Health and Wellbeing · Men & Womens Health · Moving Forward

5 Things I Wish I’d Known Before My Chronic Illness

New York Times

By Tessa Miller  Feburary 18, 2019

 

Finding out you have a chronic illness — one that will, by definition, never go away — changes things, both for you and those you love.

Seven Thanksgivings ago, I got sick and I never got better.

What I thought was food poisoning turned out to be Crohn’s disease, a form of inflammatory bowel disease (IBD) that doesn’t have a cure. It fools my immune system into attacking my digestive system, resulting in what I can only describe as the attempted birth of my intestines through my butthole. It’s a cruel and often debilitating disease.

Since that first hospital stay, I’ve had colonoscopies, biopsies, CT scans, X-rays, blood and stool tests, enemas, suppositories, rectal foams, antiemetics, antidiarrheals, antivirals, antibiotics, anti-inflammatories, opiates, steroids, immunoglobulin, biologics and three fecal transplants (if you want to hear a story about my 9-year-old poop donor and a blender, find me on Twitter).

My disease is managed now thanks to an expensive drug called infliximab, but the future is unpredictable. IBD works in patterns of flares and remissions, and little is known about what causes either.

When I was diagnosed, I didn’t know how much my life would change. There’s no conversation about that foggy space between the common cold and terminal cancer, where illness won’t go away but won’t kill you, so none of us know what “chronic illness” means until we’re thrown into being sick forever.

When an illness that the doctors can’t cure becomes part of our life, all the rules seem to change,” said Paul K. Chafetz, Ph.D., a psychologist in Dallas. “It’s scary in a dozen ways.” I’ve learned countless lessons since the early days of my illness, but here are five I wish I’d known from the start.

Chronic illness patients not only face painful physical symptoms, but also mental ones that linger even when the disease is well controlled. “There is trauma related to certain aspects of illness or treatment, and fear of outcomes like death or disability,” said Matt Lundquist, LCSW, a psychotherapist in New York. “For many people, there are financial uncertainties of paying for medical care.” Plus, there’s anxiety over loss of autonomy and control, he said.

Chronic illness also increases the risk of depression, Mr. Chafetz said, citing a 2007 World Health Organization survey that found a higher likelihood of depressive episodes among those with chronic health conditions than without.

A therapist should be considered a crucial part of your care team, just as important as a gastroenterologist or cardiologist. “A provider who has experience working with chronic illness is key,” Mr. Lundquist said. “It’s a population whose mental health struggles can be misunderstood.” If you’re homebound, some mental health professionals will do home visits, Skype or phone appointments, or you can connect with one through apps like TalkSpace and BetterHelp.

[Please note, if you’re feeling helpless or suicidal, the Suicide Prevention Hotline is available 24/7 at 1-800-273-8255. You can find a list of additional resources at SpeakingOfSuicide.com/resources.]

 

Moving Forward

Iditarod 2019 — MyLifeasaPhotographer

Saturday, March 2 was the 111th Iditarod held in Anchorage Alaska. Well, the opening ceremony that is; all the racers assemble in downtown Anchorage for the opening ceremony and then one-by-one mush to the airport where the dogs get put away until Sunday where the race officially starts in Willow AK. This year was an […]

via Iditarod 2019 — MyLifeasaPhotographer

Moving Forward

What is Agoraphobia? — The Psych Talk

Agoraphobia is a very complex phobia usually manifesting itself as a collection of inter-linked conditions. For example many agoraphobics also fear being left alone (monophobia), dislike being in any situation where they feel trapped (exhibiting claustrophobia type tendencies) and fear travelling away from their ‘safe’ place, usually the home. Signs and Symptoms: Typical agoraphobia symptoms […]

via What is Agoraphobia? — The Psych Talk

Moving Forward

# Face the truth with pleasure! — My experience

Accepting the truth is not always easy. But when you have the courage to see the truth and adopt it, then life becomes very easy.What happened if there is a bad phase at this time? What if the time is not giving up? What if the other are going ahead? Instead of being distracted by […]

via # Face the truth with pleasure! — My experience

Moving Forward

How to Stop Being Irritable — The Psych Talk

Everyone experiences irritability at some point in their lives but for some people, it can become problematic and affect their relationships and personal well-being. In this case, there are many things you can do in order to reduce your levels of irritability and have more productive encounters with others. Avoid triggers and Change Environments: Removing […]

via How to Stop Being Irritable — The Psych Talk

Celebrate Life · Fun · Moving Forward

Stream of Consciousness Saturday Prompt “Critic/(cal).” #SoCS

Your Friday prompt for Stream of Consciousness Saturday is “critic(al).” Use it any way you’d like. Have fun!

At the height of my career as a Sales Executive, I was critical of everyone who didn’t do the agreed process. In the Consulting business processes are important, if a Recruiter sent an unqualified consultant to my client, I had to fire the employee and walk them off the job-site. I was forever critical until realizing work wasn’t everything and the sun will come out soon.   M   

 


Join us for the fun and sharing good media stories  

For more on the Stream of Consciousness Saturday, visit Linda Hill’s blog. Here’s the link:
Here are the rules for SoCS:
1. Your post must be stream of consciousness writing, meaning no editing, (typos can be fixed) and minimal planning on what you’re going to write.
2. Your post can be as long or as short as you want it to be. One sentence – one thousand words. Fact, fiction, poetry – it doesn’t matter. Just let the words carry you along until you’re ready to stop.
3. There will be a prompt every week. I will post the prompt here on my blog on Friday, along with a reminder for you to join in. The prompt will be one random thing, but it will not be a subject. For instance, I will not say “Write about dogs”; the prompt will be more like, “Make your first sentence a question,” “Begin with the word ‘The’,” or simply a single word to get your started.
4. Ping back! It’s important, so that I and other people can come and read your post! For example, in your post you can write “This post is part of SoCS:” and then copy and paste the URL found in your address bar at the top of this post into yours. Your link will show up in my comments for everyone to see. The most recent pingbacks will be found at the top. NOTE: Pingbacks only work from WordPress sites. If you’re self-hosted or are participating from another host, such as Blogger, please leave a link to your post in the comments below.
5. Read at least one other person’s blog who has linked back their post. Even better, read everyone’s! If you’re the first person to link back, you can check back later, or go to the previous week, by following my category, “Stream of Consciousness Saturday,” which you’ll find right below the “Like” button on my post.
6. Copy and paste the rules (if you’d like to) in your post. The more people who join in, the more new bloggers you’ll meet and the bigger your community will get!
7. As a suggestion, tag your post “SoCS” and/or “#SoCS” for more exposure and more views.
8. Have fun!

 

 

Moving Forward

Finally, something that ACTUALLY works for my Fibro and RLS pain!!! — Fighting With Fibro

Finally, a product that actually works for my Fibro and RLS pain

via Finally, something that ACTUALLY works for my Fibro and RLS pain!!! — Fighting With Fibro

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Happiness… — Let’s Talk

Rajesh’s quotes “Beauty is not beauty unless it is framed;life is not life unless it is lived happily!”— Rajesh Walecha Goodreads Quotes

via Happiness… — Let’s Talk

Moving Forward

Is Your Perfume Poisoning You? — Talk Health With Alex

I’m a perfume wearer and I’ll definitely tell you that it smells good but the million dollar question is “Is it Toxic?” Perfumes tend to draw on essential oils in their formulations, but also include a number of chemicals (many known and probable carcinogens) that can outrightly cause a lot of health hazards. Fragrance is […]

via Is Your Perfume Poisoning You? — Talk Health With Alex

Moving Forward

5 top mental health podcasts for 2019

Beth's avatarMy Anxiety Matters

So, I’m a big fan of my headphones. I’m a big fan of tuning in and tuning out. I love my music but sometimes I get bored. As I was going through my bored stage, I went looking for something new to whet my appetite and keep me occupied on the bus to work or walking at lunchtime.

As you can probably tell, I have a passion for and interest in mental health which is why I got onto iTunes and went searching for the perfect podcast. And there are hundreds out there. If you were thinking of making the jump from music to moments of wisdom and knowledge, check out the podcasts below. The subjects are interesting and I’ve found some really great snippets of mental health advice lurking in them.

CTRL ALT DELETE (Emma Gannon)

Ctrl Alt Delete (Photo credit - Emma Gannon)
Ctrl Alt Delete (Photo credit – Emma Gannon)

If you haven’t heard of…

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Prisoner of Destiny — Life in a Muslim Household

They say, A silence can speak a thousand words but you need to have ears to hear it. There are times when you wish you could spill out all that’s buried deep inside you for years but then again you are struck by the reality that’s its better kept hidden. I don’t get why we […]

via Prisoner of Destiny — Life in a Muslim Household

Moving Forward

Georgia O’Keeffe in North Carolina by da-AL — Happiness Between Tails by da-AL

What a great time my husband and I had visiting our dear friend David Hunt in North Carolina. He’s posted on Happiness Between Tails here and here. We hadn’t seen him in way too long — all the more reason that my recent discovery of the touching PBS series, “We’ll Meet Again,” gets me blubbering. […]

via Georgia O’Keeffe in North Carolina by da-AL — Happiness Between Tails by da-AL

Moving Forward

[Wellness Wednesday] The Importance Of Lifelong Learning — Reclaiming HOPE

Welcome back to Wellness Wednesday everyone! This week I thought we could talk a little about the importance of continuing to learn throughout our lives. Sometimes we tend to think of learning only in the context of formal education, but the truth is that more learning takes place outside of the classroom than it does […]

via [Wellness Wednesday] The Importance Of Lifelong Learning — Reclaiming HOPE

Moving Forward

Hope in Times of Illness: When You Feel Worthless

Beth's avatarLyme Light Fight

When you get sick, there is a sudden change in your abilities. One day you are actively participating in family, work, school, and hobbies. And the next day you struggle to do the things you love. You may find your abilities lessened or even stolen completely by a silent enemy.

You may feel like a shadow of your former self. You may feel like an invalid, a cripple, a burden. You may hate the person you have become.

In these moments, remember that inside you are still the same person. Inside you still have the same soul, the same spirit. You are tired and weary now, and that is okay.

It is okay to rest when you are fighting. It is okay to accept help. It is even okay to ask for help. You are not any less of a person for needing help, you are not any less you…

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Moving Forward

Share Positive Energy

livinginleuvenbelgiumeurope's avatarIndians Abroad Desi Videsh Me

Sunshine and Music can change your entire mood. Moods are Contagious.

Calm mind brings inner strength and self-confidence.

Food can change your mood. It’s almost like Music.

– Tiffani Thiessen

*******

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Moving Forward · Survivor

Friday Quote

 

Helen Keller Friendship, Light, Friend, Alone, Better

Optimism is the faith that leads to achievement. Nothing can be done without hope and confidence.

Helen Keller Motivational, Confidence, Hope, Faith The best. 

Most beautiful things in the world cannot be seen or even touched – they must be felt with the heart.

Helen Keller Inspirational

Beautiful, Heart, Best Walking with a friend in the dark is better than walking alone in the light

The highest result of education is tolerance. - Helen Keller

 

 

Health and Wellbeing · Moving Forward

La educación sexual de Netflix es genial, pero se pone mal la terapia y no es la única.

Espía digital

POR ABBY ROBINSON
28/01/2019

La nueva serie de comedia dramática británica Sex Education es un golpe inmediato, que pega a los estudiantes de la escuela secundaria Moordale y sus preocupaciones basadas en el sexo justo en frente de su cara sin previo aviso o disculpa.

Porque esto es un espectáculo en una misión: “[se trata de] animar a la gente a arrancar la venda de la ayuda y tener esas conversaciones incómodas, torpe sobre el sexo, en lugar de embotellar todo en el interior, o pensar que tienen que ir en línea para obtener las respuestas, ” escritor Laurie Nunn le dijo a Digital Spy y a otra prensa. “Para tratar de hablar con sus compañeros o-si pueden manejarlo-a sus padres, o a sus amigos.

“Realmente pensamos que eso les va a ayudar a tener relaciones sexuales más saludables. ”

Es un propósito noble y por eso, nada es sanitizado. Las preocupaciones que los personajes están lidiando están pintadas en los colores más ruidosos, enfáticamente salpicado a través de la pantalla porque, como el reparto y la tripulación tienen contras

“La primera campana de alarma que experimenté cuando vi que era la forma en que sugirió que el sexo y la terapia de relaciones era algo completamente dividido de la salud general de la gente y el bienestar mental, ” profesor Sarah Niblock, Director Ejecutivo del Reino Unido Consejo de psicoterapeutas, le dice a Digital Spy exclusivamente.

“Eso es un poco ridículo y que tipo de socava toda la premisa de lo que sigue. ”

A lo largo de la serie, los estudiantes de diferentes orígenes y Estados sociales se acercan a Otis (Asa Butterfield) para obtener ayuda con una serie de problemas extraños y maravillosos en relación con el sexo y sus cuerpos.

Otis entonces prepara sus perlas de sabiduría, al igual que su terapeuta de sexo y relaciones calificado madre Jean (Gillian Anderson) hace a sus clientes, y lejos van, instantáneamente más ligero, ya no empantanado por sus problemas pesados.

Al igual que Sherlock Holmes, Otis, de 16 años de edad, utiliza la evidencia antes que él para localizar el quid de sus acertijos y, en última instancia, conseguir que sus pacientes.

 

 

Health and Wellbeing · Men & Womens Health · Moving Forward

What old story about yourself are you still believing? Here’s how to find it and change it

Ideas.Ted.com

Jan 24, 2019 /

Many of us hold deeply ingrained beliefs about ourselves that are simply not true. You can start to free yourself from them by editing your narrative, says psychiatrist John Sharp.

Every weekday for the month of January, TED Ideas is publishing a new post in a series called “How to Be a Better Human,” containing a helpful piece of advice from a speaker in the TED community. To see all the posts, click here.

There are many things in our lives that we have little control over — the news, the weather, the traffic, the soup of the day at our local café. But among the things that we can control, there’s a big one: our story.

This narrative is not the one that contains the objective facts of our lives;

instead, it’s “the story you’ve been telling yourself about who you are and how everything always plays out,” says psychiatrist and Harvard Medical School professor John Sharp.

And he adds, “If you want to change your life, it needs a re-edit.”

The problem with this story is that too often, it’s not accurate — writer Marilynne Robinson calls it “a mean little myth.”

Sharp, the author of The Insight Cure: Change Your Story, Transform Your Life, explains, “Some emotionally difficult scenes are way over-included — just think of all the things you can’t let go of — and other scenes are deleted, such as times when things did go well. The worst part about the false truth … is that it becomes our self-fulfilling prophecy, the basis of what we expect from ourselves in the future.”

To begin revising your narrative, Sharp recommends doing the following:

1. Identify where your narrative diverges from reality.

For Sharp, his parents divorced when he was young, and he says, “the false truth that I held to so dearly was that just … as I couldn’t be effective in keeping my parents together, I probably couldn’t be effective at much of anything else, and this left me feeling very insecure.”

Since you’ve long accepted your false story as the official account, it may not be super-obvious to you. If you’re not sure what it is, try filling in these blanks, says Sharp:
“If I break a promise to myself, I feel ___________.”
“When someone ignores me, I feel _____________.”
“When my partner or best friend and I have a big fight, I feel _____________.”

Why these prompts? Our inaccurate narrative tends to be one that we default to when we’re faced with difficulty or disappointment.

Another way to help you identify your old story is to listen to your self-talk and notice when it includes statements that begin with “I always ______,” “I’m always ______,” or “I never ______.”

After you find your ingrained story, think back to your childhood and try to look for the experiences that helped feed it. And if you end up identifying multiple false stories, choose the one that’s had the most impact on your life. Sharp says, “While I know there are many stories and many possible revisions for all of us, I truly believe that there’s one underlying story that you deserve to identify and rework first.”

2. Question your beliefs.

Let’s say your deep belief is no matter what you do, it’s not enough; perhaps your parents were rarely satisfied with your achievements, even when they were stellar, and fixated on your next report card, exam or accomplishment. So, ask yourself: While that might have been the case when you were younger, is itreally true now that what you do is never enough?

“When you view it from an adult perspective, you can see that it’s not fair or just to ourselves,” says Sharp.

Your story doesn’t have to have been caused by your parents, but it’s typically the result of a relationship we had when we were young. Explains Sharp, “It happens at a time before we know the difference between a healthy and and unhealthy reaction to something that really scares us, so we hold on to the wrong conclusion.”

3. Don’t beat yourself up.

It’s normal to feel a bit discouraged when you realize how long you’ve been telling yourself a false narrative. But know you’re far from alone — many of us walk around with these stories, says Sharp. “We need to be compassionate with ourselves about how this came into being.” Most people come up with them for what he calls “understable reasons” — the need to maintain a sense of control and the tendency for kids to take specific circumstances and generalize broadly.

4. Introduce positives into your narrative.

Think about all your strengths and talents, and appreciate them. While the situations that led to the false story have made you into who you are today, they’ve probably affected you in positive ways as well. Maybe they’ve made you more resourceful, more responsible, more empathic, or more ambitious. These positives, big and small, deserve a place in your story, too.

5. Leave behind the old story.

“Cut away what no longer serves you,” says Sharp. “Identify and gather up all the many exceptions … and accept that it’s safe now to move on. You no longer have to hold on to that false security.”

One of Sharp’s patients was a woman who avoided all challenges and adversity. Upon reflecting about her past, she realized “she suffered from the false truth that when she fell, she couldn’t pick herself up,” says Sharp. “Now she knows she can, and her future looks entirely different and better.”

Sharp is a fervent believer in the power of editing one’s story. “If I hadn’t cut away from my ‘mean little myth,’ then I’m confident now that I wouldn’t be here with you today,” he says in his TEDx talk. “In my 20 years of clinical practice, I’ve seen this kind of transformation over and over again.”

Watch his TEDxBeaconStreet talk here:

Health and Wellbeing · Moving Forward

Todo sobre mí: la menstruación y los cambios corporales

Traído a usted por la ciudad médica plano de las mujeres

Si su hija se aproxima a la pubertad, tiene una tarea importante por delante. Cuanto mejor la preparó para los próximos cambios biológicos, más fácil será su transición a la feminidad.

Las madres e hijas juntos pueden aprender sobre los aspectos biológicos, médicos y prácticos del estilo de vida de la menstruación de un obstetra/GINECÓLOGO en el personal del centro médico de plano.

Estamos blogueando desde todos los rincones del mundo, tal vez un hospital o centro médico cerca de usted tiene información similar. Siempre se puede iniciar un grupo para educar a las niñas en áreas más pequeñas. Si tienes suerte, tu madre te da un buen ejemplo de lo que puedes esperar y abrazar los cambios.  M

Men & Womens Health · Moving Forward

It’s All About Me: Menstruation & Body Changes

 

adult beautiful child cute
Photo by Pixabay on Pexels.com

Brought to you by Medical City Women’s Plano

If your daughter is approaching puberty you have an important task ahead. The better prepared her for the upcoming biological changes, the easier her transition to womanhood will be.

Mothers and daughters together can learn about the biological, medical and practical lifestyle aspects of menstruation from an OB/GYN on Staff at Medical Center of Plano.

We are blogging from every corner of the world, maybe a hospital or medical center near you has similar information. You could always start a group to educate girls in smaller areas. If lucky you’re mother set a good example of what to expect and embrace the changes.  M

Moving Forward

# Time and energy in life are like two aspects of coin. Use it instead of misuse!

Thanks for sharing the words of wisdom. Have a great day.

rajanisingh885721172's avatarMy experience

There is a limited stock of time and energy in our lives. As time passes, the time does not come back, in the same way if you shed all your energy to make others happy, then you will not be able to save anything for yourself. That is why we have our own energy in life and our Time is spent wisely, so that there is a better coordination between these two things.Whenever you feel that the energy aspect from your life is rapidly over If you are being happy, then start giving yourself time. When you are happy from inside, then the level of energy will increase automatically. In such a way when there is a lack of purpose in life, if nothing is going on, then in the well of others, our energy Start feeling.You will feel that your time is being utilized. You will also find your…

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Moving Forward

Forgiveness and Healing — The Life of A Therapist

One of the hardest things that I had to face as an adult is forgiveness. When I think about how hard it is, I ask myself why it is worth it? The things that we face in life at the hands of others can be painful; however, to gain healing requires us to forgive. As I […]

via Forgiveness and Healing — The Life of A Therapist

Moving Forward

Fruit and Flowers

Beautiful, I love the blend of colors, the small detail are perfect. You skills are improving everyday. I’ll have to check out the store. :)

Sand Salt Moon's avatarSand Salt Moon

Available in my Society6 shop …

Artwork by Sand Salt Moon’s Cynthia Maniglia

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Moving Forward

The Panic Attack

No one knows what their kid will do, drink, drugs, hang with wrong crowd, all of those things and happen and parents can’t point fingers. You do everything for your kids. You do everything you can for your kids. :)

Louisevirginiareed's avatarArmy of Angels: Part 2

This is a true story of one of 12 year old Brother’s recent panic attacks. He has several diagnostic “labels” that have been formally used to explain the behaviors and guide treatment: Schizotypal Personality Disorder, Autism with PTSD, and , Generalized Anxiety.

We joined a local fitness club recently. Both AoA kids are old enough to use equipment in the workout area (with adult supervision). They had to take a short orientation class with a trainer in order to be allowed to do this. I signed up and put it on the family calendar. Both kids were fine about doing this.

The time came to go to the center. Both kids were fine. When we arrived, we all walked in together with no problem. We were directed to wait with a few others, until the trainer arrived. Brother took one look at the few people sitting in the waiting area…

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