from the other parent through passive-aggressive comments. For instance, when my mother would say, “Your dad makes more money than me, so he can buy you a bike.” While this was probably true, I was only 10, and her comments caused a rift between me and my father when he didn’t buy me a bike.
While this all seems pretty subtle, passive-aggressive comments towards the other parent can add up and create long-term problems. Other examples could be a parent saying something like, “Your father doesn’t work, so she can attend your parent teacher conference. He obviously has the time.” Or “I bet your mother could help with that. She studied English and needs to use it for something.”
This is when one parent actively tries to alienate one parent by creating feelings of loyalty. For example, one parent might try to get their child to keep secrets from the other. Like when I discovered that my father was writing child support checks, making copies to use in court, and then throwing the checks away without sending them to my mother. He asked me to keep that a secret. I was 11, and felt that I owed it to him to keep quiet (yes, my father was a sleaze-bag, but that’s another essay).
Now, according to Hammond, what my father did by asking me to keep his secret was create a “private bond from which the child learns to withhold parts of their life from the other parent.” Not a good way to raise a child, right? Continue reading “I Was The Victim Of Parental Alienation, And This Is What It’s Like”
-Thorton Wilder, The Woman of Andrus
I stand watching the darkness settle in. The black dog comes to torture me. Emotions, negative feelings left behind are brought out like dolls in a toy box.
I fight, fight hard not to fall in the abyss. Mask are taken out of their resting place, the mask are for me, which one will I need today. Lies and hurtful memories are resolved or locked away, march before me as if yesterday.
Fighting the darkness med change after med change is paralyzing me. How does my husband stay, never knowing the outcome of each day. The uncertainty of mental illness disrupts every one, every day.
I believe God has a plan, I’m on a journey with no road map. I trust the tools learned over thirty-five years. This to shall pass, not fast enough, never fast enough.
There is a light ahead I can not see, trusting it will come back to me. When the darkness lifts my mind looks for a positive. What is positive about the pain and darkness engulfing me.
The survivor in me knows the light is there, the darkness will lift. I push and push trying to get loose of the anchor holding me down. What others think means nothing to me, I’m fighting my own battle, a battle they can not see.
As the sound of birds return and squirrels play chase, I see sunshine once again.
Melinda

How parents of teenagers can manage their fears.
All parents worry about their children’s well-being at any age, but the issues to worry about mount when children hit the teen years. I am often asked by parents of one child about how to deal with the anxiety they feel. With one child the focus can be more intense, however a parent’s anxiety, upset, or despair when something goes amiss is the same no matter how many children there are in the family.
Parental anxiety is readily absorbed by children and not helpful as teenagers navigate their more complex world—facing more temptations and risks then they did as young children.
I asked my colleague, Dr. Alice Boyes, author of The Anxiety Toolkit, to recommend ways that all parents can tamp down the anxiety they feel as their kids enter the teen years.
7 Ways to Cope with Anxiety about Your Teen
1. Whether you have one adolescent or several, first, be compassionate with yourself about your feelings. There’s no need to beat yourself up about the fact you’re worried. You want to keep your child safe and that concern is bubbling over as anxiety. That’s very understandable and relatable.
2. Confront your specific fears. For instance, do you fear your child will die in a car crash? Is your fear that your child will do something stupid and get arrested? Once you identify your specific fears, gather some “base rate” data on how likely those things are.
Don’t spend hours researching; a 5-minute Google search will usually give you helpful information. For example, a World Health Organization report indicates that the death rate for adolescents aged 10-19 in high-income countries is about 10 per 100,000 in any given day, so around 0.001%. The report also breaks down the major causes of adolescent death and serious injury in those same countries.
The facts make it clear that your son or daughter is unlikely meet harm in this way. While confronting your specific fears might make you more anxious in the short-term, it should decrease your anxiety overall.
3. Once you’ve looked at what the most realistic worries are, identify what you can do to lessen those risks. For example, for male adolescents in the 15-19 age group, road injury is a realistic concern. Perhaps you could schedule a driving lesson every 3 months for your child even after they get their driver’s license so that the instructor can catch any bad habits your teen might be slipping into. The paradox of excessive worry is that it’s paralyzing, and can make people less likely to take the practical steps that would lessen the risk of whatever they’re anxious about.
4. Take practical steps, but don’t go overboard. You might decide to plan or implement one risk reduction strategy every month. Try to start with the things that worry you the most, even if they’re things you’re tempted to avoid such as talking to your adolescent about sexual consent or alcohol and other drug use.
article continues after advertisement5. Keep in mind that while a catastrophe is unlikely, it’s more likely that you and your adolescent might need to deal with a mildly to moderately negative situation, whether it’s bullying, failing to make a sports team, or test anxiety. The best approach to concerns like these is to briefly imagine how, in practical terms, you’d cope if one of them occurred, and that could include getting support for yourself or for your teen.
Reassure yourself that you have the capacity to cope with these sorts of circumstances. Although they would be emotionally difficult to deal with and you might not feel 100% confident or get it 100% right, you’ll be prepared to successfully navigate challenges.
6. You can probably easily think of the risks of being under-protective. In addition, think about the potential costs of being over-protective. By being overprotective you impede your teen’s desire for independence or you can raise a teen who feels stifled and leans on you for every little thing. Write down some of the things you do because of your concern. How might you pull back or at the least, strike a balance?
Whether or not your child has siblings to share the rocky road of the teen years, a child needs to explore and make mistakes to learn and grow.
7. Acknowledge anything that’s going on for you related to your child getting older. Are you concerned about how your identity will shift as you transition to being the parent of a teen rather than a young child? Make sure worries that relate to you aren’t getting unconsciously mixed in with your anxiety about your child’s safety. Acknowledge your own emotions and thoughts without judging them.
article continues after advertisementAlso of interest:
The Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes (or Ad Hoc Committee) is an international, all voluntary, professional committee formed to improve the ICD codes for Lyme and Relapsing Fever borreliosis and address the human rights violations generated by inadequate codes.
In 2017, members of the Ad Hoc Committee met with Dainius Pūras, the United Nations (UN) Special Rapporteur on the right to health and Dr. Shekhar Saxena, the senior WHO official responsible for addressing dementia to discuss their findings from the Report, UPDATING ICD11 Borreliosis Diagnostic Codes, Edition One (March 29, 2017) and entered many potentially fatal complications from Lyme borreliosis into the WHO ICD11 Beta Platform. Many persons in the UN system have friends and family devastated by this disease.
The ICD11 codes now recognize: 1C1G.2 Congenital Lyme borreliosis; 6D85.Y Dementia due to Lyme Disease (Dementia due to other specified diseases classified elsewhere); 8A45.0Y Central Nervous System demyelination due to Lyme borreliosis (Other Specified white matter disorders due to infections). There is additional flexibility under the ‘Coding Note’ for Lyme borreliosis to ‘use additional code if desired, to identify any associated condition or sequelae’ and use the ‘extension code ‘Cause of late effect’ (in addition to both codes) to show the relationship between the causative condition and the resulting sequelae’.
ILADS members who contributed to ‘ICD codes report’ are Jenna Luché-Thayer, Leona Gilbert, Richard Horowitz, Kenneth Liegner and Mualla McManus.
The Ad Hoc Committee’s 2018 report, ‘The Situation of Human Rights Defenders of Lyme and Relapsing Fever Borreliosis Patients: Edition One’also emphasized the need to change these ICD codes. ILADS members Jenna Luché-Thayer, Robert Bransfield, Joseph Burrascano, Mualla McManus, Jack Lambert, Kenneth Liegner, Christian Perronne, Ursula Talib and Armin Schwarzbach contributed to the ‘defenders report’ that was entered into UN record in 2018 by Michel Forst Special Rapporteur for the situation of human rights defenders and reviewed by the Special Rapporteur on the right to health.
Amanda Southworth came up with AnxietyHelper to help teens with mental health issues. Here’s how it works and how to know if a mental health app is helpful.
Amanda Southworth shows her anxiety app to Apple CEO Tim Cook.
Can smartphone apps help people cope with anxiety and depression?
A 16-year-old software developer in California thinks they can.
Amanda Southworth is the young creator behind AnxietyHelper, an iPhone app designed to help people learn about and manage panic attacks, anxiety, and depression.
Inspired by her own experiences, Southworth wanted to create an easy-to-use platform for people living with these mental health challenges.
“This started for me back when I was in middle school, when I had a lot of issues regarding my own mental health, with depression and anxiety,” Southworth told Healthline.
“After I went through that, I wanted to create an all-in-one place where anybody could go and find information, resources, and tools,” she explained.
“Instead of spending hours looking on the internet,” she continued, “they could maybe spend 15 minutes perusing what I created, and they would have a solid idea of what they’re up against, how to fight it, and what they need to do next.”
AnxietyHelper provides information about depression, anxiety, and panic attacks, as well as resources related to other mental health conditions.
It also offers interactive tools, designed to help users cope with mental illness on a day-to-day basis.
“The app has different tools that allow you to deal with mental health on the go, which kind of gamifies a lot of the aspects of therapy,” Southworth said.
For example, the app’s “guided vent” feature invites users to talk through their feelings to experience emotional release.
Amanda Southworth, 16, developed the AnxietyHelper app to help teens.
Its “guided breathing” feature promotes relaxation through meditative breathing breaks.
The app can also help users locate mental health services during a crisis.
“One of my favorite quotes is ‘be the person you needed when you were younger,’” Southworth said. “I wanted to create something that I would have wanted and something that I really needed when I was going through all of this.”
In addition to designing AnxietyHelper, Southworth is also the executive director of Astra Labs, a nonprofit software development company that she co-founded earlier this year.
Mobile health apps constitute a rapidly growing market — and many software developers have designed apps that target users with mental illness.
Stephen Schueller, PhD, an assistant professor of preventive medicine at Northwestern University in Illinois who studies online mental health interventions, told Healthline that some of these apps may provide useful information and support.
“There’s the potential that these apps can help reach people who wouldn’t be able to go see a professional otherwise,” Schueller said.
Due to a shortage of mental health professionals and affordable services, many people with mental illness lack access to professional care.
Additionally, some people may be reluctant or unwilling to seek professional support and prefer to self-manage their mental health needs.
It’s possible that high-quality mental health apps may provide benefits to such people, as well as those who receive professional care but want additional support.
However, it can be challenging to know which apps to choose.
“A lot of them are untested, so we don’t actually know if they work,” Schueller noted.
“There could also be really bad apps out there,” he continued. “I receive and evaluate a lot of apps, and sometimes you open them up and there’s content in there that’s not just wrong but could actually be harmful.”
Some mental health professionals also worry that users might rely on apps, when they would otherwise seek professional care.
Schueller acknowledged that’s possible, but he hasn’t seen evidence of it himself.
“I know a lot of professionals are worried that people will download these apps, not see professionals, and never go for treatment later. I think it’s possible that would occur, but that’s not borne out by my research at least,” Schueller said.
“Actually, what I find more often is people start to use an app, and if they use it a bit, they find there’s more to this mental health treatment stuff than they thought originally, and they actually have more positive impressions of mental health treatment than they had before and are more likely to seek care afterward,” he said.
Schueller directs the nonprofit website PsyberGuide.org, founded by the organization One Mind to help users make informed choices.
This website provides information about mental health apps, including their credibility, user friendliness, and privacy policies.
“We look at credibility. So, how much research evidence is there behind this thing, both direct and indirect? We look at the user experience. Is it aesthetically pleasing, it is easy to learn, is it easy to use? And then we look at transparency around data security and privacy practices,” Schueller explained.
This project is partnered with several mental health organizations, including the Anxiety and Depression Association of America and Mental Health America.
According to Schueller, such collaboration is important for leveraging the opportunities that technologies provide.
“There’s this really interesting potential now for someone to go through an experience, learn what helps them, and build a tool that might be able to help others,” he said.
“At the same time, we also have to make sure that what works for one person is actually generalizable and useful to others,” he continued. “As academics, professionals, and mental health providers, we need to make sure that we can help people who are developing these ideas, try to vet them, and see if these things actually do work — so we can spread the stuff that is useful and prevent the things that are not going to be helpful to people.”
More research is also needed to learn how mental health providers can best integrate mental health apps and other digital technologies into their practices.
In the meantime, Schueller encourages people who experience symptoms of mental illness to reach out to family members, friends, and health professionals for help.
“Technology might be a piece of the puzzle to help cope with some of the experiences of depression or anxiety that someone is going through, but it’s not a panacea — it’s not going to solve the whole problem,” he said.
“I think that thinking about a variety of different options usually makes a lot of sense,” he continued. “Talk with your medical provider about this, if you have a medical provider, even if they’re not a mental health professional. They can hopefully get you connected with services once they know more about what you’re going through.”
The DEA publishes short handbooks in PDF format you can download. If you are not interested in this publication look thru the archives for a topic of interest.
http://www.dea.gov/documents/2017/06/15/drugs-abuse
M
Journal 12/23/2001
Just to go home and spend time with my pets will make a big difference in mood. I look forward to seeing Christmas Cards and learning how friends are doing. The stack of mail will cover the dining table. Plenty of new magazines to read going into new year.
After ECT on Friday I’m determined to go home, he can’t intimidate me. This feels like jail at times but I’m free to walk when ready. I did say future ECT would be out-patient, that was a bold face lie. I’m never stepping foot in here again.
This is the slowest week, counting the minutes to jail break. Only one book left to read, I’ll have to sleep half a day tomorrow. What is shipping from eBay? I went on big shopping spree before check in, it made me feel better. That’s not true, still trying to fill the big void.
Time to set goals! Paint office, clean carpet, organize office closet, clean garage………..let’s see how long I stay on task.
12/24/2001
I had ECT early in morning, slept till noon it’s now 2:00 and time to pack. Told front desk the doctor needed to know I’m leaving. Another two hours of BS but I’m home bound. It is not advisable to drive day of ECT treatment but that will not stop me today. I miss my bed and privacy.
I’m unsure of the value in the post, do the journal entries help anyone? I waited until 2018 to write, it wasn’t a deep seeded trauma. I felt no pain writing this.
I pray people will research the reputation of hospital first. Can they provide the specific help you need? If you don’t know what to expect you may sell your recovery short.
M
Netflix original series “Afflicted” season one has started and you can look at latest trailer at http://www.netflix.com/title/80188953
The Netflix promo grabbed me by the neck and said watch me. “Afflicted” is a show with the people who have baffling long-term chronic illnesses telling their story. Talking with medical professionals, most are clueless what is causing the illnesses.
M
Sometimes there is a fine line, know where your line is. Most important report, get the predators fired or behind bars. M